Science topic

Quality of Life Research - Science topic

Explore the latest questions and answers in Quality of Life Research, and find Quality of Life Research experts.
Questions related to Quality of Life Research
  • asked a question related to Quality of Life Research
Question
2 answers
Hello,
I am conducting a study in the topic of COVID-19 & Quality of Life of Children and Adolescents.
We are collecting data in Indonesia using Google Form. Samples are children and adolescents age 10-18 years-old.
If you are interested in conducting the study in your country, please feel free to contact me.
I would be more than happy to share the questionnaire in English with you all.
We can do comparative studies between your country and my country.
Best wishes,
Ihsana
Relevant answer
Answer
Hello,
What would be the minimum number of subjects in the sample to be able to participate in the study, and do you already have Spanish researchers collaborating with you?
  • asked a question related to Quality of Life Research
Question
3 answers
I am currently scouring with the web for an inventory which can assess the overall well-being of people/students from ages 14+. The qualities that I am looking for are:
  • <30 questions long
  • Ages 14+
  • High validity and reliability
  • Multiple choice, not written
Any help would be greatly appreciated. I am having so much difficulty because I am skeptical of very short questionnaires(e.g. SWLS, BRS, BMSLSS), but I do not know if that is fair.
Any help would be greatly appreciated. Thank you.
Relevant answer
Answer
If you want to conduct the study on children and adolescents, you might be interested to use the EQ-5D-Y.
Please be referred to the following documents
Or refer to the official website
  • asked a question related to Quality of Life Research
Question
29 answers
Endowments (Al-Awqaf) are one of the historical entrances adopted by ancient societies to revive, sustain and preserve some essential objects, whether buildings or otherwise, on the one hand.
On the other hand, in examining Sustainability, it is clear that it has environmental, social, and economic approaches.
Through these aspects, and under the current conditions of societies in different countries, concerning changing ways of thinking and scientific and technological capabilities, the following questions arise:
1. Can the role of endowments be revived, organized, and managed?
2. Can it be activated strongly commensurate with the capabilities of the current era?
3. Can it be considered one of the recommended approaches to achieve sustainability as an ultimate goal?
Relevant answer
Answer
Dear Dr Konbr,
Interesting question. Waqf, as you mentioned, is a potential and a possibility, not inherently good or bad. It can show its (destructive or enhancing) capacities in its interplay with other political and economic factors. In some contexts, waqf can become a rigid and self-centred economic organisation, not showing interest in conservation or anything that disturbs its economic development. It can become almost similar to a private owner who thinks mainly about generating more financial capital from its properties. See: https://www.researchgate.net/publication/320464366_The_Iranian_bazaar_as_a_public_place_a_reintegrative_approach_and_a_method_applied_towards_the_case_study_of_the_Tabriz_Bazaar
I have also briefly talked about waqf and conservation here:
Some scholars like Rostom have a more optimistic approach in waqf. See (Rustom, J. (2016). Waqf urban strategies in Beirut (1860-1908) from charity to real-estate speculation to denominational representation ).
As an Iranian scholar, I cannot be as optimistic as my colleagues in other Islamic countries, when it comes to waqf (as an organisation, not a tradition).
Good luck with your research.
  • asked a question related to Quality of Life Research
Question
20 answers
We are conducting a survey among Arabic-speaking refugees and need a validated version of this questionnaire. Other questionnaires concerning functional impairment, mental health etc. in Arabic will also be appreciated.
Relevant answer
  • asked a question related to Quality of Life Research
Question
9 answers
I have some mammogram images which are too large. How can I reduce size of images into 8 bits?
Relevant answer
Answer
You can read this article:
Mammogram Image Size Reduction Using 16-8 bit Conversion Technique
Regards
  • asked a question related to Quality of Life Research
  • asked a question related to Quality of Life Research
Question
4 answers
In my research into Sustainability Engineering, Time Use shows itself to be a very important variable. Together with ecological impacts (Ecological Footprint or Planetary Boundaries), Time Use to meet needs is a required unit of measurement. I am using both Max Neef's theory of Fundamental Human Needs, and Doyal & Gough's theory of Human Need.
In my current paper, I am wanting to make a number of statements, and I would like to know of existing publications that have made similar conclusions:
• People are, at all times, acting to meet their perceived needs
• People are generally not able to distinguish between their actual needs and their perceived needs
• People will always act to minimize the time used to meet their perceived needs, so that the time available to meet their wants are maximized
• People will generally act to maximize the portion of their perceived needs that are met
Are there sources you would recommend?
Relevant answer
Answer
Thank you William Hansen; Very nice - I've seen that decision making approach before, but didn't know its name. Thank you.
I think you are seeing this in a different light than I am, which is precisely why I asked this question. If people aren't actively pursuing wants and needs, what else are they doing? Passively meeting wants and needs? Or is there a third category between want and need?
  • asked a question related to Quality of Life Research
Question
10 answers
Suppose I am doing a Case control study. Lets say Group 1 is a clinical population (N=30), Group 2 is a healthy control population (N=30). I have measured various variables (Continuous data) in both the groups, and using t-test I have found the difference between the two groups. Now, suppose I want to find relationship between the two variables, can both the groups be clubbed together (N=60), or do I do separate correlation analysis for each group?
For Example: If "satisfaction with life" and "quality of life" are research variables in two groups, specifically Patients with anxiety vs Healthy control. I can get continuous data for both these variables using a questionnaire, and I can do a t-test and establish if there is a difference in satisfaction with life and quality of life between these two groups. Now, if I want to know the association between satisfaction with life and quality of life, can I club both patient group and healthy control group together? If yes, is it applicable always, or, are there some conditions? Please explain as my research question is different, and I have just given an example here.
Relevant answer
Answer
No need to clubbed the data. find the correlation between the variables not the groups. For example in group one variables height and weight and similarly in group two. so we will apply the correlation analysis between the variables height and weight. we will check how much correlated height and weight to each other.
if the data is normal then use Pearson correlation otherwise Spearsman. After getting the correlation value ( r or rho) then simply check in which group the variables are much correlated ( in control or case group).
  • asked a question related to Quality of Life Research
Question
9 answers
btw, my research topic is the 'preserving the landscape physical quality to enhance the social sustainability in the traditional Malay settlement in Kuala Terengganu' . anyone have any articles related to my study?
Thanks
Najiha
Relevant answer
Answer
Najiha Jaffar, here you go.
- Carter, Craig R., and Dale S. Rogers. "A framework of sustainable supply chain management: moving toward new theory." International journal of physical distribution & logistics management 38, no. 5 (2008): 360-387.
- Deacon, Harriet. "Towards a sustainable theory of health‐related stigma: lessons from the HIV/AIDS literature." Journal of community & applied social psychology 16, no. 6 (2006): 418-425.
- Pearce, David W., and Giles D. Atkinson. "Capital theory and the measurement of sustainable development: an indicator of “weak” sustainability”." Ecological economics 8, no. 2 (1993): 103.
- Gladwin, Thomas N., James J. Kennelly, and Tara-Shelomith Krause. "Shifting paradigms for sustainable development: Implications for management theory and research." Academy of management Review 20, no. 4 (1995): 874-907.
Best,
  • asked a question related to Quality of Life Research
Question
5 answers
Questions on Life Satisfaction (FLZM) - A Short Questionnaire for Assessing Subjective Quality of Life.  Thank you.
Relevant answer
Answer
Hello Marylou Duron , I am an undergraduate researcher currently writing my dissertation on Optimism Bias... you haven't been able to track down a copy of the General Life Satisfaction Module have you? I have also struggled to find a copy of this (other than the German one provided above), thanks in advanced.
