Technical ReportPDF Available

The framework for the care, protection and support for orphans and children living in a world affected by HIV and AIDS.

Authors:
July 2004
THE FRAMEWORK
FOR THE PROTECTION, CARE AND SUPPORT
OF ORPHANS AND VULNERABLE CHILDREN
LIVING IN A WORLD WITH HIV AND AIDS
2 3
Foreword 4
Executive Summary 5
Situation and Response Overview 7
The Framework 12
Global Goals 12
Guiding Human Rights Principles 13
Key Strategies 14
1. Strengthen the capacity of families 15
2. Mobilize and support community-based responses 19
3. Ensure access to essential services 20
4. Ensure that governments protect the most vulnerable children 24
5. Raise awareness to create a supportive environment 26
Programming Guidance 27
Monitoring Progress Towards Goals 30
The Need for Increased International Solidarity and Support 32
The Way Forward 33
Annexes 35
Acknowledgements 38
References 40
CONTENTS
4 5
One of the most tragic and difficult challenges of the HIV/AIDS epidemic is the growing number of
children who have lost parents to AIDS or whose lives will never be the same because of it.
The crisis is both enormous and complex, affecting many millions of children. Nothing can take away
the pain that these children have already endured. But a conscious shift in our attention and efforts
can help alleviate the suffering that many of them still face and provide brighter prospects for their
future. Agreement on the key issues and actions to be taken will go a long way to increase the speed,
magnitude and the effectiveness of our response.
To this end, a broad range of stakeholders from all sectors of society has collaborated to produce
the framework presented here. It is targeted to senior leaders and decision makers around the world
who can influence policies, programmes and resources directed to orphans and vulnerable children.
Its purpose is to provide a common agenda for mounting an effective response. No government
or organization is able to take on all aspects of the framework simultaneously or with equal force.
And priorities will best be established within countries and at the local level. However, by affirming
this strategy, a broad and diverse group can speak with one voice about the urgency and importance
of the challenges, and about the collective efforts required to meet them.
This framework evolved from a process that began in 2000 and is based on the cumulative
experience of many actors over many years. It was developed and refined through regional and
global consultations with practitioners and policy makers and feedback from key experts. For much of
this period, the documents that drove this process were
the Children on the Brink
series and
preliminary versions of
Principles to Guide Programming for Orphans and Other Children Affected
by HIV/AIDS and Strategic Action for Children and Families Affected by AIDS.
The framework
presented here reflects an evolution of the strategies and principles first presented in these documents
and a broader consensus on a common agenda.
We would like to thank all of the individuals, organizations and government agencies that contributed
to the development of this framework. It is indeed a turning point, as global, national and local efforts
increase momentum to lessen – and ultimately overcome – the impact of HIV/AIDS on children.
We call upon all governments, international, non-governmental, faith-based and civil society
organizations concerned with orphans and vulnerable children living in a world with HIV/AIDS to
support this framework and to use it to build a collective response that fulfils the needs and rights of
all of these children.
The HIV/AIDS epidemic is a massive and rapidly mounting disaster for children. Almost 3 million
children are infected with the HIV virus or living with AIDS. More than 14 million children under
the age of 15 have lost one or both parents to AIDS, the vast majority of them in sub-Saharan Africa.
By 2010, the number of children orphaned by AIDS globally is expected to exceed 25 million.
But that is just a fraction of the number of children whose lives will have been radically altered by
the impact of HIV/AIDS on their families, communities, schools, health care and welfare systems and
local and national economies. With rates of HIV infection on the rise in many regions of the world,
this crisis for children will persist for decades, even as prevention and treatment programmes
are expanded.
The reaction of families and communities to the plight of these children has been compassionate
and remarkably resilient. However, they are struggling under the strain. To date, few resources are
reaching families and communities who are providing this front-line response, and little attention is
given to orphans and vulnerable children in most national development agendas. Moreover, donors
have yet to put forth comprehensive programmes on this issue. Responding to the crisis of children
affected by HIV/AIDS is clearly not yet seen as a global priority.
This framework, which was drawn up in collaboration with development practitioners and
representatives from a broad array of governmental agencies, faith-based and non-governmental
organizations, academic institutions, the private sector and civil society, presents a unique
opportunity for collective action. No single government or agency can effectively respond to
the myriad of problems created by the epidemic. But by working together in a creative, coordinated
way – with a common agenda – we can take an enormous step in the right direction.
The framework is based on lessons learned over many years. It considers families and communities as
the foundation of an effective, scaled-up response. Children, too, can be powerful agents of change,
a role that enhances their confidence and self-esteem as they become partners in the fight against
HIV/AIDS. In addition, the framework recommends that interventions that result from it be directed to
all vulnerable children and the communities in which they reside, and integrated into other programmes
to promote child welfare and reduce poverty. Targeting children living with HIV or AIDS or orphaned
as a result of it will only serve to exacerbate the stigma and discrimination against them.
The framework’s key strategies are as follows:
1. Strengthen the capacity of families to protect and care for orphans and vulnerable children by
prolonging the lives of parents and providing economic, psychosocial and other support;
2. Mobilize and support community-based responses;
3. Ensure access for orphans and vulnerable children to essential services, including education,
health care, birth registration and others;
4. Ensure that governments protect the most vulnerable children through improved policy and
legislation and by channelling resources to families and communities;
5. Raise awareness at all levels through advocacy and social mobilization to create a supportive
environment for children and families affected by HIV/AIDS.
