Lisa A. Chiarello's research while affiliated with University of Massachusetts Dartmouth and other places

Publications (121)

Article
Purpose: Measurement development is a reiterative process requiring refinements and revalidation. The purpose of this study was to examine structural validity and reliability of the Child Engagement in Daily Life Measure (Version 2) for parents of children with cerebral palsy (CP) across a broader age span. Methods: Participants were 1054 parent...
Article
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Content validity and clinical utility of the Collaborative Process for Action Plans to Achieve Children’s Participation Goals were evaluated. The collaborative process is designed to assess child, family, and environment strengths and areas for improvement specific to a child’s participation goal and identify intervention strategies and the person(...
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Objectives Women with perinatal depression (WWPD) are at high risk for unhealthy dietary behaviors and suboptimal child feeding practices. Despite mounting evidence supporting the importance of healthful nutrition-related behaviors during and after pregnancy, few behavioral nutrition interventions for WWPDs have been developed. The objectives of th...
Article
Despite the growth of intensive perinatal mental health programs in the United States, too few programs serve women with perinatal mood and anxiety disorders (PMADs). Furthermore, little is known about program operations, services, the women served, and the methods of collecting outcome data. With this Open Forum, the authors aimed to share their i...
Article
Aims: Clinician participation in research is important to expand clinical research. However, there is limited understanding of the impact of such participation. The purpose of this survey-based study was to describe school-based physical therapists’ perceptions of the impact, benefits, and challenges of research participation. Methods: Participants...
Article
Aims (1) identify and compare family-centered care (FCC) and collaborative goal-setting (CGS) beliefs and practices of out-patient pediatric physical therapists (PTs) in Saudi Arabia (SA) and the United States (US); (2) describe CGS approaches; and (3) determine the association between CGS practices and educational level, clinical experience, and F...
Article
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Aims The aim of this study was to examine regional differences in school-based physical therapy practice focusing on the attributes of the school-based physical therapists and students; service delivery approaches, activities, and interventions; and student outcomes. Recognition of regional practices may decrease unnecessary variations, and assist...
Article
Purpose To explore engagement principles and contextual conditions in high-engagement therapy sessions involving youth with disabilities and service providers. Method From a larger project on therapy engagement, a dyadic case analysis was conducted involving three youth ages 8–15 with disabilities and their service providers. Participants were int...
Article
Purpose To cross-culturally adapt the Self-Care Domain of Child Engagement in Daily Life and the Ease of Caregiving for Children to Arabic language and Saudi culture and to examine the reliability of the Arabic version of both measures. Methods A modified cross-cultural adaptation procedure was employed. A total 36 children with cerebral palsy (ag...
Article
Aims: Legislation, perspectives, and guidelines support the use of goals that address student participation in school. The purpose of this study was to determine if students with participation-based goals receive school-based physical therapy services differently and demonstrate better outcomes than students with non-participation-based goals. Meth...
Article
Purpose To examine the psychometric properties of a parent-report measure of engagement in pediatric rehabilitation. Method 113 parents (of children 4 months to 18 years, varying in diagnoses) were recruited from standard outpatient/inpatient, early intervention, and life skills programs, sampled from different sites in Canada, the US, and Austral...
Article
During the perinatal period, women are at increased risk for developing perinatal mood and anxiety disorders (PMADs). As perinatal mental health screening efforts increase, significantly more women will be identified who require mental health services. Evidence-based treatments exist, yet many women do not receive adequate care. Patient navigation...
Article
Aim: To create longitudinal trajectories and reference percentiles for frequency of participation in family and recreational activities for children with cerebral palsy (CP) by Gross Motor Function Classification System (GMFCS) level. Methods: 708 children with CP 18-months to 12-years of age and their families participated in two to five assessmen...
Article
Purpose: To investigate client (youth/caregiver) and service provider engagement in outpatient pediatric rehabilitation therapy sessions. Methods: In an ethnographic study, five research assistants attended 28 outpatient sessions, mostly delivered by occupational, physical, and speech-language therapists, and rated signs of client, provider, and re...
Article
Purpose: To explore the relationships of school-based physical therapy services to student goal achievement. Methods: One hundred nine physical therapists and 296 students participated in a practice-based study. Therapists formatted goals using goal attainment scaling and evaluated goal achievement. Using the School-Physical Therapy Intervention...
Article
The Early Childhood Personnel Center (ECPC) was funded by the Office of Special Education Programs at the U.S. Department of Education to provide technical assistance to State Systems of Early Childhood Intervention and Institutions of Higher Education on issues related to personnel development. One initiative of the ECPC has been to collaborate wi...
