Bella Kofner's research while affiliated with City University of New York - College of Staten Island and other places

Publications (59)

Article
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Introduction Autistic people face systemic barriers to fair employment. Informal learning may promote the self-determination transition-age autistic youth need to overcome and/or transform these barriers. This report focuses on the iterative process of developing video game design workshops guided by feedback from autistic students about instructio...
Presentation
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Background Autistic people are often skilled with computers and drawn to STEM fields (Wei et al., 2013) yet encounter difficulties obtaining employment (Shattuck et al., 2012). Strategies to help neurodivergent youth engage with STEM curricula to build employment-related skills are sorely needed. Training for staff who facilitate such programs shou...
Poster
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Background: Parents may wait to tell a child they are autistic until they feel the child is “ready,” leading some autistic people to learn they are autistic years after their diagnosis (Smith et al., 2018). Parents often express concerns that their child will not understand the diagnosis, that it could confer stigma, and/or harm their child’s menta...
Poster
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Background Autistic people often face barriers obtaining meaningful employment (Burgess & Cimera, 2014; Shattuck et al., 2012). Although not all autistic people are interested in STEM fields (Cheriyan et al., 2021), some have STEM interests and strengths that are well aligned with workforce needs (Bureau of Labor Statistics, 2015; Krzeminska, & Ha...
Poster
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Background: As the number of autistic university students grows, educators increasingly realize that autistic students experience not only difficulties with social interaction, self-advocacy, executive functioning, mental health, and stigma but also key strengths (Accardo et al., 2019a; Bakker et al., 2019) including heightened intellectual self-co...
Poster
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This study examines the relationship between emotions about stimming behaviors and special interests (SIs) felt by autistic high school and college students. Twenty-three autistic students who participated in a game design and employment workshop completed a self-report survey. Positive feelings about both stimming and SIs were reported, but less f...
Article
Background: Improving the understanding and treatment of mental health concerns, including depression and anxiety, are significant priorities for autistic adults. While several theories have been proposed to explain the high prevalence of internalizing symptoms in autistic populations, little longitudinal research has been done to investigate poten...
Preprint
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The gap between autistic people’s potential and their employment outcomes is a pressing societal issue. This report focuses on the first workshops in a three-year-long NSF-funded program of research that seeks to empower autistic youth to move toward their dream jobs by helping educators more effectively guide them. In the Summer of 2021, educators...
Presentation
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In this talk, we explore factors that may shape how autistic young people think about autism, including experiences being discriminated against, trainings we have developed to reduce autism stigma in various cultural contexts (highlighting strengths of trainings developed in collaboration with autistic people), challenges with participatory researc...
Article
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We compared short stories by autistic (n=19) and non-autistic (n=23) university students. We used automated software and content analysis to code students’ stories. We found that writings were more similar than different. However, autistic students’ stories were rated at a higher reading level (p=.013) than non-autistic students’. Autistic students...
Presentation
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This poster shares some of what we learned during the first summer of our game design workshops for autistic teenagers/young adults at Tech Kids Unlimited. In the first summer, we conducted two week-long workshops, revising the curriculum based on what we learned from the first workshop before conducting the second workshop. In the first summer, we...
Conference Paper
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In this talk, we described the process of developing learning objectives for our upcoming online Game Design and Employment Workshop at Tech Kids Unlimited (TKU) based on guidance from a participatory group of neurodivergent youth and scholars and what we learned last summer when conducting our first game design workshops for this NSF-funded study....
Conference Paper
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In their talk, the speakers will introduce the neurodiversity movement and illustrate the participatory, neurodiversity-aligned approaches that are central to most of their current research. Their talk will highlight recently completed and ongoing projects including a comparison of a participatory and a non-participatory Autism training for college...
Article
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Lay abstract: Autistic university students have many strengths. They also go through difficulties that professors may not understand. Professors may not understand what college life is like for autistic students. They might judge autistic students. A team of autistic and non-autistic researchers made a training to help professors understand autist...
Conference Paper
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Discussions about diversity and representation can empower neurodivergent young people to appreciate their own and others’ unique identities. We will share what we have learned through navigating discussions about social justice within two programs for autistic young people: NSF-funded game design workshops for autistic youth at Tech Kids Unlimited...
