ArticlePDF Available

Paradoxical effect of social support among people living with HIV: A diary study investigating the buffering hypothesis

Authors:

Abstract and Figures

Objective The aim of this study was to examine the buffering role of time-varying received and provided support in the relationship between stress and end-of-day mood among people living with HIV. In addition, the moderating role of intimate relationships in this buffering effect was verified. Methods The participants included 115 patients with a confirmed diagnosis of HIV infection. The data were collected using an online diary method. For five consecutive days (from Monday to Friday), participants completed an online time-stamped questionnaire in the evening to assess their end-of day-mood, stress related to a central hassle on any given day and social support that was received and provided. Results The results of the multilevel analysis showed that daily provided, but not received, support had the following partial buffering effect: the association between negative affect and stress was weaker on days with higher support provision. However, this effect was limited to those participants who were in an intimate relationship; the opposite effect was observed in single participants. Conclusion These findings suggest that the buffering effect of daily support may be modified by other social resources, such as being in an intimate relationship, and when they are not available, it can even become detrimental.
Content may be subject to copyright.
Contents lists available at ScienceDirect
Journal of Psychosomatic Research
journal homepage: www.elsevier.com/locate/jpsychores
Paradoxical eect of social support among people living with HIV: A diary
study investigating the buering hypothesis
Marcin Rzeszutek
a,
, Ewa Gruszczyńska
b
a
Faculty of Psychology, University of Warsaw, Stawki 5/7, 00-183 Warsaw, Poland
b
Faculty of Psychology, University of Social Sciences and Humanities, Chodakowska 19/31, 03-815 Warsaw, Poland
ARTICLE INFO
Keywords:
HIV
Diary study
Social support
Stress
Aect
ABSTRACT
Objective: The aim of this study was to examine the buering role of time-varying received and provided support
in the relationship between stress and end-of-day mood among people living with HIV. In addition, the mod-
erating role of intimate relationships in this buering eect was veried.
Methods: The participants included 115 patients with a conrmed diagnosis of HIV infection. The data were
collected using an online diary method. For ve consecutive days (from Monday to Friday), participants com-
pleted an online time-stamped questionnaire in the evening to assess their end-of day-mood, stress related to a
central hassle on any given day and social support that was received and provided.
Results: The results of the multilevel analysis showed that daily provided, but not received, support had the
following partial buering eect: the association between negative aect and stress was weaker on days with
higher support provision. However, this eect was limited to those participants who were in an intimate re-
lationship; the opposite eect was observed in single participants.
Conclusion: These ndings suggest that the buering eect of daily support may be modied by other social
resources, such as being in an intimate relationship, and when they are not available, it can even become
detrimental.
Previous studies investigating the psychosocial aspects of living
with HIV have focused mainly on the negative consequences of living
with HIV. This perspective assumes that people living with HIV are
primarily preoccupied with substantial HIV-related distress associated
with being diagnosed with a potentially life-threatening virus, such as
the unpredictability of the progression of HIV and intense social stig-
matization [26,43,52]. However, due to great advances in antiretroviral
treatment (ART) and knowledge regarding HIV/AIDS, many patients
with HIV currently consider their HIV infection a chronic, manageable
health condition, and while their health status remains important, it is
not necessarily a predominant source of everyday distress [13]. Partner
and family related conicts [42], employment problems [40] and even
daily hassles [35] occur frequently, but these sources of daily stressors
are understudied in this patient group. Thus, despite having the same
source of chronic stress, i.e., the HIV infection, the stress level of pa-
tients with HIV may also uctuate daily, which may be related to sig-
nicant individual dierences in psychological functioning over time
[41]. The use of new technologies, such as electronic diaries provided a
unique opportunity to monitor these individual dierences within this
population [44].
Electronic daily diaries are increasingly used in health studies as
part of broader mobile health programmes (m-Health; [33]). The use of
an intensive longitudinal design that includes the completion of elec-
tronic diaries as a component of data collection, overcomes several
limitations of traditional longitudinal designs by capturing behaviors as
they occur in real time and in the person's natural environment. Thus,
this design has the potential to provide a unique picture of daily within-
person uctuations [6]. In studies of people living with HIV, daily
diaries have been applied to monitor various, yet rather restricted areas
of functioning, such as adherence to treatment [28], sexual activity
[23] and coping with HIV-internalized stigma [49]. To date, only
Farmer et al. [16] have examined daily problems associated with social
relationships via diaries and concluded that this area of functioning
may be a source of one of the highest levels of daily distress among
people living with HIV. Therefore, in this study, daily received and
provided support and its relationship to end-of-day well-being were
examined among this patient group.
Numerous studies have illustrated the benecial role of social sup-
port in various areas of functioning among patients with HIV, including
better health-related quality of life [25], higher CD4 count [45] and
https://doi.org/10.1016/j.jpsychores.2018.03.006
Received 16 November 2017; Received in revised form 13 March 2018; Accepted 13 March 2018
Corresponding author.
E-mail addresses: marcin.rzeszutek@psych.uw.edu.pl (M. Rzeszutek), egruszczynska@swps.edu.pl (E. Gruszczyńska).
Journal of Psychosomatic Research 109 (2018) 25–31
0022-3999/ © 2018 The Authors. Published by Elsevier Inc. This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/BY-NC-ND/4.0/).
T
lower levels of HIV-related distress [21]. However, many studies in-
vestigating social support among patients with HIV are inherently
limited by various shortcomings, such as the lack of a distinction among
dierent social support dimensions and the failure to explore the me-
chanism by which social support exerts its benecial impact on various
stressors in this patient group [48]. Several authors have provided
evidence consistent with the classical buering hypothesis [12], which
posits that perceived social support may act as a moderator of the re-
lationship between HIV-related distress and its various negative out-
comes, particularly depressive symptoms [5]. However, the aforemen-
tioned studies only used traditional retrospective measures of social
support and between-person designs. Therefore, these studies did not
verify the within-person eect of social support among patients with
HIV.
Tofullyverifythebuering hypothesis of perceived social support, this
latter construct should be enriched with the inclusion of both directions of
social exchange, i.e., both received and provided support, because these two
social support dimensions may be dierentially related to well-being under
stress [39]. Most authors have focused only on received support and have
shown both its benecial [31] and detrimental eects [30]. The role of
provided support has been understudied, but according to certain studies,
this support may promote well-being to a greater extent [58]. However, in
the long term, if provided support is not reciprocated, it may actually have
the opposite eect on the provider's well-being [60], which is consistent
with the equity theory [47].
1. Current study
The benecial role of received support in the well-being of patients
with HIV has been well-established but it has only been examined using
a between-person design (e.g., [1,38]). In contrast, to the best of the
authors' knowledge, the day to day process of support provision by
patients with HIV has not yet been examined in the literature. Thus, the
rst novelty of this study is that we examined the buering role of time-
varying received and provided support in the relationship between
stress and end-of-day mood among patients with HIV. In our rst hy-
pothesis we investigated the within-person interaction to test whether
the daily relationship between stress and aect is moderated by the
daily received and provided social support.
Hypothesis 1. The daily received and provided support buers the
negative eect of daily stress on end-of-day mood.
Hypothesis 1.1. Within the same person the negative relationship
between stress and end-of day mood is weaker on those days with
higher than typical received social support.
Hypothesis 1.2. Within the same person the negative relationship
between stress and end-of day mood is weaker on those days with
higher than typical provided social support.
There is some evidence in the literature that the main eect of social
support may modify the buering eect of emotional social support
[18]. A close relationship serves as an important and stable source of
social support, mainly because it provides a framework for social ex-
change [34], especially on a daily basis and within the emotional do-
main [32]. The social context of HIV/AIDS makes the status of being in
an intimate relationship potentially even more important than it would
be for healthy individuals. Therefore, we decided to test whether the
within-person eect of support is modied by between-person dier-
ences in relationship status, which assumes three-way interaction: re-
lationship status × daily stress × daily social support on a daily mood.
In other words, we wanted to investigate whether being in a stable
intimate relationship may potentially boost the buering eect of daily
support described in the rst hypothesis.
Hypothesis 2. Being in a stable relationship moderates the within-
person buering eect; that is, the buering eect is stronger in
participants who are currently in a stable intimate relationship.
2. Method
2.1. Participants and procedure
One hundred and twenty participants with a conrmed diagnosis of
HIV infection were recruited during a control visit to an outpatient
clinic where they were receiving antiretroviral treatment. Two of these
people provided < 50% of the required diaries so they were excluded
from the study. In addition, three participants were excluded from the
analysis because they did not provide information regarding their re-
lationship status. Of the nal sample (N = 115) 85% were men aged
40 ± 10.6 years, 76% of whom were employed, while 62% held a
university degree. Approximately 60% of the participants declared that
they were in an intimate relationship. The detailed socio-demographic
and health-related characteristics of the participants are presented in
Table 1.
The inclusion criteria were as follows: 1) medically conrmed di-
agnosis of HIV infection, 2) receiving ART, 2) a lack of illness-related
cognitive disorders, 3) no current diagnosis of substance dependence,
and 4) access to the Internet. The participation was voluntary, without
remuneration to participants.
