Bert Gordijn's research while affiliated with Dublin City University and other places
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Publications (71)
The Embassy of Good Science ( https://www.embassy.science ) aims to improve research integrity and research ethics by offering an online, open, 'go-to' platform, which brings together information on research integrity and research ethics and makes that information accessible, understandable, and appealing. It effectively organizes and describes res...
Accountability, human rights and social justice are inextricably linked. Rights cannot be defended and upheld, and inequalities cannot be highlighted and challenged in the absence of accountability. In recent decades, recordkeepers have increasingly emphasised the role of archives and records in facilitating accountability, upholding rights and exp...
Contributor Role Ontologies and Taxonomies (CROTs) provide a standard list of roles to specify individual contributions to publications. Due to the recent uptake of CROTs – CRediT taxonomy in particular, researchers from different disciplinary backgrounds have anticipated a positive impact on ethical issues related to the attribution of credit and...
After WWII ethics has gone through a process of professionalization, developing approaches to ethical case deliberation as well as methods of practicing ethics in research and innovation (R&I). This process is described as having advantages and disadvantages. In addition, it is pointed out that foresight has been incorporated into ethical case deli...
This article explores the impact of an Increase in the average Number of Authors per Publication (INAP) on known ethical issues of authorship. For this purpose, the ten most common ethical issues associated with scholarly authorship are used to set up a taxonomy of existing issues and raise awareness among the community to take precautionary measur...
The Embassy of Good Science ( https://www.embassy.science ) aims to improve research integrity and research ethics by offering an online, open, 'go-to' platform, which brings together all information on research integrity and research ethics relevant for researchers, and makes that information accessible, understandable, and appealing. It effective...
Background
There has been no in-depth research of public attitudes on withholding or withdrawing life-prolonging treatment, euthanasia, assisted suicide and physician assisted suicide in Croatia. The aim of this study was to examine these attitudes and their correlation with sociodemographic characteristics, religion, political orientation, toleran...
End of life care is a global problem. From Western societies where death has been medicalised to lack of availability of palliative care which has led to an increase in the demand for euthanasia, to developing countries where end of life is affected by lack of resources including hospitals, home care, water problems and poverty. End of Life (EoL) c...
Background : The areas of Research Ethics and Research Integrity (RE+RI) are rapidly evolving. In the EU and internationally, new legislation, codes of conduct and good practices are constantly being developed. New technologies (e.g. gene editing), complex statistical methods (e.g. biostatistics), pressure to publish and obtain grants, and growing...
The aim of this study was to search for all available reviews, guidelines and analyses and make a literature overview and comparison between countries as a corner stone for a further research with a goal of making our national pediatric and neonatal end-of-life guidelines.We conducted a literature search in February 2018 and in September 2019 in bi...
The aim of this study was to search for all available reviews, guidelines and analyses and make a literature overview and comparison between countries as a corner stone for a further research with a goal of making our national pediatric and neonatal end-of-life guidelines.We conducted a literature search in February 2018 and in September 2019 in bi...
"The areas of Research Ethics and Research Integrity (RE+RI) are rapidly evolving. Guidelines, standards, and laws have been drafted in many countries, regions and institutions. However, the regulatory proliferation does not necessarily yield clear guidance for practice: researchers often lack up-to-date and easily accessible information and guidan...
This paper explores the ethics of the biologicalisation of manufacturing, a research area of increasing importance to industrial strategy. The term biologicalisation is used in a variety of ways in the technical literature, this paper provides an exploratory conceptual analysis, focused on the biologicalisation of engineering and the technosphere....
Background
The areas of Research Ethics (RE) and Research Integrity (RI) are rapidly evolving. Cases of research misconduct, other transgressions related to RE and RI, and forms of ethically questionable behaviors have been frequently published. The objective of this scoping review was to collect RE and RI cases, analyze their main characteristics,...
In diesem Beitrag diskutieren drei interdisziplinär ausgebildete Akademiker, die als klinisch tätige Ethiker auch viele Jahre Erfahrungen mit Gesundheitssystemen in verschiedenen Ländern haben (Deutschland, Niederlande, Irland, USA, Kanada und Saudi Arabien), die Frage nach dem Kern klinisch-ethischer Expertise: der niederländische Mediziner und Ph...
Geoengineering as a technological intervention to avert the dangerous climate change has been on the table at least since 2006. The global outreach of the technology exercised in a non-encapsulated system, the concerns with unprecedented levels and scales of impact and the overarching interdisciplinarity of the project make the geoengineering debat...
This paper aims to explore the role assistive technologies (ATs) might play in helping people with autism spectrum disorder (ASD) and a concomitant responsibility deficit become more morally responsible. Toward this goal, the authors discuss the philosophical concept of responsibility, with a reliance on Nicole Vincent's taxonomy of responsibility...
