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Coordination of care for multimorbid patients from the perspective of general practitioners – a qualitative study

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Background: In Germany, a decreasing number of general practitioners (GPs) face a growing number of patients with multimorbidity. Whilst care for patients with multimorbidity involves various healthcare providers, the coordination of this care is one of the many responsibilities of GPs. The aims of this study are to identify the barriers to the successful coordination of multimorbid patient care and these patients' complex needs, and to explore the support needed by GPs in the care of multimorbid patients. Interviewees were asked for their opinion on concepts which involve the support by additional employees within the practice or, alternatively, external health care professionals, providing patient navigation. Methods: Thirty-two semi-structured, qualitative interviews were conducted with 16 GPs and 16 medical practice assistants (MPAs) from 16 different practices in Berlin. A MPA is a qualified non-physician practice employee. He or she undergoes a three years vocational training which qualifies him or her to provide administrative and clinical support. The interviews were digitally recorded, transcribed and analysed using the framework analysis methodology. Results: The results of this paper predominantly focus on GPs' perspectives of coordination within and external to general practice. Coordination in the context of care for multimorbid patients consists of a wide range of different tasks. Organisational and administrative obstacles under the regulatory framework of the German healthcare system, and insufficient communication with other healthcare providers constitute barriers described by the interviewed GPs and MPAs. In order to ensure optimal care for patients with multimorbidity, GPs may have to delegate responsibilities associated with coordinating tasks. GPs consider the deployment of an additional specifically qualified employee inside the general practice to take on coordinative and social and legal duties to be a viable option. Conclusions: The cross-sectoral cooperation between all involved key players working within the healthcare system, as well as the coordination of the whole care process, is seemingly challenging for GPs within the complex care system of multimorbid patients. GPs are generally open to the assignment of a person to support them in coordination tasks, preferably situated within the practice team.
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R E S E A R C H A R T I C L E Open Access
Coordination of care for multimorbid
patients from the perspective of general
practitioners a qualitative study
Judith Stumm
1*
, Cornelia Thierbach
1
, Lisa Peter
1
, Susanne Schnitzer
2
, Lorena Dini
1
, Christoph Heintze
1
and
Susanne Döpfmer
1
Abstract
Background: In Germany, a decreasing number of general practitioners (GPs) face a growing number of patients
with multimorbidity. Whilst care for patients with multimorbidity involves various healthcare providers, the
coordination of this care is one of the many responsibilities of GPs. The aims of this study are to identify the
barriers to the successful coordination of multimorbid patient care and these patientscomplex needs, and to
explore the support needed by GPs in the care of multimorbid patients. Interviewees were asked for their opinion
on concepts which involve the support by additional employees within the practice or, alternatively, external health
care professionals, providing patient navigation.
Methods: Thirty-two semi-structured, qualitative interviews were conducted with 16 GPs and 16 medical practice
assistants (MPAs) from 16 different practices in Berlin. A MPA is a qualified non-physician practice employee. He or she
undergoes a three years vocational training which qualifies him or her to provide administrative and clinical support.
The interviews were digitally recorded, transcribed and analysed using the framework analysis methodology.
Results: The results of this paper predominantly focus on GPsperspectives of coordination within and external to
general practice. Coordination in the context of care for multimorbid patients consists of a wide range of different
tasks. Organisational and administrative obstacles under the regulatory framework of the German healthcare system,
and insufficient communication with other healthcare providers constitute barriers described by the interviewed GPs
and MPAs. In order to ensure optimal care for patients with multimorbidity, GPs may have to delegate responsibilities
associated with coordinating tasks. GPs consider the deployment of an additional specifically qualified employee inside
the general practice to take on coordinative and social and legal duties to be a viable option.
Conclusions: The cross-sectoral cooperation between all involved key players working within the healthcare system, as
well as the coordination of the whole care process, is seemingly challenging for GPs within the complex care system of
multimorbid patients. GPs are generally open to the assignment of a person to support them in coordination tasks,
preferably situated within the practice team.
Keywords: Primary health care, Multimorbidity - coordination of care - general practitioner, Medical practice assistant -
navigator - qualitative research
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(http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
* Correspondence: judith.stumm@charite.de
1
Institute of General Practice, Charité Universitaetsmedizin Berlin,
Charitéplatz 1, 10117 Berlin, Germany
Full list of author information is available at the end of the article
Stumm et al. BMC Family Practice (2019) 20:160
https://doi.org/10.1186/s12875-019-1048-y
Content courtesy of Springer Nature, terms of use apply. Rights reserved.
Background
Due to a recent demographic change in Germany, GPs are
faced with a growing number of patients with multimor-
bidity. The care of these patients with complex needs is
often provided by multiple doctors and a range of other
healthcare professionals, and the coordination of their care
is challenging for both GPs and patients [1]. Coordination
of care for multimorbid patients means a functioning
trans-sectoral care that interlocks all involved healthcare
providers. The coordination of care especially includes
work beyond the direct patient contact. The elements that
define coordination are difficult to specify, because coord-
ination tasks are not detached from other care tasks [2].
Research findings suggest that coordination of care in gen-
eral practice as well as care provided by multidisciplinary
teams can enhance the continuity of care of patient with
multimorbidity [24].
Primary health care (teams) play a decisive role in
the coordination and therefore the continuity of care of
multimorbid patients [2]. GPs provide comprehensive
long-term care for patients with multimorbidity, playing
the central role in patientscare, which implies a sense
of affiliation [5]. Often, they have to assume a mediating
role between specialists and patients in order to find a
compromise between the specialists recommendations
and the patients needs, views and wishes [26].
At the same time, the decline in the number of GPs in
Germany means that new concepts have to be developed
to support them, particularly in the coordination of care
for patients with complex needs [7].
Possible concepts include the integration of general
practice into a cross-sectoral model of care [8], or the de-
ployment of additional healthcare professionals to coord-
inate the care of patients with multimorbidity in general
practice. The deployment of non-medical professions for
coordination tasks and specific clinical duties could relieve
the GPs and raise consultation times [2,8,9]. Further-
more, medical settings, in which physicians and non-
medical healthcare professions work together in teams
demonstrate improved patient outcomes [10]. A shared
definition of goals, cooperative tasks and responsibilities
help to enhance patient care [11].
In Germany, general practices are mostly small units
with one or two GPs and two to four MPAs [9]. Currently,
single-handed practices are the most strongly represented
in Germany [12]. In general practices, the qualified med-
ical practice assistant(Medizinische Fachangestellte,
MPA), the primary mid-level healthcare professional, is an
important member of German GPspractice teams. MPAs
complete a three-year training programme which qualifies
them for office management/clerical administration (such
as scheduling appointments and updating patientsfiles)
and a broad range of nursing-based clinical duties (such as
taking medical histories, explaining treatment procedures,
performing diagnostic procedures like ECG and blood
pressure measurements, taking blood samples, and pro-
viding home visits). Two thirds of the training programme
take place in the practice and one third in vocational
school [13]. Even though GPs have to provide medical
treatments personally, they are allowed to delegate certain
tasks. These tasks are defined in the Agreement on the
delegation of medical services to non-medical staff in
ambulatory healthcareby the Federal Medical Associ-
ation [14]. Studies have shown that care management
interventions are feasible and effective if they are delivered
by MPAs [15,16]. The involvement of MPAs can also im-
prove patient care, and lead to a reduction of GPswork-
loads [17]. GPs and MPAs work in close collaboration,
and MPAs enjoy a high level of acceptance on the side of
patients [18].
In other countries, the involvement of additional health
professionals in primary care, such as physician assistants,
nurses and nurse practitioners in anglo-american countries
or praktijkondersteunerin the Netherlands is common.
A multidisciplinary primary care team might contribute to
more comprehensive patient care and improve the coord-
ination of care in comparison to a physician working in a
solo practice (Bellagio-Model) [19].
Another model for the improvement in the care of pa-
tients with complex needs is based on navigation. Patient
navigation is an umbrella term based upon models of
care and case management that include support and
guidance for patients accessing the care system [20].
