Intellectual Disabilities - Science topic
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Questions related to Intellectual Disabilities
I need to find an instrument to measure quality of life in adults with Intellectual disability (mild - moderate) in Cyprus. Any Recommendations? (Spoken language is Greek)
we are developing a gaming application for intellectual disability children. in that application, we give points/rewards as a motivational technique. to do that, we like to know the names of algorithms that we can used for that.
I am interested in reading on any theoretical treatises and empirical studies on the application of critical pedagogy & education / feminist (if any) with with children and/or adults with intellectual disabilities. Reference to critical pedagogy with children and/or adults with physical disabilities is also of interest. Yet, I seem to be drawing a blank on both accounts but especially the former. I would appreciate any suitable directions.
What do you think about inclusive social-interactive theater as a method of destigmatization people with mental illness and with intellectual disabilities
I am looking for evidence-based guideline for prescribing benzodiazepines among patients with Intellectual Disability.
To conduct a study with people with severe/profound intellectual (and multiple) disabilities, it is important to ensure that the participating persons actually meet these sample criteria. -> From an international perspective, what are the most common ways/assessments/approaches to achieve this? Based on a little literature review, there are three possibilities:
- Questioning the direct support persons about their estimation within an open interview.
- Questioning the direct support person with a (semi-)structured interview/questionnaire (e.g. Vineland Adaptive Behavior Scales -> Arthur-Kelly et al. 2017; Mechling & Bishop 2011; Lancioni et al. 2015).
- Direct testing (e.g. Bayley Scales or Kent Infant Development -> Nijs et al. 2016).
(In terms of an assessment/questionnaire, it would be great if there were an English and a German version.) I am really interested in your feedback and your experiences.
I will be performing an experiment for testing Acceptance and Usability of a technology by intellectually disabled people through a likert scale questionnaire. Unfortunately, I am not able to access previous research work related to the Pretest questions used to train the experimentees for Likert scale responses. I need help with formulating these Pretest questions for my experiment.
The set of questions designed to test Acceptance and Usability of Human robot Collaboration by Intellectually disabled people working in Sheltered Workshops of Germany needs to be checked by an expert in the field for reliability and clarity.
I know people with intellectual disabilities who recently have been recommended to do new genetical tests if their last test is more than ten years old. What are the key differences when searching for genetical anomalies in samples from people with intellectual disabilities today compared to ten years ago?
I am interested in research that shows the development of mathematic skills and knowledge in high school students with Mild/Moderate Intellectual Disabilities. What are teachers doing? What is the best practise for teaching these students?
Can anyone recommend an assessment of risk for suicide and self harm for people with an intellectual disability? I have had a brief look at the evidence base and risk factors for this population are similar to the general population, so if there are no specific risk assessment for this group, which risk assessment would you recommend more generally for suicide and self harm risk?
Any advice would be gratefully received.
I'm seeking a very brief, nonthreatening tool that will be used with parents who are enrolled in a family support program to identify potential intellectual disabilities. The tool will be used by family support workers to help them tailor services. It will also be used in research. Thanks for ideas...
I am looking for short educational (and preferably fun) videos 1 to 5 minutes in length that can motivate and teach people with intellectual disabilities everyday activities like vacuuming, brushing your teeth, washing up, washing windows, washing clothes, folding clothes, paying for groceries ...
I look for possible different and additional tools from those related only to adaptive behavior (Vineland etc.) or to support (SIS) or functional needs.
A 17 year old male presented with psychotic symptoms, trichotillomania and intellectual disability and likely FASD . On routine CT scan he was found to have a large fibro- osseous growth extending from the pterigoid process , sphenoid sinus to zygomatic bone, which was asymptomatic. He also was born with atrial septal defect and had reconstructive surgery. What would be the etiopathology of such finding and what would be it’s prognosis.
If i want to calculate IQ, DQ and SQ of my subject using Seguin form Board Test (SFBT), Developmental Screening Test (DST) and Vineland Social Maturity Scale (VSMS) respectively. Suppose age of my subject is 22 years who have been diagnosed with intellectual disability. Suppose his Mental age comes out to be 10 according to SFBT, his developmental age comes to be 9 according to DST and his Social age comes to be 12 according to SFBT. So what we will take in denominator for calculating his IQ,DQ,SQ? As these scales are only meant for not above age range of 15 so will we take it to be 15 ? or we will take the original chronological age of 25?
Thank You :)
Oxytocin is being found to improve prosocial behaviour in autism. It also seems to help reduce anxiety in social anxiety. It likely improves the neuroplasticty in the orbitofrontal area , in which case it is possible that it can be tried to reduce aggression in violent patients, specially with Intellectual disability. Is there any research in this area?
