NEUROQUALYFAM group's research while affiliated with Universidad de Salamanca and other places

Publications (13)

Technical Report
Full-text available
Documento que recoge el marco normativo español nacional y autonómico, así como los diferentes instrumentos que lo desarrollan en materia de atención sociosanitaria a personas con enfermedades neurodegenerativas y a sus familiares. Incluye aquellas regulaciones dirigidas al colectivo de forma específica, así como las relativas a la dependencia y/o...
Technical Report
Full-text available
Documento que recoge los servicios de atención sociosanitaria a las personas con enfermedades neurodegenerativas y a sus familias en las provincias de Salamanca y Zamora, relativos al Acceso a información sobre la enfermedad, valoración y seguimiento; Prevención; Apoyo a la familia; Apoyo a la Autonomía personal; Atención social en el contexto comu...
Technical Report
Full-text available
Documento que recoge de forma específica las prestaciones, servicios y recursos asistenciales de obligado cumplimiento en Castilla y León en materia sanitaria y social ofertados para las personas con enfermedades neurodegenerativas y sus familias
Article
Background: Family quality of life (FQoL) is a recent construct to be applied in neurodegenerative diseases (NDs). In this context, there is interest in advancing in the measurement of the FQOL as a first step to determine the supports that families need to perceive quality of life. The aim of this study was to test the validity of the Family Qual...
Poster
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Background: Dementia has reached epidemic proportions and become a huge Public Health problem. Alzheimer’s disease (AD) is the most common type of dementia. In Spain, more than 800,000 people suffer from AD (Spanish Society of Neurology-SEN). Age is the main risk marker for developing this disease. Its prevalence is three times higher in women than...
Article
Neurodegenerative diseases (ND) have a great impact on both patients and their relatives, since the latter play an essential role in the care process. Consequently, the families require support to perform this function with higher levels of wellbeing. The objective of the NEUROQUALYFAM project (Interreg V‐A Spain‐Portugal, POCTEP) is to analyze the...
Conference Paper
Full-text available
Neurodegenerative diseases often have an impact on both patients and their family caregivers. Given that families are an important support resource for people with neurodegenerative diseases, it is important to ensure their own quality of life. This symposium aim to present the NEUROQUALYFAM project funded by Cross Border Cooperation Programme Spai...
Poster
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Introduction: Neurodegenerative diseases (ND) are the most important cause of dependency in the world. The care of these patients is mostly assumed by their families. As a result, their family quality of life (FQoL) may be affected, decreasing their well-being, and modifying their habits and normal functioning. FQoL is a multidimensional concept, c...
Poster
Full-text available
Background: Neurodegenerative diseases (ND) are chronic pathologies that generate great limitations and disabilities in the person and other effects on the Family Quality of Life (FQoL). FQoL is a multidimensional concept that includes health of the family, financial well-being, family relationships, informal support, support from care services, in...
Poster
Full-text available
Background: Neurodegenerative diseases (ND) have a great impact on both patients and their relatives, since the latter play an essential role in the care process. Consequently, the families require support to perform this function with higher levels of wellbeing. The objective of the NEUROQUALYFAM project (Interreg V-A Spain-Portugal, POCTEP) is to...
Poster
Full-text available
Background: Neurodegenerative diseases (ND) constitute a problem of great magnitude, seriousness and complexity that require actions in the diverse areas of the Health and Social System (Ministerio de Sanidad, Servicios Sociales e Igualdad, 2016). These actions must cover the basic needs of patients and their families, while improving their care an...
Poster
Full-text available
Background: One of the main objectives of NEUROQUALYFAM Project is to assess the quality of life and the needs of support of families of people with a neurodegerative disease (ND) in Spain. For this purpose, The Family Quality of Life Survey-Adapted for Main Caregivers of Persons with Dementia (FQoLS; DiZazzo-Miller & Samuel, 2011) has been transla...