Development and Validation of the Collaborative Parent Involvement Scale for Youths with Type 1 Diabetes

Division of Epidemiology, Statistics and Prevention Research, Eunice Kennedy Shriver National Institute of Child Health and Human Development, NIH, Bethesda, MD 20892-7510, USA.
Journal of Pediatric Psychology (Impact Factor: 2.91). 07/2008; 34(1):30-40. DOI: 10.1093/jpepsy/jsn058
Source: PubMed


To develop and test a youth-report measure of collaborative parent involvement in type 1 diabetes management.
Initial item development and testing were conducted with 81 youths; scale refinement and validation were conducted with 122 youths from four geographic regions. Descriptive statistics, Cronbach's alpha, and factor analyses were conducted to select items comprising the scale. Correlations with parenting style and parent diabetes responsibility were examined. Multiple regression analyses examining associations with quality of life, adherence, and glycemic control were conducted to assess concurrent validity.
The measure demonstrated strong internal consistency. It was modestly associated with parenting style, but not with parent responsibility for diabetes management. A consistent pattern of associations with quality of life and adherence provide support for the measure's concurrent validity.
This brief youth-report measure of parent collaborative involvement assesses a unique dimension of parent involvement in diabetes management associated with important youth outcomes.

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Available from: Tonja Nansel
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    • "We expected joint decision-making behaviors to increase with age (Smetana, Campione-Barr, & Daddis, 2004). We did not expect parents' and children's tendency to seek information or opinions from each other to change with age, due to the importance of information-sharing (Miller et al., 2008) and parental involvement (Nansel et al., 2009) across development. Although not specifically hypothesized , we tested for a curvilinear relationship between all DMIS subscales and child age, given prior research regarding developmental patterns in parent–child interactions. "
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    ABSTRACT: To develop a measure of decision-making involvement in children and adolescents with cystic fibrosis, diabetes, and asthma. Parent-child dyads completed the Decision-Making Involvement Scale (DMIS) and measures of locus of control and family communication. DMIS items were subjected to exploratory and confirmatory factor analysis (CFA). Temporal stability and construct validity were assessed. The parent form was reduced to 20 items representing five factors. CFA showed that the five factors were an acceptable fit to the parent- and child-report data. Internal consistency values ranged from 0.71 to 0.91. Temporal stability was supported by moderate-substantial intraclass correlation coefficients. DMIS subscales were associated with child age, child locus of control, and family communication. The DMIS can be used to inform our understanding of the transition to greater independence for illness management. Additional research is needed to examine outcomes of decision-making involvement, including treatment adherence and responsibility.
    Full-text · Article · Dec 2011 · Journal of Pediatric Psychology
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    • "Parents tend to be less involved in diabetes care during adolescence, which can interfere with effective family management of the illness, and both adherence and glycemic control tend to deteriorate across the teen years (Anderson, Ho, Brackett, Finkelstein, & Laffel, 1997; Helgeson, Honcharuk, Becker, Escobar, & Siminerio, 2011). On the other hand, when parents are more collaboratively involved in diabetes management, their children tend to engage in more consistent self-care, exhibit less deterioration in glycemic control, and have better diabetes outcomes (Berg et al., 2008; Nansel et al., 2009; Wiebe et al., 2005). Unfortunately, as mothers vastly outnumber fathers in research participation (Phares et al., 2005), these data almost exclusively speak about the important role of mothers in diabetes management, while the role of fathers in diabetes regimen adherence and glycemic control for children about to enter adolescence is not well understood. "
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    ABSTRACT: To examine the relationship of paternal involvement in diabetes care with adherence and glycemic control. One hundred and thirty-six mothers and fathers of preadolescents (aged 9-12 years) with type 1 diabetes reported on paternal involvement. Adherence was measured by interview and blood glucose meter downloads. Mothers' and fathers' ratings of paternal involvement in diabetes care were compared. We evaluated three structural equation models linking paternal involvement with adherence and glycemic control. Mothers and fathers reported similar amounts of paternal involvement, yet mothers rated paternal involvement as more helpful. The data supported a model indicating links between more paternal involvement and higher HbA1c and between lower adherence and higher HbA1c. Mediation and moderation models were not supported. Although paternal involvement was not directly associated with treatment adherence, it was associated with poorer glycemic control. Some fathers may increase their involvement in response to suboptimal glycemic outcomes.
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    ABSTRACT: To evaluate associations among parent-child behaviors and generic and diabetes-specific health-related quality of life (HRQOL) in a multi-site sample of youth with type 1 diabetes. One hundred and twenty-one youth and their primary caregivers completed measures of parent-child behaviors, child HRQOL, and participated in an observed family interaction task. Diabetes-specific parent-child variables were associated significantly with both generic and diabetes-specific HRQOL above and beyond the contributions of demographic and generic parent-child variables, accounting for between 13% and 31% of the variance in HRQOL. Diabetes-specific family conflict and negative diabetes-specific family communication were associated with lower HRQOL. Collaborative parent involvement in diabetes care was associated with higher levels of HRQOL. Interventions that target diabetes-specific family interactions will be beneficial to the quality of life of children with type 1 diabetes.
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