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Use of Digital Mental Health for Marginalized and Underserved Populations

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Abstract

Purpose of review Digital mental health (DMH) interventions provide opportunities to alleviate mental health disparities among marginalized populations by overcoming traditional barriers to care and putting quality mental health services in the palm of one’s hand. While progress has been made towards realizing this goal, the potential for impactful change has yet to be realized. This paper reviews current examples of DMH interventions for certain marginalized and underserved groups, namely, ethnic and racial minorities including Latinx and African-Americans, rural populations, individuals experiencing homelessness, and sexual and gender minorities. Recent findings Strengths and opportunities, along with the needs and considerations, of each group are discussed as they pertain to the development and dissemination of DMH interventions. Our review focuses on several DMH interventions that have been specifically designed for marginalized populations with a culturally sensitive approach along with other existing interventions that have been tailored to fit the needs of the target population. Overall, evidence is beginning to show promise for the feasibility and acceptability of DMH inter ventions for these groups, but large-scale efficacy testing and scaling potential are still lacking. Summary These examples of how DMH can potentially positively impact marginalized populations should motivate developers, researchers, and practitioners to work collaboratively with stakeholders to deliver DMH interventions to these underserved populations in need.
1 23
Current Treatment Options in
Psychiatry
e-ISSN 2196-3061
Curr Treat Options Psych
DOI 10.1007/s40501-019-00181-z
Use of Digital Mental Health for
Marginalized and Underserved Populations
Stephen M.Schueller, John F.Hunter,
Caroline Figueroa & Adrian Aguilera
1 23
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Curr Treat Options Psych
DOI 10.1007/s40501-019-00181-z
Technology and its Impact on Mental Health Care (J Torous and T Becker, Section Editors)
Use of Digital Mental Health
for Marginalized
and Underserved Populations
Stephen M. Schueller, PhD
1,*
John F. Hunter, PhD
1
Caroline Figueroa, MD, PhD
2
Adrian Aguilera, PhD
2,3
Address
*,1
Department of Psychological Science, School of Social Ecology, 4304 Social and
Behavioral Sciences Gateway, Irvine, CA, 92697-7085, USA
Email: s.schueller@uci.edu
2
School of Social Welfare, University of California, Berkeley, CA, USA
3
UCSF, Department of Psychiatry, Zuckerberg San Francisco General Hospital, San
Francisco, CA, USA
*Springer Nature Switzerland AG 2019
This article is part of the Topical Collection on Technology and its Impact on Mental Health Care
Keywords Technology IMental health IDisparities ImHealth ITreatment IHealth information technology
Abstract
Purpose of review Digital mental health (DMH) interventions provide opportunities to alleviate
mental health disparities among marginalized populations by overcoming traditional barriers to
care and putting quality mental health services in the palm of ones hand. While progress has
been made towards realizing this goal, the potential for impactful change has yet to be realized.
This paper reviews current examples of DMH interventions for certain marginalized and under-
served groups, namely, ethnic and racial minorities including Latinx and African-Americans, rural
populations, individuals experiencing homelessness, and sexual and gender minorities.
Recent findings Strengths and opportunities, along with the needs and considerations, of each
group are discussed as they pertain to the development and dissemination of DMH interventions.
Our review focuses on several DMH interventions that have been specifically designed for
marginalized populations with a culturally sensitive approach along with other existing inter-
ventions that have been tailored to fit the needs of the target population. Overall, evidence is
beginning to show promise for the feasibility and acceptability of DMH inter ventions for these
groups, but large-scale efficacy testing and scaling potential are still lacking.
Summary These examples of how DMH can potentially positively impact marginalized popula-
tions should motivate developers, researchers, and practitioners to work collaboratively with
stakeholders to deliver DMH interventions to these underserved populations in need.
Author's personal copy
Introduction
Technology is regularly touted for its promise to over-
come health disparities, offering widely accessible, yet
low-cost resources that can transcend time, place, and
language. Technology, therefore, may play an especially
important role in mental health services. Minorities are
less likely to receive mental health services and when
they do are more likely to receive lower quality care [1,
2]. As such, digital mental health (DMH) tools might be
able to overcome several identified barriers to quality
care among marginalized and underserved populations
including access, cost, transportation, and stigma. DMH
tools can be tailored for different groups by adjusting
cultural and language aspects of DMH interventions that
might increase their appeal and uptake.
At the same time, however, technology has yet to
realize this potential. Health disparities still exist. The
barriers associated with technology ownership and use
may differ from those present in health care, and thus,
unique considerations might need to be taken into ac-
count for the development and deployment of digital
tools. Such barriers include lack of access or different
access to technology infrastructure including desktop
computers, mobile phones, and high-speed and wireless
Internet. For example, a recent study evaluating the use
of mobile health apps among diverse patients illustrated
challenges completing even the core functions of those
apps [3]. As such, if marginalized and underserved pop-
ulations are not considered during the development and
evaluation of DMH, these technologies might serve to
further entrench, rather than overcome, existing
disparities.
The goals of this paper are to review the current
examples of the use of DMH interventions for margin-
alized and underserved populations, to distill common-
alities among this work, and to identify considerations
and priorities for future development and research.
Defining marginalized and underserved populations
We draw our definition of marginalized and underserved populations from the
National Institute of Minority Health and Health Disparities which focuses on
producing equal opportunity for health for all populations [4]. This definition
is broader than racial and ethnic minorities and includes underserved rural
populations, those with fewer economic resources (e.g., individuals experienc-
ing homelessness), and sexual and gender minorities [5]. These populations
face discrimination and social disadvantages presenting challenges in many
areas of their life including access to mental health care. In addition to being
barriers to receiving care, discrimination and social disadvantages contribute to
stress and the development of mental health issues [6]. We consider a few
populations that fall under this broader definition as they provide good ex-
amples of the existing work on DMH interventions for marginalized and
underserved populations. This include ethnic and racial minorities including
Latinx and African-Americans, rural populations, individuals experiencing
homelessness, and sexual and gender minorities.
Ethnic and racial minorities
In this section, we will discuss interventions that have been deployed for
various racial and ethnic groups. Although work has investigated the use of
DMH for a multitude of racial and ethnic groups, here we highlight work
conducted in the USA within two groups specificallyLatinx and African-
Americans, because the work in these groups illustrates key points that
encompass strengths and issues involved in DMH deployment.
Technology and its Impact on Mental Health Care (J Torous and T Becker, Section Editors)
Author's personal copy
In the USA, Latinx individuals own smartphones at the same rates as whites
(both 77%) [7]. This high ownership of smartphones among Latinx popula-
tions provides an opportunity for DMH interventions to be disseminated
among this population that has historically underutilized traditional mental
health services [8]. However, Latinxs are more likely to be smartphone de-
pendentcompared with Whites, that is to own smartphones but lack broad-
band Internet access at home [7]. In addition, they are more likely than other
groups to interact via text messaging or mobile messaging platforms such as
WhatsApp. Glimpses into their specific use of these devices, such as messaging
platforms, might also speak to the forms and content of interventions that
might be relevant.
