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Reducing Stigma in High School Students: A Cluster Randomized Controlled Trial of the National Alliance on Mental Illness’ Ending the Silence Intervention

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Beyond education and contact program components, existing research on how to design a successful adolescent stigma reduction intervention has been inconclusive. This study evaluated the effectiveness of a school-based mental health (MH) stigma reduction and health promotion program, Ending the Silence (ETS), developed by the National Alliance on Mental Illness (NAMI). A diverse sample of 206 high school students in New York City participated in the current study. Using a cluster randomized controlled trial design, 14 ninth–12th grade classes (Grade 9–12) were randomly assigned to the ETS program or an active control presentation on careers in psychology. Students completed 4 surveys throughout the study (pre, immediate post-presentation, 4 weeks post, 8 weeks post). Prospective results (over 2 months) and qualitative feedback were analyzed. Prospectively, mixed effects modeling indicated significant effects in favor of the ETS group for reduced negative stereotypes, improved mental health knowledge, and less anticipated risk for disclosing to a counselor. There were also trends in favor of the ETS group for reductions in intended social distancing and negative affect, and improvements in help-seeking intentions. Other predictors of stigma included mental health knowledge, gender, race/ethnicity, prior contact with mental illness, and grade level. Qualitative feedback indicated positive impressions of ETS overall, but suggestions for more interactive activities and discussion. Relatively brief programs such as ETS appear to be a practical vehicle for stigma reduction. Future research is warranted on longer-term programs and adolescent development variables.
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Running head: HIGH SCHOOL STIGMA INTERVENTION 1
©American Psychological Association, 2020. This paper is not the
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publication, via its DOI: https://doi.org/10.1037/sah0000235
Reducing stigma in high school students: A cluster randomized controlled trial of the National Alliance
on Mental Illness’ Ending the Silence intervention
Author Note
Joseph S. DeLuca, Department of Psychology, John Jay College of Criminal Justice, City
University of New York (CUNY) and CUNY Graduate Center.
Janet Tang, Department of Psychology, John Jay College of Criminal Justice, CUNY.
Sarah Zoubaa, Department of Psychology, John Jay College of Criminal Justice, CUNY.
Brandon Dial, Department of Psychology, John Jay College of Criminal Justice, CUNY.
Philip T. Yanos, Department of Psychology, John Jay College of Criminal Justice, CUNY and
CUNY Graduate Center.
Correspondence concerning this article should be addressed to Joseph DeLuca, Department of
Psychology, John Jay College of Criminal Justice, 524 W 59th St, New York, NY, 10019. Email:
jsaldeluca@gmail.com; fax: 212-237-8930
HIGH SCHOOL STIGMA INTERVENTION 2
Abstract
Beyond education and contact program components, existing research on how to design a successful
adolescent stigma reduction intervention has been inconclusive. This study evaluated the effectiveness of
a school-based mental health (MH) stigma reduction and health promotion program, “Ending the
Silence” (ETS), developed by the National Alliance on Mental Illness (NAMI). A diverse sample of 206
high school students in New York City participated in the current study. Using a cluster randomized
controlled trial design, fourteen 9th-12th grade classes (Grade 9-12) were randomly assigned to the ETS
program or an active control presentation on careers in psychology. Students completed four surveys
throughout the study (pre, immediate post-presentation, 4-weeks post, 8-weeks post). Prospective results
(over two-months) and qualitative feedback were analyzed. Prospectively, mixed effects modelling
indicated significant effects in favor of the ETS group for reduced negative stereotypes, improved mental
health knowledge, and less anticipated risk for disclosing to a counselor. There were also trends in favor
of the ETS group for reductions in intended social distancing and negative affect, and improvements in
help-seeking intentions. Other predictors of stigma included mental health knowledge, gender,
race/ethnicity, prior contact with mental illness, and grade level. Qualitative feedback indicated positive
impressions of ETS overall, but suggestions for more interactive activities and discussion. Relatively brief
programs such as ETS appear to be a practical vehicle for stigma reduction. Future research is warranted
on longer-term programs and adolescent development variables.
Keywords: stigma, adolescence, mental health, Ending the Silence, National Alliance on Mental
Illness
HIGH SCHOOL STIGMA INTERVENTION 3
Reducing High School Stigma: A Cluster Randomized Controlled Trial of the National Alliance on
Mental Illness’ Ending the Silence Intervention
Introduction
Adolescence is a key period for personal and social development, and mental health conditions
can significantly alter the trajectory of an adolescent’s life. The median age of onset for a mental health
condition is fourteen (Auerbach et al., 2018) and approximately 75% of all lifetime mental health
conditions worldwide begin by the mid-20s (Kessler et al., 2007). Formal service utilization and help-
seeking tend to be low (e.g., Merikangas et al., 2011) and are impacted by a host of factors, including
stigma (Cauce et al., 2002; Corrigan, Druss, & Perlick, 2014; Spencer, Chen, Gee, Fabian, & Takeuchi,
2010; World Health Organization, 2005). Stigma refers to a process of labeling that can lead to
stereotyping and discrimination within a context of power (Goffman, 1963; Link & Phelan, 2001). Stigma
can lead to a lack of engagement in mental health treatment and inhibit full inclusion in society (Corrigan,
Watson, Byrne, & Davis, 2005). Stigma remains understudied among youth, but recent reviews and meta-
analyses have documented that stigma is prevalent among youth (Silke, Swords, & Heary, 2016), impacts
help-seeking (Nam et al., 2013), and overlaps significantly with developmental processes such as peer
group formation and identity development (DeLuca, 2019). Overall, adolescents in the stage of middle
adolescence appear to be particularly ideal targets for stigma reduction, as this is the period in which
cognitive differences with adults relevant to stigma begin to diminish (Corrigan et al., 2007). Further,
adolescents typically have less information and more tentatively formed attitudes about people with
mental illness than adults (Corrigan et al., 2005), which also makes this population particularly conducive
to stigma change. Thus, the stigma process can be disrupted in this period before it forms more fully.
Youth Mental Health Stigma Reduction
Coordinated efforts to reduce youth mental health stigma in the US are in the early stages. A
recent systematic review (Salerno, 2016) of fifteen school-based (grades 5-12) programs in the US found
that most improved mental health knowledge, reduced negative stereotypes, and improved help-seeking
outcomes in the short-term. Salerno (2016) concluded that more studies on program implementation and
HIGH SCHOOL STIGMA INTERVENTION 4
long-term effects are needed, specifically by collecting more socio-demographic information and using
randomized designs and long-term follow-ups. The few researchers who have used long-term follow-ups
have found mixed findings related to maintained stigma reductions (Corrigan, Michaels, & Morris, 2015;
Perry et al., 2014; Pinto-Foltz et al., 2011; Thornicroft et al., 2016; Yamaguchi, Mino, & Uddin, 2011).
Overall, several research teams have concluded that they cannot make any firm recommendations for
school-based stigma reduction programs due to inconsistent or null results that may stem from poor
reporting quality, a dearth of randomized trials/lack of control groups, sample heterogeneity, program
structure heterogeneity and lack of fidelity measurement, different outcome measurements, and
inadequacy of stigma measures for youth (Austin & Schwartz, 2018; Koller & Stuart, 2016; Mellor, 2014;
Schachter et al., 2008; Wei, Hayden, Kutcher, Zygmunt, & McGrath, 2013).
Program structure and stigma measurement. In regard to structure, most stigma reduction
programs include education (e.g., dispelling myths about mental illness; providing mental health
education) or contact components (e.g., presentations by persons living with a mental illness who share
their stories of recovery), or a combination of both (Corrigan et al., 2015). The nature of the education
(e.g., diagnosis-specific) and contact (e.g., age of person, via video or in-person), however, differs from
program to program (Schachter et al., 2008). Similarly, outcome measures vary from study to study and
include a range of stigma dimensions, though help-seeking and disclosure carryover-related outcomes
tend to be the most understudied (Clement et al., 2015; Salerno, 2016). For example, only five out of the
forty studies (13%) in Yamaguchi and colleagues’ (2011) review of interventions evaluated personal
mental health and help-seeking outcomes. Hartman and colleagues (2013) conducted the first known
study to evaluate the impact of a short stigma reduction program (75 minutes) on non-help seeking
adolescents’ self-stigma, using a no-control group, pre/post-test design. These authors found reductions in
self-stigma of seeking help among Canadian high school youth after the program, but more research is
needed to generalize these findings.
Corrigan, Morris, Michaels, Rafacz, and Rüsch (2012) conducted the largest meta-analysis to date
of stigma reduction studies (N = 72) for adults and adolescents. Nineteen studies in this sample were
HIGH SCHOOL STIGMA INTERVENTION 5
evaluated among adolescents (age 12-18). Results indicated that, on average, education and contact-based
interventions were both effective for adolescents at reducing stigma (i.e., attitudes/stereotypes, negative
affect, and intended social distancing). In-person contact interventions yielded the largest effect sizes
overall and specifically for intended social distancing and behavioral intentions toward someone living
with mental illness (e.g., willingness to help). Nevertheless, many existing programs for youth still need
to be further evaluated for efficacy.
National Alliance on Mental Illness - Ending the Silence
Ending the Silence (ETS), developed by the National Alliance on Mental Illness (NAMI, the
largest grassroots mental health nonprofit in the US), is one national, standardized approach that can be
further evaluated and used as a vehicle to overcome the aforementioned limitations in stigma reduction
research (NAMI, 2015). ETS is a one-day, classroom-based presentation that lasts approximately 50
minutes. To date, however, the ETS program has not been thoroughly empirically evaluated. Analyzing
nearly 2,000 post-test surveys from middle and high school students in New York City, researchers
(DeLuca, Evans, & Yanos, 2018) found an overall 80% satisfaction rate with ETS (e.g., would
recommend the program to others; believed the presenters communicated effectively). Ninety percent or
more of students agreed that they know the early warning signs of mental illness, that they now knew how
to help themselves or a friend if they noticed mental health warning signs, and that the presenters
communicated effectively.
Only three studies have evaluated ETS beyond the standard NAMI post-test survey. Wong and
colleagues (2015) used a pre/immediate post-test, no control group design with high school students in
California. Results indicated some significant changes on individual items related to social distance,
emotional responses, attitudes, and knowledge, but no changes in help-seeking or peer support. In an
unpublished master’s thesis, Taniyama (2016) also evaluated ETS among high school students in
California using a no control group design, but included a stronger pre-, immediate post-, and 6-week
follow-up method. Results indicated significant improvements in emotions, knowledge, and attitudes at
the post-test, which maintained at 6-weeks (Taniyama, 2016). Lastly, Wahl, Rothman, Brister, and
HIGH SCHOOL STIGMA INTERVENTION 6
Thompson (2018) recently evaluated ETS in five US states, using a pre/post/follow-up (4-6 weeks) non-
randomized design, including a no intervention control group, and a 12-item outcome measure
(knowledge, stereotypes, social distance, and help-seeking). Using repeated measures analysis of
variance, results indicated positive changes at the immediate follow-up for ETS, though these changes
appeared to gradually rebound at the 4-6 week follow-up. The largest changes for students who received
ETS in this study were being able to recognize the warning signs of mental health conditions, and
knowledge of what to do to seek help if experiencing a mental health condition. Items asking about
recovery of people with mental illness (e.g., ability to get jobs) and about intended social distance (e.g.,
invite to home) returned to baseline levels at the 4-6 week follow-up.
