Milda Cerniauskaite's research while affiliated with Fondazione I.R.C.C.S. Istituto Neurologico Carlo Besta and other places

Publications (53)

Article
Full-text available
The present study aimed to assess the validity of using a robotic platform (RODDI) to increase and enhance communicative exchanges between educators and children with Autism Spectrum Disorder (ASD) and intellectual disability. Nine children with ASD and intellectual disability and their educators took part in the study. Their communicative exchange...
Article
Full-text available
The aim of this study was to report the most frequent psychosocial difficulties (PSDs) in patients with Parkinson disease (PD), to explore the relationship between PSDs, disability and quality of life (QoL), and to address the predictors of PSDs. Patients with PD were interviewed using a protocol composed of a questionnaire investigating PSDs (PARA...
Article
Aim: The aim of this observational study was to test the effectiveness of the PARADISE 24 instrument in describing the psychosocial difficulties (PSDs) reported by people with epilepsy, their relation with disability, and quality-of-life (QoL) levels and, overall, to explore a horizontal epidemiology methodology applied to a sample of patients wit...
Article
The aim of this study is to identify the most relevant psychosocial difficulties (PSDs) experienced by persons with multiple sclerosis (PwMS); to evaluate the relation between an overall level of PSDs measured with the PARADISE-24 and other variables; to assess which factors may predict PARADISE-24 overall score. Adults PwMS were consecutively enro...
Article
To explore the relationships between psychosocial difficulties (PSDs), quality of life (QoL), and disability and to explore the degree to which PSDs can be predicted by demographic variables, clinical variables, and risk and protective factors. Patients with episodic migraine completed a protocol inclusive of PARADISE 24 questionnaire (the 24-item...
Article
The early identification of Autism spectrum disorders (ASD) is important for timely and efficient interventions. Information useful for the diagnosis of ASD can be collected from different sources. Parents may offer a unique perspective on the child's behavior. The Parent Interview for Autism - Clinical Version (PIA-CV) is a useful tool for assessi...
Article
Purpose: Multiple Sclerosis (MS) is a progressive neurological disease characterized by an unpredictable risk to develop relevant disability over time. Few studies focused on the core psychological features of difficulties in adjustment to MS. This qualitative study aims to explore the illness experience of people with difficulties in adjustment t...
Article
Introduction: The aim of this study is to assess the perceived effect of salbutamol in adult patients with spinal muscular atrophy and to evaluate the usefulness of WHO Disability Assessment Schedule II (WHODAS-II) and Fatigue Severity Scale (FSS) to measure it. Methods: A longitudinal mixed methods study was performed. Ten patients were intervi...
Article
Background/aim: Meningiomas of the anterior cranial fossa are often diagnosed after impaired visual function occurrence. Some epidemiologic studies suggest an association between exogenous or endogenous hormones and meningioma risk. The aim of this study is to briefly review the literature and relate a case report. Patient and methods: This stud...
Article
Primary objective: This study aimed at better understanding of the complex psychological process underlying the demanding situation of taking care of a relative with disorder of consciousness (DOCs). Research design: This is a qualitative study based on the grounded theory constant comparative method. Methods and procedures: Narratives of info...
Article
Full-text available
Objective: Our purpose was to provide a comprehensive understanding of how women informal caregivers of patients in vegetative state (VS) or minimally conscious state (MCS) describe, represent, and experience changes that occurred in their life after the acute event of their family member. Methods: A qualitative study was conducted and fifteen w...
Article
Full-text available
This paper provides theoretical links between the model of health and disability based on the International Classification of Functioning, Disability and Health (ICF) and the complex notion of ‘social capital’. In practice, social capital mechanisms could contribute to better health through their use in health-promotion actions, and, in general, th...
Preprint
Full-text available
Background There is a substantial amount of research in child health published each year in the European Union. Much of this work is paid for from public funds, or from charitable donations. This work covers many areas, but it is fragmented, and a great deal of it, especially the material not published in the indexed scientific literature, is hard...
Preprint
Full-text available
Background There is a substantial amount of research in child health published each year in the European Union. Much of this work is paid for from public funds, or from charitable donations. This work covers many areas, but it is fragmented, and a great deal of it, especially the material not published in the indexed scientific literature, is hard...
Article
Full-text available
Background: Patients in vegetative (VS) and minimally conscious state (MCS) have different degrees of consciousness recovery but both display severe levels of disability. Aim: To describe and compare VS and MCS patients' functioning and disability according to ICF model (International Classification of Functioning, Disability and Health). Desig...
