Online Support Groups for Parkinson's Patients

Stanford University, Stanford, California, United States
Social Work in Health Care (Impact Factor: 0.62). 02/2005; 42(2):23-38. DOI: 10.1300/J010v42n02_02
Source: PubMed


(A) Will PD patients participate in online, professionally led support groups? (B) What are their demographics characteristics and PD severity? (C) Are such groups beneficial? (D) Should patients be grouped for stage of disease? Depression and quality of life were assessed. Sixty-six people were assigned to a 20-week, professionally facilitated online support group. Participants were assigned to one of 2 group types based on patient similarity: homogeneous and heterogeneous. PD patients appear to readily enroll in online groups. Compared to PD patients in traditional support groups, the online were younger, less depressed and had higher quality of life. Dropouts (39%) were high. Overall, patients showed improved quality of life; no overall changes were observed in depression. Participants in the homogenous groups reported a significant decrease in depression.

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Available from: Morton Lieberman, Jan 19, 2015
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    • "Because automated depression screening and monitoring technology is emerging, little is known about patients' acceptance of it. Related studies of connected health technologies[42], including those focused on depression care[37,434445464748495051525354, uncritically regard acceptance as patient satisfaction with care, which tells us little about why patients accept or reject the technology or how system design features affect patient acceptance. This study is significant in the connected health literature for depression care in that it utilizes measures from the literature of user acceptance of new technologies[11,55,56]. "
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    ABSTRACT: Background: Remote patient monitoring is increasingly integrated into health care delivery to expand access and increase effectiveness. Automation can add efficiency to remote monitoring, but patient acceptance of automated tools is critical for success. From 2010 to 2013, the Diabetes-Depression Care-management Adoption Trial (DCAT)–a quasi-experimental comparative effectiveness research trial aimed at accelerating the adoption of collaborative depression care in a safety-net health care system–tested a fully automated telephonic assessment (ATA) depression monitoring system serving low-income patients with diabetes. Objective: The aim of this study was to determine patient acceptance of ATA calls over time, and to identify factors predicting long-term patient acceptance of ATA calls. Methods: We conducted two analyses using data from the DCAT technology-facilitated care arm, in which for 12 months the ATA system periodically assessed depression symptoms, monitored treatment adherence, prompted self-care behaviors, and inquired about patients’ needs for provider contact. Patients received assessments at 6, 12, and 18 months using Likert-scale measures of willingness to use ATA calls, preferred mode of reach, perceived ease of use, usefulness, nonintrusiveness, privacy/security, and long-term usefulness. For the first analysis (patient acceptance over time), we computed descriptive statistics of these measures. In the second analysis (predictive factors), we collapsed patients into two groups: those reporting “high” versus “low” willingness to use ATA calls. To compare them, we used independent t tests for continuous variables and Pearson chi-square tests for categorical variables. Next, we jointly entered independent factors found to be significantly associated with 18-month willingness to use ATA calls at the univariate level into a logistic regression model with backward selection to identify predictive factors. We performed a final logistic regression model with the identified significant predictive factors and reported the odds ratio estimates and 95% confidence intervals. Results: At 6 and 12 months, respectively, 89.6% (69/77) and 63.7% (49/77) of patients “agreed” or “strongly agreed” that they would be willing to use ATA calls in the future. At 18 months, 51.0% (64/125) of patients perceived ATA calls as useful and 59.7% (46/77) were willing to use the technology. Moreover, in the first 6 months, most patients reported that ATA calls felt private/secure (75.9%, 82/108) and were easy to use (86.2%, 94/109), useful (65.1%, 71/109), and nonintrusive (87.2%, 95/109). Perceived usefulness, however, decreased to 54.1% (59/109) in the second 6 months of the trial. Factors predicting willingness to use ATA calls at the 18-month follow-up were perceived privacy/security and long-term perceived usefulness of ATA calls. No patient characteristics were significant predictors of long-term acceptance. Conclusions: In the short term, patients are generally accepting of ATA calls for depression monitoring, with ATA call design and the care management intervention being primary factors influencing patient acceptance. Acceptance over the long term requires that the system be perceived as private/secure, and that it be constantly useful for patients’ needs of awareness of feelings, self-care reminders, and connectivity with health care providers.
    Full-text · Article · Jan 2016
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    • "Of particular concern are the articles related to online chat as a format. Of the nine articles reviewed, seven were therapist-led group interventions using chat rooms (Gollings & Paxton, 2006; Harvey-Berino et al., 2002; Harvey- Berino, Pintauro, Buzzell, & Gold, 2004; Hopps, Pépin, & Boisvert, 2003; Lieberman et al., 2005; Woodruff, Edwards, Conway, & Elliott, 2001; Zabinski, Wilfley, Calfas, Winzelberg, & Taylor, 2004). Of the remaining two studies, one was a combination of chat support, rather than counseling, accompanied by a self-help website (Hasson, Anderberg, Theorell, & Arnetz, 2005). "
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    ABSTRACT: Online interventions are increasingly seen as having the potential to meet the growing demand for mental health services. However, with the burgeoning of services provided online by psychologists, counselors, and social workers, it is becoming critical to ensure that the interventions provided are supported by research evidence. This article reviews evidence for the effectiveness of individual synchronous online chat counseling and therapy (referred to as “online chat”). Despite using inclusive review criteria, only six relevant studies were found. They showed that although there is emerging evidence supporting the use of online chat, the overall quality of the studies is poor, including few randomized control trials (RCTs). There is an urgent need for further research to support the widespread implementation of this form of mental health service delivery.
    Full-text · Article · Jan 2013 · Journal of Technology in Human Services
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    • "); in einer anderen Studie wirkte sich die Nutzung von professionell angeleiteten Diskussionsforen bei M.-Parkinson-Patienten positiv auf die Lebensqualität aus (Lieberman et al. 2005). "
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    ABSTRACT: Background Currently a multitude of Internet-based intervention (IBI) programs exist for various disorders. These programs generally have the potential to reach a wide spectrum of the low threshold population and encourage them to play a more active role in managing individual healthcare. How effective are disorder and problem-specific IBI programs? This review aims to give a systematic overview of controlled evaluation studies available to date and contrast them with the state of research in 2003 (Ott 2003). Method References were analyzed in three steps: 1. Research in pertinent international scientific databases using specified keywords (result: more than 1,000 publications since 2003). 2. Selection: exclusion of publications which did not contain empirical evidence of effectiveness (with control group design) (result: 89 studies published between 2003 and 2009 as opposed to 30 up to 2003). 3. Systemization: classification of the analyzed studies based on two dimensions (type of syndrome, function of intervention). Results In most of the studies on hand (91.0%) the effectiveness of IBI could be confirmed. Among the methods used cognitive behavioral methods (cognitive, behavioral therapy, CBT) were used almost exclusively. In nearly three quarters of all studies (71.9%), IBI procedures were used for treatment. The remaining studies were on prevention (19.1%) and rehabilitation (9.0%). Conclusion Evaluation studies of IBIs are now available, particularly for anxiety disorders, depression, posttraumatic stress disorder, eating disorders including adiposity, substance-related and behavioral medical disorders, psychological problems related to physical illnesses, compulsive gambling and burnout. For each type of disorder, exemplary programs are described. Subsequently the methodical limitations of several of the studies are pointed out.
    Full-text · Article · Jan 2011 · Psychotherapeut
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