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For Peer Review Only
Trainee teachers’ knowledge of autism: implications for
understanding and inclusive practice
Journal:
Oxford Review of Education
Manuscript ID
CORE-2019-0006.R2
Manuscript Type:
Article
Keywords:
Knowledge, Autism, Pre-service teachers, Understanding, Inclusive
practice, Teaching
URL: http://mc.manuscriptcentral.com/oxfordreview Email: joanne.hazell@education.ox.ac.uk
Oxford Review of Education
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Trainee teachers’ knowledge of autism: implications for
understanding and inclusive practice
Abstract
This current study draws on data from the largesta large sample of trainee teachers in England to
provide a long overdue baseline assessment of the knowledge of autism. It has particular import given
the recent research that shows that 60% of autistic young people identified ‘having a teacher who
understands autism’ as the main thing that would make school better for them. We find that, based on
the Autism Awareness Survey, levels of knowledge were comparatively high among our n=326
respondents. However, whilst this is encouraging, our findings also point to an underestimation of
knowledge, which indicates the need for additional resources and training to develop trainee
teachers’ self-efficacy and confidence in their pedagogical practice. Finally, in order to understand
more about the gap between autistic children’s experiences and teachers’ understanding, this study
signals a need to review autism knowledge scales to better reflect an experiential knowledge that goes
beyond the clinical descriptors.
Keywords: autism; knowledge; teaching; trainee; pre-service; inclusive practice
Introduction
Autism is the most common type of identified need for pupils in English schools who have an
education, health and care plan or statement of special educational needs (SEN). It is the
primary need for 27% of these pupils – 31% of boys with a statement or EHC plan, and 16%
of girls (Department for Education, 2017). Around 70% of autistic1 children in England
attend mainstream schools but based on survey data from 176 autistic young people, 2,573
parents and carers, and 308 teachers fewer than half of them report positive experiences (All-
Party Parliamentary Group on Autism, 2017). The same report finds that, for 60% of young
1 The term autistic children (rather than children with autism) is used throughout to reflect the identify-
first preference indicated by autistic people (Kenny et al, 2016).
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people and 70% of their parents, the main thing that would make school better for them is
having a teacher who understands autism.
In response to such findings, this paper aims to provide a long overdue baseline assessment of
the knowledge of autism amongst a sample of trainee teachers in England, drawing on the
largest dataset of its kind to date. According to Harrison et al. (2016) the last study among
education professionals in the UK, using a validated instrument, was two decades ago (Helps
et al., 1999) and surveyed only 72 teachers and teaching assistants in the London area. The
current study thus offers a useful litmus test of levels of knowledge and indicates where gaps
may still exist, which has particular import given the Carter Review’s (2015)
recommendation that every new teacher has a basic understanding of autism.
Understanding autism in context
Autism is a lifelong neurodevelopmental disability. It is frequently associated with
communication difficulties and the presence of rigid and repetitive behaviours, both of which
can impact on social functioning (American Psychiatric Association, 2013). It can also be
linked to difficulties in cognition, behavioural flexibility, emotional regulation, and altered
sensory sensitivity with many autistic children experiencing over- or under-sensitivity to
sounds, touch, tastes, smells, light, colours, temperatures or pain (Buckley, 2017; NAS, 2016;
Remington and Fairnie, 2017). Until 2013 autism was described as a triad of impairments
with variable intelligence quotient and language development leading to various subgroups
including classic autism, atypical autism, pervasive developmental disorder, and Asperger’s
syndrome although following changes to the Diagnostic and Statistical Manual of Mental
Disorders (DSM-5, 2013) and World Health Organization’s International Classification of
Diseases (ICD-11, 2018) these were collapsed into one autism spectrum disorder (ASD)
diagnosis.
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Today, autism is considered a common condition, with recent British epidemiological studies
estimating prevalence at between 1% (Brugha et al., 2011) and 1.7% (Russell et al., 2014).
There is, however, substantial heterogeneity both between and within autistic individuals
(Georgiades et al. 2013) with many presenting uneven profiles such as capacities in verbal
fluency but difficulties in flexible thinking or even variant capacities in the same area, such as
good long-term memory but poor short-term memory (Buckley, 2017). Thus an autistic
spectrum is generally understood as a useful tool for reflecting the wide diversity and varying
degrees of neurological differences across the population (Wing, 1988). According to Mandy
(2018:1), ‘there is not a single autism, but rather there are hundreds, or even thousands, of
‘autisms’.
Whilst much of the literature uses pejorative terms such as ‘disorder, ‘deficit’ or
‘abnormality’ to describe autism, there is a growing body of research which seeks to frame it
more positively in terms of individual ‘differences’ (Baron-Cohen 2015) and recognise the
positive implications of an autism diagnosis as well as the difficulties (Janzen 1996;
Remington and Fairnie, 2017; Soulieres et al., 2011). Van Hees et al. (2015:1684) identify
such autistic strengths as ‘strong memory, focus precision and an eye for detail, dedication,
the ability of putting one’s mind to a subject, analytical skills, remarkable powers of
observation’. Whilst such a strengths-based reading of an autism diagnosis could potentially
lead to more positive attitudes and outcomes for autistic learners, Russell et al. (2019) suggest
that this tends to be moderated by three factors including: the social and environmental
contexts in which they strengths are played out; the extent to which the autistic traits can be
controlled by the individual; and how they these are understood and perceived by the autistic
individual and others. It is therefore essential that teachers and educational practitioners have
a secure knowledge of autism within the context of the school setting in order to recognise
autistic pupils’ strengths and difficulties where they might arise.