The specific mix of activities to be implemented within countries will depend on local needs,
capacities and priorities. However, there is a growing consensus that education is pivotal in
FOREWORD EXECUTIVE SUMMARY
Peter Piot
Executive Director
UNAIDS
Carol Bellamy
Executive Director
UNICEF
6 7
The scale and spread of the HIV/AIDS epidemic is staggering. More than 20 million people around
the world have died from AIDS and another 41 million are living with HIV. With infection rates still
rising, the world is facing a catastrophic increase in illness and death that could undermine economic
and social development for years to come.
The impact of HIV/AIDS is most profoundly reflected in the lives of children, whose very survival and
development are at stake. Almost 3 million children under the age of 15 are living with HIV or AIDS,
over 2.7 million of them in sub-Saharan Africa.1 Another 14 million children have lost one or both
parents to AIDS.
THE DEFINITION OF ORPHANS
Maternal orphans
are children under age 18 whose mothers, and perhaps fathers,
have died (includes double orphans).
Paternal orphans
are children under age 18 whose fathers, and perhaps mothers,
have died (includes double orphans).
Double orphans
are children under age 18 whose mothers and fathers have both died.
While currently available statistics are for orphans under 15 years of age,
Children on
the Brink 2004
will report estimates for orphans under 18 years old, in keeping with
the definition of children put forth in the United Nations Convention on the Rights of
the Child.
Most of the children orphaned by AIDS live in developing countries, the vast majority of them (82 per
cent) in sub-Saharan Africa. As the infection spreads, the number of children who have lost parents to
AIDS is beginning to grow in other regions as well, including Asia, Latin America and the Caribbean
and Eastern Europe.
improving the lives and future prospects of orphans and those made vulnerable by HIV/AIDS. Access
to essential services also includes equitable access for children, parents and carers’ to life prolonging
therapy with ARVs.
The framework concludes by defining key actions that must be taken urgently, including the prioritization
of support for orphans, vulnerable children and their families in the national policies, actions and
plans of affected countries. It asks all governments to assess their resource commitments to launch and
sustain an adequate response over the decades that the crisis will be with us.
SITUATION AND RESPONSE OVERVIEW
1UNICEF orphan estimates.
Per cent of children under age of 15 that are
orphans by year, region and cause, 1990-2010
1990
1995
2001
2005
2010
1990
1995
2001
2005
2010
1990
1995
2001
2005
2010
8 9
Although precise estimates are not available, a much larger number of children have been made
vulnerable by the impact of HIV/AIDS. This vulnerability is due to poverty, hunger, armed conflict and
harmful child labour practices, among other threats, all of which fuel and are fuelled by the epidemic.
In the countries affected most, parents, adult relatives, teachers, health care workers and others
essential to the survival, development and protection of children are dying in unprecedented
numbers. Millions of children are living with sick and dying parents or in poor households that take in
orphans. Their communities have been weakened by HIV/AIDS as have their schools, health care
delivery systems and other social support networks. The complex and interrelated problems among
children and families affected by HIV/AIDS are illustrated in the diagram below.
Children are profoundly affected as their parents fall sick and die, setting them on a long trail of
painful experiences often characterized by:
Economic hardship -
With the family’s source of economic support threatened and savings spent
on care, household capacity to provide for children’s basic needs declines. An increasing number of
children are being forced to take on the daunting responsibility of supporting the family.
Lack of love, attention and affection -
The loss of a parent often means that young children are
left without consistent responsive care. They can also be deprived of interpersonal and environmental
stimulation and individualized affection and comfort.
Withdrawal from school -
Economic pressure and the responsibilities of caring for parents and
siblings can lead children to withdraw from school, even while their parents are still living.
Psychological distress -
The illness and death of their parents can cause extreme psychological
distress in children, along with increased fatalism that is worsened by the stigma attached to HIV/
AIDS and to being an orphan.
Loss of inheritance -
Orphans (and widows) are often deprived of money or property that is
rightfully theirs.
Increased abuse and risk of HIV infection -
Impoverished and sometimes without parents to
educate and protect them, orphans and vulnerable children face increased risk of abuse and HIV
infection. Many are forced into harmful child labour and/or sexually exploited for cash or to obtain
‘protection’, shelter or food.
Malnutrition and illness -
Orphans and other affected children are at increased risk of
malnutrition and illness and may be less likely to get the medical care they need.
Stigma, discrimination and isolation -
Dispossessed orphans are often obliged to leave their
homes and to live in unfamiliar and sometimes unwelcoming places. Children orphaned by AIDS are
more likely to be rejected by extended family members than those orphaned due to other causes.
With so much against them, orphans and other children affected by HIV/AIDS are frequently
marginalized and may quickly become the most vulnerable members of society.
During 2002, in rural Zimbabwe, households with orphans earned on average 31 per cent less
than households not affected by HIV/AIDS.2
In the United Republic of Tanzania, the school attendance rate for children living with at least one
parent is 71 per cent; for double orphans it is only 52 per cent.3
In that same country, over half the children working full time in mining are orphans.4
In Addis Ababa, Ethiopia, more than 75 per cent of child domestic workers are orphans.5
In parts of Zambia, 65 per cent of children engaged in commercial sex and 56 per cent of
children living on the streets are orphans.6
Although the impact of the HIV/AIDS to date has already been catastrophic, the worst is yet to come.
