ArticlePDF Available

Transgender Health -Eliminating Inequalities and Strengthening Clinician-Patient Relationships

Authors:

Abstract

This article considers healthcare experiences of transgender patients on their transition journeys. One case illuminates ways in which binary-dominance—the prevailing assumption that a person must be either male or female to be normal—is a species of cultural imperialism that can influence the quality of clinical encounters. We focus specifically on clinicians’ affective orientation toward a transgender patient and how it can influence the patient’s general and mental healthcare experience. When expressed in healthcare contexts, binary dominance exacerbates the vulnerabilities of transgender patients and reinforces trends of underservice to members of this community. Generally, clinicians tend to lack knowledge about the medical and mental health needs of transgender patients, and clinicians and office staff tend to lack cultural humility regarding the multi-dimensional challenges of being transgender in a binary-dominant society. We suggest a five-point model of foundational clinical and ethical competencies related to different patients’ transition experiences, which can help clinicians and organizations identify and eliminate binary dominance expressions from their practices and policies.
JEMH · Open Volume | 1
© 2015 Journal of Ethics in Mental Health (ISSN: 1916-2405)
A
Transgender Health - Eliminating Inequalities and
Strengthening Clinician-Patient Relationships
Christy A. Rentmeester PhD
Associate Professor of Health Policy and Ethics
Creighton University School of Medicine
Omaha, Nebraska USA
Ryan K. Sallans MA
Consultant, Diversity and Inclusion Trainer, Publisher and Author
Omaha, Nebraska USA
Key Words: clinician-patient relationship, disparities, ethics,
health justice, inequalities, physician-patient relationship, standard
of care, transgender health
The term transgender is used to characterize people whose
gender expression—the way a person communicates
their gender—is considered nontraditional for their sex
or gender and to characterize people whose gender identity—a
persons psychological identi cation of gender—is di erent from
their sex assigned at birth. Importantly, a transgender identity can
di er from a person’s sexual orientation; one can be gay, lesbian,
or heterosexual, for example, and also have a transgender identity.
In 2011, healthcare inequalities for transgender people were
acknowledged as a critical area of research by the Institute of
Medicine (Institute of Medicine of  e National Academies,
March 2011, p. 3). In 2014, the Hastings Center Report published a
supplement further documenting these inequalities and analyzing,
from an ethics point of view, some model progress in access and
healthcare infrastructure innovation (Davis & Berlinger, 2014, p.
S45). Also in 2014, the American Journal of Public Health featured
numerous articles illuminating inequalities in health status and
access to healthcare su ered by transgender patients in the United
States’s healthcare system. One of those articles issued “a call to
action” (Conron, Stewart, Reisner, & Sell, 2014, p. 970), citing risks
for suicide, depression, and violence as “commonplace” (Conron
et al., 2014, p. 970) vulnerabilities of transgender people.  e
response we contribute here is intended to problematize binary
dominance as a culturally imperialistic expression common
in clinical practices and to motivate deeper understanding of
trends of underservice by focusing on one set of clinical encounter
experiences of transgender patients.
Clinical Encounters as One Micro-
Level Support for Macro-Level
Inequalities
One important question to explore is, How can macro-level,
systems-based inequalities be addressed by focusing on micro-
level clinical encounters? First, we consider that one reason why
transgender people are vulnerable in healthcare settings is that,
for many transgender patients, pursuing, exploring, ful lling and
maintaining physical expressions of authenticity over time demands
deep personal reliance and dependence on healthcare professionals.
Second, clinical standards that promote the clinicians stance as
the one who surveys and veri es the authenticity of a transgender
persons identity are ethically problematic.  ese standards place
clinicians in positions to reinforce binary dominance and to be the
primary enforcers of this species of cultural imperialism.  ese
standards also divert clinical attention away from responding to a
P R
This article considers healthcare experiences of transgender
patients on their transition journeys. One case illuminates
ways in which binary-dominance—the prevailing
assumption that a person must be either male or female
to be normal—is a species of cultural imperialism that
can in uence the quality of clinical encounters. We focus
speci cally on clinicians’ a ective orientation toward a
transgender patient and how it can in uence the patient’s
general and mental healthcare experience. When expressed
in healthcare contexts, binary dominance exacerbates the
vulnerabilities of transgender patients and reinforces trends
of underservice to members of this community. Generally,
clinicians tend to lack knowledge about the medical and
mental health needs of transgender patients, and clinicians
and o ce sta tend to lack cultural humility regarding the
multi-dimensional challenges of being transgender in a
binary-dominant society. We suggest a  ve-point model of
foundational clinical and ethical competencies related to
di erent patients’ transition experiences, which can help
clinicians and organizations identify and eliminate binary
dominance expressions from their practices and policies.
A
JEMH · Open Volume | 2
© 2015 Journal of Ethics in Mental Health (ISSN: 1916-2405)
A
patient’s needs, generate anxiety for patients in clinical encounters,
and undermine trust and potential therapeutic capacity of the
clinician-patient relationship (WPATH). Consider the following
case as an example of some of the typical dynamics in transgender
patients’ healthcare experiences.
Aidan, a transgender male (born assigned female,
transitioning to male) is ready to start cross-sex hormones
to induce male secondary sex characteristics, but he is
having di culty  nding a physician willing to prescribe
and monitor his hormone therapy regimen. After calling
several o ces, where sta members hang up on him or
ask invasive questions about what his body looks like, he
nally  nds a willing physician who has treated transgender
patients in the past.
Ten minutes into Aidan’s  rst appointment, he quickly
begins to realize that this physician does not seem familiar
with how to start a transgender patient on hormone
therapy. The physician asks, “So, you’ve already been living
as a man?” Aidan asks why this information is relevant to
beginning a hormone regimen. The physician responds, “I’ve
read that patients seeking hormones should undergo a ‘real
life experience’ before undergoing a medical transition.
Aidan, mindful of his tone despite his growing feelings of
discomfort, politely reminds the physician that the language
of “the real life experience” does not appear in the recent
literature on transgender clinical care standards. Aidan
o ers to send the physician an article or two documenting
current clinical standards.
The physician seems taken aback by the suggestion that
his practice and protocol need updating. He states curtly,
“Look, if you don’t want to follow my advice, I’d be happy
to refer you to someone else.” Knowing that this physician
is the only one in his area willing to work with transgender
patients, Aidan says, “I’m sorry. I wasn’t trying to o end you.
