Alice Booth’s research while affiliated with The University of Law and other places

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Publications (2)


The Legal Frameworks that Govern Fetal Surgery in the United Kingdom, European Union and the United States.
  • Article
  • Full-text available

April 2018

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62 Reads

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1 Citation

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Alice Booth

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Sebastien Ourselin

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[...]

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The Legal Frameworks that Govern Fetal Surgery in the United Kingdom, European Union and the United States

July 2017

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87 Reads

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21 Citations

Prenatal Diagnosis

WHAT'S ALREADY KNOWN ABOUT THIS TOPIC? Fetal surgery is entering mainstream clinical care as a specialty that introduces an exciting range of new treatments for mothers and their unborn babies. The conflict between maternal autonomy and interests in fetal health is relatively well‐known. How does fetal surgery affect this issue? WHAT DOES THIS STUDY ADD? Clarify the legal frameworks that govern fetal surgery in the UK, EU and USA. Examine how fetal surgery may influence the legal position. Discuss clinical best practice and how physicians can influence future laws that govern this specialty. The specialty of fetal surgery or fetal intervention is one of the most exciting emerging fields of modern medicine. It is made possible by decades of major developments in antenatal imaging, obstetric anaesthesia, fetal medicine, paediatric surgery and of course by the bold and novel practitioners willing to take new steps to advance the field. Beginning in the 1970s it has now reached a stage of maturity where there are several established in‐utero procedures and countless clinical trials and studies to develop more. But what is the legal situation that fetal surgeons find themselves in? What are the rights and legal protections for the fetus and the mother, both of which are arguably the patient? This article will address this question, discussing and summarising the current legal frameworks governing fetal surgery in the jurisdictions of the United Kingdom, European Court of Human Rights and the United States of America as well as discuss what the future may hold and how researchers and physicians in the specialty can best navigate the legal environment.

Citations (1)


... 13 In the UK, the fetus does not have any legal rights of its own, at least until it is born and has a separate existence from the mother. 14 In practice, ethical guidance focuses on the autonomy of the woman, and her unique position as patient and pregnant woman. Whatever the theoretical basis may be for making judgements about the interests of the future child, it is arguable that only the woman herself is in a position to make those judgements, and it is clear in law and ethics that her informed consent is essential to authorising any clinical trial of a treatment during her pregnancy, regardless of whether the aim of that treatment is to benefit her, her fetus, or both. ...

Reference:

Ethical considerations of a randomised controlled trial of fetal intervention versus expectant management in monochorionic twin pregnancies with early‐onset selective fetal growth restriction
The Legal Frameworks that Govern Fetal Surgery in the United Kingdom, European Union and the United States

Prenatal Diagnosis