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Mental health of unaccompanied refugee minors during the
asylum process: an observational cohort study
Journal:
BMJ Open
Manuscript ID
bmjopen-2016-015157
Article Type:
Research
Date Submitted by the Author:
17-Nov-2016
Complete List of Authors:
Jakobsen, Marianne; Norwegian Centre for Violence and Traumatic Stress
Studies,
Meyer DeMott, Melinda; Norwegian Centre for Violence and Traumatic
Sress Studies
Wentzel-Larsen, Tore; Norwegian Centre of Violence and Traumatic Stress
Studies,
Heir, Trond; Norwegian Centre for Violence and Traumatic Stress Studies;
University of Oslo, Institute of Clinical Medicine
<b>Primary Subject
Heading</b>:
Public health
Secondary Subject Heading:
Mental health
Keywords:
Refugee, Adolescent, Unaccompanied minor, Follow-up study, Norway
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Mental health of unaccompanied refugee minors during the
asylum process: an observational cohort study
Authors: Marianne Jakobsen
1*
, Melinda A. Meyer DeMott
1
, Tore Wentzel-Larsen
1,3
&
Trond Heir
1,2
1
Norwegian Centre for Violence and Traumatic Stress Studies.
2
Institute of Clinical Medicine, Faculty of Medicine, University of Oslo, Norway.
3
Regional Center for Child and Adolescent Mental Health, Eastern and Southern Norway.
*
Correspondence to: Marianne Jakobsen, Norwegian Centre for Violence and Traumatic
Stress Studies, NCVTSS, Pb 181 Nydalen, 0409 Oslo, Norway
Email:marianne.jakobsen@nkvts.no
Word count: 3503
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ABSTRACT
Objectives: To examine the mental health of unaccompanied refugee minors (UM)
prospectively during the asylum-seeking process, with a focus on specific stages in the
asylum-process, such as age assessment, placement in a supportive or non-supportive facility,
and final decision on the asylum applications.
Design: A two and a half year follow-up study of UM seeking asylum in Norway. Data were
collected within three weeks (n=138), and at 4 months (n=101), 15 months (n=84) and 26
months (n=69) after arrival.
Setting: Initially in an observation and orientation centre for unaccompanied asylum-seeking
adolescents, and subsequently wherever the UM were located in other refugee-facilities in
Norway.
Participants: Male UM from Afghanistan, Somalia and Iran, with self-reported age 15-18.
Main outcome measures: Mental health symptoms assessed by Hopkins Symptom
Checklist-25, and Harvard Trauma Questionnaire.
Results: At the group level the young asylum seekers reported high levels of psychological
distress on arrival, and symptom levels that stayed relatively unchanged over time.
According to age-assessment procedures 56% of the population was not recognized as minors.
Subsequent placement in a low- support facility was associated with higher levels of
psychological distress in the follow-up period. Those who were placed in a reception centre
for adults had higher levels of psychological distress symptoms both after 15 months and 26
months compared to the remaining participants who were placed in reception centers for
youth. Refusal of asylum was highly associated with higher levels of psychological distress.
Conclusions: Mental health trajectory of young asylum-seekers appears to be negatively
affected by low support and refusal of asylum.
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Strenghts and limitations of this study.
x.Strengths include a longitudinal design, with first assessment within three weeks after
arrival to the host country, and repeated measures.
x. Use of computer-based assessment with audio-translations throughout the study.
x.Selection of participants was limited to the most common nationality groups arriving in
Norway at the time of inclusion.
x.High attrition rate due to the fact that asylum seekers tend to move between and within
countries, and that many were told to leave the country.
INTRODUCTION
In 2015 more than 88 700 unaccompanied minors (UM) fled to Europe
1
, putting considerable
pressure on these countries to provide the necessary resources needed. Separated children that
are no longer protected by parents or other caregivers, usually have to be under the age of 18
in order to be given the special protection and care that is granted unaccompanied refugee
minors. In the countries of origin for UM the civil registration service of their country often
function poorly, and birth certificates can be lost, thrown away or falsified.
2
The scientific
basis for assessing age is controversial, in that these tests only determine physical maturity,
and are most uncertain from the age of 15 to 21, where natural variation is at its greatest.
3
The
consequences for many young asylum seekers assessed to be 18 years or older is that they will
no longer be considered as minors, and therefore not receive special protection in accordance
with the United Nations.
2
Most studies investigating UM mental health have a cross-sectional design with a selection of
youths with different levels of legal recognition and different durations of time in exile.
4
These studies show consistently that individual factors such as exposure to violence and other
traumatic events prior to migration, correspond to elevated symptoms of psychological
distress.
5
In some studies the negative effects of exile related stressors are also described
6
, yet
they focus on youths with varying time in exile. There are different asylum-procedures within
the different countries
7
, and most UM endure some uncertainty before their legal status is
defined. Most countries provide some form of shelter for UM while they are waiting for their
case to be processed, but conditions vary greatly. Positive health effects have been shown to
be associated with receiving a permanent residence permit
8
, but this process may take months
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and sometimes years. The impact of different levels of social support that UM are offered,
especially after the first stage of reception and registration, have not been studied in detail.
9
The aim of our study was to examine UM`s mental health during the asylum-seeking process,
and more specifically whether the official age assessed, level of support, and the outcome of
the asylum application were associated with UM`s mental health at different stages of the
asylum seeking process.
METHODS
Participants and procedures
The sample in this study was a male convenience sample recruited from an observation and
orientation centre for unaccompanied asylum-seeking adolescents between ages 15 and 18
years, which was the only one in Norway at this time. In this reception centre, all UMs who
claimed to be in this age group stayed for the first weeks while asylum interviews and age-
assessment procedures were performed. A research assistant kept track of all new arrivals, and
each time our testing capacity allowed us to include some new participants, she was instructed
to invite the ones who had arrived most recently. The study was conducted between
September 2009 and March 2011. Altogether, the inclusion periods for this project were 12
weeks in 2009, 8 weeks in 2010, and 21 weeks in 2011. During these time periods young
asylum seekers came mainly from Afghanistan and Somalia. According to the statistics unit at
the Norwegian Directorate of Immigration, 406 male UM from these language groups arrived
in Norway during the inclusion periods. Unaccompanied males with self-reported age of 15 to
18, that had just arrived, were contacted by the research assistant. Altogether, 216
adolescents were asked to participate, and 209 returned the informed consent and attended the
study. Some participants were included in an Expressive Arts intervention group (n=71), that
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is not part of the present study. The remaining 138 are the focus of this article. More about the
whole project can be found on our home pages
10
.
Information to participants included statements that participation would not impact the
chances to stay in the country. Only one contact attempt was made for each individual, and no
payment was offered.
Participants followed the normal procedures in the asylum process. In Norway all UMs
receive assistance from a multi-disciplinary professional staff (educators, social workers,
psychologists, physicians, and nurses) in the first reception centre while waiting for their
“official-age” to be assigned. Those defined as 18 or older can be moved to adult housing
where less professional assistance is provided. The asylum-seekers considered to be from 15
to 18 years are moved to specialized youth centres, with staff available 24 hours, every day.
The youngest children stay in even more specialized orphanages. There are some exceptions
to this pattern, according to variable housing capacity some 18-year old asylum-seekers are
allowed to stay in the youth centres for some time. The youth centres are located all over
Norway, and have language classes for all inhabitants. Food is prepared and served by the
staff, and there are staff members available day and night. Most centres have recreational
activities, and they give individualised support and medical follow-up if needed. In an adult
centre, the asylum-seekers are left to themselves most of the time. They buy and cook their
own food, have no school or other scheduled activities, and have no guardians or staff
members to ask for advice.
The first screening procedure was conducted within the first three weeks, and later repeated at
4 months (n=101), 15 months (n=84) and 26 months (n=69) after arrival. At the last
assessment the population was almost halved, mainly because many of the informants were
transported out of the country, or had disappeared from the different living facilities.
Measures
Demographic data was registered with the aid of interpreters at the initial assessment. We
asked for self-reported age, literacy, years of school attendance, and whether their parents
were still alive, deceased, or if participants had lost touch with their parents and did not know.
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Later we registered the results of official age-assessments, especially which participants who
were thought to be at least 18 years of age. We also determined the level of care offered
according to placement in asylum centres for either adults or for youth. Before the last
assessment we registered the legal status, as participants were either given time-limited or
permanent permission to stay, or were refused legal residence in the country.
Exposure
Serious Life Events checklist (SLE), was developed by Tammy Bean and colleagues
11
in
order to assess if an adolescent meet the criteria A1 (experienced a traumatic event) in the
DSM-IV, for a diagnosis of PTSD. It is a self-report questionnaire which asks whether or not
the participant has experienced twelve different kinds of traumatic events, such as separation
from family, natural disaster, war and physical or sexual abuse. The instrument was scored by
answering yes or no on each item.
Psychological distress
Hopkins Symptom Checklist-25 (HSCL-25)
12
is a self-administered questionnaire designed to
measure anxiety and depression. It has been validated in various clinical and community
samples.
13,14
The HSCL-37 A version is an extension of the HSCL-25, and has also been
applied in a number of refugee studies with minors.
15,16
The additional 12 items measuring
externalizing behavior are not included in this paper. Each item was scored with 1 (not
bothered) to 4 (extremely bothered).
Post Traumatic Symptom Score (PTSS)
The Harvard Trauma Questionnaire
17
is a comprehensive instrument that was developed to
assess potentially traumatic experiences and post-traumatic symptoms in various cultural
contexts. Its psychometric properties were first established in a highly traumatized, clinical
population, but it has also been evaluated with a larger community sample, and with asylum
seeking adolescents
6, 18
. The HTQ part IV, comprises 30 symptom items, among which the
first 16 items measure “The symptoms of PTSD” according to the DSM–IV.
19
These 16 items
are scored with 1 (not at all) to 4 (extremely).
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Computer-based assessment
The chosen psychometric measurements were combined into a single questionnaire using the
program MultiCASI
20
. The questionnaires were filled in by the participants themselves, in
their native languages, Dari, Pashto, Farsi or Somali, using laptops with touch-screen function.
Translations had been attained from earlier projects, and were controlled by independent,
native speaking, interpreters before they were added to the questionnaire. The items appeared
one after the other on the screen, together with answering alternatives. All text had a sound-
file connected to it that started as soon as the item appeared on the screen. The test could be
used with any level of reading competence, and the sound of each item could be activated by
touch, as many times as necessary. Items could be skipped and left unanswered, but would
then be repeated once more towards the end of the questionnaire. The first introduction to the
computer based self-screening was done shortly after arrival, with one language group at the
time. An interpreter was present together with maximum five participants, as they were
instructed in how to use the touch screen. They were encouraged to ask clarifying questions as
they went on with answering the items, all in the same room, with earphones on, in order not
to disturb each other. During the following waves of data collection the same questionnaire
was used and translating services were not necessary. The results were transported digitally to
the SPSS files.
Data analysis
Differences in HSCL and PTSS between 0, 4, 15 and 26 months were assessed by linear
mixed effects models by categorical time, including an inter-individual random effect.
Relationships between HSCL, and PTSS at each time point 4 months and characteristics
known at that time point were assessed by unadjusted and linear regression. Specifically,
covariates were being literate, parents deceased, number of adverse events and age assessed as
18 years at 4 months. At 15 months, being placed in a reception center for adults or youth,
was included, and at 26 months also asylum status; permanent, time limited or refusal of
asylum. Nonresponse analysis during follow up (4 to 26 months) used a generalized
estimating equations (GEE) logistic regression by time and baseline HSCL score, reading
ability, category for parents alive and number of serious life events. For descriptive analyses
we used the SPSS version 22 for Windows. Beyond this, data was analyzed using R (The R
Foundation for Statistical Computing, Vienna, Austria) with the R package nlme for mixed
effects models and gee for GEE analyses
21
.
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Table 1. Baseline characteristics of male unaccompanied refugee minors at arrival in Norway. Figures
are given as number (%) when others not specified.