Over the next ten years, the number of people already infected who will die from AIDS will increase
dramatically. So, too, will the number of orphans and vulnerable children. By 2010, the number of
Although only a portion of children affected by AIDS lose one or both parents, the impact on those
who do can be severe. Under ordinary circumstances, the death of one young parent is not linked to
the death of the other parent. But because HIV is sexually transmitted, the probability that both parents
will die if one is infected is high. Moreover, many children are losing both parents in a relatively short
period of time. By 2010, the number of children in sub-Saharan Africa who have lost both parents
from AIDS will rise to 8 million, from 5.5 million in 2001, according to estimates. As the epidemic
spreads, similar trends can be expected in other regions as well.
2Zimbabwe National Vulnerability Assessment Committee in collaboration with the SADC FANR Vulnerability Assessment
Committee, ‘Zimbabwe Emergency Food Security and Vulnerability Assessment’, Report Number 3, Harare, Zimbabwe,
April 2003.
3 ‘Demographic and Health Survey’, United Republic of Tanzania, 1999.
4Mwami, J.A., J.A. Sanga and J. Nyoni,
Children Labour in Mining: A Rapid Assessment,
International Labour
Organization/International Programme on the Elimination of Child Labour (Tanzania), Geneva, January 2002.
5Kifle, A., ‘Ethiopia, Child Domestic Workers in Addis Ababa: A Rapid Assessment’, International Labour Organization,
Geneva, July 2002.
6Mushingeh, A., et al., ‘A Rapid Assessment on the Case of the Lusaka, Copperbelt and Eastern Provinces’, HIV/AIDS and
Child Labour in Zambia, Paper No. 5, International Labour Office, Geneva, 2003.
Problem Among Children and Families
Affected by HIV/AIDS
Number of double orphans in sub-Saharan
Africa is increasing due to HIV/AIDS
Source : Williamson, 2000
10 11
children orphaned by AIDS is expected to exceed 25 million globally,7 and the number of vulnerable
children will greatly surpass that estimate. The number of children infected with HIV will also increase
significantly, and half of these children will most likely die before their first birthday. The crisis is
unprecedented and demands an unprecedented response that will be sustained over the next 20 to
30 years.
rights and ensure the well-being of orphans, but opportunities for significant expansion have not yet
been grasped. There is also concern that many of these responses are reactive in nature and regard
children as ‘helpless victims’, providing only immediate and limited support, such as handouts of
food and clothing. Such responses might further reinforce dependencies and have severe negative
consequences in the future. It is crucial that such responses take a long-term perspective and regard
children and their families as active participants in fighting HIV/AIDS and improving their own lives.
In the face of this deepening crisis, government leadership, coordination and facilitation has been
fragmented and weak. Organized programmes on HIV/AIDS have reached only a small fraction of
the most vulnerable children, while the demand and need for guidance and capacity-building to
expand the response is mounting. So far, orphans and vulnerable children have failed to receive
the attention they deserve in poverty reduction strategies and other national development instruments.
Nor have donors responded to the situation adequately or with sufficient speed. Clearly, responding
to the epidemic is not yet seen as an urgent global priority. The most critical challenge facing govern-
ments, non-governmental organizations and communities is to develop affordable, effective responses
that match the scale and longevity of the crisis.
There is an abundance of challenges. But there is also reason for hope. Governments and
development partners at all levels have gained substantial experience in recent years in fighting HIV/
AIDS and possess greater knowledge about what works. National leadership is gradually increasing
to help defeat the epidemic. Pressure and action are gaining ground to make HIV/AIDS testing and
treatment more widely available. Partnerships among stakeholders at all levels are expanding.
In light of these advancements, the platform for an accelerated response exists. At this critical
juncture, key partners from governmental agencies, international organizations and civil society have
collaborated to develop a common framework for an appropriate response and are increasingly
working closer and better together at national and subnational levels.
Families and communities are the first line of response to the epidemic. They have reacted with
tremendous resilience and compassion, absorbing orphans mainly within the extended family system.
Yet there is compelling evidence that families are increasingly struggling under the strain, and failing
to provide fully for their children’s needs. Households headed by women and the elderly, who are
already at the edge of poverty, must stretch their meagre resources further to accommodate additional
children. An increasing number of households are made up of children alone, who are left to fend for
themselves. AIDS is putting tremendous pressure on single parents, extended families and traditional
community safety nets. Government social safety nets are often absent; when present, they may fail to
reach the most marginalized families and communities.
The epidemic is compounding the impact of poverty at all levels. In hard-hit countries, the capacity of
ministries of education, health, agriculture and social welfare, among others, has been drained by
widespread deaths among their staff and increasing demands for service.
Without adequate collective action, the burden of orphans and vulnerable children is likely to
diminish development prospects, reduce school enrolment and increase social inequity and
instability. It will also push rising numbers of children onto the streets or into institutions.
The response to the orphan crisis is growing. But it lacks the necessary urgency and remains unfocussed
and limited in scope. Thousands of community-based programmes have been implemented by
faith-based and non-governmental organizations as well as communities themselves to protect the
EPIDEMIC CURVES - HIV, AIDS, ORPHANS
7United States Agency for International Development, Joint United Nations Programme on HIV/AIDS, and United Nations
Children’s Fund,
Children on the Brink: A joint report on orphan estimates and program strategies,
TvT Associates/
The Synergy Project, Washington, D.C., 2002.