The study protocol was approved by the local ethics commission.
The data were collected using an online diary method. This data col-
lection approach is considered a special case of a longitudinal design to
capture participants' experiences in a way that is not possible using
traditional longitudinal or cross-sectional designs [6]. For ve con-
secutive days (Monday to Friday) the participants completed online
time-stamped questionnaires that were sent as hyperlinks via e-mail
each evening to assess their end-of-day mood, their stress as related to a
central hassle on that day, and their social support both received and
provided. Each day's evaluation required approximately 5 to 7 min. The
online diaries were accessible from Internet-connected PCs, smart-
phones and tablets. Daily access was restricted to a limited time, after
which the diary could not be accessed. In addition, the participants
were unable to review their previous answers. This procedure is the
gold standard in diary studies [37].
Table 1
The sample characteristics (N = 115).
Variable N (%)
Gender
Male 98 (85.2%)
Female 17 (14.8%)
Age in years (M ± SD) 40.0 ± 10.6
Being in an intimate relationship
Yes 69 (60.0%)
No 46 (40.0%)
Education
University degree 71 (61.7%)
Below university degree 44 (38.3%)
Employment
Yes 87 (75.7%)
No 28 (24.3%)
HIV/AIDS status
HIV+ only 95 (82.6%)
HIV/AIDS 20 (17.4%)
HIV infection duration in years (M ± SD) 7.77 ± 6.86
Antiretroviral treatment (ART) duration in years (M ± SD) 5.69 ± 4.94
CD4 Count 595.75 ± 243.54
M. Rzeszutek, E. Gruszczyńska Journal of Psychosomatic Research 109 (2018) 25–31
26
2.2. Measures
End-of-day mood was assessed using the following 12 items from
the PANAS-X, which was developed by Watson et al. [59] in a Polish
adaptation of Brzozowski [11]: 6 items assessed negative aect (e.g.,
tired, unhappy, and upset), and 6 items assessed positive aect (e.g.,
calm, excited, and satised). The participants evaluated how they felt at
the end of each day and provided their answers on a 5-point scale from
1 = very slightly or not at all to 5 = strongly. The multilevel reliability
(omega coecient, [15]) is provided in Table 2. The values were sa-
tisfactory at both the within- and between-person levels.
The stress level due to central hassles was evaluated using the oper-
ationalization modication proposed by Dunkley et al. [14]. The partici-
pants chose their most central hassle in a given day and then answered
questions about event-related stress, controllability and importance. In this
study, the data focused only on experienced stress levels. For the question
How stressful was the event or issue to you?, the participants provided an
answer from 1 = not at all to 5 = very much.
Received and provided emotional social support were each mea-
sured using 3 items from the relevant subscales of the Berlin Social
Support Scales developed by Schulz and Schwarzer [55] in a Polish
adaptation of Łuszczyńska et al. [36]. They were rephrased accordingly
to adjust the items to daily measurement. The participants reported
their responses regarding their daily interpersonal relationships in
terms of the support provided and received on a 5-point scale (1 = not
at all to 5 = very much). The subscales had good reliability at both
measurement levels (see Table 2).
Relationship status was a dichotomous yes/no variable (coded 1/0)
according to the answer to the question Are you currently in an in-
timate formal or informal relationship?
3. Data analysis
The data had a hierarchical structure with repeated measures for all
participants. This structure leads to a two-level model with daily
measures for the same person at Level 1 (within-person) and stable
individual dierences in measured variables at Level 2 (between-
person). The raw data were transformed to dierentiate these two
sources of variance. The daily repeated measures were centred around
individual means and were interpreted as day-by-day variations from
the typical levels of each person (Level 1). To identify the dierences
among individuals, all measurement points were aggregated for each
variable and then centred around the mean of the whole sample (Level
2). Because the daily measures of the same individual are not in-
dependent, a rst-order autoregressive covariance structure was as-
sumed [6]. Also, random intercept and slopes were included as models
with them tted the data signicantly better than models without them.
The hypotheses were veried using a stepwise approach. In Model 1
the Level-1 variables, including daily positive (or negative) aect, daily
stress, daily received (or provided) support, were entered, followed by
the Level-2 variables, including between-person positive (or negative)
aect, stress, provided (or received) support and being in relationship.
The Level-2 variables, except for relationship status, were added to
control for interpersonal dierences in aect, stress and support. Time
was also included to control for possible systematic changes during the
study. To test hypothesis 1, the respective Level-1 interaction term was
included in Model 2 as follows: daily stress × daily support, which can
be interpreted as within-person buering eect. Next, in Model 3 two
other interaction terms necessary to test hypothesis 2 were added. Fi-
nally, the cross-level three-way interaction term was examined in
Model 4, with being in a relationship as a potential moderator of the
aforementioned Level-1 interaction. The improvement of each model
over the previous model was assessed using the dierence between the
likelihood ratios (2LLdi) and chi square distribution. Because the
random part of the models remained unchanged in all analyses, the
number of degrees of freedom for the dierence comparison was based
on the number of added xed parameters. The analyses were conducted
using IBM SPSS 24 statistical software [27].
4. Results
4.1. Preliminary analysis
An examination of the data did not show any systematic pattern of
missingness. Therefore they could be considered missing at random
and, based on the current recommendations, dealt with maximum
likelihood procedures [22].
The intraclass correlation coecient (ICC) for daily measured
variables ranged from 0.29 to 0.56. Values of ICC above 0.20 are re-
garded as dependence which may cause biased results if a hierarchical
data structure is ignored in data analysis [6]. Only 29% of the varia-
bility in the answers regarding stress can be explained by between-
person variations, whereas these values are 56 and 52% for received
and provided support, respectively. Additionally, considering the 5-
point answering scale used for the support measurement, the obtained
aggregated mean values, which are reported in Table 2, can be con-
sidered high. However, the ICC suggests that up to 48% of the social
support variance can be explained by within-person variability, which
is important for the aim of the study, i.e., testing the buering hy-
pothesis using a day-by-day approach.
The socio-demographic and health-related characteristics (i.e., gender,
age, education, employment status, CD4 count and diagnosis of AIDS) were
unrelated to the end-of-day mood; thus, these variables were excluded from
all further analyses. However, positive and negative aect were signicantly
inversely related (0.53, p < .001); thus, aect of opposite valence was
included in all analyses to control for this shared variance.
4.2. Hypothesis 1
To verify Hypothesis 1, Model 2 was tested against Model 1. As
shown in Tables 3 and 4, a signicant increase in the model t and
signicant daily stress × daily support interaction were observed for
negative aect and provided support only. A simple slope analysis [46]
revealed that on the days on which the participants reported lower than
typical levels of provided support, the positive relationship between
daily stress and negative aect was stronger (γ= 0.29, SE = 0.05,
z = 5.58, p < .001) than that on the days on which the participants
reported higher than typical levels of provided support (γ= 0.15,
SE = 0.06, z = 2.66, p < .01). Thus, Hypothesis 1 can be considered
as partially supported.
4.3. Hypothesis 2
Similarly, Model 4 showed a signicant t improvement over Model
3 for negative aect only but for both daily received and provided
support (see Tables 3 and 4, respectively). As shown in Figs. 1 and 2,
the previously described interaction eects dier between participants
who are in an intimate relationship and those who are not. A partial
Table 2
Means, standard deviations, ICC and multilevel reliability of the studied variables.
Variable M SD ICC Omega
Level 1 Level 2
Negative aect 2.09 0.57 0.35 0.81 0.91
Positive aect 2.87 0.65 0.48 0.79 0.91
Received support 3.98 0.75 0.56 0.76 0.97
Provided support 4.04 0.68 0.52 0.74 0.95
Stress 2.83 0.73 0.29 ––
Note. Mean and standard deviations for aggregated scores, n =115 participants.
There are no omega values for stress as it was measured with one item only.
M. Rzeszutek, E. Gruszczyńska Journal of Psychosomatic Research 109 (2018) 25–31
27
buering eect of received support (Fig. 1) was observed only in par-
ticipants in a relationship; the positive relationship between daily stress
and negative aect was stronger with lower daily support receipt
(γ= 0.32, SE = 0.06, z = 5.05, p < .001) than that with higher daily
support receipt (γ= 0.14, SE = 0.07, z = 2.09, p = .04). In contrast,
the single participants reported a signicant relationship between daily
stress and negative aect only when higher than typical social support
is received (γ= 0.26, SE = 0.09, z = 3.05, p = .002). On days with a
lower support receipt, daily stress and negative aect were unrelated in
this group (γ= 0.08, SE = 0.09, z = 0.84, ns). The pattern was similar
for provided support (Fig. 2): the relationship between daily stress and
negative aect was stronger on days with a lower support provision
(γ= 0.34, SE = 0.06, z = 5.71, p < .001) than that on days with a
higher support provision (γ= 0.11, SE = 0.06, z = 1.75, ns) for parti-
cipants in a relationship. For participants who declared being single,
the opposite eect was noted. Namely, the relationship between daily
stress and negative aect was insignicant on days with lower support
provision (γ= 0.12, SE = 0.09, z = 1.25, ns) but was positive and
signicant on days with higher support provision (γ= 0.30, SE = 0.10,
z = 2.89, p = .004).
