Estudio longitudinal de los parámetros de calidad de vida en pacientes oncológicos

Psicooncología: investigación y clínica biopsicosocial en oncología, ISSN 1696-7240, Nº. 2-3, 2004 (Ejemplar dedicado a: Control de Síntomas en Cáncer), pags. 191-204 01/2004; 1(2).
Source: OAI


Purpose. To realize a longitudinal quality of life evaluation in a representative sample of cancer patients by means of different instruments (semi-structured interviews, standarized questionnaires (Karnofsky Performance Status, HAD and QL-CA-AFex), registers) and by different observers (patients and doctors). Method. 101 new patients in the cancer department of Cabueñes hospital were selected consecutively. Quality of life was assessed at seven time points: baseline, start of treatment,second cycle of treatment, third cycle of treatment,end of treatment, three and six months after treatment. Results. Descriptive data and variations in quality of life over time are showed. Conclusions. Comparison of quality of life reports informed by different methods and different observers showed some discrepancies. Results showed that there are relevant parameters in each moment of illness that contributes especially to patients¿ quality of life. Objetivo. Realizar una evaluación longitudinal de los parámetros de calidad de vida en una muestra representativa de pacientes oncológicos utilizando distintos métodos (entrevistas semiestructuradas, cuestionarios estandarizados (escala de Karnofsky, HAD y QL-CAAFex), registros y distintas fuentes de información (pacientes y médicos). Método. Se seleccionaron de forma consecutiva 101 pacientes a su llegada a la Unidad de Oncología Medica del Hospital de Cabueñes. Los parámetros de calidad de vida fueron evaluados en siete ocasiones: primera visita, antes de iniciar el tratamiento, segundo ciclo de tratamiento, tercer ciclo, último ciclo, y tres y seis meses después de finalizar el tratamiento. Resultados. Se presentan los datos descriptivos y la evolución de los parámetros de calidad de vida desde el inicio de la enfermedad y a lo largo del tiempo. Conclusiones. Las valoraciones de la calidad de vida informadas por distintas fuentes de información y por distintos métodos dio lugar a algunas discrepancias. Los resultados indicaron que en cada fase o momento de la enfermedad existen unos parámetros específicos que son los que resultan relevantes para el paciente cuando valora su calidad de vida.

Download full-text


Available from: Pérez-Álvarez, Marino, Apr 24, 2014
  • Source
    [Show abstract] [Hide abstract]
    ABSTRACT: Objetivo: Describir los parámetros y los predictores de la CV un año después de finalizado el tratamiento oncológico. Método: Se evaluaron un total de 53 pacientes mediante entrevistas semiestructuradas, cuestionarios estandarizados y auto-registros cumplimentados por el paciente y el médico. Resultados: Las valoraciones generales de calidad de fueron altas. Se encontró una alta prevalencia de síntomas experimentados de forma continua como el dolor (39,6%), cansancio (37,7%), alteraciones del sueño (32,1%) y perdida de apetito (18,9%). El estado de ánimo deprimido fue referido por un 41,4% de los pacientes. Los cambios emocionales, en las actividades domésticas y en el ocio fueron los aspectos más alterados de la rutina del paciente. En las valoraciones de CV realizadas por el paciente y el médico influyeron diversas y distintas variables. Conclusiones: Las valoraciones globales de CV son puntuaciones inespecíficas mientras que son aspectos concretos y distintos en cada momento del proceso oncológico los que afectan a la CV de los pacientes y sobre los que se requerirían intervenciones específicas.
    Full-text · Article · Jan 2008 · Psicooncologia
  • [Show abstract] [Hide abstract]
    ABSTRACT: Objective: to identify which multidimensional measures for quality of life are used on palliative patients in Spain, which is their degree of conceptual and technical adequacy, and if they meet the appropriate standards of reliability, validity and responsiveness. Method: a systematic review of measuring instruments. Electronic searches were carried out with three terms: palliative care, multidimensional measures of quality of life, and quality attributes of measures (psychometrics) both in Spanish (IME and ISOC) and international databases (MEDLINE, CINAHL, Psyclnfo and EMBASE). Manual searches and reference searches were also conducted. Results: eighteen empirical articles were found relating to 5 multidimensional measures: the European Organization for Research and Treatment of Cancer. Quality of Life Questionnaire of Cancer 30, the Rotterdam Sympton Checklist, the Quality for Life-Cancer-Antonio Font Experimental, the Palliative Care Outcome Scale, and the Hebrew Rehabilitation Centre for Aged Quality of Life Index, as well as two modular scales: the Quality of Life Questionnaire-Colorectal 38 and the Quality of Life Questionnaire of Head & Neck 35. The obtained evidences with each of them did not meet the minimum recommended standards for patient-based health outcome measures. Conclusions: the Palliative Care Outcome Scale (POS) is the measurement with the best overall evaluation: its conceptual adequacy and feasibility are good but it does not attain recommended psychometric standards.
    No preview · Article · Jan 2010 · Medicina Paliativa
  • Source
    [Show abstract] [Hide abstract]
    ABSTRACT: Breast cancer is one of the oncological diseases in which health-related quality of life (HRQL) has been most studied. This is mainly due to its high incidence and survival. This paper seeks to: review published research into HRQL among women with breast cancer in Spain; analyse the characteristics of these studies; and describe the instruments used and main results reported. The databases consulted were MEDLINE, EMBASE, PsycINFO, Dialnet, IBECS, CUIDEN, ISOC and LILACS. The inclusion criteria required studies to: 1) include Spanish patients, and a breakdown of results where other types of tumours and/or women from other countries were also included; and, 2) furnish original data and measure HRQL using a purpose-designed questionnaire. The methodological quality of studies was assessed. Spain ranked midway in the European Union in terms of the number of studies conducted on the HRQL of breast cancer patients. Of the total of 133 papers published from 1993 to 2009, 25 met the inclusion criteria. Among them, only 12 were considered as having good or excellent quality. A total of 2236 women participated in the studies analysed. In descending order of frequency, the questionnaires used were the EORTC, FACT-B, QL-CA-Afex, SF-12, FLIC, RSCL and CCV. Five papers focused on validation or adaptation of questionnaires. Most papers examined HRQL in terms of type of treatment. Few differences were detected by type of chemotherapy, with the single exception of worse results among younger women treated with radiotherapy. In the short term, better results were reported for all HRQL components by women undergoing conservative rather than radical surgery. Presence of lymphedema was associated with worse HRQL. Three studies assessed differences in HRQL by patients' psychological traits. Psychosocial disorder and level of depression and anxiety, regardless of treatment or disease stage, worsened HRQL. In addition, there was a positive effect among patients who reported having a "fighting spirit" and using "denial" as a defence mechanism. One study found that breast cancer patients scored worse than did healthy women on almost all SF-12 scales. Research into health-related quality of life of breast-cancer patients is a little developed field in Spain.
    Full-text · Article · Jan 2011 · Health and Quality of Life Outcomes
Show more