  • asked a question related to Quality of Life Research
Question
7 answers
I am looking for potential research collaborator(s) on following research topics:
  • Links between wellbeing and services industries – opportunities and challenges
  • Corporate social responsibility and customer wellbeing in service settings
  • Corporate social responsibility and employee wellbeing in service settings
  • Corporate social responsibility and community well-being in service settings
  • Corporate social responsibility and environmental wellbeing in service settings
  • The role of the service industries in facilitating value creation for consumer wellbeing
  • Examining wellbeing and quality of life issues within different cultures and service industries.
  • Establishing interrelationships among competitiveness, issues of sustainability, consumer, and societal well-being
  • Impacts of service activities on consumers’ subjective wellbeing
  • Development of wellbeing and quality of life indicators for service industries
  • Replication and validation of wellbeing indexes in service settings
  • Case studies and best practices of wellbeing and quality of life measures in service settings
Relevant answer
Answer
I am Interested !
It is one of the research area I worked on in my MS dissertation. Well being and CRM.
I guess we work in same University. It would be nice to collaborate in one of the research area after discussion.
Kind regards,
Shams
  • asked a question related to Quality of Life Research
Question
5 answers
I'm unable to find any studies (other than the original) that used this instrument.
Thanks for your help,
Frank
Relevant answer
Answer
Hi Nirta
Try the following references:
1. Z. A. Al-Hemyari and A. M. Al-Sarmi (2016). Validity and Reliability of Students and Academic Staff’s Surveys to Improve Higher Education. Educational Alternatives, Journal of International Scientific Publications, Vol.14, pp. 242-263
2- A. M. Al-Sarmi and Z. A. Al-Hemyari (2014). Quantitative and qualitative indicators to assess
the performance of higher education institutions. Int. J. of Information and Decision sciences,
Vol.6, No. 4, pp.369-392 (Inderscience).
3- Z. A. Al-Hemyari and A. M. Al-Sarmi (2014). Statistical characteristics of performance indicators. Int. J. of Quality and Innovation. Vol.2, No.3-4, pp. 385-309 (Inderscience).
Regards,
Zuhair
  • asked a question related to Quality of Life Research
Question
19 answers
Which country is the best for immigration?
Relevant answer
Answer
Please which country is best for a young animal scientist to pursue his doctoral degree with high chances of job after study?
  • asked a question related to Quality of Life Research
Question
27 answers
  • Application of Rasch analysis and IRT models are becoming increasingly popular for developing and validating a patient reported outcome measure. Rasch analysis is a confirmatory model where the data has to meet the Rasch model requirement to form a valid measurement scale. Whereas, IRT models are exploratory models aiming to describe the variance in the data. Researchers seem to be divided on the preference of one over another. What is your opinion about this dilemma, in development of patient reported outcome measures?
Relevant answer
Answer
Rasch requires the data to fit the model in order to generate invariant, interval-level measures (sic.) of items and persons. It is prescriptive. IRT models attempt to great a model that will fit the data. They are descriptive. While IRT users, see Rasch as a particular IRT model, most Rasch proponents see it as distinctly different from other IRT models. The key differences are philosophical. Wiki provides a suitable introduction:
You might recall Fan's infamous comparison paper. I can add a critique of that if you wish.
  • asked a question related to Quality of Life Research
Question
7 answers
Dear experts
What is the difference between narrow-band and broad-band transducers?
Relevant answer
Answer
Dear Pezhman,
I sincerely appreciate your help. Thank you.
  • asked a question related to Quality of Life Research
Question
16 answers
Among the possibilities I can think of are personal transformation and social transformation. I'd love to hear your thoughts!
Relevant answer
Answer
Life-giving? How about elimination of hunger, poverty, and pollution first. The touchy-feely existential stuff is life-enhancing not life-giving.
  • asked a question related to Quality of Life Research
Question
4 answers
For the conduction of an EQ5D survey I want to add some questions about profession, salary, family support after surgery etc., does somebody could help me with experiences, a list or literature reference?
Relevant answer
Answer
You beside profession, salary, family support after surgery you can add causal demographic like
Marital status, Ethnicity, House Occupancy, Residence
or you can add clinical variables to assess patient reported outcomes (PRO), like
Present Complaint, co-morbidity, Previous Surgeries,
  • asked a question related to Quality of Life Research
Question
3 answers
An easy question for oncologists :
As I know, measuring quality of life in patients with thyroid cancer is routine in the process of treatment and even after finishing that. How knowing Qol of patients can help oncoligists decide the best treatment? In other words, why do oncologists measure Qol?
Thanks for your help.
Relevant answer
Answer
We have found it useful to measure health status (often called health-related quality of life), subjective wellbeing, health confidence (a combination of health literacy, self-efficacy/activation, access and SDM) as well as patient experience and service integration. See www.r-outcomes.com
  • asked a question related to Quality of Life Research
Question
3 answers
I am doing research with adolescents in Mexico City who have cleft lip and/or cleft palate and want to measure quality of life related to the facial difference.  I need a measure that has been validated in Spanish, not just translated into Spanish.
Thank you.
Relevant answer
Answer
I want to use the CLEFT-Q but my understanding is that it is not yet validated in Mexican Spanish.  How do I find the process of the MAPI-institute?
  • asked a question related to Quality of Life Research
Question
1 answer
We would like your opinion if it is acceptable to use the average age of death among people who are obese and also have chronic disease conditions as causes of death. We have found that on average persons with this profile die on average at a younger age than people who only have chronic diseases. We are not sure if this is acceptable for an analysis, since we are not estimating life expectancy.
Relevant answer
Answer
This needs further clarification: what do you mean average age of death?
You should use actual age at death to begin with in your analysis. Collect data on all deceased and stratify people based on obesity and chronic condition (present or absent). Test the hypothesis that obese people with chronic condition die sooner than the one who are not obese and do not have chronic condition. 
  • asked a question related to Quality of Life Research
Question
2 answers
Hi, there. I wonder if anybody can provide access to the types of instruments (tasks) used to assess metalinguistic awareness. Thank you so much in advance.
Relevant answer
Answer
Hello Iryna, There are many measures and instruments available, I am attaching a few articles to get you going. I hope they are of help. Best, Rachel.
  • asked a question related to Quality of Life Research
Question
3 answers
Hi. I am looking for a test that could identify differences in quality of life according to drug administration routes. Thanks
Relevant answer
Answer
Dear Professor Nowakowski,
Have you ever studied the quality of life under Chinese medical care? If you need some idea, I can give to you.
Frieda
  • asked a question related to Quality of Life Research
Question
1 answer
I am carrying out a study on Assessing productivity of Nurses in District Hospitals in Ghana.
Relevant answer
Answer
Dear you can use some productivity scales used in general HRM research like "Employee performance" "innovation performance" Employee Turnover Intentions"
  • asked a question related to Quality of Life Research
Question
22 answers
Some of the most current arguments that promote the postgraduate as a process of continuous updating of the labor competencies in the present society of the knowledge
Relevant answer
Answer
As an employer, I always looked at what the applicant had accomplished since they had graduated. This is true in academics as well. Do you have just a degree or have you published, presented, taught, or added to your skills. 
  • asked a question related to Quality of Life Research
Question
4 answers
The study is on health-related quality of life of women living with HIV in an African setting Please assist with information on the recent valid instrument.
Relevant answer
Answer
You can use the Medical Outcome Study Short Form (MOSSF36) and the World Health Organization Quality of Life (WHOQOL-BREF)
You can consult this link http://www.revistabiomedica.org/index.php/biomedica/article/view/422 is an experience in Colombia
  • asked a question related to Quality of Life Research
Question
5 answers
It will be a self administered questionnaire. My research is about the relationship between quality of care and the working environment.
Relevant answer
Answer
The instrument for data gathering to answer your research questions depends on research method that you will use. Your study is an investigation of the influence of working environment on nurses' quality of care. Your study is also an investigation of the relationship of working environment and nurses' quality of care. You need Nurses' Quality of Care Assessment Tool to explore and describe the relationship of working environment and nurses' quality of care. Good luck.