Presentation
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These are the slides we used in a webinar for the AIR-P network on 2/16/2022. Here is the video recording: https://www.youtube.com/watch?v=NYj7wlX7N54 Webinar description: After introducing common aims and controversies surrounding the neurodiversity movement, we will empirically examine how support for the neurodiversity movement intersects wit...
Article
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Lay abstract: People learn they are autistic at different ages. We wanted to know if telling kids they are autistic earlier helps them feel better about their lives when they grow up. We are a team of autistic and non-autistic students and professors. Seventy-eight autistic university students did our online survey. They shared how they found out...
Preprint
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We compared typed short stories by autistic (n = 19) and non-autistic (n = 23) university students. We used automated software and content analysis to code students’ stories. We found that writings by autistic and non-autistic students were more similar than different. However, autistic students’ stories were rated as requiring a higher reading lev...
Article
Full-text available
Supports for the growing number of autistic university students often focus on helping them succeed in university. However, even educated autistic people experience discrimination and other challenges which can make it very difficult for them to obtain meaningful jobs. Little remains known about how universities can better support their autistic st...
Article
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Lay abstract: Autistic university students are often left out because people do not understand autism. We wanted to help people understand autism. Most autism trainings are not made by autistic people. Autistic people know what it is like to be autistic. So autistic people may be the best teachers when it comes to teaching about autism. Autistic s...
Preprint
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Supports for the growing number of autistic university students often focus primarily on helping them succeed in university. However, even educated autistic people experience discrimination and other difficulties that can make it very difficult for them to succeed in their dream jobs. Little remains known about how universities can better support t...
Poster
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We examined our hypothesis that a participatory autism training, developed in collaboration with autistic people, would be more effective than a non-participatory training in reducing autism stigma and increasing autism knowledge. We found that both trainings improved implicit biases in a first study. In a larger follow up study, we found evidence...
Poster
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This poster evaluates a participatory faculty training about Autism and Universal Design that highlights the perspectives of autistic students and academics. We found evidence that improved autism knowledge and appreciation of autism and UD following training maintained a month after post-test. Here is a link to an open-access version of the train...
Poster
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We examined beliefs about the causes of autism, autism stigma, autism knowledge, and appreciation of biodiversity among students in France, the US, and Lebanon. Unexpectedly, given the history of psychodynamic treatments in France, participants in France were less likely to attribute autism to cold parents. Participants who attributed autism to God...
Poster
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Prior literature has explored parental experiences with their child’s autism diagnosis (Crane et al., 2019). However, very little is known about how the process of learning one is autistic impacts development. Learning about one’s autism through open dialogue with parents may have positive impacts on self-perception and autism understanding (Riccio...
Presentation
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The workshop, entitled “Is Universal Design Enough? Learning from the Neurodiversity Movement How to Engage Diverse Learners”, was sponsored by Transformative Learning in the Humanities. In our workshop, we used the neurodiversity framework to collaboratively develop strategies to more effectively reach our diverse students by demonstrating and fos...
Preprint
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Many autistic people do not learn they are autistic until adulthood. In this study, a participatory team of autistic and non-autistic researchers examined if learning one is autistic earlier in development is associated with heightened well-being and Autism-Specific Quality of Life (ASQoL). Eighty-four autistic university students completed a surve...
Presentation
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Autistic and non-autistic scholars collaborated to develop this training to help university staff understand and appreciate autism and Universal Design. This training is available open access, so feel free to use it at your institution. If you use our training in your work, please cite it using this conference presentation citation: Waisman, T.C...
Preprint
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Autistic university students face stigma. We developed two autism trainings: a participatory training (developed in collaboration with autistic students) and a non-participatory training. We evaluated these trainings with undergraduates in the US and Lebanon. A first study revealed improvements in implicit biases and autism knowledge associated wit...
Conference Paper
Full-text available
Prior research has demonstrated that autistic university students face stigma. We developed two autism trainings: a participatory training (developed in collaboration with autistic students) and a non-participatory training. We conducted an evaluation of these trainings with undergraduates in the US and Lebanon. A first study revealed improvements...