I want to take a deeper look at the facial expressions of people with profound intellectual and multiple disabilities (PIMD) to analyse their emotional expressions.
For this purpose, I am searching for a ready-to-use software, which combines image processing (e.g., OpenPose, OpenFace) and machine learning. In addition, I would prefer a software that is free (i.e., Open Source) or at least for non-commercial research purposes.
So, I am not looking for methods, but for ready-to-use software, which includes a feature to train my own models. The reason is that every person with PIMD shows very unique behaviour signals and, therefore, you need one model for each emotion of a person.
Finally, I do not need a GUI or visualization, a simple command line application would enough.
A hint would be very helpful.
The authors of DSM-5 chapter on intellectual disability made a significant error (typo!?) in reporting the prevalence of intellectual disability. Actually, subheading PREVALENCE in DSM 5 consists of only two sentences:
Intellectual disability has an overall general population prevalence of approximately 1% and prevalence rates vary by age. Prevalence for severe intellectual disability is approximately 6 per 1000.
So, it means that there are 10 people with intellectual disability (all levels of ID) on 1000 people. According to DSM-5, 6 out of these 10 people are people with severe intellectual disability. However, most studies point that out of all people with ID, the majority of them (85%) have mild ID. I think this needs to be corrected!
In the field of intellectual disability, data are often hierarchical. As in the case of the classic example of schools (school, class, student), data in our field are often hierarchical ( residential setting, life unit, individuals).
In this context, I am looking for studies that have analyzed the impact of this hierarchy in the field of intellectual disability or empirical studies that have at least controlled for this using multilevel models.
is anyone aware of the existence of such studies?
I'm looking to see if there is a validated questionnaires to use in a small study to assess Health Seeking Behaviour in people with intellectual disabilities.Thanks in advance.
I'm starting my PhD and for my dissertation I would like to propose a (pedagogical) framework that uses ICT in learning for people with intellectual disabilities, so I was wondering if there are there any existing frameworks?
I am a social work student of Tata Institute of Social Sciences, Mumbai, India.
As part of my master's dissertation I wish to explore 'The relationship between attitude towards intellectual disability and degree of belief in God/religiousness/spirituality among parents of children with Intellectual Disability.'
Looking forward to suggestions regarding scales on belief in god, religiousness or spirituality that would be easily accessible along with scoring, reliability and validity data. Thank you.
How do we evaluate the independent living skills of adolescents with mental disabilities? Are there any recent references on this subject?
There are many studies concerning people with Down Syndrome, but I do not find references to people with other etiologies of intellectual disability
I have a question about the use of publication bias modeling approaches in meta-analyses of proportions.
The traditional approaches of assessing publication bias, such as the rank correlation test, Egger’s regression model, and weight function approaches have all assumed that the likelihood of a study getting published depends on its sample size and statistical significance (Coburn and Vevea, 2015). Although it has been confirmed by empirical research that statistical significance plays a dominant role in publication (Preston et al., 2004), this is not entirely the case. Cooper et al. (1997) have demonstrated that the decision as to whether to publish a study is influenced by a variety of criteria created by journal editors regardless of methodological quality and significance, including but not limited to, the source of funding for research, social preferences at the time when research is conducted, etc. Obviously,the traditional methods fail to capture the full complexity of the selection process.
In practice, authors of meta-analyses of proportions have employed these methods in an attempt to detect publication bias. But, studies included in meta-analyses of proportions are non-comparative, thus there are no “negative” or “undesirable” results or study characteristics like significant levels that may have biased publications (Maulik et al., 2011).
Therefore, in my opinion, these traditional methods may not be able to fully explain the asymmetric distribution of effect sizes on funnel plots. It is also possible that they may fail to identify publication bias in meta-analyses of proportions in that publication bias in non-comparative studies may arise for reasons other than significance.
I'm not sure if my reasoning is correct. Can someone shed some light on this? If someone could point me to some papers regarding this topic, that'd be wonderful.
References: Coburn, K. M., & Vevea, J. L. (2015). Publication bias as a function of study characteristics. Psychological methods, 20(3), 310.
Cooper, H., DeNeve, K., & Charlton, K. (1997). Finding the missing science: The fate of studies submitted for review by a human subjects committee. Psychological Methods, 2(4), 447.
Preston, C., Ashby, D., & Smyth, R. (2004). Adjusting for publication bias: modelling the selection process. Journal of Evaluation in Clinical Practice, 10(2), 313-322.