I just felt like I needed to inform you about this important
change.” The physician ends the medical consult requesting
a letter from a therapist and stating that he would like to
wait three months before Aidan’s next appointment.
A number of things seem to go wrong during this clinical
encounter, some of which seem to stem from the physician’s
a ective orientation to Aidan. A ective orientation can be an
important means of expressing culturally imperialistic tendencies
in clinical contexts; in this case, the clinician’s response to Aidan’s
resistance to binary dominance is key.  is physician, for example,
is open to working with transgender patients, but he is threatened
by the patient’s knowledge, has little empathy with the cluster of
stressors Aidan must navigate in his everyday life, and his response
places Aidan in the position of having to capitulate to the advice of
someone he doesn’t trust or go without timely care. Emotionally,
Aidan may not feel like he can speak up or advocate for his health,
due to the fear of being denied care or being subject to delays.  ese
feelings might increase his anxiety, frustration, and fears. Not being
able to trust his physician, Aidan might even withhold clinically
relevant information (about depression, thoughts of suicide, fear,
anxiety, and self-injurious behaviors, for example). Aidan leaves
this clinical encounter, perhaps, feeling hopeless about getting
help with his deepest concerns.
Because many transgender patients rely on healthcare professionals
for authentic identity expression, they are particularly vulnerable
to particular experiences of medicine as an enforcer of cultural
imperialism. For example, Jacob Hale’s chapter “Tracing a Ghostly
Memory in My  roat” in “You’ve Changed” Sex Reassignment
and Personal Identity (2009) problematize use of the clinical
specialty of psychiatry as the permission-granting authority of
gender transitioning. He argues that placing psychiatry in charge
of certifying transgender patients’ needs can co-opt patients into
self- pathologization and feigning “symptoms” of pathology that
don’t correspond well to transgender patients’ actual needs. He
also argues that placing psychiatry in charge of certi cation of
need relies upon essentialist conceptions of gender that reinforce
binary-dominance.
Also, because so many health professionals lack education and
training in transgender medicine, transgender patients far too
o en are pressed into the stressful triple role of being patient,
advocate, and educator during clinical encounters like the one in
this case.  is dynamic can also be awkward and a potential source
of strain and frustration for clinicians, as it upsets “traditional
distribution of power in clinician-patient relationships, in which
clinicians wield knowledge and power and patients are ill and
objecti ed. Despite that the triple role of transgender patient-
advocate-educators during clinical encounters can be threatening
to some clinicians, it’s important to remember that patients like
Aidan are still far more vulnerable than their clinicians.
Just as this case illustrates the importance of clinicians’ a ective
orientations to transgender patients, it also illuminates micro-level
challenges of their individual clinical encounters and suggests
how macro-level inequalities in health status, access to care, and
quality of care develop and persist.
Common Inequalities
Improving clinical encounters for transgender patients  rst
requires healthcare professionals’ cultivation of awareness that
three kinds of inequalities—in health status, in access to care, and
in the quality of care received—matter for transgender patients.
Transgender community members’ self-reports consistently
suggest that health inequalities experienced by these patients are
a function of stigma from broader society expressed within clinical
settings (Poteat, German, & Kerrigan, 2013, p. 22).
Stigmatization is always morally problematic when it reinforces
cultural imperialism, and has special capacity to incur harm in
clinical settings. Stigmatization works via cultural, economic,
political, and social means (Link & Phelan, 2006, p. 528), which,
in clinical settings, is magni ed by healthcare professionals’ social
power and cultural authority. So, processes of discrimination
and marginalization extant in the broader social sphere, such as
othering, blaming and shaming” (Deacon, 2006, p. 418; Poteat
et al., 2013, p. 27) can be experienced by transgender patients as
especially poignant and damaging expressions of devaluation when
they happen in clinical settings.
“Othering” is, perhaps, most clearly de ned by the philosopher
Iris Marion Young in Justice and the Politics of Di erence (1990).
JEMH · Open Volume | 3
© 2015 Journal of Ethics in Mental Health (ISSN: 1916-2405)
A
“Othering” happens when a group “di erent from the dominant
group” is “de ned by the dominant culture as deviant” (p. 60). For
gender, “othering” is a species of stigma that works by endorsing
binary-dominant identities. It happens in clinical settings, for
example, when a clinician states that she works with patients who
are transgender men, but not with patients who are transgender
women—born assigned male at birth, transitioning to female—
as they are sometimes alleged to be “di cult” or noncompliant
(Poteat et al., 2013, p. 27). When clinicians’ a ective orientations
to transgender patients reinforce this kind of devaluation of
transgender patients, health inequalities are likely to be exacerbated.
Transgender patients who feel that they are viewed with contempt
by healthcare professionals or their o ce sta , for example, can
be unlikely to feel incentivized to return to that environment to
meet their healthcare needs.  is is one important link between
macro- and micro-level trends in healthcare service delivery for
members of transgender communities.
Health Status Inequalities
Transgender patients o en present with multiple health concerns
and critical risks including: suicide, depression, anxiety,
posttraumatic stress disorder, increased risk of being a victim
of violence, substance abuse, and sexually transmitted infections
(Conron et al., 2014, p. 970; Grant, Mottet, & Tanis, 2010, p. 1;
HealthyPeople.gov; Liu & Mustanski, 2012, p. 221; Stroumsa, 2014,
p. 32). Transgender women are at high risk for HIV infections,
and black transgender women have the highest risk for new HIV
infections (CDC, 2013). Transgender women of color are also at
the highest risk for being victims of violence (CDC, 2013; Grant,
Mottet, Tanis, Harrison, Herman, Keisling, 2011).
e risk for suicide and substance abuse are also disproportionally
high among transgender patients. According to a survey of almost
6500 transgender respondents, an alarming 41 percent reported
attempting suicide at least once in their past. If we look speci cally
at transgender youth, one study documents that nearly half of
young transgender people have seriously considered suicide and
one quarter report having made a suicide attempt (Grossman
& D’Augelli, 2007, p. 535). Twenty-six percent of transgender
adults reported using drugs or alcohol to cope with stress and
discrimination, which is higher than the general population (Grant
et al., 2010, p. 14).