N = 138
Age, self-reported
Mean years (SD)
Range
16.22 (0.84)
15 - 18
Age, assessed by authorities
Mean years(SD)
Range
18.22 (2.27)
15 - 28
Nationality
Afghan
Somalian
Iranian
102 (73.9)
32 (23.2)
4 (2.9)
Literacy, self-reported 50 (36.8)
Loss of parent
Father
Mother
Both
Unknown
85(62.9)
29(21.5)
25(18.5)
16(11.9)
Psychological distress (N=199)
Mean HSCL (SD)
Caseness (n>2.0)
2.03 (0.58)
92 (46.2)
Posttraumatic stress (N=198)
Mean PTSS (SD)
Caseness (n>2.0)
2.19 (0.58)
130 (64.4)
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Results
Three fourths of the population came from Afghanistan, while the remaining came from
Somalia and Iran (table 1). There were no significant differences between the countries of
origin and the variables included in this article. A minority (36%) were able to read in their
own language. Mean number of serious life-time events experienced was 6.3 (SD 2.3), range
1-11. Most of the participants (96%) had experienced at least one of the serious life events
listed. The most frequently reported experiences were life threatening events (82%), physical
abuse (78%), and loss of a close relative (78%). The official age assessment found a mean age
of 18.4 years (SD 2.4), range 15-28, which meant that 72 (56%) participants were considered
to be adults. Of this “adult”group, 36 participants were allowed to stay at the care centres for
adolescents, while the rest had to move to centres for adults. None of the participants received
psychiatric treatment during the study.Overall there were no significant changes in the level
of symptoms within the study period (p≥.084), neither for HSCL(Table 2) nor for PTSS.
Table 2. Mixed effect coefficients (MEC) for time modelling the course of psychological distress (HSCL)
and posttraumatic stress (PTSS) in unaccompanied refugee minors after arrival in host country.
HSCL
PTSS
MEC
95% CI
MEC
95% CI
Time
.136
.725
4 mo vs 0 mo
0.04
-
0.09, 0.16
.557
0.02
-
0.
12, 0.15
.811
15 mo vs 0 mo
0.14
0.01,0.27
.037
0.03
-
0.11, 0.17
.671
26 mo vs 0 mo
-
0.02
-
0.16, 0.13
.831
-
0.06
-
0.21, 0.09
.441
HSCL : Hopkins symptom checklist
PTSS : Posttraumatic stress symptom checklist
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Tables 3-5 show the associations between variables of interest, and symptoms of
psychological distress at different test points. Outcome of age assessment, which was known
shortly after the first assessment, had no significant association with psychological distress at
4 months (table 3). However, those who were estimated to be 18 years or older, had higher
levels of symptoms at 15 months (table 4) and at 26 months (table 5), but not when adjusted
for the outcome of the asylum-applications at the 26 month assessment.
Table 3. Regression coefficients for literacy, pre-migration bereavement, serious life-events and post-
migration age assessment, related to course of psychological distress (HSCL) in young male asylum
seekers 4 months after arrival in host country; unadjusted and adjusted results.
Unadjusted
Adjusted
Coef. 95% CI P Coef. 95% CI P
Being literate 0.348 0.115,0.581 .004
0.262
0.006, 0.518
.045
Parents deceased
Unknown vs both alive
One dead vs both alive
Both dead vs both alive
0.175
0.146
-0.172
-0.232,0.581
-0.166,0.457
-0.564,0.219
.245
.396
.355
.384
0.146
0.182
-0.053
-0.254, 0.545
-0.119, 0.483
-0.442, 0.337
.457
.472
.234
Adverse events
0.066
0.015,0.116
.012
0.046
-
0.006, 0.098
.084
Age assessed ≥18 years 0.126 -0.118,0.370
.308
0.068 -0.191, 0.326
.604
HSCL: Hopkins symptom checklist
Adjusted for whether subjects participated in initial 5 week expressive arts group-intervention
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Table 4. Regression coefficients for literacy, pre-migration bereavement, serious life-events and post-
migration age assessment, in addition to asylum-seeker facilities, related to course of psychological distress
(HSCL) in young male asylum seekers 15 months after arrival in host country; unadjusted and adjusted
results.
Unadjusted
Adjusted
Coef.
95% CI
Coef.
95% CI
Being literate
0.054
-
0.
254,0.363
.727
0.008
-
0.296, 0.313
.957
Parents deceased
Unknown vs both alive
One dead vs both alive
Both dead vs both alive
0.240
0.253
0.581
-0.278,0.757
-0.141,0.646
0.097,1.065
.134
.359
.206
.019
0.346
0.317
0.626
-0.133, 0.825
-0.051, 0.684
0.157, 1.094
.073
.154
.090
.010
Adverse events
0.039
-
0.030,0.107
.262
0.054
-
0.010, 0.119
.099
Age
assessed
≥18 years
0.522
0.238,0.805
<0.001
0.375
0.058, 0.692
.021
Adult reception center
0.464
0.136,0.792
.006
0.354
0.
011, 0.695
.043
HSCL: Hopkins symptom checklist
Adjusted for whether subjects participated in initial 5 week expressive arts group-intervention
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Table 5. Regression coefficients for literacy, pre-migration bereavement, serious life-events and post-
migration age assessment, asylum-seeker facilities, in addition to asylum-status, related to course of
psychological distress (HSCL) in young male asylum seekers 26 months after arrival in host country;
unadjusted and adjusted results.
Unadjusted Adjusted
Coef.
95% CI
Coef.
95% CI
Being literate
0.025
-
0.
305,0.355
.881
-
0.040
-
0.322, 0.242
.777
Parents deceased
Unknown vs both alive
One dead vs both alive
Both dead vs both alive
0.591
0.261
0.670
0.021,1.162
-0.130,0.652
0.160,1.180
.043
.042
.187
.011
0.562
0.384
0.532
0.076, 1.047
0.049, 0.719
0.088, 0.976
.038
.024
.025
.020
Adverse events
-
0.059
-
0.126,
-
0.008
.083
-
0.041
-
0.097,0.016
.155
Age assessed ≥18 years
0.392
0.086
,0.
697
.013
-
0.070
-
0.428, 0.288
.696
Adult reception center
0.717
0.372,1.063
<.001
0.
272
-
0.169,0.712
.222
Asylum status
(vs acceptance)
Time-limited asylum
Refusal of asylum
-0.035
0.787
-0.391,0.320
0.402,1.172
<.001
.844
<.001
-0.103
0.590
-0.498, 0.292
0.122, 1.059
.017
.602
.015
HSCL: Hopkins symptom checklist
Adjusted for whether subjects participated in initial 5 week expressive arts group-intervention
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One third of the participants were placed in a reception centre for adults. Figure 1 shows the
trajectories of psychological distress for participants placed in a reception centre for adults or
for youth. Those who were placed in a reception centre for adults had higher levels of
psychological distress symptoms both at 15 months (table 4) and 26 months (table 5)
compared to the remaining participants who were placed in reception centres for youth.
However, when adjusted for the outcome of the asylum application at the 26 month
assessment, the difference was not significant.
Final decision on the asylum claims was given between the last two test points. Refusal was
highly associated with higher levels of psychological distress. Achieving time limited
residence permission was not significantly different compared to permanent asylum (table 5).
Trajectories of psychological distress for those who received refusal or acceptance of their
asylum application are illustrated graphically in figure 2. Refusal was related to the official
determined age of the asylum seeker. Among the participants who were considered to be 18
or more, 52 out of 72(72.2%) were refused, compared to 15 out of 59(25.4%) among the
participants who were considered to be under 18 (7 missing).
The symptom scores of the PTSS (not illustrated in the tables) showed a similar association as
the HSCL-scores, with higher levels of PTSD-symptoms for those placed in a reception center
for adults at 15 months (adjusted difference 0.34, 95% CI 0.06 to 0.63, p=0.017), as well as
higher symptom scores for those who received a negative result for the asylum application at
26 months (adjusted difference 0.60, 95% CI 0.24 to 0.95, p=0.001).
Loss to follow-up was not significantly related to initial levels of distress. Also, none of the
baseline covariates were significantly related to nonresponse.
DISCUSSION
The present study is a follow-up of unaccompanied refugee minors with four waves of
assessment from within three weeks after arrival to more than two years spent in the host
country. At the group level the young asylum seekers reported high levels of psychological
distress on arrival, and symptom levels that stayed relatively unchanged over time. A low
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level of support during the asylum process and a negative outcome of the asylum application
were associated with higher levels of psychological distress.
Determination of the legal status of the asylum seekers involved age assessment procedures,
with x-rays and dental examinations for all participants in this study. This resulted in a
considerable gap between self reported age and the official age estimates designated by the
immigration authorities. On the basis of these examinations 55% of the asylum seekers were
considered to be at least the age of 18, and thus did not achieve a UM status. They risked
being moved to a facility for adults, with low levels of support and care, and limited access to
education and leisure activities. Also, the likelihood of being granted asylum was related to
age, as illustrated by the numbers of children and adults in our study who got refusal of their
claims.
The results from our study is in agreement with other studies that have found that high-
support housing, with sufficient supervision, was associated with lower levels of
psychological symptoms
5
. Others have also described problems directly connected to the
asylum process, and have registered them as components in a list of post-migration stressors
9
.
A weakness with most of these studies, are cross-sectional designs where there are no base-
line measurements. Only a few studies have repeated assessments
6
where problems directly
connected to the asylum process, such as age-assessment procedures, lack of adequate
housing, low support, etc., have been evaluated. The complexity of factors contributing to the
increasing health risk, make it difficult to draw specific conclusions within the total burden of
stressors.
In all studies with UM, it is likely that there will be some uncertainty concerning the
participants’ true chronological age
3
. Defined to be overage, in the present study, was not
significantly related to the symptom scores at the 4 month assessment, and there was no
indication that this process was stressful in itself. The age designated by the authorities,
determined what type of housing and level of care that was offered during the remaining
asylum-procedure. This meant that many of the participants had to live in a reception centre
for adults, where they had no guardian, no school, had to cook for themselves, and budget
their benefits. Our findings that this group had higher levels of psychological distress, add
further evidence that living conditions in the asylum seeking period may influence the mental
health of young refugees.
6, 9
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The outcome of the individual asylum applications was revealed to the asylum seekers
between one and two years after the arrival, and the negative impact of refusal was as
expected, since several studies have found that difficulties obtaining legal residence are
associated with a range of psychological problems for this group
6
. We also know that
longitudinal studies indicate a trend towards reduction of mental health symptoms for
resettled refugees over time.
22
In a follow-up study of 131 young refugees in Denmark, the
long term effects of pre-migration adversity were mediated by a variety of factors connected
to social life.
23
Another study suggests positive health effects upon receiving permanent
residence mediated through improved living conditions.
24
This, in association with our
findings, emphasizes the importance of a supportive post-migration environment for all
refugees with pre-migratory experiences of serious trauma and human rights violations.
Strengths of our study include a longitudinal design, with first assessment within three weeks
after arrival to the host country, and repeated measures. We used computer-based assessment
with the same audio-translations throughout the study, and did not need to use interpreters in
order to complete the psychometric measures at follow-up. Selection of participants was
limited to the most common nationality groups arriving in Norway at the time of inclusion,
and may limit the generalization of our findings. High attrition rate due to the fact that asylum
seekers tend to move between and within countries, and that many were told to leave the
country, may have biased our findings. It is also possible that our research team was not
viewed as independent from the authorities, even though we stressed this fact when we
informed about the project. Finally, we have no data as to whether poor mental health might
have affected the likelihood of asylum. Mental health is generally not an issue in the
processing of asylum applications in Norway. Also, the baseline levels of mental health did
not differ between participants that later received asylum and those who did not.
Implications
Our study shows that young asylum-seekers may spend considerable time in a safe Western
country, without recovering from the distress they have when they arrive in the host country.
A reason for the continuing psychological health problems in this non-clinical group of youth
can possibly be found in the living conditions and the level of care that is provided.
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Adolescence is a challenging transition-period for most people. Fleeing to a foreign country
without parents or other caregivers makes this life-period even more challenging for young
refugees, and puts a considerable responsibility on the receiving countries. The burden of
increasing numbers of asylum-seekers challenges the political intentions of the UN
Convention on the Rights of the Child (CRC) to always give precedence to “the best interest
of the child”.
