Juan Vidal Bota’s research while affiliated with Hospital Universitari Arnau de Vilanova and other places

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Publications (1)


Vulnerability at the End of Life: A Medical Perspective
  • Chapter

August 2016

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34 Reads

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2 Citations

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Juan Vidal Bota

Despite recent, significant improvements in medicine, all human beings will eventually die. Fewer than 10 % of people die from an acute cause. The majority of deaths will occur as a result of chronic disease, such as cancer, heart failure, lung disease, or neurodegenerative disease. Vulnerability is usually present in patients and caregivers near the end of life. Some aspects influencing this vulnerability are the care burden, restricted activities, fears, insecurity, loneliness, and facing death at that difficult moment. The end of life is a clear example of human vulnerability. Fortunately, palliative support and treatment are currently available in developed countries, and some actions can be taken to ensure dignity at this final step of life. In this chapter, we will discuss different endpoints that should be addressed to achieve a satisfactory death, such as dignity and privacy during the process, good control of symptoms (especially pain relief), the possibility of deciding where to die (home or hospital), deciding what treatments to be performed in case of complications, and the possibility of receiving spiritual support if required. Although death is almost never desired, a better end of life can be obtained with the correct preparation and support.

Citations (1)


... Patient-initiated referrals are based on assumptions that patients know of their ability to self-refer and have the agency to do so. However, patients at the end of life are vulnerable, as they live with their care burdens, have restricted activities, fears, insecurities, loneliness, and the prospect of facing death (Bosch- Barrera & Bota, 2016). Patients may also believe that HCP-initiated referrals are required, given the traditional "gatekeeping" and "patient navigating" roles of HCPs (Strathy et al., 2019). ...

Reference:

“What Is Right for Me, Is Not Necessarily Right for You”: The Endogenous Factors Influencing Nonparticipation in Medical Assistance in Dying
Vulnerability at the End of Life: A Medical Perspective
  • Citing Chapter
  • August 2016