Current Study
The current study is the first randomized controlled trial (RCT) of ETS. This study also
addresses other common limitations to youth stigma reduction research, including lack of follow-up,
failure to account for socio-demographic covariates and other predictors of stigma, a lack of standardized
and reliable stigma measures, a lack of attention paid to youth developmental processes (e.g., identity),
and no explicit linkage of findings to a conceptual model of adolescent mental health stigma (Pinto-Foltz
& Logsdon, 2009; Silke et al., 2016). We hypothesized that students who received ETS (v. active control)
would show significant improvements in mental health knowledge, negative stereotypes, intended social
distancing, negative emotional responses (affect), help-seeking attitudes, anticipated stigma, disclosure
worry, and self-stigma, from Time 1 (baseline) to Time 2 (immediate follow-up after program). Effects
were expected to be stronger at Time 2 and for primary outcome variables (i.e., mental health knowledge,
negative stereotypes, intended social distancing, negative affect, help-seeking attitudes) than secondary
outcome variables (i.e., anticipated stigma, disclosure worry, self-stigma).
Method
Participants. Two hundred and thirty-two students from one New York City public high school
were approached to take part in the study. Using a passive parent/guardian consent approach, 208 students
(90%) assented to take part, but two of those 208 students returned opt-out forms, resulting in a sample
HIGH SCHOOL STIGMA INTERVENTION 7
size of 206 students (M-age = 15.41, SD = 0.94, range: 13-18). Demographic characteristics of the sample
or presented in Table 1. The sample was predominantly female (56.2%) and participants were racially
diverse, with significant proportions of students identifying as European-American (35.0%), African-
American (20.9%), Latino/a/x (15.5%), Asian-American (13.6%). At the time of this study, the
participating high school had not yet established a formal mental health curriculum for their students,
although efforts are currently underway to do this in the state of New York (Kaufman, 2018).
[Table 1 here]
[CONSORT Figure 1 here]
Procedure. Several schools were offered the opportunity to participate in this study. Schools
were selected in a non-randomized fashion, either via personal connection or recommendation by NAMI.
One school agreed to have a representative group of students in fourteen classes participate in the study.
Institutional Board Review (IRB) approval was received from the researchers’ university IRB and the
local Department of Education IRB. Inclusion criteria included being a high school student and speaking
English well enough to complete the questionnaire. This study was completed between September 2017
and February 2018. Individual classrooms were visited at least five times (two visits to describe the study
and collect assent/consent forms; one visit for the presentation; two final visits for follow-ups). After data
collection was completed, teachers of each class were offered an in-person debriefing. Five research
assistants were trained to assist with school visits and data collection.
Study participants completed questionnaires at four time points baseline (Time 1), immediate
post-test (Time 2), four-week follow-up (Time 3), and eight-week follow-up (Time 4). A pilot study was
conducted (DeLuca, Evans, Reyes, & Yanos, 2016) to determine survey length, identify issues with
survey implementation, and determine the appropriateness of items. The spacing out of Time 1 and Time
2 was designed to prevent any validity threats related to serial administration and to reduce the burden of
completing two questionnaires and watching a presentation in one sitting. Questionnaires were also
counterbalanced; four identical versions of the questionnaires were created (with measures randomly
ordered) to control for order effects. Intervention and control group students completed identical
HIGH SCHOOL STIGMA INTERVENTION 8
questionnaires. Participants’ questionnaires were linked across time points by anonymous identification
numbers.
This study followed the guidelines of the Consolidated Standards of Reporting Trials
(CONSORT) for cluster randomized trials (Campbell, Piaggio, Elbourne, & Altman, 2012). In order to
minimize imbalance across intervention and control groups, blocks were first stratified so that a similar
range of grade levels would be represented in each condition. Overall, fourteen rows were created
(separated into two stratified blocks of seven rows), each listing a randomized condition assignment
(intervention or control) and a sequence of dates for the five study visits. The order of condition
assignments in each block was generated by a computer algorithm. (www.randomizer.org). As teachers
responded to an online survey about availability, their classes were put into the first available slot of these
stratified blocks.
Presentations. Participants in the intervention group received ETS conducted by two speakers
from a local NAMI Affiliate. Both speakers were experienced and had given presentations for several
years. All students in the intervention group received the ETS presentation from the same pair of
speakers. For the current study, ETS presentations were shortened to account for the constraints of the
school’s 45 minute periods and the study’s pre- and post-test evaluations. Typically, presentations lasted
35-40 minutes in this study, with half of the presentation dedicated to psychoeducation and half dedicated
to a personal story from someone with lived experience. In regard to deviations from the standard ETS
50-minute program, the presenters in this study summarized some educational points/slides, omitted an
educational video, and made the in-person story more concise. Efforts were made to balance the amount
of education and contact, and to still have time for students to discuss the program.
Students in the active control group received a presentation of parallel length on careers in
psychology (adapted from Wood & Wahl, 2006, p. 48). This presentation was unrelated to stigma, and
included a series of videos from the American Psychological Association and facts on psychology
careers, followed by a discussion lead by the principal investigator (one control group presentation was
given by a trained research assistant, due to scheduling conflicts). As per Wood and Wahl's (2006) design,
HIGH SCHOOL STIGMA INTERVENTION 9
in order to reduce the overt demand for changed responding and minimize potential confusion for control
participants being asked to complete measures seemingly unrelated to their presentation about psychology
careers, students were informed that they were being asked to participate in two major tasks: First, they
were told that they were serving as audience members for a presentation on a psychology-related topic.
Second, they were told that they were completing some questionnaires that are being pilot tested (i.e.,
Some of the questionnaires you will complete are being pilot tested among adolescents and thus may not
be directly relevant to the presentation you receive), thereby framing the completion of instruments and
the presentation as separate components. The true methodological connection between these components,
however, were shared as part of the debriefing.
Measures
1
Measures were selected that aligned with multidimensional conceptualizations of stigma
(DeLuca, 2019; Evans-Lacko et al., 2010; Link & Phelan, 2001; Link, Yang, Phelan, & Collins, 2004;
Pescosolido & Martin, 2015; Silke, Swords, & Heary, 2016). Measures that had been previously used in
research with adolescents or young adults were prioritized for selection.
Primary outcome variables. The Attitudes about Mental Illness and Its Treatment Scale (AMIS;
Kobau et al., 2010) was used to assess negative stereotypes toward persons with mental health problems.
A 7-item AMIS scale was used in this study on a 5-point Likert scale. The 4-item Categorical Thinking
subscale of the Attitudes Toward Serious Mental Illness-Adolescent Version (ATSMI-AV; Watson et al.,
2005) was also used to further assess stereotypes (also a 5-point Likert scale). Internal consistency for
AMIS was poor (Cronbach’s Alpha = 0.52 at Time 1). Internal consistency for ATSMI-AV scale was
questionable (Cronbach’s Alpha = 0.68 at Time 1). The Reported and Intended Behavior Scale (RIBS;
Evans-Lacko et al., 2011) was used to assess intended social distancing behaviors. This 4-item measure is
rated on a 5-point Likert scale (1 = agree strongly, 5 = disagree strongly) and has been validated with
adolescents (Mansfield, Humphrey, & Patalay, 2019). Internal consistency for the RIBS was acceptable
1
Scales were coded so that higher scores indicated higher levels of that phenomenon (e.g., stigma, knowledge). Scales were
transformed when necessary.
HIGH SCHOOL STIGMA INTERVENTION 10
(Cronbach’s Alpha = 0.79 at Time 1). The Mental Health Knowledge Schedule (MAKS; Evans-Lacko et
al., 2010) was used to measure stigma-related mental health knowledge. The MAKS is a 12-item measure
using a 5-point Likert scale. The MAKS is meant to be used in conjunction with attitude and behavior-
related measures when assessing stigma reduction programs. Internal consistency for the MAKS was poor
(Cronbach’s Alpha = 0.27 at Time 1). The revised Attribution Questionnaire (r-AQ; Pinto, Hickman,
Logsdon, & Burant, 2012; Watson et al., 2004), a 5-item measure using a 7-point Likert scale developed
specifically for adolescents, was used to measure emotional responses toward a hypothetical student with
mental illness. Internal consistency for the r-AQ was acceptable (Cronbach’s Alpha = 0.71 at Time 1).
The Intentions to Seek Counseling Inventory (ISCI; Cash, Begley, McCown, & Weise, 1975) was used to
measure mental health help-seeking intentions. The ISCI, a 10-item measure on a 4-point Likert scale,
consists of common problems that adolescents and young adults may seek counseling for (e.g.,
relationship difficulties, depression, concerns about sexuality), and asks participants how likely they
would be to seek counseling for such problem. A two-item measure related to peer support intentions was
also used in this study (Wong et al., 2015). Internal consistency for the ISCI was good (Cronbach’s Alpha
= 0.88 at Time 1). Internal consistency for the Peer Support scale was unacceptable (Cronbach’s Alpha =
0.25 at Time 1).
Secondary outcome variables. The Perceptions of Stigmatization by Others for Seeking Help
scale (PSOSH; Vogel, Wade, & Ascheman, 2009) assesses the perceived stigma persons anticipate from
those they interact with. The PSOSH is a 5-item scale on a 5-point Likert scale. Internal consistency for
the PSOSH was good (Cronbach’s Alpha = 0.86 at Time 1). The Self-Stigma of Seeking Help scale
(SSOSH; Vogel, Wade, & Haake, 2006) is a 10-item scale on a 5-point Likert scale consisting of items
related to feelings of inadequacy and inferiority for seeking mental health treatment. Overall, SSOSH
assesses threats to one’s self-evaluation due to seeking help and internalized stigma. Internal consistency
for the SSOSH was good (Cronbach’s Alpha = 0.82 at Time 1).The Disclosure Expectations Scale (DES;
Vogel & Wester, 2003) was used to directly assess disclosure worries about confidentiality in regard to
mental health services. The DES includes eight questions using a 5-point Likert scale about the
HIGH SCHOOL STIGMA INTERVENTION 11
anticipated utility and risk of disclosing personal information to a counselor. The DES comprises two
subscales of four items each Anticipated Risks (DES-AR) and Anticipated Benefits (DES-AB). Internal
consistency was acceptable for both subscales (DES-AR Cronbach’s Alpha = 0.78 at Time 1; DES-AB
Cronbach’s Alpha = 0.79 at Time 1).
