Fertility and Pregnancy: Common Concerns of the Aging Cystic Fibrosis Population

ArticleinClinics in Chest Medicine 28(2):433-43 · July 2007with21 Reads
DOI: 10.1016/j.ccm.2007.02.009 · Source: PubMed
Abstract
Due to dramatically improved survival, cystic fibrosis (CF) is now considered a chronic disease of adults. Many men and women who have CF are interested in starting families and have questions regarding fertility and pregnancy, making discussion of these issues important in routine CF care. This article addresses key issues of fertility in men and women who have CF and discusses pregnancy, including maternal and fetal outcomes, highlighting advances over the last decade.
    • "A chronic disease may affect physical and/orTable 2 Important topics in reproductive and sexual health in CF. Sexual development, puberty delay [2,3,1617181920 Semen analysis, small volume ejaculation [2,15,20] Infertility [2,3,14,15,19202122 Menstrual cycle [3,8,17,19,20,23] Condom use–prevention of STDs–birth control [ psychological well-being and therefore indirectly affect sexual behavior. This model is comprehensive and provides an excellent framework for CF research on how CF affects sexual functioning and sexual well-being. "
    [Show abstract] [Hide abstract] ABSTRACT: This review evaluated research concerning communication and information about reproductive and sexual health (RSH) in cystic fibrosis (CF). Papers in the English language reporting RSH issues in CF, published between January 2000 and December 2010, were included. The review focused on (a) the content of information given to parents and patients, (b) the timing of information, (c) the sources of information, (d) attitudes and emotional reactions, (e) chronic illness and sexual behavior, (f) methodological and cultural considerations and (g) ethical considerations. Eleven papers were identified originating from Australia, the United Kingdom and Poland. Patients and parents expressed the need for up-to-date, CF-related verbal and written information, provided by the CF team and infertility specialists. Patients were often embarrassed to initiate a discussion. Health care providers expressed the need for training to counsel patients in RSH. A pro-active discussion of RSH issues is proposed as a standard part of the care-pathway. A list of recommendations is given to initiate this process.
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