Patient navigation does not address a single point in care
but follows patients proactively throughout the entire
process of ambulatory and inpatient healthcare. Naviga-
tion programs differ in types of navigator roles; common
tasks are the provision of information, guidance, advo-
cacy, emotional and practical support, as well as educa-
tion and empowerment [20,21]. A central aim of patient
navigation is to serve vulnerable populations [20].
The research consortium NAVICARE Patient-centred
health services research(https://navicare.berlin/de/),
funded by the Federal Ministry of Education and Re-
search (Bundesministerium für Bildung und Forschung,
BMBF), aims to acquire knowledge about the barriers
which keep patients from receiving optimal care, and to
study effective, patient-oriented ways to overcome these
barriers, such as navigation, by exploring different perspec-
tives in two subprojects, see Additional file 1:FigureS1.
The subproject COMPASS (https://navicare.berlin/de/
forschung/navicare-forschung/) focuses on the perspec-
tive of the GP practice and patients in the long term
ambulatory care. This article concentrates on the find-
ings of the first stage of the mixed-methods approach
within COMPASS, the interviews with GPs and MPAs.
The aims of the interviews were 1.) to explore the views
of GPsand MPAson requirements and barriers for the
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successful coordination of care for patients with multi-
morbidity and complex needs, 2.) to identify the need
for support, and 3.) to investigate opinions on two differ-
ent models of support: support from within the practice,
by delegation and/or expansion of the practice team, or
support from external health care professionals, providing
navigation.
Methods
We conducted semi-structured interviews with 16 GPs
who are statutory health insurance registered (KV-
Ärzte) in Berlin, as well as one of their MPAs (n= 16).
The participants were purposively sampled from the
practice-based research network ANCHORof the In-
stitute of General Practice, Charité - Universitaetsmedi-
zin Berlin. They were approached via e-mail and
telephone. The selection of GPs was carried out in order
to represent the Berlin GP population in terms of gender
as well as the maximum spread of practice locations
over different city districts of Berlin. The GPs then des-
ignated one MPA from their practice as the other inter-
view partner, meaning that from each recruited practice,
one GP and one MPA were interviewed individually.
The interviews took place in the respective GP practices.
Interviews were audio-recorded and transcribed verba-
tim. Any identifying details were removed and partici-
pants were assigned pseudonyms. Written informed
consent was obtained from all participants.
The study was approved by the research ethics com-
mittee of the Charité - Universitaetsmedizin Berlin
(EA4/034/17).
The interview guideline was developed based on stud-
ies from the previous literature as well as the experience
of the researcher. It was discussed in a multidisciplinary
working group and adjusted until a consensus was
reached. The same interview guideline was applied to
GPs and MPAs. The interview guideline included a
number of open questions regarding the themes coord-
ination, delegation, optimal care and community care in
general practice (see Table 1).
Face-to-face interviews were chosen as the data collection
method for the first stage of the COMPASS project. This
was in order to ensure in-depth discussions of this complex
topic. The issues raised in the interviews were then used to
develop a questionnaire that was sent to all GPs in Berlin
who are statutory healthcare registered. The aim was to
supplement the qualitative study results by obtaining a
broader perspective of a large number of GPs. In this paper
we report the results of the interviews with the GPs, com-
plemented by the views of the interviewed MPAs.
Data analysis
By using the framework analysis [22] as a systematic ap-
proach to manage and analyse qualitative data, seven
Table 1 Topic guide with exemplary questions from the
interview guideline
Theme: Coordination
Topic Examples of questions
1. Problems/Barriers in health
care coordination
Can you recall a multimorbid
patient of yours with complex
care needs?
2. Patient groups with need
for coordination
Are there any other patient
groups that you think are
particularly affected by
coordination difficulties?
3. Achievements in the
coordination of health care
Can you think of an example
where coordination went well?
4. Improvements in the
coordination of health care
You mentioned some problems
and achievements, do you have
additional suggestions on what
you would like to improve in
coordination?
5. Coordination within
your practice
Could you imagine that one or
more people in your practice
take on coordinative tasks?
6. Coordination offers outside
the general practice
There are concepts and projects
that introduce so-called extern
navigators - these are additional
people who are supposed to take
on specific coordinative tasks but
are not permanently located in
the GP practice.
Do you have any experience
with this?
Theme: Delegation
7. Delegation of medical
services from doctor to
medical practice assistant
in the practice
Which additional tasks would you
hand over to your medical practice
assistant?
8. Recognition of the
professional group of the
medical practice assistant
What could be an appropriate
appreciation/compensation for
the additional services and
responsibilities of the medical
practice assistant?
9. Team collaboration How do you exchange information
about patients in your team?
10. Multidisciplinary
collaboration
Could you imagine having an
employee in your practice who
is neither a medical doctor nor
a medical assistant, but belongs
to a new professional group and
takes on tasks of care and
coordination?
Theme: Optimal Care
11. Definition of optimal
patient care from a
primary care perspective
and viewpoint of the MPA
What would optimal care mean
for your sample patient from
the question in the beginning?
Theme: Community Care
12. Use of social and medical
support services in the
region
What are your experiences regarding
medical and social support services?
Which ones do your patients use?
Topic guide with exemplary questions. Complete interview guideline is
available from the authors upon request. Questions could be individually
adapted to the conversation flow of the respective interviews
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steps have been implemented: (1) transcription of the in-
terviews; (2) familiarisation with the interviews; (3) cod-
ing; (4) developing a working analytical framework; (5)
applying the analytical framework; (6) charting data into
the framework matrix; and (7) interpreting the data. The in-
terviews were analysed by a research team that included re-
searchers from different professional disciplines, such as
GPs, health services researchers, a sociologist and a public
health scientist. By applying these different perspectives, re-
searcher (investigator-) triangulation was achieved. Two re-
searchers (CT, JS) coded the interviews independently.
Subsequently, both researchers compared, discussed and, if
necessary, adjusted the coding. A combined deductive and
inductive approach was used for the coding procedure. Con-
sensus on the interpretation was established in the group of
researchers after a thorough discussion of the data.
All interviews were analysed with the support of the
qualitative analysis software program MAXQDA® 18
(VERBI software GmbH, Germany).
Results
We interviewed 16 GPs from nine different city districts
and, independently, 16 MPAs from the same practices (for
details, see Table 2). Each interview lasted 45 to 60 min.
Coordination from the perspective of the GPs
Initially, we wanted to know what the term coordin-
ationmeans to GPs in the context of care for patients
with multimorbidity. The interviewed GPs had various
opinions on what coordination consists of.
Well everything I do here is actually coordination, I
bring the various support possibilities and healthcare
services together, yes. I do little else except coordinate.
Apart from prescribing tablets. [ ]and so we actually
do very little. We are more a sort of dispatcher; we
connect where and when it makes sense.(GP_10).
[]Coordination means: one learns from the
other and one informs the other, like hospitals
and GPs. [ ](GP_11).
Determining the medication regime; ensuring home
care; referrals, also for physiotherapy, logotherapy etc.;
avoiding hospitalisations; and the quality of life of the
patient and the psychosocial context are also
important.(GP_15).
The coordination role of the GP starts with being the
primary contact for the patient, assessing the needs of
the patient and their relatives and organising further
help structures.
The general practice constitutes a social and medical
contact point and simultaneously provides immediate
and sustained medical care. It can act as an advisory
point for medical matters but also for social and legal
problems, relating to questions relevant to family as well
as local community relationships, and questions relevant
to social legislation like gaining access to social benefits
and socio-medical services.
[]The general practitioner is the person who is
always in charge.(GP_7).
GPs perceive themselves as the appropriate person to
coordinate patientscare. They take on a coordinating role
by law (Book V of the Social Law § 73), but also see them-
selves as the authority to manage the patientsentirecare
process. The role of the coordinator includes organisa-
tional and administrative matters, as well as coordinating
care involving other medical and non-medical profes-
sionals, such as other medical specialists, home care ser-
vices, physiotherapists, psychologists or health insurance.
GPs cite examples of successful coordination, such as
the involvement of patientsrelatives, the implementa-
tion of the standardised national medication plan, the
introduction of disease management programs (DMP),
as well as quality assurance measures.
In summary, from the GPsperspective, good
coordination:
requires defining what is best for the patients and
acting in the interests of the patients;
in general practice, is based on reliability as well as
trust in the practice staff;
requires that all medical and non-medical key
players engaged in the patients care have knowledge
of and communicate with each other.