Inequalities in Access to Care
e numbers just mentioned suggest the obvious need for general
medical and mental health care for transgender patients. As the
case above suggests, members of transgender communities also
experience transition-related health needs that deserve responsive,
professional care. Access to competent transition-related care and
insurance coverage for such care is scarce for this population. For
example, transgender community members are less likely than
members of the general public to have health insurance (Grant et
al., 2010, p. 8). In part, this is due to over-reliance in the United
States’s healthcare system on employer-sponsored healthcare; rates
of unemployment among transgender community members are
also high (Grant et al., 2010, p. 15). Furthermore, state and federal
policy restrictions on name changes and other legal document
amendments can exacerbate battles transgender patients have
to  ght with insurers over inclusions and exclusions of services
under a policy’s coverage.
Additionally, transgender patients are frequently denied clinical
services. Such denials can take several forms. For example, in the
experience of one of the authors (Sallans), some clinicians simply
refuse to work with transgender patients. Another expression of
an outright denial was rendered by a receptionist in a medical
o ce, who hung up on a transgender man when he asked to
schedule a pap smear. Transgender patients also experience varying
degrees of verbal abuse—ranging anywhere from rudeness to overt
harassment—in clinical o ces (Grant et al., 2010, p. 76).
Care Quality Inequalities
When transgender patients can access care, they o en receive
substandard care from a professional (Grant et al., 2010, p. 1; Poteat
et al., 2013, p. 23).  e physician in the case lacks knowledge about
transgender patients’ needs. Sadly, this lack of knowledge and
training is sometimes a function of some healthcare professionals’
negative attitudes (Dorsen, 2012, p. 18) and ambivalence (Poteat
et al., 2013, p. 25) about learning transgender medicine.
Half of transgender respondents reported having to teach their
medical professionals about how to care for them (Grant et al.,
2010, p. 6). In the case, the physician is uninformed about current
standards of care related to managing a patients hormone regimen.
Hormone care, for example, requires knowledge of appropriate
screening techniques, formulations and dosing, and monitoring
lab values over time.
Particularly complex barriers to good care arise when professionals
who do work with transgender patients overemphasize a patient’s
experience of mental illness as a strategy for undermining the
patient’s knowledge or pathologize transgender patients’ desires
(Nelson, 2012, p. 252). For example, a patient with depression
might be questioned about their “real” intent behind transitioning,
as if a persons desire for gender transition could only be rationally
explained by mental illness. For another example, a patient with a
history of eating disorders might be told that a desire to transition
is a product of their disorder and negative body image, and thus
cannot be addressed until the eating disorder is addressed. In these
cases, mental illnesses are used as diversions from addressing a
transgender patients desires about their own identity expression;
this is a fundamental way in which clinical interrogations can
undermine patients’ cultural resistance to binary dominance and
their assertions and explorations of their own conceptions of
authentic realization of what it means to inhabit their bodies.
Ironically, another neglected source of complexity regarding
barriers to good care is revealed in cases in which transgender
patients must present themselves as mentally ill (Nelson, 2012, p.
252) in order to be seen as eligible for transition-related services.
ose unwilling to do so might go without care rather than
capitulate to presenting themselves as mentally ill. So the irony
here, and another byproduct of binary dominance as an expression
JEMH · Open Volume | 4
© 2015 Journal of Ethics in Mental Health (ISSN: 1916-2405)
A
of cultural imperialism, is that transgender patients are pressed
into situations in which they must feign a mental illness they
don’t have while their real mental health issues go unrecognized
and untreated.
Additionally, some transgender patients might feel that they need
to be selective and careful about the information they disclose
to clinicians about their identities. For example, clinicians who
judge transgender patients’ desires to change their physical gender
expressions can sometime impose their own ideas of what it
means to be a man or woman or what it means to assume men’s
or women’s roles. As a result, transgender patients can feel pushed
into  tting the labels, constructs, and categories as assumed (rightly
or wrongly) by their clinicians. Speci cally, a transgender patient
who wants to express some of the physical characteristics of an
anatomically typical male, such as facial hair, a more squared jaw,
and prominent shoulders, might not be interested in expressing
all of the physical characteristics of an anatomically typical male,
such as having a penis. Such a patient needs hormones, but
not lower surgery. Clinicians trapped in the cultural norm of
binary-dominant thinking will be ill equipped to be responsive
to transgender patients.  e variations of gender expression are
numerous, and many clinicians have never been prepared to think
of these variations before in their professional preparation and
training.
Resisting Cultural Imperialism in
Clinician-Patient Relationships
ough little is known empirically about how discrimination
functions in clinical encounters (Poteat et al., 2013, p. 23), the case
above suggests the multi-dimensional challenges Aidan faces as a
transgender person in a socially and culturally binary-dominant
society. Healthcare professionals’ lack of knowledge, sex and
gender labeling, and a lack of cultural humility, for example, are
three important byproducts of binary dominance and expressions
of cultural imperialism related to gender in society-at-large that
importantly in uence the nature and quality of transgender
patients’ clinical experiences. Transgender patients will have a
sense of the care they will be provided at a clinic immediately when
they walk through the o ce doors. ey will be assessing how they
are treated by the front-desk sta , the presence of gender neutral
or gender segregated restrooms, and how questions are worded
on patient intake forms. Speci cally, forms that reinforce “Male-
Only” and “Female-Only” sections reiterate binary-dominance,
as do forms that have places only to mark whether you are
“male” or “female.”  ese features of the clinical environment
express whether and how aware, knowledgeable, and respectful a
healthcare institution is about transgender patients’ needs.
Social and Cultural Situatedness of
Clinical Encounters
Binary dominance in the broader society and culture is expressed as
imperialistic in numerous ways, but two of substantial importance
have to do with common policies and our everyday environments,
both of which are created by and sustained as macro-level social
and cultural structures. First, government policy restrictions on
name changes and other legal document amendments sustain
structural barriers that disproportionately harm transgender
community members. Such policies limit a transgender persons’
moral and legal agency and abilities to direct and exercise control
over their own futures and life paths.
Second, media representations of transgender people and their lives
far too o en endorse public ignorance about the concept around
being transgender and reinforce harmful stories and stereotypes
about transgender people. Misrepresentations are harmful when
they negatively bias our perceptions of transgender people, their
characters, and their strivings. Speci cally, media representations
tend to emphasize transgender people as threatening (as in
transgender adults or students needing to access restrooms that
align with their transgender identity), as dishonorable (as in stories
of transgender members of the military who are discharged due
to their transgender identity), and as victims (as in stories of
transgender individuals being victims of hate crimes).