Despite low utilization of standard services, there appears to be an interest in
digital health among the Latinx population. In a survey of primary care Latinx
patients, 86% stated an interest in utilizing a health app and 40% expressed
motivation to use such apps daily [9]. Latinx smartphone users also report
being 20% more likely than whites to use a health app [10]. However, many
studies of digital health interventions do not include or have low rates of Latinx/
Hispanic participants. While there is more to be done, some researchers have
begun to target Latinx populations in their DMH interventions.
Digital and mobile health apps targeting Latinx populations have often
targeted depression [11,12,13••], among other mental health concerns such
as alcohol abuse [14] and disordered eating [15]. In a fully remote mobile app
intervention for depression, Latinxs responded equally well to the intervention
but dropped out earlier on average [13••]. In targeting this population, it is
important to incorporate culturally relevant themes. One example of cultural
differences within digital health experience is a finding that Spanish-speaking
Latinxs focused on the role of interventions in helping them feel cared for and
supported, while English speakers (which included one Latina, but the rest
white or African-American) emphasized the introspective and self-reflective
nature of the depression intervention [16]. Thus, tailoring DMH interventions
to focus on the provision of support and care may be particularly apt for
targeting Latinx populations.
While cultural tailoring and adaptation takes more time and effort, particu-
larly given the diversity of Latinx subgroups, one straightforward improvement
in this field would be to offer existing mental health apps in Spanish (and other
languages). Aguilera et al. [11] found that using automated text messaging as an
adjunct to group cognitive behavioral therapy (CBT) for depression in Spanish
resulted in significantly increased engagement, as evidenced by patients at-
tending more sessions and staying in treatment longer. These studies have all
reported generally positive qualitative feedback regarding the use of technolo-
gies to support therapeutic interactions. While translation does not always
ensure cultural relevance, it is an initial step in widening access to digital mental
health tools. Overall, researchers and developers have not taken enough ad-
vantage of developing digital health interventions for this engaged and high
need group.
The combination of substantial African-American health disparities coupled
with their high rate of smartphone ownership should situate them as an ideal
population for DMH interventions. Similarly to Latinxs, African-Americans
own smartphones at similar rates to whites (75% vs. 77%) but are much more
likely to be smartphone dependent. Far fewer studies, however, have focused
Use of Digital Mental Health Schueller et al.
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specifically on DMH interventions for African-American populations, and the
potential to expand access for African-Americans through technologies has not
been realized. One impediment is the extremely low rate of African-American
recruitment in mobile health intervention studies [17]. For the most part,
researchers are not going beyond the one-size-fits-all approach for designing
DMH interventions and recruiting African-Americans into their studies. This
lack of involvement is compounded by the fact that to our knowledge, there are
no DMH interventions that have been specifically designed for African-
American populations.
Although no DMH interventions have been specifically designed and
evaluated for African-American populations, there are some examples of
DMH interventions successfully aiding in mental health management for
samples that are mainly comprised of African-American individuals. In each
of these examples, the DMH intervention used an adjunct to standard
treatment that was meant to enhance the available options for therapeutic
benefits. In one small study, a telemedicine intervention aimed at managing
PTSD symptoms for combat veterans helped to reduce symptoms and was
rated as preferable than face-to-face therapy [18]. In another illustration of
DMH being utilized by a primary African-American population, a digital
biofeedback tool was used to help women veterans reduce depression
symptoms associated with trauma [19]. Finally, a more comprehensive and
multimodal intervention called FOCUS produced significant and sustained
reductions in depression for a majority African-American sample of partic-
ipants [20]. These examples demonstrate that DMH interventions have the
potential to help African-Americans with mental health issues. However,
the lack of culturally appropriate tailoring, stakeholder input, and effective
recruiting efforts limits the effectiveness of these interventions for alleviat-
ing health disparities for this population. To better serve the African-
American population, more attention should be paid to their unique needs
and DMH interventions should be better designed and disseminated with
those needs in mind.
Rural populations
Mental health services are overrepresented in urban areas, making it chal-
lenging to receive appropriate and effective services in rural areas. Indeed,
the population is similarly skewed with 80% of the population living in 3%
of the US land mass, which presents additional challenges with reaching the
remaining 20% of the US population [21]. Telephones and video confer-
encing software have been used for years to connect those in need in these
rural areas to providers from other areas [22]. These technologies allow for
synchronous communication between a provider and client and help
overcome barriers of geography and transportation. However, such tech-
nologies still require providers who are available with expertise in the issues
that might arise in rural populations. In light of this, a few DMH interven-
tions have been developed and evaluatedwithaneyetowardsexpanding
effective treatment options in rural settings.
Unlike racial and ethnic minorities, technology access is much lower in rural
populations. For example, smartphone ownership is only 65% compared with
Technology and its Impact on Mental Health Care (J Torous and T Becker, Section Editors)
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83% in urban populations and broadband internet access is much lower as only
61% of people in rural areas can get access to broadband internet compared
with 96% in urban areas [23]. Therefore, although DMH interventions in rural
populations address a clear need, there remain infrastructural issues to over-
come to ensure that such interventions can be useful. Therefore, the type of
technology utilized may be an important concern in rural populations. DMH
interventions in rural populations might require preferencing more established
and available technologies that have less intensive data demands.
Early work in rural settings has mostly focused on understanding the
feasibility and acceptability of DMH interventions. As such, this work tends
to use small samples and evaluate metrics of engagement and satisfaction.
For example, one study explored Text4Strength, an interactive text messag-
ing intervention designed for students in rural communities [24]. Most
students (91%) engaged with at least one interaction, but that percentage
dropped considerably (52%) when examining those who engaged in at least
three interactions. Nevertheless, over 70% of the students found this inter-
vention helpful. Another series of studies described the development and
early evaluation of the SPIRIT app, a mobile health system to facilitate a
collaborative care treatment model for patients with post-traumatic stress or
bipolar disorders [25,26••]. Similar to Text4Strength, this app was evalu-
ated with a small group of individuals but showed some early promise with
high rates of usability and engagement. Another output stemming from
Bauer and colleagues [25] work in developing the SPIRIT app was the
discovery of unique principles of development that should be considered
when designing mental health technologies. These principles extended nine
previous principles for digital development with five additional principles:
(1) design for public health impact, (2) add value for all users, (3) test the
product and the process, (4) acknowledge disruption, and (5) anticipate
variability. These five additional principles align with other work that has
expanded participatory design and research principles for underserved
populations [e.g., 27]. As such, it is worth noting that although developing
DMH interventions should follow methodologies from broader technology
development, it requires a consideration of principles that might be unique
to the space. Overall, it seems that despite some additional considerations,
such as technology infrastructure, that must be addressed in these settings,
DMH holds promise for rural populations. More work needs to explore the
scalability of such interventions and whether scaling identifies additional
challenges that need to be overcome.
Individuals experiencing homelessness
Technology access among individuals experiencing homelessness is not as low
as some might believe. Data from adults experiencing homeless suggest that
most own mobile phones (93%) and many own smartphones (58%) [28].
Youth and young adults experiencing homelessness have even higher rates of
smartphone ownership, sometimes even as high as their housed peers [29,
30••]. However, individuals experiencing homelessness face other barriers to
using technology including keeping consistent phones phone numbers and
charging devices to keep them operational. They are also more likely to use
Use of Digital Mental Health Schueller et al.