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Enhanced knowledge can lead to more inclusive practice
Evidence suggests that knowledge of autism is a salient predictor of practitioners’ ability and
willingness to provide inclusive learning opportunities to autistic students in both mainstream
and special education settings (Baglieri & Shapiro, 2012; Busby et al., 2012; Segall and
Matthews, 2012). Whilst a couple of recent studies demonstrate that teacher education
students report accurate knowledge about most aspects of autism (Talib and Paulson, 2015;
Blackwell et al. 2017), the literature more generally indicates that there is a gap in teachers’
knowledge of autism (Able et al. 2015; Busby et al., 2012; Jung et al., 2011; McConkey and
Bhlirgri, 2003; Segall, 2008). For example, in Segall & Campbell’s (2012) study, of 196
education professionals surveyed mainstream teachers and headteachers responded that they
did not know the answer to around seven of 15 items assessing current knowledge of autism.
Moreover, some studies suggest the endorsement of inaccurate beliefs about autism,
particularly with respect to aetiology (Brubaker et al, 2010) and children’s abilities (Talib and
Paulson, 2015).
More broadly, the evidence indicates that there is a correlation between knowledge and
experience; where teachers had less exposure to autistic students, they tend to show lower
levels of knowledge of autism and as a consequence lower self-assessed confidence in
teaching autistic pupils (Haimour & Obaidat, 2013; Talib and Paulson, 2015). However,
according to Blackwell et al. (2017) whilst many trainee teachers often have exposure to
autism through personal or professional experiences, this does not necessarily translate into
accurate knowledge grounded in established research or lead to more effective teaching
practices for autistic students. In fact, Talib and Paulson’s (2015) study among 211
undergraduate trainee teachers showed that even where participants reported largely accurate
beliefs about autism, they did not feel competent about their abilities to cater for the needs of
autistic students. This trend is also verified in the UK by the All-Party Parliamentary Group
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on Autism (2017) which reports that of the 308 teachers surveyed, fewer than 50% of
teachers felt confident about supporting an autistic child in their classroom. Thus, current
evidence indicates a dual gap in practitioners’ knowledge about autism and self-assessed
confidence, with the outcome being uncertainty about their capacities to provide inclusive
provision for autistic pupils in school settings (Busby et al., 2012; Jung et al, 2011).
Given that knowledge of autism, experience, and attitudes are interrelated (Segall and
Campbell, 2012), it is suggested that the targeting of one area in training may have positive
effects on the other domains. Although there is strong evidence of effective educational
practice for autistic children including provision of early assessment, specific learning
strategies, behavioural interventions, and social skills programmes etc (see Parsons et al.,
2011) as well as an emphasis on SEN provision in Initial Teacher Training (Munday, 2016),
there remain significant gaps. Findings in British studies (Guldberg et al., 2017b; Helps et al.
1999; Jones et al., 2008) as well as those based in other international settings (Able et al.,
2015; Busby et al., 2012; Jung et al, 2011), report a lack of training among teachers working
with autistic students. Thus, improved provision for trainee teachers is central to enhancing
the levels of knowledge about autism and increasing practitioners’ confidence and positive
attitudes towards inclusive pedagogies for autistic pupils.
This is extremely important as research suggests that mainstream school settings place
increasingly complex demands on autistic learners (Brede et al, 2017). For example, with
enhanced knowledge about autism teachers may better understand difficulties with nonverbal
communication and pragmatic language such as interpreting body language and nonverbal
cues (Barnhill, 2014) and the challenges these can lead to in making and keeping friends
(Bauminger & Kasari, 2000; Calder, Hill, & Pellicano, 2013) or preventing bullying
(Sedgewick, et al. 2016). On a practical level, where teachers have more understanding about
autism they might more fully appreciate potential sensory issues including hyper-reactivity to
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stimuli including bright lights, loud noises, and strong odours. According to Fernández-
Andrés et al. (2015) auditory filtering and hearing is one of the most affected sensory
modalities in the classroom environment but Hanley et al. (2017) show how the presence of
highly visual displays in classrooms can also make orienting attention much more
challenging for autistic children compared to their non-autistic peers. Such environmental
challenges can lead, for some, to sensory overloads where stimuli cause extreme physical and
emotional distress as well as feelings of anxiety, despair, and the increase in ‘restrictive and
repetitive behaviours’ which stem from a child’s ‘attempt to introduce order into their chaotic
world’ (Wing 2001:99).
Finally, one important environmental predictor of potential academic achievement for autistic
pupils is where and how learning takes place, which is closely associated with knowledge of
autism (Segall and Campbell, 2012). Based on a systematic review of the literature
surrounding autism and academic achievement, Keen, Webster, & Ridley (2016) identify
trends that indicate that autistic pupils with higher IQ scores (IQ 80-120) tended to do better
on measures of academic achievement. Similarly, in comparing students across educational
settings Kurth and Mastergeorge (2010) found that autistic students in inclusive settings tend
to outperform others matched on IQ and adaptive behaviour in self-contained classrooms on
reading, writing and math. Overall, such findings signal an urgent requirement to address the
current gap in teachers’ knowledge about autism and how best to improve academic
opportunities and wider outcomes for these pupils.
Consequently, the present study aimed to address three research questions:
1. What is the overall level of knowledge about autism among trainee teachers in one
School of Educationhigher education institution in England?
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2. What is the relationship between respondents’ self-assessed knowledge of autism
and that demonstrated on the Autism Awareness Survey (AAS)AAS?
3. Are demographics (sex, age, relationship to autism etc) associated with self-
assessed knowledge of autism and responses to the AAS?associated with the
levels of self-assessed knowledge and that as demonstrated on the AAS survey?
Methods
Procedure
The sample was derived from trainee teachers in the School of Education at one university in
England. The response rate was 67% (n=326) of the total number of students enrolled on
initial teacher training courses (n=485). Of those respondents who returned the survey 312
(96%) had complete information on the variables used in the analysis presented and this
comprised the analytic sample. This sample is the largest on trainee teacher’s knowledge of
autism in the United Kingdom. Comparable studies are Talib and Paulson (2015), who
surveyed n=211 teacher education students from a Midwestern university in USA and
Blackwell et al. (2017) who drew on n=87 pre-service teachers from three universities in the
United States. Harrison et al.’s (2016) review identified other studies using validated
instruments to measure knowledge of autism among teachers and school staff with samples
ranging from n=64 teachers in Greece (Mavropoulou and Padeliadu, 2000) to n=391 general
and special education teachers in Saudia Arabia (Haimour and Obaidat, 2013). British studies
have also investigated this issue, for example Humphrey and Symes (2011) which surveyed
n=53 teachers and managers in schools; however, they did not report the use of a validated
instrument to assess knowledge.