25
It is emphasized that safety and dignity in the use of medical assessments
should be applied as a supplement to evaluations of the physical appearance and the
psychological maturity of the child. Needs of vulnerable adolescents and young adults in a
stressful life-situation deserve high priority and should be a main focus regardless of the
outcome of age assessments.
26
In our society turning 18 is usually considered a transition point from child to adult. Yet with
the limitations of the age determining process we cannot know for certain that this milestone
has been reached. The consequences of this uncertainty can have legal, social and material
implications.
27
If a child is put under difficult living-conditions, where previous human
support and education is withdrawn, this can have unintended negative effects on these young
individuals transitioning into adulthood. Some child protection services argue that vulnerable
young adults are still in need of support and care after the age of 18
28
, and need to receive
specialised care into their twenties.
29
Future studies should focus on how mental health and
resilience evolve over a longer time span, and evaluate specific interventions and appropriate
levels of care for young refugees.
Acknowledgement: Gratitude to Liv Berit Løken for her care and assistance with all aspects
of the data collection. Thanks also to our very skilled interpreters, and to all the young
participants.
Contributors: M. Jakobsen has had the main responsibility for the drafting and writing of the
article. Heir was, in collaboration with DeMott and Jakobsen, responsible for the literature
review and the conception and design of the article. DeMott and Jakobsen has been
responsible for all phases of the data collection. Data analysis and interpretation of data was
done in cooperation between Jakobsen, Heir and Wentzel-Larsen. All authors have
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contributed to the scientific writing and proof-reading of the article. The paper has been read
and approved by all authors before submission.
Funding: This work was supported by The Norwegian Directorate of Immigration.
Competing interests: None
Ethics approval: Regional Committees for Medical and Health Research Ethics.
Data sharing statement: No additional data are available.
References
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7. Senovilla Hernández D. Unaccompanied children lacking protection in Europe. Final
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8. Silove D, Steel Z, Susljik I, Frommer N, Loneragan C, Chey T, et al. The impact of the refugee
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process and early intervention with expressive arts therapy (EXIT) for newly arrived
unaccompanied minor refugee boys in transit centers.
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unaccompanied-minor-refugee-boys-in-transit-centers/
11. Bean T, Eurelings-Bontekoe E, Derluyn I, Spinhoven P. Stressful life events (SLE): user’s
manual. Centrum ’45, 2004.
12. Mollica RF, McDonald LS, Massagli MP, Silove DM. Measuring trauma, measuring torture:
Instructions and guidance on the utilization of the Harvard Program in Refugee Trauma’s
versions of the Hopkins Symptom Checklist- 25 (HSCL-25) and The Harvard Trauma
Questionnaire (HTQ). Harvard Program in Refugee Trauma, 2004.
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13. Hollifield M, Warner TD, Lian N. Measuring trauma and health status in refugees: a critical
review. JAMA 2002; 288: 611-21.
14. Silove DM, Manicavasagar V, Mollica RF, Thai M, Khiek D, Lavelle J, et al. Screening for
Depression and PTSD in a Cambodian Population Unaffected by War: Comparing the Hopkins
Symptom Checklist and Harvard Trauma Questionnaire with the Structured Clinical Interview.
J Nerv Ment Dis 2007; 195: 152-7.
15. Bronstein I, Montgomery P, Ott E. Emotional and behavioural problems amongst Afghan
unaccompanied asylum-seeking children: results from a large-scale cross-sectional study. Eur
Child Adolesc Psychiatry 2013; 22: 285-94.
16. Bean T, Eurelings-Bontekoe E, Derluyn I, Spinhoven P. Hopkins Symptom Checklist-37 for
Adolescents (Hscl-37a): User’s Manual In: Centrum’45. Oegstgeest, 2004.
17. Mollica RF, Caspi-Yavin Y, Bollini P, Truong T, Tor S, Lavelle J. The Harvard trauma
questionnaire: validating a cross-cultural instrument for measuring torture, trauma, and
posttraumatic stress disorder in Indochinese refugees. J Nerv Men Dis 1992; 180: 111-6.
18. Jones L, Kafetsios K. Exposure to political violence and psychological well-being in Bosnian
adolescents: A mixed method approach. Clinical Child Psychology and Psychiatry 2005; 10:
157-75.
19. American Psychiatric Association. Diagnostic and Statistical Manual of Mental Disorders (4
th
ed.) (DSM-IV). APA, 1994.
20. Knaevelsrud C, Müller J. MultiCASI (Multilingual Computer Assisted Self Interview). CD-
ROM, CDSP. Springer, 2008.
21. Pinheiro J, Bates D, DebRoy S, Sarkar D, R Core Team. Nlme: Linear and Nonlinear Mixed
Effects Models. R package version 3.1-128. [Internett]. 2016 [retrieved 2016-01-16].
http://CRAN.R-project.org/package=nlme>. Accessed online jan.6
th
. 2016
22. Fazel M, Reed RV, Panter-Brick C, Stein A. Mental health of displaced and refugee children
resettled in high-income countries: risk and protective factors. Lancet 2012; 379: 266-82.
23. Montgomery E. Trauma and resilience in young refugees: A 9-year follow-up study. Dev
Psychopathol 2010; 22: 477-89.
24. Lamkaddem M, Essink-Bot M-L, Devillé W, Gerritsen A. Health changes of refugees from
Afghanistan, Iran and Somalia: the role of residence status and experienced living difficulties in
the resettlement process. Eur J Publ Health 2015; 25: 917-22.
25. Vitus K, Lidén H. The Status of the Asylum-seeking Child in Norway and Denmark:
Comparing Discourses, Politics and Practices. J Refug Stud 2010; 23: 62-81.
26. Derluyn I, Broekaert E. Unaccompanied refugee children and adolescents: The glaring contrast
between a legal and a psychological perspective. Int J Law Psychiatry 2008; 31: 319-30.
27. Smith T, Brownlees L. Age assessment practices: a literature review & annotated bibliography.
Discussion paper. UNICEF, 2011.
28. Crawley H. When is a child not a child. ILPA, 2007.
29. M.E.Courtney, J.Piliavin, Grogan-Talor A, Nesmith A. Foster youth transitions to adulthood: a
longitudinal view of youth leaving care. Child Welfare 2001; 80: 685-717.
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Fig 1. Course of psychological distress (HSCL) during follow up of asylum seekers placed in asylum
centers for adults (n=38) and asylum seekers placed in asylum centers for youth (n=100).
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Fig 2. Course of psychological distress (HSCL) during follow up of asylum seekers who received refusal
of asylum (n=67) and asylum seekers who received residence permission or time limited asylum
(n=64).
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Research checklist
We have gone through the STROBE statement-Checklist list, and have tried to address all items in the
article. We want to make some extra comments to these points:
10 and 13: This study has been conducted in cooperation with Norwegian immigration authorities,
and there were restrictions on where and when we could gain access to the reception centers. The
time periods when we were allowed to register are described in the article. We do not believe these
restrictions impacted the selection of clients, since immigration to Norway happens all through the
year, with very little control by the authorities. The restrictions were based on practical needs for
turnover at the center, and we had to cooperate in order to do any research at all. The study size is
the number of participants we were able to include within the designated time frames. It is hard to
know how many participants we could have reached, since a lot of immigration is illegal, and asylum-
seekers flee from the reception-centers all the time.
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Mental health and the impact of the asylum process: a
longitudinal study of unaccompanied refugee minors.
Journal:
BMJ Open
Manuscript ID
bmjopen-2016-015157.R1
Article Type:
Research
Date Submitted by the Author:
03-Feb-2017
Complete List of Authors:
Jakobsen, Marianne; Norwegian Centre for Violence and Traumatic Stress
Studies,
Meyer DeMott, Melinda; Norwegian Centre for Violence and Traumatic
Sress Studies
Wentzel-Larsen, Tore; Norwegian Centre of Violence and Traumatic Stress
Studies,
Heir, Trond; Norwegian Centre for Violence and Traumatic Stress Studies;
University of Oslo, Institute of Clinical Medicine
<b>Primary Subject
Heading</b>:
Public health
Secondary Subject Heading:
Mental health
Keywords:
Refugee, Adolescent, Unaccompanied minor, Follow-up study, Norway
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Mental health and the impact of the asylum process: a
longitudinal study of unaccompanied refugee minors.
Authors: Marianne Jakobsen
1*
, Melinda A. Meyer DeMott
1
, Tore Wentzel-Larsen
1,3
&
Trond Heir
1,2
1
Norwegian Centre for Violence and Traumatic Stress Studies.
2
Institute of Clinical Medicine, Faculty of Medicine, University of Oslo, Norway.
3
Regional Center for Child and Adolescent Mental Health, Eastern and Southern Norway.
*
Correspondence to: Marianne Jakobsen, Norwegian Centre for Violence and Traumatic
Stress Studies, NCVTSS, Pb 181 Nydalen, 0409 Oslo, Norway
Email:marianne.jakobsen@nkvts.no
Word count: 4306
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ABSTRACT
Objectives: To examine the mental health of unaccompanied refugee minors (UM)
prospectively during the asylum-seeking process, with a focus on specific stages in the
asylum-process, such as age assessment, placement in a supportive or non-supportive facility,
and final decision on the asylum applications.
Design: A two and a half year follow-up study of UM seeking asylum in Norway. Data were
collected within three weeks (n=138), and at 4 months (n=101), 15 months (n=84) and 26
months (n=69) after arrival.
Setting: Initially in an observation and orientation centre for unaccompanied asylum-seeking
adolescents, and subsequently wherever the UM were located in other refugee-facilities in
Norway.
Participants: Male UM from Afghanistan, Somalia, Algeria and Iran.
Main outcome measures: Mental health symptoms assessed by Hopkins Symptom
Checklist-25, and Harvard Trauma Questionnaire.
Results: At the group level the young asylum seekers reported high levels of psychological
distress on arrival, and symptom levels that stayed relatively unchanged over time.
According to age-assessment procedures 56% of the population was not recognized as minors.
Subsequent placement in a low- support facility was associated with higher levels of
psychological distress in the follow-up period. Those who were placed in a reception centre
for adults had higher levels of psychological distress symptoms both after 15 months and 26
months compared to the remaining participants who were placed in reception centers for
youth. Refusal of asylum was highly associated with higher levels of psychological distress.
Conclusions: Mental health trajectory of young asylum-seekers appears to be negatively
affected by low support and refusal of asylum.
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Strenghts and limitations of this study.
x.Strengths include a longitudinal design, with first assessment within three weeks after
arrival to the host country, and repeated measures.
x. Use of computer-based assessment with audio-translations throughout the study.
x.Selection of participants was limited to the most common nationality groups arriving in
Norway at the time of inclusion.
x.High attrition rate due to the fact that asylum seekers tend to move between and within
countries, and that many were told to leave the country.
INTRODUCTION
In 2015 more than 88 700 unaccompanied minors (UM) fled to Europe
1
, putting considerable
pressure on these countries to provide the necessary resources needed. Separated children that
are no longer protected by parents or other caregivers, usually have to be under the age of 18
in order to be given the special protection and care that is granted unaccompanied refugee
minors. In the countries of origin for UM the civil registration service of their country often
function poorly, and birth certificates can be lost, thrown away or falsified.
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The scientific
basis for assessing age is controversial, in that these tests only determine physical maturity,
and are most uncertain from the age of 15 to 21, where natural variation is at its greatest.
3
The
consequences for many young asylum seekers assessed to be 18 years or older is that they will
no longer be considered as minors, and therefore not receive special protection in accordance
with the United Nations.
2
Most studies investigating UM mental health have a cross-sectional design with a selection of
youths with different levels of legal recognition and different durations of time in exile.
4
These studies show consistently that individual factors such as exposure to violence and other
traumatic events prior to migration, correspond to elevated symptoms of psychological
distress.
5
In some studies the negative effects of exile related stressors are also described
6
, yet
they focus on youths with varying time in exile. There are different asylum-procedures within
the different countries
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, and most UM endure some uncertainty before their legal status is
defined. Most countries provide some form of shelter for UM while they are waiting for their
case to be processed, but conditions vary greatly. Positive health effects have been shown to
be associated with receiving a permanent residence permit
8
, but this process may take months
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and sometimes years. The impact of different levels of social support that UM are offered,
especially after the first stage of reception and registration, have not been studied in detail.