Article
Aim: To explore the relationship between rehabilitation therapies and development in children with cerebral palsy (CP). Method: We conducted a prospective, longitudinal study involving 656 children with CP (mean age [SD] 6y [2y 8mo] at study entry; 1y 6mo-11y 11mo; 287 females, 369 males), and their parents. Children were assessed two to five ti...
Article
Aims: To create longitudinal trajectories and reference percentiles for performance in self-care of children with cerebral palsy (CP). Methods: Participants were 708 children with CP, 18 months through 11 years of age and their parents residing in 10 regions across Canada and the United States. Gross Motor Function Classification System (GMFCS) lev...
Article
Aims: To determine changes in physical caregiving for parents of children with cerebral palsy (CP) over a two-year period based on children’s gross motor function level and age. Methods: 153 parents of children with CP rated their physical caregiving using the Ease of Caregiving for Children three times over two years. Parents and assessors classif...
Article
Purpose: To re-validate stability and hierarchal ordering of items, test–retest reliability, and construct validity of the Ease of Caregiving for Children measure for parents of children with cerebral palsy (CP) up to 11 years of age. Methods: Participants were 613 parents of children with CP between 1.5 and 11 years of age. Parents completed Ease...
Article
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Purpose: Development of individualized student goals is integral to special education. Although United States federal legislation and state, local, and professional guidelines outline preferred goal development processes, actual practice does not always reflect ideal practice. The purposes of this research were to understand how physical therapists...
Article
Purpose: To conduct a qualitative investigation of engagement in pediatric rehabilitation therapy. Methods: Interviews were conducted with 10 youth, 10 caregivers, and 10 service providers. Transcripts were analyzed thematically using an inductive approach. Results: Themes illustrated three perspectives: engagement as a connection with components o...
Article
Postpartum depression (PPD) and other perinatal mental health disorders have profound adverse effects on maternal-infant interaction and child health. However, standard psychiatric treatment does not necessarily improve the quality of mother-infant interaction. The purpose of this article is to describe the evidence-based CARE intervention and its...
Poster
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Purpose: Cultural and linguistic diversity of patients impose considerations for use of English patient-report measures with patients of different cultures/languages. To use English measures with patients of different cultures/languages, measures should undergo cross-cultural adaptation. Cross-cultural adaptation aims to create an adapted version o...
Article
Aims: Individualized goals are the foundation for physical therapy services and outcomes. This research describes school-based physical therapists' (PTs) experiences and perceptions of how student goals impact services and outcomes. Methods: Twenty school-based PTs participated in one of five semi-structured focus groups on goal development and use...
Article
Purpose: Children’s resiliency is seen as important in pediatric rehabilitation, but is seldom the focus of research or intervention. This article presents a resiliency framework to inform pediatric rehabilitation research, service design, and practice. Methods: The development of the framework was guided by a transactional, life course perspective...
Presentation
Student goals that address participation within the context of school activities or routines are aligned with federal legislation and state, local, and professional guidelines, but are not universally utilized in school-based practice. This session will present findings from recently conducted original mixed-methods research regarding development a...
Article
Background: Students with disabilities receive school-based physical therapy services under the Individuals with Disabilities Education Improvement Act of 2004. A paucity of research exists regarding therapy services in schools. Objective: This study explored the school-based service that students received and what activities and interventions p...
Article
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Perinatal mental health problems, experienced by 15–20% of women, are a significant public health issue associated with adverse effects among childbearing women; yet only 20–25% receive adequate treatment. There has been a recent proliferation of intensive perinatal day treatment programs in the United States. To meet this need in the greater Phila...
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Aim: To determine whether a collaborative intervention process facilitates parent-therapist interactions. Methods: Participants were 18 children with physical disabilities, their mothers, and 16 physical therapists. Therapists randomized to the experimental group were instructed in strategies for collaboration (working together) with parents in...
Article
In this Perspective, we suggest a process to improve physical and occupational therapists' and families' collaboration to provide appropriate, efficient, and effective evidence-based services to improve motor function, self-care performance, and participation in family and recreation activities for children with cerebral palsy (CP). This process is...
Article
Purpose: To identify child, family, and service determinants of playfulness of young children with cerebral palsy. Methods: Participants were 429 children, 18–60 months. Children were divided into two groups, Gross Motor Function Classification System levels I-II and III-V. Therapists collected data on body functions and gross motor function; paren...
Article
Aim We explored relationships of school‐based physical therapy to standardized outcomes of students receiving physical therapy. Method Using a practice‐based evidence research design, School Function Assessment (SFA) outcomes of 296 students with disabilities (mean age 7y 4mo [standard deviation 2y]; 166 males, 130 females), served by 109 physical...