Article
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Purpose: We critically examine the idea of neurodiversity, or the uniqueness of all brains, as the foundation for the neurodiversity movement, which began as an autism rights movement. We explore the neurodiversity movement’s potential to support cross-disability alliances that can transform cultures. Methods/Approach: A neurodiverse team review...
Article
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Lay abstract: We do not know very much about the writing skills of autistic university students. Studies with autistic children and teenagers show that some autistic young people have difficulties writing. Other autistic people are talented writers. In fact, some autistic people would rather write than speak. Good writers often imagine other peopl...
Poster
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This poster, showing that participatory university supports may be associated with positive outcomes for autistic university students, was accepted at INSAR 2020.
Poster
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This poster, highlighting autistic students' satisfaction with available supports at university and desire for more autism focused supports, was accepted at INSAR 2020.
Poster
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This e-poster, showing that autism stigma and lack of appreciation for biodiversity arise from a broader belief that those who are in power (e.g., “neurotypical humans” when compared to “neurodivergent” humans or humans in general when compared to other animals) deserve their privileges, was accepted at INSAR 2020.
Poster
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This e-poster, showing that autistic college students in a participatory mentorship program reported heightened QoL relative to students at other institutions, was accepted as a poster at INSAR 2020.
Conference Paper
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This e-poster, showing that a participatory (developed in collaboration with autistic college students) and a non-participatory training were associated with improvements in explicit and implicit stigma and autism knowledge, was accepted as a talk at INSAR 2020, which was cancelled due to COVID-19.
Poster
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This abstract, suggesting that parents should explain their child’s diagnosis to them in a way that they can understand soon after diagnosis, was accepted as a poster at INSAR 2020. The e-poster is attached.
Preprint
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Revising this paper about widening the neurodiversity movement by building alliances across neurotypes in response to reviewer feedback. This is the version submitted prior to upcoming revisions. The accepted paper is available above.
Preprint
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The final version of this paper was accepted at Autism. Its final title is: Comparing the Writing Skills of Autistic and Non-Autistic University Students: A Collaboration with Autistic University Students This is the initial version of a paper about the writing skills of autistic and non-autistic college students that we submitted to a journal (be...
Article
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We argue that understanding of autism can be strengthened by increasing involvement of autistic individuals as researchers and by exploring cascading impacts of early sensory, perceptual, attentional, and motor atypicalities on social and communicative developmental trajectories. Participatory action research that includes diverse participants or r...
Presentation
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"It makes me different, and being different is a gift, I would say. It also makes me see things from outside the box." Greta Thunberg, teenage activist and Nobel Prize nominee reflects on being autistic. Would she have helped spark a global movement if people close to her had tried to make her more “normal” rather than valuing the ways she is diffe...
Presentation
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This is a participatory adaptation of our autism training that autistic college students played a leading role in developing. It highlights their stories through videos (links in the training). Participation in this training has been associated with improved knowledge and stigma towards autism in quasi-experimental studies (presented at INSAR 2019)...
Poster
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Introduction: Autistic students are increasingly entering college, where they face difficulties self-advocating, self-regulating, developing social relationships, and managing time (Gelbar et al., 2014; Elias & White, 2017). Autistic students often have strengths they can use to overcome these challenges, including systemizing skills, detail orient...
Poster
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Background: Autistic people are negatively impacted by misconceptions about and stigma towards autism (Botha et al., 2018). Participation in a brief online autism training was associated with reduced stigma towards and increased knowledge about autism among college students internationally (Gillespie-Lynch et al., 2015; Obeid et al., 2015; Someki e...
Poster
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Background: Autism resources remain scarce in Kenya (Riccio, 2011). In one of the only prior studies about autism in Kenya, parents and educators reported experiencing stigma and misconceptions about autism (e.g., caused by witchcraft) and pronounced challenges accessing care (Gona et al., 2015). Although autism affects people at similar rates glob...
Conference Paper
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The writing skills of autistic college students have received very little empirical attention. Previous research has suggested that autistic people may struggle with writing, in part, due to challenges with Theory of Mind (ToM). However, other research has highlighted a double empathy problem, wherein autistic people are categorized as struggling w...