Barriers to successful coordination
Frequently reported problems in the coordination of pa-
tientscare were constraints resulting from administra-
tive and organisational issues, the regulatory framework
for GPs in Germany, and the communication with other
health professionals and specialists.
Table 2 Characteristics of interviewees by group (n= 32)
Characteristics of interviewees
GPs (n = 16) MPAs (n = 16)
Gender Male: 10 Male: 2
Female: 6 Female: 14
Age (years) Median: 54.5
(Range: 3969)
Median: 44
(Range: 2163)
Practice type Single handed: 7
Group: 9
Number of employees
in the practice
Median: 5.5 (Range: 319)
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Organisation and administration
Many of the patientsneeds are not of a medical na-
ture. Some of the interviewed GPs feel that there is a
need to delegate services that do not fall within their
responsibilities to other professionals. These needs are
not of a medical nature and rather relate to social
and legal issues.
[]There is a need for services that essentially dont
fall into the responsibility of the GPs because they are
not of a medical nature. They could be delegated to a
person who is qualified in social matters, for example,
social services.(GP_16).
Many interviewed GPs feel burdened by the lack of time
in the care of patients with complex needs. The scheduled
time for consultation does not provide enough time to
deal with the multiple issues of the patient.
Lack of time is the biggest problem. The patients have
too many issues and after the consultation, they
dont know any more what has been discussed. I try to
write it down for them, but I only have the time for
very short notes. [ ](GP_8).
The burden of administrative and organisational re-
quirements seems to be particularly high when caring
for patients with multimorbidity.
According to the interviewed GPs, organisational and
administrative tasks include accounting, arranging ap-
pointments with specialists and other healthcare pro-
viders, filling out and signing forms (such as assessment
forms for nursing care), organising home care services,
and organising the transfer of immobilised patients to
hospitals or other health specialists.
Let me put it this way. We have an 85-year-old
male patient; we have to arrange appointments for
him, organise transport and even have to print out
his medical report and make sure he takes it with
him.(GP_5).
Some GPs feel that certain organisational duties could
be assigned to a trusted MPA, but most GPs want to re-
tain ultimate responsibility. Others would appreciate an
additional employee to take responsibility for all future
organisational and administrative tasks.
I would wish that all these forms []could be signed
by a nurse, e.g. for home care, ergotherapy, even the
repeat prescriptions. Why not? This would be a relief
for me because for this you dont need to be a doctor
[]But this isnt possible with the existing
bureaucratic regulations. (GP_1).
Regulatory framework for GPs in Germany
Individual elements of the general framework of the Ger-
man health system seem to cause a barrier to patient care.
The interviewed GPs reported that they need to justify
necessary care beyond the basic level of services, which
causes extra administrative work.
In this context, a frequently mentioned problem is the
insufficient renumeration for the care of patients with
complex and frequent needs. GPs describe that they are
often in conflict in terms of whether to act in line with
economic considerations or to offer optimal care for this
patient group by investing a considerable amount of
time and financial resources.
[]The lump sum payment per patient per three
months only covers two visits per patient. Patients who
are chronically ill and have to come more often are
not sufficiently covered. [ ]If I wanted to work
economically, I could only see the patients twice every
three months. But even if the patient is not here, I still
have to react to diagnostic reports and have to
organise things like transports to other doctors or
arranging appointments [ ]If I want to care for the
patients at the highest possible level, I have to do that
for free.(GP_5).
In Germany, every patient has to be personally seen by
the doctor, even for minor ailments. Some interviewees
believe that an employee with an additional qualification
in certain fields could relieve the GP and provide more
room for the care of patients with complex care needs.
This would indeed be a relief for us, but it would also
turn our system on its head (laughs). We are a doctor-
dominated system and every patient with a bug, such
as a cold, has to visit a GP. Of course, it would make
more sense if not every patient with minor ailments
was obliged to visit a GP; why should I as a doctor see
every patient with a cold? Its completely absurd. Eco-
nomically, of course, it makes sense: financially it is at-
tractive to see healthy patients.(GP_12).
In Germany, GPs dont have a gatekeeping function.
Therefore, some patients dontevenhaveaGP.Most
of the interviewed GPs perceived that multimorbid
patients with insufficient social support from a stable
social environment who are not in contact with a
general practice, are in danger of slipping through the
net of the German healthcare system. On the other
hand, patients with complex needs may make exten-
sive use of the system. For both patient groups, it
would be helpful if someone led them through the
jungleof manifold available healthcare resources
and coordinated their care.
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This is a structural problem: someone rambles
through the health care system without any
coordination, then suddenly hits the GP practice with
a completely unclear situation. Then it is impossible to
reconstruct the story because reports were not collected
anywhere(GP_12).
Communication with external healthcare providers
The interviewed GPs reported a lack of sufficient com-
munication structures with other caregivers such as spe-
cialist physicians, home care nurses or physiotherapists.
Much time has to be invested into trying to contact
other healthcare providers in order to coordinate the
next steps in the care of the patient. In Germany, patient
data is not exchanged electronically between healthcare
professionals. External patient documents such as dis-
charge letters and findings are usually sent by post.
Often medical reports are only sent to GPs after re-
peated reminders. As a result, the coordination of care
becomes difficult when important information is missing
or is difficult and time-consuming to obtain.
Iactuallydont spend most of my time treating patients
and writing prescriptions; I spend most of my time
talking, listening, calling someone, not being able to
reach someone and then having to call someone else.
This makes some situations very difficult.(GP_14).
The GPs reasoned that better cooperative treatment
with the possibility of easily accessible, specialised
counselling for patient-related issues would lead to
better patient care.
In the interviews, they often emphasised the difficulty
that patients have obtaining appointments with special-
ists, as well as the lack of opportunities for professional
exchange with other doctors.
To obtain an appointment with a specialist
sometimes is really difficult for the patient. Principally,
it is an option that we as GPs try to arrange for an
appointment, but we also have to phone several times
before we reach somebody, and this is extremely time-
consuming and often unsuccessful. []So, you have to
send the patient home and try it again after office
hours, and finally you have to ask the patient to come
again to your practice to explain everything. All this
requires considerable effort (GP_3).
Discharge from hospital
Another frequently mentioned problem is the uncoordin-
ated management of discharge from hospital. Often the
patient gets discharged from hospital without ensuring the
further continuation of treatment. The GPs dontreceive
information about the patients discharge in advance to
prepare further care. Often discharge takes place just be-
fore the weekend and without sufficient medication.
I believe that patients are getting pushed out of
clinics. From a GPs perspective, we are being
presented with a fait accompli without being
consulted. And even as GPs, we cant organise home
care on a Friday evening. The cooperation just doesnt
work.(GP_2).
Through premature and/or uncoordinated discharge
from the hospital, aftercare is shifted from the hospital
to the general practice.
Concepts for task shifting to an additional healthcare
professional inside or outside the general practice
During the interviews, the GPs identified some tasks and
responsibilities that, in principle, could be shifted to other
professional groups inside or outside general practice (see
Table 3). From the perspective of the GPs, it is an essential
prerequisite for task shifting that the patients are open to
a new person becoming involved in their care. The pa-
tients need a person whom they can trust.
During the course of the interview, the GPs were asked
for their views on two different concepts to support the
general practice in the coordination of care: the deploy-
ment of an external navigator who is not affiliated with
the general practice; or, alternatively, the employment of a
further healthcare professional within the practice.
Deployment of an external navigator
The interviewer explained the definition of an external
navigator as a person who is not employed by the prac-
tice but is affiliated to another institution that partici-
pates in the collaborative care of the patient.
Only very few of the interviewed GPs had ever heard
or read about the possible role of a navigator, and
most of them were sceptical. Initially, they could not im-
agine which professional group had to the skills and
abilities to work as an external navigator. For GPs, a
Table 3 Possible areas of responsibilities for an additional
health care professional
Arrangement of appointments with specialists
Organisation of the patient transfer
Providing advice relating to social and legal services
Undertaking home visits
Coordination of patients with dementia or multimorbidity
Contact and communication with other health care
professionals involved in the care
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well-coordinated team is crucial. An external person,
who does not know the team members and the work
structure of the practice, could be a disruptive factor.
