J H Barlow

Coventry University, Coventry, England, United Kingdom

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Publications (85)162.81 Total impact

  • Julie H. Barlow · Bethan Williams · Chris C. Wright
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    ABSTRACT: Objective. Community-based health interventions have been shown to be effective in promoting arthritis self-management amongst people in North America. The aim of this study was to determine the effectiveness of such programmes among older people in the UK. Design. The study was a multiple baseline, pre-test–post-test design of 62 older people (> 55 years of age) attending Arthritis Self-Management Programmes (ASMP) delivered in community settings. Method. Data were collected by self-administered questionnaires at two points in time: prior to the intervention and after the intervention, four months from baseline. Results. The sample comprised 94 per cent women, with a mean age of 69 and mean disease duration of 26 years. Most participants had either osteoarthritis or rheumatoid arthritis. Results showed that after four months, participants demonstrated significant increases in arthritis self-efficacy (p < .0005), positive affect (p = .042), cognitive symptom management (p < .0005), communication with doctors (p =< .0005), exercise (p < .0005) and relaxation (p < .0005). In addition, significant decreases were found in terms of pain (p = .026), depression (p = .042) and visits to GPs (p = .013). Conclusion. This first evaluation of the ASMP delivered in community settings suggests that this form of health intervention is not only acceptable to older people in the UK, but can offer considerable benefits in terms of arthritis self-efficacy, increased use of self-management strategies such as exercise, a reduction in pain and improved psychological well-being.
    No preview · Article · Jun 2011 · British Journal of Health Psychology
  • L A Cullen · J H Barlow

    No preview · Article · Mar 2010 · Focus on Alternative and Complementary Therapies
  • S P Freeman · J H Barlow · A P Turner

    No preview · Article · Mar 2010 · Focus on Alternative and Complementary Therapies
  • A Cheshire · LA Cullen · JH Barlow

    No preview · Article · Mar 2010 · Focus on Alternative and Complementary Therapies
  • K E Essex · L A Cullen · J H Barlow

    No preview · Article · Mar 2010 · Focus on Alternative and Complementary Therapies
  • Anna Cheshire · Julie H Barlow · Lesley A Powell
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    ABSTRACT: Parents of children with cerebral palsy (CP) may be at risk from poor psychosocial well-being, compared with parents of children without a long-term health condition (LTHC). However, research has produced some conflicting findings on the topic and no comparison studies have been conducted in the UK. Furthermore, studies have only used measures of negative psychosocial well-being. The aim of this study was to conduct a comparative study of parents of children with CP and parents of children without a LTHC in the UK. Seventy parents of children with CP and 70 parents of children without a LTHC completed self-administered questionnaires, comprising measures of psychosocial distress and positive psychosocial well-being. This study demonstrated that parents of children with CP have significantly poorer psychosocial well-being compared with parents of children without a LTHC: parents of children with CP had lower satisfaction with life and higher levels of anxious and depressed mood. These results suggest caring for a child with CP may put parents at risk from poor psychosocial well-being. Interventions to improve parental well-being are urgently needed.
