"I'm Supposed to Be In Charge": Self-Advocates' Perspectives on Their Self-Determination Support Needs

Bureau of Autism Services, Pennsylvania Department of Public Welfare, USA.
Intellectual and Developmental Disabilities (Impact Factor: 1.13). 10/2011; 49(5):327-40. DOI: 10.1352/1934-9556-49.5.327
Source: PubMed


In this qualitative interview study, we explored the perceptions of adults with intellectual disability regarding interpersonal or social supports needed to express their own self-determination. Specifically, 10 adults, all members of a self-advocacy group, were asked to discuss their understanding of the term self-determination and ways in which support staff have either supported or inhibited their self-determination. Ten themes characterizing supportive and impeding staff actions were identified. The need for greater exploration of environmental and social influences on self-determination is emphasized.

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