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older and cheaper models. Other considerations exist as well, as 86% of adults
experiencing homelessness were found to use Android devices [28], although
use of Android devices in the USA among the general population is only slightly
greater than half. Internet connectivity for individuals experiencing homeless-
ness is an important way to maintain continuity and connection in their life and
to seek housing and employment. As such, it may be a useful pathway to engage
individuals experiencing homelessness in mental health services.
Indeed, some early work has started to examine DMH interventions
oriented towards individuals experiencing homelessness. Homelessness
often consists of a complex array of challenges, including housing and
employment, which must be addressed when designing mental health
services. An overview of this early work illustrates some key points in
developing and deploying effective digital interventions for this population.
First, technology can serve as an important bridge to accessing a wealth of
resources. For example, the StreetConnect app provides a broad range of
referral resources intended to address the various needs of those experienc-
ing homelessness [31]. Second, for service providers working with individ-
uals experiencing homelessness requiresanappreciationofhowtoreach
them physically and digitally. Common platforms, such as social media,
might be a particularly effective way to stay connected, especially among
youth populations, and can be an effective tool for introducing interven-
tions [32]. Lastly, although early work has demonstrated that DMH inter-
ventions are liked and used, they have failed to establish clinical effective-
ness [30••]. Further work should establish that not only do homeless
populations like and use DMH intervention but that these interventions
produce a beneficial impact on their lives. Similar to work in rural popu-
lations, DMH for individuals experiencing homelessness shows promise as
technology appears to be a useful way to establish and maintain connec-
tions with this group. More work needs to determine, however, what goals
technology is most effective at achieving, for example, connection to ser-
vices, strengthened relationships, improved self-efficacy, and evaluating
DMH interventions in light of those goals. Such constructs might be the
precursors to changes in clinical symptoms. Additionally, when working
with individuals experiencing homelessness, one also needs to consider
broader factors that can promote better mental health such as housing,
employment, and social support.
Sexual orientationLGBTQ
Sexual and gender minorities are faced with a unique set of challenges (e.g., social
ostracism) that can impact mental health [33]. LGBTQ individuals are signifi-
cantly more likely to have depressive symptoms than their heterosexual coun-
terparts but have difficulty accessing psychological services, likely due to the
challenges of finding a therapist who can specifically address issues relevant to
this population [34].Atthesametime,ratesoftechnologyownershipamong
LGBTQ individuals are comparable with their heterosexual peers [35]. LGBTQ
individuals are also very likely to seek support through digital means. At
CrisisTextLine, a text message-based crisis support service, 44% of the people who
text are LGBTQ [36] and gender and sexual identity issues account for 1.8% of the
Technology and its Impact on Mental Health Care (J Torous and T Becker, Section Editors)
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conversations [37]. The Trevor Project [38] is a support source providing crisis
interventions and suicide prevention services to LGTBQ youth (including a
partnership with CrisisTextLine) and provides supports in online spaces. Thus,
DMH appears particularly well suited to provide services to this population.
One of the earliest forms of DMH interventions, computerized cognitive
behavioral therapy (cCBT) provides a promising opportunity to assist LGBTQ
individuals because it can be tailored to specifically target the needs of this group
and deliver private assistance that might not be associated with of visiting a mental
health provider. For example, cCBT can include content that addresses heterosex-
ism, homophobia, lack of family support, social judgment, and issues about
Table 1. Summary of DMH considerations for each group
Group Ownership and use Strengths and
opportunities
Needs and considerations
Latinx 77% own a smartphone, and
20% own a cellphone but not
asmartphone[7].
Messaging platforms like
WhatsApp show higher rates
of adoption and use [51].
Potential for inclusions of
social aspects, as feeling
cared or supported [16].
Language considerations for
Latinx population who is
monolingual Spanish (or
might prefer Spanish for
some interactions). Higher
prevalence of mobile-only
Internet access.
African-American 75% own a smartphone, and
23% own a cellphone but not
asmartphone[7].
Opportunities to recruit into
clinical research where
typically underrepresented
[17]. Mobilize community
connection and support.
Higher prevalence of
mobile-only Internet access.
Low rates of inclusion in
clinical research. Low rates of
stakeholder involvement in
development process.
Rural populations 65% own a smartphone [21],
low rate of broadband
internet access at 61% [23].
Potential to transcend
geographic space and allow
remote visits and
appointments.
DMH interventions need to
consider infrastructure
challenges such as
bandwidth, access, and data.
Homeless
individuals
Estimates of smartphone
ownership range across
different methods of
surveying. One study found
58% of adults [28].
Ownership rates similar to
housed peers in some
subgroups (i.e., youth) [29].
Tendency to use Internet to stay
connected and seek services.
24/7 access to resources
might be beneficial to
address structural barriers to
access.
Access to technology might
overlook other challenges
such as keeping phones
charged, maintaining phone
numbers, and service plans.
Higher prevalence of
mobile-only Internet access.
LGBTQ Smartphone ownership does not
differ by sexual orientation
[35].
Higher rates of seeking mental
health information or
resources online. Digital
spaces allow potential to
connect LGBTQ individuals
who might lack strong
communities or support
where they live.
Initial pilot studies show
acceptability and feasibility
of tailored tools.
Culturally sensitive, stigma-free
content is important.
Use of Digital Mental Health Schueller et al.
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coming out in a supportive and personalized fashion [39]. Unfortunately, few
DMH interventions include these elements [33] even though LGBTQ individuals
have expressed favorable views towards the integration of technological tools in
their treatment [40]. Despite these challengesadaptability, mobility,
privacyDMH interventions present an opportunity to overcome some of the
barriers of treatment by providing supportive mental health resources to this
population [34].
One way in which DMH can potentially impact the mental health of LGTBQ
individuals is through the adaptation of currently available DMH technology to
more specifically target their needs. One DMH depression intervention, SPARX,
was altered by researchers to Rainbow SPARX which contains specific elements
that made the services more appropriate for the LGBTQ population struggling
with symptoms of depression [41]. For example, the rainbow version includes
multiple culturally sensitive script changes to the intervention modules, avatars
that can be customized without strict gender norms, and content addressing
specific challenges among this population (e.g., coming out, getting bullied). In
a qualitative assessment of the application, participants strongly endorsed the
effectiveness and acceptability of Rainbow SPARX for treating their depression
[41]. In addition, the use of Rainbow SPARX has been shown to significantly
reduce symptoms of depression and anxiety, and these effects were maintained
at a 3-month follow-up [41]. The successful adaptation of SPARX into a
LGBTQ-specific intervention demonstrates that digital self-help resources can
be a valuable adjunct to face-to-face therapy for this population.
Tailoring an existing application for use by LGBTQ individuals is one route
for providing DMH services;however, it may be evenmore efficacious todesign
a novel application that specifically targets LGBTQ issues. Burns and colleagues
[42] sought the input of sexual minority men to inform the culturally appro-
priate design of an application that assists with the management of generalized
anxiety disorder and major depression. The end-product of this systematic
development process was the application TODAY!, which provides a range of
tools that received positive feedback from users [43]. This ground-up approach
ensures stakeholder involvement and allows the DMH to specifically address
the issues that are most important to this LGBTQ population.