  • asked a question related to Quality of Life Research
Question
3 answers
For example, I assess the anxiety with the STAI to a given subject for the first time and the score is : 100. After 2 months, I assess the anxiety a second time to the same subject and the score is :120. So the increase is 20%. Is 20% significant ? I looking for an article that has already show or use this significant percentage of variation because I want to use this a priori. 
Relevant answer
Answer
If the question is whether an individual's answers can change over time, I think they can and do change. Mostly it is state anxiety that changes, in response to external stressors. Trait anxiety is supposed to remain stable, determined by qualities of the individual that do not change much.
In practice even trait anxiety may be seen to change. In my longitudinal study of 50 practitioners of Natural Stress Relief (NSR) meditation, for example, I saw a decrease in the trait anxiety of almost every single subject, since NSR effectively eliminates internal stress of all kinds (see www.nsrusa.org/about-stress.php for our definition of stress). It was telling that when I contacted the only subject who reported an increase of anxiety, he reported that his father had just died around the time he learned NSR.
The other two responses here correctly address the other interpretation of this ambiguous question: whether the STAI can be used to judge the anxiety level of an individual. The answer is yes, but you have to pay attention to what you want to measure: a clinical finding or a statistical one. The DSM, for example, is frequently used for clinical evaluation, yet is meant for use in coding statistical studies.
  • asked a question related to Quality of Life Research
Question
3 answers
I'm interested in pharmacological end-points and gender-specific responses to titrated palliative sedation medications; also other patient-related factors that might affect the sedation trajectory over time; ie how much of a medication will reduce pain and suffering but without inducing unconsciousness.
Relevant answer
This isn't a particular focus in my own work, but I would definitely recommend checking out publications and materials from the Zen Hospice Project and specifically Dr. BJ Miller.  Their entire focus revolves around person-centered palliation at the end of life, and to that end on the development of tailored programs of care for each individual person served.
  • asked a question related to Quality of Life Research
Question
6 answers
Work life balance have mediating effect.
Relevant answer
Answer
Pattusamy, M., & Jacob, J. (2015). Testing the mediation of work–family balance in the relationship between work–family conflict and job and family satisfaction. South African Journal of Psychology, 0081246315608527.
Jarrod M. Haar, Marcello Russo, Albert Suñe, Ariane Ollier-Malaterre, Outcomes of work–life balance on job satisfaction, life satisfaction and mental health: A study across seven cultures, Journal of Vocational Behavior, Volume 85, Issue 3, December 2014, Pages 361-373, ISSN 0001-8791, http://dx.doi.org/10.1016/j.jvb.2014.08.010.
  • asked a question related to Quality of Life Research
Question
24 answers
Dear colleagues.
I need calculate the QALY using the EQ-5D questionnaire. I have found many different formulas (no consensus...), but I need one to calculate it in a intervention with pre, during (2 months) and post test (4 months). Is a randomized controlled trial.
Thank you for your help.
Relevant answer
Answer
Hi Roberto,
Just adjust the t to a percentage of the year. So for your 2 months it will be 0.167 and 4 months will be 0.333. Your pre intervention data will be the baseline.
best wishes,
Agi 
  • asked a question related to Quality of Life Research
Question
3 answers
.Any recommendations for an instrument to measure quality of life in diabetics in South Asians ( Pakistan)?
Relevant answer
Answer
Sf-36 is a generic instrument to measure Quality of Life. I have used it several studies, but i think that it is not so useful for this specif group because it is too long. You'd better to use the EuroQoL (composed by EQ-5D and EQ-VAS), that is shorter.
  • asked a question related to Quality of Life Research
Question
27 answers
Recently there are many reports that indicate the association between use of Proton Pump Inhibitors (PPI) and increased risk of dementia. On the other hand are well-known correlations between helicobacter pylori infection and poor cognition / Alzheimer's Disease and autoimmunity . It is also known that the use of PPI determines an HP infection underdiagnosis. (Three links attached). Finally, we must take into account that the Helicobacter Pylori infection in Western countries is more common in people with problems related to the low quality of life, (poverty but often cognitive / degenerative problems). So if all these parameters are not rigorously evaluated, I think there are too many possibilities of errors in data interpretation.
Relevant answer
Answer
Alzheimer Mythology: A Time to Think Out of the Box
Article in Journal of the American Medical Directors Association · July 2016
  • asked a question related to Quality of Life Research
Question
4 answers
Is anyone aware of recent research which has shown the validity of Rush's (2003) QIDS inventory with older persons or used this in their own research and able to provide their views on its applicability with this group?
Relevant answer
Answer
Thanks for your great resources and responses. I appreciate your help, sorry for the delay in my thanking you all.  Kindest regards Mary.
  • asked a question related to Quality of Life Research
Question
1 answer
We are currently developing a data-driven quality management system for solid organ transplantation.
Relevant answer
Answer
Very interesting topic Harald. Unfortunately I'm not au fait with the subject but would be interested in follow up.
  • asked a question related to Quality of Life Research
Question
5 answers
As per a WHO report, by the end of 2012, 64% of the global population used improved sanitation facilities which means almost 1 of every 3 person still have less / no access to proper sanitation. What steps should be taken to make it a near 100% of the same?
Relevant answer
Answer
It has also been noted that lack of knowledge about the essence of improved sanitation is one of the main reasons for the low uptake of improved sanitation in developing countries. Thus, in trying to meet the quest for access to improved sanitation by all, development agency and governments should create demand for sanitation through sensitisation of the community. On strategy would be to use the 'name it and shame' approach which has been shown to trigger the community realise the need for improved sanitation. A sensitised community is more likely to contribute through various means including labour during sanitation projects and this turns to be more sustainable
  • asked a question related to Quality of Life Research
Question
7 answers
in case of a study with 20 rats divided into 4 groups with 5 rats in each group, due to lack of animal at a time we planned to do first two groups in one time and again within short duration we will do another two groups. first group consists of control group and remaining three groups consist of three modes of experiments. when first two groups will be enrolled, the animals for remaining two groups will be mature enough and then we planned to do experiment in remaining two group.
Relevant answer
Answer
dear Laxman Khanal,
"All other things being equal" is the base of experimental design, meaning that only the factors (treatments) you study must vary. That is why Taye T Ejeta suggests a crossover design, in order to eliminate the effects of individual rat differences. If the experiment did not require to kill the animals you can look at a "latin square" design, for example. If you are using R for your statistical analyses (free and open source), you can found many packages and tutorials on the web to build experiment plans and go further
  • asked a question related to Quality of Life Research
Question
4 answers
I'm using the Rand 36 HS score in my research on MSA and PSP. I'm able to calculate the 8 sub-scores pretty easily. I know that there is a way to produce two composite overall scores; lots of papers discuss them but I cannot find a method. Rand Corporation sent me an impenetrable pdf...unfortunately my statistics is pretty modest as I'm primarily a clinician. I was wondering if anyone could guide me or has the formulae to produce these? Many thanks! 
Relevant answer
Answer
  • asked a question related to Quality of Life Research
Question
5 answers
I am finding that my qualitative interview participants are very similar in level of education and job roles. I am unsure if this is a product of the type of lifestyle I am studying, or a product of the type of people who are willing to participate in research. Is anyone aware of published data in regard to the profile of the type of people who volunteer as research participants (aside from undergrad psychology students)? Thanks for your time and assistance.
Relevant answer
Answer
That's a good point Stacey. I do not know if there is something like what you're asking . Prof. Robert Rosenthal has written about this subject. I'm thinking in his book "Artifacts in Behavioral Research" (e.g., the volunteer subject). This is another related reference: http://onlinelibrary.wiley.com/doi/10.1080/00049537608255268/abstract )
Hope it helps,
Ruben.
