Pilar Barreto's research while affiliated with University of Valencia and other places

Publications (22)

Poster
Full-text available
Introducción: Las personas con ELA asumen con mucha dificultad la pérdida de capacidades funcionales y con frecuencia presentan sentimientos de desesperanza y de incertidumbre ante la sensación de falta de control de la situación. También en sus cuidadores-que en algunos casos están totalmente dedicados a los enfermos-el miedo, el desgaste emociona...
Article
Purpose of the study: (1) To identify the main predictors of the emotional state of the frail elderly at the end-of-life and that of their primary family caregivers, taking into consideration the presence/absence of significant cognitive impairment in the patient and (2) to analyse the relationship between the emotional state of the patient and th...
Article
Objective The Demoralization Scale (DS) is the most widely used measure for assessing demoralization. Following the recent clamor for brief assessment tools, and taking into account that demoralization has proved to be a symptom that needs to be controlled and treated in the palliative care setting, a shorter scale is needed. The aim of the present...
Article
Full-text available
The emotional state of palliative patients is one of the main aims in their professional attention. Several authors have approach this matter using depression definitions as defined for the general population. There are also many expert professional opinions and research data pointing to the need for adequate research at the patient’s end of life s...
Article
Context: Among the approaches to the demoralization syndrome, the one proposed by Kissane et al. is prevalent in the literature. These authors developed the Demoralization Scale (DS) in order to assess emotional distress, conceived as demoralization. Objectives: To present the Spanish adaptation of the Demoralization Scale in palliative care pat...
Article
Full-text available
Objective: Several studies have successfully tested psychosocial interventions in palliative care patients. Counseling is the technique most often employed. Dignity therapy (DT) has recently emerged as a tool that can be utilized to address patients' needs at the end of life. The aims of our study were to examine the effects of DT and counseling a...
Article
Full-text available
Las necesidades espirituales, cuando son elaboradas de forma efectiva, ayudarán a la persona al final de la vida a encontrar significado, mantener la esperanza y aceptar la muerte. El counselling es una de las terapias más utilizadas para mejorar estas necesidades. El objetivo del presente trabajo es ofrecer evidencia sobre la eficacia de esta tera...
Article
This study aimed to develop a new and brief instrument to be employed in dignity measurement, one based on the perceptions of patients, relatives, and professionals about dignity. Surveys of patients receiving palliative care, family caregivers, and palliative care professionals were first carried out (sample 1). In the second step, palliative care...
Article
Full-text available
In this study, we analyzed the relationships among clinical, emotional, social, and spiritual dimensions of patients with advanced illness. It was a cross-sectional study, with a sample of 108 patients in an advanced illness situation attended by palliative care teams. Statistically significant correlations were found between some dimensions of spi...
Data
Full-text available
A review study on human dignity is performed in order to theoretically understand this concept in the framework of palliative care, and in which extent these ideas have been developed on a practical level. Specifically, a review of those texts focused on human dignity from philosophy, law, religion, bioethics, health care and palliative care was ca...
Article
Existen múltiples trabajos que contemplan el conjunto de las necesidades de los pacientes al final de la vida, contando con propuestas de modelos integrales para una intervención terapéutica paliativa. La metodología más común que aborda estas necesidades es la intervención de counselling, aunque recientemente también ha crecido el uso internaciona...
Article
Full-text available
This study evaluated the effectiveness of a psychological intervention in amyotrophic lateral sclerosis patients, consisting of four semi-structured sessions of cognitive behavioural therapy combined with counselling techniques. An intervention group and a control group were established. The Hospital Anxiety and Depression Scale was used to assess...
Conference Paper
Full-text available
This study is an empirical test of an adaptation of the self-awareness model of self -care1 in the Spanish context. It is hypothesized that self-awareness, self-care and specific professional training will influence the degree of professional competence coping with death, and additionally, this competence would be related to compassion fatigue, bur...