Research in this area is still in its infancy, and only a few instances
of specific DMH interventions for LGBTQ populations exist. However,
there is great potential for a positive impact on LGBTQ mental health
through digital means. LGBTQ individuals seem to be connecting online
and are overrepresented when looking at digital service seekers. Given
their tendency to seek resources online, designing culturally appropriate
interventions or adapting currently available interventions might meet
the unique needs of this group. Future studies should work to test the
efficacy of these potential interventions and establish guidelines for the
successful development and implementation of DMH for LGBTQ
individuals.
Future directions
The state of the evidence and development of DMH interventions for under-
served and marginalized populations mirrors themes that are present in DMH
Technology and its Impact on Mental Health Care (J Torous and T Becker, Section Editors)
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interventions more generally. Work has largely consisted of small pilot studies,
many which have demonstrated feasibility and acceptability, but few which
have demonstrated large-scale efficacy or scaling. For instance, a 2018 system-
atic review identified a number of pilot studies for digital interventions in
underserved groups, but noted that these interventions usually did not follow-
up with an implementation component [44]. On one hand, this is not
surprising, given that focus on underserved and marginalized populations often
follows development of more general interventions as demonstrated by our
examples of tailoring or augmenting interventions for a specific population. On
the other hand, this is extremely disappointing given the discrepancy between
the need and supply of available mental health services for these populations
and the fact that following initial attempts provides the exciting potential to
build and expand. Thus, we offer a few suggestions that might help accelerate
and improve work that can increase the impact of DMH among underserved
and marginalized populations.
One possibility for the future of DMH is to develop tools that do not
require adaptation on the part of the developer to be relevant and
appropriate for different populations. This could include language ag-
nostic tools that leverage technology to create interactions based on
clinical science that do not have to be conveyed verbally. For example,
work has translated therapeutic evaluative condition [45] and attention-
bias modification [46] into mobile apps for widespread deployment. It is
worth considering how much can be developed that does not require
language especially when using digital media. Another possibility, how-
ever, would be to allow users of the DMH interventions to contribute to
the intervention themselves. Some DMH interventions have leveraged
peer involvement [i.e., 47,48], and peers from different populations
could assist in the delivery of content tailored to language or other
differences on these general use platforms.
Another important step is increasing the transparency within DMH
intervention as to whether individuals from different subpopulations
have used that intervention and whether it has worked for them. The
question most relevant to any potential user is not whether that inter-
vention has an impact on average but whether that intervention will
likely help him or her. Issues of the generalizability of benefits of DMH
across diverse groups is key. Some of the work described in this paper,
such as determining if DMH interventions contain content relevant for
specific groups or having people from groups use an intervention to
provide user feedback, is an important first step. But ultimately those
responsible for reporting outcomes on the impact of DMH interventions
should highlight this information.
Lastly, we offer a word of caution for the advancement of DMH. One area of
growth has been the use of artificial intelligence (AI) and machine learning to
provide deeply personalized interactions based on individualized understand-
ing. Such methods typically use historically collected data to make predictions
about new data being introduced to the model. Concerns have been raised
regarding the unwanted introduction of biases by AI and machine learning
models [49]. One example of potential problems in such interventions would
be an algorithm that can detect depressive symptoms based on automatic
recognition of voice in English-speaking patients not being applicable to
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Spanish-speaking patients. Furthermore, a smartphone application that
adapts a behavioral activation intervention according to emotional state
might suggest that the patient can engage in activities such as going to the
movies or spending an evening with friends. However, low-income indi-
viduals might experience financial and structural barriers that restrict
them from engaging in certain types of activities [50]. For marginalized
populations, these biases may result in incorrect predictions or with-
holding of resources. Ways of overcoming machine bias include using
training data of diverse patient populations, ensuring that no group is
underrepresented, comparing model accuracy for different demographic
and social groups, and acquiring more diverse teams of programmers and
researchers, including different academic disciplines, to study the design
of fair and ethical models [49]. All of these suggestions align with the
broader need for inclusion of diverse populations early and often to
ensure broad benefit of DMH interventions. Otherwise, we run the risk of
further increasing existing health disparities (Table 1).
Conclusions
It is exciting to think that technologies can help overcome disparities in
mental health services and expand access and improve relevance for un-
derserved and marginalized populations. Table 1summarizes some of the
key points synthesized from the various populations we have discussed in
this paper. These populations have all been addressed in pioneering work
that has illustrated different ways in which technologies might overcome
disparities. Despite this initial progress, much work still needs to be done.
Pursuing thoughtful use of technology to address mental health needs
among underserved and marginalized populations requires an appreciation
of the strengths and needs within each group, the technological availability
and use of that group, and the interaction of these aspects to appreciate the
unique affordances of technology. Evidence is starting to show promise for
doing so, but large-scale efficacy, effectiveness, and implementation studies
are still lacking. As it stands, DMH interventions still hold a lot of potential
to help diverse groups, but now, that potential needs to be translated into
reality and action.
Compliance with ethical standards
Conflict of interest
Stephen M. Schueller declares that he has no conflict of interest. John F. Hunter declares that he has no conflict of
interest. Caroline Figueroa declares that she has no conflict of interest.
Adrian Aguilera reports personal fees from Care Message.
Human and animal rights and informed consent
This article does not contain any studies with human or animal subjects performed by any of the authors.
Technology and its Impact on Mental Health Care (J Torous and T Becker, Section Editors)
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... Telehealth can reduce the impact of distance and limited local providers (Siegel et al., 2021) and has been touted to address rural health disparities (Butzner & Cuffee, 2021). Web or mobile applications may serve as adjuncts to therapy or standalone self-help programs, delivering care at a lower cost with greater flexibility and anonymity (Schueller et al., 2019). The use of telehealth and engagement with technology increased during the COVID-19 pandemic (Balcombe & De Leo, 2021), potentially strengthening the impact of digital strategies in mental healthcare. ...
... Although such approaches are promising, their examination within rural areas has been extremely limited (Ralston et al., 2019). Additionally, barriers to adoption have been identified within rural settings, including poor internet connectivity and a need for training to adapt care and address concerns related to confidentiality (McClellan et al., 2020;Saavedra et al., 2024;Schueller et al., 2019). ...
... Additional nuance to this consideration, expressed by both our respondents and other scholarship, is a concern that practitioners who are not members of rural communities may not understand client experiences (Bischoff et al., 2014;Cheesmond et al., 2019). Practical concerns, such as poorer access to technology and supportive infrastructure in rural areas, represent additional challenges (Schueller et al., 2019). ...
Article
Full-text available
Individuals living in rural areas may face greater adversity due to resource challenges and more limited access to care. Mental health strategies using technology have been proposed to overcome these challenges and improve the reach of evidence-based treatments. Although promising, these modalities can have limitations with engagement and difficulties in implementation. Obtaining an in-depth understanding from practitioners working within rural contexts can help ensure these tools are successfully deployed. To support these aims, we conducted semi-structured interviews with ten providers, the majority of whom identified as White and female, who worked with rural clients. We analyzed the data using qualitative content analysis to identify key themes. Participant responses were categorized into two broad dimensions: mental health in rural areas and digital health approaches in rural areas. These dimensions included categories focused on care and barriers within service provision, as well as descriptions of digital mental health approaches, including their challenges, advantages, and interactions with these. Practitioners identified several barriers to integrating digital health approaches, including technical issues, limited familiarity with these methods, and concerns about the comfort level of both providers and clients when using technology. To overcome gaps in care, it is important to consider unique aspects of rural contexts, such as poorer internet connectivity and the need for community relationships. Practical implications, such as linking services with community organizations and religious leaders, are discussed.