5. Discussion
The results of this study were consistent with the rst hypothesis but
only to a certain extent. The relationship between daily stress and ne-
gative aect was moderated by daily provided, but not received, social
support. Additionally, compared to days with a lower support provi-
sion, a partial, but not total, buering eect was observed on days with
a higher support provision, and the relationship between stress and
negative aect was weaker but still signicantly dierent from zero.
Table 3
Results of multilevel analyses for received support, stress and being in relationship on the end-of-day-mood (xed eects).
Parameters Negative aect Positive aect
Model 1 Model 2 Model3 Model 4 Model 1 Model 2 Model3 Model 4
Est (SE) Est (SE) Est (SE) Est (SE) Est (SE) Est (SE) Est (SE) Est (SE)
Intercept 2.04 (0.08)
⁎⁎⁎
2.04 (0.08)
⁎⁎⁎
2.04 (0.08)
⁎⁎⁎
2.04 (0.08)
⁎⁎⁎
2.72 (0.08)
⁎⁎⁎
2.72 (0.08)
⁎⁎⁎
2.72 (0.09)
⁎⁎⁎
2.72 (0.09)
⁎⁎⁎
Time 0.006 (0.02) 0.006 (0.02) 0.005 (0.02) 0.007 (0.02) 0.04 (0.02)
0.04 (0.02)
0.03 (0.02)
0.03 (0.02)
Daily opposite aect 0.53 (0.04)
⁎⁎⁎
0.53 (0.04)
⁎⁎⁎
0.52 (0.04)
⁎⁎⁎
0.52 (0.04)
⁎⁎⁎
0.52 (0.04)
⁎⁎⁎
0.52 (0.04)
⁎⁎⁎
0.52 (0.04)
⁎⁎⁎
0.52 (0.04)
⁎⁎⁎
Daily stress (S) 0.23 (0.04)
⁎⁎⁎
0.22 (0.04)
⁎⁎⁎
0.22 (0.08)
⁎⁎
0.22 (0.08)
⁎⁎
0.06 (0.04) 0.06 (0.04) 0.004 (0.06) 0.003 (0.07)
Daily received support (RSup) 0.0008 (0.01) 0.0008 (0.01) 0.006 (0.02) 0.006 (0.02) 0.03 (0.01)
0.03 (0.01)
0.03 (0.02) 0.03 (0.02)
Being in relationship (R) 0.06 (0.09) 0.06 (0.09) 0.06 (0.09) 0.05 (0.09) 0.15 (0.10) 0.15 (0.10) 0.15 (0.10) 0.15 (0.10)
S × RSup 0.02 (0.02) 0.02 (0.02) 0.02 (0.03) 0.006 (0.01) 0.005 (0.01) 0.001 (0.03)
RSup × R 0.01 (0.03) 0.007 (0.03) 0.01 (0.02) 0.01 (0.02)
S×R 0.002 (0.09) 0.007 (0.08) 0.09 (0.07) 0.09 (0.08)
S × RSup × R 0.07 (0.03)
0.008 (0.03)
2 Restricted Log
Likelihood (2LL)
981.42 979.32 979.18 975.35 988.49 988.32 986.80 986.74
2LL di(df) 2.1 (1) 0.14 (2) 3.83 (1)
0.17 (1) 1.52 (2) 0.06 (1)
Note. 115 participants and 575 measurement points. Est (SE) estimate and standard error. Each model was adjusted for between-person eects of stress, provided support and opposite
aect but for simplicity's sake their estimates were removed from the table.
p < .05.
⁎⁎
p < .01.
⁎⁎⁎
p < .001.
Table 4
Results of multilevel analyses for provided support, stress and being in relationship on the end-of-day-mood (xed eects).
Parameters Negative aect Positive aect
Model 1 Model 2 Model3 Model 4 Model 1 Model 2 Model3 Model 4
Est (SE) Est (SE) Est (SE) Est (SE) Est (SE) Est (SE) Est (SE) Est (SE)
Intercept 2.04 (0.08)
⁎⁎⁎
2.04 (0.08)
⁎⁎⁎
2.04 (0.08)
⁎⁎⁎
2.05 (0.08)
⁎⁎⁎
2.73 (0.08)
⁎⁎⁎
2.73 (0.09)
⁎⁎⁎
2.74 (0.09)
⁎⁎⁎
2.74 (0.09)
⁎⁎⁎
Time 0.009 (0.02) 0.008 (0.02) 0.007 (0.02) 0.008 (0.02) 0.03 (0.02) 0.03 (0.02) 0.03 (0.02) 0.03 (0.02)
Daily opposite aect 0.55 (0.04)
⁎⁎⁎
0.55 (0.04)
⁎⁎⁎
0.55 (0.04)
⁎⁎⁎
0.54 (0.04)
⁎⁎⁎
0.53 (0.04)
⁎⁎⁎
0.53 (0.04)
⁎⁎⁎
0.53 (0.04)
⁎⁎⁎
0.53 (0.04)
⁎⁎⁎
Daily stress (S) 0.22 (0.04)
⁎⁎⁎
0.21 (0.04)
⁎⁎⁎
0.21 (0.07)
⁎⁎
0.25 (0.07)
⁎⁎
0.04 (0.04) 0.04 (0.04) 0.04 (0.07) 0.04 (0.07)
Daily provided support (PSup) 0.002 (0.01) 0.002 (0.01) 0.01 (0.02) 0.01 (0.02) 0.04 (0.02)
0.04 (0.01)
0.05 (0.02)
0.05 (0.02)
Being in relationship (R) 0.05 (0.09) 0.04 (0.09) 0.04 (0.09) 0.02 (0.09) 0.18 (0.11) 0.18 (0.11) 0.17 (0.11) 0.17 (0.11)
S × PSup 0.03 (0.02)
0.03 (0.02)
0.03 (0.03) 0.007 (0.02) 0.005 (0.02) 0.005 (0.03)
PSup × R 0.02 (0.03) 0.02 (0.03) 0.03 (0.03) 0.03 (0.03)
S×R 0.004 (0.09) 0.05 (0.09) 0.12 (0.08) 0.12 (0.09)
S × PSup × R 0.09 (0.04)
⁎⁎
0.01 (0.04)
2 Restricted Log
Likelihood (2LL)
978.43 974.30 973.47 967.81 990.57 990.39 987.59 987.44
2LL di(df) 4.13 (1)
0.83 (2) 6.66 (1)
0.18 (1) 2.80 (2) 0.15 (1)
Note. 115 participants and 575 measurement points. Est (SE) coecient and standard error. Each model was adjusted for main eects of between-person eects of stress, provided
support and opposite aect but for simplicity's sake their estimates were removed from the table.
p < .05.
⁎⁎
p < .01.
⁎⁎⁎
p < .001.
M. Rzeszutek, E. Gruszczyńska Journal of Psychosomatic Research 109 (2018) 25–31
28
Finally, notably, stress experienced due to a central hassle was related
only to negative aect at the end of the day, which may explain the lack
of the aforementioned buering eect of positive aect.
The non-signicant role of received support is consistent with other
studies showing the phenomenon of the mixed blessing of receiving
support [20]. This type of support is occasionally unrelated to well-
being and can even have a detrimental eect on the support's recipient,
as it may create feelings of guilt, dependency or ineciency, especially
if people receive more support than they are in need of, making support
receipt an indicator of high stress [7], which was also found in daily
diary studies [54]. In contrast, the benecial eect of providing support
on the provider's well-being is particularly visible on a daily basis [39].
Daily support provision may be particularly important for chronically
ill patients because it constitutes a relieving experience that distracts
their attention from illness-related distress, allowing them to show their
independence and boost their self-ecacy and self-esteem [29]. Thus,
this nding is consistent with the general esteem enhancement theory
of social support [3]. Similarly, in this study, the participants appeared
to benet more in terms of their end-of-day negative aect from the
self-perception of being support providers rather than support re-
cipients.
This nding, however, cannot be interpreted without a direct re-
ference to the surprising results of testing Hypothesis 2, which con-
tradicted our expectations; the buering eect was limited to partici-
pants in a relationship, while for those who were single, a detrimental
eect was noted. In particular, for participants in a relationship, on
days with a higher than typical level of provided or received support, a
weaker association between daily stress and negative aect was noted
compared to that observed on days with a lower than typical level of
support. In contrast, a paradoxical eect was noted in the single par-
ticipants, i.e., a higher support provision or receipt was a condition
under which higher daily stress corresponded with higher negative
aect. On days with a lower level of received or provided support, this
relationship was not signicant. Thus, the relationship status did
moderate the relationship between daily stress and daily support on
negative aect but unexpectedly dividedthe relationship into buf-
fering and detrimental eect. This nding is a major contribution of this
study since it provides empirical evidence that being in relationship is a
resource that may change negative aect-stress-support associations on
a daily basis.