Background:
Inaccurate citations are erroneous quotations or instances of paraphrasing of previously published material that mislead readers about the claims of the cited source. They are often unaddressed due to underreporting, the inability of peer reviewers and editors to detect them, and editors' reluctance to publish corrections about them. I...
An overwhelming majority of experts has been flagging for decades that "Saving the Planet" requires immediate, persistent and drastic action to curb a variety of catastrophic risks over the 21 st century. However, despite compelling evidence and a range of suggested solutions, transnational coordination of effective measures to protect our biospher...
The distinction between ordinary and extraordinary treatment has a long history. Since it was first proposed and discussed in the medieval period, it has formed part of medical ethics, even as that discourse, and the landscape it comments on, has radically changed and developed. In this essay we briefly canvas the history of the debate on ordinary/...
The following remarks are presented by way of a postscript to this collection. The points we discuss focus on what we see as socio-cultural developments that will influence near future issues in care at the end of life.
This chapter introduces the ENDCARE project and the work that resulted in this collection. We outline the rationale of the project before providing a sketch of each of the chapters that follow.
The article at hand presents the results of a literature review on the ethical issues related to scientific authorship. These issues are understood as questions and/or concerns about obligations, values or virtues in relation to reporting, authorship and publication of research results. For this purpose, the Web of Science core collection was searc...
This open access book provides the first comprehensive collection of papers that provide an integrative view on cybersecurity. It discusses theories, problems and solutions on the relevant ethical issues involved. This work is sorely needed in a world where cybersecurity has become indispensable to protect trust and confidence in the digital infras...
This book examines the ethics of end of life care, focusing on the kinds of decisions that are commonly made in clinical practice. Specific attention is paid to the intensification of treatment for terminal symptoms, particularly pain relief, and the withdrawal and withholding of care, particularly life-saving or life-prolonging medical care. The b...
This chapter focuses on ethical issues in cybersecurity in business. It first sketches the main ethical issues discussed in the academic literature thus far. Next, it identifies some important topics that have not yet received the attention they deserve. The chapter then focuses on one of those topics, ransomware attacks, one of the most prevalent...
The aim of this paper is to analyse the ethical issues relating to privacy that arise in smart homes designed for people with dementia and for people with intellectual disabilities. We outline five different conceptual perspectives on privacy and detail the ways in which smart home technologies may violate residents’ privacy. We specify these priva...
Purpose
The purpose of this paper is to develop a critique of value sensitive design (VSD) and to propose an alternative approach that does not depart from a heuristic of value(s), but from virtue ethics, called virtuous practice design (VPD).
Design/methodology/approach
This paper develops a philosophical argument, draws from a philosophical meth...
The development of “smart stadia”, i.e. the use of “smart technologies” in the way sports stadia are designed and managed, promises to enhance the experience of attending a live match through innovative and improved services for the audience, as well as for the players, vendors and other stadium stakeholders. These developments offer us a timely op...
This paper focuses on the practice of injecting patients who are dying with a relatively high dose of sedatives in response to a catastrophic event that will shortly precipitate death, something that we term ‘crisis sedation.’ We first present a confabulated case that illustrates the kind of events we have in mind, before offering a more detailed a...
There was a spelling error in the second author’s last name in the original publication. The name is correct in this erratum.
With few exceptions, the literature on withdrawing and withholding life-saving treatment considers the bare fact of withdrawing or withholding to lack any ethical significance. If anything, the professional guidelines on this matter are even more uniform. However, while no small degree of progress has been made toward persuading healthcare professi...
Commentary: From Liberal Eugenics to Political Biology - Volume 28 Issue 1 - NATHAN EMMERICH, BERT GORDIJN
This paper provides a systematic literature review, analysis and discussion of methods that are proposed to practise ethics in research and innovation (R&I). Ethical considerations concerning the impacts of R&I are increasingly important, due to the quickening pace of technological innovation and the ubiquitous use of the outcomes of R&I processes...
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Technologies are increasingly intertwined with people’s daily lives. Consequently, there is an increasing need to consider the ethical impacts that research and innovation (R&I) processes, both in commercial and non-commercial contexts, bring about. However, current methods that offer tools for practicing ethics in R&I inadequately allow for non-et...
This paper outlines the potential and necessity of the development of assistive technologies (AT) for people with intellectual disabilities (IDs). We analyse a policy recommendation designed to determine the contents of a basic health package supplied by the state, known as the Dunning Funnel. We contend that the Dunning Funnel is a useful methodol...
This comment on Chalgoumi et al.’s paper, “Information Privacy for Technology Users with Intellectual and Developmental Disabilities: Why Does It Matter?” focuses on the concept of autonomy in order to expand the scope of the ethical discussion. Firstly, we explore the conceptual and practical relations between privacy and autonomy. Following this,...
