Questions related to Palliative Care
El trabajo de investigaciòn es un estudio sistematizado de un problema que evidencia el dominio del àrea de su especialidad, y se conciben como ir màs allà del conocimiento, profundizar, indagar, corroborar informaciòn que nos permita seguir desarrollando mejores formas de hacer en enfermerìa; evidenciar , hallar respuestas, orientarse hacia la innovación en las diversas especialidades. Los cuidados paliativos es una especialidad que implica la asistencia de los pacientes y familias en el proceso de final de vida, asumiendo que la persona es un ser multidimensional y que los cuidados enfermeros se orientan hacia la calidad de vida, a la adaptaciòn a la nueva situaciòn de enfermedad avanzada y progresiva, a la necesidad de identificar los niveles de complejidad del cuadro clìnico, a la posiciòn del profesional de enfermerìa que interactùa de forma permanente con otros profesionales del equipo de salud y al aporte que el enfermero brinda a la mejora y desarrollo de buenas pràcticas.
Los cuidados paliativos en lationoamerica es una especialidad relativamente nueva, y con mucho què aprender y mucho por hacer; cuales son las razones por las cuales enfermerìa paliativa no investiga?, cuales son los factores que predisponen a esta carencia de trabajos de investigaciòn en enfermerìa? a què se le atribuye la falta de publicaciòn cientìfica en enfermerìa paliativa?
I'm performing an RCT with cancer patients, with two distinct groups: both groups have cancer patients. I have planned to carry out the intention-to-treat if a patient does not continue in the study. One of the patients left the study for palliative care, and died due to the disease. Should I carry out the intention-to-treat with this specific patient?
I'm doing a costing study of palliative care packages in low and middle income countries, and as a first step, we need to estimate the need for palliative care services by country.
Hemorrhagic Fever, such as Ebola, is included in the list of diseases/conditions that generate major needs for palliative care. Others include malignant neoplasm, heart failure, renal failure, COPD, dementia, HIV and etc. While death numbers for other diseases/conditions are available either through WHO or IHME, I can't find the death number for hemorrhagic fever by country (we are looking at Vietnam and India as two example countries). A lit search was not helpful as well.
Would anyone know where to find those data?
Dear Colleagues, please fill thiscquestionnaire, it takes only 5 minutes. It os anonymous. For health professionels e.g. nurses and medical doctors. All specialties. Thank you. In advanced for ypur collaboration. Deatails in the first page. Of the link.
Articles which discuss holistic approaches to Palliative Care.
A psycho-social approach to Palliative Care. - Quality of life - meaningful activity
Dear Research Community,
Hospice and palliative care is facing special issues currently.
Non COVID-19 patients cannot get the direct contact and care from close ones and the care teams. At home they are more isolated, and also in hospices visits are reduced to the absolute minimum.
COVID-19 patients often do not have contact to family members before being sedated for intubation. In many cases there is no way to have a last contact to the beloved ones.
Which smart-technology solutions are there currently applied?
Which solutions are applied, that are also fullfilling standardds of data protectin?
I am really eager to learn more and share experiences and ideas!
Dear Sirs and Madams, Doctors and Nurses
please fill this anonymous questionnaire about Dementia and palliative care. You needonly 5 minutes. Thank you to help this research study.
Hi, I'm a student and this is my first time doing research. My research topic is the burnout of palliative care nurse. But due to lockdown, I can only find and try to contact them online and I've got no idea about it. I need at least 200 participants while I know few people attending terminal care as a nurse. Where can I find more palliative care nurses as many as possible? And, in what kinds of organisation there are more palliative care nurses working? Is it suitable if I contact the organisation itself via email or Facebook and ask for helping me distribute the questionnaire to their workers? Any advice? Thanks a million!
Is palliative surgery of total colectomy and removal of rectal mass (not curative) associated with an increase in progression-free survival of patients with metastatic colorectal cancer? has anyone seen a paper or textbook in this regard?
I am an Italian psychologist, currently I am a professor at the University of Sherbrooke, I work in the field of the existential humanist approach, especially the role of the art in palliative care. I am currently researching material on the thought of Ernesto Spinelli. Can you help me find and share material by this great author?
I’m looking for a research topic for my PhD
I would appreciate any suggestions around topic related to oncology or palliative care and community nursing in hospital settings thank you
I am planning a project with our cancer center to provide training in palliative care and communication skillls to address serious illness.
Can anyone reference me to studies dealing with the effectiveness of animals in mitigating stress in patients under palliative care? An example would equine therapy and the mitigation of PTSD. Thank you.
My co-authors and I have interviewed over 300 participants about end-of-life choices. We consistently find misconceptions about what hospice entails. What are the common misconceptions you have come across in your research? Why/how do you think the false knowledge is disseminated?
We have known that many advanced cancer patients are refused to treat more after standard chemotherapy at Shizuoka Cancer Center, even if they could be estimated to recover with other treatments including thalidomide and celecoxib. They are ordered to select palliative care even though they have a chance to be saved with other treatments.