12 13
The human tragedy and mounting crisis of orphans and vulnerable children demands a global
response. Attention now is required to generate the resources and to expand the partnerships needed
to respond adequately, and with common objectives, over the long term. The framework presented
below reflects a broad international consensus around goals, principles, strategies and programming
that should guide such a response. It is directed particularly to senior government officials as well as
organizational leaders and decision-makers who have the capacity to mobilize and sustain
a significant increase in the global response. The application of this framework will add momentum
and solidarity to international, regional, national and local efforts to confront HIV/AIDS and mitigate
its impact on children.
Global Goals
In September 2000, the largest ever gathering of world leaders adopted the United Nations
Millennium Declaration, an ambitious agenda for reducing poverty and improving lives across the
globe. All eight of the resulting Millennium Development Goals have a direct impact on the lives of
children. Key among them is the fight against HIV/AIDS.
It is widely recognized that the Millennium Declaration and complementary goals and commitments,
on issues such as education for all and eliminating the worst forms of child labour, cannot be achieved
without addressing the HIV/AIDS epidemic and its impact on children.
In recognition of its global significance, the United Nations General Assembly Special Session on
HIV/AIDS, in June 2001, generated an extraordinary level of leadership, awareness and support in
response to the HIV/AIDS crisis. A Declaration of Commitment adopted at the Special Session
specified time-bound goals and targets to measure progress and to ensure accountability. As part of
a longer-term response to the growing number of orphans and vulnerable children, concrete targets
were set through 2005. Countries resolved that, together with partners, they would:
By 2003, develop and by 2005 implement national policies and strategies to: build and strengthen
governmental, family, and community capacities to provide a supportive environment for
orphans and girls and boys infected and affected by HIV/AIDS, including by providing
appropriate counselling and psychosocial support; ensuring their enrolment in school and
access to shelter, good nutrition, health and social services on an equal basis with other
children; to protect orphans and vulnerable children from all forms of abuse, violence, exploita-
tion, discrimination, trafficking and loss of inheritance;
Ensure non-discrimination and full and equal enjoyment of all human rights through the
promotion of an active and visible policy of de-stigmatization of children orphaned and made
vulnerable by HIV/AIDS;
Urge the international community, particularly donor countries, civil society as well as the private
sector to complement effectively national programmes to support programmes for children
orphaned or made vulnerable by HIV/AIDS in affected regions, in countries at high risk and to
direct special assistance to sub-Saharan Africa.
In May 2002, the UN General Assembly Special Session on Children (‘A World Fit for Children’)
reaffirmed the Millennium Development Goals and the 2001 Special Session goals specifically
established for children affected by HIV/AIDS.
Guiding Human Rights Principles
The United Nations Convention on the Rights of the Child and other relevant human rights instruments
guide all actions in support of orphans and vulnerable children, in the recognition that development
is the realization of a set of universally applicable, inalienable rights. This approach recognizes
that children are both rights holders and participants; they are not merely the recipients of services or
the beneficiaries of protective measures.
The Convention on the Rights of the Child affirms that the family has primary responsibility to protect
and care for the child, and that governments have the responsibility to protect, preserve and support
the child-family relationship. The Convention also specifies the responsibility of the State to provide
special protection for a child who is deprived of his or her family environment. Especially relevant
articles of the Convention are listed in Annex 2.
The underlying values – or ‘guiding principles’ – of the Convention, described below, influence
the way each right is fulfilled and serve as a constant reference for the implementation and monitoring
of all efforts to fulfil and protect children’s rights.
Best interests of the child
The Convention on the Rights of the Child states that in each and every decision affecting
the child, the various possible solutions must be considered and due weight given to the child’s
best interests. This principle is immediately relevant to orphans and vulnerable children where
decisions are being made regarding their caretakers, property and futures, but extends further
to all matters that concern children, including development policies and programmes and
allocation of public resources.
Non-discrimination
All children should be given the opportunity to enjoy the rights recognized by the Convention on
the Rights of the Child. States must identify the most vulnerable and disadvantaged children and
take affirmative action to ensure that the rights of these children are realized and protected.
Orphans and vulnerable children are at risk of discrimination in all aspects of their lives and,
therefore, this principle is essential in guiding all efforts to address HIV/AIDS.
Right to survival, well-being and development
The CRC is grounded in the recognition of the right to child survival, well-being and
development. This principle is in no way limited to a physical perspective; rather, it further
emphasizes the need to ensure full and harmonious development of the child, including at the
spiritual, moral, psychological and social levels. States are obliged to undertake strategies to
assist the most disadvantaged children, including those affected by HIV and AIDS.
Respect for the view of the child
This principle affirms that children are entitled to express their views in all matters affecting them
and requires that those views be given due weight in accordance with the child’s age and
THE FRAMEWORK
14 15
maturity. It recognizes the potential of children to enrich decision-making processes and to par-
ticipate as citizens and actors of change. This principle underscores the importance of ensuring
that orphans and vulnerable children participate in decisions that affect them, such as those
concerning their care and inheritance, and that they have important contributions to make in the
fight against HIV/AIDS.