Maulik, P. K., Mascarenhas, M. N., Mathers, C. D., Dua, T., & Saxena, S. (2011). Prevalence of intellectual disability: a meta-analysis of population-based studies. Research in developmental disabilities, 32(2), 419-436.
what statistical analysis would i have to use to find out out if increasing knowledge influences an individual's attitude towards physical and intellectual disability if i am using pretest and protest for both my knowledge scale and attitudes scale? and i'm also trying to find out if contact also has an influence on people's attitude towards physical and intellectual disability
I would be thankful if you provide me by methods of gm and types of food, what is the effect of each also. Waiting your professional answers 👍
I am looking for a standard method for evaluating interventions to reduce dog phobias in individuals with autism and severe intellectual difficulties. Most of the participants in the programme become known to us because they have dangerous reactions to the presence of dogs e.g. they run across the road or they hit their caregivers or they scream very loudly. Can anyone point me in the direction of a published dog phobia scale that could be filled in by caregivers.
For example in Dyslexia, Memory retention problems, Poor concentration, Problems of lexical fluency, School stress, Slow learning, and the like. Especially if simple electronic instruments of medium technology are used.
We used structural equation modelling with latent variables using items indicators for our analyses. Given the sample size and the complexity of the model, the use of structural equation modeling using parcels/packets as indicators might be a good alternative. Although I have read some disadvantages about parceling, I would like to give it a try. However, I cannot find a tutorial or something similar that explains step by step how to use parceling in mplus. Does anyone have a suggestions?
Thank you very much and kind regards,
We are considering to use the Cantril Ladder (Cantril, 1965) to assess subjective well-being / satisfaction with life with a single item. The Cantril ladder has been used in numerous studies among various populations and in different settings and is considered to be a valid and reliable measure of subjective well-being. Does anyone know of any studies using this questionnaire in people with mild intellectual disability?
I was wandering if anyone has any advice on the use of effort tests with an individual being assessed (using the WAIS-IV) for an intellectual disability.
Does anyone have article /articles attitude scale (Science, Technology, Maths...) for with intellectual disability students?
Does anyone have any walking exercise program for people with intellectual disability ? Can you help me?
Or know the literature in this area?
All three of my clients who have been barred from hugging, kissing, and sex whilst detained as special patients for the last 11-20 years originally as being unfit to stand trial. All are intellectual disabled, two have autism, and all have had mental health problems. They are suing the Health Boards for a numerous reasons. Can anyone point me to research on the psychological and/or psychiatric effects of such lack of tactile experiences.
Outcomes studies for adults on the Autistic Spectrum with no intellectual disability would also be useful.
Not an expert on CNVs. I have a few samples from children with autism and their typically-developing siblings, which contain a few previously identified CNVs. Would like to get a sense if these CNVs have been reported in association with developmental phenotypes (autism, intellectual disability, dysmorphic features, etc). Wondering if their is a streamline way (a database?) to assess these loci in the previously published literature.
There is a lot of thoughts on gullibility being a component of intellectual disability. I have been reading works on open-minded cognition and how it can be situational. What if the actual component of intellectual disability is not gullibility but an inability to be open-mindedly situational. How would the landscape of our knowledge change in an educational and caring context? Does anyone know of any works in this area? Thoughts?
I would be interested in any studies that have looked at agreement between parent/caregiver rating and self report ratings of social or physical competence for participants with Intellectual Disability. Anything you know of with child or adult participants would be very helpful.
Paraprofessionals respective teacher assistants play an important part in learning of students with special needs in inclusive settings. Most of the available studies don't distinguish closely respectively the kind of special needs. In Germany the differentiation between various kinds of special needs is traditional high. So I'm searching specific finding for children with intellectual disabilities. Thank's for a hint!
the title of my study is "Challenging Behaviors in Relation to Social Skills in Adolescents with Moderate Intellectual Disabilities"
I like your papers published in this field but I need to know you point of view about this topic. Unfortunately, there are not enough resources about this topic in Egypt. I wonder if you could help me by any means. If you have any scales and researches available about this topic, would you please tell me where I can find them?
I want to explore the reported barriers that face adults in the transition from sheltered to competitive employment. There are adults with an intellectual disability who first began in sheltered workshops and find it difficult to move on?
I wonder if you could help me by any means. If you have any scales and researches available about this topic, would you please provide me with them? I would be grateful if you could attend to this matter as soon as possible. Appreciating your consideration and cooperation
Does anyone know of any available data (either published or upon request from a researcher) which involves reading/writing and people with cognitive disabilities or deaf people? It would also be interesting to hear about multimodal corpora, e.g. text accompanied by eye tracking fixations. My research is focusing on automatically determining the difficulty of text passages for people with autism and I have been doing comprehension studies and collecting eye-tracking data. I was wondering what other resources there are, which may contribute to the topic. I am only aware of the LocalNews corpus by Feng et.al. (2009), which contains 11 original and simplified texts evaluated on readers with mild intellectual disability.
