Living with Heart Failure; Patient and Carer Perspectives

ArticleinEuropean Journal of Cardiovascular Nursing 6(4):273-9 · January 2008with59 Reads
DOI: 10.1016/j.ejcnurse.2007.01.097 · Source: PubMed
Abstract
Patients with heart failure have multiple readmissions to hospital, a poor prognosis and varying quality of life. This paper explores how patients with heart failure and their family carers cope with daily life. 36 patients and 20 family caregivers were interviewed in five centres in the UK. Analysis showed that living with heart failure can be frightening, restrictive and distressing for both patients and their family carers. Patients found most difficulty coping with functional limitation and adapting to living with heart failure, but also reported particular problems due to side effects of medications, co-morbidities and a lack of psychosocial support and rehabilitation services. Those with less socio-economic resources found it harder to cope. Patients from minority ethnic groups held different beliefs about the illness and its treatment, and some had profound problems communicating with health and social care professionals that made managing the disease even more difficult. Caring for a person with heart failure often has a considerable impact on the psychological and physical health of family caregivers. Psychosocial support and rehabilitation services provided at diagnosis and after an acute episode would enable families to better manage living with this syndrome.
    • "However, treatment strategies for depressive symptoms in patients with HF still remain to be established [3,4]. HF has an unpredictable trajectory with disturbing and limiting symptoms that frequently change, leading to a shift between good and bad days [5] and with a constant risk of hospitalization or death [6,7]. Patients with HF may therefore be prone to developing negative thoughts, rumination, and feelings of hopelessness about loss of health and independence and an uncertain future [8], and this can lead to the development of depression.[9,10]. "
    Full-text · Article · Aug 2016
    • "Nurses involved in the care of heart failure patients have an important role as they interact with and care for both the patient and family members across a continuum of care from acute treatment, rehabilitation, and outpatient care (Kang et al., 2011; Pattenden, Roberts, & Lewin, 2007; Usher & Cammarata, 2009). In an early study which included random assignment, Strömberg and colleagues (2003) found that a nurse-led heart failure clinic which provided heart failure education and psychosocial support to the patient and family resulted in improved survival and self-care behaviors and reduction in the number of illness events, readmissions, and days in hospital compared with a control group. "
    [Show abstract] [Hide abstract] ABSTRACT: As part of the Heart Failure Family Trial presently being conducted in Denmark, this qualitative process evaluation explored the perceptions of seven practicing cardiac nurses who offered family nursing therapeutic conversations (FNTC) to families in three heart failure outpatient clinics. FNTC were guided by the Calgary Family Assessment and Intervention Models. Data consisted of 34 case reports written by the nurses which documented the use of FNTC, including family responses to the FNTC. A focus group interview with the six of the nurses about their experience of offering FNTC was also conducted. Content analysis was performed using a combined deductive and inductive process. Nurses reported developing a distinct, closer, and more constructive relationship with the patients and their families and reported FNTC increased family bonding and strengthened family relationships. The nurses considered FNTC to be feasible interventions in the routine care provided in heart failure outpatient clinics.
    Full-text · Article · May 2016
    • "Acceptance of the disease and adaptation to the new lifestyle in order to achieve self-care are important principles for individuals to know their own health and have choices and attitudes in their daily lives that favor treatment of the disease and reduce the symptoms of HF exacerbation (fatigue, dyspnea, edema, etc.). Therefore, effective health management is assumed to be the result of an adaptation process, as proposed by Roy's adaptation theory (Holguín, Rodríguez, Los Ángeles, Higuita, & Lina, 2012; Pattenden, Roberts, & Lewin, 2007; Roy, 1995). For an individual to adapt to the new lifestyle, there must be daily behavioral changes (e.g., preparing low-sodium food, buying natural instead of industrialized food); a favorable context is necessary, including adequate knowledge and support. "
    [Show abstract] [Hide abstract] ABSTRACT: Objective: To construct conceptual and operational definitions for the defining characteristics (DCs) and related factors (RFs) of the nursing diagnosis (ND) ineffective health management for people with chronic heart failure. Method: Conceptual and operational definitions for the DC and RF were based on studies found in an integrative literature review in the databases Latin American Literature in Health Sciences, Cumulative Index to Nursing and Allied Health Literature, and MEDLINE by using the key words Nursing diagnosis, Heart Failure, and Patient Cooperation in different combinations. Results: Conceptual and operational definitions for all the DCs and RFs were constructed. Conclusions and implications for practice: The definitions will facilitate in the identification of ND in clinical practice in patients with heart failure, future research on ND validation, and education in undergraduate courses.
    Full-text · Article · Nov 2015
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