Key Strategies
The five strategies outlined below are intended to target key action areas and provide operational
guidance to governments and other stakeholders as they respond to the needs of orphans and
vulnerable children. Pursuing these strategies within the context of national development plans will be
key to the achievement of goals established at the Millennium Summit and at the UN Special Session
on HIV/AIDS.
The strategies represent an evolution of those presented in
Children on the Brink 2002
. Strengthening
the capacity of families and communities continues to be of central importance. However, increasing
access to services has been given greater prominence and will require the leadership of governments
as well as the support of non-governmental, faith-based and community organizations. These
strategies are to be implemented hand in hand with efforts to prevent the further spread of HIV,
the loss of parents to AIDS and other causes of child vulnerability.
FIVE KEY STRATEGIES
1. Strengthen the capacity of families to protect and care for orphans and vulnerable
children by prolonging the lives of parents and providing economic, psychosocial and
other support.
2. Mobilize and support community-based responses.
3. Ensure access for orphans and vulnerable children to essential services, including
education, health care, birth registration and others.
4. Ensure that governments protect the most vulnerable children through improved
policy and legislation and by channelling resources to families and communities.
5.Raise awareness at all levels through advocacy and social mobilization to create
a supportive environment for children and families affected by HIV/AIDS.
The actions described below are intended to help shape an effective response to the growing crisis.
They represent the collective experience and knowledge of those working to protect and care for
orphans and vulnerable children.
It should be noted, however, that the impact of HIV/AIDS on children varies considerably from one
context to another. There is no model or specific set of interventions that can be prescribed for all
communities, countries and regions. For this reason, within each country, the mix of strategies and
actions will vary according to locally identified needs, capacities and priorities.
1. Strengthen the capacity of families to protect and care for orphans and
vulnerable children by prolonging the lives of parents and providing economic,
psychosocial and other support.
When a household begins to feel the effects of HIV/AIDS, family relationships provide the most
immediate source of support. Mothers or fathers who lose their spouses to AIDS are burdened with
increased economic and child-care responsibilities and, in some cases, may also be ill themselves.
In families where both parents die, there is no ideal placement for the children, just better or worse
options. Enabling siblings to remain together with a single parent, in the care of relatives or with
a family they already know and are prepared to accept as new, permanent caregivers are the better
options. The vast majority of orphans and vulnerable children are living with surviving parents or their
extended family. Even the majority of children who live on the streets maintain ties with their families.
Recognizing this reality, the core of a strategy to respond to orphans and vulnerable children must be
to strengthen the capacity of families to care for and protect their children.
Families are the best hope for vulnerable children, but they require support from outside sources for
both immediate survival needs and the longer term. Families require a combination of economic,
material and psychosocial support. In addition, family members who are living with HIV or AIDS need
support that will enable them to live longer, better and in greater dignity. Six major areas of interven-
tion are vital to the coping capacity of families. A partnership of government and community-based
organizations, including faith-based organizations, will be needed to provide such support.
Improving the economic capacity of households
BUILDING THE CAPACITY OF FAMILIES
Improve household economic capacity
Provide psychosocial support to affected children and their caregivers
Strengthen and support child-care capacities
Support succession planning
Prolong the lives of parents
Strengthen young people’s life skills
The capacity of families to protect the rights and ensure the well-being of their children depends
largely on the ability of a household to meet immediate needs, ensure a steady income and maintain
the integrity of its economic safety net. Possible interventions should aim to enhance the economic
resiliency of the household. Conditional cash transfers, insurance mechanisms, direct subsidies and
material assistance can help alleviate the urgent needs of the most vulnerable households. Examples
of longer-term interventions include introducing members to self-managed savings groups; facilitating
access to financial services offered by micro-finance institutions; creating linkages between micro
enterprises and more profitable markets or more economical sources for purchasing raw materials;
and improving agricultural efficiency.
It is important that older children and young people take part in planning activities designed to
improve household economic capacity. This will encourage their self-sufficiency and help to protect
them from harmful child labour and future economic exploitation.
Particular attention must be given to the growing number of orphans and vulnerable children living in
rural agricultural areas, since they are a significant part of the future agricultural labour force.
16 17
Intergenerational transfer of knowledge and skills is threatened by the extended illness and premature
death of parents. As was demonstrated in Cambodia, programmes that focus on improving
agricultural knowledge and skills can be promoted in tandem with food security, nutrition and life
skills programmes to maximize both immediate and longer-term benefits.8
The specific strategy employed to support household economic activities will depend on the local
context and the needs of individual households. However, criteria for participation should be based
on economic vulnerability. Programming strategies should be those most likely to attract the poorer
socio-economic strata in a given area.
National poverty reduction and development strategies, including employment and market creation
and agricultural extension, can be tailored to reach vulnerable households. Micro-economic studies
can help show governments that small investments in children and families have the potential to reap
larger benefits to the national economy.
Providing psychosocial support to affected children and their caregivers
Many programmes for orphans and vulnerable children have focused on material support and
meeting children’s physical needs. Since psychosocial problems are sometimes poorly understood or
difficult to assess, they are often not adequately addressed by programmes.
HIV/AIDS undermines, then destroys, the fundamental human attachments essential to normal family
life and child development. Children affected by HIV/AIDS suffer anxiety and fear during the years of
parental illness, then grief and trauma with the death of a parent. These problems are often
compounded by cultural taboos surrounding discussion of AIDS and death. It cannot be assumed
that children and their caregivers are always able to cope without support. They need plenty of
opportunity to express their feelings without fear of stigma, discrimination and exclusion.