The GPs feared needing to invest even more time and
energy into the integration of yet another person who
does not know the work processes of the practice.
()No, I havent had any experience with it at all. I
think its a waste of time and energy. I cant see how
this cooperation can work out; it would be like Chinese
Whispers. There will be yet another person between me
and the patient. Id prefer to deal directly with the
patient or ask my MPA to sort things out. I think it
will just cause further mistakes and I dont have the
time. When it comes to time management, I cant see
how it would improve anything either.(GP_14).
Table 4gives an overview of the reasons GPs are scep-
tical about both task shifting concepts or why they re-
fuse to work with an external navigator or an additional
employee inside the general practice.
A few GPs still felt attracted by the idea of an external
navigator, although they remained sceptical at the same
time.
Yes, for the moment, as an interim solution, this
might be a good idea. But I think in the long run,
another institution cant replace what should actually
happen in the practices. [ ]And there are too many
multimorbid patients. So, this would only work in
lighthouse projects but could not be applied
comprehensively. [ ](GP_12).
Deployment of other healthcare professionals inside the
practice
The idea of the employment of a further healthcare pro-
fessional within the practice was accepted more openly
than the idea of an external navigator. From the perspec-
tive of some of the interviewed GPs, shifting tasks and
responsibilities to an MPA could be a possible solution,
either with an MPA who already is a member of the
team or to an additional MPA.
The point is that the medical practice assistants know
the patients, and this, of course, gives them an enormous
advantage over external professionals.(GP_13).
The idea of assigning a person who works within the
practice and who is familiar with social and legal matters
was mentioned frequently by the GPs.
Anyone medical, social, possibly social AND medical,
so that they can take part in the process. In an ideal
world it would be a medical practice assistant or a
nurse or even better, a medical practice assistant who
has had further training.(GP_11).
Most of the interviewees felt that an additional per-
son involved in the care of multimorbid patients in-
side the practice could reduce the burden of the GPs
as well as MPAs, given that the effort required to in-
volve this person is low.
Social worker/ person who is familiar with social and legal
matters
GPs are highly aware of the patientsunmet needs with
regards to social and legal issues, especially in the context
of multimorbidity. Upon asking the GPs which profes-
sional group would be the most appropriate to meet these
needs, the majority of GPs mentioned the need for a quali-
fied person to take care of all social and legal demands.
Well I would like it if I had someone who could take
over the social issues, a kind of social worker. There
are lots of problems which older patients have and
cant deal with any more, such as writing applications
and filling out forms. I would like it if there was
someone here who could explain how to draw up a
living will. I just dont have the time and neither do
my MPAs, so I cant delegate it to them.(GP_9).
Idont know how other doctors manage, but I
think they face the same difficulties. I have
problems with all this social legislation, I never
really got to grips with. This gets more and more
complicated. [ ]How is a physician sitting in his
practice all day long supposed to understand this?
Ifthiscouldbedonebysomeoneelse(GP_1).
Several possible ideas for assigning social and legal
matters to an additional member of the care team were
discussed. These consisted of:
A social worker who is employed within the general
practice, belonging to the established practice team.
A social worker who is not directly affiliated with
the general practice, but to another institution.
Table 4 Arguments against a task shifting concept
Limited financial resources
Requires a large amount of time
MPAs take over most of the tasks already
MPAs are familiar with the patients
Deployment location only possible outside the practice,
for example, in home care
Patients need a person they know
Stumm et al. BMC Family Practice (2019) 20:160 Page 7 of 11
Content courtesy of Springer Nature, terms of use apply. Rights reserved.
A social worker who is shared by several general
practices in the district and who could be deployed
to different practices on an hourly basis.
Qualifying the existing MPA with training or
specialisation in social and legal affairs. However, to
ensure financing, additional services must be
covered by the public health insurance scheme.
The role of the social worker is primarily to be the
first contact person for patients, relatives, GPs and other
relevant parties with regards to social and legal issues.
Perspective of the MPAs
MPAs perceived similar problems to GPs in the co-
ordination of care of multimorbid patients. Organisa-
tional and administrative issues appeared to be a
major concern and require additional time for MPAs
as well as for GPs.
The MPAs described themselves as the principally re-
sponsible person for administrative and organisational
tasks. Phone calls, arranging appointments and filling in
forms are typical administrative and organisational tasks
for MPAs.
It is really time-consuming to arrange appointments
and organise the transport of immobile patients. [ ]
(MPA_7).
By assigning the full responsibility for these matters to
MPAs, in their view, double structures in administrative
procedures could be avoided.
[]As soon as the request for nursing care is
received it is processed by us. Then the doctor checks it
back; he determines whether everything is filled in
correctly. Finally, he signs it and gives it back to us to
send the formula back to the patient or nursing care.
(MPA_15).
In contrast to the GPs, the MPAs tended to focus
more on the coordination within the general practice
and the cooperation of everyone involved. For example,
the issues of priority were the communication with the
patient and their relatives as well as the regular schedul-
ing of patientsappointments.
Important is the cooperation between my boss and us,
and with the relatives; only if we all have the same
goal can things work out. (MPA_9).
The interviewed MPAs were highly motivated and
willing to extend their knowledge by undergoing further
training. Nevertheless, a lack of time was considered to
be a barrier to acquiring additional qualifications.
Very often you would like to do more, but you simply
dont have the time. This really is a shame in this
profession: we go through our day like a hamster on a
wheel and we can only touch the surface. But when
you do this very thoroughly you also are more
satisfied.(MPA_16).
MPAs seem to be persons of trust to whom patients
can talk to on their own level. In contrast, GPs are seen
as authority figures. Accordingly, patients entrust MPAs
with more intimate information. MPAs hereby under-
take the important task of distinguishing between per-
sonal and health-related information and decide what to
communicate to the GP.
For example, when you are alone with a patient
while taking a blood sample, they take the
opportunity to tell me things they wouldntwantto
report to the doctor.(MPA_6).
The doctor is seen almost as a god by some patients.
So, we are rather on the same level and they rather
share their worries with me.(MPA_16).
In line with the perspectives of the GPs, the MPAs were
concerned that an additional coordinator or navigator
from outside the practice might disturb the workflow.
Well, I think if we were better organised, we would be
able to manage everything from within. Somebody
from the outside would really need time to understand
the processes, and probably every practice is a bit
different.(MPA_16).
Discussion
This paper explores the perspective of GPs, complemented
by the views of MPAs of the same practices, of require-
ments and barriers for the coordination of care of patients
with complex needs, such as multimorbid patients.
While the responsibility of the GPs for the coordin-
ation of patient care is embodied in German social law,
in the interviews we found very heterogeneous views on
what coordination entails, especially in the context of
complex care for multimorbid patients.
A study from Krug H. demonstrates the necessity of add-
itional expenditure for the care of elderly, multimorbid pa-
tients. New financial concepts should be adopted to prevent
negligence occurring in the patientsmedical care [23].
Our results confirm the problem of the lack of ad-
equate compensation for coordination tasks, which may
hinder the GPs from giving optimal care to their pa-
tients. GPs have to consider their resources while trying
to provide optimal care to their patients [24,25].
Stumm et al. BMC Family Practice (2019) 20:160 Page 8 of 11
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A barrier discussed by many of the interviewed GPs and
MPAs is the insufficient cooperation and communication
between different players in the healthcare system, espe-
cially across the sectoral borders. Successful cooperation
requires a full and timely flow of information.
The interviews show that the importance of cooper-
ation across the sectors is particularly reflected in the
problems regarding the discharge of the patient from
hospital. Treatment reports and discharge letters were
reported as often not reaching the GPs in time. Medica-
tion regimes as recommended by the hospital are often
not fully understood by the patients at the time of
discharge.
This is in line with previous research. An international
health policy survey with primary care physicians from
2006 shows that more than 50% of primary care physi-
cians wait over 14 days before receiving the patientsfull
report from the hospital after their discharge. 70% of the
responding GPs stated the importance of better integrat-
ing information systems between office-based physicians
and hospitals [6]. Other studies confirm that discontinu-
ation of care happens at the interface between the in-
patient and outpatient sectors [23,2629]. Also Gulliford
et al. confirm that problems with management continuity
of care are highly associated with hospital utilisation [3].