Finally, transgender community members’ everyday experiences
of microaggressions also deserve consideration here. For example,
transgender patients need protections from employment
discrimination and organizational structural accommodations
that make it di cult or awkward for transgender people to use
facilities that align with their gender identity. Gender-neutral
restrooms, for example, can substantially reduce the frequency, and
perhaps the impact, of everyday microaggressions. In the chapter
“ e Education of Little Cis,” Professor A. Finn Einke relates an
experience of this kind of microaggression when their University
department moved into a new space with new wheelchair accessible
restrooms, which clearly de ned the restrooms as male-only and
female-only spaces. Einke writes, “I go there, braided and bearded,
and am furious to discover the options,” (Einke, 2012, p. 73). If
the building would o er a gender-neutral option, it could easily
avert Einke’s (and fellow non-binary presenting and transgender
individuals’) anger and discomfort.
Another way to reduce microaggression in clinical settings is
by creating more inclusive language in patient intake forms. For
example,  e Fenway Institute and the Center for American
Progress (2013) and the Center for Transgender Excellence (Cahill,
2014, p. 37) suggests that all healthcare settings use a “two-step
gender identity and birth sex question” (p. 10). Two questions
include “What is your current gender identity?” and “What sex
were you assigned at birth on your original birth certi cate?” ( e
Fenway Institute, 2013, p. 11).  e Centers for Disease Control and
Prevention (CDC) suggests a strategy for clinicians and healthcare
facilities to recognize a patients current gender identity while also
honoring their past and potential healthcare needs that might not
align with their current gender. For example, a patient who has a
current gender identity of female, but was assigned male at birth,
might need testicular cancer screenings if they have not undergone
an orchiectomy. Also, a patient that identi es as male, but was
assigned female at birth, requires cervical screenings if they have
a cervix. Having both items listed, and having clinicians educated
on what to be aware of, allows for more comprehensive, better
informed, and more compassionate care of transgender patients.
JEMH · Open Volume | 5
© 2015 Journal of Ethics in Mental Health (ISSN: 1916-2405)
A
Recommendations for Eliminating
Inequalities in Transgender Health: A
Five Point Model
What follows is an example of one set of key transition points—not
necessarily sequential—that could be adapted to clinical work with
a variety of transgender patients.
1.
A patient “comes out” as transgender to a healthcare
professional.
When a patient comes out as transgender, clinicians need to be
sensitive to how the patient is feeling (Mayer et al., 2008, p. 991)
and be able to identify common clinically relevant challenges
such as biological puberty, signs of emotional distress, lack of
social and cultural support, risks of being harassed or abused
in schools, homes, or other community-based environments.
Clinicians should be motivated to and should know how to create
an environment during clinical encounters that is inclusive towards
and supportive of transgender patients. One important feature of
the environment during clinical encounters that can confer caring
and respect is the use of appropriate language. For example, if a
client informs a clinician that they are now going by the name
“John,” the clinician can respond by saying, “ ank you for letting
me know. Are there di erent pronouns that you prefer I use?”
2.
A patient is in need of general healthcare in a medical
setting.
When we discuss transgender medicine, we o en forget to
acknowledge that transgender patients need general medical care
like any other patient, however many transgender patients will
avoid accessing general medical care because of previous negative
experiences in medical settings (Grant et al., 2010, p. 76). Clinicians
should be aware of current risks a ecting transgender community
members. (For example, high rates of depression, anxiety, eating
disorders, substance abuse, and HIV infections were cited earlier
in this article.) Many transgender patients fear disclosing their
own risk behaviors or emotions to clinicians.  is can happen
for a number of reasons, including the patient’s distrust of a
clinician who does not appear caring or knowledgeable about the
stressors a ecting transgender community members. Clinicians
have obligations to help patients avoid delaying transition-related
care, particularly in the absence of a medical indication for delay.
3. A patient is ready to begin cross-sex hormone therapy.
It is beyond the scope of this paper to discuss the justi ability of
clinicians’ conscientious objection or “ambivalence” (Poteat et
al., 2013, p. 26) to working with transgender patients; we assume
for sake of exploring the quality of clinical encounters between
clinicians and patients that clinicians have, at the very least, an
obligation to treat all transgender patients with care and respect.
Additionally, clinicians have general obligations to be up-to-date
and versed in current standards of care and practices a ecting
transgender patients. When clinicians are not competent to execute
standards of care themselves, they have obligations to make timely
and actionable referrals to clinicians who can. Standards of Care
from the World Professional Association for Transgender Health
(WPATH), currently in its seventh version (WPATH) are the most
commonly used guidelines for the care of transgender patients. All
clinicians should be prepared to talk with their patients in order
to determine their current transition-related goals and assess any
concerns.
4. A patient requests a physician’s letter to enable changing
legal documents, such as driver’s licenses, birth certi cates,
and passports.
Clinicians should educate themselves on their state’s current
policies related to changing legal documentation. Continuing
education modules for clinicians should be developed to inform
clinicians about the nature and scope of their roles in assisting
patients with these kinds of document changes. One helpful
organization for advocacy and education about current state
and federal laws is the National Center for Transgender Equality
(NCTE) (National Center for Transgender Equality).
5. A patient requests a physician’s referral and/or a letter for
a transition-related surgery.
Clinicians should be able to describe comprehensive clinical care
and treatment options to transgender patients and their loved ones
or provide referrals and additional information when necessary.
One resource for clinicians in need of one-on-one consultation
with someone knowledgeable about transgender medicine is
TransLine through Project Health (TransLine).
Conclusion
Responding well to transgender patients’ general medical
and mental health needs include understanding the patients’
current support systems and fractures in those support systems,
employment status, income streams, and legal protections in
the region or state in which that patient lives. For example, a
transgender patient who has a supportive family or partner, is
steadily employed, and lives in a state where gender identity is
protected by nondiscrimination language in statutes, regulations,
or court holdings, might very well be in a better state of health
than patients who have been kicked out of their homes, unable
to maintain steady employment at an income level that allows
coverage of basic living needs, and lives in a region or state where
marginalization is commonplace and tolerated. Clinicians should
also take into account the additional e ect of “structural and
interpersonal acts of racism” (Harrison-Quintana, Lettman-Hicks,
& Grant, p. 1) on patients of color.
e analysis and recommendations we o er in this article focus
on nourishing the therapeutic capacity of the clinician-patient
relationship and on generating improvements in general and
mental health outcomes for transgender patients. We hope to have
illustrated the numerous ways in which micro- and macro-levels
connect, as quality clinical encounters are critical for eliminating
transgender health inequalities.
