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Improving the quality of care for people with inflammatory bowel disease (IBD): results of a national audit

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© Royal College of Physicians 2015. All rights reserved. s11
Future Hospital Journal 2015 Vol 2, No 2: s11 AUDIT AND DATA SYSTEMS
Aims
The UK IBD audit aims to assess the quality of care for patients
with IBD and identify priorities for further improvements.
Methods
A fourth-round audit of inpatient care and experience of people
with ulcerative colitis (UC) was conducted between 1 January
and 31 December 2013. Hospitals that provided a service for
people with IBD prospectively audited up to 50 consecutive
admissions of people with ulcerative colitis (UC). Inclusion
criteria: primary reason for admission was for the treatment
of UC, duration of admission longer than 24 hours, any age,
admitted to any ward, multiple admissions and patients newly
diagnosed with UC. Data were collected via a web-based tool
and covered admission information, assessment of extent of
disease, medical intervention, surgical intervention, discharge
arrangements and outpatient care prior to admission. For each
audited admission, a questionnaire about inpatients’ experiences
of hospital facilities, care and treatment, staff, operations,
pain and food could be generated and given to the patient on
discharge with a freepost envelope. Alternatively, patients could
reply via the audit web tool.
Results
Data were collected on 4,359 adult patients from 190 hospitals
in the UK. Compared against three previous rounds of audit
(between 2006 and 2013), there was evidence of improvements;
reduced mortality, improved prescription of heparin and bone
protection, increased contact with an IBD nurse and a reduction
in episodes of unplanned surgery. However, there was also
evidence of poor management of care. 48% of patients admitted
were anaemic and, where anaemia was due to iron defi ciency, no
treatment was received in 56%. 60% of applicable patients did
not see a dietitian. 70% of inpatients were seen in outpatients
prior to admission but, where active disease was recorded,
standard treatments had not been started or escalated in 42% of
these cases. 12% of patients were readmitted within 30 days.
For inpatient experiences, 1550 questionnaires were analysed.
There was no signifi cant improvement in all aspects of care from
round 3. Notably, 73% of adolescents treated by a paediatric
service rated their care as ‘excellent’; in comparison, only 26%
of adolescents treated by an adult service rated their care as
‘excellent’.
Conclusions
Some improvements in inpatient care for people with UC were
identifi ed, but not for patient experiences. Aspects of IBD care
that need targeted improvement include treatment of anaemia,
provision of dietetic support, transitional care and management
of patients seen in outpatients. This could reduce the burden of
admissions to hospital.
Confl ict of interest statement
This project was managed by the Royal College of Physicians
and commissioned by the Healthcare Quality Improvement
Partnership (HQIP) as part of the National Clinical Audit and
Patient Outcomes Programme (NCAPOP).
Authors: Royal College of Physicians, London, UK
Improving the quality of care for people with infl ammatory
bowel disease (IBD): results of a national audit
Authors: Kajal Mortier, Aimee Protheroe and Susan Murray
Conference abstract_FHJ.indd 11Conference abstract_FHJ.indd 11 30/04/15 7:55 PM30/04/15 7:55 PM
... 117 In the United Kingdom, the national IBD audit programme was established to support the development of national standards for IBD care and to establish quality IBD care as a key component of local healthcare delivery. 118,119 Whilst both programmes aim to improve quality care standards TherapeuTic advances in Gastroenterology of IBD, the former (Spain) evaluates each unit onsite by an external association/company while the latter (United Kingdom) submits local data from their unit, which is then compared against a national benchmark. ...
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An estimated 2.5–3 million individuals (0.4%) in Europe are affected by inflammatory bowel disease (IBD). Whilst incidence rates for IBD are stabilising across Europe, the prevalence is rising and subsequently resulting in a significant cost to the healthcare system of an estimated 4.6–5.6 billion euros per year. Hospitalisation and surgical resection rates are generally on a downward trend, which is contrary to the rising cost of novel medication. This signifies a large part of healthcare cost and burden. Despite publicly funded healthcare systems in most European countries, there is still wide variation in how patients receive and/or pay for biologic medication. This review will provide an overview and discuss the different healthcare systems within Western Europe and the barriers that affect overall management of a changing IBD landscape, including differences to hospitalisation and surgical rates, access to medication and clinical trial participation and recruitment. This review will also discuss the importance of standardising IBD management to attain high-quality care for all patients with IBD.
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Background One of the most valued targets in inflammatory bowel disease (IBD) is for physicians to provide and patients to receive a high-level quality of care. This study aimed to evaluate the implementation of a nationwide quality certification programme for IBD units. Methods Identification of quality indicators (QI) for IBD Unit certification was based on Delphi methodology that selected 53 QI, which were subjected to a normalisation process. Selected QI were then used in the certification process. Coordinated by GETECCU, this process began with a consulting round and an audit drill followed by a formal audit carried out by an independent certifying agency. This audit involved the scrutiny of the selected QI in medical records. If 80%–90% compliance was achieved, the IBD unit audited received the qualification of “advanced”, and if it exceeded 90% the rating was “excellence”. Afterwards, an anonymous survey was conducted among certified units to assess satisfaction with the programme for IBD units. Results As of January 2021, 66 IBD units adhere to the nationwide certification programme. Among the 53 units already audited by January 2021, 31 achieved the certification of excellence, 20 the advanced certification, and two did not obtain the certification. The main survey results indicated high satisfaction with an average score of 8.5 out of 10. Conclusion Certification of inflammatory bowel disease units by GETECCU is the largest nationwide certification programme for IBD units reported. More than 90% of IBD units adhered to the programme achieved the certification.
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