Science topic

Hospice - Science topic

Explore the latest questions and answers in Hospice, and find Hospice experts.
Questions related to Hospice
  • asked a question related to Hospice
Question
5 answers
Dear Research Community,
Hospice and palliative care is facing special issues currently.
Non COVID-19 patients cannot get the direct contact and care from close ones and the care teams. At home they are more isolated, and also in hospices visits are reduced to the absolute minimum.
COVID-19 patients often do not have contact to family members before being sedated for intubation. In many cases there is no way to have a last contact to the beloved ones.
Which smart-technology solutions are there currently applied?
Which solutions are applied, that are also fullfilling standardds of data protectin?
I am really eager to learn more and share experiences and ideas!
Kind regards
Martin
Relevant answer
Es muy importante conocer lo que ud refiere del uso de la tecnologia en este caso de aplicaciones que pueden resolver situaciones extremas y en condiciones antes del duelo.En los casos de paises que poseen atencion primaria de Salud ligada a estos pacientes y en estos moemntos de pandemia es necesario tambien establecer una estrtegia de trabajo que concatene el medico y la enfermera de la atencion primaria con estos pacientes. Estamos hablando fuera de la UCI y de los hospitales .
  • asked a question related to Hospice
Question
2 answers
I am in the early stages in conducting a quality improvement study on the transparent masks. Asking the question does it improve communication and reduce anxiety in hospice patients with dementia? The purpose behind this is to humanize and personalize the patient experience during nursing care in hospice setting. The mandate to wear solid mask covering has altered social interaction. Transparent masks will continue to serve as proper protection against the virus. The removal of communication barriers is crucial in establishing positive working relationships with patient/families. In addition, transparent masks will allow the patients to be able to interpret facial expression. Needing help on literature review and assistance with scholarly articles.
Relevant answer
Answer
On a personal basis, I would argue a transparent face mask is going to aid communication and more importantly the understanding of the message/communication. Much of non-verbal communication is lost with the non transparent masks. For D/deaf people it is essential to be able to observe the speaker's facial movements etc.
  • asked a question related to Hospice
Question
4 answers
I am looking to understand the level of leadership and management development available across the Hospice sector predominantly in the UK but would be interested to hear how this works in other countries for comparison.
Relevant answer
Following
  • asked a question related to Hospice
Question
3 answers
I am trying to develop a spiritual assessment for for use in my role as a pediatric palliative/hospice chaplain. I have not been able to find one that I could use to get ideas. I have my own ideas, but wanted to see what others are doing.
Relevant answer
Answer
I did a presentation on Health and Spirituality (including spiritual assessment) to Pediatric Integrative Medicine Rounds at the Edmonton Clinic Health Academy at University of Alberta Hospitals a while ago.
Here is the URL for my power point presentation.
  • asked a question related to Hospice
Question
15 answers
My co-authors and I have interviewed over 300 participants about end-of-life choices. We consistently find misconceptions about what hospice entails. What are the common misconceptions you have come across in your research? Why/how do you think the false knowledge is disseminated?
Relevant answer
Answer
Most people believe you go to a hospice to die, which is just not the case. We discharge over 50% of admissions. People can be admitted for respite and symptom control, with the aim of getting them back home.
  • asked a question related to Hospice
Question
3 answers
I am working on a book chapter dealing with intimacy at the end of life and use of adjunct therapies. I am looking for articles describing results of the use of the adjunct therapies, and statistics of the use of those therapies in home hospice and community hospices.
Relevant answer
What you need for dying people is the courage to talk about existential issues. What kind of other therapy you does not influence the patient's death anxiety or thoughts about eternity.
  • asked a question related to Hospice
Question
4 answers
I am looking for research using motivational interviewing in hospice symptom management. Thank you!
Relevant answer
Answer
Susan-
Thank you for your response! I recently completed a single-day MI HETI training, and have been reading several books to understand MI methods. I am also a hospice nurse, though I recently left clinical practice. I agree that MI methods and/or spirit are especially appropriate in the hospice context!
  • asked a question related to Hospice
Question
8 answers
Hi I am currently conducting a literature review on Palliative Care and Intimacy. How can doctors and Allied Health Professions break down the barriers in Hospice settings that enable intimacy for the Patients and their families? I am having a hard time finding the latest research on this subject. Any help would be greatly appreciated. Thank you.