According to the equity theory of social support, the balance be-
tween providing and receiving support is crucial for well-being [19].
Being in a relationship constitutes a type of obligation to be mutually
supportive, particularly during stressful days, which may facilitate the
eective regulation of this balance on a daily basis [32]. This obligation
is even more strongly pronounced in the relational regulation theory
[34], which assumes that the benecial eect of social support on
emotional well-being is due to repeated moment-by-moment ordinary
daily interactions and activities rather than specic sources of distress
and coping with the distress. Thus, support provision was shown to
exert a benecial eect on the provider's well-being among emotionally
engaged providers but may be unrelated to or even deteriorates well-
being among emotionally unengaged participants [10]. In contrast,
there is evidence in the literature suggesting that single people, com-
pared to coupled individuals, report higher levels of loneliness and
distress, and thus, the exchange of emotional social support in the face
of daily stress may require a single person to make additional invest-
ments of psychological resources [53]. The cost of this investment may
overbalance the benets, which results in a higher negative aect de-
spite receiving or providing support.
However, the question of how strongly this eect is related to the
sample specicity, i.e., patients with HIV, remains unanswered.
Although family and friends provide support to this patient group, the
most important source of support stems from relationship partners
Fig. 1. Interaction eect of daily stress and daily received support on negative aect depending on relationship status: Results of simple slopes analysis.
Fig. 2. Interaction eect of daily stress and daily provided support on negative aect depending on relationship status: Results of simple slopes analysis.
M. Rzeszutek, E. Gruszczyńska Journal of Psychosomatic Research 109 (2018) 25–31
29
[24,51]. Providing love and intimacy is crucial for maintaining close
relationships among patients with HIV [50,57] and helps cope with the
uncertainty related to disease progression [9]. Additionally, compared
to those in a relationship, single patients with HIV receive less support
due to the social interpretation of the infection and the dilemma of
disclosure [56], which can also be related to risky behaviors and poor
aective well-being [4]. Thus, these study results are consistent with
the reasoning presented earlier and suggest that the eect may not be
specic to patients with HIV but may be particularly strong among this
population. Therefore, further studies are required in this group and
other groups of people potentially vulnerable to social stigmatization.
6. Strengths and limitations
This study has several strengths because it is among the rst studies
to assess the daily functioning of HIV patients using the same design as
that used to investigate patients with other chronic diseases, reecting
the current proceedings in the medical control of HIV infection.
Additionally, the good multilevel reliability of the tools is strength of
the study. Nevertheless, this study is not free from limitations. First,
although an intensive longitudinal design was applied, this study is
correlational in nature; thus, no cause-and-eect explanations are
possible. In addition, no other studies involving HIV patients that could
be directly compared with this specic study design have been per-
formed. Thus, the possibility that the ndings of this study are sample
or time-specic cannot be entirely excluded. Finally, this study is based
on the participants' self-perception; thus, a dyadic approach should be
implemented in future studies involving HIV patients to test social ex-
change more in-depth.
7. Conclusion
Despite the aforementioned limitations, this study adds knowledge
regarding the so-called paradoxical eect of social support and expands
upon the growing body of empirical literature illustrating the dierent
eects of support provision and receipt. More specically, this study
suggests that social support exerts a daily buering eect that may be
limited to groups with higher social resources, but social support can be
detrimental for other groups. Additionally, this study may be an im-
portant contribution to the HIV/AIDS literature and underscores the
need for more studies investigating the functioning of HIV patients in
everyday life and the signicance of being in an intimate relationship
for their daily aective well-being.
Conict of interest
The corresponding author declares that he has no conict of in-
terest. The second author declares that she has no conict of interest.
Acknowledgments
This work was supported by the University of Warsaw, Faculty of
Psychology under Grant BST181409/2017.
References
[1] S. Abramowitz, L.J. Koenig, S. Chandwani, L. Orban, R. Stein, R. LaGrange,
W. Barnes, Characterizing social support: global and specic social support ex-
periences of HIV-infected youth, AIDS Patient Care STDs 23 (2009) 323330.
[3] C. Batson, A. Powell, Altruism and prosocial behavior, Handbook of Psychology,
John Wiley & Sons, Inc., 20032003.
[4] J. Bauermeister, Sexual partner typologies among single young men who have sex
with men, AIDS Behav. 19 (2015) 11161128, http://dx.doi.org/10.1007/s10461-
014-0932-7.
[5] T. Bekele, S. Rourke, R. Tucker, S. Greene, M. Sobota, J. Koornstra, L. Monette,
S. Rueda, J. Bacon, J. Watson, S. Hwang, J. Dunn, D. Guenter, Direct and indirect
eects of perceived social support on health-related quality of life in persons living
with HIV/AIDS, AIDS Care 25 (2013) 337346, http://dx.doi.org/10.1080/
09540121.2012.701716.
[6] N. Bolger, J. Laurenceau, Intensive Longitudinal Methods: An Introduction to Diary
and Experience Sampling Research, Guilford Press, New York, NY, US, 2013.
[7] N. Bolger, M. Foster, A.D. Vinokur, R. Ng, Close relationships and adjustment to a
life crisis: the case of breast cancer, J. Pers. Soc. Psychol. 70 (1996) 283294,
http://dx.doi.org/10.1037/0022-3514.70.2.283.
[9] D. Brashers, J. Neidig, D. Goldsmith, Social support and the management of un-
certainty for people living with HIV or AIDS, Health Commun. 16 (2004) 305331,
http://dx.doi.org/10.1207/S15327027HC1603_3.
[10] S. Brown, R. Nesse, A. Vinokur, D. Smith, Providing social support may be more
benecial than receiving it: results from a prospective study of mortality, Psychol.
Sci. 14 (2003) 320327, http://dx.doi.org/10.1111/1467-9280.14461.
[11] P. Brzozowski, Skala UczućPozytywnych i Negatywnych (SUPIN). Podręcznik.
[Positive and Negative Aect Schedule: Manual], Psychological Test Laboratory of
the Polish Psychological Association, Warsaw, 2010.
[12] S. Cohen, T. Wills, Stress, social support and the buering hypothesis, Psychol. Bull.
98 (1985) 310357, http://dx.doi.org/10.1037/0033-2909.98.2.310.
[13] S. Deeks, S. Lewin, D. Havlir, The end of AIDS: HIV infection as a chronic disease,
Lancet 382 (2013) 15251533, http://dx.doi.org/10.1016/S0140-6736(13)61809-
7(Published online October 21, 2013).
[14] D.M. Dunkley, D.C. Zuro, K.R. Blankstein, Self-critical perfectionism and daily
aect: dispositional and situational inuences on stress and coping, J. Pers. Soc.
Psychol. 84 (2003) 234252, http://dx.doi.org/10.1037/0022-3514.84.1.234.
[15] T. Dunn, T. Baguley, V. Brunsden, From alpha to omega: a practical solution to the
pervasive problem of internal consistency estimation, Br. J. Psychol. 105 (2014)
399412, http://dx.doi.org/10.1111/bjop.12046.
[16] S. Farmer, D. Mindry, W. Comulada, D. Swendeman, Mobile phone ecological
momentary assessment of daily stressors among people living with HIV: elucidating
factors underlying health-related challenges in daily routines, J. Assoc. Nurses AIDS
Care 28 (2017) 737751, http://dx.doi.org/10.1016/j.jana.2017.04.001.
[18] B. Feeney, N. Collins, A new look at social support: a theoretical perspective on
thriving through relationships, Personal. Soc. Psychol. Rev. 19 (2015) 113147,
http://dx.doi.org/10.1177/1088868314544222.
[19] M. Gleason, M. Iida, N. Bolger, P. Shrout, Daily supportive equity in close re-
lationships, Personal. Soc. Psychol. Bull. 29 (2003) 10361045, http://dx.doi.org/
10.1177/0146167203253473.
[20] M. Gleason, M. Iida, P. Shrout, N. Bolger, Receiving support as a mixed blessing:
evidence for dual eects of support on psychological outcomes, J. Pers. Soc.
Psychol. 94 (2008) 824838, http://dx.doi.org/10.1037/0022-3514.94.5.824.
[21] J. Gonzalez, F. Penedo, M. Antoni, R. Dura, S. Pherson-Baker, G. Ironson, Social
support, positive states of mind, and HIV treatment adherence in men and women
living with HIV/AIDS, Health Psychol. 23 (2004) 413, http://dx.doi.org/10.1037/
0278-6133.23.4.413.
[22] J. Graham, Missing data analysis: making it work in the real world, Annu. Rev.
Psychol. 60 (2009) 549576, http://dx.doi.org/10.1146/annurev.psych.58.
110405.085530.
[23] C. Grov, J. Rendina, A. Ventuneac, J. Parsons, Sexual behavior varies between
same-race and dierent-race partnerships: a daily diary study of highly sexually
active Black, Latino, and White Gay and Bisexual Men, Arch. Sex. Behav. 45 (2016)
14531462, http://dx.doi.org/10.1007/s10508-015-0677-z.