This short paper presents a philosophical analysis of the ways in which assistive technologies (ATs) can result in the stigmatisation of users with ASD. It frames the discussion in the context of the medical and social models of disability and outlines a number of ethical risks that might arise from the project of developing ATs.
This introduction explains the rationale behind the volume at hand against the backdrop of the existing state of the art in research related to disasters and disaster bioethics. The volume offers an overview of how disasters are conceptualized in different academic disciplines relevant to disaster bioethics (Part I), and addresses normative issues...
This paper sketches three principles in thinking about withholding and withdrawing lifesaving treatments from an ethical perspective: 1) the principle of ordinary and extraordinary means, 2) the principle of respect for patient autonomy and 3) the principle of futility. These principles can be employed to provide normative direction on where the ob...
This White Paper outlines how the ethical discourse on cybersecurity has developed in the scientific literature, which ethical issues gained interest, which value conflicts are discussed, and where the “blind spots” in the current ethical discourse on cybersecurity are located. The White Paper is based on an extensive literature with a focus on thr...
Cybersecurity is of capital importance in a world where economic and social processes increasingly rely on digital technology. Although the primary ethical motivation of cybersecurity is prevention of informational or physical harm, its enforcement can also entail conflicts with other moral values. This contribution provides an outline of value con...
This White Paper summarises currently available empirical data about attitudes and opinions of citizens and state actors regarding cybersecurity. It describes what these stakeholders generally think, what they feel, and what they do about cyber threats and security (counter)measures. For citizens’ perspectives, three social spheres of particular in...
Personalisation of digital content is becoming one of the major focus areas of contemporary research in human-computer interaction. Interactions between humans and computer systems such as information retrieval operations, digital learning and self-monitoring are “tailored” to the needs of the human user. In this paper, we aim to increase our philo...
Broadly accepted goals of ethics education are knowledge, skills, and moral improvement. The first goal involves gaining more familiarity with ethical theories, concepts, arguments, debates, important ethicists and so forth. The second one entails acquiring abilities regarding ethical analysis, argumentation, deliberation, and the like. The third g...
This chapter is an introduction to the section on neuroenhancement, which is regarded as an intervention in the central nervous system in order to “improve” certain aspects of a person’s “healthy” or “normal” performance. This can be accomplished by pharmaceutical means, surgery, and/or technology. The section on neuroenhancement begins with a chap...
Disasters are characterised by sudden onset, overwhelming needs and insufficient resources. While definitions differ, disasters have common characteristics. As the capacity to respond is overwhelmed, these include large logistical problems and ethical dilemmas. The need to address ethical issues in disaster relief and disaster research is increasin...
This chapter outlines two key ethical issues associated with the possible development of brain-computer interfaces (BCIs) for enhancement purposes. Following a brief introduction to brain-computer interfaces, a scenario in which their use for enhancement purposes becomes commonplace is sketched. General ethical issues associated with the widespread...
This chapter is an introduction to the volume at hand. The book contributes to the ongoing nanoethics debate in four topical areas. The first part tackles questions of what could be called ‘meta-nanoethics’. Its focus lies on basic concepts and the issue of what – if anything – is truly novel and special about the new field of nanoethics or its sub...
Brain–computer interfaces (BCIs) allow people to control external devices using only the power of their thoughts. This chapter explores BCIs in terms of individual user responsibility. Firstly, BCIs are introduced. Following this, the concept of individual responsibility is discussed. After that three novel aspects of BCIs that will have an impact...
This chapter looks at the challenges of global bioethics in the years ahead. As the particular version of global bioethics favored in this volume has thrown in its lot with the human rights tradition, its fate is closely connected with the latter’s prospects. Therefore, this chapter starts with a brief review of the history of this tradition. It th...
This contribution describes how the compendium is ordered and structured in presenting the major issues and controversies in current-day global bioethics. After briefly explaining the emergence of global bioethics as well as the growing involvement of international organizations, it is pointed out how the United Nations Educational, Scientific and...
The doctrine of informed consent is now recognized worldwide through several international guidelines and normative instruments. Based on respect for the dignity and autonomy of patients and research participants, it has been the subject of numerous publications for quite some time. In a globalized world where a variety of spiritualities and cultur...
This book provides an early exploration of the new field of disaster bioethics:
examining the ethical issues raised by disasters. Healthcare ethics issues are addressed in the first part of this book. Large-scale casualties lead to decisions about who to treat and who to leave behind, cultural challenges, and communication ethics. The second part f...
This volume assembles an interdisciplinary team of leading academics, industry figures, policymakers and NGO’s to consider the legal, ethical and social issues that are raised by innovations in nanoscience and nanotechnology. By bringing together international experts from a diverse range of fields this volume addresses the implications and impact...