The focus still is on acute medical care and specialist care.
Too little emphasis has been given to life-long support for
chronically ill patients in primary care [2]; life-long sup-
port measures are implemented in the general practice. A
coordinated care in general practice including a good
relationship between doctors and patients and the collab-
oration between different professions in different settings
goes hand in hand with continuity of care [3].
Furthermore, statutory regulations require substantial
time and effort for administrative and organisational mat-
ters. The documentation of work, filling in forms and ad-
ministrative tasks are part of the doctorsresponsibilities.
The interviews with GPs confirm that these tasks are a
major part of the coordination of care in general prac-
tice. The interviewed GPs burdened by assuming organ-
isational and administrative tasks while providing
medical care. Assigning responsibility for these tasks to
someone else, such as an additional MPA, could allow
them to focus on the medical care of the patients. The
findings from our interviews are in line with the findings
of a study from Margolius et al.; at times of primary care
physician shortage, it may help to improve patientscare
by reorganising practices to expand the capacity for staff
members to engage in different tasks [30].
While expressing a need for support and identifying
possible tasks that could be delegated, GPs mostly seem
to favour support by an additional healthcare profes-
sional who works within the general practice while
retaining ultimate responsibility.
The findings from our interviews with MPAs confirm
that they are highly motivated to undergo further train-
ing to take over more responsibilities and to relieve GPs.
Previous studies also show that MPAs are interested in
gaining supplementary qualifications. Further training of
MPAs can strengthen the role of the MPA in the prac-
tice team and improve the quality of patientscare as
well as the satisfaction of patients [31,32]. However, the
expansion of roles in general practice will only be feas-
ible if GPs do not feel threatened by the shift of territory
and responsibility [15,17].
As for coordination tasks, which were the focus of our
study, the question arises as to whether one single, uni-
form concept for the support of the GPs would fit the
setting of each individual general practice. The expert
report from the Advisory Council on the Assessment of
Developments in the Healthcare System[2] underlined
the need for further structural development in primary
healthcare in Germany, involving a restructured distribu-
tion of work and competencies, in which non-medical
professionals will take over more tasks and responsibil-
ity. The advisory council stressed the need for research
on the significance of organisational features such as
leadership and practice culture in Germany, as well as
internal resources for changes on health outcomes in
general practice [2].
GPs are highly aware of multimorbid patientsun-
met social needs and they do not feel sufficiently
equipped and qualified to respond to questions con-
cerning the social and legal sector. Another profes-
sional group such as social workers or MPAs with
further training in social and legal fields, in cooper-
ation with other local institutions could address so-
cial and legal issues without interfering with GPs
responsibility. These findings are in line with previous
studies. Social workers can provide comprehensive
care, which goes hand in hand with a broad range of
roles, such as, helping patients to cope with their
complex chronic illness providing counselling, or sup-
porting patients and families in their daily routines
[33]. McGregor et al. found that patients with com-
plex needs may obtain measurable health benefits
from the deployment of social workers in primary
care settings [34]. According to Zimmermann et al.,
cooperative and low-thresholdsolutions to employ
non-medical support measures in the general practice
are required [35].
Strengths and limitations
Certain limitations should be taken into account when
interpreting the findings of the study.
Recruiting GPs from a practice-based research net-
work assures sufficient participation rates but might
introduce sampling effects and bias by selecting GPs
Stumm et al. BMC Family Practice (2019) 20:160 Page 9 of 11
Content courtesy of Springer Nature, terms of use apply. Rights reserved.
who are interested in research and therefore more com-
mitted than others [36]. However, the non-random se-
lection of participants by applying a purposive sampling
strategy is the adequate choice when aiming at under-
standing the opinion of individuals who are already in-
formed or interested in the topic of the study [37].
We believe that by performing a comprehensive
survey as the next step in the project, on the basis of
the results of the qualitative interviews, a broader
perspective of a large number of GPs will be inte-
grated with the deeper insights of a selected group.
By using the framework approach to analyse the data,
we could benefit from multidisciplinary teamwork.
This approach may also add different perspectives
and provide more depth to the data.
The patient perspective will be evaluated in further
subprojects: an ongoing interview study explores the
view of chronically ill patients on the quality of care and
unmet needs. Furthermore, as part of a regular nation-
wide survey members of the public are asked for their
view on delegation of tasks to medical practice assis-
tants. The results will complement the perspective of
GPs and MPAs presented here.
There may also be limitations concerning the transfer-
ability of the results to other countries. The German
healthcare system neither has a gatekeeping system nor
rules for committing patients to specific practices. Our
findings reflect the characteristics of German settings.
Nonetheless, we discussed and underpinned our findings
with several studies from the international literature, in
which new models of coordination in general practice
have already been developed.
Conclusions
Coordination is a primary component in patient care
in general practice. The term coordinationincludes
awiderangeoftasks,whichvarydependingonthe
structure of the practice. The GP, as the coordinator
of the whole process of care, has the main responsi-
bility. Therefore, they also take responsibility for tasks
which arent exclusively medical and are not remuner-
ated. The support of patients with multimorbidity, in
particular, is comprehensive and involves players
across different sectors. In order to ensure optimal
care for this patient group, the general practice needs
to obtain coordinative support. The findings from the
interviews in this study show that GPs and MPAs
hold diverse opinions about possible solutions. Both
GPs and MPAs are generally interested in implement-
ing new concepts, but they are also still sceptical
about the practicability. GPs are nevertheless more
open to the deployment of an additional healthcare
professional within the practice rather than from
outside.
Supplementary information
Supplementary information accompanies this paper at https://doi.org/10.
1186/s12875-019-1048-y.
Additional file 1: Figure S1. NAVICARE network. Authors own figure of
NAVICARE project structure
Abbreviations
DMP: Disease management programs; GP: General Practitioner; MPA: Medical
practice assistant
Acknowledgements
The authors would like to thank all interviewees for participating in this
study and sharing their ideas, knowledge and experiences with the
coordination of multimorbid patients.
Furthermore, we would like to thank all of the researchers for participating in
the interviews as well as supporting the NAVICARE research consortium
team and the funding of the German Ministry of Education and Research.
Authorscontributions
All authors qualify as an author according to the ICMJE guidelines. They have
read the final draft of the manuscript and have revised it for important
intellectual content. In the following, we highlight the particular
commitment of individual authors in certain areas: J.S., S.D., L.P. and C.H.
developed the research questions. J.S., L.P. and S.D. conducted the
interviews. J.S. and C.T. predominantly performed the qualitative analysis. S.D.
and C.T. monitored the data collection for the entire study. As part of the
analysis, S.D., C.T. and C.H. regularly discussed the results of the coding
process with J.S. to ensure a high-quality analysis. S.Schn. substantially con-
tributed to the results section and discussion of this paper by integrating the
patient perspective into the interpretation of this study by providing results
from the patient survey. L.D. substantially supported the study as well as the
writing process with her professional expertise in the field of delegation and
task shifting in primary care. J.S. wrote and revised the first draft of the
manuscript and all authors contributed to editing the article. S.D., C.T., C.H.,
S.Schn. and L.D. contributed significantly to subsequent manuscript revisions.
All authors have read and approved to the final version of the manuscript.
Funding
COMPASS is part of the research consortium NAVICARE Patient-centred
health service researchand is funded by the German Ministry of Education
and Research (BMBF- grant no. 01GY1601).
The funding body had no role in the design and conduct of the study, data
collection, analysis, and interpretation of the data; nor in the preparation,
review and approval of the manuscript.
The publication is supported by the Open Access Publication Fund, provided
by the Charité-Universitaetsmedizin Berlin, and the German Research
Foundation (DFG).
Availability of data and materials
The data in this paper is based on the transcripts of 16 audio-recorded inter-
views with GPs and their MPAs. Data supporting the findings of this study
can be found in the translated quotes in the results section of this article.
However, to protect the participantsidentities, the full data from this study
(transcripts and audio files) will not be made available to the public.
Ethics approval and consent to participate
The study protocol for this qualitative study was approved by the ethical
review committee of the Charité - Universitaetsmedizin Berlin (reference
EA4/034/17). All participants gave written informed consent to participate in
the study.
