La place du sujet en prévention, exemple des maladies chroniques

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The place of the patient and their expertise are essential in the success of prevention actions, as shown by the situations of people facing AIDS, cardiovascular disease and the post-cancer period. Promotional campaigns can help to improve the prevention of risks around chronic diseases. It is also necessary to transform the patient's experience into expertise and ensure it is acknowledged by caregivers and the healthcare system.

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From accessing patients’ experience to professionalizing their activities : recognizing the care produced by patients By focusing on how people with chronic disease are experiencing their illness, the authors of this paper made analogies between the acquired experience of patients and the construction of a professional experience. They argue that patients are not beneficiaries of care but that they produce care. In order to survive illness they take care of health professionals, of families, of the society at large. Patient’s work needs to be caracterized and recognized by all the institutions involved in patient social rehabilitation and professional training.
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En s’attachant à analyser et caractériser les activités que tout sujet porteur d’une maladie chronique déploie au service de son maintien en santé et en vie, Catherine Tourette-Turgis conduit dans cet ouvrage un plaidoyer pour la reconnaissance de l’expérience des malades. La première partie décrit les enjeux sociaux et théoriques de la reconnaissance de l’expérience des malades. La deuxième partie décrit la complexité du travail conduit quotidiennement par les sujets en soin en s’appuyant sur des centaines d’entretiens conduits avec les malades sur plus d’une vingtaine d’années. Dans la troisième partie, l’auteure, en s’appuyant sur sa pratique d’accompagnement et de formation montre comment la maladie est l’occasion d’un certain nombre d’apprentissages inédits qui ont pour effet de transformer la personne mais aussi son entourage le monde dans lequel elle vit La quatrième partie s’attache à des propositions innovantes pour une pratique de l’éducation thérapeutique en faisant des propositions aux soignants et aux formateurs engagés et investis dans l’éducation thérapeutique comme champ de pratiques et comme champ de recherches.
The Chair of Philosophy at Hôtel-Dieu hospital in Paris, is a place for the sharing of knowledge and recognition. It provides a place where the subjective, institutional and political dimension of care can be considered, by all stakeholders: patients, nurses, families and citizens. The aim is to invent a shared nursing function. Copyright © 2016 Elsevier Masson SAS. All rights reserved.
Meeting the psychosocial needs of patients with cancer has been recognised as a priority within oncology care for several decades. Many approaches that address these needs have been developed and described; however, until recently much of this work had focused on patients during treatment and end-of-life care. With continued improvement in therapies, the population of cancer survivors who can expect to live for 5 or more years after cancer diagnosis has increased dramatically, as have associated concerns about how to meet their medical, psychosocial, and health behaviour needs after treatment. Guidelines and models for general survivorship care routinely address psychosocial needs, and similar guidelines for psychosocial care of patients with cancer are being extended to address the needs of survivors. In this Series paper, we summarise the existing recommendations for the provision of routine psychosocial care to survivors, as well as the challenges present in providing this care. We make specific recommendations for the integration of psychosocial services into survivorship care.
More people are living after a diagnosis of cancer than ever before and now account for around 5% of the US population. The specialty of cancer survivorship has been developing and growing since the mid-1980s, but the term survivor is open to debate by people living with cancer and those caring for them. Regardless of the term used, many ongoing physical, psychological, and social needs affect quality of life for people who are living with cancer and those who have survived the disease. Survivors prefer to have these needs addressed by their oncologist but also want their primary care provider to have a role. However, survivors also believe there are communication and coordination barriers between care providers. The existing method for delivering cancer care is becoming unsustainable and is not adequately configured to deliver high-quality cancer care to this growing population in the USA, especially when confronted with projected health-care shortages by 2020. In this Series paper, we define the term cancer survivor, discuss survivors' ongoing needs and preferences for care over time, and consider the implications for delivering coordinated cancer care in the USA.
La vie cinq ans après un diagnostic de cancer
  • Inca
INCa. La vie cinq ans après un diagnostic de cancer. Juin 2018. https://www.e-cancer. fr/Expertises-et-publications/ Catalogue-des-publications/ La-vie-cinq-ans-apres-undiagnostic-de-cancer-Rapport
Ma santé 2022 : un engagement collectif
  • Solidarités Ministère Des
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  • Santé
Ministère des Solidarités et de la Santé. Ma santé 2022 : un engagement collectif. 2018. actualites/presse/dossiers-depresse/article/ma-sante-2022-un-engagement-collectif