Carol E. Kaufman's research while affiliated with University of Colorado and other places

Publications (73)

Article
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Community-based participatory research (CBPR) focuses on building relationships between academic and community partners. Indigenist CBPR (ICBPR) expands CBPR to elevate Native voices and center Native priorities in research. This approach, however, has historically been grounded in in-person connection and collaboration. Native WYSE (Women, Young,...
Preprint
BACKGROUND While the advantages of using the Internet and social media for research recruitment are well-documented, the evolving online environment also enhances motivations for misrepresentation to receive incentives or to “troll” research studies. Such fraudulent assaults can compromise data integrity, with substantial losses in project time, mo...
Article
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Native American (NA) populations in the USA (i.e., those native to the USA which include Alaska Natives, American Indians, and Native Hawaiians) have confronted unique historical, sociopolitical, and environmental stressors born of settler colonialism. Contexts with persistent social and economic disadvantage are critical determinants of substance...
Article
Native WYSE CHOICES adapted an Alcohol Exposed Pregnancy (AEP) prevention curriculum for mobile health delivery for young urban American Indian and Alaska Native (AIAN) women. This qualitative study explored the relevance of culture in adapting a health intervention with a national sample of urban AIAN youth. In total, the team conducted 29 intervi...
Article
Background: Fetal Alcohol Spectrum Disorders (FASD) result in lifelong disability and are a leading cause of preventable birth defects in the US, including for American Indian and Alaska Natives (AIANs). Prevention of alcohol exposed pregnancies (AEPs), which can cause FASD, is typically aimed at adult women who are risky drinkers and have unprote...
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Health advocates are increasingly using social media and mobile technology to reach American Indian and Alaska Native (AI/AN) youth to address important health topics and enhance protective factors. Public health experts did not know to what extent AI/AN youth used these tools to access health resources during the pandemic. The Native Youth Health...
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Purpose Many rural American Indian and Alaska Native (AIAN) veterans receive care from the Indian Health Service (IHS). United States Department of Veterans Affairs (VA) has reimbursement agreements with some IHS facilities and tribal programs and seeks to expand community partnerships in tribal areas, but details of how AIAN veterans use IHS are u...
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Background: American Indian and Alaska Natives (AI/ANs) veterans may be at elevated risk for suicide, but little is known about suicide among this population. Methods: We conducted a retrospective cohort analysis of AI/AN veterans who received health care services provided or paid for by the Veterans Health Administration (VHA) between October 1...
Article
Suicide is a major public health problem that disproportionately impacts veterans in the general U.S. population. Recent analyses indicate that American Indian and Alaska Native (AI/AN) veterans may be two to three times as likely as non-Hispanic White veterans to experience suicidal ideation. Although suicide prevention programs have been successf...
Article
Background: Community-based participatory research is a particularly powerful approach to research with American Indian and Alaska Native (AIAN) communities who have been subject to a history of mistreatment and unethical research. In person meetings, discussion, and engagement with tribal members and the community have become an essential compone...
Article
An expansive body of literature confirms the existence of health inequities in the United States (U.S.), disadvantaging communities of color. These inequities reach beyond medical causes; they are the direct result of unjust sociocultural, behavioral, economic, environmental, and societal inequalities. Health inequities are perpetuated by centuries...
Article
American Indian and Alaska Native (AI/AN) Veterans are at elevated risk for suicide, but currently, no population-based research exists on precursors, including ideation, plans, or attempts. We employed two large national surveys to investigate the occurrence of suicide-related behaviors among AI/AN Veterans. Using cross-sectional data from the Beh...
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Objectives To determine differences among multi-race (MR) American Indian and Alaska Natives (AIAN), single race (SR) AIANs, and SR-Whites on multiple health outcomes. We tested the following hypotheses: MR-AIANs will have worse health outcomes than SR-AIANs; SR-AIANs will have worse health outcomes than SR-Whites; MR-AIANs will have worse health o...
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Racial and ethnic minority subpopulations experience a disproportionate burden of asthma and adverse childhood experiences (ACEs). These disparities result from systematic differences in risk exposure, opportunity access, and return on resources, but we know little about how accumulated differentials in ACEs may be associated with adult asthma by r...
