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Health Information Systems - Science topic

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The impact of digital health technologies on healthcare system is becoming relevant day in day out and its adoption is making access to to patient care more easily accessible.
Introduction of deep learning into the security of EHR data is one of the areas that is being looked into, to ascertain better protection of these sensitive personal identifiable data.
Your input will help a lot to ensure great achievement of this project.
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Is there a specific view of security you are thinking of, or is this just a wide and general question?
Thinking of security with respect to network/cyber attacks, then Electroni Health Records simply inherit the same deep learning techniques that can be applied to any networked systems/applications (perhaps with some diffeent 'value' calclulations as to the monetary expression of the damage done in such an attack).
If this question is about privacy concerns and data use - who has access to and whwo uses your data, then mostly the access controlls and logging of data access are within the EHR applications themselves (EHR, personal health record or any system/application that looks after health information).
The are also in some networked environments with multiple actors, there are audit logs that can be inspected (the IHE ATNA being an example). I know of a few real world examples (but with no accademic publications) where such logs were inspected and the evidence of un-authorised access (or miss use of authorised access) was proven. Since this activity is looking for patterns in a log file (or set of log files with some correlation) then this looks to me exactly like the kind of problem that deeo learning could be applied to. Note "who" is looking at "what" data implies you need to know the identities of the "who" in a real world context that would confirm or deny that they are allowed to look at "whatever-it-is".
In private healthcare based economies, your insurance premiums are based on your declared health. Health insurance companies may use deep learning tools in analysis of their customers health records - but this is ouutside of my experience and it is of course linked to the legality of doing this (which I am surer varies from country to country).
Effectively though, this kind of deep learning would ook like a specialisation of the kind of deep learning applied to fraud (specialised for healthcare insurance premiums and delcarations).
I am sure there are other areras. Computer architecture that results in multiple copies of healthcare data items and records leads to ambiguity in records - where is the source of truth. You can see how in the above fraud example any ambiguity might lead to loopholes for fraudulent activity or put a consumer in a position where they find it difficult to prove their health records. I am not sure if deep learning would be applicable here, when inspection of the architeture would tell you about this potential-duplicates problem.
Your question seems quite wide, I hope my contribution is useful for you and I haven't missed the poiont of your question.
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How to judge the correctness of the obtained information related to COVID-19 and how reliable are the various online sources of this information?!
What should/not we trust?! where to get information!?
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I totally agree with you.
Therefore, I recommend you to take a look at:
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I am looking into how we can determine the value of Health Information Systems investment as a basis of convincing the county government to invest in it.
However, there are no generally accepted valuation strategy that have been developed for information systems in either the business or health care domains.
I would appreciate theories around the above area.
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Hi,
I think this is a very difficult task, and I unfortunately can not give you a valuation model. I don't even think a good one exists, and would personally distrust any claim that such valuation could be precise. There are just so many dependent and independent variables to adequately cover in a model. Luckily, it is much easier to make the case why governments should invest in HIS or not, irrespective of the specific costs. You don't write what kind of HIS you are thinking of. Some types are easier to justify than others. Some examples:
For logistics management systems, there will be studies on wastage rates, lost to corruption, aborted services etc that will give an indication of costs of NOT having a functioning IS. These figures tend to be very high, and if only a minor percentage of the costs can be saved it will more than cover the costs of a logistics management information system
For other systems, it could be valuable to look at costs of lack of service provision, in terms of DALY or other related way to measure health. BUT, I would argue that it is better to look at the challenges of the health system like quality of services, patient satisfaction, patient waiting time, etc. While some HIS projects are notorious for being among the most expensive IT projects ever, HIS tend to be quite cheap compared to other inputs in the health service like staff, commodities, and infrastructure/buildings. If better information can lead to better efficiency of these other inputs, the savings can be great. What are some key health indicators, and what are the bottlenecks to improve them? If immunization rates are low, and it is because of poor distribution of staff, then HIS that is able to provide analysis on staff density per population will be useful. Etc etc. So to conclude, I think rather than using a valuation "model" or "theory", I would do an assessment of health service provision and the role of information in this and subsequently see if lack of relevant information is a major challenge. Anyway, it will be interesting to see if anyone else knows of such models or theories.
Best regards,
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Position of DHIS in data management for research
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I realize this is an old question, but since there are some followers to it I just want to point out that there is a project on RG with lots of references to DHIS2:
Most of our research concerns the implementation and use of DHIS2, so there should be a lot of relevant articles there to help answer the original question, or any question you would have around DHIS2.
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A friend has saved data on punch-cards and now need to access the information on the cards. He would prefer to do this with a mechanical reader instead of an optical solution that is quite time consuming.
If you have a functioning reader or a fast optical solution please let me so and I will forward contact information.
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Dear Dr Pepper, (couldn't resist!)
Thank you for your answer. I have forwarded the answer and my friend will probably come back with more information.