Chapter
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NUESTRO CAPÍTULO EXPONE LOS RESULTADOS ENCONTRADOS AL RESPECTO DE LA RELACIÓN ENTRE ESPIRITUALIDAD Y BIENESTAR EMOCIONAL EN PACIENTES QUE SE ENCUENTRAN EN SITUACIÓN DE CUIDADOS PALIATIVOS
Article
Full-text available
A review study on human dignity is performed in order to theoretically understand this concept in the framework of palliative care, and in which extent these ideas have been developed on a practical level. Specifically, a review of those texts focused on human dignity from philosophy, law, religion, bioethics, health care and palliative care was ca...
Article
Full-text available
Spiritual assessment tools and interventions based on holistic approaches are needed to promote healing. Such tools must be adapted to the wide cultural backgrounds of contemporary Western society. To develop and validate a new brief measure, simultaneously featuring clinical applicability and adequate psychometric properties. The tool uses six ini...
Article
Full-text available
Objective The study of the physical, social, psychological and spiritual needs of the patient is a key element in the decreasing of suffering within the palliative care framework. Material and methods From the anthropological model proposed by the SECPAL Spirituality Group, and using a new measurement tool developed to assess the spirituality with...
Article
Full-text available
Aim: A thorough study of the complicated or pathological grief phenomenon and a recapitulation of those detection and assessment indicators enabling a speedy identification in the clinical practice. Method: A compilation of the most significant indicators was carried out after a large research on the scientific literature appeared latterly and the...
Presentation
Full-text available
Valorar si existen diferencias en los niveles de ansiedad y depresión de un grupo de enfermos de ELA y de sus cuidadores en función de la necesidad de VM y del tipo de VM
Conference Paper
Full-text available
Objetivo: Evaluar las diferencias entre los niveles de ansiedad y depresión en un grupo de enfermos diagnosticados de ELA y EPOC. Conclusión: Existe una mayor incidencia de depresión en los enfermos de ELA que en los enfermos de EPOC muy severa

Citations

... 6 Por otra parte, este cáncer puede desencadenar problemas físicos y cambios en la dinámica sociofamiliar; inconvenientes que influyen de manera negativa en la adaptación y en la calidad de vida de las pacientes, 7 esto incrementa las necesidades de soporte social y familiar, y para sobrellevar tales efectos las pacientes utilizan los recursos humanos y materiales que necesitan. 8 A la disponibilidad de personas en las que se puede confiar y que demuestran afecto y un respaldo para superar cualquier tipo de crisis, se le denomina apoyo social, 9 un concepto relacionado con las emociones básicas que se originan por las relaciones en el núcleo familiar y la sociedad; 10 un apoyo, cuya importancia radica en reducir el malestar emocional, mejorar las relaciones interpersonales 11 y aminorar los niveles de ansiedad, depresión y experiencias de dolor, 12 además de otros síntomas físicos, los cuales pueden tolerarse de mejor manera cuando existe esta disposición de personas que las rodean. 13 En las unidades médicas del primer nivel de atención a la salud se evalúan los lazos sociales de los pacientes con la finalidad de considerar los recursos que otorgan protección contra los efectos nocivos de las enfermedades, sobre todo porque ante la carencia de soporte, se ha documentado inestabilidad emocional y una tendencia pesimista ante el presente y el futuro; 9 debido al impacto que tiene el cáncer de mama en los aspectos biopsicosociales y en las finanzas institucionales cuando no existe una adecuada adherencia terapéutica, se debe procurar e indagar en estas mujeres la manera en que perciben cuidados, afecto, atenciones, asistencia en las tareas y momentos de convivencia. ...
... As expected, patients with neurological disease had the highest prevalence of cognitive impairment and caregiver distress among the four groups. This finding supports prior literature linking caregiver distress with caring for a relative with cognitive impairment [43][44][45][46][47]. Caregivers perform a critical role in the socioeconomic context of providing care to a dying patient. ...