Article
Introduction Sexual health disparities are leading causes of morbidity among youth of color in the United States. We conducted a scoping review of the literature on precursors to sexual risk-taking among young adolescents of color (ages 10–14) to assess precedents of sexual experience and their utility as measurable proximal constructs and behavior...
Article
The health service ecology varies considerably across urban-rural divides for American Indian and Alaska Native (AIAN) veterans, which may place rural AIAN veterans at high risk for poor health outcomes. Using the Behavioral Risk Factor Surveillance System 2011 and 2012 data for its detailed race information, we employed adjusted multinomial logist...
Article
Initiation of substance use often occurs earlier among American Indian (AI) youth than among other youth in the USA, bringing increased risk for a variety of poor health and developmental outcomes. Effective prevention strategies are needed, but the evidence base remains thin for this population. Research makes clear that prevention strategies need...
Article
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American Indian and Alaska Native (AI/AN) youth are more likely to ever have had sex, and to have engaged in sexual activity prior to age 13 compared to all other race groups. It is essential to understand the development of skills to refuse sexual experience in early adolescence in order to reduce disparities associated with early sexual debut amo...
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This study investigated the relationship of American Indian boarding school attendance and chronic physical health. We hypothesized boarding school attendance would be associated with an increased number of chronic physical health problems. We also examined the relationship between boarding school attendance and the 15 chronic health problems that...
Article
Objectives: HIV and sexually transmitted diseases (STDs) are serious health conditions among American Indian and Alaska Native (AIAN) populations, especially youth. However, few sexual risk reduction evidence-based interventions (EBIs) have been implemented by AIAN-serving organizations. This project sought to identify and assess the parameters fac...
Article
Spirituality measures often show positive associations with preferred mental health outcomes in the general population; however, research among American Indians (AIs) is limited. We examined the relationships of mental health status and two measures of spirituality – the Midlife Development Inventory (MIDI) and a tribal cultural spirituality measur...
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Purpose: Research on American Indian and Alaska Native (AIAN) mental health disparities is based largely on either tribal populations or national samples of adults that do not account for multiracial AIANs, even though over 40% of AIANs identify with multiple racial groups. The present investigation extends this research by assessing mental health...
Article
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American Indian and Alaska Native (AIAN) youth are characterized by high rates of pregnancy and risky sexual behavior. Reaching these youth with culturally appropriate interventions is difficult due to geographic dispersion and cultural isolation. Online interventions can provide opportunities for reaching and engaging AIAN youth. However, electron...
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Purpose: American Indian (AI) boarding school attendance is related to poor physical health status; however, little is known about how specific aspects of this experience contribute to poor health. Five experiences (age of first attendance, limited family visits, forced church attendance, prohibition on practicing AI culture and traditions, and pu...
Article
Evidence-based interventions hold promise for reducing gaps in health equity across diverse populations, but evidence about effectiveness within these populations lags behind the mainstream, often leaving opportunities to fulfill this promise unrealized. Mismatch between standard intervention outcomes research methods and the cultural and community...
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Our hypothesis was that boarding school attendance among Northern Plains tribal members was associated with lower self-reported physical health status controlling for demographic, socioeconomic variables, the number of mental health and physical health problems. This secondary analysis used the American Indian Service Utilization, Psychiatric Epide...
Article
We assessed the effectiveness of a culturally grounded, multimedia, sexual risk reduction intervention called Circle of Life (mCOL), designed to increase knowledge and self-efficacy among preteen American Indians and Alaska Natives. Partnering with Native Boys and Girls Clubs in 15 communities across six Northern Plains reservations, we conducted a...
Article
For adolescents, normative development encompasses learning to negotiate challenges of sexual situations; of special importance are skills to prevent early pregnancy, HIV, and other sexually transmitted diseases. Disparities in sexual risk among American Indian youth point to the importance of intervening to attenuate this risk. This study explored...
Article
Background: Early substance use threatens many American Indian/Alaska Native (AI/AN) communities, as it is a risk factor for maladaptive use and adverse health outcomes. Marijuana is among the first substances used by AI/AN youth, and its use becomes widespread during adolescence. Interventions that delay or reduce marijuana use hold the promise o...