Consent for publication
Not applicable.
Competing interests
The authors declare that they have no competing interests.
Stumm et al. BMC Family Practice (2019) 20:160 Page 10 of 11
Content courtesy of Springer Nature, terms of use apply. Rights reserved.
Author details
1
Institute of General Practice, Charité Universitaetsmedizin Berlin,
Charitéplatz 1, 10117 Berlin, Germany.
2
Institute of Medical Sociology and
Rehabilitation Science, Charité - Universitaetsmedizin Berlin, Charitéplatz 1,
10117 Berlin, Germany.
Received: 10 July 2019 Accepted: 7 November 2019
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... A second crucial point involves the demographic change in Germany and numerous other Western countries that led to a double burden of a greater number of aging or retiring GPs and more older and multimorbid patients requiring resource-intensive treatment and long-term care [17][18][19]. Since the mid-1990s, GP numbers were declining in Germany [20], precisely at the time when the demand for generalists providing resource-efficient care for the growing number of older patients is starkly increasing [17,18,21,22]. ...
... A second crucial point involves the demographic change in Germany and numerous other Western countries that led to a double burden of a greater number of aging or retiring GPs and more older and multimorbid patients requiring resource-intensive treatment and long-term care [17][18][19]. Since the mid-1990s, GP numbers were declining in Germany [20], precisely at the time when the demand for generalists providing resource-efficient care for the growing number of older patients is starkly increasing [17,18,21,22]. This situation leaves the remaining GPs with an unsustainably high workload, particularly in rural areas [23] and could conceivably aggravate job dissatisfaction and further deter young doctors [24]. ...
... Our results might have general implications that might help to shape future strategies for primary health care and medical education. Considering the mean age of today's GPs, demographic changes, multimorbidity, and the anticipated decline in treatment capacities on the one hand [17,18,22], and the lack of attractiveness of the profession for young doctors on the other hand [15,39], the future of primary health care is uncertain. By combining these societal changes with the negative and positive factors observed by end-of-career GPs in our study over the past few decades, we highlight potential areas for improvement that could be considered in future strategies (Table 4). ...
Article
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The landscape of general practice has experienced notable transformations in recent decades, profoundly influencing the working conditions of general practitioners (GPs). This study aimed to examine the most salient changes affecting GPs' daily practices. Through semi-structured qualitative interviews with 15 end-of-career GPs, the study explored how these changes affected work organization, equipment, working hours, work-life balance, job satisfaction, training, patient relationships, and reputation. The interviews revealed that these changes were perceived as barriers, opportunities, or a complex interplay of both for general practice. While the interviewed GPs valued technological advancements and reported positive developments in working conditions, challenges included a gradual reduction in the range of tasks, growing administrative burdens, and less practical training for young physicians. Other changes, such as new doctor-patient dynamics, the transition from single to group practice, and differing professional expectations of the younger generation, were seen as both challenging and strengthening for general practice. By combining these factors and trade-offs observed by end-of-career GPs in our study over the past few decades with general societal changes, we provide ideas for the design of future framework conditions in general practice that might enhance the attractiveness of the profession. These insights offer key considerations that can guide future strategies for general practice and medical education. Supplementary Information The online version contains supplementary material available at 10.1186/s12875-024-02419-z.
... the geriatric population, characterized by multimorbidity, presents challenges in establishing clinically relevant cut-offs due to their heterogeneity [30][31][32]. individuals may have known conditions like slightly elevated creatinine levels or anaemia, making it important to tailor and personalise treatment plans. thus, while it is important to establish and investigate clinically relevant cut-offs, doing so in this specific population involves considerable difficulties, underscoring the need for individualised approaches and further research. ...
... Our study sample consisted of older, multi-morbid patients, predominantly frail and dependent on home care -a population targeted due to their high rates of consultations with primary care physicians and frequent hospital admissions [31,32]. the use of broad inclusion criteria and minimal exclusion criteria enhances the generalizability of our findings to the primary care setting. ...
Article
Background: Diagnosing acute disease in older adults is challenged by vague and atypical symptoms. Point-of-care tests (POCTs) at home may improve diagnostics and clinical decision-making. We compared various POCT devices to routine testing in acutely ill older adults to assess their clinical reliability. Methods: We enrolled participants aged 65+ years requiring acute in-home assessment with signs of acute conditions. Venous and capillary blood samples were collected and analysed on-site using POCT, while identical samples were transported and analysed in a routine laboratory. Agreement between POCT and laboratory testing was assessed using scatter plots with linear regression, Pearson's correlation coefficient (PCC), limits of agreement, and Bland-Altman plots. Misclassification rates were calculated based on clinically meaningful cut-offs to assess POCT's clinical reliability. Results: We included 100 participants with a mean age of 81.6 (±8.4 SD) years. Strong correlation was found between POCT and routine measurements (PCC: 0.76-0.94 for capillary samples and 0.85-0.98 for venous samples). Venous samples showed higher PCC than capillary, except for neutrophils (0.93 for capillary, 0.89 for venous). Misclassification occurred in capillary samples for haemoglobin (10/62) and total WBC (6/50), while in venous samples, misclassification was observed for haemoglobin (4/54), total WBC (4/50), K+ (5/47), urea (5/47), and creatinine (3/42). No misclassification was observed for Na+. Conclusion: POCT provides acceptable, clinically reliable measurements in acutely ill older adults, potentially enhancing diagnostics and treatments during in-home assessment. Venous blood testing is preferable due to a lower misclassification rate, but capillary blood remains a pragmatic alternative, despite higher variation and inaccuracy.
... Some authors have suggested that physicians also should take the lead in breaking down medical silos [32,33]. As clinical leaders who focus on balancing diverging perspectives and crossing specialist boundaries [34,35], physicians should be able to improve relationships with physicians from other specialties. ...
... In line with hypothesis III, physician clinical leaders show more positive attitudes and behaviour towards physicians from other specialties. Other studies already suggest that clinical leaders can build bridges with other groups such as managers [32,34,35]. Our study adds that bridge building of these clinical leaders also relates to other medical specialities. ...
Article
Full-text available
Background Being a nurse or physician in today's complex healthcare practice involves more than just responsibility for one aspect of care during one episode in a patient's care trajectory. Both professionals are expected to take on a clinical leadership role and contribute positively to the reduction of care fragmentation and help in spanning professional boundaries. Although nurses may be well placed to identify the needs for integration, they may lack the position and status (compared to physicians) to address those needs as leaders. The aim of this study is to analyse similarities and differences between nurses and physicians in clinical leadership roles within a hospital context and explore how this relates to their interdisciplinary collaborative behaviours and perception on their job. Method A cross-sectional survey among physicians and nurses was conducted to measure clinical leadership, job satisfaction, workload, and interdisciplinary collaborative behaviours. Results Our results suggest that nurses (n = 329) and physicians (n = 100) show similar clinical leadership behaviours, based on equivalent scores on the clinical leadership scale. However, physicians score higher on the global leadership scale indicating they are more likely to perceive themselves as leaders than nurses. As clinical leaders, both nurses and physicians are more likely to express interdisciplinary collaborative behaviours. Furthermore, physicians who scored higher on the clinical leadership scale reported higher satisfaction with their job, whereas, for nurses, their score on the clinical leadership scale did not relate to their job satisfaction. Conclusion As nurses in hospitals have the most frequent and direct involvement with patients, it seems inevitable for them to act as clinical leaders to promote patient-centred care. However, nurses less often perceived themselves as clinical leaders while showing suitable behaviours. Future studies should focus on the strategies nurses use to exert their clinical leadership, and for example, if nurses require the use of more dominant strategies to effect change.
... Patients with multimorbidity face challenges such as multiple appointments, complex treatment schedules, and conflicting advice. Patientcentred consultations are often suggested as an optimal strategy when caring for patients with multimorbidity in general practice [3][4][5]. ...