... Diagnosing and assessing demoralization is a prerequisite for considering treatment and targeted interventions. The main tools available are the Subjective Incompetence Scale (SIS; Cockram et al., 2009), the Diagnostic Criteria for Psychosomatic Research (DCPR; Porcelli et al., 2010), the Demoralization Scale (DS; Kissane et al., 2004) and its updated version, the DS-II (Robinson et al., 2016), and a simplified version, the Short Demoralization Scale (SDS; Galiana et al., 2017). Cluster II has mainly explored the occurrence and likelihood of demoralization under different demographic and illness characteristics. ...
... Una situación sociofamiliar más deficitaria al inicio de tratamiento favorece un mayor índice de mejora en CP vinculares, formativas y protectoras y la mayor severidad de la TCT influye en la mejora en CP reflexivas. Estos resultados parecen contradecir a la literatura: aquellos que menos necesitan la terapia son quienes se benefician más de ella (Enck y Zipfel, 2019;Rudilla et al., 2015). ...
... El duelo es el proceso psicológico o reacción adaptativa que se produce tras la pérdida de un ser querido. Como indican Barreto et al. (2013), se trata de una experiencia universal y dolorosa que se puede delimitar temporalmente y que supone un proceso de adaptación a la nueva situación, aunque tiene un pronóstico favorable. En esta etapa se puede producir una interferencia en el funcionamiento general de la persona, ya sea por la prolongación en el tiempo de este proceso de dolor, por la intensificación de este o por la posible cronificación, dando lugar al llamado Duelo Complicado (DC, en adelante) (Bermejo et al., 2012). ...
... In addition, the relationship between ED and anxiety is also demonstrated previously. For instance, a study conducted in Spain found that anxiety was positively associated with ED [22]. It was supported by another study performed in Germany, which showed that advanced cancer patients who have inadequately treated anxiety were at increased risk for ED [23]. ...
... 21 Two of these trials included patients with high baseline psychological distress, with one showing a statistically significant decrease on patients' anxiety and depression measures from baseline. 22 The other showed statistically significant decreases in anxiety but not in depression pre-post DT. 23 Overall, nonrandomized studies reported statistically significant improvements on existential and psychosocial measurements, such as suffering and depression. 20 MCP was developed to address the loss of spiritual well-being or sense of meaning in life and the existential distress that arises in patients with advanced cancer. ...
... Se pueden mencionar diversos tipos de espiritualidad: teística, ritualística, existencial, religiosa, mística, política-ideológica, fenomenológica, intrapersonal, interpersonal (Mc Sherry & Cash, 2004;Webb, Toussant & Dula, 2014;Rudilla, Galianad & Barreto 2015). En algunos de ellos (teística, religiosa y ritualística) hay presencia de deidades y en todos los tipos, hay una relación que osadamente mencionamos como caracterizada por uno o varios de los principios de la biofilia, pero que son insuficientes para hablar de espiritualidad pues demeritan la relación con otras personas, con lo no vivo construido por el ser humano y con lo ya no vivo, y que ciertamente la teoría del sentido de lugar si lo incorpora. ...
... Of these, Chochinov et al. (2008) and Jacelon et al. (2009) developed an instrument based on a theoretical background supported by empirical research. Two instruments were developed based on a framework of Chochinov et al. (2008) and preliminary study (Rudilla et al., 2016;Vlug et al., 2011). The remaining seven instruments were developed based on a thorough literature review of dignity concepts alone (Khatib & Armenian, 2010;Torabizadeh et al., 2021) or combined literature review and preliminary study (Brudek & Steuden, 2017;Oosterveld-Vlug et al., 2014;Ota et al., 2019;Tauber-Gilmore et al., 2018;Wiegman, 2003). ...
... A este respecto, se ha señalado previamente que la espiritualidad puede movilizar los recursos internos y externos de la persona para hacer frente a los eventos estresantes de la vida, a su vez contribuye al incremento de la resiliencia y del bienestar (Pham et al, 2020). En estudios previos, se reconoció a la espiritualidad, experiencia de trascendencia y asombro, como una fuente de fortaleza y consuelo para la persona enferma (Fombuena et al., 2016) que predijo la resiliencia y la satisfacción con la vida. ...