  • asked a question related to Quality of Life Research
Question
8 answers
Are there publications on studies showing solid facts that living in the forest or near the forest or large green groves really prolong the lives of people or their life expectancy? Any citations?
Among the publications of the city of Yekaterinburg were once the results, that the life expectancy of people living near the forest is about 8-9 years longer than people who live in the city center or in industrial areas.
Relevant answer
Answer
Morita et al ,Public Health, 2007, 121, 54-63
Abstract Objectives: Shinrin-yoku (walking and/or staying in forests in order to
promote health) is a major form of relaxation in Japan; however, its effects have yet
to be completely clarified. The aims of this study were: (1) to evaluate the
psychological effects of shinrin-yoku in a large number of participants; and (2) to
identify the factors related to these effects.
Methods: Four hundred and ninety-eight healthy volunteers took part in the study.
Surveys were conducted twice in a forest on the same day (forest day) and twice on a
control day. Outcome measures were evaluated using the Multiple Mood Scale-Short
Form (hostility, depression, boredom, friendliness, wellbeing and liveliness) and the
State-Trait Anxiety Inventory A-State Scale. Statistical analyses were conducted
using analysis of variance and multiple regression analyses.
Results: Hostility (Po0.001) and depression (Po0.001) scores decreased significantly,
and liveliness (P ¼ 0.001) scores increased significantly on the forest day
compared with the control day. The main effect of environment was also observed
with all outcomes except for hostility, and the forest environment was advantageous.
Stress levels were shown to be related to the magnitude of the shinrin-yoku
effect; the higher the stress level, the greater the effect.
  • asked a question related to Quality of Life Research
Question
1 answer
Also need data on catastrophic illness caused by lack of health care in same age group for my thesis project.
  • asked a question related to Quality of Life Research
Question
3 answers
Hello,
I'm studying quality of life using the FACIT-Pal survey. Our study has treatment and control groups and we are measuring the treatment effect of an intervention using a change score model. Unfortunately, model fit is low and the variability of responses are high. Even using a variety of methods to adjust for selection bias, it is difficult to get a comparable sample. We also struggle with attrition bias and models we create to adjust for attrition are extremely poor predictors. The FACIT-Pal contains a physical, emotional, social, functional well-being domains in addition to a palliative domain to assess quality of life for people with advanced or life-limiting illness.
In order to improve the comparability intervention vs control patients, I have considered using one of the domains (post-period) to model the total change score. My hope is that this would provide a way to account for anchoring bias--induced by peoples' outlook on life (ex: some people are stingy and almost never answer a 5/5) as well as momentary issues (ex: woke up on the wrong side of the bed that morning). 
What are the potential problems of creating a change score model in this fashion?  Would I be inducing an effect that potentially does not exist by doing this? Do you know of any papers that utilize this method?
Thank you,
Patrick
Relevant answer
Answer
Hi Monika,
Thank you for your reply! My apologies for the delayed response. I have not set up notifications on research gate and since moved on to a different part of the project. However anything you can add will still be helpful!
But to answer your questions: 
  1. The total n of the study is about 775 at this time with slightly more patients in the treatment group than the control. However, since this is a longitudinal study for end-of-life patients, attrition can be a big issue. We are still collecting data, but at 6 months we only have about 325 or so patients to run a 6 month analysis. 
  2. Unfortunately, due to feasibility constraints, randomization was not on the table when the study was being developed. This is an observational study. Selection into the study was done using two stages: an algorithm relying on medical record data cast a wide net of potential eligible patients, followed by a chart review completed by a registered nurse. 
  3. Our group membership independent variable is coded "treatment" with control in the reference category.
  4. Our dependent variable can either be the total QoL score or individual subscores. You are correct that there are four subdomains. They also create disease specific additions such as the palliative domain, which we used because of our population of interest. Essentially, we can either anlyze it as a total QoL score, or by each of the four + one domains. 
  5. We are doing a multivariate linear regression. Since it is not a randomized trial, we are controlling for demographic confounders as covariates in the model. 
  6. Observational trial...
  7. Unfortunately, many of the QoL questions can be rather relative (on a scale of 0 - 4, rate your pain, energy, etc.). This means that there is a potential for people to adjust their expectations, and wash out many of the effects over time. www.facit.org/LiteratureRetrieve.aspx?ID=42310
We want to move to a repeated measures analysis in the future, but don't quite have the power quite yet. This is why we've chosen to use the change score model to publish preliminary findings while the study continues. 
Hope this helps!
Patrick
  • asked a question related to Quality of Life Research
Question
10 answers
Does anybody have experience with quality of live questionairre in treatment of idiopathic scoliosis?
Relevant answer
Answer
Yes I know, but SRS 22 treated psychological subiective emotion with brace teatment. In my question I think about physical aspect brace treatment. 
  • asked a question related to Quality of Life Research
Question
4 answers
I'm interested in exploring the links between changes in physiology due to medical treatment, and resulting changes in quality of life. However, I would like to explore quality of life through the actions people produce, and how these might change in relation to physiology. 
It seems that interviews and surveys are not able to capture the material aspects of a person's life, such as a pair of running shoes that sit in the hallway of an active person.
In addition, it is the actions that people produce that reflect their quality of life, and when people make changes to their lives that are sustainable, these actions are likely to be mundane and habitual. Therefore they may be difficult to access through an interview or survey. 
Lastly, how can we explore the links between physiological changes and the actions that people take? 
Does anyone have thoughts about this, or papers that address these ideas in some way?
Relevant answer
Answer
As already highlighted the quality of the questions answered will be the key.
I recently conducted a study that examined quality of life indicators for recovering cancer patients. Semi-structured Interviews were used to collect the data and Grounded Theory was used to analyse it. See: 'Perceived changes to quality of life indicators following a physical activity intervention for recovering cancer patients: A qualitative study, Queen et al (2016) in press.
  • asked a question related to Quality of Life Research
Question
3 answers
Many questionnaires used for evaluating oral health related quality of life. But suitability of this for autistic children is a mystery for me. please enlighten me.
Relevant answer
Answer
Dear Koczkodaj, sure i look at their tooth, but there are so many scales used for assessment of oral health related quality of life, and the most common used one is "http://www.ncbi.nlm.nih.gov/pubmed/12816135". this original scale was made in your country Toronto, but i couldn't reach Dr. Jojovic, and having problems about validity and reliability in Turkish version. At least, i will be have to make my own Önol oral health scale for autistic children :).
  • asked a question related to Quality of Life Research
Question
5 answers
Hello,I am using the  Caregivers guilt questionnaire  made by Losada in my dissertation  and i have some problem with the scoring.I  have to divide guilt  in two different levels 2.1. Low and 2,2, High. I am already aware of the range scores in total and in each item, however I would like to ask for your advise regarding the Low and High levels. Is there a score number that indicates the levels of guilt.
Thank you
Relevant answer
Answer
Hi Martha, 
When completing my thesis, I found the Rensis Likert’s 5 point scale summarizing interview domains and questions very useful.
Best Wishes, 
Ann
  • asked a question related to Quality of Life Research
Question
5 answers
Dear colleagues
I am studying the effect of well-being (luxury/ quality of life) on ethical behavior in the workplace.
Could you provide me with article contains questionnaire to measure well-being (quality of life, or luxury)?
Kind regards
Waleed
Relevant answer
Answer
Waleed, I believe your question is but half of the question. This is because I believe you need to be more specific as to which professionals' work place you are discussing. Each profession varies to such a major extent that what you measure in one profession could be completely irrelevant to another. What exactly is it that you wish to look at?
  • asked a question related to Quality of Life Research
Question
4 answers
quality of life
questionnaire
Relevant answer
Answer
 Dear Amira, you need to follow standard procedure for translation which include Translation and back translation by bilingual expert. They should not be related to the study. 