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The aim of our study was to examine UM`s mental health during the asylum-seeking process,
and more specifically whether the official age assessed, level of support, and the outcome of
the asylum application were associated with UM`s mental health at different stages of the
asylum seeking process.
METHODS
Participants and procedures
The sample in this study was recruited from an asylum reception centre for unaccompanied
asylum-seeking adolescents between ages 15 and 18 years, which was the only one in Norway
at this time. In this reception centre, all UMs who claimed to be in this age group stayed for
the first weeks while asylum interviews and age-assessment procedures were performed. A
research assistant kept track of all new arrivals, and each time our testing capacity allowed us
to include some new participants, she was instructed to invite the ones who had arrived most
recently. The study was conducted between September 2009 and March 2011. Altogether, the
inclusion periods for this project were 12 weeks in 2009, 8 weeks in 2010, and 21 weeks in
2011. During these time periods young asylum seekers came mainly from Afghanistan and
Somalia. According to the statistics unit at the Norwegian Directorate of Immigration, 406
male UM from these language groups arrived in Norway during the inclusion periods.
Unaccompanied males that had just arrived were contacted by the research assistant.
Altogether, 216 adolescents were asked to participate, and 209 returned the informed consent
and attended the study. Some participants were included in an Expressive Arts intervention
group (n=71), that is not part of the present study. The remaining 138 are the focus of this
article. Inclusion in the intervention-group was based on a randomizing –procedure shortly
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after arrival in Norway. The participants in the present article were not significantly different
from the intervention group in any baseline characteristics (p ≥ .071).
More about the whole project can be found on our home pages
10
.
Information to participants included statements that participation would not impact the
chances to stay in the country. Only one contact attempt was made for each individual, and no
payment was offered.
Participants followed the normal procedures in the asylum process. In Norway all UMs
receive assistance from a multi-disciplinary professional staff (educators, social workers,
psychologists, physicians, and nurses) in the first reception centre while waiting for their
“official-age” to be assigned. Those defined as 18 or older can be moved to adult housing
where less professional assistance is provided. The asylum-seekers considered to be from 15
to 18 years are moved to specialized youth centres, with staff available 24 hours, every day.
The youngest children stay in even more specialized orphanages. There are some exceptions
to this pattern, according to variable housing capacity some 18-year old asylum-seekers are
allowed to stay in the youth centres for some time. The youth centres are located all over
Norway, and have language classes for all inhabitants. Food is prepared and served by the
staff, and there are staff members available day and night. Most centres have recreational
activities, and they give individualised support and medical follow-up if needed. In an adult
centre, the asylum-seekers are left to themselves most of the time. They buy and cook their
own food, have no school or other scheduled activities, and have no guardians or staff
members to ask for advice.
The first screening procedure was conducted within the first three weeks, and later repeated at
4 months (n=101), 15 months (n=84) and 26 months (n=69) after arrival. At the last
assessment the population was almost halved, mainly because many of the informants were
transported out of the country, or had disappeared from the different living facilities. The
participants who were deported were mostly individuals who had been registered as asylum-
seekers in another European country before coming to Norway, or individuals suspected of
having some connection to illegal activities. The ones who deflected were typically those who
feared deportation after their asylum-applications were turned down. It was, however,
impossible to obtain exact numbers and reasons for the attrition in this project.
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Measures
Demographic data was registered with the aid of interpreters at the initial assessment. We
asked for self-reported age, literacy, years of school attendance, and whether their parents
were still alive, deceased, or if participants had lost touch with their parents and did not know.
Later we registered the results of official age-assessments, especially which participants who
were thought to be at least 18 years of age. We also determined the level of care offered
according to placement in asylum centres for either adults or for youth. Before the last
assessment we registered the legal status, as participants were either given time-limited or
permanent permission to stay, or were refused legal residence in the country.
Exposure
Serious Life Events checklist (SLE) was developed by Tammy Bean and colleagues
11
in order
to assess if an adolescent meet the criteria A1 (experienced a traumatic event) in the DSM-IV,
for a diagnosis of PTSD. It is a self-report questionnaire which asks whether or not the
participant has experienced twelve different kinds of traumatic events, such as separation
from family, natural disaster, war and physical or sexual abuse. The instrument was scored by
answering yes or no on each item.
Psychological distress
Hopkins Symptom Checklist-25 (HSCL-25)
12
is a self-administered questionnaire designed to
measure anxiety and depression. It has been validated in various clinical and community
samples.
13,14
The HSCL-37 A version is an extension of the HSCL-25, and has also been
applied in a number of refugee studies with minors.
15,16
The additional 12 items measuring
externalizing behavior are not included in this paper. Each item was scored with 1 (not
bothered) to 4 (extremely bothered). Scores2.0 was considered probably clinically
significant.
17
Post Traumatic Symptom Score (PTSS)
The Harvard Trauma Questionnaire
18
is a comprehensive instrument that was developed to
assess potentially traumatic experiences and post-traumatic symptoms in various cultural
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contexts. Its psychometric properties were first established in a highly traumatized, clinical
population, but it has also been evaluated with a larger community sample, and with asylum
seeking adolescents
6, 19
. The HTQ part IV, comprises 30 symptom items, among which the
first 16 items measure “The symptoms of PTSD” according to the DSM–IV.
20
These 16 items
are scored with 1 (not at all) to 4 (extremely). Scores2.0 was considered probably clinically
significant.
17
Computer-based assessment
The chosen psychometric measurements were combined into a single questionnaire using the
program MultiCASI
21
. The questionnaires were filled in by the participants themselves, in
their native languages, Dari, Pashto, Farsi or Somali, using laptops with touch-screen function.
Translations had been attained from earlier projects, and were controlled by independent,
native speaking, interpreters before they were added to the questionnaire. The items appeared
one after the other on the screen, together with answering alternatives. All text had a sound-
file connected to it that started as soon as the item appeared on the screen. The test could be
used with any level of reading competence, and the sound of each item could be activated by
touch, as many times as necessary. Items could be skipped and left unanswered, but would
then be repeated once more towards the end of the questionnaire. The first introduction to the
computer based self-screening was done shortly after arrival, with one language group at the
time. An interpreter was present together with maximum five participants, as they were
instructed in how to use the touch screen. They were encouraged to ask clarifying questions as
they went on with answering the items, all in the same room, with earphones on, in order not
to disturb each other. During the following waves of data collection the same questionnaire
was used and translating services were not necessary. The results were transported digitally to
the SPSS files.
Data analysis
Differences in HSCL and PTSS between 0, 4, 15 and 26 months were assessed by linear
mixed effects models by categorical time, including an inter-individual random effect.
Relationships between HSCL, and PTSS at each time point 4 months and characteristics
known at that time point were assessed by unadjusted and linear regression. Specifically,
covariates were being literate, parents deceased, number of adverse events and age assessed as
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18 years at 4 months. At 15 months, being placed in a reception center for adults or youth,
was included, and at 26 months also asylum status; permanent, time limited or refusal of
asylum. Due to a low number of missing values in the independent variables in the regression
analyses (at most 3 missing values on any independent variable) complete case analysis was
considered appropriate. Nonresponse analysis during follow up (4 to 26 months) used a
generalized estimating equations (GEE) logistic regression by time and baseline HSCL score,
reading ability, category for parents alive and number of serious life events. For descriptive
analyses we used the SPSS version 22 for Windows. Beyond this, data was analyzed using R
(The R Foundation for Statistical Computing, Vienna, Austria) with the R package nlme for
mixed effects models and gee for GEE analyses
22
.
Table 1. Baseline characteristics of male unaccompanied refugee minors at arrival in Norway. Figures
are given as number (%) when others not specified.
N = 138
Age, self-reported (n=127)
Mean years (SD)
Range
16.18 (0.84)
15 - 18
Age, assessed by authorities
(n=132)
Mean years(SD)
Range
18.22 (2.27)
15 - 27
Nationality
Afghan
Somalian
Iranian
Algerian
102 (73.9)
32 (23.2)
3 (2.2)
1 (0.7)
Literacy, self-reported 50 (36.8)
Loss of parent
Father
Mother
85(62.9)
29(21.5)
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Both
Unknown
25(18.5)
16(11.9)
Psychological distress (n=132)
Mean HSCL (SD)
Caseness (n>2.0)
1.70 (0.43)
29 (21.0)
Posttraumatic stress (n=133)
Mean PTSS (SD)
Caseness (n>2.0)
2.15 (0.62)
81 (58.7)
Results
Three fourths of the population came from Afghanistan, while the remaining came from
Somalia and Iran (table 1). There were no significant differences between the countries of
origin and the variables included in this article. A minority (36%) were able to read in their
own language. Mean number of serious life-time events experienced was 6.3 (SD 2.3), range
1-11. Most of the participants (96%) had experienced at least one of the serious life events
listed. The most frequently reported experiences were life threatening events (82%), physical
abuse (78%), and loss of a close relative (78%). The official age assessment found a mean age
of 18.4 years (SD 2.4), range 15-28, which meant that 72 (56%) participants were considered
to be adults. Of this “adult”group, 36 participants were allowed to stay at the care centres for
adolescents, while the rest had to move to centres for adults. None of the participants received
psychiatric treatment during the study.Overall there were no significant changes in the level
of symptoms within the study period (p≥.084), neither for HSCL (Table 2) nor for PTSS.
Table 2. Mixed effect coefficients (MEC) for time modelling the course of psychological distress (HSCL)
and posttraumatic stress (PTSS) in unaccompanied refugee minors after arrival in host country.
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HSCL
PTSS
MEC
95% CI
MEC
95% CI
Time
.136
.725
4 mo vs 0 mo
0.04
-
0.09, 0.16
.557
0.02
-
0.
12, 0.15
.811
15 mo vs 0 mo
0.14
0.01,0.27
.037
0.03
-
0.11, 0.17
.671
26 mo vs 0 mo
-
0.02
-
0.16, 0.13
.831
-
0.06
-
0.21, 0.09
.441
HSCL : Hopkins symptom checklist
PTSS : Posttraumatic stress symptom checklist
Tables 3-5 show the associations between variables of interest, and symptoms of
psychological distress at different test points. Outcome of age assessment, which was known
shortly after the first assessment, had no significant association with psychological distress at
4 months (table 3). However, those who were estimated to be 18 years or older, had higher
levels of symptoms at 15 months (table 4) and at 26 months (table 5), but not when adjusted
for the outcome of the asylum-applications at the 26 month assessment.
Table 3. Regression coefficients for literacy, pre-migration bereavement, serious life-events and post-
migration age assessment, related to course of psychological distress (HSCL) in young male asylum
seekers 4 months after arrival in host country; unadjusted and adjusted results.
Unadjusted Adjusted
Coef. 95% CI P Coef. 95% CI P
Being literate 0.348 0.115,0.581 .004
0.262
0.006, 0.518
.045
Parents deceased
Unknown vs both alive
0.175
-0.232,0.581
.245
.396
0.146
-0.254, 0.545
.457
.472
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One dead vs both alive
Both dead vs both alive
0.146
-0.172
-0.166,0.457
-0.564,0.219
.355
.384
0.182
-0.053
-0.119, 0.483
-0.442, 0.337
.234
Adverse events 0.066 0.015,0.116 .012
0.046 -0.006, 0.098
.084
Age assessed ≥18 years 0.126 -0.118,0.370
.308
0.068 -0.191, 0.326
.604
HSCL: Hopkins symptom checklist
Adjusted for whether subjects participated in initial 5 week expressive arts group-intervention
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Table 4. Regression coefficients for literacy, pre-migration bereavement, serious life-events and post-
migration age assessment, in addition to asylum-seeker facilities, related to course of psychological distress
(HSCL) in young male asylum seekers 15 months after arrival in host country; unadjusted and adjusted
results.
Unadjusted
Adjusted
Coef.
95% CI
Coef.
95% CI
Being literate
0.054
-
0.