[24] S. Haas, Social support as relationship maintenance in gay male couples coping with
HIV or AIDS, J. Soc. Pers. Relat. 19 (2002) 87111, http://dx.doi.org/10.1177/
0265407502191005.
[25] N. Hansen, A. Vaughan, C. Cavanaugh, C. Connell, Health-related quality of life in
bereaved HIV-positive adults: relationships between HIV symptoms, grief, social
support, and axis II indication, Health Psychol. 28 (2009) 249257, http://dx.doi.
org/10.1037/a0013168.
[26] G.M. Herek, Thinking about AIDS and stigma: a psychologist's perspective, J. Law
Med. Ethics 30 (2002) 594607, http://dx.doi.org/10.1111/j.1748-720X.2002.
tb00428.x.
[27] IBM Corp., IBM SPSS Statistics for Windows. Version 24, IBM Corp., Armonk, NY,
2016 (Released).
[28] S. Kalichman, M. Kalichman, C. Cherry, Brief behavioral self-regulation counseling
for HIV treatment adherence delivered by cell phone: an initial test of concept trial,
AIDS Patient Care STDs 25 (2011) 303310, http://dx.doi.org/10.1089/apc.2010.
0367.
[29] A. Kleiboer, R. Kuijer, J. Hox, K. Schreurs, Receiving and providing support in
couples dealing with multiple sclerosis: a diary study using an equity perspective,
Pers. Relat. 13 (2006) 485501, http://dx.doi.org/10.1037/fam0000333.
[30] N. Knoll, U. Schulz, R. Schwarzer, H. Rosemeier, Support provider's appraisal de-
tection bias and the ecacy of received support in medical students preparing for
an exam, Br. J. Soc. Psychol. 45 (2006) 599615, http://dx.doi.org/10.1348/
014466605X59978.
[31] A. Kroemeke, E. Gruszczynska, Well-being and institutional care in older adults:
cross-sectional and time eects of provided and received support, PLoS One 11 (8)
(2016) e0161328, , http://dx.doi.org/10.1371/journal.pone.0161328.
[32] R. Kuijer, B. Buunk, J. Ybema, Are equity concerns important in the intimate re-
lationship when one partner of a couple has cancer? Soc. Psychol. Q. 64 (2001)
267282, http://dx.doi.org/10.2307/3090116.
[33] S. Kumar, W. Nilsen, A. Abernethy, A. Atienza, Mobile health technology evalua-
tion: the mHealth evidence workshop, Am. J. Prev. Med. 45 (2013) 228236,
http://dx.doi.org/10.1016/j.amepre.2013.03.017.
[34] B. Lakey, E. Orehek, Relational regulation theory: a new approach to explain the
link between perceived social support and mental health, Psychol. Rev. 118 (2011)
482495, http://dx.doi.org/10.1037/a0023477.
[35] J. Lewis, S. Abramowitz, L. Koenig, S. Chandwani, L. Orban, Negative life events
M. Rzeszutek, E. Gruszczyńska Journal of Psychosomatic Research 109 (2018) 25–31
30
and depression in adolescents with HIV: a stress and coping analysis, AIDS Care 27
(2015) 12651274, http://dx.doi.org/10.1080/09540121.2015.1050984.
[36] A. Łuszczyńska, M. Kowalska, M. Mazurkiewicz, R. Schwarzer, Berlińskie Skale
Wsparcia Społecznego (BSSS). Wyniki wstępnych badan nad rzetelnościąi
trafnością. [Berlin Social Support Scales (BSSS). Preliminary results on the relia-
bility and validity], Stud. Psychol. 44 (2006) 1727.
[37] L. Masumi, P. Shrout, N. Bolger, Using diary methods in psychological research, in:
H. Cooper (Ed.), APA Handbook of Research Methods in Psychology, Foundations,
Planning, and Psychometrics, vol. 1, 2012.
[38] S. Mavandadi, F. Zanjani, T. Have, D. Oslin, Psychological wellbeing among in-
dividuals aging with HIV: the value of social relationships, J. Acquir. Immune Dec.
Syndr. 51 (2009) 9198, http://dx.doi.org/10.1097/QAI.0b013e318199069b.
[39] S. Morelli, I. Lee, M. Arnn, J. Zaki, Emotional and instrumental support provision
interact to predict well-being, Emotion 15 (2015) 484493, http://dx.doi.org/10.
1037/emo0000084.
[40] M. Mugavero, J. Raper, S. Reif, K. Whetten, J. Leserman, N. Thielman, B. Pence,
Overload: The impact of incident stressful events on antiretroviral medication ad-
herence and virologic failure in a longitudinal, multi-site HIV cohort study,
Psychosom. Med. 71 (2009) 920926, http://dx.doi.org/10.1097/PSY.
0b013e3181bfe8d2.
[41] B. Mustanski, The inuence of state and trait aect on HIV risk behaviors: a daily
diary study of MSM, Health Psychol. 26 (2007) 618626, http://dx.doi.org/10.
1037/0278-6133.26.5.618.
[42] U. Ndlovu, A. Ion, A. Carvalhal, My children and my home: the most recent and
challenging stressors of HIV-positive women, Arch. Women's Ment. Health 13
(2010) 215222, http://dx.doi.org/10.1007/s00737-010-0148-4.
[43] G. Neigh, S. Rhodes, A. Valdez, T. Jovanovic, PTSD co-morbid with HIV: separate
but equal, or two parts of a whole? Neurobiol. Dis. 9 (2015) 116123, http://dx.doi.
org/10.1016/j.nbd.2015.11.012.
[44] J. Pellowski, S. Kalichman, Recent advances (20112012) in technology-delivered
interventions for people living with HIV, Curr. HIV/AIDS Rep. 9 (2012) 326334,
http://dx.doi.org/10.1007/s11904-012-0133-9.
[45] L. Persson, P.O. Ostergren, B.S. Hanson, A. Lindgren, A. Naucler, Social network,
social support and the rate of decline of CD4 lymphocytes in asymptomatic HIV-
positive homosexual men, Scand. J. Public Health 30 (2002) 184190, http://dx.
doi.org/10.1080/14034940210133870.
[46] K. Preacher, P. Curran, D. Bauer, Computational tools for probing interactions in
multiple linear regression, multilevel modeling, and latent curve analysis, J. Educ.
Behav. Stat. 31 (2006) 437448, http://dx.doi.org/10.3102/10769986031004437.
[47] R. Pritchard, Equity theory: a review and critique, Org. Behav. Hum. Perform. 4
(1969) 176211, http://dx.doi.org/10.1016/0030-5073(69)90005-1.
[48] S. Qiao, X. Li, B. Stanton, Social support and HIV-related risk behaviors: a
systematic review of the global literature, AIDS Behav. 18 (2014) 419441, http://
dx.doi.org/10.1007/s10461-013-0561-6.
[49] H. Rendina, M. Brett, J. Parsons, The critical role of internalized HIV-related stigma
in the daily negative aective experiences of HIV-positive gay and bisexual men, J.
Aect. Disord. 227 (2018) 289297, http://dx.doi.org/10.1016/j.jad.2017.11.005.
[50] T. Rhodes, L. Cusick, Love and intimacy in relationship risk management: HIV
positive people and their sexual partners, Sociol. Health Illn. 22 (2000) 126,
http://dx.doi.org/10.1111/1467-9566.00189.
[51] M. Rzeszutek, W. Oniszczenko, Association between social support and tempera-
ment and the intensity of PTSD symptoms in a sample of HIV-positives, Pol.
Psychol. Bull. 44 (2013) 431438, http://dx.doi.org/10.2478/ppb-2013-0046.
[52] M. Rzeszutek, W. Oniszczenko, E. Firląg-Burkacka, Gender dierences in post-
traumatic stress symptoms and the level of posttraumatic growth among a Polish
sample of HIV-positive individuals, AIDS Care 28 (2016) 14111415, http://dx.doi.
org/10.1080/09540121.2016.1182615.
[53] D. Schachner, P. Shaver, O. Gillath, Attachment style and long-term singlehood,
Pers. Relat. 15 (2008) 479491, http://dx.doi.org/10.1111/j.1475-6811.2008.
00211.x.
[54] U. Scholz, M. Kliegel, A. Łuszczyńska, N. Knoll, Associations between received so-
cial support and positive and negative aect: evidence for age dierences from a
daily-diary study, Eur. J. Ageing 27 (2012) 361371, http://dx.doi.org/10.1007/
s10433-012-0236-6.
[55] U. Schulz, R. Schwarzer, Soziale Unterstützung bei der Krankheitsbewältigung. Die
Berliner Social Support Skalen (BSSS), Diagnostica 49 (2003) 7382.
[56] C. Smith, R. Cook, P. Rohleder, A qualitative investigation into the HIV disclosure
process within an intimate partnership: The moment I realized that our relation-
ship was developing into something serious, I just had to tell him, Br. J. Health
Psychol. 22 (2016) 110127, http://dx.doi.org/10.1111/bjhp.12220.