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Despite high levels of adolescent childbearing and sexual risk taking among American Indian and Alaska Native (AI/AN) youths,1 to date, no adolescent pregnancy prevention programs adapted or developed for AI/AN youths have been identified by federal review systems as effective. The lack of evidence-based interventions (EBIs) for this population may...
Article
Many Native veterans-including American Indian/Alaska Native (AIAN) and Native Hawaiian/Pacific Islanders (NHPI)-have served in the United States Armed Forces. Most of these veterans are eligible for medical care from the Department of Veterans Affairs (VA), but research examining the determinants of their service use is needed to inform policy and...
Article
Objectives: We conducted an exploratory study to determine what organizational characteristics predict the provision of culturally competent services for American Indian and Alaska Native (AI/AN) veterans in Department of Veterans Affairs (VA) health facilities. Methods: In 2011 to 2012, we adapted the Organizational Readiness to Change Assessme...
Conference Paper
Introduction: Substance use disorders are disproportionately prevalent in many American Indian communities, and the consequences of these disparities are far-reaching, both in terms of physical and mental health. Early initiation of substance use is also well documented among American Indian youth, and links between early use and later disorder are...
Article
Objectives: We assessed the effectiveness of Circle of Life (COL), an HIV-preventive intervention developed specifically for American Indian and Alaska Native (AI/AN) middle school youths. Methods: By partnering with a tribal community, we conducted a longitudinal wait-listed group randomized trial with 635 seventh and eighth graders in 13 schoo...
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Purpose To describe lessons learned working with tribal communities in the Northern Plains to plan and implement a group randomized trial of multimedia Circle of Life (mCOL), a sexual risk reduction program designed for American Indian (AI) youth. Methods Project records including emails, travel reports, and meeting minutes were reviewed and synth...
Article
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Substance use often begins earlier among American Indians compared to the rest of the United States, a troubling reality that puts Native youth at risk for escalating and problematic use. We need to understand more fully patterns of emergent substance use among young American Indian adolescents, risk factors associated with escalating use trajector...
Article
Objective: Depression is a major debilitating disease. For American Indians living in tribal reservations, who endure disproportionately high levels of stress and poverty often associated with depression, determining the patterns and correlates is key to appropriate clinical assessment and intervention development. Yet little attention has been gi...
Article
The Department of Veterans Affairs (VA) and the Indian Health Service (IHS) signed a Memo of Understanding in 2010 to strengthen their partnership in improving health care services for Native veterans, who are disproportionately rural. This paper describes the demographic and service use profile of rural Native veterans who access VA health care. D...
Article
Project TEACH (Teaching Equity to Advance Community Health) is a capacity-building training program to empower community-based organizations and regional public health agencies to develop data-driven, evidence-based, outcomes-focused public health interventions. TEACH delivers training modules on topics such as logic models, health data, social det...
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Objectives: American Indians who live in rural reservation communities face substantial geographic barriers to care that may limit their use of health services and contribute to their well-documented health disparities. The purpose of this study was to examine the impact of geographical access to care on the use of services for physical and mental...
Article
Substantial evidence documents problematic substance use in Northern Plains American Indian communities. Studies suggest that disparities can be traced to disproportionate rates of early substance use, but most evidence comes from the retrospective reports of adults or older adolescents. To use a prospective longitudinal design to examine substance...
Article
Because of their broad geographic distribution, diverse ownership and operation, and funding instability, it is a challenge to develop a framework for studying substance abuse treatment programs serving American Indian and Alaska Native communities at a national level. This is further complicated by the historic reluctance of American Indian and Al...
Article
This article describes the objectives, theoretical bases, development process, and evaluation efforts to-date for the Circle of Life (COL) curricula, HIV/AIDS prevention interventions designed for American Indian and Alaska Native (AI/AN) youth. The curricula are based on Indigenous models of learning and behavior encompassing concepts of Western t...