Predictor variables. Identity development was measured via the Self-Concept Clarity Scale
(SCCS; Campbell et al., 1996), which assesses the consistency and stability of adolescents’ self-beliefs.
The SCCS is a 12-item scale, measured using a 5-item Likert scale. SCCS was only measured at Time 1.
The SCCS was coded so that higher scores indicated a stronger, more cohesive self-concept. Internal
consistency for the SCCS was good (Cronbach’s Alpha = 0.86 at Time 1). Given the relationship between
mental health knowledge and other dimensions of stigma, the MAKS was used as a predictor during some
data analyses. Other covariates included race/ethnicity, gender identity, grade level, age, and prior contact
with mental illness (“Do you have a family member who is diagnosed with a mental health problem?” and
“Do you have a close friend who is diagnosed with a mental health problem?”), consistent with past
research showing that female adolescents and adolescents with prior contact endorse less stigma (e.g.,
Dolphin & Hennessy, 2016).
Qualitative assessment. At Time 3, participants in both groups were asked to respond to two
open-ended questions: “What did you like best about the presentation?” and “What is one suggestion you
have for making this presentation better?” These questions are similar to those included in NAMI’s usual
satisfaction survey for ETS.
Data Analysis
First, descriptive analyses were conducted to provide sample characteristics and to explore
potential baseline differences between intervention and control group participants (using χ2 analyses or t-
tests). Next, analyses were completed to evaluate the longitudinal effects of a youth stigma reduction
program. Mixed-effects multilevel modelling (MLM) using the SPSS MIXED procedure (in SPSS v25)
was used to investigate main treatment effects and group by time interactions (i.e., the influence of
randomized group membership on the multiple dimensions of stigma over time, controlling for
HIGH SCHOOL STIGMA INTERVENTION 12
covariates). Mixed effects analyses were an appropriate statistical method for this repeated measure
design, because these analyses consider correlated data (e.g., as would be expected between repeated time
points) and unequal variances, accommodate for missing data (e.g., maximum likelihood estimates), and
allow for the inclusion of random effects and fixed effects . Questionnaires were also reviewed for
students who wrote in unusual responses (e.g., unusual gender identity, or an older age written down), or
who completed the survey extremely quickly (two standard deviations below the mean). Overall, no cases
were removed from the dataset based on these criteria. The apparent high quality of the data may have
partly been a function of the in-person nature of the study and the presence of research assistants and
teachers.
A power analysis was also specifically conducted for analyses of the clustered data (Campbell,
Mollison, Steen, Grimshaw, & Eccles, 2000), considering three levels: 1) between-student differences, 2)
within-student differences, and 3) between class differences. Since cluster power analysis requires a
calculation of intraclass correlation coefficients (ICC), ICCs were calculated first. The ICC was
calculated by using unconditional mean models for each outcome to estimate variance at each level (Shek
& Ma, 2011). The average ICC in this study was 0.039 across outcome measures (range: 0.01 to 0.08),
similar to prior, similarly designed stigma reduction studies (Chisholm et al., 2016; Winkler et al., 2017).
This value means that approximately 4% of the variance in outcome measures was due to classroom
effects. With this ICC and an average cluster size of 15, the power analysis indicated that a sample of 374
would be needed to detect moderate effects at an alpha level of .05 and a power level of .8. Since ICC
results indicated that classroom explained only a small percentage (4% on average) of the variation in
outcomes, and initial analyses found that the inclusion of classroom did not significantly change the
estimates of the models, classroom was not included as a random effect in the mixed models and random
effects were not used in the models presented below, for ease of presentation and interpretation.
Intent-to-treat analyses were conducted for all randomized students, regardless of “exposure” (as
long as one time point was completed). All predictors were included and analyzed within models based
on a priori hypotheses. Exposed only findings are not included here (i.e., removal of nineteen participants
HIGH SCHOOL STIGMA INTERVENTION 13
who were absent at Time 2), since the results were identical to the intent-to-treat analyses. Fixed effects
included randomized group and assessment time. Classroom was included as a random effect. Post-hoc,
Bonferroni-adjusted analyses were utilized for multiple comparisons.
Qualitative Data Analysis
Three coders (two research assistants and the principal investigator) on the research team
analyzed the text data using a consensual qualitative research framework (CQR; Hill, Thompson, & Nutt
Williams, 1997; Hill et al., 2005). All coders were trained in the CQR approach before starting this
process. First, the reviewers independently reviewed the data to develop general topic areas, then
expanded on each area with a brief summary of the domain and lastly, compared and contrasted the
categories to identify overlap between categories and the potential for merging categories or creating sub-
categories. Throughout this process, groups of text were placed into categories/domains, reviewed, and
re-grouped in subcategories as necessary. Double coding of data was allowed in some cases, but efforts
were made overall to merge categories and create specific domains (Hill et al., 1997). The coders met two
times for consensual validation. During these meetings, coders discussed areas of agreement and
disagreement, and coding differences were resolved. When differences could not be resolved, a senior
auditor and stigma expert from the research team helped to resolve the difference. Following the
consensus of all reviewers, categories and subcategories were derived and labeled with a name and
description. A tabulation of the number of unique respondents corresponding to the related category was
also provided.
Quantitative Results
Drop-out and treatment exposure. After completing at least one time point, a total of 14
students opted out of the study (11 in the control group and 3 in the intervention group). This difference
between randomized conditions was significant (p = .03, as per Fisher’s Exact Probability Test).
Participants who dropped out were more likely to have a family member with mental illness (54%, n = 7,
compared to just 25% of the non-dropped out sample) (χ2 = 4.00, df = 1, p = 045), and more likely to be
Arab/Middle-Eastern (40% dropped out, though the Arab/Middle-Eastern sample was small) (χ2 = 14.06,
HIGH SCHOOL STIGMA INTERVENTION 14
df = 5, p = 015). Participants who dropped out did not differ from other participants in regard to stigma
endorsement, self-concept clarity, or other socio-demographics. The majority of students (91%) were
considered “exposed” to their randomized condition (i.e., were present for class and completed Time 2
survey). Most missing data were due to participant absence rather than attrition.
Intent-to-Treat Outcome Analyses
The findings on the relationship between intervention assignment and change in outcomes over
time are presented in Table 2. These analyses included all participants, regardless of whether they
dropped out of the study or were absent during data collections. Various predictors were added to the
models, including gender, contact with mental illness (family and friend), school grade, race/ethnicity,
mean mental health knowledge across time points (MAKS), and baseline self-concept clarity (SCCS).
Two-way interactions (group by time) were also included in the analyses (controlling for
predictors/covariates) to determine if there were significant outcome changes over time that differed by
randomized group. Significant effects of time are presented below, in addition to between and within
group changes over time. As noted, post-hoc, Bonferroni-adjusted analyses were utilized to assess mean
differences in outcome by group at each time point. Effect size was calculated using Cohen’s d to assess
the magnitude of overall change from baseline to post-treatment in ETS versus the control group.
[Table 2 here]
Primary Outcomes
For one of the negative stereotypes scales (AMIS), there was a significant group by time
interaction (F = 3.55, df = 3, 481.12, p = .014) with all predictors in the model, indicating that
participants in the ETS group had a significant reduction in mental illness stereotypes over time in
comparison to control group participants (while controlling for other predictors; see Figure 2). This
significant change between groups was evident at Time 2 (p < .0005, 95% CI = -0.44 to -0.17) and at
Time 3 (p = .024, 95% CI = -0.29 to -0.02), but not Time 1 (p = .23) or Time 4 (p = .088). Overall higher
HIGH SCHOOL STIGMA INTERVENTION 15
mental health knowledge (MAKS) was a significant predictor
2
(p < .0005, B = -0.33, 95% CI = -0.41 to -
0.25) of lower negative stereotypes, as was family contact with mental illness
3
(no) (p = .004, B = 0.16,
95% CI = 0.05 to 0.27). There was not a significant main effect of time in this model (F = 1.89, df = 3,
487.10, p = .13). In terms of within group differences from Time 1 to Time 4, the difference between the
baseline AMIS score and final follow-up score for ETS participants was not significant (as per a paired
samples t-test). The magnitude of the differences in the AMIS means between groups across all time
points was small to medium (Cohen’s d = .44). Students who received ETS showed a 7% decrease in
negative stereotypes from pre (M = 2.15, SD = 0.46) to immediate post-test (M = 1.99, SD = 0.54),
whereas there was a nonsignificant increase for the control group from pre (M = 2.22, SD = 0.43) to
immediate post-test (M = 2.30, SD = 0.52). There was no change from pre to 2-months post-test for
students who saw ETS. There was not a significant group by time interaction for the categorical thinking-
negative stereotypes scale (ATSMI-AV), with and without predictors in the model. However, the effect of
time was significant with all predictors in the model (F = 3.67, df = 3, 489.04, p = .012), indicating a
reduction in categorical thinking in both groups over time.
[Figure 2]
Although the group by time interaction for intended social distance (RIBS) was significant (F =
4.08, df = 3, 512.39, p = .007) without any predictors in the model, the model became non-significant
with predictors added to the model (F = 2.20, df = 3, 483.89, p = .087). The effect of time was significant
in this latter model (F = 5.08, df = 3, 489.42, p = .002). MAKS (more knowledge)
4
(p < .0005, B = -0.30,
95% CI = -0.40 to -0.21), gender (female)
5
(p < .0005, B = -0.31, 95% CI = -0.46 to -0.16), and family
contact
6
(no) (p = .018, B = 0.21, 95% CI = 0.04 to 0.39) were predictors of lower social distance.
Students who received ETS showed a 12% decrease in intended social distancing from pre (M = 2.02, SD
= 0.72) to immediate post-test (M = 1.77, SD = 0.68), whereas there was a nonsignificant decrease for the
2
MAKS was a significant predictor of AMIS at all timepoints
3
Family contact was a significant predictor of AMIS at Time 1 and Time 3
4
MAKS was a significant predictor of RIBS at all timepoints
5
Gender was a significant predictor of RIBS at Time 1, Time 2, and Time 4
6
Family contact was a significant predictor of RIBS at Time 3
HIGH SCHOOL STIGMA INTERVENTION 16
control group from pre (M = 1.95, SD = 0.68) to immediate post-test (M = 1.90, SD = 0.66). Students who
received ETS also showed a 6% decrease in intended social distancing from pre to 2-months post-test.
The magnitude of the differences in the RIBS means between groups across all time points was quite
small (Cohen’s d = .06).