Article
Full-text available
The aim of this paper is to investigate the association between structural and cognitive aspects of social capital and self-rated health among adults aged 50 or more, living in three countries: Finland, Poland and Spain. The study, which was based on data from the European Social Survey (2008/09), was a part of the EU research project COURAGE in Eu...
Article
Full-text available
Background There is a substantial amount of research in child health published each year in the European Union. Much of this work is paid for from public funds, or from charitable donations. This work covers many areas, but it is fragmented, and a great deal of it, especially the material not published in the indexed scientific literature, is hard...
Article
Full-text available
Objectives: This paper examines the context of health promotion actions that are focused on/contributing to strengthening social capital by increasing community participation, reciprocal trust and support as the means to achieve better health and more active ageing. Method: The methodology employed was a literature review/research synthesis, and a...
Article
Objective: To describes socio-demographic and clinical features of adults and children in vegetative state (VS) and minimally conscious state (MCS). Design: Observational cross-sectional study. Methods: Demographic, aetiological and clinical data were collected, together with patients' management procedures. Mann-Whitney U-test was used for continu...
Article
Full-text available
Background A thoughtful list of European child health research gaps is missing and it is needed for international and national prioritizing of funding. At stakeholders’ level identification of knowledge gaps and priorities is strictly entangled with values that each researcher or child health stakeholder attributes to specific themes or policy is...
Article
Objective To construct a metric of the impact of brain disorders on people's lives, based on the psy-chosocial difficulties (PSDs) that are experienced in common across brain disorders. Study Design Psychometric study using data from a cross-sectional study with a convenience sample of 722 persons with 9 different brain disorders interviewed in fou...
Conference Paper
This paper explores theoretical and practical implications for fostering social capital for persons with disabilities. These implications have been considered in accordance with the biopsychosocial model of health and disability of the World Health Organization (WHO)’s International Classification of Functioning, Disability and Health (ICF). Based...
Article
The aim of the paper is to prove that the COURAGE in Europe Built Environment (CBE) instrument selected items are relevant to health and disability assessment and evaluation. The two lists of the CBE preliminary items - outdoor checklist and self-reported questionnaire - were linked to the World Health Organization's International Classification of...
Article
This article presents a methodology developed by the Multidisciplinary Research on Health and Disability in Europe project researchers for the retrieval of information about disability using the conceptual framework of the International Classification of Functioning, Disability and Health. A comprehensive review and analysis of European surveys was...
Article
This article provides a brief description of a training course in International Classification of Functioning (ICF), Disability and Health, Ethics and Human Rights done in the field of the European MURINET project. This course, in its three annual editions, was the product of a joint collaborative work among the Neurological Institute Carlo Besta,...
Article
The aim of this study was to assess the impact of stroke on health-related quality-of-life (HRQoL) and disability, the relationships between the two constructs, and to what extent these two constructs are affected when perceived health state changes. The World Health Organization Disability Assessment Schedule (WHO-DAS II) and the 36-Item Short-For...
Article
The aims this study were to assess the impact of epilepsy on the health-related quality-of-life (HRQoL) of patients and on patterns of disability and to describe the relationship between disability and HRQoL in adult patients with controlled epilepsy. Disability was measured with the World Health Organization Disability Assessment Schedule, second...
Article
This study aimed to use the International Classification of Functioning, Disability, and Health (ICF) to describe the functioning of people with epilepsy. The main questions we asked were as follows: what are the difficulties that people with epilepsy face on the body level and in daily activities? What are the most relevant environmental factors n...
Article
The aim of this article was to demonstrate that stroke diagnosis alone does not explain differences and variety in the functioning and disability of patients. We suggest that the International Classification of Functioning, Disability, and Health Brief Core Set for Stroke is a useful, brief, and functional instrument to produce a functioning profil...
Article
The built environment can increase or decrease disability through its impact on mobility or accessibility to infrastructures, and through its relation to social environment. There is a need for the development of a tool which allows to assess built environment in both objective and self-reported manner, contemplating also issues of accessibility an...
Article
To present a systematic literature review on the state of the art of the utilisation of the International Classification of Functioning, Disability and Health (ICF) since its release in 2001. The search was conducted through EMBASE, MEDLINE and PsychInfo covering the period between 2001 and December 2009. Papers were included if ICF was mentioned i...
Article
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Article
Full-text available
To report and compare functional features of patients with migraine, myasthenia gravis (MG) and Parkinson's disease (PD) with the International Classification of Functioning, Disability and Health (ICF). Adult patients with migraine, MG and PD were enrolled and the ICF checklist administered. Count-based indexes were calculated for each ICF chapter...