Conference Paper
Community-based organizations (CBOs) are uniquely placed to address health disparities. Yet, in order to fund their programs, CBOs have been increasingly required to demonstrate skills in areas for which they have not received training, including: 1)finding/interpreting local health statistics, 2)evidence-based interventions, 3)program evaluation,...
Article
In spite of significant disparities in sexual health outcomes for American Indian youth, no studies exist examining the effectiveness of HIV-prevention interventions. Circle of Life is an HIV-prevention intervention specifically developed for American Indian middle-school youth. We describe the rationale, methodology, and baseline results of a long...
Article
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Social scientific investigation into the religiospiritual characteristics of American Indians rarely includes analysis of quantitative data. After reviewing information from ethnographic and autobiographical sources, we present analyses of data from a large, population-based sample of two tribes (n = 3,084). We examine salience of belief in three t...
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In their recent article, N. Spillane and G. Smith suggested that reservation-dwelling American Indians have higher rates of problem drinking than do either non-American Indians or those American Indians living in nonreservation settings. These authors further argued that problematic alcohol use patterns in reservation communities are due to the lac...
Article
To review the epidemiology, research, and prevention programs for sexually transmitted diseases in American Indians and Alaska Natives (AI/ANs). We reviewed the current national and regional trends in sexually transmitted diseases (STDs) for AI/ANs from 1998-2004, peer-reviewed studies from January 1996, through May 2006, and reports, unpublished d...
Article
Approximately 3 million teens are diagnosed with a sexually transmitted disease (STD) annually; STDs rates for American Indian young adults are among the highest of any racial/ethnic group. An important risk factor for STDs is early initiation of sex. In this study, we examined risk for early initiation with 474 American Indian youth ages 14–18, us...
Article
American Indian adolescents have two to four times the rate of sexually transmitted diseases (STDs) compared to whites nationally, they shoulder twice the proportion of AIDS compared to their national counterparts, and they have a 25% higher level of teen births. Yet little is known about the contemporary expectations, pressures, and norms that inf...
Article
Alcohol use is cited as a risk factor for exposure to HIV infection through risky sexual behavior, especially among adolescents. From Social Cognitive Theory, positive outcome expectancies about the use of alcohol have often been presented as a critical aspect of alcohol use. Yet little is known about how they might be related to different aspects...
Article
Developmental trajectories of personal and collective self-concept were examined among American Indian adolescents. Personal self-concept (self-esteem) and collective self-concept (American Indian identity, Euro-American identity, community-mindedness) were assessed 6 times over 3 years in 4 cohorts of adolescents from 3 American Indian cultural gr...
Article
Contracting a sexually transmitted disease (STD) is one of the most serious public health issues for adolescents and young adults; rates of STDs among American Indian youth are among the highest of any racial or ethnic group in the United States. Although it is one of the key risk factors for spreading STDs, little is known about individual develop...
Article
To assess the impact of exposure to life skills education by youth in KwaZulu-Natal Province (KZN, South Africa) on knowledge and behaviors associated with the spread of HIV/AIDS. Data come from a panel study of 2222 youth from several population subgroups in KZN. The youth were aged 14-24 years when interviewed in 1999 and 2001. The intervention w...
Article
Institutional review boards are increasingly meticulous about informed consent and risks and benefits to study participants. Concurrently, heated debate in a number of fields has advanced the notion of community risk and benefit. When research is conducted in communities, and the results may do harm to communities socially, economically, or medical...
Article
In 2002, the prevalence of HIV among South African clinic attendees under the age of 20 was 15 percent, suggesting a correspondingly high level of unprotected sex and risky sexual behavior. Past research focused on the dynamics of individuals' and partners' sexual decisionmaking without accounting for the larger context in which such decisions are...
Article
An explicit clinical significance (CS) criterion was added to many DSM-IV diagnoses in an attempt to more closely approximate the clinical diagnostic process and reduce the proportion of false positives in epidemiological studies. The American Indian Service Utilization, Psychiatric Epidemiology, Risk and Protective Factors Project (AI-SUPERPFP) of...
Article
Using a person-centered developmental approach, we explored how 319 American Indian youth moved to various aspects of HIV risk/protection from adolescence to young adulthood. With two waves of data spanning seven years, we examined multifinality (looking prospectively) and equifinality (looking retrospectively) to identify both normative and less c...