Article
Full-text available
Introduction: Validated patient-reported outcome measures (PROMs) are crucial for assessing patients' experiences in the healthcare system. Both clinically and theoretically, patient-centered consultations are essential in patient-care, and are often suggested as the optimal strategy in caring for patients with multimorbidity. Aim: To either identify or develop and validate a patient-reported outcome measure (PROM) to assess patient-centredness in consultations for patients with multimorbidity in general practice. Methods: We attempted to identify an existing PROM through a systematic literature review. If a suitable PROM was not identified, we planned to (1) construct a draft PROM based on items from existing PROMs, (2) conduct group and individual interviews among members of the target population to ensure comprehensibility, comprehensiveness and relevance, and (3) perform a psychometric validation in a broad sample of patients from primary care. Results: We did not identify an eligible PROM in the literature review. The item extraction and face validity meetings resulted in a new PROM consisting of 47 items divided into five domains: biopsychosocial perspective; `patient-as-person'; sharing power and responsibility; therapeutic alliance; and coordinated care. The interviews resulted in a number of changes to the layout and phrasing as well as the deletion of items. The PROM used in the psychometric validation consisted of 28 items. Psychometric validation showed high internal consistency, overall high reliability, and moderate fit indices in the confirmatory factor analysis for all five domains. Few items demonstrated differential item functioning concerning variables such as age, sex, and education. Conclusions: This study successfully developed and validated a PROM to measure patient-centredness in consultations for patients with multimorbidity. The five domains demonstrated high reliability and validity, making it a valuable tool for measuring patient-centredness of consultations in general practice. Trial registration: Trial registration number (data for psychometric validation): https://clinicaltrials.gov : NCT05676541 Registration Date: 2022-12-16.
... They often experience complex healthcare interactions [1]. To meet their increasing care needs, healthcare systems are shifting to a more patient-centered and comprehensive approach with increasing numbers of multi-professional healthcare centers (MPHCC) [2][3][4][5]. Patient-centered care, including user experience, quality of care and outcomes, can help to produce high-quality healthcare systems [6]. Healthcare quality can be measured to improve patient-centered care and healthcare quality [7,8]. ...
Article
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Background The main aim of this study was to build an item bank for assessing the care quality of multi-professional healthcare centers (MPHCC) from the perspective of patients with multimorbidity. This study was part of the QUALSOPRIM (QUALité des SOins PRIMaires; primary healthcare quality) research project to create a psychometrically robust self-administered questionnaire to assess healthcare quality. Methods First, twelve experts built an item bank using data from a previous qualitative work and a systematic literature review. Second, the validity of each item was assessed in a sample of patients. Adult patients with multimorbidity were recruited from six French MPHCC. Items were assessed based on ceiling effects, the level of missing or neutral responses and patient feedback. Patient feedback was recorded after the item bank completion. Based on results, items were validated, improved, or removed during expert meetings. In case of disagreement the Delphi method was used to reach consensus. Results The study sample included 209 outpatients. The most frequent medical conditions were cardiovascular risk factors, cardiovascular diseases and rheumatological conditions. In total, a bank of 109 items classified in nine domains was built. The validity assessment led to the removal of 34 items. Retained items explored a variety of topics related to care quality: availability, accessibility, premises’ layout and building, technical care, expertise, organization, relationships with caregivers and communication, involvement and personal relationships. Conclusions This study allowed cross-validation of a bank of 75 items, leading to a complete picture of the patient perception of care quality items. Overall, patients were generally satisfied with their care at the MPHCC. Nonetheless, there were still numerous items on subjects for which patients’ satisfaction could be improved.
... We targeted this population because these patients often live with multiple chronic conditions and polypharmacy and thus have an increased need for coordinated care. 27,28 Our data set also contained information regarding the specific physicians each patient consulted, including the affiliation of these physicians, if any, with 21 physician networks in Westphalia-Lippe, 15 physician networks in Bavaria, and five physician networks in Brandenburg. This enabled us to categorize the physicians into two groups: those who were affiliated with a network and those who were not. ...
... All of these elements, extended consultation time, patient involvement, overview, prioritisation and coordination, have previously been identified as key elements in improving care for patients with complex multimorbidity. [28][29][30][31][32][33] The intervention has been developed through experiences from these previous trials rather than through a formal development process and is currently under evaluation in a pilot trial in 14 general practices in two Danish regions. ...
Article
Full-text available
Introduction Patients with complex multimorbidity face a high treatment burden and frequently have low quality of life. General practice is the key organisational setting in terms of offering people with complex multimorbidity integrated, longitudinal, patient-centred care. This protocol describes a pragmatic cluster randomised controlled trial to evaluate the effectiveness of an adaptive, multifaceted intervention in general practice for patients with complex multimorbidity. Methods and analysis In this study, 250 recruited general practices will be randomly assigned 1:1 to either the intervention or control group. The eligible population are adult patients with two or more chronic conditions, at least one contact with secondary care within the last year, taking at least five repeat prescription drugs, living independently, who experience significant problems with their life and health due to their multimorbidity. During 2023 and 2024, intervention practices are financially incentivised to provide an extended consultation based on a patient-centred framework to eligible patients. Control practices continue care as usual. The primary outcome is need-based quality of life. Outcomes will be evaluated using linear and logistic regression models, with clustering considered. The analysis will be performed as intention to treat. In addition, a process evaluation will be carried out and reported elsewhere. Ethics and dissemination The trial will be conducted in compliance with the protocol, the Helsinki Declaration in its most recent form and good clinical practice recommendations, as well as the regulation for informed consent. The study was submitted to the Danish Capital Region Ethical Committee (ref: H-22041229). As defined by Section 2 of the Danish Act on Research Ethics in Research Projects, this project does not constitute a health research project but is considered a quality improvement project that does not require formal ethical approval. All results from the study (whether positive, negative or inconclusive) will be published in peer-reviewed journals. Trial registration number NCT05676541.
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Background Multiple long-term conditions—the co-existence of two or more chronic health conditions in an individual—present an increasing challenge to populations and healthcare systems worldwide. This challenge is keenly felt in hospital settings where care is oriented around specialist provision for single conditions. The aim of this scoping review was to identify and summarise published qualitative research on the experiences of hospital care for people living with multiple long-term conditions, their informal caregivers and healthcare professionals. Methods We undertook a scoping review, following established guidelines, of primary qualitative research on experiences of hospital care for people living with multiple long-term conditions published in peer-reviewed journals between Jan 2010 and June 2022. We conducted systematic electronic searches of MEDLINE, CINAHL, PsycInfo, Proquest Social Science Premium, Web of Science, Scopus and Embase, supplemented by citation tracking. Studies were selected for inclusion by two reviewers using an independent screening process. Data extraction included study populations, study design, findings and author conclusions. We took a narrative approach to reporting the findings. Results Of 8002 titles and abstracts screened, 54 papers reporting findings from 41 studies conducted in 14 countries were identified as eligible for inclusion. The perspectives of people living with multiple long-term conditions (21 studies), informal caregivers (n = 13) and healthcare professionals (n = 27) were represented, with 15 studies reporting experiences of more than one group. Findings included poor service integration and lack of person-centred care, limited confidence of healthcare professionals to treat conditions outside of their specialty, and time pressures leading to hurried care transitions. Few studies explored inequities in experiences of hospital care. Conclusions Qualitative research evidence on the experiences of hospital care for multiple long-term conditions illuminates a tension between the desire to provide and receive person-centred care and time pressures inherent within a target-driven system focussed on increasing specialisation, reduced inpatient provision and accelerated journeys through the care system. A move towards more integrated models of care may enable the needs of people living with multiple long-term conditions to be better met. Future research should address how social circumstances shape experiences of care.
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Background Modern cancer care requires the development of clinical pathways to enhance coordination, but there are few descriptive studies about the content of coordination activities. More specifically, little is known about hospital discharge coordination, although this is seen as a sensitive phase of clinical pathway. PurposeThe purpose of this study was to identify and quantify the categories of activities performed by nurse navigators for hospital discharge coordination. Methods Patients supported within the Coordinating Outpatient Care department (COC) at Gustave Roussy (Villejuif, France). Study conducted over two consecutive phases (Feb-September 2014): (1) a qualitative phase to identify the categories of coordination activities (interviews with patients plus, focus groups with nurse navigators—NNs); (2) a quantitative phase to quantify the relative share of each category. The calls received through the telephone platform of COC (made by both patients and primary care providers) were systematically reported (caller; reason for the call; procedure performed) and then analyzed. ResultsQualitative phase: 17 interviews with patients, plus 2 focus groups with NNs. Quantitative phase: 543 calls analyzed. The callers were patients or their relatives (38 %), private nurses (35 %), medical device providers (20 %), and other primary care providers (e.g., pharmacists, family physicians) (7 %). Five categories of coordination activities identified: (F1) Patient monitoring (29 %); (F2) Helping to navigate (24 %); (F3) Managing technical problems (17 %); (F4) Explaining care protocols (16 %); (F5) Collecting and transmitting the patient medical record information (14 %). Conclusions The majority of requirements are related to organizational issues (e.g., navigation, lack of information, appointments). Nurse navigators’ training and qualification must therefore combine both clinical and managerial skills.
