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A Case Study: Palliative Care for Assisted Living Community Residents

Authors:
Phyllis Gaspar
Phyllis Gaspar
Rebecca Bass
Rebecca Bass
Rebecca Bass
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Hutch Walch
Hutch Walch
Hutch Walch
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Katie Westberg
Katie Westberg
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Reference values of the Functional Assessment of Chronic Illness Therapy-Spiritual Well-Being: A report from the American Cancer Society's studies of cancer survivors: Reference Values for the FACIT-Sp-12
Article
Background: Health-related quality of life measures are common in oncology research, trials, and practice. Spiritual well-being has emerged as an important aspect of health-related quality of life and the Functional Assessment of Chronic Illness Therapy-Spiritual Well-Being; The 12-item Spiritual Well-Being Scale (FACIT-Sp-12) is the most widely used measure of spiritual well-being among those with cancer. However, there is an absence of reference values with which to facilitate the interpretation of scores in research and clinical practice. The objective of the current study was to provide FACIT-Sp-12 reference values from a representative sample of adult cancer survivors. Methods: As part of the American Cancer Society's Study of Cancer Survivors-II, a national cross-sectional study of cancer survivors (8864 survivors) completed questionnaires assessing demographic characteristics, clinical information, and the FACIT-Sp-12. Scores were calculated and summarized by FACIT-Sp-12 subscale and total scores across age, sex, race/ethnicity, time after treatment, and cancer type. Results: Student t tests for independent samples found that women reported significantly higher FACIT-Sp-12 scores (P<.001). Analyses of variance found significant main effects for FACIT-Sp-12 scores by age (P<.01), race/ethnicity (P<.05), and cancer type (P<.001). Post hoc comparisons revealed that older adults (those aged 60-69 years and 70-79 years) and black non-Hispanic individuals reported the highest FACIT-Sp-12 scores compared with those aged 18 to 39 years (P<.05; Cohen d [an effect size used to indicate the standardized difference between 2 means], 0.20-0.50) and white non-Hispanic individuals (P<.05; Cohen d, 0.02-0.62), respectively. All other significant main effects were small in magnitude (effect size range, 0.001-0.032). Conclusions: These data will aid in the interpretation of the magnitude and meaning of FACIT-Sp-12 scores, and allow for comparisons of scores across studies.
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Improving Care for People with Serious Illness through Innovative Payer-Provider Partnerships: A Palliative Care Toolkit and Resource Guide
  • Jan 2014
  • 1-40
CAPC (2014) Improving Care for People with Serious Illness through Innovative Payer-Provider Partnerships: A Palliative Care Toolkit and Resource Guide. Center to Advance Palliative Care, USA, p. 1-40.
A Spiritual Well-Being Guideline Revitalizes Assisted Living Residents: There Are a Million Stories to Tell and There Are Just as Many Interventions to Explore
  • Jan 2017
  • H Walch
  • P M Gaspar
  • K Westberg
Walch H, Gaspar PM, Westberg K (2017) A Spiritual Well-Being Guideline Revitalizes Assisted Living Residents: There Are a Million Stories to Tell and There Are Just as Many Interventions to Explore.
A spiritual well-being guideline revitalizes assisted living residents: there are a million stories to tell and there are just as many interventions to explore. HealthCare Chaplaincy's Caring for the Human Spirit Magazine
  • H Walch
  • P M Gaspar
  • K Westberg
Walch H, Gaspar PM, Westberg K. A spiritual well-being guideline revitalizes assisted living residents: there are a million stories to tell and there are just as many interventions to explore. HealthCare Chaplaincy's Caring for the Human Spirit Magazine. 2017;4(1):20-21.