Addressing psychosocial needs does not necessarily require separate programmes. Relevant
measures can be incorporated into other activities. Group approaches, peer support and individual
counselling are needed. Schools, social welfare programmes, faith-based organizations and other
existing structures with the potential to reach AIDS-affected families in their communities can offer
much needed support. Teachers, health care workers and others can be trained to identify signs of
distress and to take appropriate action. Community-based monitoring and support activities, such as
those conducted by women and adolescent volunteers in Zimbabwe, are helping to guide and protect
children.9 Some of the elements that have been identified as key to the success of psychosocial
support interventions are community ownership, engaging children and young people in planning
and implementation, and tailoring activities to local cultural practices and beliefs.10 In addition,
programmes must provide support that is developmentally appropriate, recognizing that children
of different ages respond differently to trauma and loss, and need support throughout childhood
and youth.
The facilitated use of memory books and memory boxes is one approach that has been shown
effective in helping to address psychosocial issues.11 Memory tools promote discussion between
parent and child about what is happening and who can provide care for the child in the future. They
also provide a lasting link for a child to his or her parent and positive experiences that will be
remembered.
Strengthening and supporting child-care capacities
With so many parents dying prematurely, single parents, a wide range of relatives and other
community members are finding themselves with new child-care responsibilities. In the countries most
affected, the elderly are caring for a large percentage of orphans and vulnerable children.12
Increasingly, children themselves are heading up households. Improving the quality and reach of
government promoted efforts to support new caregivers through schools, health centres, preschools
and social welfare services is essential.
Community-based efforts to strengthen and support good child-rearing practices must also be brought
to scale. Community child-care/day-care initiatives can help to alleviate caregivers and create child
development opportunities. In some countries, it has been found effective to tailor programmes to
the needs of older caregivers or to child-headed households. Caregiver support groups have also
been found to provide much needed relief and the opportunity to share experiences and learn from
one another.13 Special attention is warranted in all efforts to ensure that orphans and vulnerable
children are not discriminated against or treated unfairly in their homes. Both government and
community services should be made available to prevent and respond to sexual abuse and economic
exploitation of children in their homes.14
A particular emphasis must be placed on integrated early childhood development of children of
pre-school age, especially through efforts that focus on food and nutrition, health and development,
psychosocial needs, day care and other key areas. Activities to strengthen and support the ‘coping
skills’and emotional resources of new caregivers are also important.
Supporting succession planning
There is an urgent need to significantly expand activities geared to helping parents plan for their
children’s future. This includes guidance in disclosing their illness, comforting children in their grief,
making a will and other arrangements, such as identifying an appropriate caretaker and seeing to
the preparation and passing on of legal documents, such as birth certificates and title deeds to land.
When parents do not make a will, children can lose their inheritance (money, land, property and
livestock). But even with a valid will, the process can go awry. Widows and their children are often
denied what is rightfully theirs because of statutory or traditional laws. And even where law or
religion provides for the transfer of money or property to children, enforcement of such laws can be
weak. In such cases, relatives often end up with a child’s inheritance. Planning in advance will help
parents living with HIV or AIDS ensure a better future for their children and alleviate a major source of
emotional distress and anxiety.
8Sukothea, N., The Empowerment of Farmer Life Schools, 2002, Community Integrated Pest Management Website:
http://www.communityipm.org.
9Levine, C. and G. Foster,
The White Oak Report: Building international support for children affected by AIDS
, The Orphan
Project, New York, 2000; and Foster, G. and L. Jiwli, ‘Psychosocial Support of Children Affected by AIDS: An evaluation
and review of Masiye Camp’, Bulawayo, Zimbabwe, 2001.
10 Regional Psychosocial Support Initiative (REPSSI), Resource CD on Psychosocial Support for Children Affected by HIV/
AIDS, REPSSI, Bulawayo, Zimbabwe, 2003.
11 Morgan, Jonathon, et al.,
Manual: Make Your Own Memory Box,
The Memory Box Project, which forms part of the AIDS
and Society Research Unit at the University of Cape Town, South Africa, 2003.
12 World Bank studies have found that the elderly are caring for 20 per cent to over 50 per cent of orphaned children in Africa
and Latin America (HelpAge International/International HIV/AIDS Alliance,
Forgotten Families: Older people as carers of
orphans and vulnerable children,
HelpAge International, London, 2003.)
13 HelpAge International/International HIV/AIDS Alliance, 2003.
14 Human Rights Watch, ‘Policy Paralysis: A call for action on HIV/AIDS-related human rights abuses against women and girls
in Africa’, Human Rights Watch, New York, December 2003.
18 19
Improving succession practices requires government legislation and enforcement as well as
training of parents and families. This can be carried out by government workers, non-governmental
organizations and community volunteers. In Namibia, health care workers, caregivers, counsellors
and community activists involved in the treatment and care of people living with HIV and AIDS are
being trained as trainers in will writing and inheritance.15 Psychosocial support is an important
element of succession planning and approaches using memory, such as those mentioned above, have
proven helpful in talking about one’s illness, solidifying a sense of family identity, enhancing
emotional coping capacity and planning for succession.
