Health Literacy and Sources of Health Information for Caregivers of Urban Children With Asthma

University of Rochester School of Medicine and Dentistry, Strong Memorial Hospital, 601 Elmwood Avenue, Rochester, NY 14642, USA.
Clinical Pediatrics (Impact Factor: 1.15). 09/2011; 51(3):267-73. DOI: 10.1177/0009922811421413
Source: PubMed


Little is known about the resources used by urban caregivers of children with asthma to obtain health information. The authors analyzed data for 304 families of children with persistent asthma to describe (1) sources of health information, (2) access and use of Internet resources, and (3) the association between the caregiver's health literacy (HL) and use of health information sources. Overall, 37% of caregivers had limited HL. Most families received health information from a health care professional (94%), written sources (51%), family/friends (42%), non-print media (34%), and the Internet (30%). Less than half of caregivers had access to the Internet at home, but 73% reported Internet use in the past year. Caregivers with adequate HL were more likely to obtain information from multiple sources and to use and have access to the Internet. The results suggest that HL is associated with where caregivers obtain health information from for their children and their use of the Internet.

Download full-text


Available from: Kelly M Conn
  • [Show abstract] [Hide abstract]
    ABSTRACT: Little is known about how pediatric providers assess parental health literacy, how concordant they are with validated measures of health literacy, and how these perceptions may influence treatment recommendations, how instructions are given or how reliable they perceive parents to be in carrying out instructions. Two hundred and eighty-one parents of 6-12-year-old asthma patients attending a pediatric clinic visit were recruited to a cross-sectional study of health literacy and asthma outcomes. Fourteen pediatric healthcare providers participated. Parents completed surveys that included 2 measures of health literacy: the Test of Function Health Literacy in Adults (TOFHLA) and the Rapid Estimate of Adult Literacy in Medicine (REALM). Immediately postvisit, pediatric providers completed a brief survey asking their assessment of the parent's health literacy and how it impacted treatment instructions and recommendations. Kappa statistics tested concordance; chi square and logistic regression tested associations among provider ratings, rating concordance, and demographic factors. Six providers were interviewed regarding the bases for their ratings. Providers' perceptions influenced asthma treatment recommendations (p=0.001) and how treatment instructions were given (p=0.001). Providers indicated that their perceptions were shaped by parent's verbal communication skills and patterns of past behavior related to children's asthma management. Data from 277 parents indicated that most had adequate health literacy with a lower percentage scored as adequate by the REALM versus the TOFHLA. Pediatric provider estimates of parental health literacy had low concordance with the validated measures. Providers were more likely to designate whites as adequately health literate. Pediatric asthma providers' perceptions of parents' health literacy can influence treatment recommendations and instructional practices.
    No preview · Article · Jun 2013 · Pediatric Allergy, Immunology, and Pulmonology
  • [Show abstract] [Hide abstract]
    ABSTRACT: Objective: To examine the concordance between parent report and electronic medical record documentation of asthma health education provided during a single clinic visit and second-hand tobacco smoke exposure among children with asthma. Methods: Parents of children with asthma were recruited from two types of clinics using different electronic medical record systems: asthma-specialty or general pediatric health department clinics. After their child's outpatient visit, parents were interviewed by trained study staff. Interview data were compared to electronic medical records for agreement in five categories of asthma health education and for the child's environmental tobacco smoke exposure. Kappa statistics were used to identify strength of agreement. Chi square and t-tests were used to examine differences between clinic types. Results: Of 255 parents participating in the study 90.6% were African American and 96.1% were female. Agreement was poor across all clinics but was higher within the asthma specialty clinics than the health department clinics for smoke exposure (κ = 0.410 versus 0.205), asthma diagnosis/disease process (κ = 0.213 versus -0.016) and devices reviewed (κ = 0.253 versus -0.089) with parents generally reporting more education provided. For the 203 children with complete medical records, 40.5% did not have any documentation regarding smoking exposure in the home and 85.2% did not have any documentation regarding exposure elsewhere. Conclusions: We found low concordance between the parent's report and the electronic medical record for smoke exposure and asthma education provided. Un- or under-documented smoke exposure and health education have the potential to affect continuity of care for pediatric patients with asthma.
    No preview · Article · Jul 2013 · Journal of Asthma
  • Source
    [Show abstract] [Hide abstract]
    ABSTRACT: A growing number of people are seeking health information on the Internet. To meet demands, healthcare providers are increasingly disseminating information online. While online health information has enhanced the dissemination of health information and improved people's health-related knowledge, critics posit that such dissemination has widened knowledge disparities in health information and health benefits as a result. Drawing on existing studies, this study identified the main causes of such disparity, namely education, health literacy, computer self-efficacy (CSE) and usage of health-related social media. The finding showed that education resided at the centre of the disparity and impacted other elements. An interesting finding is although individuals possess high levels of CSE, the efficacy does not highly impact their health benefits, meaning that computer does not directly cause health information disparity but is the tool to promote health-related knowledge disparity.
    Full-text · Article · Jan 2014 · Journal of Information & Knowledge Management
Show more