Article
Aim: Client engagement is assumed to affect therapy outcomes. This study examined service providers' perceptions of youth engagement in solution-focused coaching sessions focusing on participation-oriented goals for youth with cerebral palsy. Method: Service providers completed the Pediatric Rehabilitation Intervention Measure of Engagement-Serv...
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Aims: To examine the effects of a four-step collaborative intervention process on parent and child outcomes and describe parents' and therapists' experiences. Methods: Eighteen children with physical disabilities, their mothers, and 16 physical therapists participated. Therapists randomized to the experimental group were instructed in the collab...
Article
Purpose: The Pediatric Rehabilitation Intervention Measure of Engagement-Observation (PRIME-O) version was designed to capture signs of affective, cognitive and behavioral involvement for clients and service providers and in the client-provider interaction. Methods: Phase 1 examined interrater consensus and construct validity of a pilot version, us...
Article
Aims: The primary aim of this study was to determine the effect of age, sex, gross motor, manual ability, and communication functions on the frequency and enjoyment of children's participation in family and recreational activities. The secondary aim was to determine the relationships between motor and communication functions and participation. Me...
Article
Participation of children with physical disabilities is critical to optimizing their life roles and lived experiences. This perspective explores the complex and multidimensional construct of participation and presents recommendations for practice, education, and research to transform pediatric physical therapy service delivery. Two models are revie...
Presentation
Background: Individualized goals are the foundation for physical therapy services and outcomes. Purpose: This research describes school-based physical therapists' (PT) experiences and perceptions of how student goals impact services and outcomes. This was part of a larger study on goal development and use. Subjects and Methods: Twenty school-based...
Article
Aims: The aims of this study were to (1) describe the practices that school-based physical therapists use in developing student goals, and (2) identify facilitators and barriers to development of goals that are specific to participation in the context of the school setting. Methods: 46 school-based physical therapists who participated in a previ...
Poster
A cross sectional study to examine the influence of child’s age, gross motor, manual, and communication functions on ease of caregiving for parents of children with cerebral palsy.
Article
Aim: To examine participation-preference congruence, regional differences in participation-preference congruence, and predictors of whether children with cerebral palsy participate in preferred activities. Method: The sample (n=236) included 148 males and 88 females aged 10 to 13 years, living in Victoria, Australia (n=110), Ontario (n=80), or Q...
Article
Purpose: To describe School Function Assessment (SFA) outcomes after 6 months of school-based physical therapy and the effects of age and gross motor function on outcomes. Methods: Within 28 states, 109 physical therapists and 296 of their students with disabilities, ages 5 to 12 years, participated. After training, therapists completed 10 SFA s...
Article
We share our experiences as academic physical therapists and parents of young people with cerebral palsy working together as a research team, describe and critically review how our working relationship has evolved and propose further enhancements to realize our shared vision. This manuscript is informed by a call for ?family-centered research,? tra...
Article
Purpose: The main purposes were to describe individualized outcomes of students receiving school-based physical therapy and determine if goal attainment differed by gross motor ability and age. Methods: One hundred nine physical therapists and 296 students participated. At the beginning of the school year, therapists translated students' Individ...
Article
Purpose: To examine the psychometric properties of the Chinese version of the Assessment of Preschool Children's Participation (APCP-C). Method: The APCP, a measure of participation in play, skill development, active physical, and social activities of preschool children, was translated into Traditional Chinese. Data on 94 Taiwanese children with...
Article
Purpose: To describe the use of practice-based evidence research methodology in a prospective, multisite observational study to investigate changes in students' participation in school activity, self-care, posture/mobility, recreation/fitness, and academic outcomes, and the relationships of these changes to characteristics of school-based physical...
Poster
Full-text available
A descriptive study of participation of children with cerebral palsy based on their gross motor function (GMFCS), manual ability (MACS), and communication function (CFCS).
Article
Purpose: To test a model of child, family and service determinants of participation in family and recreational activities for young children with cerebral palsy (CP). Methods: Participants were a convenience sample of 429 children (242 males) with CP, aged 18 to 60 months, representing all levels of the Gross Motor Function Classification System (G...
Article
Purpose: Although research supports family-professional collaboration, challenges to implementation have been reported. The case reports describe the implementation of a 4-step practice model that incorporates specific strategies to facilitate family-professional collaboration. Method: The participants were two mothers of children with physical...