    No preview · Article · Feb 2010 · Disability and Rehabilitation
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    ABSTRACT: To assess the cost effectiveness of a self management programme plus education booklet for arthritis in primary care. Cost effectiveness and cost utility analysis from health and social care and societal perspectives alongside a randomised controlled trial. 74 general practices in the United Kingdom. 812 patients aged 50 or more with osteoarthritis of the hips or knees, or both, and pain or disability, or both. Randomisation to either six sessions of an arthritis self management programme plus an education booklet (intervention group) or the education booklet alone (standard care control group). Total health and social care costs and total societal costs at 12 months; cost effectiveness (incremental cost effectiveness ratios and cost effectiveness acceptability curves) on basis of quality of life (SF-36, primary outcome measure), EuroQol visual analogue scale, and quality adjusted life years (QALYs). At 12 months health and social care costs in the intervention group were pound101 higher (95% confidence interval pound3 to pound176) than those in the control group because the additional costs of the arthritis self management programme did not seem to be fully offset by savings elsewhere. There were no significant differences in societal costs (which were up to 13 times the size of health and social care costs) or any of the outcomes. From the health and social care perspective the intervention was dominated by the control on the basis of QALYs (which were non-significantly lower in the intervention group) and had incremental cost effectiveness ratios between pound279 and pound13 473 for the other outcomes. From the societal perspective the intervention seemed superior to the control owing to non-significantly lower costs and non-significantly better outcomes on all measures except QALYs. Probabilities of the arthritis self management programme's cost effectiveness ranged between 12% and 97% (for thresholds ranging pound0 to pound1000) based on one point improvements in SF-36 outcomes, but the clinical significance of this is debatable. Probabilities of cost effectiveness on the basis of the visual analogue scale and QALYs were low. Cost effectiveness of an arthritis self management programme is not suggested on the basis of current National Institute for Health and Clinical Excellence cost perspectives and QALY thresholds. The probability of cost effectiveness is greater when broader costs and other quality of life outcomes are considered. These results suggest that the cost effectiveness of the Department of Health's expert patients programme cannot be assumed across all clinical conditions and that further rigorous evaluations for other conditions may be needed. Current Controlled Trials ISRCTN79115352.
    Full-text · Article · Sep 2009 · BMJ (online)

  • No preview · Article · Jul 2009 · Journal of Interprofessional Care
  • J H Barlow · AP Turner · M Gilchrist
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    ABSTRACT: There are increasing opportunities for MI patients to attend lay-led, community based generic self-management programmes via self-referral. To determine the effectiveness of the Expert Patient Programme (EPP) for MI patients who had completed CR using a randomised controlled, wait-list design, with a nested qualitative study. The Intervention Group attends the EPP immediately after completing the baseline assessment; The Control Group had the opportunity to attend the EPP after completion of the 4-month follow-up. 192 MI patients (72% men) completed baseline assessment; 162 responded at follow-up. Telephone interviews were conducted with 10 male and 9 female Intervention group participants. Intention-to-treat analysis revealed no statistically significant differences between the groups although a pattern of small improvements among the Intervention Group was observed over time. Interviews revealed that Intervention Group participants viewed CR as being more about instruction whereas the EPP was viewed as being more about discussion, mutual support, and goal setting. A gender difference emerged whereby male participants valued information exchange whereas female participants expressed a preference for emotional support and social interaction within the EPP context. The EPP appears to hold few benefits for MI patients who have attended CR.
    No preview · Article · Apr 2009 · European Journal of Cardiovascular Nursing
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    ABSTRACT: Objectives: To develop, pilot, refine and reassess an education day presented by a rheumatology multidisciplinary team (MDT) for recently diagnosed (less than six months) rheumatoid arthritis (RA) patients and their partners/carers.Methods: A patient education day was developed drawing on an assessment of local patient educational needs and preferences and input from a rheumatology MDT. Feedback from the first education day (2004) (Day 1; 12 patients; age range 19–63 years (median 46); 10 of whom were accompanied by a partner) informed the development of a second education day (2005) (Day 2; 19 patients; age range 36–75 years (median 57.5); 13 of whom were accompanied by a partner). Participants completed evaluation forms on both days and at follow-up between six and seven weeks later, rating each session on a 5-point scale on dimensions of ‘informative’, ‘useful’, ‘interesting’ and ‘enjoyable’. A global rating of the day's ‘usefulness’ was completed at the end of each day on a 10-point scale. Participants were asked to write comments on each session and on aspects of the entire day. RA knowledge, and general and RA-specific self-efficacy were also measured on day 2 (and at follow-up) using the 12-item Patient Knowledge Questionnaire, the 10-item generalized self-efficacy scale and a four-item RA-specific self-efficacy scale. Both qualitative and quantitative methodologies were used in the analysis.Results: Ratings for individual sessions were all high, with no session being rated below 4 out of 5 (1 = ‘totally disagree’ to 5 = ‘totally agree’) on both days. The majority of patients (84%) and their partners (57%) responded to the follow-up. Many had used the information package distributed on the day. Some patients and their partners reported positive changes in RA management. Although patient knowledge did not increase significantly (medians 11 at both time points, p = 0.054) (Day 2), RA self-efficacy improved (baseline 11 and 14, respectively), suggesting that patients were more confident in managing their condition (p = 0.010).Conclusions: The development of this ‘local’ education and information intervention was carried out in line with Medical Research Council guidelines, and the lessons learned from Day 1 informed further development for Day 2. A one-day format for education of early RA involving the rheumatology MDT was rated highly by participants and warrants further examination. Although this study was a small ‘local’ intervention, its strengths are that it informs the possibility of wider developments of this kind using a MDT. Copyright © 2008 John Wiley & Sons, Ltd.