Jonas
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I am looking for research subjects who can offer insights into the implementation of the EHR in Europe. 
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Hi Hans-Peter,
HIMMS has a very useful 7-stage model to measure hospital EHR implementations in the USA and also in Europe. Hospitals at stages 6 and 7 have implemented fully integrated EHRs. This is a vendor neutral model, so it does not matter which combination of software products are used, and in most hospitals there are a wide variety in use.
The link for the European hospitals is:
And the link for the latest list of hospitals in Europe at the stage 6/7 is below (there are about 50, most at stage 6).
Hope that helps.
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There is a number of the formulas for calculation of the cost-effectiveness of the projects, novel treatment modalities, surgery, drugs etc.
But how to calculate the cost-effectiveness of the diagnostic questionnaire?
How to retrieve the cost of analyses from the countries with the system of Health insurance? Should I take into account interests of the insurance companies? 
Thank you all in advance for your answers.
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Diagnostic tools present a complex challenge in cost-effectiveness analyses.  In general, before you can start, you need to understand the value of the information provided by the new diagnostic tool, in terms of how it changes treatment decisions and outcomes.   Specifically:
  • What is the current process of care?
  • At what point in the process is the new diagnostic information utilized?
  • For how many -- and which -- patients is the tool expected to yield information that differs from the previous information or assumption?
  • Among those patients, what proportion will have a change in care as a result of the new information?
  • How exactly will treatment change?
  • How does the effectiveness of the new treatment (including major or costly side effects) differ from the effectiveness of the treatment the patient would otherwise have received (including major or costly side effects)?
Once you have modeled how your diagnostic tool changes treatment paths and outcomes -- and for whom -- you can apply costs/utilities in accordance with your analytical objectives.  It's a challenge, but if you walk though the logic you will see quickly that the value of a diagnostic tool is often governed by the effectiveness of the treatments that might be applied as a result of the new information. 
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I would like to clarify the meaning of information quality among the professionals of the field.
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Dear Prof. Oliveria,
First of all, I'm not a professional. But I think Information Quality Research has been very widely done and it depends on dimensions of particular data that's being processed or analyzed. Maybe this article sheds more light
regards
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Dear Mohd
The (R-squared) , (also called the coefficient of determination), which is the proportion of variance (%) in the dependent variable that can be explained by the independent variable. Hence, as a rule of thumb for interpreting the strength of a relationship based on its R-squared value (use the absolute value of the R-squared value to make all values positive):
- if  R-squared value < 0.3 this value is generally considered a None or Very weak effect size,
- if R-squared value 0.3 < r < 0.5 this value is generally considered a weak or low effect size,
- if R-squared value 0.5 < r < 0.7 this value is generally considered a Moderate effect size,
- if R-squared value r > 0.7 this value is generally considered strong effect size,
Ref: Source: Moore, D. S., Notz, W. I, & Flinger, M. A. (2013). The basic practice of statistics (6th ed.). New York, NY: W. H. Freeman and Company. Page (138).
also you can use other source:
Source: Zikmund, William G. (2000). Business research methods (6th ed). Fort Worth: Harcourt College Publishers. (Page 513)
I hope this information is helpful for you!
Kind regards!
Salah
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Recently I had a horrible emergency experience where I cut my arm muscles in half due to a mistake with a wood cutting machine (I am recovering pretty well, thanks).  The fact was I was taken to an emergency room and treated by a skillful doctor who tied the pieces of my muscles back.  In the meantime I was asked, ONCE AGAIN, the same questions: are you allergic to such and such? are you diabetic? (all of this while I was loosing quite a lot of blood. And i was asking myself: I hace a 16 GB cel phone with lots of nice but useless photogaphs: Could not they have a device that would read my cell phone and take that info from there? Why is not that info attached to my cell phone? 
May you know any useful papers that may describe the advances on this personal ID medical info system being adopted as a universal standard in your country or in any other country? Are there any sort of security issues that people are concerned about? Are there any present main obstacles to this sort of technology?
(if you have time please read my note in LinkedIn)
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Paraq Chatterjee thanks a lot. I will read this paper ASAP. Very ASAP.
Also ichave met other interesting colleagues like yourself heavily involved in first level (primary care) infochealth systems. We are aware that a practical easy and CHEAP but quality solution to this is required to be available to all. I will pursue this topic as a first applied priority. Thank YOU.
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* Example solution : healthcare solution(eg. EHR,EMR), financial solution, EPM Solution,...
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Apart from the Requirements mentioned by Dominic M. Mezzanotte, Sr.
Bharath Muthukumar, Abdelrahman Osman Elfak, Jeffrey Wallk
Try reading these articles:
Royce, W. W. (1970, August). Managing the development of large software systems. In proceedings of IEEE WESCON (Vol. 26, No. 8).
Zmud, R. W. (1980). Management of large software development efforts. MIS quarterly, 45-55.