Article
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The attainment of walking is a focus of physical therapy intervention in children with cerebral palsy (CP) and may impact independence in mobility and participation in daily activities. However, knowledge of determinants of independent walking to guide physical therapy decision-making is lacking. The aim of this study was to identify child factors...
Article
Early intervention service providers are expected to form cohesive teams to build the capacity of a family to promote their child's development. Given the differences in personnel preparation across disciplines of service providers, the Early Childhood Personnel Center is creating integrated and comprehensive professional development models for tho...
Article
The Ease of Caregiving for Children is a parent-completed measure of how difficult it is for them to safely help their children participate in activities of daily living. The objectives of this study were to determine the internal consistency, test–retest reliability, and construct validity (known groups methods) of the Ease of Caregiving for Child...
Article
Aims: Participation in family and recreational activities, self-care, and parent ease of caregiving are important outcomes for young children with cerebral palsy (CP). The aim of this study was to examine use of the Child Engagement in Daily Life and the Ease of Caregiving for Children to measure change over time. Methods: A convenience sample of 3...
Article
This article focuses on conceptual and practical considerations in family-centered care for children with cerebral palsy and their families. In the last 5 years, there have been important advances in our understanding of the components of family-centered care, and initial attempts to understand the client change processes at play. Recent research e...
Article
Objective: To test a model of child, family and service determinants of self-care participation of children with cerebral palsy (CP), grouped by Gross Motor Function Classification System levels (I-II and III-V). Methods: Participants were a convenience sample of 429 children (242 males) with CP, aged 18-60 months. Data on impairments and gross...
Article
Aims: In America, children with disabilities and their families may receive early intervention (EI) services under the Individuals with Disabilities Education Improvement Act (IDEA). The IDEA mandates that decisions on service delivery are based on the needs of the child and family. It is unclear how decisions on intensity of services are made in...
Article
Purpose: The objectives of this study were to determine the: (1) internal consistency and test-retest reliability of the Child Engagement in Daily Life measure; (2) construct validity of the measure (known groups methods), that is, the ability of the measure to discriminate participation in family and recreational activities and self-care among yo...
Article
Purpose: To present a conceptual model of optimal participation in recreational and leisure activities for children with physical disabilities. Methods: The conceptualization of the model was based on review of contemporary theories and frameworks, empirical research and the authors' practice knowledge. A case scenario is used to illustrate appl...
Article
The purpose of this study was to identify determinants of self-determined behaviors of young children with cerebral palsy. The participants were 429 children (56% boys, 18-60 months) and their parents. Structural equation modeling was used to test two models of self-determined behaviors, one for children with walking mobility (Gross Motor Function...
Article
The aim of this study was to test a model of determinants of gross motor function of young children with cerebral palsy (CP). Four hundred and twenty-nine children with CP (242 males, 187 females; mean age 3y 2mo, SD 11mo) representing all levels of the Gross Motor Function Classification System (GMFCS) participated. Children in levels I to II and...
Article
Objectives: Validity of the Early Clinical Assessment of Balance (ECAB), to monitor postural stability in children with cerebral palsy (CP), was evaluated. Methods: 410 children with CP, 1.5 to 5 years old, participated. Physical therapists scored children on the Movement Assessment of Infants Automatic Reactions section and Pediatric Balance Sc...
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Background: Family ecology in early childhood may influence children's activity and participation in daily life. The aim of this study was to describe family functioning, family expectations of their children, family support to their children, and supports for families of young children with cerebral palsy (CP) based on children's gross motor func...
Article
Purpose: To examine geographical variation in the leisure participation of children/youth with cerebral palsy (CP), using Children's Assessment of Participation and Enjoyment (CAPE) data from Australia, Canada (Ontario and Quebec) and the U.S. Method: Data from 1076 children/youth ages 6-20 years with CP were included. Analyses examined CAPE div...
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ABSTRACT The aims of this study were to describe physical therapy (PT) and occupational therapy (OT) services for a cohort of 399 children with cerebral palsy (CP), 2-6 years old, residing in the United States and Canada. Parents completed a services questionnaire by telephone interview. Therapists classified children's Gross Motor Function Classif...
Article
The Early Activity Scale for Endurance (EASE) was developed as a clinically feasible measure of endurance for physical activity in young children with cerebral palsy (CP). Validity and reliability were evaluated. Participants included 414 children with CP and 106 without CP. Parents completed the EASE, an 11-item self-report measure. For construct...
Article
Participation in home, school, and community activities is a primary outcome of early intervention services for children with disabilities and their families. The objectives of this study were to (a) describe participation of preschool-age children with cerebral palsy (CP); (b) determine effects of sex, age, and gross motor function on intensity of...