    No preview · Article · Mar 2009 · Musculoskeletal Care
  • Julie Helen Barlow · Jenny Hainsworth · Stephen Thornton
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    ABSTRACT: Objective: To document women's experiences of admission to hospital with a pregnancy‐related complication, hypertension, from their own perspective. Methods: Qualitative descriptive study. The views of 12 women admitted to hospital with hypertension were obtained through semi‐structured interviews. Issues explored included understanding of the condition, information needs, expectations and beliefs. Results: Women were searching for an explanation to help make sense of their situation. Some women were faced with the paradox of being admitted to hospital (thus indicating a problem) in the absence of any symptoms, such as swelling. This resulted in women feeling that they were frauds and not deserving of a hospital bed. Some women also felt that bed rest and medication could be done at home particularly as they ‘felt fine’. Women experienced a roller coaster of emotional highs and lows depending upon the latest information given to them by staff particularly concerning likely discharge date. Upward and downward social comparisons were evident as women observed others being delivered of a healthy baby or lacking adequate support. Most women had satisfactory social support form husbands/partners and family. Conclusions: Women could be assisted in their search for meaning by affirmation concerning their status as worthy of hospital care, provision of consistent information, and satisfactory social support.
    No preview · Article · Aug 2008 · Journal of Reproductive and Infant Psychology
  • Rhiannon G Edwards · Julie H Barlow · Andrew P Turner
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    ABSTRACT: The aim of this qualitative study was to examine patients' experiences of being diagnosed with multiple sclerosis (MS), the information that they were given at this time, subsequent treatment and its impact on their lives. Data were collected through semi-structured interviews with 24 people with MS. The use of interviews allowed participants' experiences to be explored in depth. Participants were recruited by the MS Society through membership details and through a press release in a local newspaper. Telephone interviews lasted between 30 and 60 minutes, were tape-recorded and transcribed verbatim. Data were analysed using thematic content analysis. The majority of participants were female (n = 17), with ages ranging from 35 to 72 years. Disease duration ranged from 1 to 37 years. Many participants' diagnosed before and after 2000 had experienced long delays in diagnosis. At the point of diagnosis, participants had to make sense of and understand their diagnosis often with insufficient support. Some participants expressed anger about the way they had been given their diagnosis. Many felt they had not received sufficient information about their illness at this time and had responded by conducting their own searches for information to satisfy this need. Improving the way in which doctors communicate with patients experiencing diagnostic delay and at the point of diagnosis deserves further study, in order to avoid later adjustment problems.
    No preview · Article · Jul 2008 · Journal of Evaluation in Clinical Practice
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    ABSTRACT: The Self-efficacy of Job-seeking Skills (SJS) scale was used to explore the influence of self-efficacy among persons with disabilities toward seeking employment. The development of the SJS scale was based on the Job-seeking Self-efficacy scale and the Managing Disability at Interview scale (Barlow, Wright, & Cullen, 2002). A sample of 577 persons with disabilities, who attended an in-service orientation at a public vocational rehabilitation service provider in the Mid-Atlantic region of the U.S., completed the SJS. Principal axis factoring yielded an 18-item SJS scale with three factors representing the subscales of Independence Skills, Social Skills, and Interview Management Skills.