It is necessary to translate research instruments into the language of the culture being studied. translation adequacy should also be sensitive to the culture where the instrument will be used.
 Researcher should carefully attend to achieving evidence of the accuracy and validity of instrument translation. back-translation should achieve semantic equivalence with the target language.
The instrument in the source (original) language is forward translated to the TL (target language) by at least two independent translators, preferably certified, whose mother language is the
desired TL of the instrument. The translators must be bilingual (i.e. fluent in the source and desired TL of the instrument) and preferably bicultural (i.e. having in-depth experience in the culture of the source and desired TL of the instrument). In addition, the two translators must have distinct backgrounds. The first translator must be knowledgeable about health care terminology and the content area of the construct of the instrument in the desired TL.
The second translator must be familiar with colloquial phrases, health care slang and jargon, idiomatic expressions, and emotional terms in common use in the desired TL. The second translator should not be knowledgeable about medical terminology and/or the construct of the instrument. This approach will generate two translated versions that contain words and sentences that cover both the medical and the usual spoken language with its cultural nuances. Therefore, choosing well-qualified translators is the key to high-quality translations. If resources are available, translations can also be done by two teams of independent translators (each
team of translators must have the same characteristics as the two individual independent translators described above), which may result in higher-quality translations by minimizing the introduction of personal idiosyncrasies when using only two independent translators.
for more details, the attached article is helpgul to guide you
Good luck
  • asked a question related to Quality of Life Research
Question
4 answers
I am about to dig myself into & conduct a research on health marketing, more specifically health-consciousness & prevention in general. I would be more than happy to know which the top relevant papers in this field are. What is the best scale to measure health-consciousness & prevention in general?
I will do my research in Hungary. Should you be interested to collaborate to compare research findings in different countries/cultures, please let me know.
Thanks in advance.
Relevant answer
Answer
You may look for a validated scale developed by Gould (1990). 
Gould SJ (1990) Health consciousness and health behavior: the application of a new health consciousness scale. American journal of preventive medicine, Department of Marketing, Rutgers, State University of New Jersey, New Brunswick 08903. 6(4): 228–237.
Here are some more articles that you may use to modify/adapt health consciousness scale.
  • Kaskutas, Lee A., and Thomas K. Greenfield. "The role of health consciousness in predicting attention to health warning messages." American Journal of Health Promotion 11.3 (1997): 186-193.
  • Jayanti, Rama K., and Alvin C. Burns. "The antecedents of preventive health care behavior: An empirical study." Journal of the Academy of Marketing Science 26.1 (1998): 6-15.
  • Moorman, Christine, and Erika Matulich. "A model of consumers' preventive health behaviors: The role of health motivation and health ability." Journal of Consumer Research (1993): 208-228.
  • Hong, Hyehyun. "Scale development for measuring health consciousness: Re-conceptualization." 12th Annual International Public Relations Research Conference, Holiday Inn University of Miami Coral Gables, Florida. 2009.
Hope they help.
  • asked a question related to Quality of Life Research
Question
4 answers
1- Its said that RLS affects approximately 10% of people in the United States (American College of Phlebology "Healthy Veins Healthy Legs - A Patient's Guide to Phlebology). 
2- Chronic Venous Disease (CVD) may occur without visible varicosities. Deep vein insufficiency, perforant vein insufficiency and saphenous insufficiency may be misdiagnosed by duplex ultrasound scanning (DUS). False negative are common and a physician without experience with phlebology may receive a negative DUS and conclude that there is no CVD.
3- But then why would the patient improve symptoms when they start to loose weight, return to do physical activities and use compression stockings?
4- We've been doing our own DUS since 2003 and the amount of patients that did a DUS and had false negative result is alarming.
5- Other interesting data we collected in our clinic. We do DUS in 100% of the patients and 33% of the asymptomatic patients have at least one segment of long reflux on the saphenous vein. Clinica Miyake is a private clinic in Brazil devoted 100% fo Phlebology since 1962. More than 90% of the patients have aesthetic concern on the legs).
6- Why would an asymptomatic patient have a long saphenous reflux and no symptoms? They normally are not overweight, exercise frequently, and have a good quality of life. Then the calf pumping compensate the reflux.
7- a careful clinical history may detect that an "asymptomatic" patient have heavy legs and/or swelling in a long flight or long standing day. When finally resting the legs, the better circulation may cause symptoms known as RLS.
8- Vein diagnosis is still improving. A perforant vein with 2mm diameter and no reflux detected by ultrasound may cause pain during palpation and we have seen for many years improvement after proper surgical ligation.
9- patients with no reflux on the saphenous veins, no painful perforant vein but with telangiectasias and feeder veins may be diagnosed as RLS as well. Augmented Reality (Veinviewer) may help detect the feeder veins. After treating the telangiectasias and feeder veins, we've also seen symptoms such as aching, burning, heaviness and itching disappear after CLaCS treatment.
Relevant answer
Answer
I am not a researcher in this area, I am a patient with severe RLS and I am also moderator of an international discussion board for patients.  As a result, I have read quite a few publications of the available treatments for RLS, research into the causes and have received feedback from many patients about what works and what does not.
First off, although RLS has been designated a disease, it is also subdivided into primary, idiopathic RLS and secondary RLS that is a result of conditions such as renal failure, late stage pregnancy, MS and several other diseases.  Secondary RLS is usually best resolved by treating the primary condition.  Idiopathic RLS is usually best treated through various medications and has been shown to have a genetic correlation with six genes identified so far.
If we ignore the secondary patients, RLS is not limited to just the legs.  As it becomes more severe, it can also occur in the arms, neck and torso.  Treatment with dopamine agonist drugs will always resolve the symptoms over the short term, but these drugs usually result in augmentation over the long term.  It is partly for this reason that neurochemical research has concentrated on dopamine levels in the hypothalamus as a potential cause.  Iron levels in the hypothalamus have also been shown to have a correlation, which makes sense because iron is associated with dopamine production.  These iron levels are not always associated with anemia, but are better measured by tests such as ferritin levels that correlate with total iron and not hemaglobin.
Another feature of severe RLS is severe insomnia.  For some, the insomnia is associated with the need to move the affected limbs.  However, for many of us who are still receiving dopamine agonist treatments, the need to move when attempting to relax may go away, but the severe insomnia does not.  It is for this reason that Johns Hopkins is currently studying the association between glutamate levels in the hypothalamus and RLS severity.
Finally, treatments based upon resolving or improving the flow of blood through the veins of the legs does help some, but by no means has it helped everyone who has tried it.  I think that this is yet another illustration of how complicated the disease really is and how much more research is needed to identify the cause(s) and identify additional treatments.
  • asked a question related to Quality of Life Research
Question
2 answers
Indicators for human well-being exist in many forms especially at national level, but it seems that few exist for measuring impacts of energy development in particular.  Are there any examples of studies of this type on the community level, using indicators?  I am thinking beyond the traditional social indicators of health etc and more of the qualitative aspects of human well-being such as those laid out by Max-Neef. 
Relevant answer
Answer
I looked at this indirectly.  I was comparing 'Ecological Footprint' against 'Time Required to Meet Needs' in my paper.  The long trailing limb on the curve shows that regardless of the resource (including energy) consumption, there is no change in the potential quality of life of the community.  The data is included that would allow one to extract just Carbon Footprint from the rest.  What isn't directly addressed in that paper is how effective people are at meeting their needs  - it could be that the community is spending 700 minutes a day meeting their needs, but only 70% of their needs are met.
  • asked a question related to Quality of Life Research
Question
6 answers
Can we assess health related quality of life (HRQOL) among dengue patients by using short form 36 version 2 questionnaire (SF36v2). One of my friend told me that HRQOL is usually assessed for chronic conditions, not for acute illness e.g. dengue, typhoid or some other diseases that can be resolved within 1 week.