JEMH · Open Volume | 6
© 2015 Journal of Ethics in Mental Health (ISSN: 1916-2405)
A
References
CDC. (2013). HIV among transgender people. Retrieved from http://
www.cdc.gov/hiv/risk/transgender/.
Cahill, S. & Makadon H. (2014). Sexual orientation and gender identity
data collection in clinical settings and in electronic health records:
a key to ending LGBT health disparities. LGBT Health, 1(1),
34-41.
Conron, K. J., Stewart, J. L., Reisner, S. L., & Sell, R. L. (2014). Sex and
gender in the US health surveillance system: A call to action.
American Journal of Public Health, 104(6), 970-976.
Davis, S., & Berlinger, N. (2014). Moral progress in the public safety
net: Access for transgender and LGB patients. LGBT Bioethics:
Visibility, Disparities, and Dialogue, 44(5), S45-S47.
Deacon, H. (2006). Towards a sustainable theory of health-related
stigma: Lessons from the HIV/AIDS literature. Journal of
Community and Applied Social Psychology, 16, 418-425.
Dorsen, C. (2012). An integrative review of nursing attitudes towards
lesbian, gay, bisexual, and transgender patients. Canadian
Journal of Nursing Research, 44(3), 18-43.  e Fenway Institute.
Asking Patients Questions about Sexual Orientation and Gender
Identity in Clinical Settings: A Study in Four Health Centers.
Center for American Progress, 2013. Retrieved from http://
thefenwayinstitute.org/wp-content/uploads/COM228_SOGI_
CHARN_WhitePaper.pdf.
Enke, A. (2012).  e education of little cis: Cisgender and the
discipline of opposing bodies. In AF Enke (Ed.), Transfeminist
perspectives in and beyond transgender and gender studies (pp.
60-77). Philadelphia, PA: Temple University Press.
Grant, J., Mottet, L., & Tanis, J. (2010). National transgender
discrimination survey report on health and health care.
Grant, Jaime M., Lisa A. Mottet, Justin Tanis, Jack Harrison, Jody L.
Herman, and Mara Keisling. Injustice at every turn: A report of
then national transgender discrimination survey. Washington:
National Center for Transgender Equality and National Gay
and Lesbian Task Force, 2011. Retrieved from http://www.
transequality.org/Resources/ntds_full.pdf.
Grossman, A. H., & D’Augelli, A. R. (2007). Transgender youth and
life-threatening behaviors. Suicide and Life- reatening Behaviors,
37(5), 527-537.
Hale, C. J. (2009). “Tracing a Ghostly Memory in My  roat.” In Laurie
J. Shrage (Ed.),“You’ve Changed” Sex Reassignment and Personal
Identity (pp. 43-65). Oxford University Press.
Harrison-Quintana, J., Lettman-Hicks, S., & Grant, J. Injustice at every
turn: A look at black respondents in the national transgender
discrimination survey. Washington: National Center for
Transgender Equality and National Gay and Lesbian Task Force,
2011. Retrieved from http://www.transequality.org/Resources/
ntds_black_respondents_2.pdf.
HealthyPeople.gov. Lesbian, gay, bisexual and transgender
health. Retrieved from http://healthypeople.gov/2020/
topicsobjectives2020/overview.aspx?topicid=25
Institute of Medicine of  e National Academies. (March 2011).  e
health of lesbian, gay, bisexual, and transgender people: Building
a foundation for better understanding., 1-4.
Link, B. G., & Phelan, J. C. (2006). Stigma and its public health
implications. e Lancet, 367(9509), 528-529.
Liu, R. T., & Mustanski, B. (2012). Suicidal ideation and self-harm in
lesbian, gay, bisexual, and transgender youth. American Journal
of Preventive Medicine, 42, 221-228.
Mayer, K. H., Bradford, J. B., Makadon, H. J., Stall, R., Goldhammer,
H., & Landers, S. (2008). Sexual and gender minority health:
What we know and what needs to be done. Framing Health
Matters, 98(6), 989-995.
National Center for Transgender Equality. National center for
transgender equality. Retrieved from http://transequality.org/.
Nelson, J. L. (2012). Still quiet a er all these years: Revisiting “the
silence of the bioethicists”. Bioethical Inquiry, 9, 249-259.
Poteat, T., German, D., & Kerrigan, D. (2013). Managing uncertainty: A
grounded theory of stigma in transgender health care encounters.
Social Science and Medicine, 84, 22-29.
Stroumsa, D. (2014).  e state of transgender health care: Policy, law,
and medical frameworks. Framing Health Matters, 104(3), 31-38.
TransLine. Project health. Retrieved from http://project-health.org/
transline/.
WPATH. World professional association for transgender health.
Retrieved from http://www.wpath.org/.
Young, I. M. (1990). Justice and the Politics of Di erence. Princeton,
NJ: Princeton University Press.
Acknowledgments:
e authors extend their gratitude to nursing student Emma
Wojnicki for her assistance in the assembly of this manuscript.
Competing Interests:
none
Address for Correspondence:
e-mail:
ChristyRentmeester@creighton.edu
rsallans@gmail.com
Date of Publication: June 17, 2015
... This hinders the accumulation of experience (Bauer et al., 2009;Dewey, 2008). As a result, care-seekers may find themselves educating clinicians (Rentmeester & Sallans, 2015;Dewey, 2008;Bauer et al., 2009;Wagner et al., 2016). This can be stressful for the care-seeker, as it upsets the balance of power in the clinical encounter (Dewey, 2008;Rentmeester & Sallans, 2015). ...
... As a result, care-seekers may find themselves educating clinicians (Rentmeester & Sallans, 2015;Dewey, 2008;Bauer et al., 2009;Wagner et al., 2016). This can be stressful for the care-seeker, as it upsets the balance of power in the clinical encounter (Dewey, 2008;Rentmeester & Sallans, 2015). ...