Citations

... Considerada uma prioridade em todas as áreas da sociedade pela Convenção das Crianças das Nações Unidas (UNCRC, 1989), a "voz" dos jovens tem assumido uma importância crescente. Com base no relatório do Projeto Europeu Research into Health in Europe (RICHE), a "voz" das crianças e jovens deve ser privilegiada de modo a promover a sua participação, e para que novas intervenções e políticas envolvam as suas verdadeiras necessidades (Ottova et al., 2013;Staines et al., 2014). ...
... Recently, there has been positive trend in terms of an increase in research conducted to investigate the potential use of robots as AT for children with ASD [3], [9], [12], [14], [15], [17]- [22]. Based on this research, there is evidence supporting the successful application of robots as AT in many areas that include developments in social sciences [23]- [25], communications [25], [26] and education [14], [17], [22], [27]. ...
... Tali emozioni si amplificano se l'utente è una persona affetta da morbo di Parkinson (PcP), poiché, a causa della propria condizione neurodegenerativa, che comporta limitazioni delle attività e menomazioni delle funzioni fisiche, mentali e psicosociali (Narme et al., 2013;Schiavolin et al., 2017), ha necessità di un sistema domestico che tenga conto non solo dei suoi bisogni, opinioni ed esigenze psico-emotive, ma anche di quelle dei caregiver (Van Rumund et al., 2014;Bourazeri, Stumpf, 2018;Martínez-Martín et al., 2007). Quest'ultimi, infatti, sono sottoposti a un onere progressivamente sempre più impegnativo con l'avanzamento della malattia, che ha ripercussioni sul carico e sugli aspetti mentali legati alla qualità della loro vita. ...
... and the quality of life score was negatively related to the PARADISE score. 22 Different somatic disorders have been considered to be associated with epilepsy, such as tumors, diabetes mellitus, migraine, chronic obstructive pulmonary disease (COPD), peptic ulcers, cardiovascular diseases, and cataract. 23 Among neurological disorders, epilepsy accounts for the highest age-standardized DALY (the disability-adjusted life year) in both sexes, which is 0.7% of total DALYs. ...
... The mean PARADISE-24 score was 56.1 ± 15.2 which is higher than the score reported by Giovannetti et al. [2] They enrolled 80 MS cases and reported mean PARADISE-24 score of 52.96 ± 15.75. In their study, PARADISE-24 score had a significant positive correlation with EDSS and disability scale as well as a significant negative correlation with the quality of life score. ...
... Presence of psychiatric disorders related to stress, anxiety or depression are playing a role in the chronicity of migraine, the efficacy of management and the risk of comorbidities [7,9,10]. Other factors affecting the migraine progression and prognosis include gender [7], age, physical activity, smoking [11,12], obesity [13], age at the onset of migraine headache [14], duration of the disease, family history [15]. Locally, migraine headache accounts for 27% of the Saudi population, predominantly female with a 2.9:1 ratio. ...
... Some papers drew on the same data (i.e., [45] & [46] and [47] & [48]). Fifteen of the studies were conducted in the UK [7,8,11,14,[49][50][51][52][53][54][55][56][57][58][59], four studies in Canada [60][61][62][63], three studies in Italy [10,64,65] and Iran [45,46,66], two studies in USA [67,68], The Netherlands [47,48], Germany [69,70] and Malaysia [71,72], and one study in Australia [73], New Zealand [74], Sweden [75] and Norway [76]. The total number of participants across all studies was 874 people with MS (�517 women; gender was not reported in five studies [56,63,69,72,76]), 38 family members/ carers and 19 healthcare professionals. ...
... Four case series reported successful pregnancies among 39 adults with SMA [100][101][102][103]. One of these compared the incidences of obstetric [87] complications to those in the normal population, and found statistically significant increased rates for preterm deliveries (29.4%) and caesarean sections (42%) [100]. ...
... Systemic barriers, including tokenism, institutional bureaucracies, lack of adherence, or relational challenges, can also be found in institutions where advisory councils of youth are already established (Blakeslee, 2018). Although the Convention on the Rights of the Child (1989) and the European project RICHE -Research Into Child Health in Europe (Staines et al., 2014) consider participation a priority, it is not part of the country's culture. ...
... Meningiomas are the most common primary intracranial tumors in adults, 1 and the parafalcine and parasagittal location account for 30% of them. 2 The prognosis could be very different, based on several factors: the tumor grading, the type of surgery performed according to Simpson criteria, 3,4 the presence of molecular alterations, and/or genetic syndromes. 5,6 Treatment options include surgical resection, both single-and multisession radiosurgery (RS), and stereotactic radiotherapy (SRT). ...