In this chapter two popular accounts of bioethics will be reviewed, viz. “the story of exportation” and “the story of invention.” According to these accounts, global ethics, as based on a set of universal values or principles, is either seen as imperialist and neocolonialist and thus undesirable, or as futile. As will be argued, both accounts are r...
Specialist palliative care (SPC) services are increasingly integrated with chronic heart failure (CHF) services. Left ventricular assist devices (LVADs) represent an advance in the management of advanced CHF, but may pose ethical challenges for SPC services providing care to this population.The patient received an LVAD as 'bridge-to-heart-transplan...
The procurement and storage of human tissue and body parts has a long tradition in human history. The development of Western science – especially anatomy – was based, among other prerequisites, on the collection of human corpses and their parts. Similarly, a long-standing Western religious tradition involved retaining the remains of saints and holy...
Citations
... It is possible that honorary authorship could be conferred on deceased individuals with a high profile and established reputation to improve a study's impact [30,31]. The increasing contribution of deceased authors in the biomedical literature could also exacerbate the growing trend in average number of authors per publication which also poses an ethical issue for authorship in general [32]. However, improper motives may be less likely to be at play in the majority of cases of deceased authors as the majority do not have significant publication records and further they cannot exert undue pressure or coerce co-authors for honorary authorship after death. ...
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... The growing diverse nature of cyber threats poses important legal, ethical, and professional implications [18] as individuals and organizations may be held liable for damages caused by cyber-attacks, they must adhere to data protection laws and regulations, and cyber security professionals have a professional obligation to maintain the integrity of their work while adhering to ethical principles, such as responsible disclosure of vulnerabilities. The most significant implications concern privacy, intellectual property, liabilities, international criminal activity laws, ethical Hacking, and cyber warfare. ...
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... Unfortunately, no current research on related work 18 based on SMW exists. Notable exceptions are [7] introducing CLEF as a novel linked data platform for cultural heritage, [29] providing an ontology-based approach to creating SMW instances, and [15] implementing a SMW based collaboration platform for research integrity and ethics. ...
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... From 87 research reports that were evaluated, 73 studies were not relevant for the purpose of this Two studies addressed young and middle-aged adults. 16,22 Rahemi and Parker 22 found that of 251 young and middle-aged Iranian-American adults, 57% preferred hospitalization and intensive care; 41% chose comfort care in a hypothetical incurable condition. Those who preferred comfort care mostly preferred care at home compared with institutions. ...
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... Authentic inquiry was employed as a validation strategy in the study (Creswell and Miller, 2000;Creswell, 2013). As a result, the following methods were used: ongoing bracketing by the one researcher, who was the facilitator throughout the entire process, to ensure personal biases were put aside to allow participants' perspectives to be heard, memberchecking was carried out during analysis in order to establish credibility (Lincoln and Guba, 1985;Armond et al., 2021), and participants independently verified and scrutinized the data to ensure that it accurately reflected their experiences. ...
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... Frohlich and Potvin provide a very general indication of the characteristics of such interventions, stating simply that they need to be intersectoral and participatory, and there is still a need to elucidate what it takes to foster equitable outcomes through interventions in socially vulnerable populations (see e.g. Ten Have et al., 2021). ...
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... This is so important that it can reduce behavioral problems in children, as well as improve the mental health of the family as a whole [32]. Likewise, fluid communication between the educational institution and the family itself can lead to a reduction of stress and trust in parents, which facilitates the entire daily process [45]. Therefore, intervention and collaboration with families is essential. ...
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... In essence, these systems are necessarily conservative, favoring the status-quo and potentially skewed approaches already present in current and past discourse. This issue resembles concerns voiced regarding other modes of automation in scholarly work (e.g., citation recommendation tools [12] or those that aim to detect erroneous citations [13]). ...
... Increasing the planet's albedo through SAI entails spraying aerosol particles into the stratosphere, which in turn reduces some of the incoming sunlight (Crutzen, 2006). However, the ethics surrounding SAI are contentious and polarizing raising issues of distributive, participatory and historical (in) justice, the relationship between human beings and nature, risk-ethical issues, etc. (Pamplany et al., 2020) Although SAI receives marginal but continuous attention within the ethics literature (for an overview, e.g. Preston, 2013), a focus on the uncertainties in the debate is still lacking. ...
... As shown in the mentioned studies, cases of LST limitation were occurring in Croatian ICUs before proper guidelines or an adequate legal framework were in place. Physicians working with end-of-life patients, recognizing the specifics of this type of treatment, acted according to the current medical expertise and recommendations of Western countries, which emphasize the patient's autonomy and dignity (6). ...
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