... However, most mental health research, including that at the intersection of HCI and mental health, is conducted with individuals who already have access to digital tools and are likely to have mental health resources [31]. While some technologies are designed with marginalized and vulnerable populations in mind [6], it is unclear when technology-based approaches may be helpful and when they may actually result in unintended harm (by funneling away resources from needed social programs, for example [12]). With this in mind, in this small group discussion, we will discuss how class and power influence both individual experiences with mental health and interactions with technology. ...
... Designing culturally robust mental health technologies involves ensuring such technologies fit within a user's cultural context and needs. One approach to doing so has been to increase culturally relevant components in mental health technology interface designs, such as translating the user interface and varying the avatars' appearances in mental health applications to match those of the users [6,23]. However, as Pendse et al. [20] note, considerations of culture can influence interactions on more implicit levels, such as through the scales used to measure success of a digital intervention. ...
... Mental health apps can be used by individuals on their own or may complement treatment plans from health care providers. Mental health apps may especially serve to overcome barriers to access for marginalized and underserved populations [7]. Such technology-driven mental health interventions may offer a scalable and accessible augmentation or bridge to traditional care. ...
Article
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Mental health mobile applications (apps) have the potential to expand the provision of mental health and wellness services to underserved populations. There is a lack of guidance on how to choose wisely from the thousands of mental health apps without clear evidence of safety, efficacy, and consumer protections. We propose the Framework to Assist Stakeholders in Technology Evaluation for Recovery (FASTER) to Mental Health and Wellness to support agencies and individuals working in mental health, as well as users of mental health apps, in making informed decisions recommending the use of, or using mental health and wellness apps. The framework was developed through a systematic process including a review of existing frameworks and the literature, interviews with key informants, public stakeholder feedback, and iterative application and refinement of the framework to 45 apps. It comprises three sections: Section 1. Risks and Mitigation Strategies, assesses the integrity and risk profile of the app; Section 2. Function, focuses on descriptive aspects related to accessibility, costs, developer credibility, evidence and clinical foundation, privacy/security, usability, functions for remote monitoring of the user, access to crisis services, and artificial intelligence (AI); and Section 3. Mental Health App Features focuses on specific mental health app features, such as journaling and mood tracking. The framework facilitates an assessment of the level of risk posed by the app against the evidence on the effectiveness of the app and its safety features, recognizing that given vast variations in health apps, a ‘one size fits all’ approach is likely to be insufficient. Future application, testing, and refinements may be required to determine the framework’s suitability and reliability across multiple mental health conditions.
... This is consistent with a recent study on diverse communities using mindLAMP, a DMH platform, where participants wanted their DMH apps to pull data from their current health care records to enhance app personalization [115]. Participants acknowledged that innovations and interventions require consent for collecting substantial amounts of data to tailor services or for platforms to "algorithmize my personal experiences"; however, research has found that DMH tools are often not culturally tailored or responsive due to culturally diverse or racial and ethnic minority populations often not being considered in their development and evaluation [116,117]. Young people from culturally diverse communities recognized that they would need to provide access to personal digital health data to realize the benefits promoted by DMH tools. Critics have argued that young people may not comprehend the longevity and potential harms of a digital footprint and that thoughtful education and support around this is important for their future privacy [118]. ...
Article
Background Approximately 39% of young people (aged 16-24 y) experience mental ill health, but only 23% seek professional help. Early intervention is essential for reducing the impacts of mental illness, but young people, particularly those from culturally diverse communities, report experiencing shame and stigma, which can deter them from engaging with face-to-face services. Digital mental health (DMH) tools promise to increase access, but there is a lack of literature exploring the suitability of DMH tools for culturally diverse populations. Objective The project was conducted in partnership with a large-scale national DMH organization that promotes evidence-based early intervention, treatment, and support of mental health in young people and their families. The organization wanted to develop a self-directed web-based platform for parents and young people that integrates psychological assessments and intervention pathways via a web-based “check-in” tool. Our project explored the views of culturally diverse parents and young people on the opportunities and barriers to engagement with a web-based DMH screening tool. Methods We conducted a 2-phase qualitative study aiming to identify potential issues faced by culturally diverse communities when engaging with DMH tools designed for the Australian public. We worked with 18 culturally diverse participants (parents: n=8, 44%; young people: n=10, 56%) in a series of design-led workshops drawing on methods from speculative design and user experience to understand the opportunities and barriers that organizations might face when implementing population-level DMH tools with culturally diverse communities. NVivo was used to conduct thematic analyses of the audio-recorded and transcribed workshop data. Results Five themes were constructed from the workshops: (1) trust in the use and application of a DMH tool, (2) data management and sharing, (3) sociocultural influences on mental health, (4) generational differences in mental health and digital literacy, and (5) stigma and culturally based discrimination in mental health support. Conclusions The emergent themes have important considerations for researchers wishing to develop more inclusive DMH tools. The study found that healthy parent-child relationships will increase engagement in mental health support for young persons from culturally diverse backgrounds. Barriers to engagement with DMH tools included culturally based discrimination, the influence of culture on mental health support, and the potential impact of a diagnostic label on help seeking. The study’s findings suggest a need for culturally safe psychoeducation for culturally diverse end users that fosters self-determination with tailored resources. They also highlight important key challenges when working with culturally diverse populations.
... • Schueller et al. highlight the importance of integrating telemedicine with behavioral health interventions to enhance patient outcomes [12]. ...
Article
Full-text available
Telemedicine has emerged as a transformative tool for reducing health disparities globally, particularly in low- and middle-income countries (LMICs). However, existing models, such as the Technology Acceptance Model (TAM), often overlook critical cultural, infrastructural, and usability challenges unique to LMICs. This study introduces a hybrid framework integrating TAM with regional adaptations, emphasizing adaptive interfaces to enhance usability, accessibility, and equity in telemedicine systems. A systematic review adhering to PRISMA guidelines was conducted, encompassing 365 records sourced from SCOPUS, Web of Science (WoS), and PubMed. After screening 364 unique records, 29 studies were shortlisted for qualitative and quantitative synthesis. From these, 10 studies were selected for thematic analysis, focusing on adaptive interface design and its effects on usability, accessibility, and equity metrics. Adaptive interfaces reduced wait times by 30% and improved patient compliance with chronic care plans by 25%. Features such as AI-driven language translation significantly improved usability for underserved populations. Persistent barriers, including digital literacy gaps and gender disparities, were also identified. The proposed hybrid framework illustrates the potential of adaptive interfaces to bridge healthcare gaps in LMICs. Future research should explore the scalability of this framework and further investigate AI-driven solutions to address disparities in telemedicine adoption.
... The National Health Service has highlighted mental health apps as cost-effective and scalable solutions to barriers [9]. Existing digital mental health services, including websites and mobile apps, can offer greater and more rapid accessibility and anonymity [4] and show promise for marginalized and under-reached populations [18,30]. Brain in Hand (BiH) is such a service. ...