... Although some clinicians may respond to care-seekers' attempts to advocate for their needs with curiosity and openness, others may experience this as a challenge to their expertise and respond with hostility (Dewey, 2008;Rentmeester & Sallans, 2015). I wonder if the perceived threat to one's expertise might be even greater when the care-seeker-educator is a child. ...
... This hinders the accumulation of experience (Bauer et al., 2009;Dewey, 2008). As a result, care-seekers may find themselves educating clinicians (Rentmeester & Sallans, 2015;Dewey, 2008;Bauer et al., 2009;Wagner et al., 2016). This can be stressful for the care-seeker, as it upsets the balance of power in the clinical encounter (Dewey, 2008;Rentmeester & Sallans, 2015). ...
... As a result, care-seekers may find themselves educating clinicians (Rentmeester & Sallans, 2015;Dewey, 2008;Bauer et al., 2009;Wagner et al., 2016). This can be stressful for the care-seeker, as it upsets the balance of power in the clinical encounter (Dewey, 2008;Rentmeester & Sallans, 2015). ...
... Although some clinicians may respond to care-seekers' attempts to advocate for their needs with curiosity and openness, others may experience this as a challenge to their expertise and respond with hostility (Dewey, 2008;Rentmeester & Sallans, 2015). I wonder if the perceived threat to one's expertise might be even greater when the care-seeker-educator is a child. ...
Thesis
Full-text available
At the time of writing, the system of gender affirming care (GAC) in Norway is in a state of flux. Recent controversies have arisen around the monopoly on care held by the publicly funded gender clinic (Nasjonal behandlingstjeneste for transseksualisme, NBTS) and the emergence of private providers outside of NBTS. The current situation presents an interesting context for the research behind this thesis, which had the aim of gaining a deeper understanding of the experiences gender variant youth and their parents have while seeking GAC in Norway. The study behind this thesis used several qualitative methods. Semi-structured interviews were conducted with gender variant youth ages 12-22 and parents with experiences seeking GAC. Interviews were also conducted with key informant healthcare providers and activists to provide deeper context. Related grey materials and media were analyzed, and community engagement provided further depth to contextual understandings. Findings are divided into two chapters. The first examines the experiences that lead families to seek interventions like puberty blockers and hormone replacement therapy (HRT) and the meanings they place on these treatments. This thesis explores how study participants experience puberty as a 'crisis' warranting swift preventative action and how these experiences inform conceptualizations of GAC as 'lifesaving' treatment. A new threefold framework of social, embodied and psychological suffering is introduced to understand some of the experiences that motivate study participants to seek care. The second chapter of findings looks at the families' care seeking experiences, in particular, experiences that led to the erosion of trust in the system of GAC. Drawing on several established theories of trust in healthcare, a variety of scenarios that may contribute to the development of distrust in clinicians throughout the care seeking process are explored in the context of recent controversies in GAC. This study contributes to a deeper understanding of the experiences, values and beliefs that motivate families to seek GAC. It also provides important insights into processes of trust development and its erosion in healthcare. The findings suggest a desire for more transparency and information in the care seeking process, a system that caters more to individual needs, and greater partnership in treatment decision-making.
... Experiences of healthcare as a transgender or gender diverse person Table 2). 8,14,[17][18][19] Our findings showed that transgender (to include gender diverse) health literacy was central to inclusive practice as it mediated bodily autonomy being upheld. Bodily autonomy is about self-determination and is premised on informed choice and grounded in human rights. ...
Article
Full-text available
Objective To explore the experiences of care surrounding hysterectomy as part of gender affirming surgery. Methods An in‐depth reflexive thematic analysis from accounts by 10 out of 12 people was undertaken. Experiences were then mapped to the surgery journey as a template for developing system responsiveness. Results No one person's experience of the procedure was affirmed across the entire surgery journey. Transgender health literacy was central to inclusive practice as it mediated bodily autonomy being upheld. The physical care environment influenced the experience, for example, the waiting room was marginalizing (intimidating), with a gendered clinic name and toilets. Some participants took a female support person/partner so that “people looking would assume that I was there supporting her, not the other way around.” Communication misalignments were evident around information provided/understood about fertility and ovarian preservation. Participants were also placed in the position of both receiving care and providing education: “I also shouldn't have to be going in there for treatment, and then being expected to educate the medical professional that's meant to be helping me… I'm not getting paid to give you a TED talk on how my trans body works.” The experiences mapped across the surgery journey highlighted multiple levels of service provision development needed to foster inclusive practice, for example, from workforce education to healthcare policy. Conclusion Healthcare for transgender people can be unsafe and inequitable. Increasing transgender health responsiveness across the surgery journey will facilitate better alignments in communication and uphold bodily autonomy, leading to safer and inclusive practice.
... A 2015 survey of nearly 28 000 transgender respondents found that 55% were denied coverage for transition-related surgery, 23% did not see a doctor for fear of being mistreated, and 33% reported avoiding doctors due to inability to afford care. 2 The risk of suicide and substance use is also disproportionately higher among transgender people than in the US population as a whole, with 40% of transgender people and 4.6% of Americans reporting having attempted suicide at least once in their lifetime and 3 times as many transgender people as people in the US population using illicit drugs or drugs not prescribed to them. 2,3 In order to better advocate for patients' access to care and coverage, it is important for health professions students and professionals to have awareness of the factors that exacerbate patient vulnerabilities, such as pervasive social and cultural discrimination and lack of employment or insurance coverage. ...
Article
Full-text available
Over the past decade, ways of defining self in relation to gender identity and forms of expression have widely expanded. Along with this expansion of identifying language, there has been an increase in medical professionals and clinics specializing in providing gender care. Yet many barriers to providing this care still exist for clinicians-including their comfort with and knowledge about collecting and retaining a patient's demographic information, respecting the name and pronouns a patient goes by, and providing overall ethical care. This article shares one transgender person's numerous health care encounters over 20 years as both a patient and a professional.
... Violence within interpersonal relationships and humiliation within healthcare contexts remains an issue for this population. Consistent with the literature, participants indicated that healthcare providers are generally aware that it is not acceptable to discriminate against sexual minorities, but there is still a belief among transgender individuals that it is not safe for them to disclose their status (Rentmeester & Sallans, 2015;Rounds, McGrath, & Walsh, 2013). Consistent with the literature, many participants reported discomfort in sharing their transgender status with healthcare providers, and that providers were uncomfortable knowing this information (Botsford, Allen, Andert, Budge, & Rehm, 2018;Radix et al., 2018). ...