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Respondents were invited to participate at the end of a core lecture at the University. They
were informed that their contribution was voluntary and all information collected during the
course of the study would be kept confidential on password-protected databases, under the
auspices of the university’s ethical review board (180110_ 000013045_ED). Surveys were
administered using the programme Qualtrics® enabling participants to complete the survey
on mobile devices, tablets or computers. Analysis was undertaken using Stata 15®.
Measuring knowledge of autism
Harrison et al. (2016) report that to date, the most widely applied measure of autism
knowledge is the Autism Knowledge Survey (AKS, Stone, 1987). This is a Likert-style
questionnaire comprised of autism ‘facts’ used to score respondents’ levels of knowledge.
Harrison et al. (2016) confirm that the measure is unidimensional and has reasonable internal
consistency (Cronbach’s alpha = 0.66), stable reliability, and showed initial reasonable
validity. Since 1987, the AKS has been updated to reflect new knowledge informed by
respective Diagnostic and Statistical Manuals of Mental Disorders (APA, 2013). The first
AKS revision occurred in 2007 (AKS-R, Swiezy, 2007) and has been used in several
subsequent studies (Bauer et al., 2015; Hartley-McAndrew et al., 2014; Heidgerken et al.,
2005). The Autism Awareness Survey (Tipton and Blacher, 2014), utilised in this current
study, is an updated version the original AKS measure with adequate internal consistency
(ω=0.60) reported by Cage, Di Monaco and Newell (2018). Given the AAS’s focus on
knowledge derived from the DSM-5, there are limits regarding the extent to which it can be
considered a measure of awareness of autism. Additional items related to practical
knowledge, current pedagogical practice or attitudes towards autism could uncover more
sensitised dimensions of autism not captured by the clinical descriptions. Nevertheless, the
AAS was perceived as being a useful validated tool for providing a much-needed baseline
measure of this dimension of autism knowledge among trainee teachers.
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The Autism Awareness Survey (AAS) consists of 14 forced choice Likert scale items ranging
from disagree, somewhat disagree, neutral, somewhat agree, agree (see, Table 2). If a
statement from the (AAS) was answered correctly by a respondent, with either an ‘agree’ or
‘disagree’ response, they score four points on the scale. Where the respondent was less sure,
but answers in the correct direction, choosing a ‘somewhat agree’ or ‘somewhat disagree’
response, they score three points. For a neutral response they score two points, a ‘somewhat’
wrong response scores one point and a fully wrong response scores zero. In principle, scores
can range from zero to 56. Respondents were also asked to estimate their own self-assessed
knowledge of autism (SAK) using the statement: ‘indicate your level of knowledge about
autism right now, with 0 representing no knowledge at all and 100 representing complete
knowledge’. This was on a scalefrom 0 to 100, where zero indicated no knowledge and 100,
complete knowledge; therefore, a score of 50 would represent the average population level of
knowledge of autism. This approach enabled a comparison between an objective measure of
knowledge about autism and trainee teachers’ subjective levels of knowledge. Similar
approaches have been applied elsewhere, for example within the medical field, Nabi et al.
(2008) asked respondents to score on a scale how knowledgeable they felt about the
prevention and detection of different forms of cancer, which was then examined in relation to
objective measures of knowledge.
[Table 1 – 90 words]
Background information on respondents was also gathered. The survey design reported by
Tipton and Blacher (2014) was taken as a benchmark template and equivalent data were
collected. The first three items gathered socio-demographic information about the participant,
including sex, age and level of study (undergraduate or postgraduate). The sample included
266 female (85%) and 46 male (15%) trainee teachers. Respondents were offered a
categorical selection of ages (18-20, 21-30, 31-40, 41-50, 51-60, 60+). The age of the sample
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was relatively homogenous, reflecting the age of students in teacher training. For this reason,
only two age groups of 18 to 20 and 21 to 30 were included in the analysis. Respondents
included those from both Undergraduate primary (94%) and Postgraduate secondary (6%)
courses.
The final survey items ascertained the respondent’s relationship to a person with a diagnosis
of autism (whether they self-identified as autistic; an immediate family member is autistic; an
extended family member is autistic; they come into contact with autistic persons through
social networks; or through professional experience; or have no relationship to autistic
persons). This classification was collapsed to three categories for analysis (see Table 1). In
response to the survey 56 people from the complete case sample (18%) reported having an
individual within their immediate or extended family with autism. This included one person
who self-identified as autistic. Over half the sample (160) had experience of autism through
work/social networks. One of the main variables of interest in Tipton and Blacher’s (2014)
article was a question asking whether autism is increasing or not. This was considered to
indicate awareness of the prevalent media message about the rise in autism diagnoses (Blair,
2016; Camarata, 2018), increasingly communicated through some form of social media
(Aboulkacem and Haas, 2018; Mitchell et al., 2016). This was also included here as a ‘yes’
(81%), ‘no’ (19%) dichotomy.
Bivariate analysis of key variables was undertaken using chi-square, ANOVA and t-tests
(Agresti et al. 2017). Multivariate OLS regression models were also used to assess
associations with outcome variables, the AAS and self-assessed knowledge of autism
measures (Kohler and Kreuter 2009). These outcomes were initially modelled in a base
model controlling for sex, age-group, and undergraduate/post-graduate education level.
Variables of interest were separately added to this base model. These comprised, the variable
identifying the level of contact to a person with autism and the variable indicating knowledge
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of whether autism is increasing in the UK. The measure of self-assessed level of knowledge
of autism was also included in the model with AAS as the outcome. A final model including
all factors together was estimated for both the AAS and SAK outcome variables.