[57] P. Theodore, R. Durán, M. Antoni, I. Fernandez, Intimacy and sexual behavior
among HIV-positive men-who-have-sex-with-men in primary relationships, AIDS
Behav. 8 (2004) 321331, http://dx.doi.org/10.1023/B:AIBE.0000044079.
37158.a9.
[58] L. Warner, B. Schuz, S. Wurm, J. Ziegelmann, C. Tesch-Romer, Giving and ta-
kingdierential eects of providing, receiving and anticipating emotional support
on quality of life in adults with multiple illnesses, J. Health Psychol. 15 (2010)
660670, http://dx.doi.org/10.1177/1359105310368186.
[59] D. Watson, L. Clark, A. Tellegen, Development and validation of brief measures of
positive and negative aect. The PANAS Scales, J. Personal. Soc. Psychol. 54 (1988)
10631070 doi: 022-35l4/88/00.75.
[60] N. Bolger, A. Zuckerman, R. Kessler, Invisible Support and Adjustment to Stress, J.
Pers. Soc. Psychol. 79 (2000) 953961, http://dx.doi.org/10.1037//0022-3514.79.
6.953.
M. Rzeszutek, E. Gruszczyńska Journal of Psychosomatic Research 109 (2018) 25–31
31
... We also investigated whether the unexpected positive correlation between pretraumatic stress and prosocial behavior found in the pilot study can be replicated in a bigger and more representative sample. Based on existing evidence that, in certain situations, providing support has a greater effect on well-being than receiving support [85,86], we assumed that this effect would be observed in a study conducted on a bigger sample. Specifically, we expected that prosocial behavior in Wave 1 would negatively predict pretraumatic stress in Wave 2 and prosocial behavior in Wave 2 would negatively predict pretraumatic stress in Wave 3. Furthermore, we examined whether prosocial behavior and pretraumatic stress correlated with the perceived risk of COVID-19. ...
... This constatation is consistent with previous studies that emphasize the role of social connectedness for mental health [103]. Consistent with research from before the pandemic [85,86], the results also suggest that supporting others may be even more beneficial for mental health than receiving social support. ...
Article
Full-text available
Background Pretraumatic stress has the same symptoms as post-traumatic stress but instead pertains to anticipated threats. There is evidence that pretraumatic stress occurs among soldiers and pregnant people. Objective We analyzed correlates of pretraumatic stress concerning the threat of COVID-19 infection. Method Our pilot study was cross-sectional (N = 74); our main study was longitudinal and consisted of three waves (N = 1067, N = 894, and N = 752 for Waves 1, 2, and 3, respectively). Our pilot study used correlation and multiple linear regression. Our main study used quadratic regression and a random intercept cross-lagged panel model. Results The pilot study found that pretraumatic stress was positively correlated with agreeableness (r = .24, p < .01) and negatively correlated with emotional stability (r = -.30, p < .01) and intellect/imagination (r = -.37, p < .01). The main study demonstrated that pretraumatic stress was positively correlated with other measures of mental health problems during the COVID-19 pandemic and with perceived positive aspects of the pandemic (r = .11, p < .01). There is evidence of a U-shaped relationship between pretraumatic stress and perceived positive aspects of the pandemic. A random intercept cross-lagged panel model analysis demonstrated that pretraumatic stress in Wave 2 was negatively predicted by levels of prosocial behavior in Wave 1 (B = -1.130, p < .01). Conclusion Mental health professionals should take into account pretraumatic stress, not only as a possible consequence of the COVID-19 pandemic outbreak but more generally as a risk in situations that are new, difficult, and challenging for people.
... The total possible scores were 12-60, with a higher score indicating better perceived social support (Cronbach's alpha = 0.89). The scores were further categorized into low (12-27 scores), moderate (28-44 scores), and high (45-60 scores) perceived social support [40][41][42]. ...
... Regarding income, participants with a monthly income of US$300 or more were less likely to adhere to ART than those earning $100 and less. One of the possible explanations could be that, in Cambodia, ART is provided free of charge for everyone [40], and the government and NGOs target poorer and more vulnerable groups for non-clinical interventions. Hence, the higher income group might have fallen through the gap. ...
Article
Full-text available
Background: Understanding context-specific determinants of antiretroviral therapy (ART) adherence is crucial for developing tailored interventions for improving health outcomes and achieving the UNAIDS' third 95% target. This cross-sectional study explores factors associated with ART adherence among stable people living with HIV on ART in Cambodia. Methods: We used baseline survey data from a quasi-experimental study conducted in 2021. The participants were recruited from 20 ART clinics in nine provinces for face-to-face interviews. A structured questionnaire collected information on sociodemographic characteristics, ART adherence, perceived ART self-efficacy, mental health, quality of life, stigma, and discrimination. We conducted bivariate and multiple logistic regression analyses to identify factors associated with ART adherence. Results: Out of the 4101 participants, 86.5% reported adhering to ART in the past two months. The adjusted odds of ART adherence were significantly higher among participants in older age groups than those aged 15-29, participants with elevated cholesterol than those without it, participants who exhibited strong self-efficacy in health responsibility to maintain life than those with poor self-efficacy in health responsibility, participants who scored < 3 on the stigma and discrimination scale than those who scored ≥ 3, participants who scored ≥ 42 on the mental component of the quality-of-life scale than those who scored < 42. The adjusted odds of ART adherence were significantly lower in participants who earned > 301 USD per month than those who earned ≤ 100 USD per month. Conclusion: The ART adherence rate among stable people living with HIV in this study was comparable to that of the general people living with HIV in Cambodia. The results suggest the need for innovative interventions to further reduce stigma and discrimination and strategies to improve the self-efficacy and mental health of people living with HIV to improve ART adherence.
... found depression the most important predictor of poor treatment adherence (Gonzales et al., 2011;Rutakumwa et al., 2021), low health-related quality of life (Pérez-Chaparro et al., 2022;Rzeszutek & Gruszczyńska, 2018), faster HIV infection progression, and even increasing mortality in this patient group (Ickovicks et al., 2001;Namagga et al., 2021). However, the aetiology of depression is very complex, and various biological and psychosocial factors co-occur as risk factors in this clinical sample, including potentially terminal diagnosis (Filiatreau et al., 2022;Leserman, 2003), challenges with HIV disclosure and related HIV/AIDS stigma (Kiene et al., 2018;Zotova et al., 2022), and the burden of life-long treatment adherence and associated side-effects (Borran et al., 2021;Fumaz et al., 2005). ...
... What was observed, however, was that adequate social support may buffer the impact of HIV/AIDS stigma on poor emotional functioning of PLWH, including depression (e.g., Brown et al., 2022;Campbell et al., 2022;Smith et al., 2008;Qiao et al., 2014). Some authors provided evidence in line with the classical buffering hypothesis (Cohen & Wills, 1985), according to which perceived social support is a moderator of association between HIV-related distress (including stigma) and its various negative physical and psychological consequences This buffering effect may be further modified by other social factors, just like being in an intimate relationship (Rzeszutek & Gruszczyńska, 2018). Nevertheless, the majority of studies on social support among PLWH are also limited by various shortcomings, such as dominance of cross-sectional assessment and lack of differentiating between social support characteristics (Qiao et al., 2014). ...
Article
Full-text available
Background: This study has two objectives: first, to examine changes in depressive symptoms among people living with HIV (PLWH) during the COVID-19 pandemic and, second, to verify the role of HIV/AIDS stigma and perceived emotional support (PES) in the heterogeneity of these changes. Methods: The participants were 392 people with a medical diagnosis of HIV who have undergone antiretroviral therapy (ART). Depression was measured at three time points with six-month intervals using the Centre for Epidemiological Studies Depression Scale (CES-D). PES was evaluated with the Berlin Social Support Scales (BSSS), and HIV/AIDS-related stigma was assessed with the Berger HIV Stigma Scale (HSS). Results: Latent growth class modelling identified four trajectories of depression over the study period: three stable (very high, high, and very low) and one increasing. Both the very high and high stable trajectories had baseline values above the CES-D cut-off point for depression, suggesting that 57.6% of the sample was likely to be diagnosed with depression. After controlling for sociodemographic and clinical variables, stigma and PES were found to be significant covariates of the obtained trajectories; however, they did not protect against an increase in depression symptoms. Conclusion: There was no overall increase in depression symptoms among the PLWH participants during the pandemic, but this change in depression symptoms was heterogeneous. We observed the potential development of depression in initially well-functioning individuals despite their personal resources differing only slightly from those who remained resilient. This article is protected by copyright. All rights reserved.
... Some studies have found that perceived emotional support helps to buffer the negative impact of stigma on emotional well-being, although this effect is limited to specific periods and contexts, particularly during heightened stress, such as occurred during the early COVID-19 pandemic [33]. Other studies have shown that only provided support (not received support) buffers the negative effect of HIV-related stress, but this buffering effect is only present among those in intimate relationships, while single participants often experience detrimental effects [60]. Importantly, these studies have primarily collected data from PLWHs alone, without considering their partners' perspectives. ...
