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Sexual Expression and It’s Determinants, in People Diagnosed with Psychotic Disorders

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Abstract

This qualitative study aims to explore the difficulties people with a psychotic disorder have in sexual expression, and associated determinants. Twenty-eight semi-structured interviews were conducted and analyzed using the Grounded Theory method. Almost all participants experienced unfulfilled needs in sexual expression. These unfulfilled needs were associated with a range of factors, including antipsychotic medication, psychotic symptoms, sexual abuse, social skills and stigma, all of which may converge on a pathway involving (sexual) self-esteem. Further research is required to better understand the role of self-esteem in relation to sexual needs and expression in people with psychotic disorders.
Vol:.(1234567890)
Community Mental Health Journal (2018) 54:1082–1088
https://doi.org/10.1007/s10597-018-0285-1
1 3
ORIGINAL PAPER
Sexual Expression andIt’s Determinants, inPeople Diagnosed
withPsychotic Disorders
JosédeJager1 · RoosvanGreevenbroek1· AnnetNugter1· JimvanOs1
Received: 9 August 2017 / Accepted: 8 May 2018 / Published online: 18 May 2018
© Springer Science+Business Media, LLC, part of Springer Nature 2018
Abstract
This qualitative study aims to explore the difficulties people with a psychotic disorder have in sexual expression, and asso-
ciated determinants. Twenty-eight semi-structured interviews were conducted and analyzed using the Grounded Theory
method. Almost all participants experienced unfulfilled needs in sexual expression. These unfulfilled needs were associated
with a range of factors, including antipsychotic medication, psychotic symptoms, sexual abuse, social skills and stigma, all
of which may converge on a pathway involving (sexual) self-esteem. Further research is required to better understand the
role of self-esteem in relation to sexual needs and expression in people with psychotic disorders.
Keywords Sexuality· Sexual expression· Sexual functioning· Psychosis· Schizophrenia· Recovery
Introduction
In surveys, around 15% of the general population indicates
dissatisfaction with his or her sex life (Mulhall etal. 2008).
This percentage is as high as 64% in people with a mental
disorder diagnosed in the realm of psychosis (Östman 2014).
Despite the fact that 83% experiences sexual feelings, peo-
ple with a psychotic disorder often report not being able to
express their sexuality (Peitl etal. 2009; McCann 2010).
Sexual expression describes the way a person experiences
sexuality and communicates sexuality with others. Express-
ing sexuality includes three factors: sexual behavior, sexual
communication and sexual identity (Harvey etal. 2004).
Sexual expression plays an important role in self-definition,
as expressing sexuality can confirm the sense of being a man
or woman, which is important for self-esteem and identity
(Volman and Landeen 2007). It is influenced by biological,
psychological and social factors (Denman 2004). Therefore,
a bio-psycho-social approach may shed more light on the
difficulties people diagnosed with a psychotic disorder face
in the field of sexuality and their sexual expression.
Patients who have had psychotic symptoms often suffer
from deficit symptoms. These symptoms as well as the use
of antipsychotic drugs have impact on their sexual expres-
sion. Lack of motivation or desire, arousal and orgasm are
common problems (Harley etal. 2010; Van Sant etal. 2012).
Sexual dysfunctions caused by the side-effects of medica-
tion play an important role in the observed high rates of
non-adherence among people diagnosed with a psychotic
disorder (Malik etal. 2010). Further, the body image is
often perceived negatively by weight gain as a side-effect
of antipsychotic drugs (Volman and Landeen 2007; Östman
and Björkman 2013).
Usually, the onset of a psychosis occurs in adolescence or
young adulthood, a phase during which sexuality and psy-
chosocial skills also develop (Whisman etal. 2014). A psy-
chotic episode may lead to a later onset or absence of sexual
experience, less knowledge and fewer skills to develop
sexual roles and to connect to others in a sexual fashion
(Volman and Landeen 2007). Fears and doubts about sexual
orientation (Skodlar and Nagy 2009), low sexual confidence
and feelings of sexual incompetence may develop (Peitl etal.