254,0.363
.727
0.008
-
0.296, 0.313
.957
Parents deceased
Unknown vs both alive
One dead vs both alive
Both dead vs both alive
0.240
0.253
0.581
-0.278,0.757
-0.141,0.646
0.097,1.065
.134
.359
.206
.019
0.346
0.317
0.626
-0.133, 0.825
-0.051, 0.684
0.157, 1.094
.073
.154
.090
.010
Adverse events
0.039
-
0.030,0.107
.262
0.054
-
0.010, 0.119
.099
Age
assessed
≥18 years
0.522
0.238,0.805
<0.001
0.375
0.058, 0.692
.021
Adult reception center
0.464
0.136,0.792
.006
0.354
0.
011, 0.695
.043
HSCL: Hopkins symptom checklist
Adjusted for whether subjects participated in initial 5 week expressive arts group-intervention
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Table 5. Regression coefficients for literacy, pre-migration bereavement, serious life-events and post-
migration age assessment, asylum-seeker facilities, in addition to asylum-status, related to course of
psychological distress (HSCL) in young male asylum seekers 26 months after arrival in host country;
unadjusted and adjusted results.
Unadjusted Adjusted
Coef.
95% CI
Coef.
95% CI
Being literate
0.025
-
0.
305,0.355
.881
-
0.040
-
0.322, 0.242
.777
Parents deceased
Unknown vs both alive
One dead vs both alive
Both dead vs both alive
0.591
0.261
0.670
0.021,1.162
-0.130,0.652
0.160,1.180
.043
.042
.187
.011
0.562
0.384
0.532
0.076, 1.047
0.049, 0.719
0.088, 0.976
.038
.024
.025
.020
Adverse events
-
0.059
-
0.126,
-
0.008
.083
-
0.041
-
0.097,0.016
.155
Age assessed ≥18 years
0.392
0.086
,0.
697
.013
-
0.070
-
0.428, 0.288
.696
Adult reception center
0.717
0.372,1.063
<.001
0.
272
-
0.169,0.712
.222
Asylum status
(vs acceptance)
Time-limited asylum
Refusal of asylum
-0.035
0.787
-0.391,0.320
0.402,1.172
<.001
.844
<.001
-0.103
0.590
-0.498, 0.292
0.122, 1.059
.017
.602
.015
HSCL: Hopkins symptom checklist
Adjusted for whether subjects participated in initial 5 week expressive arts group-intervention
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One third of the participants were placed in a reception centre for adults. Figure 1 shows the
trajectories of psychological distress for participants placed in a reception centre for adults or
for youth. Those who were placed in a reception centre for adults had higher levels of
psychological distress symptoms both at 15 months (table 4) and 26 months (table 5)
compared to the remaining participants who were placed in reception centres for youth.
However, when adjusted for the outcome of the asylum application at the 26 month
assessment, the difference was not significant.
Final decision on the asylum claims was given between the last two test points. Refusal was
highly associated with higher levels of psychological distress. Achieving time limited
residence permission was not significantly different compared to permanent asylum (table 5).
Trajectories of psychological distress for those who received refusal or acceptance of their
asylum application are illustrated graphically in figure 2. Refusal was related to the official
determined age of the asylum seeker. Among the participants who were considered to be 18
or more, 52 out of 72(72.2%) were refused, compared to 15 out of 59(25.4%) among the
participants who were considered to be under 18 (7 missing).
The symptom scores of the PTSS (not illustrated in the tables) showed a similar association as
the HSCL-scores, with higher levels of PTSD-symptoms for those placed in a reception center
for adults at 15 months (adjusted difference 0.34, 95% CI 0.06 to 0.63, p=0.017), as well as
higher symptom scores for those who received a negative result for the asylum application at
26 months (adjusted difference 0.60, 95% CI 0.24 to 0.95, p=0.001).
Loss to follow-up was not significantly related to initial levels of distress. Also, none of the
baseline covariates were significantly related to nonresponse.
DISCUSSION
The present study is a follow-up of unaccompanied refugee minors with four waves of
assessment from within three weeks after arrival to more than two years spent in the host
country. At the group level the young asylum seekers reported high levels of psychological
distress on arrival, and symptom levels that stayed relatively unchanged over time. A low
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level of support during the asylum process and a negative outcome of the asylum application
were associated with higher levels of psychological distress.
Determination of the legal status of the asylum seekers involved age assessment procedures,
with x-rays and dental examinations for all participants in this study. This resulted in a
considerable gap between self reported age and the official age estimates designated by the
immigration authorities. On the basis of these examinations 55% of the asylum seekers were
considered to be at least the age of 18, and thus did not achieve a UM status. They risked
being moved to a facility for adults, with low levels of support and care, and limited access to
education and leisure activities. Also, the likelihood of being granted asylum was related to
age, as illustrated by the numbers of children and adults in our study who got refusal of their
claims.
The results from our study is in agreement with other studies that have found that high-
support housing, with sufficient supervision, was associated with lower levels of
psychological symptoms
5
. Others have also described problems directly connected to the
asylum process, and have registered them as components in a list of post-migration stressors
9
.
A weakness with most of these studies, are cross-sectional designs where there are no base-
line measurements. Only a few studies have repeated assessments
6
where problems directly
connected to the asylum process, such as age-assessment procedures, lack of adequate
housing, low support, etc., have been evaluated. The complexity of factors contributing to the
increasing health risk, make it difficult to draw specific conclusions within the total burden of
stressors.
In all studies with UM, it is likely that there will be some uncertainty concerning the
participants’ true chronological age
3
. Defined to be overage, in the present study, was not
significantly related to the symptom scores at the 4 month assessment, and there was no
indication that this process was stressful in itself. The age designated by the authorities,
determined what type of housing and level of care that was offered during the remaining
asylum-procedure
.
This meant that many of the participants had to live in a reception centre
for adults, where they had no guardian, no school, had to cook for themselves, and budget
their benefits. Our findings that this group had higher levels of psychological distress, add
further evidence that living conditions in the asylum seeking period may influence the mental
health of young refugees.
6, 9
It was probably known in the community and among the youth
that being categorized as an adult increased the risk of asylum refusal. This factor is
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impossible to separate from the expectations associated with the placement in youth or adult
reception-centres. There should be a cautious interpretation of the results because of this
clustering of risk factors.
The outcome of the individual asylum applications was revealed to the asylum seekers
between one and two years after the arrival, and the negative impact of refusal was as
expected since several studies have found that difficulties obtaining legal residence are
associated with a range of psychological problems for this group
6
. We also know that
longitudinal studies indicate a trend towards reduction of mental health symptoms for
resettled refugees over time.
23
In a follow-up study of 131 young refugees in Denmark, the
long term effects of pre-migration adversity were mediated by a variety of factors connected
to social life.
24
Another study suggests positive health effects upon receiving permanent
residence mediated through improved living conditions.
25
This, in association with our
findings, emphasizes the importance of a supportive post-migration environment for all
refugees with pre-migratory experiences of serious trauma and human rights violations.
Strengths of our study include a longitudinal design, with first assessment within three weeks
after arrival to the host country, and repeated measures. We used computer-based assessment
with the same audio-translations throughout the study, and did not need to use interpreters in
order to complete the psychometric measures at follow-up. Due to a random selection of
participants we consider the sample to be representative for the refugees arriving to Norway
in the first decade of the century. However, selection of participants was limited to the most
common nationality groups arriving in Norway in this period, and may limit the
generalization of our findings to refugees in general.
High attrition rate due to the fact that asylum seekers tend to move between and within
countries, and that many were told to leave the country, may have biased our findings. It is
also possible that our research team was not viewed as independent from the authorities, even
though we stressed this fact when we informed about the project. Finally, we have no data as
to whether poor mental health might have affected the likelihood of asylum. Mental health is
generally not an issue in the processing of asylum applications in Norway. Also, the baseline
levels of mental health did not differ between participants that later received asylum and those
who did not.
Implications
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Our study shows that young asylum-seekers may spend considerable time in a safe Western
country, without recovering from the distress they have when they arrive in the host country.
A reason for the continuing psychological health problems in this non-clinical group of youth
can possibly be found in the living conditions and the level of care that is provided.
Adolescence is a challenging transition-period for most people. Fleeing to a foreign country
without parents or other caregivers makes this life-period even more challenging for young
refugees, and puts a considerable responsibility on the receiving countries. The burden of
increasing numbers of asylum-seekers challenges the political intentions of the UN
Convention on the Rights of the Child (CRC) to always give precedence to “the best interest
of the child”.
26
It is emphasized that safety and dignity in the use of medical assessments
should be applied as a supplement to evaluations of the physical appearance and the
psychological maturity of the child.
An important objection to the use of dental/bone-age assessments is their lack of precision,
especially around the time of puberty. The tests have been criticized for their large margins of
error, and their inadequacy in determining chronological age.
3
Professionals in various
countries have differed with some doctors refusing to take part in such tests, while others have
argued that these assessments are the best practice available.
Needs of vulnerable adolescents and young adults in a stressful life-situation deserve high
priority and should be a main focus regardless of the outcome of age assessments.
27
In our society turning 18 is usually considered a transition point from child to adult. Yet with
the limitations of the age determining process we cannot know for certain that this milestone
has been reached. The consequences of this uncertainty can have legal, social and material
implications.
28
If a child is put under difficult living-conditions, where previous human
support and education is withdrawn, this can have unintended negative effects on these young
individuals transitioning into adulthood. Some child protection services argue that vulnerable
young adults are still in need of support and care after the age of 18
29
, and need to receive
specialised care into their twenties.
30
Future studies should focus on how mental health and
resilience evolve over a longer time span, and evaluate specific interventions and appropriate
levels of care for young refugees.
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Acknowledgement: Gratitude to Liv Berit Løken for her care and assistance with all aspects
of the data collection. Thanks also to our very skilled interpreters, and to all the young
participants.
Contributors: M. Jakobsen has had the main responsibility for the drafting and writing of the
article. Heir was, in collaboration with DeMott and Jakobsen, responsible for the literature
review and the conception and design of the article. DeMott and Jakobsen has been
responsible for all phases of the data collection. Data analysis and interpretation of data was
done in cooperation between Jakobsen, Heir and Wentzel-Larsen. All authors have
contributed to the scientific writing and proof-reading of the article. The paper has been read
and approved by all authors before submission.
Funding: This work was supported by The Norwegian Directorate of Immigration.
Competing interests: None
Ethics approval: Regional Committees for Medical and Health Research Ethics.
Data sharing statement: No additional data are available.
References
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7. Senovilla Hernández D. Unaccompanied children lacking protection in Europe. Final
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process and early intervention with expressive arts therapy (EXIT) for newly arrived
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unaccompanied-minor-refugee-boys-in-transit-centers/
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manual. Centrum ’45, 2004.
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Questionnaire (HTQ). Harvard Program in Refugee Trauma, 2004.
13. Hollifield M, Warner TD, Lian N. Measuring trauma and health status in refugees: a critical
review. JAMA 2002; 288: 611-21.
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Depression and PTSD in a Cambodian Population Unaffected by War: Comparing the Hopkins
Symptom Checklist and Harvard Trauma Questionnaire with the Structured Clinical Interview.
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15. Bronstein I, Montgomery P, Ott E. Emotional and behavioural problems amongst Afghan
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16. Bean T, Eurelings-Bontekoe E, Derluyn I, Spinhoven P. Hopkins Symptom Checklist-37 for
Adolescents (Hscl-37a): User’s Manual In: Centrum’45. Oegstgeest, 2004.
17. Jakobsen,
M., Meyer DeMott, M.A., & Heir, T. (2016). Validity of screening for psychiatric
disorders in unaccompanied minor asylum seekers. Use of computer-based assessment.
Transcultural psychiatry (in press).
18. Mollica RF, Caspi-Yavin Y, Bollini P, Truong T, Tor S, Lavelle J. The Harvard trauma
questionnaire: validating a cross-cultural instrument for measuring torture, trauma, and
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19. Jones L, Kafetsios K. Exposure to political violence and psychological well-being in Bosnian
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22. Pinheiro J, Bates D, DebRoy S, Sarkar D, R Core Team. Nlme: Linear and Nonlinear Mixed
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http://CRAN.R-project.org/package=nlme>. Accessed online jan.6
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24. Montgomery E. Trauma and resilience in young refugees: A 9-year follow-up study. Dev
Psychopathol 2010; 22: 477-89.