Categorical variables were modelled using dummy category coding. Sex was included as a
binary male/female variable with men set as the reference category. The 18 to 20 age group
was set as the reference category in modelling. Undergraduate was set as the reference
category for the level of university study. The binary variable denoting whether autism is
increasing or not was included with the ‘yes’ category the reference in modelling. Those who
identified as autistic, or who have an autistic family member was set as the reference category
and compared with categories of whether an individual has social/professional contact with a
person with autism and a category denoting no contact with autistic people.
Results
In the first instance, results are presented as descriptive and bivariate analysisanalyses. A
systematic modelling analysis of the relationship between self-assessed level of knowledge of
autism and actual knowledge of autism is then outlined (see Appendix for a full breakdown
of results).
Overall levels of autism knowledge
The mean score of the self-assessed knowledge (SAK) measure for the sample was 38 (SD
19.8) with scores ranging from zero to 1002. The Autism Awareness Survey (AAS) scores
ranged from 27 to 553 with a mean of 43 (SD 4.6). A mean of 28 (the mid-point of the scale
2 One individual self-assessed as having zero knowledge of autism, whilst another self-assessed as having complete
knowledge of autism, scoring 100. The individual self-assessing as zero scored 39 on AAS, the individual self-
assessing as 100 scored 38 on AAS.
3 The individuals who score 27 and 55, at the extremes of AAS, both scored 60 on the SAK measure.
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range) would be equivalent to all neutral responses or as many correct as incorrect responses,
the sample score statistically significantly higher than this (t(310)=58 p=.000) indicating a
positive level of correct knowledge. This compares favourably with Tipton and Blacher’s
(2014) general university sample whose scores ranged from 17 to 55, with a mean of 38.5
(SD = 5.9). The most startling finding from the survey is that trainee teacher’s self-assessed
knowledge (SAK) of autism bears little comparison with their actual knowledge of autism as
measured by the AAS scale. The bivariate correlation between the AAS and the SAK
measure is very small and non-significant (r(310)=.08, p=.13).
[Table 2 – 225 words]
The two AAS statements identified as most correct were, there is one intervention that works
for all children with autism (correct response ‘disagree’ = 96% n=299) and children with
autism can grow up to live independently (correct response ‘agree’ = 95% n=295). The two
most incorrect statements were autism runs in families (correct response ‘agree’ = 27% n=84)
and autism is an emotional disorder (correct response ‘disagree’ = 61% n=190). Respondents
were asked whether they thought autism prevalence is increasing, which 253 (81%) correctly
identified to be the case. Interestingly, Tipton and Blacher’s (2014) study reported an
association between those who identity autism as increasing and those who erroneously
believe that vaccines cause autism. However, this was not the case here, where those who did
not think autism was increasing (an incorrect response) were more likely to correctly identify
that vaccines did not cause autism ( (3)=17, p=.001).
𝑥
2
Autism in self and family
Those with an autistic family member scored significantly higher on the AAS scale than
those with no relationship to autism (F=(2, 309)5, p=.007). The difference in score on the
AAS scale between the groups is small at around two points. By contrast, there is a large and
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significant difference in self-assessed knowledge of autism by the level of an individual’s
relationship to a person with autism (F=(2, 309)23, p=.000). Where a respondent had an
autism diagnosis, or had direct experience through a family member, then on average they
recorded a far higher self-assessed knowledge ( ) of autism than those who
𝑥
=
48,
SD
19
report no experience of autism, ( ) or only professional/social contact with
𝑥
=
28,
SD
17
autism ( ).
𝑥
=
40,
SD 19
Demographics
The sample of teachers in this study is relatively homogenous in education and age. There
were no significant bivariate associations found between the demographic factors and level of
knowledge in autism, or by whether people believe autism is increasing (see Appendix table
a1). Although there are no bivariate associations between demographic factors and AAS, the
modelling analysis below does reveal a significant relationship between sex and AAS.
Modelling knowledge and self-assessed knowledge of autism
Sex and whether people believe autism to be increasing was found to be significantly
associated with the AAS outcome. The contrast between males and females was consistently
significant across models (see Appendix Table a2). Females score on average 1.5 (p=.045)
points higher on AAS net of the other factors controlled in the full model. A significant
contrast between those who have an autistic family member and those with no wider
experience of people with autism (β=-1.9, p=.01) was reported in the base model adjusting
for age, sex and education. This contrast was no longer significant however, in the model
including all variables (β=-1.5, p=.06).
Following Tipton and Blacher (2014), we used the question regarding whether autism is
increasing as a proxy to indicate some awareness of a prevalent media message regarding a
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rise in the diagnosis of autism. The results here suggest that there is a significant contrast
between those who believe autism to be increasing and those who do not (β=2.1, p=.001).
Those who do not believe autism to be increasing score higher on AAS. This contrast remains
significant in the model containing all variables (β=1.9, p=.003). This is a counter intuitive
result because those who do not believe autism to be increasing are incorrect. It is therefore
initially surprising that they score more highly in knowledge of autism. It may be that people
who respond ‘no’ here believe the level of autism in the population to be steady whilst it is
the level of diagnosis, rather than level of autism, that has increased.
The results of the models of the AAS outcome contrast with models of the self-assessed
knowledge measure (Appendix Table a3). In modelling self-assessed knowledge of autism
the only significant predictor was the variable measuring the level of relationship an
individual has to a person on the autistic spectrum. This factor was not significantly
associated with the AAS measure in the equivalent models. This result indicates that those
with experience of autism, through work or social networks, score significantly lower (β=-
8.4, p<.01, lower confidence interval -14, upper confidence interval -2.5) on self-assessed
knowledge than the autism in family or self, reference category group. There is around an
eight-point difference between the categories. Those with no experience of people with
autism score lower again, around a 20 (p<.001, lower confidence interval -26, upper
confidence interval -14) point difference between this category and the reference category.
This model also provides the most explanatory power (F(6, 305) = .13 p<0.00) all other
𝑟
2
models are more limited in their explanatory power.