Please help Japanese advanced cancer patients save their lives from Shizuoka Concentration Cancer Center (President Ken Yamaguchi). They have to die with the cease of respiration after injections of overdose morphine hearing the stream sound of high volume oxygen.
I synthesized highly purified thalidomide in 1999 and treated the patients since 2000. But we are ordered to recall every capsule from the Ministry of Health, Labor and Welfare in 2002. The reason is thalidomide is dangerous medicine. In 2005, we submitted a clinical trial, using thalidomide, celecoxib and low dose gemcitabine for pancreatic cancer, to the Ministry of Health, Labor and Welfare. But the clinical trial for multiple myeloma of Fujimoto Pharmaceutical Corporation with poor medical knowledge was approved by illegal transaction between bureaucrats and the Corporation. Fujimoto Pharmaceutical Corporation should conduct various efficient clinical trials to help the patients with advanced and metastatic cancers.
I am writing about death-competence in Palliative Care nurses and I am searching for a practical tool to assess the current level of death-competence. I would appreciate any recommendations, thank you.
I would like to obtain permission and use the palliative care knowledge test (PCKT) created by Y. Nakazawa.
Any help would be greatly appreciated.
Some students want to assess the understanding of palliative care among healthcare workers.
Can anyone recommend a tool, ie questionnaire for this ?
Hi I am currently conducting a literature review on Palliative Care and Intimacy. How can doctors and Allied Health Professions break down the barriers in Hospice settings that enable intimacy for the Patients and their families? I am having a hard time finding the latest research on this subject. Any help would be greatly appreciated. Thank you.
There are many terms for the unregulated health care worker including - Assistant in nursing, health care assistant, patient care assistant etc..
Thanks for your help.
Without doubt, self-care management (SCM) is the best solution to live with diabetes day in and day out. In the world of diabetes care, SCM has gone through an evolutionary process of development of knowledge by providing insight of survival in a challenging social context.
Hello. I am applying for the position of PDF at NRC for the project you are leading "Reprogramming Cell Death in CART-T Cell".
I have a background in cell therapies and manipulation of primary immune cells. Can you please send me some more info on the project, I want to make sure that i am a good fit for your group.
I need specific information including personal interviews, statistical outcomes research, narrow patient populations to describe how nursing care influences patient perceptions and improves patient outcomes throughout the diagnosis and treatment process.
Communication between nurses and patients is a fundamental aspect of cancer care, yet most nurses have had little training in communication. The aspects of communication most valued by patients are those that help patients and their families feel guided, build trust, and support hope. While these may be abstract qualities, they follow from a concrete set of communication skills that can be effectively taught and learned. These communication skills are not the “medical interviewing” skills most physicians learned in medical school, which focused on taking a complete medical, social, and family history. The communication skills needed in cancer care are second-order skills that address difficult situations.
A wide variety of empirical studies document that nurses-patient communication is suboptimal. Physicians and nurses typically miss the full range of concerns held by people with cancer. These deficiencies in communication increase psychological and existential suffering of patients and their loved ones. Compounding these problems are the finding that oncologists lack accuracy in detecting patient distress.
I'm interested in pharmacological end-points and gender-specific responses to titrated palliative sedation medications; also other patient-related factors that might affect the sedation trajectory over time; ie how much of a medication will reduce pain and suffering but without inducing unconsciousness.
I'm looking for a current exploratory analysis of hospices, palliative care and long-term care units efficiency. In my study I would like to transfer specific measures used by international researchers community to be applied to the local (Polish) LTC system. What's especially thrilling is how do researchers reflect the effectiveness of medical treatment applied to PD patients (Parkinson's disease) and cancer patients (C & D groups in ICD-10 classification).
The patientgroup that I want to discuss are only the patients who receive palliative care. It doesn't matter which causal disease the patient has.
Currently I am working on palliative sedation of dying patients with symptoms of existential suffering and so I am searching for appropriate assessment-tools for these patients especially when verbal communication is limited.
Hello, Does anyone know of any research on parents responses to Prenatal Consultation service after receiving a problematic fetal diagnosis? I am giving a presentation with Betty Ferrell and a Neonatologist at the Annual Assembly of Palliative care physicians and nurses, Chicago! We are starting with the 'Parents Voices' in our promotion of Neonatal Palliative Care in every NICU in the US.
I am keen to find out about using the Promoting Excellence Framework and how this could be used to help care home nurses in care planning for end of life care.
This would be a research proposal for my Masters.
I am planning to use Action Research.
Any ideas or signposting to resources greatly welcomed.
How can Indic perspective be integrated in End of Life Care?
Any SUGGESTIONS OR NARRATIVES OR DISCOURSES OR INFORMATION OF any such model of care based on traditional medicine tested anywhere in India/overseas is solicited please. Thank you.
What type of education about Indigenous cultures and beliefs is provided for palliative care staff, and to what degree is cultural safety for Indigenous patients considered?