Messerschmitt, D. G. (2004). Marketplace issues in software planning and design. Software, IEEE, 21(3), 62-70.
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Health Literacy is defined as the ability to read and unerstand basic medical
and health information. According to several sources more than one third of the population in North America  has no health / medical literacy. The outcomes are estimated  at more than 100 bilion USD for the health care sector with additional
negative cosequences like : innability to understand inform concern documents,
innability to access and use adequate and proper health/medical info on the net
etc. The next generation should aquire this through school teaching programes
- What you dear fellows think about ?
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This is an interesting conversation about health literacy. I personally feel much of the responsibility for educating patients falls on the health care providers. There are many excellent tools to raise awareness of the issues and I though I would share a few here. Pfizer, the pharmaceutical company, has been a huge advocate for Clear Health Communication for years and I applaud their efforts. They have a new tool, A Health Literacy Assessment Tool for Patient Care and Research called the Newest Vital Sign (NVS) available in English & Spanish. It helps providers assess what the patient knows, and then using some of their clear health communication skills (in the link provided) we as health professionals can work to better communicate and get feedback on what the patient understands about their illness and any treatment options we are recommending.
The American Medical Association has a really powerful video on health literacy in America. Watch it to really see what we are missing by not looking for health literacy, it's been around for a while, but wow. (Every time I watch it I am moved by the impact of health literacy on patients.) We should never assume anything, plain language is important and it is not the patient's responsibility to tell us they "don't get it", because they will not. Providers need to think about this issue and I am glad it is being discussed here. There are great resources out there.
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I work on validating a given method and I need dermatological image database.
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No problem,may be it is used as benchmark to validate the develpped methods of for training.
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What are the key issues that need to be addressed by a program to improve use of clinical data for health service management and clinical quality improvement? I theorise that it requires both the implementation of technological tools to provide better and wider access to the disparate stores of routinely gathered clinical data (eg EMRs, specialised clinical information systems) AND concurrent training of the broader clinical workforce in applied epidemiology/stats/informatics/data sciences to know how to start better using these resources. What do you think?
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Donald, it sounds like you are right in the thick of performance measuring services. It reminds me of an interesting finding in the UK, where the NHS produces a public hospital scorecard. The interesting thing was that people didn't go to the highest quality hospital, they still went to their nearest . there seem to be many hidden factors that influence patient choice other than quality, so relying on patients choosing the best hospital (thru patient satisfaction) to increase quality might not be too effective. Use of patient satisfaction does not seem to be as popular in Australia, but I wonder what is a better way to use patient input to drive quality.
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I am working on using ESB to integrate the health data sources, but need to know if there has been any existing system in this regards? What is the impact and is any organization working on this?
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Having developed a light-weight repository for data, we went further to create paper forms for redundancy/backup. However, we still hope to collect the data in real-time, to the digital platform, yet in a cost effective way. We are limited in terms of real-time connectivity though and there is no central server. Looking at how best to allow offline data collection with subsequent syncing to a central location. Any ideas?
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I recently came across a tool called Anoto_penDirector, and Mi-Forms what it does is it provides a digital form in which the data entry clerk or whoever is in the field record a direct digital form as you write on the Manual forms
this guy:
has developed digital forms and used such technology for the same purpose you are requesting.
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Tanzania health system is trying to include the spectacles provision as part of treatment in the eye field.
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With a restricted budget, you have to concentrate to the children, mainly young one when the brain is still plastic to get quickly new skills. The very critical point is reading and writing learning process. All your energy has to be oriented toward the detection of vision deficiencies at school.
To help I suggest you contact Essilor Foudation (http://www.essilor.com/en/Pages/Contact.aspx)
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The aim is to describe the surgery intervention in a formal - mathematical way in order to make computer optimization of the procedure to reduce the traumatic effect and the surgery time.
Few thoughts...
Let's consider the surgery for the tumor excision (cutting out).
Most obviously, the first parameters for formalization is the space coordinates within the human body. And in case of operation, we need to have an entry point and a path (set of points) for the surgical instrument (knife) to be moved along in order to reach the tumor location. Also we need to have a set of points to describe the surface of the tumor to be cut out.
At the same time, there are should be description of the critical area for the knife to be avoided during the surgery.
Would like to hear your thoughts regarding the surgery formalization.
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I don't have any particular insights, but it seems like the problem you are trying to tackle may be too large. It may behoove you to narrow your focus, such as creating a mathematical model to balance visibility of a particular area invasiveness. This certainly is not a simple problem, but seems it could easily be a factor in your grander model. I can appreciate wishing to hash out what factors might come into play though so you can tackle each piece individually. I would imagine even given a suggested incision it would ultimately be more a factor of the surgeon's skill level and even preference. Don't let this discourage you from trying to inform them.
As you can probably tell though, I have no expertise in the field. So weigh my considerations accordingly.