Kindly guide me in this regard, because I am assessing HRQOL for dengue patients in my project. Actually, my objective is to compare HRQOL among dengue patients with and without acute kidney injury. The purpose here is to determine that either occurrence of acute kidney injury in dengue infection cause poor quality of life or not? (It means we will compare quality of life in two dengue groups, one with kidney injury and other without kidney injury), as dengue infection causes kidney injury.
Relevant answer
Answer
Hello dear colleague
Thank you for the interest carried in our works. The peculiarity of this approach lives in the fact that we do not answer the usual criteria which consist in being mainly interested in the diseases or in the sick by diseases. We are interested in what they suffer and especially in what they mobilize for dealing with their problem of health
  • asked a question related to Quality of Life Research
Question
3 answers
I am looking to analyze the psychosocial, cultural, and coping for patients with chronic disease. What are good research studies on the effectiveness of interventionists who can improve a paitents well being by allowing them to communicate their problems.  
Relevant answer
Answer
Hello
Thank you for the interest carried in this current mobilizing the expérientiel knowledge of the patients. There are still to my knowledge no studies psychological in oneself, however, we used tools of occupational psychology (1) which allowed us to measure the impact of the quality of life in the work of the healthcare professionals and the involved administrators. As for the patients, an article was published in the review Plos one (2)
(1) DCPP, 201DCPP, 2014, Programme partenaires de soins, rapport d’étape (2011-2014) et perspectives, Direction collaboration et partenariat patient du centre de pédagogie appliquée aux sciences de la santé, Faculté de médecine, Université de Montréal. Accessible en ligne à l’adresse Internet : http://medecine.umontreal.ca/doc/PPS_Rapport_2011-2013.pdf, (Dernière consultation le 23/07/2015).
(2) Pomey M.-P., Ghadiri D. P., Karazivan P., Fernandez N., Clavet N. (2015), «  Patients as partners : a qualitative study of patients engagement in their health care : patients as Partner in their health care », Plos one, PLOS ONE | DOI:10.1371/journal.pone.0122499 April 9, 2015.
  • asked a question related to Quality of Life Research
Question
11 answers
I would like to research the efficacy of psychological distancing as a tool that may assist family care-givers to cope with long-term care of a relative with dementia. As part of this study I would like to address the expectations of family care-giving in the context of traditional family values and culture and hypothesise that Australian cultural bias towards family caregiver roles may increase care-giver burden. 
Relevant answer
Answer
There is some great feedback here.  I am Jan Vinita White, PhD, a gerontologist.  My only suggestion is to reframe the research question, as it is biased.  Some informal caregivers are not family members but fictive kin, significant others, and friends.  The inclusion of "burden" is also biased.  Consider this:
"What is the impact of psychological distancing upon informal caregivers of dementia patients?"  
  • asked a question related to Quality of Life Research
Question
12 answers
Hello! I am currently working on my dissertation and am having a really hard time finding participants to complete my survey.   I am conducting research on health-related quality of life among cancer survivors, specifically adult survivors, aged 18 years and older.   All cancer diagnoses will be considered and there is no limit to how long individuals must have been in remission.  My questionnaire is posted in many Cancer Support Centers in the Chicago area, as well as in Ohio. Additionally, the link to my research can be found on the National Cancer Institute Facebook page. My survey is accessible online via SurveyMonkey and takes about 20 minutes to complete a short demographic tool and a 41-item self report measure.  Currently, I am well below the sample size I need to obtain significant results, so I am reaching out to all the avenues I am aware of.  Please let me know if you have any connections to this specific population (any cancer type) or recommendations of organizations that would be open to disseminating my information to their participants. I am looking forward to any feedback and appreciate your consideration! Thank you in advance!!
Relevant answer
Answer
My experience is based on the UK but it may apply to you in the USA.  I would contact all the cancer charities and let them know about your research.  They should be able to pass on a brief summary of your research through newsletters, postings on their websites, and direct appeals.  In my experience survivors do want to participate in research especially HRQoL research if they are given the opportunity.  You could also offer to present your research at any survivor information days that the charities may be holding or send them a video clip of you presenting your research that they could post on their website.   
  • asked a question related to Quality of Life Research
Question
8 answers
Among older people, or in general.
Relevant answer
Answer
hi, 
I think  some of the best resources regarding your questions, i think, are those which connect "place attachment" phenomenon with "place satisfaction" and "place loyalty". So, take a look at related papers by Ramkissoon or Yuskel or Ryan researches.
  • asked a question related to Quality of Life Research
Question
1 answer
Is there a data available for prevalence of depression among patients undergone cardiac catheterization (specially in Canada)? Do you think that cardiac catheterization may be associated with increased quality of life and decreased likelihood of depression? or vice versa?
There is bulk of research on the association of CVD and depression but I couldn't find any thing about depression after cardiac catheterization. What do you think of the topic?
Relevant answer
Answer
I think that cardiac catheterization may be helpfull especially older  and female patients for depression.
  • asked a question related to Quality of Life Research
Question
1 answer
The involvement of parents and families in outside school Hours care services continues to be a challenge for many educators. The provision is impacted by the limited time for which children are in care and parents work commitments. Often caregivers discover that it can be stressful and challenging to involve parents in their childcare program.
Relevant answer
Answer
Hello Susan
Is this paper available from ResearchGate of any interest?
Harris, A., & Goodall, J. (2007). Engaging parents in raising achievement: do parents know they matter?: a research project commissioned by the Specialist Schools and Academies Trust.
Very best wishes
Mary
  • asked a question related to Quality of Life Research
Question
5 answers
Primary care environment to prevent depression from opportunistic approach. What is the quality of life implication of that?
Relevant answer
Juan, caro, permítame compartir con usted algunos enlaces que nos han guiado acá en Brasil sobre el tema:
  • asked a question related to Quality of Life Research
Question
3 answers
Previous waves I have seen from the ELSA mention a general measure of cognitive ability which enable the analysis of cognition over all rathern than the singular tests themselves eg. word list immediate recall. Is there a general cognitive measure for wave 6? If there isn't a general cognitive measure is it ok to run several Multiple Linear Regressions on the cognitive tests I am looking at or will multiple comparison issues affect this approach?
Relevant answer
Answer
Hi Georgina
Gale et al have recently published a paper looking at cognitive ability and participation in health screening using ELSA. They generated a measure of general cognitive ability using principle component analysis on the test scores. I have attached the link to the article, where you can read the detail of their methodology.
Gale CR, et al. J Epidemiol Community Health 2015;69:530–535. doi:10.1136/jech-2014-204888
Hope this helps
Christine
  • asked a question related to Quality of Life Research
Question
3 answers
EORTC QLQ C 30 is mostly used for QOL assessment in  cancer patients.But if the patient is illiterate or doesnt know english,how do we administer it.Can a trained personnel read out the question for the patient and record their answer?
Relevant answer
Answer
Dear Sir,
To answer your question, I would like to direct your attention to 2 points (EORTC QoL C30 and other modules are translated to different languages; I attached the list of available languages translations). 2nd important point; in my opinion it would be optimal to combine it with Elderly specific module EORTC QLQ-ELD14 as a minimum. You can add disease specific modules if needed.
Regarding the point of illiteracy; indeed health care providers can read it for the patients and record it accordingly.
  For more information; I would recommend you to consult the official website of the EORTC QoL group (attached).
Best Regards
Emad
  • asked a question related to Quality of Life Research
Question
5 answers
The scale would be preferably related to mental health, physical health, substance use, social milieu, but any other continuous measures where migrants were compared with native populations are welcome. 
Relevant answer
Dear Witold, 
Check these out: 
Ethn Health. 2015;20(1):49-65. 