Prolonging the lives of HIV-positive parents
Helping ill parents to become healthier and live longer is one of the most important areas of action to
benefit their children. This can be accomplished through appropriate treatment and by supporting
their care at home. The longer an HIV-infected parent stays healthy, the better the outcome for
the child. Providing a supportive environment that encourages parents to test for HIV and seek
treatment is fundamental. Efforts to expand access to highly active antiretroviral therapy are critical to
prolonging the lives of millions of infected parents.16 Important among these is the ‘3 by 5 initiative’
that aims to treat 3 million people living with HIV by 2005.17 Linking care and support with existing
initiatives such as the prevention of parent-to-child transmission will be a key strategy for reaching
parents who are HIV-positive or living with AIDS and can benefit all family members.
Even before antiretroviral therapy becomes more widely available, the lives of HIV-positive parents
can be improved and prolonged by ensuring they have access to the inexpensive medicines needed
to treat common infections. Services for treating common illnesses and opportunistic infections need
to be significantly expanded through clinic- and home-based care to people living with HIV or AIDS.
Making medicine, food and nutrition education available through home-based care and support
programmes can benefit both parents and children and help parents live longer, in greater dignity
and comfort.
At the same time, aggressive, scaled-up prevention programmes are urgently needed for the many
millions of parents and young people who are not infected with HIV.
Strengthening young peoples’ life and survival skills
Another ramification of the premature death of parents is the fact that skills are no longer passed
down from one generation to another. And in the absence of parental guidance and support,
adolescents and young people are forced to take on responsibilities for which they may not be
prepared. Training young people to cope with such demands is an essential element of the response.
In particular, young people need new and strengthened skills in areas including household
management, caring for younger siblings, budgeting and accessing services. Vocational training and
apprenticeships are key to enhancing their ability to generate income. In addition, young people
must be equipped with the social and interpersonal skills necessary to make informed decisions,
communicate effectively and develop coping and self-management mechanisms that will enable
them to protect themselves from HIV infection and other risks. Young people are not passive recipients
in this process of skill development. Encouraging their active participation in planning and
implementation will improve the quality of programmes and build self-esteem as they take on
increased responsibility and become partners in the fight against HIV/AIDS.
2. Mobilize and support community-based responses
When families cannot adequately meet the basic needs of their children, the community is a safety net
in providing essential support. In practice, care of orphans and vulnerable children comes from
nuclear families surviving with community assistance, extended families able to cater for increased
numbers with community assistance, and, in extreme cases, communities caring for children in
child-headed households or with no family involvement. Reinforcing the capacity of communities to
provide support, protection and care is the foundation of a response that will match the scale and
long-term impact of the HIV/AIDS crisis for children.
Lessons learned through the many community activities undertaken to date in support of orphans and
other children at risk indicate the need for a systematic approach to community mobilization - one that
focuses on community concerns about their most vulnerable children.18 Four key areas of intervention
nurture and strengthen community initiative and provide a solid basis for expansion. Faith-based and
non-governmental organizations, along with other community structures, have a key role to play in
mobilizing and supporting community efforts.
MOBILIZING AND SUPPORTING COMMUNITY-BASED RESPONSES
Engage local leaders in responding to the needs of vulnerable community members
Organize and support activities that enable community members to talk more openly
about HIV/AIDS
Organize cooperative support activities
Promote and support community care for children without family support
Engaging local leaders
Local leaders, including traditional and religious leaders, administrators, women’s groups, prominent
citizens, journalists, teachers and others need to be sensitized to the impact of HIV/AIDS and to
the circumstances of orphans and vulnerable children. This sensitization process aims to encourage
leaders and their communities to take action in support of affected children and to monitor those most
vulnerable, ensuring that they are under the supervision of adults, in school, accessing needed
services and realizing other basic rights. Of particular importance is alerting leaders to the risk of
sexual abuse and exploitative labour faced by these children and the need to create a culture in
which abuse is unacceptable and violations are dealt with effectively. This heightened awareness
provides much needed attention to vulnerable children and stimulates locally driven action in
response to identified needs.
Enabling communities to talk more openly about HIV/AIDS
Lack of knowledge about HIV/AIDS, misinformation and negative attitudes towards people living
with HIV and AIDS can undermine the willingness of a community to provide for the needs of
those affected. In addition to their fear of the disease, people may associate AIDS with behaviours
15 Shipiki, Ruusa and Michaela Figueira,
Training Manual for Trainers on Will Writing and Inheritance in Namibia,
Legal
Assistance Centre: AIDS Law Unit, Windhoek, Namibia, 2001.
16 Widespread access to and use of highly active antiretroviral therapy could reduce the projected number of orphans in
coming years.
17 See World Health Organization (WHO) website: www.who.int/3by5/about/en/.
18 For a more detailed discussion of guidelines for community mobilization, see Williamson, John, ‘Strategic Action for
Children and Families Affected by HIV/AIDS’ (draft), November 2002.
20 21
they do not condone and discriminate against those who are infected. In many places, fear and
stigmatization have left HIV-positive children and sometimes children orphaned by AIDS without care.
Information can help reduce the stigma and discrimination that surrounds the epidemic. Efforts to
open a community dialogue on HIV/AIDS can dispel myths, raise awareness and engender
compassion. Children and young people are important participants in this process. Youth clubs,
religious groups, schools and other community structures offer possible avenues for information
dissemination and dialogue.
Organizing and supporting cooperative activities
Poor communities provide many examples of using locally available resources to help children and
households made vulnerable by HIV/AIDS. Community groups can provide direct help to such
children. They can also assist AIDS-affected families to provide for their children’s basic needs.