2009; Kelly and Conley 2004).
Social factors concern the limitations in social skills and
social insight that people with a psychotic disorder may
experience (Peitl etal. 2009; Savla etal. 2013). Several stud-
ies show that this may impede the ability to start or maintain
sexual relations (Pinkham etal. 2007; Lysaker etal. 2007;
Van Sant etal. 2012). Östman and Björkman (2013) indicate
that patients and partners hardly communicate about issues
related to their sexual relationship. Earlier literature shows
* José de Jager
j.dejager@ggz-nhn.nl
1 GGZ Noord-Holland-Noord, Postbus 18, 1850BAHeiloo,
TheNetherlands
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... The appearance of an episode may cause fear of sexual experiences and delay their onset. This will lead to the inability to establish sexual contacts and a feeling of incompetence [13]. Side effects of antipsychotic drugs are another important issue. ...
... Other essential aspect is the social relations of women suffering from schizophrenia. Patients with psychotic disorders experience difficulties in establishing social relationships [13]. The most important cause is the impairment of social and mental functions resulting from the course of the disease, causing numerous symptoms, such as reduced emotional expression, reduced motivation, reduced number of interests, uncontrolled behavior, anhedonia and distrust, which undoubtedly make it difficult to create relationships [10,11]. ...
... The study found that 56% of 137 patients diagnosed with schizophrenia or schizoaffective disorder reported that they had never been in an intimate relationship [11]. According to data, 64% of people suffering from psychotic disorders declare that they are dissatisfied with their sex life [13]. Unmet sexual and reproductive health needs may result in an increase in the tendency to risky sexual behaviours, such as failure to use contraceptives, sexual intercourse under the influence of alcohol or psychoactive substances, or contacts with multiple sexual partners. ...
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Introduction: Schizophrenia affects as many as 24 million people worldwide. Similar to the general population of women, it is estimated that every second woman with schizophrenia becomes a mother. The purpose of the article is to present the difficulties that pregnancy brings for women with schizophrenia in terms of physical and mental health and the course of the disease. Material and methods: The available literature in English and Polish languages was reviewed by searching the PubMed and Google Scholar databases. Articles published from 2009 to 2023 were selected using the following words: schizophrenia, pregnancy, hormones, treatment and outcomes. The analysis encompassed original studies, meta-analyses, randomized controlled trials, and review articles. Results: One of the most significant problems related to motherhood among patients with schizophrenia is the lack of access to knowledge about family planning, sexuality and parenting. Women with schizophrenia are more likely to engage in risky sexual contact, and usually their pregnancies are unplanned. The influence of schizophrenia on the course of pregnancy is still not clear. Studies show that changes in hormone levels during pregnancy, especially estrogen levels, play a protective role in the occurrence of schizophrenic episodes. Nonetheless, pregnant women with schizophrenia have higher risk of miscarriage, infant deaths, obesity, gestational diabetes, hypertension and other obstetric complications. Conclusions: Due to the fact that nowadays more women with schizophrenia may become mothers, it is crucial to provide patients with adequate knowledge about sexual and reproductive life and to ensure them professional, interdisciplinary medical and psychological care during pregnancy. Keywords: schizophrenia, pregnancy, hormones, treatment, outcomes
... The patient sample primarily comprised (>60%) females in six studies, [46][47][48][49][50][51] and males in three studies. [52][53][54] In the remaining studies, the gender distribution was relatively equal. Where reported, the mean age of participants ranged from 23 to 50 years. ...
... The antipsychotic-related side effects reported in most studies as leading to discrimination or public ridicule were weight gain and sexual dysfunction, although quotations were only extracted from three studies. 48,54,61 One study shared quotations from patients who self-identified as having gained weight due to antipsychotic medication and revealed a reluctance to socialise due to this weight gain: "I feel really depressed and won't go out … I thought people were laughing at me … " and "I didn't really leave the house … because I felt so ashamed because I was obese … ". 48 The study containing quantitative information reported on the impact of extrapyramidal side effects (EPS) on patients' social withdrawal. ...