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"To better understand why cooperation between health care professionals is still often problematic, we carried out 25" "semistructured face-to-face expert interviews with physicians and nurses in different rural and urban areas in northern Germany. Using Mayring’s qualitative content analysis method to analyze the data collected, we found that doctors and nurses interpreted interprofessional conflicts differently. Nursing seems to be caught in a paradoxical situation: An increasing emphasis is placed on achieving interprofessional cooperation but the core areas of nursing practice are subject to increasing rationalization in the current climate of health care marketization. The subsequent and systematic devaluation of nursing work makes it difficult for physicians to acknowledge nurses’ expertise. We suggest that to ameliorate interprofessional cooperation, nursing must insist on its own logic of action thereby promoting its professionalization; interprofessional cooperation cannot take place until nursing work is valued by all members of the health care system."
Article
Background: Very often patients utilize primary care services for health conditions related to social problems. These problems, which are not primarily medical, can severely influence the course of an illness and its treatment. Little is known about the extent to which problems like unemployment or loneliness occur in a general practice setting. Objectives: What are the most frequent health-related social problems perceived by general practitioners (GPs)? How are these problems associated with GP- or practice characteristics? How do general practitioners deal with the social problems they perceive and what kind of support do they need? Materials and methods: Cross-sectional, postal questionnaire survey with questions derived from "Chapter Z social problems" of the International Classification of Primary Care - 2ndedition. The questionnaire was mailed to available GP addresses in the federal states of Hamburg (n=1,602) and Schleswig-Holstein (n=1,242). Results: N=489 questionnaires (17.2 %) were analyzed. At least three times a week, GPs were consulted by patients with poverty/financial problems (53.4 %), work/unemployment problems (43.7 %), patients with loneliness (38.7 %) as well as partnership issues (25.5 %). Only rarely did GPs report having perceived assault/harmful event problems (0.8 %). The highest frequency of problems was encountered by practices with a high proportion of a migrant population. Conclusions: Social problems are a common issue in routine primary care. GPs in Northwestern Germany usually try to find internal solutions for social problems but also indicated further interest in institutionalized support. A possible approach to solving these issues are community-based, locally organized networks.
Article
The prevalence of complex health and social needs in primary care patients is growing. Furthermore, recent research suggests that the impact of psychosocial distress on the significantly poorer health outcomes in this population may have been underestimated. The potential of social work in primary care settings has been extensively discussed in both health and social work literature and there is evidence that social work interventions in other settings are particularly effective in addressing psychosocial needs. However, the evidence base for specific improved health outcomes related to primary care social work is minimal. This review aimed to identify and synthesise the available evidence on the health benefits of social work interventions in primary care settings. Nine electronic databases were searched from 1990 to 2015 and seven primary research studies were retrieved. Due to the heterogeneity of studies, a narrative synthesis was conducted. Although there is no definitive evidence for effectiveness, results suggest a promising role for primary care social work interventions in improving health outcomes. These include subjective health measures and self-management of long-term conditions, reducing psychosocial morbidity and barriers to treatment and health maintenance. Although few rigorous study designs were found, the contextual detail and clinical settings of studies provide evidence of the practice applicability of social work intervention. Emerging policy on the integration of health and social care may provide an opportunity to develop this model of care.
Article
Background: Patients with multiple chronic conditions are at high risk for potentially avoidable hospitalizations, which may be reduced by care coordination and self-management support. Medical assistants are an increasingly available resource for patient care in primary care practices. Objective: To determine whether protocol-based care management delivered by medical assistants improves care in patients at high risk for future hospitalization in primary care. Design: Two-year cluster randomized clinical trial. (Current Controlled Trials: ISRCTN56104508). Setting: 115 primary care practices in Germany. Patients: 2076 patients with type 2 diabetes, chronic obstructive pulmonary disease, or chronic heart failure and a likelihood of hospitalization in the upper quartile of the population, as predicted by an analysis of insurance data. Intervention: Protocol-based care management, including structured assessment, action planning, and monitoring delivered by medical assistants, compared with usual care. Measurements: All-cause hospitalizations at 12 months (primary outcome) and quality-of-life scores (12-Item Short Form Health Survey [SF-12] and EuroQol instrument [EQ-5D]). Results: Included patients had an average of 4 co-occurring chronic conditions. All-cause hospitalizations did not differ between groups at 12 months (risk ratio [RR], 1.01 [95% CI, 0.87 to 1.18]) and 24 months (RR, 0.98 [CI, 0.85 to 1.12]). Quality of life (differences, 1.16 [CI, 0.24 to 2.08] on SF-12 physical component and 1.68 [CI, 0.60 to 2.77] on SF-12 mental component) and general health (difference on EQ-5D, 0.03 [CI, 0.00 to 0.05]) improved significantly at 24 months. Intervention costs totaled $10 per patient per month. Limitation: Small number of primary care practices and low intensity of intervention. Conclusion: This low-intensity intervention did not reduce all-cause hospitalizations but showed positive effects on quality of life at reasonable costs in high-risk multimorbid patients. Primary funding source: AOK Baden-Württemberg and AOK Bundesverband.
Article
Due to an imminent shortage of family practitioners (FPs) and the increasing and changing health care needs of an aging population with a mounting burden of chronic diseases, the Advisory Council on the Assessment of Developments in the Health Care System suggested a concept for the future of primary care in Germany (2009 report). The main elements are: adequate working conditions and remuneration for FPs, a greater focus on the conditions necessary for high-quality care for patients with chronic illnesses, and the integration of primary care into a cross-sectoral, population-oriented model of care. In a previous paper, we presented the theoretical background for these developments (and possible consequences and concepts currently under discussion in an international context) which may improve the situation. In this article, we present a future model for primary care practices in Germany and explain how these elements can be put into practice using the example of a project already launched in the German land of Hessia (SCHAAZ). We specifically address the issue of the necessary prerequisites for FPs, specialists, medical assistants, other non-medical staff, and the health care system as a whole to successfully implement new primary care models, and to overcome the barriers expected in the process.
Article
In May 2009 an expert conference for practice nurses took place at the University of Witten/Herdecke, organised by the task force of scientifically interested practice nurses of the German Society of General Practice and Family Medicine (DEGAM). Projects and training courses for practice nurses (MFA) were presented and discussed. These courses have been developed to allow general practitioners to delegate medical tasks to other qualified health professions. For the first time, developers and participants of the various models met in that scope to discuss similarities and differences of their concepts, their experiences, interests and conflicts.
Article
Background The increased involvement of health care personnel that are not doctors is being discussed as a means of safeguarding the quality of health care. This will necessitate the greater involvement of qualified health care assistants (HCA). Currently very few data are available on how HCAs view their profession. Method In an online survey based on a self-developed questionnaire, HCAs were asked questions about job satisfaction, training and their personal views on their profession. Recruitment took place via medical media channels. Results Data from 410 HCAs were analyzed, of whom 55% (n=225) worked in a family practice, and 45% (n=185) in a specialist practice, a hospital or an outpatient clinic. 91% (n=374) had completed their HCA training. Job satisfaction was middling (mean 4.4) and was lowest with regard to salary (mean 3.44). 90% of participants had taken part in an average of 6.4 training programs over the previous three years. More than 90% of the HCAs regarded their influence on patient loyalty and well-being as high/very high. Conclusions HCAs are dedicated to their profession as demonstrated by high participation rates in training and high levels of motivation to develop their abilities. Job satisfaction, on the other hand, is rather modest. Family doctors could provide HCAs with more recognition by expanding the scope of their responsibilities.