Article
We demonstrate the utility of cluster analysis for identifying diverse HIV risk groups found in a community-based sample. Within a group of 706 American Indian young adults, we used cluster analysis to identify four profiles of HIV risk/protection. The High Efficacy/Low Risk cluster had high levels of knowledge/education, self-efficacy, and outcome...
Article
In South Africa, young people's sexual relationships are often underpinned by an economic exchange: gifts or favours for sex. Studies have pointed out the negative consequences of the exchanges that are often characterized by large age differences or power imbalances. Perhaps more pervasive but largely ignored, gift giving in like‐age relationships...
Article
This paper examines the relationship of risky sexual behaviour to stress and trauma-often the mediators of the content and structure of everyday life-among young American Indians. School, work, social life, and home life bring about demands and stresses for youth; choices young people make may depend on the quantity and content of those demands. Tr...
Article
In communities where early age of childbearing is common and HIV prevalence is high, adolescents may place themselves at risk of HIV because positive or ambivalent attitudes towards pregnancy reduce their motivation to abstain from sex, have sex less often or use condoms. In this study, we analyse cross-sectional survey data from KwaZulu Natal, Sou...
Article
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American Indian alcohol use has received scrutiny in recent decades,1 but data derived from samples that permit direct comparisons to other US epidemiological studies have been less commonly reported.2–4 This brief places rates of the quantity and frequency of alcohol use in 2 tribally defined reservation samples in such a comparative epidemiologic...
Article
In communities where early age of childbearing is common and HIV prevalence is high, adolescents may place themselves at risk of HIV because positive or ambivalent attitudes towards pregnancy reduce their motivation to abstain from sex, have sex less often or use condoms. In this study, we analyse cross-sectional survey data from KwaZulu Natal, Sou...
Article
Although present incidence and prevalence rates are still low, dramatic increases have been noted in the percentages of American Indians (AIs) diagnosed with HIV and AIDS, perhaps indicating groups that are increasing in their risk for the infection. High rates of sexually transmitted diseases among AIs who are 20-24 years old also raise concern ab...
Article
among adolescents. This coercion is also often pinioned by an economic exchange: gifts or favours for sex. Studies have pointed out the negative consequences of the exchanges which are often characterised by large age differences (‘sugar daddies’) or power imbalances. Perhaps more pervasive but largely ignored, gift-giving in same-age relationships...
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South Africa's total fertility rate is estimated to be one of the lowest in sub-Saharan Africa, fewer than three births per woman nationally and declining. At the same time, adolescent childbearing levels remain high: More than 30 percent of 19-year-old girls are reported to have given birth at least once. Evidence from focus-group discussions cond...
Article
In 1980 Caldwell hypothesized that the time of the onset of the fertility transition in developing countries would be linked with the achievement of "mass formal schooling." This article applies Demographic and Health Survey data to assess schooling patterns and trends for 23 sub-Saharan African countries, using the percentage of 15-19-year olds wh...
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The study was supported by the Rockefeller Foundation and the U. S. Agency for International Development through the Horizons Project (under the terms of co-operative agreement No. HRN-A-00-97-00012-00) and, the FOCUS on Young Adults Project (co-operative agreement No. CCP-3-73 A00-6002-00) and the MEASURE/Evaluation Project (co-operative agreement...

Citations

... A goal of this project was to find new, and technologically resonant, approaches to engage this population in an AEP prevention mobile app tested in a virtual randomized controlled trial (RCT)-i.e., an RCT conducted fully remotely through the use of technology for recruitment, intervention delivery, and data collection. While virtual RCTs are not new (Bull et al., 2008;Christensen et al., 2006;Schwinn et al., 2015), they are rare in Native populations (Craig Rushing et al., 2021;Kaufman et al., 2023). ...
... Second, our project is focused on prevention and early intervention, thus we excluded individuals who were in need of treatment for an opioid use disorder, therefore purposively screening out those with higher use. Third, our sample was mostly female; however, prevention research with this age group and population typically has higher participation from females (Reed et al., 2022). Of note, 48% of the sample identified as SGM; other recent work with urban AI/AN emerging adults has also found that many endorse SGM identity (Reed et al., 2022). ...