Citations

... Depression is often characterized by excessive pessimism toward external matters, which can trigger worry or even panic. Moreover, long-term experiences of insecurity can negatively impact mental health, leading to increased negativity and suppression (49). Hence, there may be a strong correlation between depression and sense of security. ...
... Another limitation of the study is that we did not assess whether for university educators (Waisman et al., 2022). Future work should examine if benefits of training also maintain for students and if they lead to measurable changes in observed behaviors towards autistic people rather than just self-reported attitudes. ...
... Notably, learning that one is autistic can be a source of empowerment, allowing the autistic person to better understand themselves and adopt strategies for everyday life. 37,38 This reflects the voice of participants in our study where following their diagnosis, they better understood what their support needs were and how to manage them in their living situation. ...
... Content analysis was selected to analyze patterns found in the open-ended questions and to allow the research team to identify and compare the barriers and enablers experienced by women during the career journeys. This approach allows for the coding of raw text into selected classification schemes and has been frequently used by qualitative researchers to derive meanings from texts concerning career motivations (e.g., Kondracki et al., 2002;Cheriyan et al., 2021). The content analysis for this study was conducted by the researchers using NVIVO on a secure and anonymized basis. ...
... Online and scalable training curricula not only increase knowledge of autism, but also diminish stigma toward autism, among both students 35 and faculty. 36 Thus, neurodiversity trainings could foster more inclusive attitudes toward neurodiversity on campuses. While the effectiveness of diversity training in general has been questioned, 37 members of campus communities often have limited knowledge and understanding of neurodivergent students and their needs, 5,38-43 let alone prior exposure to narratives aligned with the neurodiversity movement. ...
... Considering the impact of misinformation on public stigma toward mental illness (Thornicroft et al., 2022), not all forms of knowledge, but specifically knowledge that addresses and corrects stereotypes about autism may have the potential to reduce stigma. Some interventions have been reported to reduce some forms of stigma (e.g., desired social distance, Gillespie-Lynch et al., 2015; first impressions of an autistic person, implicit attitudes;Gillespie-Lynch et al., 2022), while others did not induce significant changes (e.g., implicit attitudes; Dickter et al., 2021; willingness to engage in academic, recreational, or social activities with an autistic peer; Swaim et al., 2001). Some impact knowledge and attitudes but do not impact intentions to actually interact with autistic people (e.g., Staniland & Byrne, 2013). ...
... Although the idea of neurodiversity has been adopted to varying degrees by other disability communities: for example, stuttering, dyslexia, mood disorders, anxiety, ADHD, intellectual and learning disabilities, and schizophrenia, who should be included within the neurodiversity movement remains highly contested (e.g., Chapman & Veit, 2020;Gillespie-Lynch et al., 2020). Ongoing debates about who the neurodiversity movement represents demonstrate the immense assumptions that go into attempting to make identity categories more homogenous. ...
... We found that the autism knowledge video created was successful in increasing knowledge about autism in a general population sample. These results align with prior research that suggests autism awareness interventions are effective (e.g., Gillespie-Lynch et al., 2015;Gillespie-Lynch, 2021;Harrison et al., 2016;Jones et al., 2021). This study adds to the current literature by demonstrating that a brief informational video may also be effective at increasing autism knowledge, which differs from prior research that used other methods such as PowerPoint presentations. ...
... Alongside the question of what the word neurodiversity means is the even more crucial question of who it applies to. Though neurodiversity has its origins in the world of autism, it has important implications outside of it as well (Bertilsdotter Rosqvist et al., 2020;Gillespie-Lynch et al., 2020). As Botha and Gillespie-Lynch (2022) note, in various contexts, conditions like ADHD, dyslexia, bipolar disorder, schizophrenia, intellectual disability, and many others have been asserted to fall under the neurodiversity umbrella. ...
... Indeed, the gendered stereotypes of females that are often in direct contrast to autistic characteristics and popularized theoretical accounts of autism as a masculinized condition, few have directly tested this relation. However it is essential to assess the views of the general population as although attitudes towards autism may be improving [65], stigma remains common [66], and individuals' biases towards autism can often contribute to personal and professional challenges for autistic people [67]. This population-based study explores whether gender biases the perception of autism on implicit and explicit measures. ...