Overall sex and belief autism is increasing are significantly associated with the AAS scale.
The level of relationship to a person with autism is significantly associated with self-assessed
knowledge of autism. Self-assessed knowledge of autism, however, has no association with
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actual knowledge of autism as measured by the AAS scale. This is evident in both modelling
(β=.005 p=.7) and the very small correlation between the variables.
Discussion
These data make a new contribution to the field by offering a useful baseline assessment of
knowledge of autism from among the largest sample of trainee teachers in the UK using a
validated instrument. Although our study was limited to just one School of Education at one
institution in England, our findings indicate that trainee teachers do not suffer from a gap in
knowledge about the basic characteristics of autism. This is important as it contrasts with the
majority of other comparable research in the field among trainee teachers and educational
professionals (Able et al. 2015; Busby et al., 2012; Haimour and Obaidat, 2013; Helps et al.,
1999; Jung et al., 2011; Mavropoulou and Padeliadu, 2000; McConkey and Bhlirgri, 2003;
Segall, 2008; Segall and Campbell, 2012).
Our findings more closely align with those of Talib and Paulson (2015) and Blackwell et al.
(2017) which also report accurate beliefs about the basic characteristics of autism among
teacher education students. Given that the majority of literature reporting gaps in autism
knowledge using validated instruments were published before 2015, it could be inferred that
trainee teachers and educational practitioners are becoming more informed about autism. This
could be as a result of greater exposure to information through social media and the
accessibility of mobile technology (Aboulkacem and Haas, 2018; Mitchell et al., 2016). That
notwithstanding, these studies appear to indicate a positive trajectory.
As knowledge of autism is a predictor of teachers’ ability and willingness to provide
inclusive learning opportunities to autistic students (Baglieri & Shapiro, 2012; Busby et al.,
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2012; Segall and Campbell, 2012), the positive AAS scores from our sample ought to be
welcomed as a sign that the teachers of tomorrow understand some of the basic diagnostic
information related to autism and its implications for children, families and learning. This is
particularly relevant where higher levels of knowledge might lead to better access to early
screening, accurate identification and early referral of children for a diagnostic assessment
and specific intervention (Dillenburger et al., 2016) alongside the inclusion and success of
autistic pupils in mainstream schools (Keen, Webster & Ridley, 2016; Kurth and
Mastergeorge, 2010). However, instruments such as the AAS do not tell the whole story and
neglect educational professionals’ knowledge of practical strategies and the lived experiences
of autistic people and their families (APPAG, 2017). This was reflected most acutely in
relation to the data related to those with direct connection with autism.
Degrees of contact with a person with autism significantly predicted higher levels of self-
assessed knowledge of autism. Interestingly, this was not also associated with correct
knowledge of autism, based on AAS. It seems, therefore, that those who have more contact
with autism tend to feel more confident but somewhat remarkably do not ‘know’ more than
others. Similar trends are also reported by Gillespie-Lynch et al. (2017) where those with an
autistic family member did not differ significantly in their answers to others with less
relational contact with autism. As per their study and others, we could also conclude, that the
self-assessed knowledge of autism they feel confident of might be derived more from their
lived experiences rather than a formal set of diagnostic criteria (Guldberg, 2017a; Guldberg et
al, 2017b). In this sense there appears to be a gap between knowledge and understanding,
where the former can be assessed by instruments such as the AAS but the latter relates more
sensitively to the practical everyday experience of autism. Such a proposition has
implications for the content validity of autism knowledge scales, which are largely based on
the American Psychiatric Association’s medical criteria for autism as set out in the
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Diagnostic Statistical Manual (Harrison et al, 2017). Further research into knowledge of
autism among different populations ought to consider broadening ‘knowledge’ to comprise a
wider range of perspectives, including those of autistic people and their families, who
typically give greater emphasis to situational knowledge and tend to describe it in terms of
diversity over pathology (Gillespie-Lynch et al., 2017; Author 1 et al, 2017). It seems
reasonable to suggest that doing so could enable us to learn more about what professionals
and practitioners know and the training they require to better meet the needs of autistic
children in schools (APPGA, 2017; Guldberg, 2017a).
Although teachers scored highly in their knowledge of autism they tended to under-estimate
their knowledge, self-assessing as having a far lower levels of knowledge than they actually
demonstrate. This resonates with other findings in the literature. For example, Segall’s
(2008) study suggests that general education teachers tended to profess a lack of knowledge,
rather than an endorsement of incorrect knowledge based on a validated autism knowledge
scale. Other research indicates that even when trainee teachers’ knowledge of autism was
largely correct this did not always translate into feelings of competence in supporting autistic
students’ learning in schools (Blackwell et al, 2017; Busby et al., 2012; Jung et al, 2011;
Talib and Paulson, 2015). One explanation for this seeming lack of confidence in knowledge
may be related to the Dunning–Kruger effect (Dunning, 2011, Kruger and Dunning, 1999). It
shows that top performers are frequently inaccurate in self-assessing their knowledge and
typically display underestimation. Ehrlinger et al.’s study (2008) reported that top performers
misestimated their performances against their objective performances by roughly 6 percentile
points and Schlösser et al. (2013) report underestimations of performance by roughly 10–14
percentile points. It could thus be argued that our sample of trainee teachers, precisely
because of their high levels of awareness of autism, have underestimated their actual
knowledge.
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Finally, it was pleasing that our data based on the AAS replicated that of Cage, Di Monaco, and
Newell (2018) and Tipton and Blacher (2014) with respect to interventions for autistic children.
The top answer shared by all three studies was the (incorrect) statement that ‘there is one
intervention that works for all children with autism’. This suggests that whilst trainee
teachers, in our case, might not necessarily feel confident about how to support autistic
children in their classrooms, 96% of them recognise the need to treat each child according to
their individual challenges, needs, talents, and skills. As with other studies (Blackwell et al,
2017; Busby et al., 2012; Jung et al, 2011; Guldberg 2017a; Talib and Paulson, 2015), our
findings confirm the requirement in the UK to extend resources including autism training
provision for trainee teachers in order to further develop their knowledge of autism but, more
importantly, enable them to best support and develop their autistic pupils.