I am searching for research literature and scholars working on Indic perspectives on end of life care. Can anyone who has been working or published in this area may kindly share their experience and published work? Thank you.
What are the top empirically supported behavioral health interventions for palliative care patients who are dealing with depression and anxiety?
I am doing a systematic review on palliative care and family caregivers perception, one of the articles I selected for my included studies used a 'stepped-wedge non-randomized trial design'. The Cochrane Library link did not specify any NRS for this design. I would appreciate any valuable link to this type of design for my review.
Looking for frameworks to assess competency of health care assistants working in the community with children with complex/palliative care needs. How do we assess that they are safe and competent?
I am researching interventions for staff support within palliative care teams and their effectiveness.
Palliative care is said to improve the care of patients at the terminal stage of their disease process. However, some believed that there is a lack of quality in the palliative care provided. This lack of quality may be viewed in terms of health care professionals' perception, patients'/service users'/ carers' experience, or the influence of public health guidelines and policy on palliative care services.
Trustworthy research references will be beneficial for this inquiry.
I am using this diagram as part of my research in explaining non-medical professionals working with the bereaved. So far I have not found a definitive source. Can any of you help - how should I reference it?
The attached link is one of many in google images that reference to a different source.
I'm looking for quantitative studies, which measured the resilience score of a special group of persons. In this case nurses working in palliative care. The best comparison will be with the RS 25 by Wagnild, but also all others.
Am doing my research on Suffering of Palliative Care Patients. Can any one suggest the research related to Palliative Patients?
The Driving Authority in the UK (DVLA) has set a limit for morphine of 80 mcg/litre plasma concentration. Does anyone have any figures giving an idea what this equates to in dose terms for palliative patients?
I am working on a post-grad course for board certified chaplains working as advance level clinicians with palliative care teams. Any help in finding resources and articles would be greatly appreciated. Thanks
Not for profit groups are in tight financial times due to lack of clear ways to cover expenses for palliative care. Cost avoidance is helpful but not always easy to sell to consumers.
Medical technology is able to treat many conditions and maintain life in very old and complex patients as well as younger but with incurable and progressing diseases. Questions as to the benefit of different treatments are rarely asked and discussed neither with families nor with colleagues. Should the term 'futile treatment' be officially used? Should it be mentioned as such or debated in medical records?
I am currently the Palliative Care Clinical Coordinator at our hospital. We do not have a Palliative Care physician. Results of recent survey questions have revealed that the majority of staff believe Palliative Care services are of importance but many factors leave them unsure of requesting Palliative Care Nurse consults. I have been to the ELNEC Train-the-Trainer Course and I am planning to attend an ELNEC CORE Trainer program in the summer but I don't know what education approach would be best when working with our staff. Some have suggested concentrating on a different Palliative Care aspective each month and attend monthly staff meeting on each unit. Others have suggested online webinar--of which I am not in favor. I believe there are better outcomes in this particular type education when there are teacher/learner interaction. If anyone has any ideas, I would definitely appreciatinput. Thanks so much!
In our practice Hyoscine Butylbromide is used as a subcutaneous bolus dose when required or used in a Continuous Subcutaneous Infusion CSCI.
I am writing a small overview about research and publications dealing with moral distress in oncological nursing and palliative care. Moral distress as an aspect of burn out and the wish to change the job or leave the institution actually working for...
I am currently working with my PhD research proposal focusing on developing learning strategies to improve compassionate care among undergraduate nursing students when they are caring for people at end-of-life care period.
The fundamental objectives of the healthcare management profession are to maintain or enhance the quality of life, dignity, and well being of every individual needing health care services; and to create a more equitable, accessible, effective and efficient healthcare system.Ethical issues near the "end of life" (EOL) often arise because of concerns about how much and what kind of care makes sense for someone with a limited life. If the patient is very old. There is often conflict between physicians or nurses and family members about what is the appropriate care for the patient. (Whether to sustain ones life or to let it perish)
In the UK and some universities in the US and Canada, palliative care was not included as a subject in the medical curricula undergraduate courses. Now more and more schools of medicine are incorporating it. A specific tool, validated or not, could be useful to me and others.
There are many studies and articles about the need for perinatal palliative care but I don't find much about caring for the pregnant woman who is diagnosed with a life threatening illness. any one involved i this type of study?
Withholding patient progress care notes in the home by nurses seems to be an issue with carers raising suspicion that they are not being told the whole story
Looking to streamline our practice and work smarter by allocating and prioritising patients in a more structured manner. Is anyone using a tool such as RAG etc which is working well?
In my center, an academic hospital in Spain, and an ESMO Designated Center of Integrated Oncology and Palliative Care, we are outlining a new protocol for Early Palliative Care intervention in advanced cancer patients. Does anyone have a protocol that is working well in university hospitals?
Dementia care mapping and discomfort scales use observable measures of wellbeing which could be useful for monitoring quality of wellbeing in the dying patient, levels of suffering, etc, in people unable to communicate verbally