    No preview · Article · Jul 2008 · Journal of rehabilitation
  • Maria Fotiadou · J H Barlow · L A Powell · H Langton
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    ABSTRACT: To identify the characteristics of optimistic parents of children with cancer. To examine the relationship between optimism, anxiety, depression, life satisfaction, coping and subjective health perception in parents of children with cancer and parents of healthy children. One hundred parents of children with cancer were recruited during attendance at Oncology Out-patient Clinics at a UK Regional Cancer Centre. A comparison group of 117 parents of healthy children was also recruited. All parents completed a questionnaire, providing demographic and medical information relating to the child, dispositional optimism, psychological distress, life satisfaction, coping and subjective health perception. Parents of children with cancer had higher levels of anxiety, depression, optimism, satisfaction with life and subjective health perception than the comparison group. Optimism was significantly correlated with satisfaction with life, subjective health perception, anxiety and depression in both groups. The findings highlight the importance of optimism in relationship to psychological distress in parents of children with cancer. Interventions targeting parents' optimism are recommended as a potential source of coping with adversity within this population.
    No preview · Article · Apr 2008 · Psycho-Oncology
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    ABSTRACT: The Training and Support Program (TSP) was designed to equip parents of children with disabilities with a simple massage skill for use with their children in the home environment. The effectiveness of the TSP was examined in a randomized controlled trial with a wait-list control group. Parents were trained in massage by suitably qualified therapists in eight weekly sessions, each lasting 1 h. The sample comprised 188 parents who were randomized to an intervention group (n=95), who attended the TSP with their children immediately, or a control group (n=93), who were offered the TSP after 4 months of follow-up. Data were collected by self-administered questionnaires at baseline and at 4-month follow-up. The majority of participants were mothers (88%), with a partner (88%), and White European (82%); 40% worked full-time or part-time, and 34% had health problems (e.g., chronic fatigue, cancer, and arthritis). The TSP demonstrated statistically significant positive effects on parental self-efficacy (PSE) for managing children's psychosocial well-being and depressed mood (0.004 and 0.007). There were trends toward improvement on parental satisfaction with life (P=.053), global health (P=.065), and parental ratings of children's sleeping (P=.074) and mobility (P=.012). Effect sizes were small (0.11-0.23). Levels of anxiety, depression, and perceived stress were all higher than published norms. The TSP is an effective means of improving PSE and depressed mood. Additional means of supporting parents need to be investigated.
    No preview · Article · Feb 2008 · Journal of Psychosomatic Research
  • Julie H Barlow · Jacqueline Stapley · David R Ellard
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    ABSTRACT: The aim of this qualitative descriptive study was to describe the experience of living with bleeding disorders and to identify the associated salient issues from the perspectives of people living with haemophilia or von Willebrand's Disease (vWD). Nine members of The Haemophilia Society took part in a semi-structured interview. The interviews were tape recorded and transcribed and the results subjected to thematic content analysis. Participants described the physical aspects of their condition, such as bleeding into joints, the implications of bleeds and development of co-morbid conditions (e.g. arthritis). Many felt that their bleeding disorder had impacted on their education, work, social activities and family life. Anxiety and depression were associated with daily management of symptoms, the unpredictable nature of bleeding disorders and concerns about the future. All participants had encountered a degree of stigmatisation related to their condition and felt that there was a public misconception about bleeding disorders. Many had experienced discrimination in educational and work settings. Some participants expressed a preference for seeking treatment from specialist services. Living with haemophilia and vWD poses a number of daily and longer-term challenges not only for individuals, but also for their families. Further investigation of ways to support such individuals is warranted. Greater awareness and understanding of the issues faced by people living with haemophilia and vWD is needed for the general public, employers, and healthcare staff, particularly those working in Accident and Emergency Departments.