The group by time interaction for mental health knowledge (MAKS) was significant (F = 3.10, df
= 3, 495.13, p = .026) with all predictors in the model (see Figure 2), indicating that participants in the
ETS group had a significant increase in knowledge over time in comparison to control group participants
(while controlling for other predictors; MAKS was not included as a covariate in this model). This
significant change between groups was evident at all follow-up time points: Time 2 (p = .002, 95% CI =
0.07 to 0.33), Time 3 (p = .010, 95% CI = 0.04 to 0.30), and Time 4 (p = .034, 95% CI = 0.01 to 0.28).
Time was also a predictor (F = 11.52, df = 3, 495.08, p < .0005), and gender (female)
7
was a significant
predictor (p = .020, B = 0.11, 95% CI = 0.02 to 0.20) of higher knowledge, as was close friend contact
with mental illness (no)
8
(p = .021, B = -0.12, 95% CI = -0.23 to -0.02). Students who received ETS
showed a 9% increase in knowledge from pre (M = 3.41, SD = 0.44) to immediate post-test (M = 3.71, SD
= 0.45), whereas there was a nonsignificant increase for the control group from pre (M = 3.42, SD = 0.43)
to immediate post-test (M = 3.51, SD = 0.44). Students who received ETS also showed a 6% increase in
knowledge from pre to 2-months post-test. The magnitude of the differences in the MAKS means
between groups across all time points was small to medium (Cohen’s d = .24).
Although the group by time interaction for negative affect (r-AQ) was significant (F = 2.92, df =
3, 500.75, p = .034) without any predictors in the model, it became non-significant when predictors were
added (F = 2.48, df = 3, 480.14, p = .061). The effect of time was not significant in this latter model (F =
1.34, df = 3, 486.23, p = .260). The magnitude of the differences in the r-AQ means between groups
across all time points was small (Cohen’s d = .16). There was not a significant group by time interaction
for intentions to seek counseling (ISCI), without and with predictors, but time was significant (F = 3.22,
7
Gender was a significant predictor of MAKS at Time 2 and 4
8
Close friend contact was a significant predictor of MAKS at Time 1 and 3
HIGH SCHOOL STIGMA INTERVENTION 17
df = 3, 486.99, p = .023) with predictors in the model, indicating improvements in both groups over time.
Close friend contact (no)
9
(p = .028, B = -0.20, 95% CI = -0.38 to -0.02) and lower self-concept clarity
10
(p = .028, B = -0.12, 95% CI = -0.23 to -0.01) were predictors of help-seeking. Similarly, there was not a
significant group by time interaction for the Peer Support scale (with and without predictors), but the
effect of time was significant (F = 4.10, df = 3, 479.03, p = .007) with predictors in the model. The
magnitude of the differences in the ISCI and Peer Support means between groups across all time points
was very small (ISCI Cohen’s d = .003 and Peer Support Cohen’s d = .05). Since internal consistency was
particularly low for this scale, two additional analyses were conducted using each individual item from
the Peer Support scale as an outcome variable. Findings were still similar; with and without predictors
added, no significant interaction effects were observed.
Secondary Outcomes
The group by time interaction for perceptions of stigma for seeking help (PSOSH) was significant
(F = 2.96, df = 3, 482.91, p = .032) with predictors in the model, as was the effect of time (F = 3.29, df =
3, 490.12, p = .020), indicating that each group was changing over time in different ways. Based on the
pattern of PSOSH changes by group, no significant differences were found at each time point. Other
predictors of PSOSH included mental health knowledge
11
(p = .049, B = -0.13, 95% CI = -0.25 to -
0.001), female gender
12
(p = .002, B = -0.23, 95% CI = -0.38 to -0.09), school grade
13
(9th and 10th grade)
(p = .010, B = 0.19, 95% CI = 0.05 to 0.34), self-concept clarity
14
(p < .0005, B = -0.19, 95% CI = -0.29
to -0.08), and race/ethnicity
15
(identifying as Asian-American/Pacific Islander) (p < .0005, B = 0.41, 95%
CI = 0.21 to 0.61). Students who received ETS showed an 8% decrease in perceptions of stigma from pre
(M = 2.03, SD = 0.74) to immediate post-test (M = 1.87, SD = 0.83), and students in the control group
showed a 10% decrease in perceptions of stigma from pre (M = 2.19, SD = 0.76) to immediate post-test
9
Close friend contact was a significant predictor of ISCI at Time 4
10
Self-concept clarity was a significant predictor of ISCI at Time 1 and Time 3
11
MAKS was a significant predictor of PSOSH at Time 4
12
Gender was a significant predictor of PSOSH at Time 1, Time 2, and Time 3
13
School grade was a significant predictor of PSOSH at Time 2
14
Self-concept clarity was a significant predictor of PSOSH at Time 1, Time 2, and Time 4
15
Race/ethnicity was a significant predictor of PSOSH at Time 1, Time 2, and Time 4
HIGH SCHOOL STIGMA INTERVENTION 18
(M = 1.98, SD = 0.68). There was a 2% increase in perceptions of stigma from pre to 2-months post-test
for students who saw ETS, but an 11% decrease in such perceptions for the control group from pre to 2-
months post-test. The magnitude of the differences in the PSOSH means between groups across all time
points was very small (Cohen’s d = .02). The group by time interaction and time main effect for self-
stigma of seeking help (SSOSH) were non-significant, without and with predictors. The magnitude of the
differences in the SSOSH means between groups across all time points was small (Cohen’s d = .16).
The group by time interaction for disclosure worries: anticipated risk (DES-AR) was significant
(F = 4.68, df = 3, 481.54, p = .003) with predictors in the model, as was the effect of time (F = 3.42, df =
3, 486.18, p = .017), indicating that each group was changing over time in different ways. This change
between groups was significant at Time 4 only (p = .013, 95% CI = -0.65 to -0.08). Other predictors of
anticipated risk included gender (female)
16
(p = .027, B = 0.26, 95% CI = 0.03 to 0.48), school grade
17
(9th and 10th) (p = .017, B = 0.28, 95% CI = 0.05 to 0.50), and self-concept clarity
18
(p < .0005, B = -0.37,
95% CI = -0.52 to -0.21). Students who received ETS showed a 9% decrease in anticipated risks from pre
(M = 3.53, SD = 0.99) to immediate post-test (M = 3.17, SD = 0.97), whereas there was a nonsignificant
increase for the control group from pre (M = 3.39, SD = 1.06) to immediate post-test (M = 3.43, SD =
1.03). Students who received ETS also showed a 14% decrease in anticipated risks from pre to 2-months
post-test. The group by time interaction and time main effect for anticipated benefits (DES-AB) was non-
significant, with and without predictors in the model. The magnitude of the differences in the DES-AR
and DES-AB means between groups across all time points was small (Cohen’s d = .21 and .23,
respectively).
Qualitative Results
The 95 participants who were present for Time 2 for the ETS presentation provided written
feedback. The majority of these participants reported satisfaction with and positive feedback for the ETS
16
Gender was a significant predictor of DES-AR at Time 1 and Time 2
17
School grade was a significant predictor of DES-AR at Time 2 and Time 4
18
Self-concept clarity was a significant predictor of DES-AR at all timepoints
HIGH SCHOOL STIGMA INTERVENTION 19
presentation. Specific themes were identified within two sections: “Aspects Liked Best” and “Suggestions
for Improvement” (see Table 3 for a summary). Regarding Aspects Liked Best,participants
highlighted the importance of personal stories and experiences (e.g.,“The presenters really opened up to
us about their personal life and struggles”). Similarly, participants reported liking the psychoeducation,
specifically the resources handed out (e.g., “I liked the references we were given at the end for us to
use”), in addition to the video/visual images component of the presentation. Lastly, some students
specifically highlighted the presenters’ presentation style (e.g., “I felt the presentation was well organized
and spoken”) and expressed overall positive emotion toward the presentation. Regarding Suggestions for
Improvement, students reported wanting more psychoeducation and resources (e.g., “go into what
differentiates certain mental illness”) and wanting to hear more personal stories and experiences. A
smaller number of students wanted more videos and visuals, with only four students suggesting the
presentation be more concise. A larger number of students indicated that there should be more interaction
and discussion (e.g., “make it more interactive with students”)
[Table 3 here]
Discussion
Findings from the current study indicated that ETS (compared to the active control) had a small
but significant impact on negative stereotypes and mental health knowledge, consistent with results from
prior youth stigma reduction studies (Corrigan et al., 2012). Trends further indicated potential positive
effects for ETS participants in regard to reduced intentions to socially distance from people with mental
illness, reduced negative affect, and increased intentions to seek counseling. Consistent with the
hypothesis, effects were typically the strongest at Time 2 (immediate follow-up).
The current study addressed gaps in the current research and had several strong design and
methodological components. First, this study connected adolescent mental health stigma to a model and
theory of stigma. Second, researchers partnered with a national organization and evaluated a standardized
program that can be replicated, improved, and potentially dismantled in the future, in order to identify key
ingredients. Third, this study used an RCT design with an active control group and three follow-up points,
HIGH SCHOOL STIGMA INTERVENTION 20
along with controls for covariates. Studies of youth stigma reduction programs have rarely employed
randomized design (including an active control group), and even fewer have used follow-ups beyond a
pre- and post-test. Fourth, from a recruitment perspective, this study used passive parent/guardian
consent, leading to a high enrollment rate in the study. In the future, researchers may consider advocating
for passive parent/guardian consent or for mature minors’ participation without caregiver permission (see
American Psychological Association, 2018).
Contrary to hypotheses for primary outcomes, no changes were observed in regard to reduced
negative stereotypes in terms of categorical thinking, or improved intentions to help a peer with a mental
health problem, but the effects of time were significant for these models. For categorical thinking, it is
possible that content in both presentations (ETS and active control) provided students with a more
nuanced and realistic view of mental health. Additionally, it is possible that maturation, a threat to
internal validity, occurred for all students, whereby normal developmental changes led to less
dichotomous thinking about mental illness among students. In regard to intentions to provide peer
support, it is possible that the ETS presentation needs to provide students with more concrete information
on how to provide peer support. This was an area for improvement suggested in a prior post-test only
evaluation of ETS (DeLuca et al., 2018).
In regard to secondary outcomes, effects were weaker overall compared to primary outcomes,
consistent with hypotheses. It is unclear why perceptions of stigma for seeking help (PSOSH) generally
decreased in the control group over time. Research using PSOSH as an outcome variable in stigma
reduction programs is mixed (Hackler, 2011; Lopez, 2018; McGuire-Wise, 2016; Setti et al., 2019).
