Science topic

Patient-Centered Care - Science topic

Patient-Centered Care is a design of patient care wherein institutional resources and personnel are organized around patients rather than around specialized departments. (From Hospitals 1993 Feb 5;67(3):14)
Questions related to Patient-Centered Care
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I am looking for a validated QOL tool to assess how much burden (i.e. time, costs, restriction of activities, difficultly, stress, pain) a patient's medical care/management (NOT their medical condition) causes them and/or their family. This is mostly for adult home-based rather than hospital based patients and the medical care would predominantly be self administered or administered by a carer/relative.
I have looked at standard QOL tools such as EQ5D, but most of these tools focus of the impact of the medical condition itself or the overall health of the patient. I want to be able to assess if interventions designed to make patient's home medical care less burdensome are effective or not.
Thanks in advance!
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Here are a couple of articles that will take you into the measurement issues
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Narrative Medicine places the patient's lived story of illness at the heart of every clinical encounter, and is therefore a practice integral both to the aspirations and the practicalities of patient-centered care.
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Narrative medicine will be an integral part exponential medicine, I am sure.
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During clinical consultation doctors and nurses interview patients about their medical history. But, patients are usually not prepared for the clinical consultation. In theory, if patients administer their medical history on a computer/tablet before their appointment with the doctor or nurse, then they should be prompted and prepared for the medical history interview. This is one of the hypothetical advantages of patient-administered computerized history taking systems/automated medical history taking systems. What quantitative and/or qualitative factors measures exist that would assess if patients are prepared for the medical history interview?
I'm actually interested in identifying doctor-patient communication and non-communication measures that would determine if a group of patients who took an electronic medical history questionnaire were more prepared for a clinical consultation compared to a group that didn't take the electronic history questionnaire.
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There isnt any
I am just authoring
How to get the best from your GP practice to try to fill this gap!
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Patient-centered outcomes research...what does it mean to you?
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To me (and from what I've heard PCORI-affiliated speakers say), patient-centered outcomes research must involve the patients and their perspective.  As health care providers we can make assumptions about what is important, but those living with whatever condition we're looking at may have different ideas.  For example, we're looking at disease severity by whatever categorization scale we have for it. For a patient, they're more concerned with pain, or frequency of medical visits, or fatigue, or whatever. It may not mean much if they go from level 3 to level 2, or remain at level 3 without progressing to level 4, but what is meaningful for them is their function and quality of life. Include patients in your research question development process.
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Patients are reporting issues such as poor access to care, availability of socio-economic resources and time; knowledge; and emotional and physical energy. (Bee et al. 2014)
The work patients must do to care for their health; problem-focused strategies and tools to facilitate the work of self-care; and factors that exacerbate the burden felt (Eton et al 2014)
Capacity, responsibility, and motivation: a critical qualitative evaluation of patient and practitioner views about barriers to self-management in people with multimorbidity. BMC Health Services Research (Impact Factor: 1.77). 11/2014; 14::536. DOI: 10.1186/s12913-014-0536-y
Building a measurement framework of burden of treatment in complex patients with chronic conditions: a qualitative study. Patient Related Outcome Measures 2012:3 39–49 http://dx.doi.org/10.2147/PROM.S34681
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Have you considered the first tool within the Flinders Program - Chronic Condition Care Planning? You'll find details about it at:  http://www.flinders.edu.au/medicine/sites/fhbhru/self-management.cfm
It's called the 'Partners in Health Scale' and it's a 12 item measure that the person self-rates re their knowledge, relationship with health professionals, access, monitoring and responding, physical, social and emotional impacts, lifestyle, etc. The tool has been validated and used in many research trials and in practice as either a standalone to measure change over time, determine client groupings, determine for services which clients would benefit from care planning, etc.
It has been adapted into other languages and used in the US, NZ, Australia, Hong Kong and some other countries.
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Misconceptions of traumatic brain injuries are common for both patients and families dealing with these conditions. Values about pain and antidepressant medications may create potential conflict between the health care provider who orders these, the nurse who attempts to administer these medications, and the family who does not value pain and antidepressant medications for alleviating the pain and sense of loss caused by a traumatic brain injury. How can healthcare providers better anticipate the education and collaborative needs of patients and families concerning mild traumatic brain injuries and care plans? And, how does a practitioner best open the dialogue of mental health and misconceptions of mental health?
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Hi Laura,
This is an area that can create a lot of angst for clinicians in understanding what the family and patient require in providing support, education and promoting well-being of the patient, but also recognizing what stage of grief and loss cycle the family may be experiencing. The ability to roll with resistance and change is an important analogy as mental and general healthcare clinicians, we want to provide patient and family centered care while trying to maintain a family systems perspective. Often as we know this takes a multidisciplinary and consistent approach to assist the family and patient in understanding the path to recovery and the available treatment and therapy options.
I hope these articles may be of some help:
What evidence and guidelines exists on how best to resolve conflict through education and patient/family collaboration in plan of care for recovery?
Clinical practice guidelines for support of the family in the patient-centered intensive care unit: American College of Critical Care Medicine Task Force 2004–2005
Collaborative Communication in Pediatric Palliative Care: A Foundation for Problem-Solving and Decision-Making. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2151773/
Implementing Team Approaches in Primary and Tertiary Care Settings: Applications from the Rehabilitation Context.
Given et al (2001). Family Support in Advanced Cancer http://onlinelibrary.wiley.com/doi/10.3322/canjclin.51.4.213/pdf
Consumer-oriented interventions for evidence-based
prescribing and medicines use: an overview of systematic
reviews (Review)
Sorry about the long entry, but hope this is some help.
James
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Some studies had named communicative attitudes, including arrogance and discourtesy among the major complains against doctors.
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Lack of proper communication always should be considered as a major set back in medical field. If proper communication is there patients would certainly benefit
Patient-Doctor
Doctor-Doctor
Doctor-lab
Lab-Doctor
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I am doing a needs assessment for my clinical site, but I do not know how to proceed. The area is psychiatry and I want to assess the gap in patient care of teaching patients about their medication. I am searching for a good reference that teaches how to conduct a needs assessment for specific areas of patient care.
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Medication counselling is indeed an important topic and it is a very useful aproach to identify patient's need in order to tailor your counselling.
A good starting point for such an assessement could be the "Believes about Medication Questionnaire" (BMQ). It is a validated tool that gives you a good impression about the problems (believes and concerns) a patient might have with his medication. In a pilot study we have developed a multidimensional tool including the BMQ to assess patients' needs in counselling renal transplant patients about their medication.
Furthermore, in Switzerland we implemented a "polymedication check" in the practice of community pharmacies. This is a questionnaire guiding a structured interview to get an overview of the patient's knowldge and to identify possible problems concerning his medication.