Richard O'Brien's research while affiliated with St. Jude Children's Research Hospital and other places
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Publications (5)
The Cure4Kids Website (www.Cure4Kids.org) brings the latest medical knowledge and continuing education on the treatment of pediatric catastrophic diseases to thousands of health care providers worldwide. The website offers a digital library, on-demand seminars with slides and audio in several languages, and online meeting rooms for international co...
The Pediatric Oncology Networked Database (POND4Kids) is an online, multilingual database for pediatric hematology/oncology patients. Its purpose is to improve the care of pediatric oncology patients in countries with limited resources by the exchange of information and experience between oncologists in diverse geographic regions who practice in a...
This poster describes the open source medical system architecture and approaches for data sharing and interoperability.
The International Outreach Program of St. Jude Childrens' Research Hospital has been developing programs to help countries with limited resources develop treatment centers to treat children with catastrophic diseases such as pediatric cancer and AIDS. Cure4Kids (www.cure4kids.org) is the Internet learning network that delivers medical education to...
Citations
... They have individual needs and preferences in what information they want to receive, when and how [55]. There is a need for an efficient vehicle for high-quality education and preparation for action planning [56,57]. ...
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... [8][9][10][11] In 2013, a group of pediatric neuro-oncology specialists from the United States of America, Canada, and Spain created a web-based weekly 1 h long "Latin American Pediatric Brain Tumor Board" (LATB) via the Cure4Kids platform (cure4kids.org) 12 for Latin American pediatric oncologists. In the LATB, anonymized pediatric brain tumor cases are discussed weekly (three to five cases/week) with a Board of international pediatric neuro-oncology specialists and recommendations for diagnostic assessments and/or therapy are given. ...
... These types of systems can measure the progression of diseases and the effectiveness of various interventions [10]. An Open Source software community can benefit from the sharing of tools available but it is also the bearer of developments that meet and promote international standards such as architecture, data representation, terminology and interoperability stan- dards [11]. Often community members behind Open Source software are actively involved in the development and adoption of open standards for a global information technology [7]. ...
... The data of all childhood cancers treated at the Banso Baptist Hospital (BBH) and the Mbingo Baptist Hospital (MBH) were entered from 2008 onwards in the joint Pediatric Oncology Network Database (POND) registry, a multilingual online database developed by St Jude Children's Hospital [10]. ...
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