Given this and also that perceived and anticipated stigma are among the strongest predictors of help-
seeking (Clement et al., 2015; Gulliver et al., 2010), this is an important topic to target and evaluate in
future studies. In regard to self-stigma of seeking help (SSOSH) as an outcome, no significant interaction
was found in the current study. It is also possible that there was no effect on self-stigma, since ETS does
not explicitly focus on self-stigma. Future studies should target and measure this aspect of stigma, since
HIGH SCHOOL STIGMA INTERVENTION 21
meta-analyses and systematic reviews have found that self-stigma is one of the strongest predictors of
help-seeking behaviors (e.g., Nam et al., 2013).
A significant group by time interaction was found for anticipated risks of disclosing to a
counselor, whereby participants in the ETS group anticipated lower risk over time, which became
significant at Time 4 between groups. Based on these results, students who saw the ETS presentation felt
more comfortableand less vulnerablein potentially disclosing personal feelings and information to a
mental health counselor. This is a potentially important finding, because past meta analyses have found
that disclosure worries are predictors of help-seeking intentions (Nam et al., 2013). This is only the
second study to measure disclosure worries as an outcome of a stigma reduction program (Demyan &
Anderson, 2012). Male gender, being an 11th or 12th grade student, and having a stronger self-concept
were predictors of lower anticipated risk. Adolescent males generally perceive less risk and are more
willing to engage in riskier behaviors than adolescent females (Reniers, Murphy, Lin, Bartolomé, &
Wood, 2016), which may partially explain this result, however mental health stigma tends to be higher
among young males. More research is warranted in this area. More broadly, higher grade level was also a
predictor lower stigma across several outcomes (ATSMI-AV, MAKS, DES-AR) and this variable should
continue to be studied. In regard to gender, identifying as female was a predictor of lower stigma across
many outcomes as well. Some researchers (Koller & Stuart, 2016) have suggested that future
interventions may need to incorporate gender-specific stigma reduction programming. Compared to prior
ETS studies, these results confirm the benefits of ETS in terms of reducing stereotypes and negative
affect and improving knowledge (Taniyama, 2016; Wahl et al., 2018; Wong et al., 2015). Wong and
colleagues (2015) similarly found no significant impact of the ETS intervention on peer support or help-
seeking though, again, the results in regard to personal help-seeking intentions were trending. Similar to
Wahl and colleagues’ (2018) study, the effects of the intervention in the current study appeared to
generally decrease over time for some measures.
Qualitative results. Participants who were audience members for the ETS presentation overall
had positive impressions of the program. Students most enjoyed the personal story part of the
HIGH SCHOOL STIGMA INTERVENTION 22
presentation, followed by the educational information. Students also believed the presenters were credible
and competent, which is an important factor for programs (Cerully, Collins, Wong, Seelam, & Yu, 2018).
In terms of suggestions, students believed that ETS could be improved by including more personal
stories, education, and videos/visuals. Most importantly, many students suggested that future
presentations incorporate more interaction and discussion. This suggestion is consistent with prior
evaluations of ETS (DeLuca et al., 2018), which found that students wanted more encouragement from
presenters to participate in the presentation. This suggestion is also consistent with calls for adolescent
stigma reduction programs to consider cognitive and socio-emotional features of adolescent development
(Newcomb-Anjo, 2018). Other researchers have suggested interactive interventions for youth via active
learning strategies, incorporating youth stories, and promoting youth leadership (Ahmad et al., 2019;
Austin & Schwartz, 2018; Bulanda, Bruhn, Byro-Johnson, & Zentmyer, 2014).
Limitations of Current Study and Future Directions
The current study only sampled one high school in an urban area of the US and was
underpowered as per a cluster randomized controlled trial power analysis. Although the demographics of
this high school were generally reflective of NYC public high schools, it is possible that this sample was
different in some ways from other schools (e.g., potentially having more baseline interest in mental
health, given their agreement to participate in the study). In terms of design, although a randomized
design with an active control group was used, it is possible that bias was unintentionally introduced by the
researchers. To this end, a selection bias may have been present whereby teachers with mental health
contact and/or strong beliefs about mental health education were more willing to participate. Further,
given that only one school participated in this study, it is possible that students in different randomized
groups spoke about the presentations after Time 2 (i.e., contamination), though efforts were made to
conceal the true purpose of the study, and having a control and treatment group within the same school
helped to control for disentangle internal validity factors (e.g., history, maturation) within a same-school
context.
HIGH SCHOOL STIGMA INTERVENTION 23
In terms of the presentation, although the same speakers and format were used for each class,
some presentations were slightly shorter than others (e.g., due to starting late), and no presentation lasted
the full 50 minutes (but instead 35-40 minutes). Though this aspect of the study may give more weight to
the findings in regard to ecological validity, it is possible that this shortened presentation format
decreased the impact of the intervention. Corrigan and colleagues (2010) have found that another NAMI
stigma intervention (for adults) is equally effective in a 90-minute format (original design) and 30-minute
format (pared down design), but more research is needed on adapting ETS. Relatedly, the speakers in this
study primarily shared personal stories regarding depression and an eating disorder. There are specific
stigmas toward eating disorders (e.g., beliefs about fragility and attention-seeking; see Roehrig &
McLean, 2010), but also some common stigmas that are endorsed across mental health conditions (e.g.,
personal responsibility). Further, depression tends to be less stigmatized than other mental health
experiences, such as psychosis (Pescosolido et al., 2013). It is possible that personal stories about other
mental health diagnoses may have different effects on the outcome, though few studies collect this
information and researchers have called for this to be an area of future investigation (Koller & Stuart,
2016). In terms of content, ETS’ psychoeducation component is primarily psychosocial in nature (e.g.,
describing the effects of stress and environment on mental health, and how to use social support), but
there is a brief discussion of biological aspects of mental health. The effect of stigma reduction programs
may differ based on educational content and future studies should consider this (Ojio et al., 2020). The
effect of stigma reduction programs can also differ based on multiple forms of contact (e.g., Deb et al.,
2019) and other presenter factors. Lastly, to this end, although the two speakers were diverse in this study
and there was one young presenter, future research should continue to monitor the impact of speaker
demographics on outcomes, and try to match speaker demographics (e.g., age, race/ethnicity, language)
with student demographics when possible (see Chen et al., 2016). ETS and other mental health awareness
and stigma reduction presentations can also be studied and developed with elementary and middle school
students. Overall, programs must also consider intersectionality more broadly and acknowledge how
HIGH SCHOOL STIGMA INTERVENTION 24
mental health intersects with race/ethnicity, gender, age, class, and sexual orientation, in terms of both
perception and personal experience (Corrigan, Rüsch, & Scior, 2018; DuPont-Reyes et al., 2019).
In terms of measurement, some scales had low internal consistency and results should be
interpreted with this caveat. Moreover, some scale ranges in this study were relatively constricted, with
students in this study skewing toward being relatively non-stigmatizing. Ceiling effects such as these have
been noted in prior studies (Evans-Lacko et al., 2011) and multidimensional measures of stigma (as well
as measures of social desirability bias) should continue to be incorporated in future research.
Additionally, all scales were self-report and not diagnosis-specific, and no objective measures of behavior
were included in the current study. Future studies should explore the effects of stigma reduction programs
by evaluating stigma toward various mental health conditions, not just “mental health” or “mental illness”
in general. Future studies should also employ in-depth pre-test assessments of mental health knowledge
and conceptualizations, in order to determine what youth believe mental illness is.
Conclusions
The results suggest that NAMI’s Ending the Silence is well-liked by youth and has positive
effects on multiple stigma dimensions for high school youth. As a standardized program within a national
organization, ETS can be developed further to continue improving mental health knowledge, reducing
stigma, and increasing inclusion and help-seeking behaviors, and to maintain these effects over time.
Instead of acting as a solo intervention, ETS may work best with booster sessions and in tandem with
mental health school curriculum approaches (e.g., Milin et al., 2016), youth-involved community
approaches (e.g., Ramey & Rose-Krasnor, 2015), youth-led stigma reduction and mental health
promotion approaches (e.g., Bulanda et al., 2014; Eisenstein et al., 2019; Parikh et al., 2018), and with
other youth social justice initiatives (e.g., Corrigan, Watson, Byrne, & Davis, 2005; Mayberry, 2013).
Future investigations into the manifestations of stigma and ways to reduce stigma can lead to better
understandings of the stigma process and improvements in life outcomes for youth.
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HIGH SCHOOL STIGMA INTERVENTION 25
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HIGH SCHOOL STIGMA INTERVENTION 37
HIGH SCHOOL STIGMA INTERVENTION 38
Table 1.
Sociodemographic Characteristics of Participants at Baseline
ETS
N = 105
Control
N = 101
Total
N = 206
N (%)
N (%)
N (%)
Χ2
df
Gender:
Male
Female
Transgender
Gender Fluid
46 (45)
55 (54)
0 (0)
1 (1)
41 (41)
59 (58)
1 (1)
0 (0)
87 (43)
114 (56)
1 (.5)
1 (.5)
.26
1
Grade
9
10
11
12
0 (0)
57 (54)
31 (30)
17 (16)
17 (17)
31 (31)
41 (41)
12 (12)
17 (8)
88 (43)
72 (35)
29 (14)
26.87
3
Race/Ethnicity:
African-American
European-American
Latino/a/x
Asian-American
Arab/Middle-Eastern
Native American
Multiethnic/racial
Other
21 (20)
40 (38)
19 (18)
13 (12)
2 (2)
0 (0)
8 (8)
2 (2)
22 (22)
32 (32)
13 (13)
15 (15)
3 (3)
0 (0)
16 (16)
0 (0)
43 (21)
72 (35)
32 (16)
28 (14)
5 (2)
0 (0)
24 (12)
2 (1)
5.03
5
Close Friend Contact
Yes
No
37 (35)
68 (65)
31 (31)
69 (69)
68 (33)
137 (67)
.25
1
Family Contact:
Yes
No
28 (27)
77 (73)
26 (26)
74 (74)
54 (26)
151 (74)
<.0005
1
M (SD)
M (SD)
M (SD)
t
df
Age
15.3
(.86)
15.5
(1.01)
15.4 (.94)
-1.37
204
Note. ETS refers to Ending the Silence. Some values do not add to 206 because of data cleaning,
rounding, or missing responses. χ2 analyses for race/ethnicity omitted the group “Other” and “Native
American” since these groups violated the assumption of the analysis (< 5 cases).
HIGH SCHOOL STIGMA INTERVENTION 39
Table 2.