Article
Full-text available
Purpose Although HIV is likely to be a couple-based issue among serodiscordant male couples due to cross-partner transmission, little is known about how they cope with HIV as a team. This study aimed to examine the dyadic coping process among serodiscordant couples. Methods A dyadic daily diary study was used to answer our research questions. One hundred and forty-one Chinese HIV serodiscordant male couples completed measures of we-disease appraisal, common dyadic coping, quality of life, and relationship satisfaction for 14 consecutive days and ART adherence, attitudes toward PrEP, quality of life, and relationship satisfaction at a 2-month post-diary assessment. Computations were based on the common fate mediation model, using multilevel structural equation modeling. Results Regarding direct effect, we-disease appraisal was associated with both partners’ quality of life at the between-person level, post-diary quality of life, attitudes toward to PrEP, relationship satisfaction at both levels as well as post-diary relationship satisfaction. Common dyadic coping mediated the association between we-disease appraisal and both partners’ quality of life as well as relationship satisfaction at the within-person level. However, no mediating effects were observed at the between-person level. Conclusions Our findings highlighted the importance of the daily dyadic coping process among HIV serodiscordant couples. Future interventions should direct resources toward fostering a shared disease appraisal and training couples in common dyadic coping strategies for their daily lives.
... The marginally significant difference in the values of PTG, personal strength, and spiritual change in the EG in T2 can be explained by the fact that the protocol (13)(14) used as a reference in this study and applied to the EG was validated to only facilitate PTG in a population of women with non-metastatic cancer, a clinical condition that, in a way, can be thought of as limited to a temporal situation at a given time and not as a chronic disease such as HIV. It should be noted that the literature has shown that the development of PTG in people living with HIV can have different trajectories [39]. Thus, as some of the literature has shown, in a process of psychological adjustment, PTG can be understood from several perspectives (i.e., distressed, illusory, or constructive PTG) and trajectories [8,40]. ...
Article
Full-text available
Background: Research on post-traumatic growth (PTG) and HIV is scarce and the relationship between PTG and stigma is controversial. Group psychotherapeutic interventions to facilitate PTG in clinical samples are effective but none exist to simultaneously decrease stigma in the HIV population. The main objective was to evaluate the effectiveness of an intervention in increasing PTG and decreasing stigma in HIV, as well as to explore relationships between the variables. Methods: Quasi-experimental design with a sample of 42 HIV-positive adults (M = 46.26, SD = 11.90). The experimental group (EG) was subjected to a 9-week group intervention. Instruments: CBI, PTGI-X, PSS-10, HIV stigma, emotional expression, HIV stress indicators, HIV literacy, and skills. Multiple linear regression analysis was performed to assess the relationship between the variables. Results: There was an increase in PTG and a significant decrease in stigma in all domains and subscales in the EG. Compared to the control group, stigma (t(42) = −3.040, p = 0.004) and negative self-image (W = −2.937, p = 0.003) were significant, showing the efficacy of the intervention. Discussion: The intervention demonstrated success in facilitating PTG, attesting that in order to increase PTG, personal strength, and spiritual change, it is necessary to reduce stigma and negative self-image. The research provides more information on group interventions for PTG in HIV, relationships between variables, and population-specific knowledge for professionals.
... Numerous studies have found that people who have experienced traumatic events or are diagnosed with serious illnesses have shown moderate PTG scores. For example, victims of earthquakes have been found to show moderate PTG scores , and 60-90% of patients who have been diagnosed with serious illnesses including cancer (Casellas-Grau et al. 2017) and AIDS (Rzeszutek and Gruszczyńska 2018) reported experiencing perceived positive growth in response to their illness. ...
Article
Full-text available
During the Corona Virus Disease 2019 (COVID-19) pandemic, both high levels of post-traumatic stress and positive personal changes, a phenomenon known as post-traumatic growth (PTG), were experienced by some people. What remains unknown are the constructs and facilitators of PTG during the COVID-19 pandemic. Therefore, this study uses a grounded theory methodology to elucidate the behavioral and cognitional dimensions of PTG in Chi-nese college students. Twenty-four individual semi-structured interviews were conducted with Chinese college students who had positive experiences during the epidemic. Transcripts were analyzed using initial and focused coding to identify themes that explained the PTG model. The coding results revealed that the Chinese college students' PTG consisted of four core themes: reflections on the country and society, self-awareness changes, increased social behavior, and lifestyle modifications. Additionally, participants described external factors such as information input and patriotism, which were identified as influencing their PTG during the pandemic. Findings from this study extend prior theory and research by conceptualizing a novel theoretical model for PTG among college students during the pandemic and provide important implications for research and practice.
... Research shows that this kind of growth is reflected in self-perception, interpersonal relationships, and general philosophy and attitude toward life (Tedeschi et al., 2014). It shows up for example in people who are dealing with serious health problems such as cancer (Casellas-Grau et al., 2017), HIV (Rzeszutek and Gruszczyńska, 2018). Gábor Maté, who became aware of an interesting fact while working in a palliative care ward, also reflects on this kind of growth after overcoming trauma. ...
Article
Full-text available
Introduction The results indicate that post-traumatic growth does indeed occur after overcoming the severe form of COVID-19. It suggests that this posttraumatic growth most often occurred through a reassessment of priorities and an appreciation of life itself and loved ones. COVID-19 disease has been one of the most discussed and researched topics for several years, as it dramatically affects everyone’s daily life. Methods The qualitative study presented here focuses on health psychology, especially post-traumatic growth after overcoming a severe form of the COVID-19 disease. We worked with adult people who had either been treated in the intensive care unit or had been hospitalized with severe pneumonia. Results Thematic analysis was used to determine categories and subcategories. The study presented here contributes to knowledge about the COVID-19 experience by mapping a Slovakian sample of adult participants. Discussion The results obtained by Thematic analysis help us better understand how people experience the disease, especially those who have overcome a severe form of the disease and thus had a borderline experience when their lives were directly threatened, as well as their overall health.
... It is frequently observed in survivors of fatal diseases like cancer or HIV. [7][8] In general, as metaanalysis has shown, 50-60% of people exposed to trauma may develop PTG in some domains. 9 It was found that turning the focus toward the solution of the problem and controlling negative emotions and remembering the positive part of life (characteristics of adaptive coping) can yield positive changes in life and leads the person toward more growth and less poor health. ...
Article
Full-text available
Background: The global impact of the COVID-19 pandemic has highlighted psychological challenges faced by survivors. Amidst these challenges, the insightful understanding of the factors contributing to post-traumatic growth takes on significance. Objective: To investigate the mediating role of adaptive coping between attachment to God and post traumatic growth in COVID survivors. Study type, settings & duration: A descriptive cross-sectional web-based study was conducted at the
Article
We examined the mediating role of depression and anxiety on the relationship between fear of disease progression (FoP) and antiretroviral therapy (ART) adherence and the moderating role of social support in the FoP-depression/anxiety-ART adherence relationship in persons with HIV/AIDS (PWHA). 202 PWHA completed self-report measures. Simple mediation and moderated mediation analyses were performed. FoP was directly and negatively associated with ART adherence, and the mediating role of depression in this relationship was significant. Indirect effect of FoP mediated by anxiety on ART adherence was not significant. The moderating effect of social support was significant in the FoP-depression pathway, while the indirect effect of FoP on ART adherence mediated by depression was greatest at a higher level of social support and lower level of FoP. The results suggest the relevance of high FoP and depression-mediated FoP in ART adherence and social support may attenuate the negative impact of FoP.
Article
Full-text available
This study of university students (64 men and 99 women) examined both dispositional and situational influences of self-critical (SC) perfectionism on stress and coping, which explain its association with high negative affect and low positive affect. Participants completed questionnaires at the end of the day for 7 consecutive days. Structural equation modeling indicated that the relation between SC perfectionism and daily affect could be explained by several maladaptive tendencies associated with SC perfectionism (e.g., hassles, avoidant coping, low perceived social support). Multilevel modeling indicated that SC perfectionists were emotionally reactive to stressors that imply possible failure, loss of control, and criticism from others. As well, certain coping strategies (e.g., problem-focused coping) were ineffective for high-SC perfectionists relative to low-SC perfectionists.
Article
Full-text available
Background: Research suggests that HIV stigma exerts a detrimental impact on the mental health of HIV-positive gay and bisexual men (GBM). We sought to better understand these processes by examining two forms of HIV stigma (i.e., anticipated and internalized) at two levels (i.e., individual and situational) in association with daily negative affective experiences. Methods: We conducted a 21-day twice-daily ecological momentary assessment study of 51 HIV-positive GBM. Twice-daily stigma measures were disaggregated into individual-level averages and situational fluctuations, and we utilized multilevel models to examine both concurrent and time-lagged effects of HIV stigma on anxious affect, depressed affect, anger, fatigue, and emotion dysregulation. Results: Situational experiences of internalized HIV stigma were associated with increased levels of anxious and depressed affect, anger, and emotion dysregulation in both concurrent and time-lagged analyses. Situational experiences of anticipated HIV stigma were only associated with anger and only within concurrent analyses. Individual-level internalized HIV stigma was associated with anxious affect and emotion dysregulation in both concurrent and time-lagged models, and with depressed affect and fatigue in time-lagged models. Limitations: The small and high-risk sample limits generalizability and results should be replicated in larger and more diverse samples. Conclusions: These findings suggest that, independent of the effects of individual-level stigma, situational experiences of internalized HIV stigma are associated with increases in event-level negative affective experiences. A combination of individually-delivered and mobile interventions may be successful at reducing the impact of internalized HIV stigma on negative affect and emotion dysregulation.
