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HOARD Questionnaire - A Screening Tool for Hoarding Disorder

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Abstract

Hoarding disorder has a large estimated lifetime prevalence rate, a chronic nature to the illness, problems with a late diagnosis and treatment ineffectiveness. All these factors make a strong case to have a screening tool for this disorder. We present one such tool which is developed for this purpose at the National OCD Service in United Kingdom by clinicians well experienced in the treatment of Hoarding Disorder.
HOARD Quesonnaire – A Screening Tool for Hoarding Disorder
Dr Himanshu Tyagi MRCPsych, Dr Lynne M Drummond MRCP FRCPsych
South West London and St Georges Mental Health NHS Trust, London United Kingdom
BACKGROUND
Compulsive Hoarding is a complex psycho-social problem which has re-
ceived signicant aenon from academics and media alike in past few
years. In parcular, inclusion of Hoarding disorder as a separate diagnosis
in DSM-V has renewed interest in this debilitang illness which can have fa-
tal consequences. Hoarding disorder is almost always chronic by nature.
The available treatment opons are limited and largely ineectual. There
are a number of quesonnaires available to aid the diagnosis and treat-
ment of hoarding disorder, but no exisng1 quesonnaire provides a relia-
ble way to idenfy the problem before the emergence of observable be-
havioural consequences.
UNMET NEED FOR AN EARLY SCREENING OF HOARDING DISORDER
1. High prevalence
It is esmated that the prevalence of undetected hoarding is about three
mes that of eang disorders. Epidemiological studies suggest that up to
2-5% of general populaon can exhibit compulsive hoarding behaviours2.
A recent study on German populaon against3 of the proposed DSM-5
criteria revealed a populaon esmate of 5.8% in a naonally repre-
sentave sample4.
2. Underdiagnosed
Hoarding is commonly underdiagnosed. Individuals with Hoarding disor-
der do not necessarily seek treatment on their own. They typically pre-
sent to services aer the problem becomes observable by others. An eas-
ily administered screening tool can help in idenfying the risk of chronic
hoarding and also aid in developing appropriate pathways to access
health services early.
3. Late diagnosis & treatment
Diagnosis of hoarding disorder is usually made late in the lifecycle of this
disorder, which usually runs into several decades. It is therefore surpris-
ing that there is an absence of an easily administrable tool to detect the
risk of chronic hoarding and start intervenons at an earlier stage of this
disorder, when they are more likely to be eecve. A large body of re-
search evidence from the general eld of cognive behavioural therapy
(CBT) clearly suggests that dysfunconal core beliefs are more amenable
to change if they are addressed early5.
4. Need to change the focus of treatment
Individuals with chronic hoarding problems are commonly recalcitrant to
exisng psychological treatment methods. In addion there is a signi-
cant rate of recurrence (relapse) of Hoarding behaviour following suc-
cessful treatment episodes. A possible reason for this could be the limita-
on posed by a late presentaon, which in most cases makes it dicult
to focus on strategies other than those dealing with containment and
management of the behavioural consequences. We strongly believe that
new treatment techniques would develop by facilitang an early diagno-
sis of Hoarding disorder.
Hoarding disorder has a large esmated lifeme prevalence rate, a chronic nature to the illness, problems with
a late diagnosis and treatment ineecveness. All these factors make a strong case to have a screening tool for
this disorder. We present one such tool which is developed for this purpose at the Naonal OCD Service in
United Kingdom by clinicians well experienced in the treatment of Hoarding Disorder.
HOARD
A SCREENING QUESTIONNAIRE TO ASSESS THE RISK OF
CHRONIC HOARDING
Question 1. [Keyword: Hurt]
Are you easily Hurt if others comment on the excessiveness of your
saved items?
Question 2. [Keyword: Organise]
Have you always wanted to Organise your things in a meaningful
way but are unable to do so because of any reason (e.g. limited time
and resources)?
Question 3. [Keyword: Acquisition]
Are you usually not able to stop yourself from Acquiring new items
which have no immediate use but might be put to some use in fu-
ture?
Question 4: [Keyword: Running out of space]
Do you find that you are constantly Running out of space to store
your belongings?
Question 5: [Keyword: Difficulty Discarding]
Do you find it difficult to Discard things which you haven’t used for a
long time?
Use: Any positive answer should trigger a more detailed assessment of hoarding problems.
KEY FEATURES
Very simple binary quesonnaire with yes and no answers with only 5 items, de-
signed in simple to understand English with no technical words, can be printed
on one side of a A4 sheet of paper or t on a single computer screen above the
fold (no need for scrolling), can be administered by a trained clinician or a non-
trained person. Self administraon is also possible.
Deals only with the problems a hoarder would recognise, not the problems a
hoarder would nd dicult to accept.
Avoids the “inventory” style quesons on which most diagnosc quesonnaires
are based on as suerers can perceive them to be “crical”.
Quesons asking to quanfy hoarding or focussing on obvious manifestaons of
hoarding behaviour do not foster empathy with the client. Therefore in this ques-
onnaire we limited the quesons to the subjecve experience of the hoarding
problems but sll kept it precise by basing the quesons on aributes idened
by research to be the core features of hoarding.
As each queson measures a dierent dimension of hoarding problem, it can in-
form the choice of CBT techniques and focus of treatment.
Easy to remember because the acronym HOARD includes all key aributes it is
measuring.
Less than ve minutes to administer and rate.
Feedback from 50 mental health clinicians and general praconers has been
overwhelmingly posive4.
feedback and comments: himanshutyagi@nhs.net
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