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25. Lamkaddem M, Essink-Bot M-L, Devillé W, Gerritsen A. Health changes of refugees from
Afghanistan, Iran and Somalia: the role of residence status and experienced living difficulties in
the resettlement process. Eur J Publ Health 2015; 25: 917-22.
26. Vitus K, Lidén H. The Status of the Asylum-seeking Child in Norway and Denmark:
Comparing Discourses, Politics and Practices. J Refug Stud 2010; 23: 62-81.
27. Derluyn I, Broekaert E. Unaccompanied refugee children and adolescents: The glaring contrast
between a legal and a psychological perspective. Int J Law Psychiatry 2008; 31: 319-30.
28. Smith T, Brownlees L. Age assessment practices: a literature review & annotated bibliography.
Discussion paper. UNICEF, 2011.
29. Crawley H. When is a child not a child. ILPA, 2007.
30. M.E.Courtney, J.Piliavin, Grogan-Talor A, Nesmith A. Foster youth transitions to adulthood: a
longitudinal view of youth leaving care. Child Welfare 2001; 80: 685-717.
Figure legends:
Fig 1. Course of psychological distress (HSCL) during follow up of asylum seekers placed in asylum
centers for adults (n=38) and asylum seekers placed in asylum centers for youth (n=100).
Fig 2. Course of psychological distress (HSCL) during follow up of asylum seekers who received refusal
of asylum (n=67) and asylum seekers who received residence permission or time limited asylum
(n=64).
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STROBE Statement—checklist of items that should be included in reports of observational studies
Item
No. Recommendation
Page
No.
Relevant text from
manuscript
Title and abstract 1 (a) Indicate the study’s design with a commonly used term in the title or the abstract Done: Longitudinal study
(b) Provide in the abstract an informative and balanced summary of what was done and what was
found
Done: see Abstract
Introduction
Background/rationale 2 Explain the scientific background and rationale for the investigation being reported 3 Done: see introduction
Objectives 3 State specific objectives, including any prespecified hypotheses 4 Specified hypoth. not possible
Methods
Study design 4 Present key elements of study design early in the paper 4-5 Done
Setting 5 Describe the setting, locations, and relevant dates, including periods of recruitment, exposure,
follow-up, and data collection
5 Done
Participants 6 (a) Cohort study—Give the eligibility criteria, and the sources and methods of selection of
participants. Describe methods of follow-up
Case-control study—Give the eligibility criteria, and the sources and methods of case
ascertainment and control selection. Give the rationale for the choice of cases and controls
4 Done: see introduction and
methods
(b) Cohort study—For matched studies, give matching criteria and number of exposed and
unexposed
N.a.
Variables 7 Clearly define all outcomes, exposures, predictors, potential confounders, and effect modifiers.
Give diagnostic criteria, if applicable
6-7 Done: see methods (effect
modifiers not included)
Data sources/
measurement
8* For each variable of interest, give sources of data and details of methods of assessment
(measurement). Describe comparability of assessment methods if there is more than one group
7 Done
Bias 9 Describe any efforts to address potential sources of bias 7-8 Done: see statistical methods
Study size
Continued on next page
10 Explain how the study size was arrived at 4 Data collection was done in
collaboration with immigration
authorities. The numbers were
determined by new arrivals
during the periods we were
allowed to be at the centre.
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Quantitative
variables
11 Explain how quantitative variables were handled in the analyses. If applicable, describe which
groupings were chosen and why
7-8 Done: see statistical methods
Statistical
methods
12 (a) Describe all statistical methods, including those used to control for confounding 7-8 Done
(b) Describe any methods used to examine subgroups and interactions 7-8 Done
(c) Explain how missing data were addressed 7-8 Done.
(d) Cohort study—If applicable, explain how loss to follow-up was addressed
Case-control study—If applicable, explain how matching of cases and controls was addressed
Cross-sectional study—If applicable, describe analytical methods taking account of sampling
strategy
N.a.
(e) Describe any sensitivity analyses N.a.
Results
Participants 13* (a) Report numbers of individuals at each stage of study—eg numbers potentially eligible, examined
for eligibility, confirmed eligible, included in the study, completing follow-up, and analysed
4 Done: see methods
(b) Give reasons for non-participation at each stage 5 Uncertain
(c) Consider use of a flow diagram N.a.
Descriptive data 14* (a) Give characteristics of study participants (eg demographic, clinical, social) and information on
exposures and potential confounders
8-9 Done: see results and table 1
(b) Indicate number of participants with missing data for each variable of interest N.a.
(c) Cohort study—Summarise follow-up time (eg, average and total amount) 5 Done: see methods
Outcome data 15* Cohort study—Report numbers of outcome events or summary measures over time Done: see tables 2-5
Case-control study—Report numbers in each exposure category, or summary measures of exposure
Cross-sectional study—Report numbers of outcome events or summary measures
Main results 16 (a) Give unadjusted estimates and, if applicable, confounder-adjusted estimates and their precision
(eg, 95% confidence interval). Make clear which confounders were adjusted for and why they were
included
10-13 Done
(b) Report category boundaries when continuous variables were categorized 6-7
Done: see table 1 and measures
(c) If relevant, consider translating estimates of relative risk into absolute risk for a meaningful time
period
N.a.
Continued on next page
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Other analyses 17 Report other analyses done—eg analyses of subgroups and interactions, and sensitivity analyses N.a.
Discussion
Key results 18 Summarise key results with reference to study objectives 9 Done
Limitations 19 Discuss limitations of the study, taking into account sources of potential bias or imprecision. Discuss
both direction and magnitude of any potential bias
15-16 Done
Interpretation 20 Give a cautious overall interpretation of results considering objectives, limitations, multiplicity of
analyses, results from similar studies, and other relevant evidence
15-17 Done
Generalisability 21 Discuss the generalisability (external validity) of the study results 16 Done
Other information
Funding 22 Give the source of funding and the role of the funders for the present study and, if applicable, for the
original study on which the present article is based
18 Done.
*Give information separately for cases and controls in case-control studies and, if applicable, for exposed and unexposed groups in cohort and cross-sectional studies.
Note: An Explanation and Elaboration article discusses each checklist item and gives methodological background and published examples of transparent reporting. The STROBE
checklist is best used in conjunction with this article (freely available on the Web sites of PLoS Medicine at http://www.plosmedicine.org/, Annals of Internal Medicine at
http://www.annals.org/, and Epidemiology at http://www.epidem.com/). Information on the STROBE Initiative is available at www.strobe-statement.org.
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Mental health and the impact of the asylum process: a
longitudinal study of unaccompanied refugee minors.
Journal:
BMJ Open
Manuscript ID
bmjopen-2016-015157.R2
Article Type:
Research
Date Submitted by the Author:
14-Mar-2017
Complete List of Authors:
Jakobsen, Marianne; Norwegian Centre for Violence and Traumatic Stress
Studies,
Meyer DeMott, Melinda; Norwegian Centre for Violence and Traumatic
Sress Studies
Wentzel-Larsen, Tore; Norwegian Centre of Violence and Traumatic Stress
Studies,
Heir, Trond; Norwegian Centre for Violence and Traumatic Stress Studies;
University of Oslo, Institute of Clinical Medicine
<b>Primary Subject
Heading</b>:
Public health
Secondary Subject Heading:
Mental health
Keywords:
Refugee, Adolescent, Unaccompanied minor, Follow-up study, Norway
For peer review only - http://bmjopen.bmj.com/site/about/guidelines.xhtml
BMJ Open
For peer review only
1
Mental health and the impact of the asylum process: a
longitudinal study of unaccompanied refugee minors.
Authors: Marianne Jakobsen
1*
, Melinda A. Meyer DeMott
1
, Tore Wentzel-Larsen
1,3
&
Trond Heir
1,2
1
Norwegian Centre for Violence and Traumatic Stress Studies.
2
Institute of Clinical Medicine, Faculty of Medicine, University of Oslo, Norway.
3
Regional Center for Child and Adolescent Mental Health, Eastern and Southern Norway.
*
Correspondence to: Marianne Jakobsen, Norwegian Centre for Violence and Traumatic
Stress Studies, NCVTSS, Pb 181 Nydalen, 0409 Oslo, Norway
Email:marianne.jakobsen@nkvts.no
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ABSTRACT
Objectives: To examine the mental health of unaccompanied refugee minors (UM)
prospectively during the asylum-seeking process, with a focus on specific stages in the
asylum-process, such as age assessment, placement in a supportive or non-supportive facility,
and final decision on the asylum applications.
Design: A two and a half year follow-up study of UM seeking asylum in Norway. Data were
collected within three weeks (n=138), and at 4 months (n=101), 15 months (n=84) and 26
months (n=69) after arrival.
Setting: Initially in an observation and orientation centre for unaccompanied asylum-seeking
adolescents, and subsequently wherever the UM were located in other refugee-facilities in
Norway.
Participants: Male UM from Afghanistan, Somalia, Algeria and Iran.
Main outcome measures: Mental health symptoms assessed by Hopkins Symptom
Checklist-25, and Harvard Trauma Questionnaire.
Results: At the group level the young asylum seekers reported high levels of psychological
distress on arrival, and symptom levels that stayed relatively unchanged over time.
According to age-assessment procedures 56% of the population was not recognized as minors.
Subsequent placement in a low- support facility was associated with higher levels of
psychological distress in the follow-up period. Those who were placed in a reception centre
for adults had higher levels of psychological distress symptoms both after 15 months and 26
months compared to the remaining participants who were placed in reception centers for
youth. Refusal of asylum was highly associated with higher levels of psychological distress.
Conclusions: Mental health trajectory of young asylum-seekers appears to be negatively
affected by low support and refusal of asylum.
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Strenghts and limitations of this study.
x.Strengths include a longitudinal design, with first assessment within three weeks after
arrival to the host country, and repeated measures.
x. Use of computer-based assessment with audio-translations throughout the study.
x.Selection of participants was limited to the most common nationality groups arriving in
Norway at the time of inclusion.
x.High attrition rate due to the fact that asylum seekers tend to move between and within
countries, and that many were told to leave the country.
INTRODUCTION
In 2015 more than 88 700 unaccompanied minors (UM) fled to Europe
1
, putting considerable
pressure on these countries to provide the necessary resources needed. Separated children that
are no longer protected by parents or other caregivers, usually have to be under the age of 18
in order to be given the special protection and care that is granted unaccompanied refugee
minors. In the countries of origin for UM the civil registration service of their country often
function poorly, and birth certificates can be lost, thrown away or falsified.
2
The scientific
basis for assessing age is controversial, in that these tests only determine physical maturity,
and are most uncertain from the age of 15 to 21, where natural variation is at its greatest.
3
The
consequences for many young asylum seekers assessed to be 18 years or older is that they will
no longer be considered as minors, and therefore not receive special protection in accordance
with the United Nations.
2
Most studies investigating UM mental health have a cross-sectional design with a selection of
youths with different levels of legal recognition and different durations of time in exile.
4
These studies show consistently that individual factors such as exposure to violence and other
traumatic events prior to migration, correspond to elevated symptoms of psychological
distress.
5
In some studies the negative effects of exile related stressors are also described
6
, yet
they focus on youths with varying time in exile. There are different asylum-procedures within
the different countries
7
, and most UM endure some uncertainty before their legal status is
defined. Most countries provide some form of shelter for UM while they are waiting for their
case to be processed, but conditions vary greatly. Positive health effects have been shown to
be associated with receiving a permanent residence permit
8
, but this process may take months
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and sometimes years. The impact of different levels of social support that UM are offered,
especially after the first stage of reception and registration, have not been studied in detail.
9
The aim of our study was to examine UM`s mental health during the asylum-seeking process,
and more specifically whether the official age assessed, level of support, and the outcome of
the asylum application were associated with UM`s mental health at different stages of the
asylum seeking process.
METHODS
Participants and procedures
The sample in this study was recruited from an asylum reception centre for unaccompanied
asylum-seeking adolescents between ages 15 and 18 years, which was the only one in Norway
at this time. In this reception centre, all UMs who claimed to be in this age group stayed for
the first weeks while asylum interviews and age-assessment procedures were performed. A
research assistant kept track of all new arrivals, and each time our testing capacity allowed us
to include some new participants, she was instructed to invite the ones who had arrived most
recently. The study was conducted between September 2009 and March 2011. Altogether, the
inclusion periods for this project were 12 weeks in 2009, 8 weeks in 2010, and 21 weeks in
2011. During these time periods young asylum seekers came mainly from Afghanistan and
Somalia. According to the statistics unit at the Norwegian Directorate of Immigration, 406
male UM from these language groups arrived in Norway during the inclusion periods.
