D.A. Young-Afat's research while affiliated with University of Amsterdam and other places
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Publications (3)
Background
Peripheral vascular malformations (VMs) may lead to disfigurement of the body and face, potentially impairing aesthetic appearance. Yet, data on appearance in this population is limited. This study aimed to examine appearance-related concerns and their impact on health-related quality of life (HR-QoL) in patients with VMs.
Methods
In th...
Objective
Vascular malformations can negatively impact the patient’s quality of life. Pain is a common problem in these patients. The aim of this study was to investigate risk factors associated with pain and to assess how pain affects quality of life.
Methods
This prospective cross-sectional study was conducted in a tertiary vascular anomaly expe...
Summary
Background
The symptoms and appearance of vascular malformations can severely harm a patient’s quality of life. The aim of treatment of vascular malformations generally is to improve condition‐specific symptoms and/or appearance. Therefore, it is highly important to start testing treatment effects in clinical studies from the patient’s pers...
Citations
... Peripheral tissues may be affected by hypertrophy, atrophy, necrosis, and ulceration [13]. Overall, patients with symptomatic AVMs report a lower health-related quality of life [14,15]. ...
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... The systematic review for vascular malformations also showed low-quality rating systems 17 . Therefore, a new PROM questionnaire is now in development; the Outcome Measures for Vascular Malformations (OVAMA) questionnaire 27 . For burn scars, both PROMs, clinician reported rating systems and objective measurement instruments are available 28 . ...