Relevant answer
Hi Tezza, maybe this article can be useful for you!
  • asked a question related to Hospice
Question
5 answers
Hi to everyone,
I'm trying to make a research about the nursing coordination in Hospice: what the ward nurse does?
I have a difficulties to find studies about it. Could someone help me or advice me some studies if exist?
Chiara
Relevant answer
Answer
Thank you very much Geraldine!
  • asked a question related to Hospice
Question
5 answers
I'm looking for a current exploratory analysis of hospices, palliative care and long-term care units efficiency. In my study I would like to transfer specific measures used by international researchers community to be applied to the local (Polish) LTC system. What's especially thrilling is how do researchers reflect the effectiveness of medical treatment applied to PD patients (Parkinson's disease) and cancer patients (C & D groups in ICD-10 classification).
Relevant answer
Answer
Your project sounds interesting. I don't have an answer for you regarding exploratory analysis of hospices, etc. Best of luck with your project.
  • asked a question related to Hospice
Question
6 answers
Is there a standard web-based hospice educational program for clinicians? 
Relevant answer
Answer
  • asked a question related to Hospice
Question
3 answers
I would like to add these contents with the use of videophone technology in home hospice patients.Can anyone suggest resources on Team Model of Hospice Care and why the use of a videophone or other videoconferencing modalities make a difference in patient and family experience and the role of the providers on the team
Relevant answer
Answer
Dear Rincy
I do not experience. However read this articles, but take as consideration, that the new technologies suffer a huge development.
Regards
Whitten, P., Holtz, B., Meyer, E., & Nazione, S. (2009). Telehospice: reasons for slow adoption in home hospice care. Journal of telemedicine and telecare, 15(4), 187-190.
Oliver, D. R. P., Demiris, G., Day, M., Courtney, K. L., & Porock, D. (2006). Telehospice support for elder caregivers of hospice patients: two case studies. Journal of palliative medicine, 9(2), 264-267.
Chi, N. C., & Demiris, G. (2015). A systematic review of telehealth tools and interventions to support family caregivers. Journal of telemedicine and telecare, 21(1), 37-44.
  • asked a question related to Hospice
Question
3 answers
Palliative sedation is sometimes a necessary intervention near the end of life. I am concerned about professionals perception, attitudes and practices regarding palliative sedation.
Relevant answer
Answer
I agree with Cecile Furstenberg and  Bojana Hocevar Posavec.
  • asked a question related to Hospice
Question
8 answers
I have seen elderly dementia patients being placed at public hospitals despite not experiencing any other acute nor chronic pain. Would placing elderly dementia patients amongst themselves at hospices instead help them to recollect whatever short-term decaying memory left of them?
Relevant answer
Answer
Ideally, if people dementia are placed in long-term care settings, these settings must be designed according to their functional abilities and needs. The appropriate type of setting would highly depend on each individual's functional and cognitive level. For example, there are excellent respite programs for individuals with dementia with mild to moderate symptoms in the USA where they go for cognitive stimulation and socialization during the day. They return to live with their families in the evening. There is evidence that these programs increase well-being and may even have some influence on rate of progression. There are also dementia care units where individuals can permanently reside with other people who have dementia. There is evidence that it is beneficial for people with dementia to reside in long-term care settings that are designed specifically for their unique needs. For end-of-life care, it is very important to consider the special needs of people with dementia which can be quite different than other individuals at end of life. For instance, pain may not be as much as an issue as swallowing, although each person has unique needs.  
  • asked a question related to Hospice
Question
6 answers
Supports for the Dying and Grieving: A look at Hospice through the lifespan and the benefits for those left behind when someone dies, support for widows, widowers, the childless, the siblings, and the orphans.
This is title to my dissertation but am seeking information from both sides the personal accounts or stories as well as the professional accounts or stories.
Relevant answer
Answer
A valid aspect from The Netherlands: lack of knowledge about hospice care. May view a hopice as a place of death in stead of a place where optimal QOL is central in the last phase of life. Both the public and referring physicians (who often refer very late in the process) lack knowledge. Families often regret late referrals ("If I had known that this is what hospice care is all about, I would have opted for much earlier referral for my loved one.").