Any information and opinions about different disabilities, sources and languages are welcome.
First, I intend to use Rosenberg's self esteem (RSE)questionnaire but some papers told that it is suitable for adolescent 13-17 years and older. So, I wonder that can I use the RSE in children with ID or is there any other questionnaires that more proper for this group?
My experience leads me to believe that the values of respect are learned but not really taught how to treat people with disabilities.
Inclusion in schools is not real if it is not taught to relate well to children with disabilities
The lack of skills and lack of positive experiences is a reality. Avoid contact children not to fail in their relationship
It would be useful to have a standard outcome measure to facilitate service audit. The difficulty is that whilst there are various outcome measures recommended for people with mild to moderate learning/intellectual disabilities, there seems to be a dearth of measures for people with more severe intellectual / learning disabilities.
The ideal measure would be:
- Quick to administer
- Easy to understand
- Applicable to people with as wide a range of intellectual disabilities as possible.
Any information / recommendations would be very much appreciated!
I'm looking for meaning of the theoretical assumptions of the lifelong learning for adults with intellectual disabilities.
Would you share a references, authors or inspiring ideas ?
There is a plethora of evidence to support the need for increased training of healthcare providers to improve the care, and decrease the healthcare disparities of adults with intellectual disabilities. I am interested in any studies that have implemented training of the healthcare provider and the impact it had on the care and experience of the adult with intellectual disability in the acute care setting.
I want to assess temperament dimensions in patients with intellectual disabilities. A common instrument to assess this is the Temperament and Coping Inventory, but to my knowledge the TCI is not validated nor intended for ID samples. Other instruments that I found were the Child Behavior Questionnaire, and the Emotionality, Activity, Sociability (EAS) Temperament Survey, but these apply more to children than to adults (i.e.., they seem too childish). Does anyone have any suggestions? It's for diagnostic (and ultimately research) purposes and adult patients.
Does anyone know some instrument to assess perceptions about self-determination and how to promote it? (For families, specially parents of young children with intellectual disabilities)
We are investigating the trustworthiness of individuals with mental disabilities for legal expertise
I'm looking for a scale on friendship quality I could use with teenagers and adults with intellectual disabilities. I'll be grateful for any suggestions.
I'm looking for publications on the development of sexual behavior in children, I would appreciate any suggestions.
I also look for indications of research on sexual behavior in children with intellectual disabilities, especially Down syndrome.
I am reporting research-based family-professional partnership practices that promote inclusion for students with intellectual disabilities in general education settings. Any suggestions for studies are welcome! Thank you!
I am looking to construct a rationale for the need to supporting interventions for parents whose children may be referred to safeguarding services on the grounds of neglect when these parents have a diagnosed LD.
I would like to know whether there have been specific interventions identified to support these parents to raise their children safely, with nurturance and stimulation to help their development into adulthood. or whether some interventions focusing on parenting and/or the relationships between parents and children have been found to be adjustable to meet these parents' needs.
this could inform preventative strategies aiming at reducing the need to refer to safeguarding services if it is also found to be cost effective as compared with current safeguarding interventions such as foster care placements, residential homes or adoption.
Which could be the best instrument to measure:
1) readiness and capacity to resolve conflicts
2) ability to maintain and understand social relationships
3) interest and ability to communicate
4) ability to cooperate and provide information
Could anyone recommend references about implementation of meeting space for individuals with intellectual disabilities ?
From a legal perspective, children entitled to special education are entitled to an individualized plan. Only so many approaches are likely to work, however, so I'm trying to locate research on the question of whether differentiated education is actually necessary in order to deliver special education services.
I want to assess the association between several variables and the eating behavior in individuals with intellectual disability. Since I have missing data on some variables I want to calculate my regression using FIML in Mplus. In addition I have some clustered (some individuals live in institutions with several individuals from the same institution in my data set) data and some unclustered (some cases life with their families, only one individual out of each family in my dataset) in my data set.
Is it appropriate to use TYPE=complex in this situation? Any good reference?
Psychosis is more common in people with intellectual disability than general population. Can you share your experience of diagnosing and treating psychosis in this population. Have you across any issues which are unique to this population.
I need something that can be completed by the adult themselves rather than an informant, and preferably a direct measure (e.g., a test where the person performs tasks to demonstrate competence).