Article
Full-text available
Background Limited resources in health and social care and long waiting lists for autism assessment are resulting in high numbers of autistic people not being adequately supported. We sought to explore the feasibility and effectiveness of meeting this support need through an end-to-end digital self-referral and digital mental health service. Methods Together with health and social care teams and young autistic people we developed a self-referral pathway that allowed young autistic people (aged 16–25) to access the digital self-management support system, Brain in Hand (BiH), without the need for diagnosis or referral by an external agency. Participants were reached using digital media channels which linked to a BiH landing page. Reach, progress and engagement through the pathway was monitored and participants were surveyed on their eligibility and suitability for BiH. Results A total of 243 BiH licences were issued within 9 weeks of the start of the digital media campaign which reached nearly half a million people with close to 20,000 clicking through to the BiH landing page. Most of the young people being issued with the digital support tool demonstrated high levels of need, 69% experienced clinically significant depression, 83% anxiety, 99% moderate or high executive function challenges, and 60% lacked current support. Conclusions This pilot demonstrates that young people understand their needs and directing them to a support service through a digital media campaign presents an efficient and effective approach to reaching young autistic people in need. This suggests that digital media channels and self-referral could offer a practical solution to broaden access to a range of digital mental health platforms without placing additional resource burden on health and social care teams.
... Digital behavioral intervention through text messaging could potentially aid in the promotion of prenatal physical activity and confer multiple advantages. Mobile health (mHealth) interventions help recognize the benefits and opportunities of exercise, create attainable goals, and promote accountability [25], and they are widely accessible and cheap to use [26]. Several studies have shown the efficacy of mHealth interventions in promoting PA in varying populations [25,[27][28][29]. ...
Article
Full-text available
Background and aim: The use of mHealth, especially short-message text (SMS), has proven to be an effective intervention in promoting behavioral health outcomes in populations across different contexts and settings. While MomConnect, an mHealth technological device designed to enhance maternal and child health services in South Africa, offers various health-related contents aimed at improving maternal outcomes for pregnant and postpartum women, it currently lacks information on prenatal physical activity. However, physical activity and exercise during pregnancy is safe and beneficial for both the mother and the baby. This article outlines the protocol for designing and developing a prenatal physical activity and exercise text messaging content for the MomConnect device. To achieve this, the protocol aims to elucidate the preferences of prenatal physical activity and exercise text messages and ascertain the preferred amount of SMS messaging to inform the design of an intervention for the incorporation of prenatal physical activity and exercise text messages into the MomConnect device in South Africa. Methods: We will apply a user-centred design approach conducted in three phases. First, a scoping literature review and interviews with pregnant women will be conducted to inform the formative stage for developing a desirable prototype SMS. Secondly, healthcare providers and pregnant women will be interviewed to collate data on the preferred SMS. Lastly, a cross-sectional survey will be conducted to determine the preferred quantity of SMS messaging to be incorporated in the MomConnect device. Expected outcomes: A preferred or desirable prenatal physical activity and exercise SMS text message will inform the design of SMS text messages to be incorporated into the content of the MomConnect device to promote prenatal physical activity and exercise participation among women in the Eastern Cape Province. This study will develop a tailored mHealth intervention to improve prenatal physical activity participation and health behaviors among pregnant women in South Africa.
Article
Objective Despite the growing number of Hispanic/Latino families in the United States, major concerns are reported when navigating the healthcare system. Monolingual Spanish-speaking families may experience compounded barriers given the inconsistent availability of Spanish resources and services in traditional healthcare settings. Digital health interventions have the potential to alleviate some barriers in healthcare for these individuals. This scoping review summarizes the state of the literature on the development, adaptation, and implementation of pediatric Spanish-language digital health interventions offered to Spanish-speaking families in the United States to better understand current cultural-sensitivity practices and strategies implemented by researchers. Methods A search in major databases was completed in May 2024. Articles that discussed the development, implementation, or outcome of any digital health intervention primarily oriented to a Spanish-speaking pediatric population in the United States were included. Telephone- and telehealth-only interventions were excluded. Results A total of 44 articles were reviewed, representing 30 unique digital health interventions. Most covered preventive health topics, utilized SMS texting, and were intended primarily for parents/caregivers. Only 22 articles discussed specific methods to culturally tailor the intervention. The most common methods implemented were advisory boards and collecting qualitative data from parents/caregivers and youth. About 50% of articles reported results related to efficacy, acceptability, and feasibility. Conclusion While similar methods are implemented to develop and adapt these interventions, there is ample variation throughout the process. Including and learning directly from intended users in the adaptation and development phases of digital health interventions can help create quality and culturally appropriate digital health programs for families.
Article
Depression is one of the leading causes of disability worldwide. Individuals with depression often experience unrealistic and overly negative thoughts, i.e. cognitive distortions, that cause maladaptive behaviors and feelings. Now that a majority of the US population uses social media platforms, concerns have been raised that they may serve as a vector for the spread of distorted ideas and thinking amid a global mental health epidemic. Here, we study how individuals (N=838) interact with distorted content on social media platforms using a simulated environment similar to Twitter (now X). We find that individuals with higher depression symptoms tend to prefer distorted content more than those with fewer symptoms. However, a simple one-shot intervention can teach individuals to recognize and drastically reduce interactions with distorted content across the entire depression scale. This suggests that distorted thinking on social media may disproportionally affect individuals with depression, but simple awareness training can mitigate this effect. Our findings have important implications for understanding the role of social media in propagating distorted thinking and potential paths to reduce the societal cost of mental health disorders.
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Background: Youth homelessness is a substantial issue, and many youths experiencing homelessness have mental health issues as both a cause and consequence of homelessness. These youths face many barriers to receiving traditional mental health services, and as a result, only a few youths experiencing homelessness receive any form of mental health care. Objective: This project aimed to develop and determine the feasibility and acceptability of engaging young adults (ie, individuals aged 18-24 years) experiencing homelessness in a remotely delivered mental health intervention. This intervention provided brief emotional support and coping skills, drawing from cognitive behavioral principles as an introduction into psychosocial support. The intervention was piloted in a homeless shelter network. Methods: A total of 35 young adults experiencing homelessness participated in a single-arm feasibility pilot trial. Participants received a mobile phone, a service and data plan, and 1 month of support from a coach consisting of up to 3 brief phone sessions, text messaging, and mobile mental health apps. We evaluated feasibility by looking at completion of sessions as well as the overall program and acceptability with satisfaction ratings. We also collected clinical symptoms at baseline and the end of the 1-month support period. We used validity items to identify participants who might be responding inappropriately and thus only report satisfaction ratings and clinical outcomes from valid responses. Results: Most participants (20/35, 57%) completed all 3 of their phone sessions, with an average of 2.09 sessions (SD 1.22) completed by each participant. Participants sent an average of 15.06 text messages (SD 12.62) and received an average of 19.34 messages (SD 12.70). We found higher rates of satisfaction among the participants with valid responses, with 100% (23/23) of such participants indicating that they would recommend participation to someone else and 52% (12/23) reporting that they were very or extremely satisfied with their participation. We found very little change from pre- to posttreatment on measures of depression (d=0.27), post-traumatic stress disorder (d=0.17), and emotion regulation (d=0.10). Conclusions: This study demonstrated that it was feasible to engage homeless young adults in mental health services in this technology-based intervention with high rates of satisfaction. We did not find changes in clinical outcomes; however, we had a small sample size and a brief intervention. Technology might be an important avenue to reach young adults experiencing homelessness, but additional work could explore proper interventions to deliver with such a platform. Trial registration: ClinicalTrials.gov NCT03620682; https://clinicaltrials.gov/ct2/show/NCT03620682.