Article
Full-text available
We conducted a qualitative descriptive study to examine the HIV prevention needs of African American transgender women living in one state in the southern region of the United States. A purposeful sample of 15 transgender women, 18 to 35 years of age, participated in the study. Semi-structured interviews were used to examine the HIV prevention needs of this group of women. Four themes emerged from the data: the desire to be affirmed as a female but remain invisible; high risk contexts; there is a need to nullify discrimination and stigma; and additional resources are needed for HIV prevention efforts. The findings underscore the significance for programs designed specifically to address the unique HIV prevention needs for transgender women of color.
... Mistakes such as misgendering are made regularly and unapologetically in the world outside of the therapist's office, so mistakes made in the counseling space may open up opportunities for clients to process their feelings in the moment and to have a corrective experience with their therapist. Because transgender clients often have to take on multiple roles, such as client, advocate, and educator (Rentmeester & Sallans, 2015), it is important for therapists to be proactive in both corrective their own mistakes and in providing a safe space where clients feel comfortable correcting them. ...
Article
Full-text available
Therapists may encounter many opportunities and dilemmas when working with transgender and non-binary clients. Transgender and non-binary clients may use pronouns that are new or unfamiliar to their therapists, but little is known about the unique impact that pronoun use may have in therapy. The pronouns and preferred names that transgender and non-binary clients use may also shift during the course of the therapeutic relationship. Best practices for affirmative therapy include recognizing and validating a client’s gender identity, use of gender pronouns that are congruent with a client’s gender identity, and using the client’s preferred or chosen name, not their birth name. These clients may present to therapy for a variety of reasons; therefore, it is important to trust the client’s self-perception of their own gender identity and to not engage in harmful gatekeeping practices. Scholars have highlighted the negative emotions that individuals may experience when they are misgendered, deadnamed, invalidated, or otherwise denied access to medically appropriate care. Therapists may experience anxiety about providing care that is transgender-affirmative, which may affect the therapist-client alliance. The authors draw on their own experiences as therapists working with transgender and non-binary clients and provide recommendations and guidance for therapists.
... HIV prevalence is also high for transgender women: one meta-analysis estimated that approximately 28 percent of transgender women as a whole-and 56 percent of African American transgender women-have HIV [3]. Transgender patients also report problems related to stigma in accessing health care, including denial of services and unwillingness of health care professionals to accept them as patients [4]. ...
... nearly 6,500 transgender respondents found that 19 percent of transgender patients were denied access or treatment due to their identity in a clinician's office, 28 percent were harassed or disrespected, 2 percent were physically assaulted in hospital settings, and 50 percent reported having to teach their clinicians about the care they needed [1]. The risk for suicide and substance abuse is also disproportionately high among transgender people [2], with 41 percent reporting having attempted suicide at least once in their lifetime [1]. Although these numbers are unrelated to coming out as transgender to clinicians, they could possibly be reduced by training health professions students and professionals about the health needs of transgender people and how their vulnerabilities can be exacerbated (including in health care settings) by social determinants, such as pervasive social and cultural discrimination. ...
Article
Full-text available
It is not uncommon for transgender patients to avoid sharing information about their identity and medical history with health care professionals, due to past negative experiences within health care settings. Professionals who show sensitivity to the topic and express care about health record documentation can increase a transgender patient's trust. There are many opportunities to increase transgender health literacy, including consultation, conferences, webinars, books, and articles focused on transgender health care. It's critical for professionals to listen closely to individual patients' stated needs. This article shares one transgender patient's encounters and experiences within health care settings and offers lessons on how health care professionals can be more inclusive, respectful, and responsive to the needs of transgender patients.
Article
Full-text available
There is a growing literature of clinical recommendations for transgender and gender diverse (TGD) affirming behavioral health care, yet it is unknown to what extent these recommendations are rooted in evidence-based practice (EBP). This systematic review included 65 articles published between 2009 and 2018 with recommendations for behavioral health services with TGD adults, emphasizing general clinical care. Coded variables included type of article, participant demographics, aspects of EBP, and whether care was informed by objective assessment. Most articles did not equally draw from all components of EBP. Recommendations for specific clinical problems are increasingly available and address diversity within TGD communities. More research, including clinical trials adapting established interventions, is needed to inform state-of-the-art TGD-affirmative behavioral health care.
Article
Full-text available
Youth Risk Behavior Survey (YRBS) data have exposed significant sexual orientation disparities in health. Interest in examining the health of transgender youths, whose gender identities or expressions are not fully congruent with their assigned sex at birth, highlights limitations of the YRBS and the broader US health surveillance system. In 2009, we conducted the mixed-methods Massachusetts Gender Measures Project to develop and cognitively test measures for adolescent health surveillance surveys. A promising measure of transgender status emerged through this work. Further research is needed to produce accurate measures of assigned sex at birth and several dimensions of gender to further our understanding of determinants of gender disparities in health and enable strategic responses to address them.
Article
Full-text available
I review the current status of transgender people's access to health care in the United States and analyze federal policies regarding health care services for transgender people and the limitations thereof. I suggest a preliminary outline to enhance health care services and recommend the formulation of explicit federal policies regarding the provision of health care services to transgender people in accordance with recently issued medical care guidelines, allocation of research funding, education of health care workers, and implementation of existing nondiscrimination policies. Current policies denying medical coverage for sex reassignment surgery contradict standards of medical care and must be amended. (Am J Public Health. Published online ahead of print January 16, 2014: e1-e8. doi:10.2105/AJPH.2013.301789).