Estimated Marginal Means and Standard Errors for Mental Health Stigma Outcomes for Randomized
Groups
Measures
Randomized
Group
Baseline
n = 198
Immediate
Post-Test
n = 187
1-month
n = 181
2-months
n = 171
Group by Time
Interaction
M
SD
M
SD
M
SD
M
SD
ES
F
df
p
Negative Stereotypes
(AMIS)
ETS
2.15
.46
1.99
.54
2.05
.49
2.15
.54
.44
3.55
3,
481
.014
Control
2.22
.43
2.30
.52
2.21
.46
2.28
.50
Categorical Thinking
(ATSMI-AV)
ETS
1.93
.66
1.77
.62
1.84
.70
1.83
.62
.14
.207
3,
484
.892
Control
2.01
.70
1.91
.67
1.97
.64
1.97
.62
Intended Social
Distance (RIBS)
ETS
2.02
.72
1.77
.68
1.82
.68
1.89
.77
.06
2.20
3,
484
.087
Control
1.95
.68
1.90
.66
1.88
.67
2.00
.68
Knowledge (MAKS)
ETS
3.41
.44
3.71
.45
3.61
.53
3.62
.48
.24
3.10
3,
495
.026
Control
3.42
.43
3.51
.44
3.44
.44
3.47
.39
Negative Affect (r-
AQ)
ETS
2.01
.80
1.90
.75
2.12
.83
2.04
.79
.16
2.48
3,
480
.061
Control
1.99
.81
1.97
.79
1.92
.75
1.94
.80
Intentions to Seek
Counseling (ISCI)
ETS
2.11
.64
2.10
.68
2.13
.66
2.20
.68
.003
1.89
3,
483
.131
Control
2.22
.61
2.03
.71
2.02
.71
2.11
.80
HIGH SCHOOL STIGMA INTERVENTION 40
Note. Higher AMIS and ATSMI-AV = higher negative stereotypes. Higher RIBS = higher intended social
distance. Higher MAKS = higher mental health knowledge. Higher r-AQ = higher negative affect. Higher
ISCI and Peer Support = higher intentions to seek help and help a peer, respectively. Higher PSOSH and
SSOSH = higher perceptions of stigma and self-stigma, respectively. Higher DES-AR = higher
anticipated risk. Higher DES-AB = higher anticipated benefits. SD refers to standard deviation. ES refers
to effect size for overall mean score difference between ETS and control group (via Cohen’s d). Group by
time interaction significance level refers to full models (i.e., all predictors included).
Intentions to Provide
Peer Support (Peer)
ETS
4.03
.55
4.13
.66
3.92
.68
3.92
.68
.05
1.08
3,
472
.356
Control
4.12
.63
4.05
.61
3.95
.59
3.89
.71
Perceptions of
Stigma (PSOSH)
ETS
2.03
.74
1.87
.83
2.09
.77
2.07
.87
.02
2.96
3,
483
.032
Control
2.19
.76
1.98
.68
1.89
.69
1.96
.79
Self-Stigma
(SSOSH)
ETS
2.58
.68
2.53
.68
2.61
.66
2.57
.71
.16
1.51
3,
479
.211
Control
2.65
.67
2.69
.66
2.73
.72
2.81
.72
Anticipated Risks
(DES-AR)
ETS
3.53
.99
3.17
.97
3.20
.96
3.05
.99
.21
4.68
3,
482
.003
Control
3.39
1.06
3.43
1.03
3.41
1.14
3.41
1.08
Anticipated Benefits
(DES-AB)
ETS
3.15
.97
3.16
.94
3.18
.88
3.15
.81
.23
.313
3,
466
.816
Control
2.91
.86
3.02
.84
3.02
.84
3.02
.96
HIGH SCHOOL STIGMA INTERVENTION 41
Table 3.
Qualitative Feedback for Ending the Silence (N = 95)
Domain
Percentage Endorsed
n
Aspects Liked Best
Personal stories and experiences
31%
30
Psychoeducation
24%
23
Videos and visual images
11%
10
Presentation Style
6%
6
Overall positive emotions
6%
6
Suggestions for Improvement
More psychoeducation and resources
14%
13
More personal stories and experiences
9%
9
More videos and visuals
7%
7
More interaction and discussion
24%
23
More concise
4%
4
No suggestions
20%
19
Note. Percentages are derived by: total domain responses/95. Some totals do not equal 95, since some
participants did not provide qualitative feedback. For the category “No suggestions,” participants
explicitly stated they had no suggestions.
HIGH SCHOOL STIGMA INTERVENTION 42
Figure 1
Consolidated Standards of Reporting Trials (CONSORT) participant flow diagram.
14 high school classes
assessed for eligibility (n = 232)
Students who completed assent
(n = 208; 90%)
Students excluded (n = 26)
Parent/guardian opt out (n = 3)
Declined to participate or absent for
first two visits (n = 23)
Completed T3 (n = 94)
Completed T4 (n = 87)
7 classes allocated to Ending the Silence
intervention (n = 105)
Completed pretest/T1 (n = 101)
Received allocated intervention and
completed posttest/T2 (n = 95)
Completed T3 (n =87)
Completed T4 (n = 84)
7 classes allocated to control group (n = 101)
Completed pretest/T1 (n = 97)
Received allocated intervention and
completed posttest/T2 (n = 92)
Allocation
Follow-Ups
Randomized 14 classes
(N = 206)
Enrollment
Recruitment
HIGH SCHOOL STIGMA INTERVENTION 43
Figure 2.
Estimated marginal means between groups for negative stereotypes (AMIS) and mental health knowledge
(MAKS) over Time (Time 1 = baseline, Time 2 = immediate post-test, Time 3 = one month follow-up,
Time 4 = two month follow-up).
... Both public and self-stigma surrounding mental disorders exist: public stigma is the negative attitudes and discriminatory behaviours from others towards those with mental disorders, whereas self-stigma is the negative perception of self as a person with a mental health disorder (Corrigan, 2000(Corrigan, , 2004Corrigan & Watson, 2002). Long-standing research in the relationship between public stigma and help-seeking suggests that individuals who have mental disorders may be reluctant to seek help in order to avoid being labelled as mentally ill and associated negative stereotypes and discrimination (DeLuca, Tang, Zoubaa, Dial, & Yanos, 2020;Link & Phelan, 2001;Shechtman, Vogel, Strass, & Heath, 2018). Research also revealed that selfstigma may be more predictive of help-seeking, as it mediates the relationship between public stigma and help-seeking (Lannin, Vogel, Brenner, Abraham, & Heath, 2016;Vogel, Wade, & Hackler, 2007). ...
... Four studies examined how school-based interventions changed general attitudes towards help-seeking (DeLuca et al., 2020;Perry et al., 2014;Pinto-Foltz, 2009;Saporito et al., 2011). All four studies assessed explicit attitudes, and two of these also assessed implicit attitudes towards help-seeking (DeLuca et al., 2020;Saporito et al., 2011). ...
... Four studies examined how school-based interventions changed general attitudes towards help-seeking (DeLuca et al., 2020;Perry et al., 2014;Pinto-Foltz, 2009;Saporito et al., 2011). All four studies assessed explicit attitudes, and two of these also assessed implicit attitudes towards help-seeking (DeLuca et al., 2020;Saporito et al., 2011). ...
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Background School‐based mental health literacy interventions aim to prevent mental disorders and promote mental wellbeing through improving the knowledge and understanding of mental health, mental disorders, and reducing stigma. Evidence suggests that good mental health literacy helps young people recognise mental health difficulties in themselves and in others, and seek help for mental health problems. Improved help‐seeking can allow for early intervention, which prevents the progression of mental disorders and ultimately reduces the burden of mental disorders. The aim of this review is to identify and synthesise evidence on the effectiveness of school‐based mental health literacy interventions in improving help‐seeking outcomes. Methods We searched MEDLINE, Embase, PsycINFO, ERIC, Child Development and Adolescent Studies, British Education Index and ASSIA (June 2020). Additional searches were conducted a year later to identify any new publications (June 2021). We included randomised controlled trials (RCTs) assessing the effectiveness or cost‐effectiveness of school‐based interventions to improve help‐seeking outcomes for children and young people aged 4–18 years. Included studies were critically appraised. Results We identified 11 studies investigating help‐seeking outcomes of school‐based mental health literacy interventions including a total of 7066 participants from 66 secondary schools. Overall, there is no strong evidence for the effectiveness of school‐based mental health literacy interventions in improving help‐seeking outcomes, including general attitudes towards help‐seeking, personal intentions to seek help, knowledge of when and how to seek help for mental disorders, confidence to seek help, and actual help‐seeking behaviours. None of the studies investigated the cost‐effectiveness of the interventions. Conclusion The lack of standardised measures with established reliability and validity for help‐seeking outcomes, and the incomprehensive consideration of the multi‐faceted concepts of MH literacy and MH stigma have contributed to the scarcity of evidence for the effectiveness. Future research should focus on developing standardised measurement tools and including economic evaluations to understand pragmatic and financial aspects of school‐based mental health literacy interventions.
... Specifically, stigma around seeking psychological help can result in reluctance, refusal of assistance, and avoidance of psychotherapy (Vogel et al., 2006;Tucker et al., 2013;Lannin et al., 2015). Individuals with mental disorders may avoid seeking help to dodge labels of mental illness and subsequent stereotypes and discrimination (Shechtman et al., 2018;DeLuca et al., 2020). Help-seeking stigma involves derogatory labels for those seeking psychological help, encompassing both public and self-stigma (Hao and Liang, 2011;Michaels et al., 2012;Yu et al., 2022). ...
... The study suggested that the stigma linked to seeking professional psychological assistance acts as a mediator between mental health literacy and the behavior of seeking such help, in line with prior studies (Vogel et al., 2006;Clement et al., 2015;Schnyder et al., 2017;Shechtman et al., 2018;DeLuca et al., 2020). First, mental health literacy significantly predicts lower stigma towards seeking professional psychological help and enhancing literacy levels can mitigate this stigma (Shi et al., 2020;Yin et al., 2020). ...
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Introduction Mental health literacy is viewed as a significant factor that may facilitate an individual’s pursuit of professional psychological assistance. However, it is important to explore further influencing factors that might underlie this association. This study, employing the framework of the Theory of Planned Behavior (TPB), aims to examine the relationship between mental health literacy and the behavior of seeking professional psychological help, with a focus on the potential mediating roles of perceived stigma and social support in this context. Methods We surveyed 911 college students in seven regions of China (406 males and 505 females, aged between 19 and 25 years old; Mage = 19.65, SD = 1.41) utilizing self-report measures, including the Mental Health Literacy Questionnaire, Professional Psychological Help-Seeking Behavior Scale, Professional Psychological Help-Seeking Stigma Scale, and Perceived Social Support Scale. A chain mediation model was developed to analyze the interconnections between mental health literacy, stigma related to seeking psychological help, perceived social support, and professional psychological help-seeking behaviors. Results The mediation effect analysis indicates that: (1) mental health literacy significantly positively correlates with professional psychological help-seeking behaviors; (2) both perceived social support and professional psychological help-seeking stigma significantly mediate the relationship between mental health literacy and professional psychological help-seeking behavior; (3) perceived social support and the stigma associated with seeking professional psychological help play a chained mediating effect between mental health literacy and the behavior of seeking professional psychological help. Discussion This study found that mental health literacy indirectly facilitates professional psychological help-seeking behaviors by enhancing the perception of social support and reducing the stigma associated with seeking such help. These findings help in understanding how improving mental health literacy and perceived social support while reducing stigma can increase the likelihood of individuals seeking professional psychological assistance. The results are significant for enhancing the utilization of mental health services and implementing mental health education programs in universities.