    No preview · Article · Dec 2007 · Patient Education and Counseling
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    ABSTRACT: The psychosocial impact of 'late' deafness in adults has received little research attention. The aim of this study was to examine the views of people with experience of late deafness living in the UK. Eight participants (six male; age range 33 to 60) were interviewed by a researcher who had undergone appropriate communication skills training. In-depth, face-to-face, semi-structured interviews were conducted and transcribed. Data were analysed using framework analysis to identify themes. Becoming deafened was a devastating experience for many participants who experienced severe psychological, social, and employment consequences. They no longer felt they belonged in the hearing world, and neither did they belong in the prelingually deaf world. Onset of deafness had left them in a twilight zone between worlds and had robbed them of their identity. Whilst the support received from health and social care professionals was mixed, all participants valued the peer support and training received on an intensive rehabilitation programme delivered by deafened people. Findings provide insight into deafened peoples' psychosocial experiences and emphasize the need for support and advice.
    No preview · Article · Sep 2007 · International Journal of Audiology
  • A.P. Turner · C.L. Hammond · M. Gilchrist · J. H. Barlow
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    ABSTRACT: Growing numbers of university students are reporting mental health problems and using counselling services. The purpose of this study was to examine Coventry University students’ experience of mental health problems. The Department of Health (DoH) Mental Health Survey questionnaire (2003) was used to examine the experience of mental health problems and help seeking behaviour. Within the last 12 months nearly three quarters of students had experienced anxious or depressed moods, or, personal, mental, nervous or emotional problems, with a third of students failing to seek help. Ethnic minority students were more likely to report problems and less likely to seek help when compared to white students. Male students were less likely to seek help compared to female students. There are few existing studies that have focused on the mental health of students at universities established after 1992 from existing polytechnics. Coventry University exceeds the Government benchmark targets for recruiting students from non-traditional backgrounds. Our results show that it is these groups of students who are more likely to experience mental health problems.
    No preview · Article · Sep 2007 · Counselling Psychology Quarterly
  • L. A. Powell · J. H. Barlow
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    ABSTRACT: The aim of the study was to assess the Training and Support Programme (TSP) among parents of children with ataxia. Twenty-seven parents and their children completed the TSP. Data were collected by home record sheets and observation sheets completed by parents and therapists, respectively, and telephone interviews with 10 parents. Benefits reported included improvements in children's stiffness, 'jumping legs', agitation, energy and activity levels, circulation, balance, eating, non-verbal communication, relaxation and happiness. One parent had become 'more accepting' of their child's ataxia. Several families attended the TSP in one location. This facilitated the development of a 'social network' of similar families caring for children with ataxia. A randomised controlled trial would be necessary to determine whether the changes reported here are in fact due to attending the TSP. Such a study would benefit from the inclusion of children as active participants in the research process.
    No preview · Article · Jun 2007 · Early Child Development and Care
  • J H Barlow · J Stapley · D R Ellard · M Gilchrist
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    ABSTRACT: The aim of the study was to conduct a survey of information and self-management needs among members of the UK Haemophilia Society (HS). Of 1082 members mailed, 307 took part in the survey, the mean age was 52.4 years (SD 14.8), 85% were male, 96% white and 66% were living with haemophilia A. 90% felt that there is a lack of understanding amongst the public regarding bleeding disorders, 76% felt that health professionals understood their health and information needs and 32% had experienced problems managing anxiety and or depression. Results suggest that there was a 'stigma' attached to having a bleeding disorder and almost half are very careful about informing others that they have a bleeding disorder. Self-efficacy was relatively high within the sample. Many respondents wanted to be kept informed about current research and the opportunity to participate in research. Women experienced a greater need for more information than men, particularly in the area of the 'medical management' and 'emotional' topics. Men appeared to need more information and or training on 'physical' aspects such as physiotherapy and joint replacement. The study provides an insight into the educational and self-management needs of those affected by bleeding disorders and highlights the importance of providing accessible information.
    No preview · Article · Jun 2007 · Haemophilia