... 48 A different study found that sexual side effects "led to lower sexual self-esteem and shame" in individuals with psychiatric conditions. 54 One study reported quantitative evidence examining how side effects of antipsychotics (specifically tardive dyskinesia [TD]) can lead to embarrassment, shame, and low self-esteem. The results of this cross-sectional, web-based survey suggested that the average score on the Social Withdrawal subscale of the ISMI scale (SW-ISMI) amongst patients with TD (mean: 2.52; standard deviation [SD]: 0.82) was significantly greater than that amongst patients without TD (mean 2.30; SD: 0.74; p<0.001). ...
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Background Antipsychotics are a class of medications primarily used to treat individuals with psychotic disorders. They have also been indicated for patients with other psychiatric conditions, such as post-traumatic stress disorder and major depressive disorder. Non-adherence is prominent amongst individuals prescribed antipsychotics, with medication-related self-stigma and social stigma identified as major factors. No previous reviews have focused on stigma associated specifically with antipsychotic medication. This systematic literature review aimed to synthesise evidence on the prevalence of stigmatising attitudes and behaviours related to antipsychotic treatment and understand their impact on antipsychotic treatment initiation and continuation. Methods Two independent reviewers screened studies from databases, congress proceedings, ClinicalTrials.gov, and PsychU.org; relevant studies reported quantitative or qualitative data on antipsychotic-related stigma in adults with psychotic disorders, mood disorders, borderline personality disorder or anxiety disorders, or healthcare providers or caregivers of these patients, and any impact on treatment. Framework synthesis facilitated extraction and synthesis of relevant information; quantitative and qualitative data were coded and indexed against a pre-specified thematic framework by two independent reviewers. Results Forty-five articles reporting on 40 unique studies were included; 22 reported quantitative data, 16 reported qualitative data, and two reported quantitative and qualitative data relating to antipsychotic-related stigma. Framework synthesis identified four themes: 1) impact of antipsychotic treatment on a) social stigma or b) self-stigma; 2) impact of side effects of antipsychotic treatment on a) social stigma or b) self-stigma; 3) impact of route of administration of antipsychotic treatment on stigma; 4) impact of stigma on the use of antipsychotics. Conclusion This systematic literature review found that antipsychotic-related social and self-stigma is a factor in non-adherence to antipsychotics. Further research should examine stigma in a wider range of patients and the extent to which clinicians’ treatment decisions are impacted by the potential stigma associated with antipsychotic medications.
... de Jager revealed that schizophrenic clients experience changes in unstable self-identity related to sexual desire, sexual activity, and identity (de Jager et al., 2018). These changes can make clients feel ashamed of behaviors, thoughts, and feelings that negatively affect self-esteem and sexual expression. ...
... This study also showed that 21% of men had problems with erectile function, and 26% had problems with ejaculation. Meanwhile, two female respondents experienced lubrication/lubrication problems (de Jager et al., 2018). This is following the expression of the participants in this study that "since she took medicine, her menstruation was not smooth...So she often stopped taking medicine and then suddenly came back (menstruation)" (P6, 49 yrs). ...
... 2,3 The reasons underpinning these adverse SRH outcomes are multifactorial and include the direct impacts of psychosis (e.g., vulnerability during acute psychosis), associated negative and cognitive symptoms (e.g., social cognition impacting relationships), medication side effects (e.g., antipsychotic-associated sexual dysfunction), and social factors (e.g., psychosisrelated stigma). [2][3][4] As well, Canadian data has shown that childbearing individuals with psychosis are at elevated risk for rapid repeat pregnancy and induced abortion, 5,6 and they have additional reproductive considerations including managing potential medication-and psychosis-associated risks during pregnancy and postpartum. ...
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... 5,37 Acute psychosis may result in decreased awareness of personal limits and difficulty with communicating needs and boundaries. 38 The cognitive deficits of schizophrenia may reduce a person's ability to avoid hazardous situations and increase their risk of exploitation by others. 39 A qualitative study of staff at domestic violence agencies noted that violent perpetrators specifically targeted individuals with psychiatric conditions who they perceived as more vulnerable. ...
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