... Anti-stigma interventions in low and middle-income countries often lack long-term data and cultural specificity compared to high-income countries (Vaishnav et al. 2023), with sociocultural nuances likely influencing program effectiveness. Despite short-term improvements from education-based interventions, their long-term effects remain uncertain (Milin et al. 2016;DeLuca et al. 2021). Studies like EspaiJove.net ...
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Background Stigma against mental health problems is a common issue for adolescents aged 14–18 years. However, comprehensive programs that simultaneously address awareness and stigma reduction tailored to the specific needs of this age group are lacking. Method This study investigated the effectiveness of the Mental Health Awareness and Destigmatisation Program (MHAD) in reducing stigma and improving knowledge and attitudes towards peers with mental health problems. A quasi‐experimental pre‐post design was employed among adolescents aged 14–18 years from an educational institution in Bangalore. After excluding those with high baseline mental health symptoms (PSC‐17 > 20), a preassessment was conducted on adolescents' knowledge, attitude, and stigma ( n = 52) using the Mental Health Knowledge Schedule, Self‐structured Case Vignettes, and Peer Mental Health Stigmatization Scale. After completing the 6‐week program, three participants were excluded from the post‐assessment, as their attendance was less than 50%. A total of 49 (mean age = 16 years) adolescents were included in the post‐assessment. Results The paired sample t ‐test revealed significant improvements in all stigma scores. The Wilcoxon signed‐rank test indicated a significant improvement in Recognition of Mental Illness scores. Conclusion Findings showed that MHAD, an education‐based program, was effective in reducing adolescents' stigma towards peers with mental health problems and improving their overall recognition of mental health symptoms. Research across larger adolescent populations is essential to enhance these interventions' long‐term impact and sustainability. By closely monitoring and expanding research efforts, we can gain deeper insights into how these programs foster self‐awareness, a crucial factor in recognizing mental health needs, challenging stigma, and promoting help‐seeking behaviors among adolescents.
... The fact that they do not attract as much attention as physical health problems in society prevents the formation of an adequate level of literacy about mental health problems. Moreover, the anxiety of exclusion or stigmatization of individuals suffering from mental health problems is seen as one of the biggest obstacles in the treatment of these problems (DeLuca et al., 2021;Ferrie et al. 2020;World Health Organization, 2022). Taking into account that around one-eighth of the global population has these issues, it makes perfect sense for literature to examine this topic. ...
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The relative lack of attention given to mental health issues compared to physical health problems in society poses a significant barrier to the development of adequate literacy surrounding mental health concerns. Furthermore, the pervasive stigmatization of individuals suffering from these disorders exacerbates the burden they face. In light of the increasing prevalence of mental illnesses and the imperative for timely interventions, the potential of Young Adult Literature depicting mental illnesses to enhance literacy in this realm appears promising. Consequently, it is aimed to examine the representation of obsessive-compulsive disorder in Am I Normal Yet? by the British author Holly Bourne. Initially, the disorders are contextualized within a broader framework, followed by an exploration of their representation within the novel. Subsequently, a thorough analysis is carried out on these representations, with a specific emphasis on how symptoms and treatment alternatives are presented in the narrative. Furthermore, due to the impact of environmental factors on mental health problems, the reactions elicited by these disorders within the storyline are investigated and discussed.
... The study found that the strategies used by educators to provide psychosocial support services to adolescent male learners involved increasing learners' mental health literacy, promoting mindfulness, promoting social, emotional and behavioural learning, enhancing connectedness among learners, staff, and families, providing psychosocial skills training and cognitive behavioural interventions and guidance and counselling. These findings are in line with observations made by scholars in United States of America and South Africa respectively (CDC, 2023;UNICEF, 2022;Dray & Wisneski, 2011;DeLuca, Tang, Zoubaa, Dial, & Yanos 2021;Mahwai & Ross, 2023). ...
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This study sought to examine how educators provided psychosocial support services to adolescent male learners with behavioural problems in three Insiza District Secondary Schools, Matabeleland South Province. The study was guided by interpretivist paradigm, adopted qualitative approach and employed case study design. Data were collected from a population sample comprising twelve male learners, three educators and three counsellors through focus group discussions for learners, and in-depth semi-structured interviews for educators and counsellors. The results of the study revealed that educators established the needs of the individual learners first before applying the intervention. The study found that the strategies used by educators to provide psychosocial support services to adolescent male learners involved promoting mindfulness, promoting social, emotional and behavioural learning, enhancing connectedness among learners, staff, and families, providing psychosocial skills training and cognitive behavioural interventions and guidance and counselling. The findings further indicated that adolescent male learners with behavioural problems were taught life skills such as team work, responsibility, good decision making, critical thinking, stress management, health and life skills, honesty and integrity. They are also taught tolerance, self-sufficiency, relationships, self-esteem, self-control, communication skills, conflict resolution, and, leadership skills and community involvement. The study established that educators encountered a number of challenges in provision of psychosocial support services to adolescent male learners with behaviour problems. The challenges comprised inadequate training, stress and emotional strain, lack of support, time constraints, difficulty in establishing rapport, and vicarious traumatisation. The study concluded that despite the challenges faced in providing psychosocial support services to adolescent male learners with behaviour problems, educators in selected Insiza District Secondary Schools used varied strategies to assist learners. The study recommended that the Ministry of Primary and Secondary Education should intensify training of educators to equip them with requisite knowledge and skills on provision of psychosocial support in schools.
Chapter
The child and adolescent mental health crisis is complex, encompassing financial and geographic barriers to care, a shortage of trained providers, personal and systemic stigma, restrictions on youth autonomy, and numerous other concerns identified and discussed in-depth by previous authors (Kazdin, 2017; Radez et al., 2022). It follows that the solution to these concerns must be similarly complex, incorporating a broad array of strategies. In addition to strengthening traditional methods of mental health service delivery, new avenues for ameliorating the mental health crisis must be explored to build a comprehensive and variegated system of support (Gruber et al., 2021; Kazdin, 2019). In this chapter, we introduce one potential avenue: school-based single session interventions.
Article
School-based mental health literacy (MHL) programs can increase knowledge, reduce stigma, and encourage help-seeking behaviors in school-aged children. Yet, MHL intervention effects are inconsistent and unsustainable over time, and scholars have called for more theoretical work to address these limitations. The purpose of this theoretical review is to investigate how theory is utilized in MHL interventions, explore the interpersonal communication processes integrated in MHL interventions, and uncover the theoretical assumptions made in MHL interventions about interpersonal communication. We identified 27 articles for inclusion and utilized both content and interpretive analyses. Findings suggest that very few MHL interventions are based in theory; interpersonal communication is a central component within MHL programming; and numerous assumptions are made about interpersonal communication within MHL interventions that need to be addressed theoretically and empirically. Accordingly, we recommend that MHL intervention content and delivery practices are grounded in interpersonal communication theory related to disclosure and social support (seeking and provision). Additionally, teaching disclosure and social support skills may be a productive way for MHL interventions to help students build self-efficacy in communication about mental health for themselves and others.
Chapter
This book draws on more than 25 years of experience developing and evaluating anti-stigma programs to reduce negative and unfair treatment experienced by people with a mental or substance use disorder. It builds on a previous edition, Paradigms Lost: Fighting Stigma and the Lessons Learned, that identified new approaches to stigma reduction. This volume examines the newest approaches to stigma reduction with respect to structural stigma, public stigma, and internalized stigma. The goals of anti-stigma work must be to eliminate the social inequities that people with mental and substance use disorders and their families face to promote their full and effective social participation. Awareness raising and mental health literacy are important, but they do little to change the accumulated practices of social groups and social structures that systematically disadvantage those with mental and substance use problems. The book is written with one eye to the past (what we have done well) and one to the future (what we must still do). It goes into depth in targeted areas such as healthcare, workplaces, schools, and the media. We expect that this edition will be a useful sequel to Paradigms Lost, chronicling what we have learned as a global community regarding stigma related to mental illness and substance use and stigma-reduction approaches.
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Adolescents are often burdened with academic, home, and peer stressors. With adolescent mental health issues and suicide on the rise, administrators have worked with nonprofit organizations and the community to address stress and internalized behavior problems. School-based wellness centers are tranquil rooms with various sensory activities, calming nature scenes, and sounds for relaxation purposes. School-based wellness centers may have behavioral effects by reducing exposure to aversive events and increasing access to positive and negative reinforcers. There has not yet been a formal study of school-based wellness centers published in the literature. In the present study, we used questionnaires to examine the perceptions of 752 students, 124 parents, and 69 school staff of their high school wellness center. Results indicated that stakeholders had positive perceptions of the wellness center. In particular, results implied that stakeholders believed the wellness center contributed to students' academic success, elevation of mood, confidence, and coping skills. Results also suggested that attendance at the wellness center was associated with a decrease in student stress and anxiety, though recommendations for improvements were noted. Implications and limitations of this study are discussed. Supplementary information: The online version contains supplementary material available at 10.1007/s43494-022-00079-1.
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Aims Mental health-related stigma is a major challenge associated with the huge mental health treatment gap. It has remained unclear what kind of educational content is effective in reducing the stigma. Whether biomedical messages (BMM) about mental illness are effective or harmful in decreasing stigma is controversial. To investigate whether BMM can improve practically useful knowledge of mental illness, comparably to recommended messages (RCM) advocated by experts, of types such as ‘recovery-oriented’, ‘social inclusion/human rights’ and ‘high prevalence of mental illnesses’ through a randomised controlled trial (RCT). Method This study is an individual-level RCT with a parallel-group design over 1 year, conducted in Tokyo, Japan. A total of 179 participants (males n = 80, mean age = 21.9 years and s.d . = 7.8) were recruited in high schools and universities, and through a commercial internet advertisement in June and July 2017, without any indication that the study appertained to mental health. Participants were allocated to the BMM and RCM groups. They underwent a 10-min intervention, and completed self-report questionnaires during baseline, post-test, 1-month follow-up and 1-year follow-up surveys. The primary outcome measures were practically useful knowledge of mental illness at the post-test survey using the Mental Illness and Disorder Understanding Scale (MIDUS). Analysis was conducted in October 2018. Results Both groups demonstrated improved MIDUS score in the post-test survey, and showed similar intervention effects ( F(1, 177) = 160.5, p < 0.001, η² = 0.48). The effect of the interventions continued until the 1-year follow-up survey ( B [95% CI] = −2.56 [−4.27, −0.85], p < 0.01), and showed no difference between groups. The reported adverse effect that BMM increase stigma was not confirmed. Conclusions BMM may have a positive impact on stigma, comparable to RCM. These findings may encourage reconsideration of the content of messages about mental health, as it is indicated that combining BMM and RCM might contribute to an effective anti-stigma programme.