Article
Full-text available
Suicide is the third-leading cause of death among adolescents and nonsuicidal self-harm occurs in 13%-45% of individuals within this age group, making these phenomena major public health concerns. Lesbian, gay, bisexual, and transgender (LGBT) youth particularly are at risk for engaging in these behaviors. Nevertheless, relatively little is known about the specific risk factors associated with suicidal ideation and self-harm behaviors in the population. This study provides a longitudinal evaluation of the relative contributions of general and LGBT-specific risk factors as well as protective factors to the occurrence of suicidal ideation and self-harm in an ethnically diverse sample of LGBT youth. A community sample of 246 LGBT youth (aged 16-20 years) was followed prospectively over five time points at regular 6-month intervals. Participants completed a baseline structured interview assessing suicide attempt history and questionnaires measuring gender nonconformity, impulsivity, and sensation-seeking. At follow-up assessments, participants completed a structured interview assessing self-harm and questionnaires for suicidal ideation, hopelessness, social support, and LGBT victimization. Data were collected from 2007 to 2011, and HLM analyses were conducted in 2011. A history of attempted suicide (p=0.05); impulsivity (p=0.01); and prospective LGBT victimization (p=0.03) and low social support (p=0.02) were associated with increased risk for suicidal ideation. Suicide attempt history (p<0.01); sensation-seeking (p=0.04); female gender (p<0.01); childhood gender nonconformity (p<0.01); and prospective hopelessness (p<0.01) and victimization (p<0.01) were associated with greater self-harm. General and LGBT-specific risk factors both uniquely contribute to likelihood of suicidal ideation and self-harm in LGBT youth, which may, in part, account for the higher risk of these phenomena observed in this population.
Article
Things change when a neologism moves from a social movement context to a classroom context. On one hand, our ability to keep classrooms relevant depends on this movement, this perspectival and practical exchange between academic and activist worlds. And theorizations that take place in the classroom can provide sustaining energy to social concerns. On the other hand, meanings do change when words cross from one medium to another. Academic contexts-perhaps a bit slow on the uptake-can simplify, ossify, and discipline otherwise queer terminologies while authorizing, legitimating, and institutionalizing their use.
Article
The Institute of Medicine's (IOM's) 2011 report on the health of LGBT people pointed out that there are limited health data on these populations and that we need more research. It also described what we do know about LGBT health disparities, including lower rates of cervical cancer screening among lesbians, and mental health issues related to minority stress. Patient disclosure of LGBT identity enables provider-patient conversations about risk factors and can help us reduce and better understand disparities. It is essential to the success of Healthy People 2020's goal of eliminating LGBT health disparities. This is why the IOM's report recommended data collection in clinical settings and on electronic health records (EHRs). The Center for Medicare and Medicaid Services and the Office of the National Coordinator of Health Information Technology rejected including sexual orientation and gender identity (SOGI) questions in meaningful use guidelines for EHRs in 2012 but are considering this issue again in 2013. There is overwhelming community support for the routine collection of SOGI data in clinical settings, as evidenced by comments jointly submitted by 145 leading LGBT and HIV/AIDS organizations in January 2013. Gathering SOGI data in EHRs is supported by the 2011 IOM's report on LGBT health, Healthy People 2020, the Affordable Care Act, and the Joint Commission. Data collection has long been central to the quality assurance process. Preventive health care from providers knowledgeable of their patients' SOGI can lead to improved access, quality of care, and outcomes. Medical and nursing schools should expand their attention to LGBT health issues so that all clinicians can appropriately care for LGBT patients.
Article
As a population, people who self‐identify as lesbian, gay, bisexual, or transgender face significant risks to health and difficulty in obtaining medical and behavioral health care, relative to the general public. These issues are especially challenging in safety‐net health care institutions, which serve a range of vulnerable populations with limited access, limited options, and significant health disparities. Safety‐net hospitals, particularly public hospitals with fewer resources than academic medical centers and other nonprofit hospitals that also serve as safety nets, are under immense financial pressures. However, with the introduction in 2011 of standards for LGBT inclusion by The Joint Commission, showing progress on LGBT health care has become a compliance issue for hospitals. And because the health care community itself has contributed to LGBT health disparities through prejudice, disrespect, or inadequate knowledge that have made it difficult for LGB and especially T people to seek care or to obtain the care they need, there is a moral case for allocating scarce resources to this population: we owe them some investment in righting wrongs that the health care system itself has produced . So, where to begin in the typical safety‐net hospital or clinic? Beyond staff training, which is essential and for which good models now exist, what does justice demand from a service‐utilization perspective? Given the range of health care services that an LGBT person in the safety net may need or want, how should we set priorities? And what can't we promise to do for this member of our community?
Article
A growing body of literature supports stigma and discrimination as fundamental causes of health disparities. Stigma and discrimination experienced by transgender people have been associated with increased risk for depression, suicide, and HIV. Transgender stigma and discrimination experienced in health care influence transgender people's health care access and utilization. Thus, understanding how stigma and discrimination manifest and function in health care encounters is critical to addressing health disparities for transgender people. A qualitative, grounded theory approach was taken to this study of stigma in health care interactions. Between January and July 2011, fifty-five transgender people and twelve medical providers participated in one-time in-depth interviews about stigma, discrimination, and health care interactions between providers and transgender patients. Due to the social and institutional stigma against transgender people, their care is excluded from medical training. Therefore, providers approach medical encounters with transgender patients with ambivalence and uncertainty. Transgender people anticipate that providers will not know how to meet their needs. This uncertainty and ambivalence in the medical encounter upsets the normal balance of power in provider-patient relationships. Interpersonal stigma functions to reinforce the power and authority of the medical provider during these interactions. Functional theories of stigma posit that we hold stigmatizing attitudes because they serve specific psychological functions. However, these theories ignore how hierarchies of power in social relationships serve to maintain and reinforce inequalities. The findings of this study suggest that interpersonal stigma also functions to reinforce medical power and authority in the face of provider uncertainty. Within functional theories of stigma, it is important to acknowledge the role of power and to understand how stigmatizing attitudes function to maintain systems of inequality that contribute to health disparities.
Article
Stigma has been identified as a major barrier to health care and quality of life in illness management. But unfortunately there is no common theoretical perspective on stigma. We need a sustainable theory of health-related stigma. This would start with a coherent definition of stigma that brings together both individual and social dimensions of this complex phenomenon. It would reassesses the existence of ‘types’ of stigma and explain how stigma relates to disadvantage. A sustainable theory would help researchers to move from theory into practice: to develop a comprehensive measurement tool for stigma and related disadvantage, and inform design, monitoring and evaluation of anti-stigma interventions. This paper draws on two recent literature reviews on HIV/AIDS stigma to introduce several key issues in developing a sustainable theory of stigma. We suggest limiting the definition of stigma to the process of othering, blaming and shaming (often called symbolic stigma). We argue that there is value in analytically separating stigma from discrimination in order to better understand the relationship between them. We also suggest the need to understand discrimination caused by stigma as only one element of stigma-related disadvantage. Copyright © 2006 John Wiley & Sons, Ltd.