Unaccompanied males that had just arrived were contacted by the research assistant.
Altogether, 216 adolescents were asked to participate, and 209 returned the informed consent
and attended the study. Some participants were included in an Expressive Arts intervention
group (n=71), that is not part of the present study. The remaining 138 are the focus of this
article. Inclusion in the intervention-group was based on a randomizing –procedure shortly
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after arrival in Norway. The participants in the present article were not significantly different
from the intervention group in any baseline characteristics (p ≥ .071).
More about the whole project can be found on our home pages
10
.
Information to participants included statements that participation would not impact the
chances to stay in the country. Only one contact attempt was made for each individual, and no
payment was offered.
Participants followed the normal procedures in the asylum process. In Norway all UMs
receive assistance from a multi-disciplinary professional staff (educators, social workers,
psychologists, physicians, and nurses) in the first reception centre while waiting for their
“official-age” to be assigned. Those defined as 18 or older can be moved to adult housing
where less professional assistance is provided. The asylum-seekers considered to be from 15
to 18 years are moved to specialized youth centres, with staff available 24 hours, every day.
The youngest children stay in even more specialized orphanages. There are some exceptions
to this pattern, according to variable housing capacity some 18-year old asylum-seekers are
allowed to stay in the youth centres for some time. The youth centres are located all over
Norway, and have language classes for all inhabitants. Food is prepared and served by the
staff, and there are staff members available day and night. Most centres have recreational
activities, and they give individualised support and medical follow-up if needed. In an adult
centre, the asylum-seekers are left to themselves most of the time. They buy and cook their
own food, have no school or other scheduled activities, and have no guardians or staff
members to ask for advice.
The first screening procedure was conducted within the first three weeks, and later repeated at
4 months (n=101), 15 months (n=84) and 26 months (n=69) after arrival. At the last
assessment the population was almost halved, mainly because many of the informants were
transported out of the country, or had disappeared from the different living facilities. The
participants who were deported were mostly individuals who had been registered as asylum-
seekers in another European country before coming to Norway, or individuals suspected of
having some connection to illegal activities. The ones who deflected were typically those who
feared deportation after their asylum-applications were turned down. It was, however,
impossible to obtain exact numbers and reasons for the attrition in this project.
When we
compared those who have completed all four assessments with those who missed out at one occasion
or more, there were no significant differences in any baseline demographic or symptom variables.
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Measures
Demographic data was registered with the aid of interpreters at the initial assessment. We
asked for self-reported age, literacy, years of school attendance, and whether their parents
were still alive, deceased, or if participants had lost touch with their parents and did not know.
Later we registered the results of official age-assessments, especially which participants who
were thought to be at least 18 years of age. We also determined the level of care offered
according to placement in asylum centres for either adults or for youth. Before the last
assessment we registered the legal status, as participants were either given time-limited or
permanent permission to stay, or were refused legal residence in the country. New variables
of interest such as level of care and legal status were included when they occurred prior to a
new assessment.
Exposure
Serious Life Events checklist (SLE) was developed by Tammy Bean and colleagues
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in order
to assess if an adolescent meet the criteria A1 (experienced a traumatic event) in the DSM-IV,
for a diagnosis of PTSD. It is a self-report questionnaire which asks whether or not the
participant has experienced twelve different kinds of traumatic events, such as separation
from family, natural disaster, war and physical or sexual abuse. The instrument was scored by
answering yes or no on each item.
Psychological distress
Hopkins Symptom Checklist-25 (HSCL-25)
12
is a self-administered questionnaire designed to
measure anxiety and depression. It has been validated in various clinical and community
samples.
13,14
The HSCL-37 A version is an extension of the HSCL-25, and has also been
applied in a number of refugee studies with minors.
15,16
The additional 12 items measuring
externalizing behavior are not included in this paper. Each item was scored with 1 (not
bothered) to 4 (extremely bothered). Scores2.0 was considered probably clinically
significant.
17
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Post Traumatic Symptom Score (PTSS)
The Harvard Trauma Questionnaire
18
is a comprehensive instrument that was developed to
assess potentially traumatic experiences and post-traumatic symptoms in various cultural
contexts. Its psychometric properties were first established in a highly traumatized, clinical
population, but it has also been evaluated with a larger community sample, and with asylum
seeking adolescents
6, 19
. The HTQ part IV, comprises 30 symptom items, among which the
first 16 items measure “The symptoms of PTSD” according to the DSM–IV.
20
These 16 items
are scored with 1 (not at all) to 4 (extremely). Scores2.0 was considered probably clinically
significant.
17
Computer-based assessment
The chosen psychometric measurements were combined into a single questionnaire using the
program MultiCASI
21
. The questionnaires were filled in by the participants themselves, in
their native languages, Dari, Pashto, Farsi or Somali, using laptops with touch-screen function.
Translations had been attained from earlier projects, and were controlled by independent,
native speaking, interpreters before they were added to the questionnaire. The items appeared
one after the other on the screen, together with answering alternatives. All text had a sound-
file connected to it that started as soon as the item appeared on the screen. The test could be
used with any level of reading competence, and the sound of each item could be activated by
touch, as many times as necessary. Items could be skipped and left unanswered, but would
then be repeated once more towards the end of the questionnaire. The first introduction to the
computer based self-screening was done shortly after arrival, with one language group at the
time. An interpreter was present together with maximum five participants, as they were
instructed in how to use the touch screen. They were encouraged to ask clarifying questions as
they went on with answering the items, all in the same room, with earphones on, in order not
to disturb each other. During the following waves of data collection the same questionnaire
was used and translating services were not necessary. The results were transported digitally to
the SPSS files.
Data analysis
Differences in HSCL and PTSS between 0, 4, 15 and 26 months were assessed by linear
mixed effects models by categorical time, including an inter-individual random effect.
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Relationships between HSCL, and PTSS at each time point 4 months and characteristics
known at that time point were assessed by unadjusted and linear regression. Specifically,
covariates were being literate, parents deceased, number of adverse events and age assessed as
18 years at 4 months. At 15 months, being placed in a reception center for adults or youth,
was included, and at 26 months also asylum status; permanent, time limited or refusal of
asylum. Due to a low number of missing values in the independent variables in the regression
analyses (at most 3 missing values on any independent variable) complete case analysis was
considered appropriate. Nonresponse analysis during follow up (4 to 26 months) used a
generalized estimating equations (GEE) logistic regression by time and baseline HSCL score,
reading ability, category for parents alive and number of serious life events. For descriptive
analyses we used the SPSS version 22 for Windows. Beyond this, data was analyzed using R
(The R Foundation for Statistical Computing, Vienna, Austria) with the R package nlme for
mixed effects models and gee for GEE analyses
22
.
Table 1. Baseline characteristics of male unaccompanied refugee minors at arrival in Norway. Figures
are given as number (%) when others not specified.
N = 138
Age, self-reported (n=130)
Mean years (SD)
Range
16.22 (0.84)
14 - 20
Age, assessed by authorities
(n=132)
Mean years(SD)
Range
18.22 (2.27)
15 - 27
Nationality
Afghan
Somalian
Iranian
Algerian
102 (73.9)
32 (23.2)
3 (2.2)
1 (0.7)
Literacy, self-reported (n=136) 50 (36.8)
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No loss of parent
Loss of father
Loss of mother
Loss of both parents
Unknown
30(21.7)
60(43.5)
4(2.9)
25(18.5)
16(11.9)
Psychological distress (n=131)
Mean HSCL (SD)
Caseness (n
2.0)
1.94 (0.58)
29 (21.0)
Posttraumatic stress (n=133)
Mean PTSS (SD)
Caseness (n
2.0)
2.16 (0.62)
81 (58.7)
Results
Three fourths of the population came from Afghanistan, while the remaining came from
Somalia and Iran (table 1). There were no significant differences between the countries of
origin and the variables included in this article. A minority (36%) were able to read in their
own language. Mean number of serious life-time events experienced was 6.1 (SD 2.3), range
1-11. Most of the participants (96%) had experienced at least one of the serious life events
listed. The most frequently reported experiences were life threatening events (82%), physical
abuse (78%), and loss of a close relative (78%). The official age assessment found a mean age
of 18.4 years (SD 2.4), range 15-28, which meant that 72 (56%) participants were considered
to be adults. Of this “adult”group, 36 participants were allowed to stay at the care centres for
adolescents, while the rest had to move to centres for adults. None of the participants received
psychiatric treatment during the study.Overall there were no significant changes in the level
of symptoms within the study period (p≥.084), neither for HSCL (Table 2) nor for PTSS.
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Table 2. Mixed effect coefficients (MEC) for time modelling the course of psychological distress (HSCL)
and posttraumatic stress (PTSS) in unaccompanied refugee minors after arrival in host country.
HSCL
PTSS
MEC
95% CI
MEC
95% CI
Time
.136
.725
4 mo vs 0 mo
0.04
-
0.09, 0.16
.557
0.02
-
0.
12, 0.15
.811
15 mo vs 0 mo
0.14
0.01,0.27
.037
0.03
-
0.11, 0.17
.671
26 mo vs 0 mo
-
0.02
-
0.16, 0.13
.831
-
0.06
-
0.21, 0.09
.441
HSCL : Hopkins symptom checklist
PTSS : Posttraumatic stress symptom checklist
Tables 3-5 show the associations between variables of interest, and symptoms of
psychological distress at different test points. Outcome of age assessment, which was known
shortly after the first assessment, had no significant association with psychological distress at
4 months (table 3). However, those who were estimated to be 18 years or older, had higher
levels of symptoms at 15 months (table 4) and at 26 months (table 5), but not when adjusted
for the outcome of the asylum-applications at the 26 month assessment.
Table 3. Regression coefficients for literacy, pre-migration bereavement, serious life-events and post-
migration age assessment, related to course of psychological distress (HSCL) in young male asylum
seekers 4 months after arrival in host country; results unadjusted and adjusted for the other variables.
Unadjusted Adjusted
Coef. 95% CI P Coef. 95% CI P
Being literate 0.348 0.115,0.581 .004
0.262
0.006, 0.518
.045
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Parents deceased
Unknown vs both alive
One dead vs both alive
Both dead vs both alive
0.175
0.146
-0.172
-0.232,0.581
-0.166,0.457
-0.564,0.219
.245
.396
.355
.384
0.146
0.182
-0.053
-0.254, 0.545
-0.119, 0.483
-0.442, 0.337
.457
.472
.234
Adverse events 0.066 0.015,0.116 .012
0.046 -0.006, 0.098
.084
Age assessed ≥18 years 0.126 -0.118,0.370
.308
0.068 -0.191, 0.326
.604
HSCL: Hopkins symptom checklist
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Table 4. Regression coefficients for literacy, pre-migration bereavement, serious life-events and post-
migration age assessment, in addition to asylum-seeker facilities, related to course of psychological distress
(HSCL) in young male asylum seekers 15 months after arrival in host country; results unadjusted and
adjusted for the other variables.
Unadjusted
Adjusted
Coef.
95% CI
Coef.
95% CI
Being literate
0.054
-
0.
254,0.363
.727
0.008
-
0.296, 0.313
.957
Parents deceased
Unknown vs both alive
One dead vs both alive
Both dead vs both alive
0.240
0.253
0.581
-0.278,0.757
-0.141,0.646
0.097,1.065
.134
.359
.206
.019
0.346
0.317
0.626
-0.133, 0.825
-0.051, 0.684
0.157, 1.094
.073
.154
.090
.010
Adverse events
0.039
-
0.030,0.107
.262
0.054
-
0.010, 0.119
.099
Age assessed
≥18 years
0.522
0.238,0.805
<0.001
0.375
0.058, 0.692
.021
Adult reception center
0.464
0.136,0.792
.006
0.354
0.