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Despite increasing interest in mental health education to reduce stigma, few studies assess changes in self-reported and intended discriminatory behavior. The current study evaluated the psychometric quality of the Reported and Intended Behavior Scale with adolescents. Participants were 11 to 15-year-olds from England (N = 1,032, 58% female). Confirmatory factor analysis established a two-factor structure. The intended behavior scale showed high internal consistency (α = .94, ω = .94) and observed ceiling effects. A moderate correlation was found between intended behavior and stigma-related knowledge (r = .39). The average reading age was 14 years; however, the introductory text had a high reading age and might benefit from being simplified in future use. Females and early adolescents (aged 11–13 years) reported more positive intended behaviors overall, with some group differences in item response. Multigroup confirmatory factor analysis revealed partial scalar measurement invariance. Future research should assess self-reported and intended behavior and be cautious when investigating mean differences for gender and age.
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We examined the effectiveness of a student-initiated and guidebook-supported high school club program aimed at reducing mental-illness stigma via humanization—largely through contact—hypothesizing that stigma measures would improve across a school year and as a function of the timing of club initiation. Forty-two Northern California high schools (731 students) participated from 2015–2017. Stigma measures (Knowledge, Attitudes, Social Distance, and Positive Actions) were collected in the fall (Time 1 [T1]), winter (Time 2 [T2]), and spring (Time 3 [T3]). Schools were matched on student-body demographics, then randomized into either an immediate (23 clubs at T1) or delayed (19 clubs at T2) start. The sample was diverse regarding race/ethnicity and class standing. Across both randomized groups, measures of stigma significantly improved from beginning to end of the school year; effect sizes ranged from small to medium (d = .22–.56). The hypothesized pattern of change was partially supported: the immediate group showed significant increases from T1–T2 for Attitudes and Positive Actions; the delayed group showed a stronger increase from T2-T3 for Knowledge. Ceiling effects at baseline were salient. Baseline stigma measures were in a more positive direction than in a prior, quasi-experimental study of the same club model 5 years earlier, with effect sizes ranging from d = .32 to .88, suggesting secular trends regarding lower stigma levels. Findings support the importance of school-based interventions for reducing mental-illness stigma, particularly via student-initiated, contact-based efforts. It is possible that youth mental-illness stigma has decreased in recent years, with more sensitive measures needed in future trials.
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Differences in mental illness (MI) stigma among adolescents were examined cross-sectionally across race, ethnicity, and gender to identify target populations and cultural considerations for future antistigma efforts. An ethnically and socioeconomically diverse sample of sixth graders (N = 667; mean age = 11.5) self-completed assessments of their MI-related knowledge, positive attitudes, and behaviors toward peers with MI and adolescent vignettes described as experiencing bipolar (Julia) and social anxiety (David) symptoms. Self-reported race, ethnicity, and gender were combined to generate 6 intersectional composite variables: Latino boys, Latina girls, non-Latina/o (NL) Black boys, NL-Black girls, NL-White boys, and NL-White girls—referent. Linear regression models adjusting for personal and family factors examined differences in stigma using separate and composite race, ethnicity, and gender variables. In main effects models, boys and Latina/o adolescents reported greater stigma for some outcomes than girls and NL-White adolescents, respectively. However, intersectional analyses revealed unique patterns. NL-Black boys reported less knowledge/positive attitudes than NL-Black and White girls. NL-Black and Latino boys reported greater avoidance/discomfort than NL-White girls. Moreover, NL-Black girls and boys and Latina/o girls and boys wanted more social separation from peers with mental illness than NL-White girls; NL-Black boys also reported more separation than NL-White boys, NL-Black girls, and Latina girls. Finally, NL-Black boys and Latina girls wanted more distance from David than NL-White and Black girls. Vital for informing future antistigma interventions, this study generates new knowledge about how differences in views about MI exist across racial and ethnic identity, and how gender intersects with these perceptions.
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Background Schizophrenia is one of the most stigmatized psychiatric disorders, and disclosing it is often a source of stress to individuals with the disorder. The Coming Out Proud (COP) group intervention is designed to reduce the stigma’s negative impact and help participants decide if they want to disclose their disorder. Aims To assess the effect of the COP intervention in individuals with the diagnosis of schizophrenia. Methods A pilot study of 3 2-hour group lessons (6–12 participants) per week. Individuals were selected from three specialized outpatient services in São Paulo, Brazil; 46 people were willing to participate, 11 dropped out during the intervention and 4 were excluded due to low intelligence quotient (IQ), resulting in a final sample of 31 participants. Outcomes were assessed before (T0/baseline) and after (T1/directly) after the COP intervention, and at 3-week follow-up (T2/3 weeks after T1). We applied eight scales, of which four scales are analyzed in this article (Coming Out with Mental Illness Scale (COMIS), Cognitive Appraisal of Stigma as a Stressor (CogApp), Self-Stigma of Mental Illness Scale-Short Form (SSMIS) and Perceived Devaluation-Discrimination Questionnaire (PDDQ)). Results People who completed the COP intervention showed a significant increase in the decision to disclose their diagnosis (22.5% in T0 vs 67.7% in T2). As to the perception of stigma as a stressor, mean values significantly increased after the intervention (T0 = 3.83, standard deviation (SD) = .92 vs T2 = 4.44, SD = 1.05; p = .006). Two results had marginal significance: self-stigma was reduced (T0 = 3.10, SD = 1.70 vs T2 = 2.73, SD = 1.87; p = .063), while perceived discrimination increased (T0 = 2.68, SD = .55 vs T2 = 2.93, SD = .75; p = .063). Conclusion This study suggests that the COP group intervention facilitated participants’ disclosure decisions, and the increasing awareness of stigma as a stressor in life may have facilitated their decision to eventually disclose their disorder. The results raise questions that require further analysis, taking sociocultural factors into account, as stigma is experienced differently across cultures.
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Background Stigma and discrimination are a significant public health concern and cause great distress to people with mental illness. Healthcare professionals have been identified as one source of this discrimination. In this article we describe the protocol of an international, multisite controlled study, evaluating the effectiveness of READ, an anti-stigma training for medical students towards patients with mental illness. READ aims to improve students’ ability to minimise perceived discriminatory behaviours and increase opportunities for patients, therefore developing the ability of future doctors to address and challenge mental illness related discrimination. READ includes components that medical education research has shown to be effective at improving attitudes, beliefs and understanding. Methods/design READ training was developed using evidence based components associated with changes in stigma related outcomes. The study will take place in multiple international medical schools across high, middle and low income countries forming part of the INDIGO group network, with 25 sites in total. Students will be invited to participate via email from the lead researcher at each site during their psychiatry placement, and will be allocated to an intervention or a control arm according to their local teaching group at each site. READ training will be delivered solely to the intervention arm. Standardised measures will be used to assess students’ knowledge, attitudes and skills regarding discrimination in both the intervention and control groups, at baseline and at follow up immediately after the intervention. Statistical analyses of individual-level data will be conducted using random effects models accounting for clustering within sites to investigate changes in mean or percentages of each outcome, at baseline and immediately after the intervention. Discussion This is the first international study across high, middle and low income countries, which will evaluate the effectiveness of training for medical students to respond effectively to patients’ experiences and anticipation of discrimination. The results will promote implementation of manualised training that will help future doctors to reduce the impact of mental illness related discrimination on their patients. Limitations of the study are also discussed.
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Purpose The purpose of this paper is to determine the efficacy of the Peer Education Project (PEP), a school-based, peer-led intervention designed to support secondary school students to develop the skills and knowledge they need to safeguard their mental health and that of their peers. Design/methodology/approach Six schools from across England and the Channel Islands took part in an evaluation of the PEP across the 2016/2017 academic year. In total, 45 trained peer educators from the sixth form and 455 Year 7 students completed pre- and post-questionnaires assessing their emotional and behavioural difficulties, perceived school climate, and knowledge, skills and confidence related to mental health. Findings Results indicate that participation in the PEP is associated with significant improvement in key skills among both peer educators and student trainees, and in understanding of key terms and readiness to support others among trainees. Most students would recommend participation in the programme to other students. Originality/value While peer education has been found to be effective in some areas of health promotion, research on the effectiveness of peer-led mental health education programmes in schools is limited. This study contributes evidence around the efficacy of a new peer education programme that can be implemented in secondary schools.
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The majority of mental illnesses develop during the teenage years, and such mental health conditions can significantly derail psychosocial development. However, many adolescents are reluctant to pursue mental health services or do not know how to help their peers who may be struggling. Stigma and low mental health knowledge have been identified as leading barriers to such mental health help-seeking. In response, there has been increasing interest in understanding the development of stigma among youth and evidence-base interventions to reduce stigma. The focus of this narrative review was to summarize findings from the adolescent mental illness stigma literature and to link findings to a multidimensional and theoretical model of stigma and adolescent development, with the goals of informing future research and evidence-based stigma reduction practices. Existing evidence suggests that stigma is well-documented among adolescents, but that little consensus exists regarding how to implement successful adolescent-focused mental illness stigma reduction programs. Suggestions for improvement include evaluating the multiple dimensions of mental illness stigma when conducting research, considering the impact of adolescent development on program development and evaluation, using reliable and valid outcome measures, and employing strong research designs (e.g., randomized trials with fidelity checks and long-term follow-ups) to evaluate standardized programs.
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Early adolescence is a crucial period in the development of mental health disorders. Although a significant number of adolescents experience mental health needs, only a third of adolescents with mental health disorders receive treatment; many adolescents cite the stigmatization of mental health disorders as a deterrent to seeking help. Cognitive and social developments in early adolescence make middle school an ideal period to combat stigma. School-based antistigma interventions, however, have historically targeted high school and college students, thus missing a valuable window for intervention. This article reviews existing empirical studies on middle school antistigma interventions, along with examining relevant developmental research and theory. Taken together, the literature points to the significant potential such interventions may hold for shifting middle school students’ knowledge and attitudes around mental health disorders. In particular, interventions drawing on active learning approaches that incorporate youth’s voices, perspectives, and leadership may be more effective in influencing various aspects of mental health stigma among middle school students. At the same time, there are significant limitations to the current literature. Recommendations for future research are discussed.