Caregiving - Science topic

I am excited to share a research project three years in the making, that I've worked intimately on with my collaborators.

Survey Link: https://linktr.ee/abaexperiences

Our project is a Multi-University collaboration (Northern Arizona University, the University of Hawaii at Manoa, the University of Utah, and the University of Nevada at Reno), which is currently recruiting participants for a study to explore the perspectives and experiences of the following groups:

- (Previous or Current) Professionals certified with the BACB - Autistic adults (Dx or Self-Dx Welcome) - (Previous or Current) Parents and caregivers of individuals with Autism Spectrum Disorder (ASD) …in relation to applied behavior analysis (ABA) service delivery.

You are invited to participate in this study if you are over the age of 18 and identify as any of the previous three groups. Select which survey best describes you at: https://linktr.ee/abaexperiences

The principal investigator in this research project is my colleague Dr. Natalie Badgett, Ph.D., BCBA-D from the Department of Special Education at the University of Utah. If you have any questions regarding the survey, please contact Dr. Badgett at natalie.badgett@utah.edu.

Responses via the comment section will be responded to when possible. Shares of this survey are much appreciated, as we want to hear from as much of the community as possible!

what caregiving styles there are and their quality, associating it with the impact of care in pediatric cancer, that is, in children.

I am looking at the relationships among 1) demographics, 2) Strategies, 3) Typologies and 4) Consequences (Positive/Negative).

The following are my IVs and DVs.

IV:

1) Demographics (8-item)

2) Strategies (6-item)

3) Typologies (4-item)

DV:

1) Consequences (2-item)

Q1) How to determine the degree of freedom?

I knew the formular is df=N-1. But I get stuck as I am not sure whether I should included all demographics ("Age, gender, marital status, employment status, highest education level, relationship with the care recipient, duration of caregiving and frequency of caregiving") into the calculation? Which makes it:

- Whether (8-1)*(6-1)*(4-1) = 105.

Q2) How many groups there?

Should that be 8*6*4 = 192?

With a=0.05, power=0.80, Then I plug in the df(105) and No. of group (192) into the formular with the system G Power, i got 726.

Seems like the sample size will be so big for a dissertation. So I would need your help and feedback. Thank you very much!

My research paper will be focusing on The Impact of Caregiving Burden and Coping Strategies on Burnout Among Informal Caregivers.

Therefore, I am planning to use Two-way ANOVA and Multiple Regression to study the interaction between these variables:

IV: Caregiving Burden, Coping Strategies

DV: Informal Caregiver Burnout

Would greatly appreciate it if advice is given on whether I am on the right track, or to suggest any other suitable models. Thank you for your time.

Hi,

I am using a secondary dataset for a project and using path analysis (SEM) to test a model based on a theoretical framework. As the dataset does not have clear validated scales for each construct that I am trying to include, I have to combine different items from the survey to create a composite score for each construct I am interested.

My main concern is related to the weighing of items on composite scores that I am creating based on the available data from a secondary dataset I am using for the project. For example, to measure objective caregiver burden, I am planning on including items that ask about the care recipient's cognitive functioning and ADL/IADL support and caregiving activity rate. However, given the different number of items and scales that measure each aspect of burden (cognitive functioning 19 items, 30 points, MMSE; ADL/IADL support 7 items vs. 10 items, 0-2 points each; caregiving activity rate 4 items, 0-5 points each tapping at different frequencies), it does seem appropriate to just create a total sum and/or mean score for the composite as it can end up weighing the variables that have more items more heavily than those with fewer items. Is there a way to create a meaningful composite score considering these differences??? Any possible and feasible solution???

Thank you so much!!!

I found the Cohen-Mansfield scale, but it is for weekly use. I'm looking for the same type of rating scale or grid that can be used evey day by home caregivers, so it has to be easy to fill. Thank you for your help!

I would like to know if there are models regarding PAC. Thank you so much!

I am looking for thought leaders and researchers who specialize in the area of Alzheimer’s sufferer caregivers and caregiving with particular emphasis on how digital tech is being used to facilitate care of sufferer and resilience of the caregiver.

Attachment theory proposes that there are several behavioral systems, sometimes called motivational systems. Attachment is one of those systems. I have also seen other systems described, such as caregiving, exploration, power, etc. What I am looking for is a source that lists all of those systems.

In looking at the states where individuals with IDD have been transitioned to managed long term services and support, has anyone looked at the impact on caregiving? With the movement of these individuals to managed Medicaid for health services, has anyone looked at the impact on caregiving?

Im doing my research entitle Impact of Intellectual Abilitiea and Personality with Academic Achievement of STEM Grade 12 Caregiving Track: Basis for GEMS (Guide in Educating and Mentoring Nursing Students)

The stat advised me to use chi square instead of pearson R?

I am working on a doctoral disseration associated with nurses' perceptions of supportive care needs of partners of breast cancer survivors 

I'm a student, I'm looking for "Caregiving Scenario Questionnaire",  can you help me?

I want to know the name of the questionnaire i can use to measure caregiving experiences with infants . 

I would like to research the efficacy of psychological distancing as a tool that may assist family care-givers to cope with long-term care of a relative with dementia. As part of this study I would like to address the expectations of family care-giving in the context of traditional family values and culture and hypothesise that Australian cultural bias towards family caregiver roles may increase care-giver burden. 

Dear all, 

I attended to the SRCD congress last week.

Some colleagues told me that the Caregiving Helplessness Questionnaire was used in your studies in a more recent version.

Could you send me this version and do you know if a French version is already validated?

Many thanks in advance for your answer,

Best

Marie Stiévenart

I am looking for a concise review of published literature - or relevant papers/reports - particularly any recent (i.e. last 6 years) results - on health care utilization (formal or informal), social networks (e.g.Prof Lisa Berkman's approach to constructing social networks) and ageing and older adult populations.  See for example: Berkman L, Sekher TV, Capistrant B, Zheng Y. “Social networks, family, and care giving among older adults in India”.  In: Smith JP, Majmundar M (eds.). Aging in Asia: Findings from New and Emerging Data Initiatives. Committee on Population, Division of Behavioral and Social Sciences and Education. Washington, DC: The National Academies Press, 2012.

I am working with a Japanese colleague to review literature regarding measurements and validation of scales used to measure caregiver burden. We are about done with the Japanese literature, but are going through the English literature. It is hard to determine if there is any particular scales that are preferred or how one might categorize the different scales. I haven't dealt much with these tools in the past and would appreciate the input from the community.

Parenting styles aside, love has many dimensions and the concept of self often impacted by acceptance from others, conditional or otherwise. Has anyone designed a measure or know of any studies?