011, 0.695
.043
HSCL: Hopkins symptom checklist
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Table 5. Regression coefficients for literacy, pre-migration bereavement, serious life-events and post-
migration age assessment, asylum-seeker facilities, in addition to asylum-status, related to course of
psychological distress (HSCL) in young male asylum seekers 26 months after arrival in host country;
results unadjusted and adjusted for the other variables.
Unadjusted Adjusted
Coef.
95% CI
Coef.
95% CI
Being literate
0.025
-
0.
305,0.355
.881
-
0.040
-
0.322, 0.242
.777
Parents deceased
Unknown vs both alive
One dead vs both alive
Both dead vs both alive
0.591
0.261
0.670
0.021,1.162
-0.130,0.652
0.160,1.180
.043
.042
.187
.011
0.562
0.384
0.532
0.076, 1.047
0.049, 0.719
0.088, 0.976
.038
.024
.025
.020
Adverse events
-
0.059
-
0.126,
-
0.008
.083
-
0.041
-
0.097,0.016
.155
Age assessed ≥18 years
0.392
0.086
,0.
697
.013
-
0.070
-
0.428, 0.288
.696
Adult reception center
0.717
0.372,1.063
<.001
0.
272
-
0.169,0.712
.222
Asylum status
(vs acceptance)
Time-limited asylum
Refusal of asylum
-0.035
0.787
-0.391,0.320
0.402,1.172
<.001
.844
<.001
-0.103
0.590
-0.498, 0.292
0.122, 1.059
.017
.602
.015
HSCL: Hopkins symptom checklist
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One third of the participants were placed in a reception centre for adults. Figure 1 shows the
trajectories of psychological distress for participants placed in a reception centre for adults or
for youth. Those who were placed in a reception centre for adults had higher levels of
psychological distress symptoms both at 15 months (table 4) and 26 months (table 5)
compared to the remaining participants who were placed in reception centres for youth.
However, when adjusted for the outcome of the asylum application at the 26 month
assessment, the difference was not significant.
Final decision on the asylum claims was given between the last two test points. Refusal was
highly associated with higher levels of psychological distress. Achieving time limited
residence permission was not significantly different compared to permanent asylum (table 5).
Trajectories of psychological distress for those who received refusal or acceptance of their
asylum application are illustrated graphically in figure 2. Refusal was related to the official
determined age of the asylum seeker. Among the participants who were considered to be 18
or more, 52 out of 72(72.2%) were refused, compared to 15 out of 59(25.4%) among the
participants who were considered to be under 18 (7 missing).
The symptom scores of the PTSS (not illustrated in the tables) showed a similar association as
the HSCL-scores, with higher levels of PTSD-symptoms for those placed in a reception center
for adults at 15 months (adjusted difference 0.34, 95% CI 0.06 to 0.63, p=0.017), as well as
higher symptom scores for those who received a negative result for the asylum application at
26 months (adjusted difference 0.60, 95% CI 0.24 to 0.95, p=0.001).
Loss to follow-up was not significantly related to initial levels of distress. Also, none of the
baseline covariates were significantly related to nonresponse.
DISCUSSION
The present study is a follow-up of unaccompanied refugee minors with four waves of
assessment from within three weeks after arrival to more than two years spent in the host
country. At the group level the young asylum seekers reported high levels of psychological
distress on arrival, and symptom levels that stayed relatively unchanged over time. A low
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level of support during the asylum process and a negative outcome of the asylum application
were associated with higher levels of psychological distress.
Determination of the legal status of the asylum seekers involved age assessment procedures,
with x-rays and dental examinations for all participants in this study. This resulted in a
considerable gap between self reported age and the official age estimates designated by the
immigration authorities. On the basis of these examinations 55% of the asylum seekers were
considered to be at least the age of 18, and thus did not achieve a UM status. They risked
being moved to a facility for adults, with low levels of support and care, and limited access to
education and leisure activities. Also, the likelihood of being granted asylum was related to
age, as illustrated by the numbers of children and adults in our study who got refusal of their
claims.
The results from our study is in agreement with other studies that have found that high-
support housing, with sufficient supervision, was associated with lower levels of
psychological symptoms
5
. Others have also described problems directly connected to the
asylum process, and have registered them as components in a list of post-migration stressors
9
.
A weakness with most of these studies, are cross-sectional designs where there are no base-
line measurements. Only a few studies have repeated assessments
6
where problems directly
connected to the asylum process, such as age-assessment procedures, lack of adequate
housing, low support, etc., have been evaluated. The complexity of factors contributing to the
increasing health risk, make it difficult to draw specific conclusions within the total burden of
stressors.
In all studies with UM, it is likely that there will be some uncertainty concerning the
participants’ true chronological age
3
. Defined to be overage, in the present study, was not
significantly related to the symptom scores at the 4 month assessment, and there was no
indication that this process was stressful in itself. The age designated by the authorities,
determined what type of housing and level of care that was offered during the remaining
asylum-procedure
.
This meant that many of the participants had to live in a reception centre
for adults, where they had no guardian, no school, had to cook for themselves, and budget
their benefits. Our findings that this group had higher levels of psychological distress, add
further evidence that living conditions in the asylum seeking period may influence the mental
health of young refugees.
6, 9
It was probably known in the community and among the youth
that being categorized as an adult increased the risk of asylum refusal. This factor is
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impossible to separate from the expectations associated with the placement in youth or adult
reception-centres. There should be a cautious interpretation of the results because of this
clustering of risk factors. It is also possible that the asylum interviews were more adversarial
for those who had adverse age assessments. These interviews happened early in the asylum-
trajectories, but these official age assessments may have been used to question testimonial
credibility in the asylum process.
The outcome of the individual asylum applications was revealed to the asylum seekers
between one and two years after the arrival, and the negative impact of refusal was as
expected since several studies have found that difficulties obtaining legal residence are
associated with a range of psychological problems for this group
6
. We also know that
longitudinal studies indicate a trend towards reduction of mental health symptoms for
resettled refugees over time.
23
In a follow-up study of 131 young refugees in Denmark, the
long term effects of pre-migration adversity were mediated by a variety of factors connected
to social life.
24
Another study suggests positive health effects upon receiving permanent
residence mediated through improved living conditions.
25
This, in association with our
findings, emphasizes the importance of a supportive post-migration environment for all
refugees with pre-migratory experiences of serious trauma and human rights violations.
Strengths of our study include a longitudinal design, with first assessment within three weeks
after arrival to the host country, and repeated measures. We used computer-based assessment
with the same audio-translations throughout the study, and did not need to use interpreters in
order to complete the psychometric measures at follow-up. Due to a random selection of
participants we consider the sample to be representative for the refugees arriving to Norway
in the first decade of the century. However, selection of participants was limited to the most
common nationality groups arriving in Norway in this period, and may limit the
generalization of our findings to refugees in general.
High attrition rate due to the fact that asylum seekers tend to move between and within
countries, and that many were told to leave the country, may have biased our findings. It is
also possible that our research team was not viewed as independent from the authorities, even
though we stressed this fact when we informed about the project. Finally, we have no data as
to whether poor mental health might have affected the likelihood of asylum. Mental health is
generally not an issue in the processing of asylum applications in Norway. Also, the baseline
levels of mental health did not differ between participants that later received asylum and those
who did not.
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Implications
Our study shows that young asylum-seekers may spend considerable time in a safe Western
country, without recovering from the distress they have when they arrive in the host country.
A reason for the continuing psychological health problems in this non-clinical group of youth
can possibly be found in the living conditions and the level of care that is provided.
Adolescence is a challenging transition-period for most people. Fleeing to a foreign country
without parents or other caregivers makes this life-period even more challenging for young
refugees, and puts a considerable responsibility on the receiving countries. The burden of
increasing numbers of asylum-seekers challenges the political intentions of the UN
Convention on the Rights of the Child (CRC) to always give precedence to “the best interest
of the child”.
26
It is emphasized that safety and dignity in the use of medical assessments
should be applied as a supplement to evaluations of the physical appearance and the
psychological maturity of the child.
An important objection to the use of dental/bone-age assessments is their lack of precision,
especially around the time of puberty. The tests have been criticized for their large margins of
error, and their inadequacy in determining chronological age.
3
Professionals in various
countries have differed with some doctors refusing to take part in such tests, while others have
argued that these assessments are the best practice available.
Needs of vulnerable adolescents and young adults in a stressful life-situation deserve high
priority and should be a main focus regardless of the outcome of age assessments.
27
It is
noteworthy that access to psychiatric care was not evident for any of the participants although
a majority of this sample had symptom levels suggesting a positive diagnosis of PTSD. This
may reflect a lack of resources available for this population or reluctance to ask for health
care.
In our society turning 18 is usually considered a transition point from child to adult. Yet with
the limitations of the age determining process we cannot know for certain that this milestone
has been reached. The consequences of this uncertainty can have legal, social and material
implications.
28
If a child is put under difficult living-conditions, where previous human
support and education is withdrawn, this can have unintended negative effects on these young
individuals transitioning into adulthood. Some child protection services argue that vulnerable
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young adults are still in need of support and care after the age of 18
29
, and need to receive
specialised care into their twenties.
30
Future studies should focus on how mental health and
resilience evolve over a longer time span, and evaluate specific interventions and appropriate
levels of care for young refugees.
Acknowledgement: Gratitude to Liv Berit Løken for her care and assistance with all aspects
of the data collection. Thanks also to our very skilled interpreters, and to all the young
participants.
Contributors: M. Jakobsen has had the main responsibility for the drafting and writing of the
article. Heir was, in collaboration with DeMott and Jakobsen, responsible for the literature
review and the conception and design of the article. DeMott and Jakobsen has been
responsible for all phases of the data collection. Data analysis and interpretation of data was
done in cooperation between Jakobsen, Heir and Wentzel-Larsen. All authors have
contributed to the scientific writing and proof-reading of the article. The paper has been read
and approved by all authors before submission.
Funding: This work was supported by The Norwegian Directorate of Immigration.
Competing interests: None
Ethics approval: Regional Committees for Medical and Health Research Ethics.
Data sharing statement: No additional data are available.
References
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Figure legends:
Fig 1. Course of psychological distress (HSCL) during follow up of asylum seekers placed in asylum
centers for adults (n=38) and asylum seekers placed in asylum centers for youth (n=100).
Fig 2. Course of psychological distress (HSCL) during follow up of asylum seekers who received refusal
of asylum (n=67) and asylum seekers who received residence permission or time limited asylum
(n=64).
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STROBE Statement—checklist of items that should be included in reports of observational studies
Item
No. Recommendation
Page
No.
Relevant text from
manuscript
Title and abstract 1 (a) Indicate the study’s design with a commonly used term in the title or the abstract Done: Longitudinal study
(b) Provide in the abstract an informative and balanced summary of what was done and what was
found
Done: see Abstract
Introduction
Background/rationale 2 Explain the scientific background and rationale for the investigation being reported 3 Done: see introduction
Objectives 3 State specific objectives, including any prespecified hypotheses 4 Specified hypoth. not possible
Methods
Study design 4 Present key elements of study design early in the paper 4-5 Done
Setting 5 Describe the setting, locations, and relevant dates, including periods of recruitment, exposure,
follow-up, and data collection
5 Done
Participants 6 (a) Cohort study—Give the eligibility criteria, and the sources and methods of selection of
participants. Describe methods of follow-up
Case-control study—Give the eligibility criteria, and the sources and methods of case
ascertainment and control selection. Give the rationale for the choice of cases and controls
4 Done: see introduction and
methods
(b) Cohort study—For matched studies, give matching criteria and number of exposed and
unexposed
N.a.
Variables 7 Clearly define all outcomes, exposures, predictors, potential confounders, and effect modifiers.
Give diagnostic criteria, if applicable
6-7 Done: see methods (effect
modifiers not included)
Data sources/
measurement
8* For each variable of interest, give sources of data and details of methods of assessment
(measurement). Describe comparability of assessment methods if there is more than one group
7 Done
Bias 9 Describe any efforts to address potential sources of bias 7-8 Done: see statistical methods
Study size
Continued on next page
10 Explain how the study size was arrived at 4 Data collection was done in
collaboration with immigration
authorities. The numbers were
determined by new arrivals
during the periods we were
allowed to be at the centre.
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