Limitations and future research
There are obvious limits to what can be claimed based on this research. Firstly, whilst our
study draws on a reasonably large sample of trainee teachers in the UK, it was conducted at
just one university in England. In order to gain a clearer view of just what this group know
about autism future research could replicate this study in other teacher training institutions to
gain a more representative sample. Secondly, whilst Tipton and Blacher’s (2014) AAS
instrument has been validated and is recognised as being a relatively robust measure of
knowledge of autism derived from the wider autism literature and particularly the DSM-5
(2013), the content is open to critique and subject to change (Volkmar and McPartland,
2014). There are other instruments that could have been used (see Harrison et al, 2017b)
which may reflect more up-to-date knowledge. Moreover, the AAS and instruments like it
reflect only medical knowledge of autism and as Gillespie-Lynch et al. (2017) suggest, these
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would benefit from being informed by autistic voices and experiences. Finally, whilst it was
useful to compare trainee teachers’ self-assessed autism knowledge (SAK) against the
validated knowledge of autism captured in the AAS, there is scope to develop enhanced
measures that offer a more comprehensive measure of this. Moreover, it would be useful for
future research to include additional items related to self-efficacy and sense of competence in
relation to their professional knowledge of autism and pedagogical practice with autistic
pupils.
Conclusions
This study offers the first baseline assessment of knowledge of autism using a validated
instrument from among the largest sample of trainee teachers in the UK. It demonstrates that
trainee teachers’ levels of knowledge about the basic characteristics of autism were high in
contrast to the majority of other comparable literature in the field (Able et al. 2015; Busby et
al., 2012; Haimour and Obaidat, 2013; Helps et al., 1999; Jung et al., 2011; Mavropoulou and
Padeliadu, 2000; McConkey and Bhlirgri, 2003; Segall, 2008; Segall and Campbell, 2012).
This is important as evidence suggests that knowledge of autism is a predictor of teachers’
positive attitudes towards inclusion of autistic students and the potential to recognise their
strengths (Busby et al., 2012; Russell et al., 2019).
We suggest that our findings, in conjunction with other more recent studies such as Talib and
Paulson (2015) and Blackwell et al. (2017), indicate a positive shift in autism awareness more
generally among trainee teachers, potentially based on the increase in mobile technology and
access to information through social media. However, whilst our findings are encouraging,
we acknowledge that instruments like the AAS only explore one avenue of knowledge and do
not reflect the professional and personal knowledge that many practitioners possess as a
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result of supporting the educational progress and development of autistic children and,
therefore, claims about levels of ‘knowledge’ ought to be viewed somewhat tentatively. On
this basis we make the case for a review of knowledge of autism scales and the development
of validated instruments which assess teachers’ pedagogical knowledge as well as knowledge
of autism derived from clinical descriptions.
Finally, our findings point to a lack of confidence and an underestimation of knowledge,
which indicate the need for additional resources and training to develop trainee teachers’ self-
efficacy and feelings of competence in their practice (Mundy, 2016). This is especially
important given the challenges that autistic children report in schools (APPGA, 2017) but
also with respect to the role that classroom teachers play in identifying learning needs and
providing opportunities for these pupils to succeed.
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Table 1. Descriptive statistics of the variables of analysis
%(frequency)
Sex/gender
Men
15(46)
Women
85(266)
Age
18-20 years old
75(235)
21-30 years old
25(77)
Level of study
Undergraduate
94(293)
Postgraduate
6(19)
Is autism increasing
Yes
81(253)
No
19(59)
Level of contact with autism
I or a family member have autism
18(56)
Through work or social life
51(160)
No contact
31(96)
Autism Awareness Survey
AAS
Mean: 43 SD: 4.5
Self-assessed knowledge
SAK
Mean: 38 SD: 20
Source: Sample of trainee teachers in the School of Education at one university in England
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Table 2. Statements comprising the AAS scale by percentage of correct, incorrect and neutral
responses
Correct
Incorrect
Neutral
Autism is an emotional disorder (D)
22%
61%
17%
Vaccines are causing an increase in autism (D)
76%
3%
21%
There is a cure for autism (D)
83%
6%
11%
Autism runs in families (A)
48%
27%
25%
All children with autism display poor eye contact (D)
62%
24%
14%
Autism is diagnosed more frequently in males than in
females (A)
57%
13%
30%
Changing a child's diet will lessen the severity of autism
symptoms (D)
66%
9%
25%
There is one intervention that works for all children
with autism (D)
96%
1%
3%
Children with autism can grow up to live independently
(A)
95%
2%
3%
Autism is a developmental disorder (A)
52%
18%
30%
Autism can be diagnosed as early as 18 months old (A)
55%
18%
27%
Children with autism are smarter than standardised
tests demonstrate (A)
58%
10%
32%
It is important that all children with autism receive
special education services (A)
71%
12%
17%
With the proper treatment, most children with autism
will eventually outgrow it (D)
81%
3%
16%
D = correct response is a disagree response
A = correct response is an agree response
Source: Sample of trainee teachers in the School of Education at one university in England n=312
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Appendix
The appendix provides full bivariate associations and modelling results
Table a1, Bivariate analyses between key variables, relationship to a person with autism, sex, age and the Autism Awareness Survey (AAS)
and Self-assessed knowledge (SAK) outcomes
Mean AAS score
Mean SAK score
Relationship to person on Autism spectrum
I or a family member
43.8 (42.9, 44.8)
47.6
Work or social
43.2 (42.5, 43.9
39.9
None
41.8 (40.9, 42.7)
27.9
ANOVA: F(2, 309)=5 p=0.04, eta=.14
ANOVA: F(2, 309)=23 p<0.00, eta=.36
Sex
Male
41.9
37.15
Female
43.1
37.75
T-test: t(310)=1.8 p=0.07
T-test: t(310)=0.1 p=0.9
Age
18-20 years old
42.8
37.8
21-30 years old
43.4
37.6
T-test: t(310)=1.0 p=0.31
T-test: t(310)=0.06 p=0.96
Education level
Undergraduate
42.9
37.8
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Postgraduate
43.1
37.4
T-test: t(310)=0.1 p=0.91
T-test: t(310)=0.08 p=0.94
Is autism increasing?