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Background Depression is the most prevalent mental health problem. The need for effective treatments for depression far outstrips the availability of trained mental health professionals. Smartphones and other widely available technologies are increasingly being leveraged to deliver treatments for depression. Whether there are patient characteristics that affect the potency of smartphone interventions for depression is not well understood. Objective This study aimed to evaluate whether patient characteristics including clinical diagnosis, depression severity, psychosis status, and current use of antidepressant medications impact the effects of an evidence-based smartphone intervention on depressive symptoms. Methods Data were collected as part of a 2-arm randomized controlled trial comparing a multimodal smartphone intervention called FOCUS with a clinic-based intervention. Here, we report on 82 participants assigned to 12 weeks of FOCUS treatment. We conducted assessments of depressive symptoms using the Beck Depression Inventory-second edition (BDI-II) at baseline, postintervention (3 months), and follow-up (6 months). We tested for differences in the amount of improvement in BDI-II scores from baseline to posttreatment and 6-month follow-up between each of the following patient subgroups using 2 (group) × 2 (time) mixed effects models: diagnosis (ie, schizophrenia spectrum disorder vs bipolar disorder vs major depressive disorder), depression severity (ie, minimal-mild vs moderate-severe depression), psychosis status (ie, presence vs absence of psychotic symptoms), and antidepressant use (ie, taking antidepressants vs not taking antidepressants). Results The majority of participants were male (60%, 49/82), African American (65%, 53/82), and middle-aged (mean age 49 years), with a high school education or lower (62%, 51/82). There were no differences in patient demographics across the variables that were used to stratify the analyses. There was a significant group × time interaction for baseline depression severity (F1,76.8=5.26, P=.02 [posttreatment] and F1,77.4=6.56, P=.01 [6-month follow-up]). Participants with moderate or severe depression had significant improvements (t42=3.20, P=.003 [posttreatment] and t42=4.20, P<.001 [6-month follow-up]), but participants with minimal or mild depression did not (t31=0.20, P=.84 [posttreatment] and t30=0.43, P=.67 [6-month follow-up]). There were no significant group × time interactions for diagnosis, psychosis status, or antidepressant medication use. Participants with minimal or mild depression had negligible nonsignificant improvements (<1 point on the BDI-II). Reduction in depression in all other groups was larger (range 1.7-6.5 points on the BDI-II). Conclusions Our results suggest that FOCUS can be deployed to treat moderate to severe depressive symptoms among people with schizophrenia spectrum disorders, bipolar disorder, and major depressive disorder, in concert with antidepressant medications or without them, in both people with and without active psychotic symptoms. The study results are consistent with research on transdiagnostic models in psychotherapy and extend our knowledge about the potential of transdiagnostic mobile health. Trial Registration ClinicalTrials.gov NCT02421965; http://clinicaltrials.gov/ct2/show/NCT02421965 (Archived by WebCite at http://www.webcitation.org/76pyDlvAS)
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Background: Web-based social networks are a powerful communicative element and their use is increasingly widespread. Persons living in extreme social exclusion such as individuals experiencing homelessness can benefit from the positive elements of communication and relationship associated with social networking sites. Objective: This study aimed to suggest the comparison of a Facebook training course and an office software course and their effect on psychological well-being in a group of individuals experiencing homelessness. Methods: An experimental and longitudinal study was designed. Individuals experiencing homelessness were randomly assigned to either the Facebook group or the office software group, and their social skills, self-esteem, self-efficacy, and satisfaction with life were measured on 4 occasions: pretest, at the end of the training course, 1 month later, and 3 months later. A mixed analysis of variance of repeated measures (2×4) was performed. Results: A total of 92 individuals experiencing homelessness participated in the study. The number of cases in which the 4 measurements were completed was 71 (35 in the intervention group and 36 in the control group). The mixed analysis of variance of repeated measures and the multiple regression analysis indicated a significant increase of the 4 analyzed parameters, with greater significance in the areas of social skills and self-esteem. The critical levels associated to the interaction Time×Program were significant in all variables and levels. Therefore, the scores in the 4 analyzed constructs were not equal according to the program carried out throughout the work. The effect size associated to the interaction Time×Program in the social skills scores was large (η2=0.32); in the self-esteem and self-efficacy scores, it was medium, (η2=0.13); and in the satisfaction with life scores, it was small (η2=0.09). The results of the adjustment of the different models of multiple linear regression indicate that the number of hours devoted weekly to the use of Facebook was a predictor of the increase in the scores of social skills (B=3.43, r2=.405) and self-esteem (B=.382). Age (B=.175) and self-efficacy (B=.09) were also variables, which with independence and in equal conditions, predicted self-esteem (r2=.29). Finally, self-esteem (B=.69) was also a predictor variable of the increase of satisfaction with life (r2=.195). Conclusions: These findings suggest that Facebook could be a key element in homeless psychological well-being and socialization.
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Background: Online social networks are a powerful communicative element whose use is increasingly widespread. Persons in a extreme social exclusion like individuals experiencing homelessness (IEH) can be beneficiated of the positive elements of communication and relationship associated with social networking sites. Objective: This study suggests the comparison of a Facebook training course and an office software course and their effect on psychological well being in a group of IEH. Methods: Experimental and longitudinal study was designed. A sample of IEH were assigned to the Facebook group or the office software group randomly and their social skills, self-esteem, self-efficacy and satisfaction with life were measured on four occasions: pre test, at the end of the training course, one month later and three months later. A mixed ANOVA of repeated measures (2x4) was performed. Results: A total of 92 IEH participated in the study. The number of cases in which the 4 observations were completed was 71 (35 in the intervention group and 36 in the control group). The mixed ANOVA of repeated-measures and the multiple regression analysis indicated a significant increase of the four analyzed parameters, more significant in social skills and Self-Esteem. The critical level associated to the interaction Time*Program were significant in all variables and levels. Therefore, the scores in the 4 analyzed constructs were not equal according to the program carried out throughout the work. The effect size associated to the interaction Time*Program in the scores of social skills was large (Eta 2 = .32), in the self-esteem and self-efficacy scores it was medium, (Eta 2 = .13) and in satisfaction with life scores it was small (Eta 2 = .09). The results of the adjustment of the different models of multiple linear regression indicate that the number of hours devoted weekly to the use of Facebook was a predictor of the increase in the scores of social skills (B = 3.43, r 2 = .405) and self-esteem (B = .382). Age (B = .175) and self-efficacy (B = .09) were also variables which with independence and in equal conditions predicted the self-esteem (r 2 = .29). Finally, self-esteem (B = .69) was also a predictor variable of the increase of satisfaction with life (r 2 = .195). Conclusion: These findings suggest that Facebook could be a key element in homeless psychological wellbeing and socialization.