... While some urban Native community centers and organizations may have guidelines or requirements for research, little research review infrastructure or requirements exist at the community level in urban settings. Following best practices in conducting research with urban Native populations (James et al., 2018;Yuan et al., 2014), NWC created a twelve-person urban community advisory board (UCAB) including Native scholars, Native young women, and representatives from Urban Indian Health Organizations (UIHOs) and Native-youth serving organizations to inform the design, implementation, and evaluation of our study (Tuitt et al., 2022). We also convened a Data Safety and Monitoring Board (DSMB) to review the NWC RCT protocol, data collection and analyses, and interpretation of results. ...
... Given that American Indian/Alaska Native (AI/AN) individuals have higher rates of suicide than other racial/ethnic groups (Leavitt et al., 2018) and the trend of increasing rates of suicide among AI/AN veterans who use VA health care (Mohatt, Hoffmire, et al., 2022), Mohatt, Begay, et al. (2023) conducted a scoping review of programs to identify strong practices for preventing suicide among AI/AN veterans. With the goal of creating suicide prevention programs to meet the needs of AI/AN veterans, the authors followed scoping review guidelines established by Arksey and O'Malley (2005). ...
... 6 Similar disparities have been documented specifically for AI/AN military veterans and veterans of other races. [7][8][9][10][11] However, it is unclear if the increased risks observed in AI/AN civilians and military veterans are also observed for AI/AN active duty military service members. ...
... In an analysis adjusting for insurance status, American Indian/Alaska Native veterans were more likely to delay care due to transportation problems and failure to get through to practitioners' offices on the telephone or obtain a timely appointment. 6 Other barriers include difficulties navigating and coordinating care across multiple health care systems (eg, Indian Health Service, Veterans Affairs [VA] medical centers) 7 and a lack of culturally safe care. 8 In addition, American Indian/ Alaska Native veterans are nearly 4 times more likely than non-American Indian/Alaska Native veterans to live in areas categorized as highly rural, 9 adding unique challenges to obtaining health care. ...
... This study examined the incremental 5-year health care utilization costs of ADRD for Medicaid and state program eligible AI/ANs ages 40 and older. We hypothesized that AI/ANs with ADRD would incur significant incremental costs, even after matching cases for co-existing medical diagnoses common in the AI/AN population [17,18]. We also hypothesized that by using a more comprehensive definition of ADRD, to highlight the likely underdiagnoses of this disease in the AI/AN population [13], an even greater incremental cost would be observed among AI/AN adults with versus without ADRD. ...
... Research among South African adolescents has indicated that young people themselves are increasingly making the link between pregnancy and HIV. Rutenberg et al. [35] highlighted that among some adolescents the danger of HIV infection has become part of the risk-benefit equation when thinking about pregnancy. It is, therefore, clear that the opportunity exists for the integration of services and that there is already demonstrated acceptability of such integration among adolescent women. ...
... ABC County is a very populous, 36 urban, and diverse county in California with a large and growing population of Multiracial people. One 37 day while reviewing literature, you come across a few papers and reports that document stark 38 disparities in both childhood adversity and anxiety between monoracial and Multiracial people (15)(16)(17)(18)(19)(20) 39 . You know from your work in violence prevention that adverse childhood experiences (ACEs) are 40 strongly associated with anxiety but were unaware of the striking Multiracial-monoracial disparities. ...
... [8][9][10] Given elevated rates of suicide and exposure to risk factors among both veterans and AI/AN populations, AI/AN veterans may be an important group for selective suicide prevention strategies. AI/AN veterans have a higher prevalence of mental health disorders compared with White veterans 11,12 and among all veterans, the prevalence of suicidal ideation is highest for those reporting a diagnosis of depression, anxiety, or posttraumatic stress disorder. 13 The 2020 National Veteran Suicide Prevention Annual Report provides a first look at suicide in this population, documenting growing AI/AN veteran suicide rates from 2005 to 2018. 1 However, this report does not provide detailed analyses important for understanding risk within this population. ...