Yes
42.6
36.9
No
44.6
41.4
T-test: t(310)= 3.14 p=0.002
T-test: t(310)=1.6 p=0.12
Source: Sample of trainee teachers in the School of Education at one university in England, n=312
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Table a2 presents several OLS models of the Autism Awareness Survey outcome. Model 1 is a base model which includes the variables age, sex and level of university study.
Model 2, also includes these variables along with the variable denoting relationship to a person with autism. Model 3, includes the demographic factors along with the self-
assessed knowledge of autism scale. Model 4, includes the demographic factors and whether people believe autism to be increasing. Model 5 includes all the variables
together.
1: Base model, Sex,
age,
level of study
2: Base model +
Level of contact
with autism
3: Base model +
Self-assessed
knowledge of autism
4: Base model +
Is autism
increasing
5: Full model
β
se
ci 95%
β
se
ci 95%
β
se
ci 95%
β
se
ci 95%
β
se
ci 95%
Sex
Male
-
-
-
-
-
Female
1.5*
(.75)
0047,3
1.3
(.75)
-.15,2.8
1.5*
(.75)
.00044,2.9
1.6*
(.74)
.17,3.1
1.5*
(.74)
.031,2.9
Age
18-20 years old
-
-
-
-
-
21-30 years old
.73
(.66)
-.57,2
.69
(.66)
-.61,2
.73
(.66)
-.57,2
.7
(.65)
-.58,2
.67
(.65)
-.61,1.9
Level of study
Undergraduate
-
-
-
-
-
Post-graduate
.13
(1.2)
-2.3,2.5
.15
(1.2)
-2.2,2.5
.13
(1.2)
-2.2,2.5
.28
(1.2)
-2.1,2.6
.28
(1.2)
-2.1,2.6
I or family
member
-
-
Work/social
-.45
(.69)
-1.8,.91
-.25
(.69)
-1.6,1.1
Level of
contact
with autism
none
-1.9*
(.75)
-3.4,-
.41
-1.5
(.79)
-3.1,.061
SAK scale
.02
(.013)
-.0055,.045
.0055
(.014)
-.021,.032
Self-assessed
knowledge of
autism
Yes
-
-
Is autism
increasing?
No
2.1***
(.64)
.87,3.4
1.9**
(.64)
.68,3.2
Constant
41***
(.73)
40,43
42***
(.94)
41,44
41***
(.88)
39,42
41***
(.74)
40,42
42***
(1.2)
39,44
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𝑅
2
.015
.042
.023
.049
.071
F
(3, 308)=1.56
(5, 306)=2.66
(4, 307)=1.77
(4, 307)=3.98
(7, 304)=3.30
β: linear regression coefficients,
se: standard errors,
ci 95%: 95% confidence intervals
Source: Sample of trainee teachers in the School of Education at one university in England, n=312, *p<=.05, **p<=.01, ***p<=.001
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Table a3 presents several OLS models of the self-assessed knowledge scale outcome. Model 1 is a base model which includes the variables age, sex and level of university
study. Model 2, also includes these variables along with the variable denoting relationship to a person with autism. Model 3 includes the demographic factors and whether
people believe autism to be increasing. Model 4 includes all the variables together.
1: Base model, sex, age,
level of study
2: Base model + level of
contact with autism
3: Base model + Is
autism increasing
4: Full model
β
se
ci 95%
β
se
ci 95%
β
se
ci 95%
β
se
ci 95%
Sex
Male
-
-
-
-
Female
.38
(3.3)
-6.2,6.9
-1.5
(3.1)
-7.6,4.7
.68
(3.3)
-5.9,7.2
-1.3
(3.1)
-7.4,4.9
Age
18-20 years old
-
-
-
-
21-30 years old
.075
(2.9)
-5.7,5.9
-.38
(2.7)
-5.8,5
.019
(2.9)
-5.7,5.8
-.41
(2.7)
-5.8,5
Level of study
Undergraduate
-
-
-
-
Post-graduate
-.27
(5.4)
-11,10
.13
(5)
-9.7,10
.049
(5.4)
-10,11
.29
(5)
-9.6,10
I or family member
-
-
Work/social
-8.4**
(2.9)
-14,-2.7
-8.2**
(2.9)
-14,-2.5
Level of contact
with autism
none
-20***
(3.1)
-27,-14
-20***
(3.2)
-26,-14
Is autism
increasing?
Yes
-
-
No
4.5
(2.9)
-1.2,10
2.4
(2.7)
-3,7.7
Constant
37***
(3.3)
31,44
50***
(3.9)
42,57
36***
(3.3)
30,43
49***
(4.1)
41,57
𝑅
2
.000061
.13
.0079
.13
F
(3, 308)=0.01
(5, 306)=9.33
(4, 307)=0.61
(6, 305)=7.89
β: linear regression coefficients,
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se: standard errors,
ci 95%: 95% confidence intervals
Source: Sample of trainee teachers in the School of Education at one university in England, n=312, **p<=.01, ***p<=.001
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Table a5, contingency tables of the bivariate relationship between responses on variable of whether
autism is increasing and several analytic variables
In your view do you think autism is increasing in the UK
Yes
No
n
Level of contact with autism
I or a family member
73%
27%
56
Work/social
81%
19%
160
None
86%
14%
96
Chi-square(2)=4, p=0.13, Cramer’s V= 0.11
Sex
Male
76%
24%
46
Female
82%
18%
266
Table a4, contingency table of the bivariate relationship between responses on variable of
whether autism is increasing by whether people agree that vaccines are causing autism. This is
a distribution also examined by Tipton and Blacher (2014).