Depression in Europe: does migrant integration have mental health payoffs? A cross-national comparison of 20 European countries.
Levecque K, Van Rossem R.
Fortschr Neurol Psychiatr. 2014 Oct;82(10):579-85. 
[Gender-specific differences relating to depressiveness in 1st and 2nd generation migrants: results of a cross-sectional study amongst employees of a university hospital].
[ in German]
Maksimović S, Ziegenbein M2 Graef-Calliess IT, Ersöz B, Machleidt W, Sieberer M  From the conclusion: It would appear that a strong orientation to the native culture increases the risk of depression for 2G(eneration) female migrants, whereas for 1G male migrants this factor is associated with a lower risk of depression.
Int J Soc Psychiatry. 2012 Nov;58(6):605-13. 
Depressive symptoms in first-and second-generation migrants: a cross-sectional study of a multi-ethnic working population.
Sieberer M, Maksimovic S, Ersöz B, Machleidt W, Ziegenbein M, Calliess IT.
Migration and Mental Health: An Empirical Test of Depression Risk Factors among Immigrant Mexican Women
William A. Vega, Bohdan Kolody and Juan Ramon Valle
International Migration Review
Vol. 21, No. 3, Special Issue: Migration and Health (Autumn, 1987), pp. 512-530
  • asked a question related to Quality of Life Research
Question
4 answers
The women's specialist services we are working with seek to improve 'safety', 'empowerment' and 'well-being'. We are particularly focused on effective work with/for Australian Aboriginal women. Thanks 
Relevant answer
Answer
 Thanks Peter, I found the one in AJ Preventive medicine (2000) on the health care provider survey. Is that what you were directing me to? robyn
  • asked a question related to Quality of Life Research
Question
3 answers
I'm looking for studies (empirical and theoretical) that show that there is a link/correlation between psychological well being and career satisfaction. 
I'm also interested in studies that show that career satisfaction is a component of psychological well being (at work). 
Relevant answer
Answer
Hello Valerie
Some of these papers discuss job satisfaction rather than career satisfaction, as did quite a few that I looked at; career satisfaction suggests a longer term view of a chosen occupation? But job satisfaction could be correlated with psychological well-being at work?
This paper is available on Researchgate:
Parasuraman, S., Purohit, Y. S., Godshalk, V. M., & Beutell, N. J. (1996). Work and family variables, entrepreneurial career success, and psychological well-being. Journal of Vocational Behavior, 48(3), 275-300.
Faragher, E. B., Cass, M., & Cooper, C. L. (2005). The relationship between job satisfaction and health: a meta-analysis. Occupational and environmental medicine, 62(2), 105-112.
The above paper references this paper, also available on ResearchGate:
Sousa-Poza, A., & Sousa-Poza, A. A. (2000). Well-being at work: a cross-national analysis of the levels and determinants of job satisfaction. The journal of socio-economics, 29(6), 517-538.
Very best wishes
Mary
  • asked a question related to Quality of Life Research
Question
11 answers
what dimensions/ indicators of Quality of Workplace Life (QWL)  directly or indirectly impact two components of Absorptive capacity ( Knowledge acquisition and assimilation ) in context to work shop floor employees? Generally employees were observed as  least interested in gaining new knowledge.
Absorptive capacity is the ability of organization to acquire, assimilate and use new knowledge in its processes.
Thanks in advance
Relevant answer
Answer
Quality of workplace life ( QWL ) depends on various factors like: Working condition, Work culture, Individual working habits, Skill, Motivation, Peer Relation, EQ etc. QWL is a function of organizational adaptive skill and absorptive capacity. Further, Absorptive Capacity is the function of organizational  Knowledge management system and organizational culture. Therefore,  QWL is likely to impact organizational adaptive skill and absorptive capacity.  Conducive organizational culture will create proper work culture for transformation to learning organization.
  • asked a question related to Quality of Life Research
Question
11 answers
Social support is essential for patients with chronic diseases. Is it useful for quality of life promotion for hemodialyss patients?
If yes, How it can be used?
Relevant answer
Answer
Dear Nader, don't overlook the role of peer support--that is, support from others with the same condition.  Chronically ill people often feel very isolated and anxious as the burden of illness increases; sharing with others and listening to others' experiences can help to  "normalize" the illness experience, offer valuable understanding of disease processes and management, and promote proactive patient behavior leading to better quality of life and symptom control.  Not everyone will want peer support, of course, but for those who are receptive, a support group or "buddy" system, whether in person, by telephone, or online, can be a valuable lifeline. Even those who don't welcome a support group may feel supported by attending educational sessions where there are opportunities for questions, dialogue and socialization.  This may be of benefit also to spouses and family members. 
  • asked a question related to Quality of Life Research
Question
4 answers
My research is about this topic!
Please send me references about quality of children's life (Kidscreen-27), motor skills (TGMD-2) and motor abilities.
Thank you!
Relevant answer
Answer
Hello, try Christopher Morris at the University of Exeter in the UK.  He has done lots of research into neurodisability especially children with cerebral palsy and considering patient reported outcome measures including KIDSCREEN. 
  • asked a question related to Quality of Life Research
Question
8 answers
I am working on diabetes
Relevant answer
I have used an interesting outcome measure called Problems Associated in Diabetes (PAID).  It is derived from patient interviews and the items relate to what patients feel affect their quality of life, so it is more specific that a general QoL instrument such as SF36.  You can also analyse it per item to understand the aspects of a patients' QOL is specifically being affected by diabetes.  Not sure if this one has already been mentioned?  I do a lot of work related to translating theory into service provision so I find that it is important to have very patient centred measures.
  • asked a question related to Quality of Life Research
Question
8 answers
Mental illness and cancer are two forms of chronic illnesses. Were as mental illness is rather non fatal because the sufferers rarely die from being schizophrenic for example. For cancer it likely may lead to death. The research is asking if caregivers for this two groups will have different levels of psychological distress. Other variables like personality, duration of care and emotional involvement are various forms of psychological distress to be investigated.
Relevant answer
Answer
Dear colleague,
Except for being fatal and non fatal chronic illnesses  for clients, Socoa; support especially family support can help them.
 In one of my articles in title of:
"Hemodialysis Patients' Perceived Social Support "
i discussed about
I hope it is useful.
Regards,
  • asked a question related to Quality of Life Research
Question
9 answers
Is there anyone working on the SHARE data, who could share some experience on dealing with the different scales of life satisfaction used in the survey?
In WAVE 1 there is a 4-point scale (1= Very satisfied; 2 = Somewhat satisfied; 3 = Somewhat dissatisfied; 4 = Very dissatisfied).
In WAVES 2,4 and 5 they switched to the commonly known 11-point scale ("On a scale from 0 to 10, where 0 means completely dissatisfied and 10 means completely satisfied, how satisfied are you with your life?")
When looking at the development of life satisfaction over time - how can I compare the results? How can I transform them to get comparable data? Any literature or concrete advice would be very helpful!
Relevant answer
Answer
Maybe the following paper which we recently published is of interest to you. In this paper we describe how we derived a reference distribution from the responses to a numerical scale and used this reference distribution to decide at which point verbally labelled response options transit from one state to another, for example from ‘satisfied’ to ‘very satisfied’. Next, these transition points can be used to estimate a population mean for each wave of the time series in which the verbal scale is used on a level that is comparable to that of the mean of the reference distribution. These estimates are appropriate for use in an extended time series based on the responses measured using a verbal and a numerical scale.  
  • asked a question related to Quality of Life Research
Question
3 answers
I´m working a new research addressing privacy and life satisfcation. Does anyone know good references for this empirical study in social networking sites, eg Facebook? Any suggestions?
Relevant answer
Answer
Maybe have a look at the GDP and beyond project at the EU:
The project tries to shec some light on the issue of well-being of nations.