Article
Full-text available
Stressful life events and daily hassles affect people living with HIV (PLWH). However, capturing stress-related events and cognitive impairment is often plagued with recall biases. Incorporating reliable information technology, such as mobile phones, can be a resourceful method for measuring health behaviors (MHB). We report findings from an MHB pilot study with 32 African American, Latino/Hispanic, and White PLWH from Los Angeles. Participants reported perceived stressors in their daily routines using a smartphone Ecological Momentary Assessment (EMA) application. Participants self-initiated in-the-moment stressful events reports for up to 6 weeks. Stressful event EMAs queried perceived stress levels (1-10 scale) and open-ended text descriptions. Qualitative analysis of participant text responses was completed using grounded thematic coding. Participants reported multiple stressors in their daily routines, impacting activities of daily living or daily functioning. Eliciting input from PLWH via EMA in real-time is a novel approach for assessing and identifying sources of stress.
Article
Full-text available
Background: The aim of the study was to examine the cross-sectional and longitudinal effects of provided and received support on older adults' subjective well-being (positive affect and depression) and to examine whether being a recipient of institutional care moderates these effects. Methods: Social support (provided and received), positive affect, and depressive symptoms were assessed twice (at baseline and 1 month later) for 277 older adults (age 77.39 ± 9.20 years, 67.50% women, 65% residents of an institutional care facility). Findings: Two structural equation models were analyzed: cross-sectional (at baseline) and longitudinal (after 1 month). The first model revealed a significant positive relationship between providing and receiving support and positive affect, and a negative relationship between receiving support and depression. However, being a recipient of institutional care appeared to be a significant moderator in the longitudinal model. Specifically, the findings indicated effects of both providing and receiving support on positive affect but only for noninstitutionalized older adults. Discussion: Although both types of support may be beneficial for older adults, their effects depend on the nature of social exchange and the dimensions of well-being. This suggests that such factors should be systematically investigated in future research.
Article
Full-text available
The main goal of the current study was to investigate gender differences in the relationship between the level of posttraumatic stress symptoms (PTSSs) and the intensity of posttraumatic growth (PTG), treated as the explained variable, among a Polish sample of HIV-positive individuals (n = 250) while controlling for participants’ ages and time since HIV diagnosis. The level of PTG was measured using the Polish adaptation of the Posttraumatic Growth Inventory. The level of PTSSs was assessed using the PTSD Factorial Version Inventory. HIV-positive women scored higher for some PTSSs (intrusion/arousal) and for a particular PTG dimension (spiritual change). In addition, the PTSSs that occurred were negatively related to the PTG level but only among HIV-positive women. Given the important health-related benefits associated with PTG among HIV-positive people, it is vital to shape competencies for effective growth promotion among these individuals, taking into account gender differences within this phenomenon.
Article
Full-text available
Racial homophily (partnering with those of the same race) has been suggested as contributing to racial disparities in HIV among gay and bisexual men (GBM). Using a daily diary study, we examined racial homophily and its role in anal sexual behaviors in a sample of highly sexually active Black, White, and Latino GBM (N = 294, n = 3107 sexual events). In general, (1) men tended to partner with others of the same race, (2) HIV was more prevalent among men of color, and (3) race acted independent of whether one would engage in behaviors that would put them at highest risk for transmitting HIV (i.e., no main or interaction effects for insertive condomless anal sex (CAS) among HIV-positive men, and no main or interaction effects for receptive CAS among HIV-negative men). There were some main and interactive effects observed for lower risk behaviors (receptive CAS among HIV-positive men and insertive CAS among HIV-negative). Our findings suggest that racial disparities in HIV may be due to a higher exposure frequency (i.e., the frequency with which one comes into contact with a partner where a transmission could occur). However, men were also less likely to have anal sex when having sex with someone of the same race-a finding that works against the premise of higher exposure frequency. Future researchers should examine both racial homophily as well as variation in sexual behavior based on same-race or different-race partnerships.
Article
Full-text available
Approximately 30 million people currently live with HIV worldwide and the incidence of stress-related disorders, such as post-traumatic stress disorder (PTSD), is elevated among people living with HIV as compared to those living without the virus. PTSD is a severely debilitating, stress-related psychiatric illness associated with trauma exposure. Patients with PTSD experience intrusive and fearful memories as well as flashbacks and nightmares of the traumatic event(s) for much of their lives, may avoid other people, and may be constantly on guard for new negative experiences. This review will delineate the information available to date regarding the comorbidity of PTSD and HIV and discuss the biological mechanisms which may contribute to the co-existence, and potential interaction of, these two disorders. Both HIV and PTSD are linked to altered neurobiology within areas of the brain involved in the startle response and altered function of the hypothalamic-pituitary-adrenal axis. Collectively, the data highlighted suggest that PTSD and HIV are more likely to actively interact than to simply co-exist within the same individual. Multi-faceted interactions between PTSD and HIV have the potential to alter response to treatment for either independent disorder. Therefore, it is of great importance to advance the understanding of the neurobiological substrates that are altered in comorbid PTSD and HIV such that the most efficacious treatments can be administered to improve both mental and physical health and reduce the spread of HIV.
Article
Objectives: This study sought to elucidate the process through which people living with HIV (PLWH) in the United Kingdom disclose their status to an intimate partner (IP). Design: A qualitative cross-sectional survey design was used. Method: A total of 95 PLWH took part. They were presented with a series of open-ended questions enquiring into their last experience of disclosing to an IP. The data were analysed using thematic analysis. Results: Disclosure became a salient issue when the discloser acknowledged their relationship as meaningful. A decision to tell was mostly made to build a foundation for the evolving relationship. Once the decision was made, it was enacted via one of two mechanisms (self-initiated or opportunistic) and partners' reported reactions fell within one of four main reaction types. In the long-term for couples who remained together, disclosure was understood to have brought them closer. However, for both those whose relationships remained intact, and for those whose relationship had since broken down, sexual difficulties associated with being in a sero-discordant partnership pervaded. At a personal level, the experience resulted in increased confidence in living with the diagnosis, and an increased sense of disclosure mastery. Conclusions: Disclosure is a highly nuanced process. In particular, it was found to be largely characterized by the IP relational context in which it was occurring. The clinical and theoretical implications of these findings are discussed. In particular, these findings highlight a need for the provision of long-term support to PLWH in negotiating their relationships throughout the process. Statement of contribution What is already known on this subject? Disclosing a HIV+ status to an intimate partner (IP) is key in addressing the global HIV epidemic, social stigma, and the psychological and physical well-being of people living with the condition. It is increasingly recognized that HIV disclosure is a process, rather than an event. Researchers have begun to initiate a line of research into a process-based theoretical account of disclosure. What does this study add? This study provided a nuanced account of the disclosure process within an IP relationship. The process was found to be largely influenced by the discloser's subjective experience of the intimate partnership. The findings point to a need for a disclosure intervention that supports couples more longitudinally, particularly in negotiating the emotional and sexual difficulties that often arise upon disclosing.
Article
The prevalence of negative life events (NLE) and daily hassles, and their direct and moderated associations with depression, were examined among HIV-infected adolescents. Specifically, we examined whether the negative association with depression of NLE, daily hassles, and/or passive coping were moderated by social support or active coping strategies. Demographic characteristics, depression, coping, social support, NLE, and daily hassles were collected at baseline as part of the Adolescent Impact intervention via face-to-face and computer-assisted interviews. Of 166 HIV-infected adolescents, 53% were female, 72.9% black, 59.6% with perinatally acquired HIV (PIY), the most commonly reported NLE were death in family (81%), violence exposure (68%), school relocation (67%), and hospitalization (61%); and for daily hassles "not having enough money (65%)". Behaviorally infected youth (BIY - acquired HIV later in life) were significantly more likely to experience extensive (14-21) lifetime NLE (38.8% vs. 16.3%, p < .012) than PIY. In multiple stepwise regression analysis, the model accounting for the greatest variability in depression scores (32%) included (in order of entry): daily hassles, low social support, behaviorally acquired HIV, minority sexual orientation, and passive coping. A significant passive coping-by-social support interaction revealed that the association between passive coping and depression was exacerbated when social support was low. Social support moderated the effect of NLE, such that NLE were associated with greater depression when social support was low, although the effect did not remain statistically significant when main effects of other variables were accounted for. Daily hassles, poor coping, and limited social support can adversely affect the psychological well-being of HIV-infected adolescents, particularly sexual minority youth with behaviorally acquired HIV. Multimodal interventions that enhance social support and teach adaptive coping skills may help youth cope with environmental stresses and improve mental health outcomes.