Vaccines are causing an increase in autism
Is autism increasing?
Disagree
Somewhat
disagree
Neutral
Somewhat
agree
n
Yes
51%
22%
23%
4%
253
No
80%
10%
10%
0
59
Chi-square(3)=17, p=0.001, Cramer’s V= 0.23, similar result with Fishers exact test
Source: Sample of trainee teachers in the School of Education at one university in England
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Chi-square(1)=1, p=0.34, Cramer’s V= 0.05
Age
18-20 years old
81%
19%
235
21-30 years old
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Chi-square(1)=0.0, p=0.9, Cramer’s V= 0.0
Source: Sample of trainee teachers in the School of Education at one university in England n=312
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Reviewer(s)' Comments to Author:
We thank the reviewers for the time and effort put into making this a stronger research
paper. The meticulous comments and constructive advice offered throughout this
process have served to enhance the overall argument and important findings for teacher
education.
Referee: 1
Comments to the Author
I have read through the revised paper.
The specific revisions made to my original review have been addressed. Though I would
have preferred to see specific details of what text related to my points by reference to page
and line numbers, I could identify where changes recorded in the accompanying letter were
made in the text. I would also have preferred to not see the deleted text and juts new text.
But, what matters is that the key points I raised in the initial review have been addressed
satisfactorily. These relate to the distinction between teacher content and pedagogic
knowledge in relation to autism, the surprising elements in findings have been commented on
in the discussion, the limitations of the AAS measure and other kinds of teacher knowledge
that are important for teachers.
I have noted other revisions which make sense to me given other reviewer's comments. But
that is for this reviewer to comment on
I noted that on page 22 the DSM scheme was said to be from the Am. Psychological
Association; this should be Psychiatric.
This has been addressed and changed.
I support this being published
Referee: 2
Comments to the Author
Very many thanks to the authors for responding so constructively and fully to the feedback
received. This is a substantially improved paper as a result of the changes and I am sure that
the authors must feel that too. I think there are a few points where clarification and detail are
needed but these are minor points to improve overall transparency and readability:
The title - I would suggest a change to the title to reflect the updated argument and content. I
am not sure this point is really central to the paper anymore and so the title could be clearer.
We have altered the title to Trainee teachers’ knowledge of autism: implications for
understanding and inclusive practice, which we feel better reflects the main emphasis
and points raised in the discussion / conclusions.
In the abstract, I would recommend 'draw on data from a large sample' [you make the point
about the largest so far in the text and that's fine]
This has been addressed and changed.
p. 4 - sentence that begins Russell et al (2019) - the subject of the sentence (they) shifts
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across this sentence, making it more difficult to follow. Just check and tweak that the subject
is clear throughout.
We have aimed to clarify that the subject of the sentence is a strengths-based reading of
autism.
p. 7 research questions - RQ1 I would suggest a slight rephrase as follows: What is the
overall level of knowledge about autism among trainee teachers in one Higher Education
Institution in England?
RQ2 - suggest spelling out the AAS in full here as it's not been introduced in the text yet
RQ3 - suggest a slight rephrase: Are demographics (....) associated with self-assessed
knowledge of autism and responses to the Autism Awareness Survey
Agree. These have been addressed and changed.
p. 12 I think the point needs to be completed about why the AAS was used. So you've
introduced the AAS, said what it's limitations are [Give the AAS's focus...] but then you need
to add a sentence that says why you are using it anyway e.g. Nevertheless, the AAS was used
for this study because...
Agree. These have been addressed and changed.
p. 12 second para, the brackets around (AAS) can be removed
This has been addressed and changed.
p. 12 - please state the exact wording of the SAK question
This has been added
p. 13 - it does not seem valid to claim a score of 50 would represent the average population
level of knowledge about autism, unless you have some clear evidence to support this
statement. You could only claim this if you know the scores to questions like this tend to be
normally distributed (which I very much doubt). This statement needs to be removed or fully
justified with reference to evidence.
This is a fair point and has been removed.
p. 13 'This was considered....' - this sentence includes a repetition of increase / increasingly -
a slight rephrase needed
This has been addressed and changed.
p. 15 - should be '...results are presented as descriptive and bivariate analyses...'
This has been addressed and changed.
p. 16 - Please give the numbers and percentages for responses to the two most correct and
incorrect statements on the AAS.
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These have been addressed and changed.
p. 16 - you state here that 'Respondents were asked whether they thought the prevalence of
autism is increasing' - were they asked this specifically? Or were they asked the more general
wording as shown in your tables. Please clarify this and then be consistent throughout about
how you phrase and refer to this question.
This has been addressed and changed.
p. 16 should be '...those who identify autism as increasing...'
This has been addressed and changed.
p. 20 - do you really want to cite Dillenburger et al here in support for a specific intervention?
Are you advocating that ABA approaches should be rolled out for all children then? This is
highly controversial of course and if this is not what you are advocating then I would strongly
recommend changing this reference.
We understand the point regarding the suggested support of ABA as an effective
intervention. I don’t happen to agree with Dillenburger on this matter, however, the
study referred to is also useful as a large population which suggests that more
knowledge can lead to better outcomes for autistic children and young people, hence we
have retained it as a reference. I have removed the final clause “and specific
intervention” though.
pp.25-26 I would like to see a few sentences added to the limitations that fully acknowledges
the limitations of asking only one question about subjective knowledge and using a 0-100
scale for doing this. This is very limited in terms of what it can really tell us and this needs to
be fully acknowledged here.
We have aimed to add some additional detail about this limitation although, as per
revisions submitted previously, we suggest that single-item questions are not necessarily
to be avoided (Gogol et al., 2014; Williams and Payne, 2008).
Table a2 - you refer to the SAK scale here but in the main text you say SAK measure. The
latter is better because it's not really a scale at all, being based only on one question. I
recommend making the phrasing consistent here and using 'measure' throughout when you
talk about the SAK.
This has been addressed and changed.
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