  • asked a question related to Quality of Life Research
Question
20 answers
There are many articles explaining that the Energy Return on (Energy) Invested (EROI, or EROEI) of the sources of energy which a society uses sets an upper limit on the quality of life (or complexity of a society) which can be enjoyed (for example http://www.sciencedirect.com/science/article/pii/S0301421513006447).
I understand the arguments made, however I fail to understand why any energy extraction process which has an external EROI greater than 1.0 cannot be "stacked" to enable greater effective EROI.
For example if EROI for solar PV is 3.0, surely one can get an effective EROI of 9.0 by feeding all output energy produced from one solar project as the input energy of a second?
There is obviously an initial energy investment required, but provided the EROI figure includes all installation and decommissioning energy requirements I don't understand why this wouldn't work. Also I realise there are various material constraints which would come into play; but why does this not work from an energy point of view?
Relevant answer
Answer
As the person who came up with the term  EROI in the 1970s (but not the concept: that belongs to Leslie White, Fred Cotrell, Nicolas Georgescu Roegan and Howard Odum) let me add my two cents to the existing mostly good posts.   The problem with the "stacked " idea is that if you do that you do not deliver energy to society with the first (or second or third) investment --- it all has to go to the "food chain" with only the final delivering energy to society.  So stack two EROI 2:1 technologies and you get 4:2, or the same ratio when you are done.
The second problem is that you do not need just 1.1:1 EROI to operate society.  We (Hall, Balogh and Murphy 2009)  studied how much oil would need to be extracted to drive a truck including the energy to USE the energy.  So we added in the energy to get, refine and deliver the oil (about 10% at each step) and  then the energy to build and maintain the roads, bridges, vehicles and so on .    We  found you needed to extract three liters at the well head to use one liter in the gas tank to drive the truck, i.e. an EROI of 3:1 was needed.  
But even this did not include the energy to put something in the truck (say grow some grain)  and also, although we had accounted for the energy for the depreciation of the truck and roads,  but not the depreciation of the truck driver, mechanic, street mender, farmer etc: i.e. to pay for domestic needs, schooling, health care etc. of their replacement.    Pretty soon it looked like we needed an EROI of at least 10:1 to take care of the minimum requirements of society, and maybe 15:1 (numbers are very approximate) for a modern civilization.  You can see that and the implications worked out in Lambert et al.  below.  
I think this and incipient "peak oil" (Hallock et al. )   is behind what is causing most Western economies to slow or stop  their energy and economic growth.   Low EROI means more expensive oil (etc) and lower net energy means growth is harder as there is less left over after necessary "maintenance metabolism".    This is explored in more depth in Hall and Klitgaard book  "Energy and the wealth of Nations" (Springer).    
Charles Hall chall@esf.edu
References:
Hall, C.A.S., Balogh, S., Murphy, D.J.R. 2009. What is the Minimum EROI that a Sustainable Society Must Have? Energies, 2: 25-47.
   Hall, Charles  A.S., Jessica G.Lambert, Stephen B. Balogh. 2014.  EROI of different fuels  and the implications for society Energy Policy Energy Policy. 64,: 141–              http://www.sciencedirect.com/science/article/pii/S0301421513003856?np=y      htt??//authors.elsevier.com/sd/article/S0301421513003856  
Lambert, Jessica,  Charles A.S. Hall, Stephen Balogh, Ajay Gupta,    Michelle Arnold  2014   Energy, EROI and quality of life.  Energy Policy Volume 64:           153-      http://authors.elsevier.com/sd/article/S0301421513006447
Hallock Jr., John L., Wei Wu, Charles A.S. Hall, Michael Jefferson. 2014.  Forecasting
           the limits to the availability and diversity of global conventional oil supply:
           Validation.  Energy 64: 130-153.   (Article 12 in: 
  • asked a question related to Quality of Life Research
Question
2 answers
Harvard University conducted a study of 600 women under the age of 40, finding at least half of early-onset breast cancer resulted in early mortalities. In terms of early diagnostic service for young women under age 40, I addressed this in my dissertation research related to the pros and cons of the recommendations of the United States Preventative Service Task Force. The attached article examines research conducted by Harvard University in young women under age 40. The critical issue relates to a standard needs to be established for young women related to breast cancer.
Relevant answer
Answer
Faustino, thank you for those interesting comments, I am aware breast cancer is a heterogenous disease, however since the USPSTF made a clinical recommendation related to early diagnostic services being performed at age 50. The critical question relates to age 50 being considered early?  The prevalence of breast cancer in women prior to age 50 is the concern.
  • asked a question related to Quality of Life Research
Question
3 answers
I am doing a study on the impact of government initiatives on the quality of life of workers in the unorganized sector or say in any industrial clusters. Kindly help me in getting a suitable questionnaire.
Regards
Prof.Sudhir Kumar
Relevant answer
Answer
I agree with Prof. Sanjay Kumar particularly since you are measuring the impact of certain governmental interventions on QOL of workers. You could also employ qualitative methods (focus groups, in-depth interviews, case studies etc.) to supplement the quantitative survey. In both the cases, it should be context specific given the state interventions and the identified components of QOL.
  • asked a question related to Quality of Life Research
Question
9 answers
In working with post concussive patients who are dealing with chronic post concussion symptoms, we are attempting to identify quality of life factors that we can use to help target treatment and assess outcomes.  Thus far, we have not been able to identify anything in the literature and were just wondering if there is something that we are overlooking or unaware of.  
Relevant answer
Answer
von Steinbuchel, N., Wilson, L., Gibbons, H., Hawthorne, G., Hofer, S., Schmidt, S., . . . Force, Q. T. (2010). Quality of Life after Brain Injury (QOLIBRI): scale development and metric properties. J Neurotrauma, 27(7), 1167-1185. doi: 10.1089/neu.2009.1076
von Steinbuchel, N., Wilson, L., Gibbons, H., Hawthorne, G., Hofer, S., Schmidt, S., . . . Force, Q. T. (2010). Quality of Life after Brain Injury (QOLIBRI): scale validity and correlates of quality of life. J Neurotrauma, 27(7), 1157-1165. doi: 10.1089/neu.2009.1077
Valovich McLeod, T. C., Bay, R. C., Parsons, J. T., Sauers, E. L., & Snyder, A. R. (2009). Recent injury and health-related quality of life in adolescent athletes. J Athl Train, 44(6), 603-610. doi: 10.4085/1062-6050-44.6.603
Siponkoski, S. T., Wilson, L., von Steinbuchel, N., Sarajuuri, J., & Koskinen, S. (2013). Quality of life after traumatic brain injury: Finnish experience of the QOLIBRI in residential rehabilitation. J Rehabil Med, 45(8), 835-842. doi: 10.2340/16501977-1189
Hawthorne, G., Kaye, A. H., Gruen, R., Houseman, D., & Bauer, I. (2011). Traumatic brain injury and quality of life: initial Australian validation of the QOLIBRI. J Clin Neurosci, 18(2), 197-202. doi: 10.1016/j.jocn.2010.06.015
  • asked a question related to Quality of Life Research
Question
5 answers
I need how the scale is used.. I know more point means more high life quality. but what else? How can I calculate the points?
Relevant answer
Answer
In order to use the tool, you need to first get permission by completing the form at the website at the link below.
I am also attaching the scoring document. There are several domains within the overall scale and yes, higher scores are better.
  • asked a question related to Quality of Life Research
Question
4 answers
i am interested in finding or developing a fall risk assessment tool that looks specifically at a population of persons in an in-patient drug/ETOH facility. While I know that there is some overlap with other assessment tools, most of these assume acute or long-term care with a primarily older adult population and do not specifically address this population.
Relevant answer
Answer
The dynamic gait index would be a great tool. I