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Background: The proportion of people in the United States who are members of at least two ethnic groups is projected to increase to 10% by the year 2050. This makes addressing health disparities and health inequities in minority populations increasingly more difficult. Minority populations, including those who classify themselves as African American and Hispanic, are using mobile phones to access health information via the internet more frequently than those who classify themselves as white, providing unique opportunities for those in public health and health education to reach these traditionally underserved populations using mobile health (mHealth) interventions. Objective: The objective of this review was to assess studies conducted in the United States that have used mHealth tools and strategies to develop and implement interventions in underserved populations. This review also examines the ways in which mHealth strategies are being employed in public health interventions to these priority population groups, as mobile phone capabilities include text messaging, mobile apps, internet access, emails, video streaming, social media, instant messaging, and more. Methods: A systematic literature review was conducted using key search phrases, the matrix method, and Preferred Reporting Items for Systematic Reviews and Meta-Analyses flowchart diagram to identify key studies conducted between the years of 2009-2016 in the United States. These studies were reviewed for their use of mHealth interventions in historically underserved and minority populations. Results: A total of 16,270 articles were initially identified using key search phrases in three databases. Titles were reviewed and articles not meeting criteria were excluded, leaving 156 articles for further review. After additional review for relevance and inclusion criteria, 16 articles were qualified and analyzed. Conclusions: mHealth is a promising area of development for public health and health education. While successful research has been done using text messaging (short message service, SMS) and other mHealth strategies, there is a need for more research using mobile phones and tablet applications. This literature review demonstrates mHealth technology has the ability to increase prevention and health education in health disparate communities and concludes that more specified research is needed.
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Background: Most people with mental health disorders fail to receive timely access to adequate care. US Hispanic/Latino individuals are particularly underrepresented in mental health care and are historically a very difficult population to recruit into clinical trials; however, they have increasing access to mobile technology, with over 75% owning a smartphone. This technology has the potential to overcome known barriers to accessing and utilizing traditional assessment and treatment approaches. Objective: This study aimed to compare recruitment and engagement in a fully remote trial of individuals with depression who either self-identify as Hispanic/Latino or not. A secondary aim was to assess treatment outcomes in these individuals using three different self-guided mobile apps: iPST (based on evidence-based therapeutic principles from problem-solving therapy, PST), Project Evolution (EVO; a cognitive training app based on cognitive neuroscience principles), and health tips (a health information app that served as an information control). Methods: We recruited Spanish and English speaking participants through social media platforms, internet-based advertisements, and traditional fliers in select locations in each state across the United States. Assessment and self-guided treatment was conducted on each participant's smartphone or tablet. We enrolled 389 Hispanic/Latino and 637 non-Hispanic/Latino adults with mild to moderate depression as determined by Patient Health Questionnaire-9 (PHQ-9) score≥5 or related functional impairment. Participants were first asked about their preferences among the three apps and then randomized to their top two choices. Outcomes were depressive symptom severity (measured using PHQ-9) and functional impairment (assessed with Sheehan Disability Scale), collected over 3 months. Engagement in the study was assessed based on the number of times participants completed active surveys. Results: We screened 4502 participants and enrolled 1040 participants from throughout the United States over 6 months, yielding a sample of 348 active users. Long-term engagement surfaced as a key issue among Hispanic/Latino participants, who dropped from the study 2 weeks earlier than their non-Hispanic/Latino counterparts (P<.02). No significant differences were observed for treatment outcomes between those identifying as Hispanic/Latino or not. Although depressive symptoms improved (beta=-2.66, P=.006) over the treatment course, outcomes did not vary by treatment app. Conclusions: Fully remote mobile-based studies can attract a diverse participant pool including people from traditionally underserved communities in mental health care and research (here, Hispanic/Latino individuals). However, keeping participants engaged in this type of "low-touch" research study remains challenging. Hispanic/Latino populations may be less willing to use mobile apps for assessing and managing depression. Future research endeavors should use a user-centered design to determine the role of mobile apps in the assessment and treatment of depression for this population, app features they would be interested in using, and strategies for long-term engagement. Trial registration: Clinicaltrials.gov NCT01808976; https://clinicaltrials.gov/ct2/show/NCT01808976 (Archived by WebCite at http://www.webcitation.org/70xI3ILkz).
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Background: Despite a proliferation of patient-facing mobile apps for mental disorders, there is little literature guiding efforts to incorporate mobile tools into clinical care delivery and integrate patient-generated data into care processes for patients with complex psychiatric disorders. Objective: The aim of this study was to seek to gain an understanding of how to incorporate a patient-provider mobile health (mHealth) platform to support the delivery of integrated primary care-based mental health services (Collaborative Care) to rural patients with posttraumatic stress disorder and/or bipolar disorder. Methods: Using the Principles for Digital Development as a framework, we describe our experience designing, developing, and deploying a mobile system to support Collaborative Care. The system consists of a patient-facing smartphone app that integrates with a Web-based clinical patient registry used by behavioral health care managers and consulting psychiatrists. Throughout development, we engaged representatives from the system's two user types: (1) providers, who use the Web-based registry and (2) patients, who directly use the mobile app. We extracted mobile metadata to describe the early adoption and use of the system by care managers and patients and report preliminary results from an in-app patient feedback survey that includes a System Usability Scale (SUS). Results: Each of the nine Principles for Digital Development is illustrated with examples. The first 10 patients to use the smartphone app have completed symptom measures on average every 14 days over an average period of 20 weeks. The mean SUS score at week 8 among four patients who completed this measure was 91.9 (range 72.5-100). We present lessons learned about the technical and training requirements for integration into practice that can inform future efforts to incorporate health technologies to improve care for patients with psychiatric conditions. Conclusions: Adhering to the Principles for Digital Development, we created and deployed an mHealth system to support Collaborative Care for patients with complex psychiatric conditions in rural health centers. Preliminary data among the initial users support high system usability and show promise for sustained use. On the basis of our experience, we propose five additional principles to extend this framework and inform future efforts to incorporate health technologies to improve care for patients with psychiatric conditions: design for public health impact, add value for all users, test the product and the process, acknowledge disruption, and anticipate variability.
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Background: To address the need for disseminable, evidence-based depression treatment options for Latinx adults with limited English proficiency (LEP), our team developed ¡Aptívate!, a Spanish-language Behavioral Activation self-help mobile application. Primary aims of this study were to: 1) examine feasibility and uptake of ¡Aptívate! among depressed Latinx adults with LEP and 2) preliminarily examine ¡Aptívate! efficacy for depression treatment. Methods: Participants (N = 42) with elevated depressive symptoms were randomized 2:1:1 to: 1) ¡Aptívate! (n = 22), 2) an active control Spanish-language app ("iCouch CBT"; n = 9), or 3) Treatment As Usual (i.e., no app; n = 11). Feasibility was assessed via self-reported app utilization and app analytics data. Depressive symptoms were assessed weekly for eight weeks via self report. Results: All ¡Aptívate! participants used the app at least once, 81.8% of participants used the app ≥8 times, and 36.4% of participants used the app ≥56 times. Weekly retention was strong: 72.7% and 50% of participants continued to use the app at one- and two-months post-enrollment, respectively. Generalized Estimating Equation models indicated a significant interaction between time and treatment, such that ¡Aptívate! participants reported significantly lower depressive symptoms over time than TAU. Depressive symptoms did not differ on average across time between the iCouch and TAU conditions, nor between iCouch and ¡Aptívate!. Limitations: Limitations include small sample size, limited follow-up, and lack of analytics data for the active control condition. Conclusions: With further research, ¡Aptívate! may offer a feasible, efficacious approach to extend the reach of evidence-based depression treatment for Latinx adults with LEP.
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