Successful activities have included community monitoring and visiting of affected households;
volunteer programmes that provide much needed psychosocial support; communal gardens;
community child-care services; community schools; provision of relief labour and respite childcare;
pooling of funds to provide material assistance; community protectors; and youth clubs and
recreation programmes. As in Malawi and Uganda, these activities are often conceived of and
supported by community development committees. Larger-scale district-level initiatives and national
development programmes can be adapted to support such efforts. Investing in communities to bring
such efforts to scale will make an enormous difference in the lives of orphans and vulnerable children.
This approach will have the added benefit of enhancing a community’s sense of its own identity and
power over its own affairs.
Promoting and supporting community care for children without any family support
Some children, at least temporarily, will not be able to access family-based care within their own
communities. Efforts are needed to expand fostering, adoption and other types of non-institutional
care for them.19 Dramatically increasing the availability of foster or adoptive care in children’s own
communities is one of the biggest challenges that must be met. While governments work to expand
fostering and adoption services, communities can provide support to increase families’ willingness to
bring children into their extended households, even if only on a temporary basis. Communities can
also assist in monitoring these households to ensure that new caregivers are coping with increased
demands and that children are not being abused or exploited.
3. Ensure access for orphans and vulnerable children to essential services, including
education, health care, birth registration and others.
Orphans and vulnerable children are at a disadvantage in obtaining essential services necessary to
their welfare. In many countries, they have lower school attendance rates and are at risk of poor
nutrition and health. They are also at greater risk of abuse and exploitation because of their status in
society. Typically, orphans and vulnerable children have significant psychosocial needs and their
support systems to meet those needs are weak or, in extreme cases, non-existent.
Article 65 of the Declaration of Commitment of the UN Special Session on HIV/AIDS calls for
increased access to essential services and parity for orphans and vulnerable children. Governments
have an obligation to provide services to all children and communities. At the local level, non-
governmental organizations, faith-based organizations, the private sector and other indigenous
community groups often play a critical role in extending the reach of these services. As part of overall
government service provision plans, there is a need for increased resources and innovative services,
such as combined mobile services to bring services to children where they live. To ensure greater
impact and sustainability, interventions that build the capacity, quality, collaboration and reach of
effective service delivery programmes are warranted.
ENSURING ACCESS TO ESSENTIAL SERVICES
Increase school enrolment and attendance
Ensure birth registration for all children
Provide basic health and nutrition services
Improve access to safe water and sanitation
Ensure that judicial systems protect vulnerable children
Ensure placement services for children without family care
Strengthen local planning and action
Education
Increasingly, stakeholders in the fight against HIV/AIDS are recognizing and promoting the fact
that education can leverage significant improvements in the lives of orphans and vulnerable
children.20 Schools benefit the individual child, but can also serve as important resource centres to
meet the broader needs of communities.
Every child has the right to a primary education. It is vital for children’s futures that they attend school
and take full advantage of this right. Beyond academic learning, education is also important for their
psychosocial development. Schools can provide children with a safe, structured environment,
the emotional support and supervision of adults, and the opportunity to learn how to interact with
other children and develop social networks. Education can also reduce children’s risk of HIV infection
by increasing knowledge, awareness, skills and opportunities.21
Countries and communities must identify the barriers to education and define locally appropriate
strategies for attracting and keeping children in school. Fees and hidden costs of schooling are
often the greatest obstacles. The movement to abolish school fees is a critical effort for ensuring that
orphans and vulnerable children enter and stay in school. Interventions that address the opportunity
costs of attending school are also needed and may include child-care services, labour saving
techniques and locally defined incentives. The introduction of school meals, especially in areas where
food security is an issue, provides the added benefit of improving children’s attendance and
nutritional status. When combined with take-home rations, school meals also offer benefits beyond
the individual child by supporting the larger household. However, school feeding programmes need
to be undertaken in full consultation with community leaders and donors, when involved, ensuring
their awareness of the dangers of creating dependency.
Teachers have a critical role to play in helping school-aged children to remain free from HIV and
providing emotional support. Building capacity and providing supervision and support for teachers
19 For a discussion of orphanages, see Annex 3.
20 See Joint United Nations Programme on HIV/AIDS, et al.,
HIV/AIDS and Education: A strategic approach,
UNAIDS,
Geneva, November 2002; and Joint United Nations Programme on HIV/AIDS, ‘The Role of Education in Supporting and
Caring for Orphans and Other Children Made Vulnerable by HIV/AIDS’ (draft discussion paper for the Global Partners
Forum, October 2003, Geneva), UNAIDS, 2003.
21 International HIV/AIDS Alliance,
Building Blocks: Africa-Wide Briefing Notes: Education,
International HIV/AIDS Alliance,
Brighton, United Kingdom, 2003.
22 23
will be key to improving educational quality. Teachers can be trained to identify vulnerable children
and provide needed support and counselling. Making the curriculum more relevant to the daily needs
of children and youth will help attract and keep children in school. Because children’s learning begins
well before they are old enough for formal education, efforts are needed to provide age-appropriate
educational activities to pre-school age children whenever possible.
Unfortunately, schools can also be a place of increased risk. Policy and monitoring measures are
needed to prevent and address situations in which students are abused or exploited. These measures
can help ensure that all children, particularly those most vulnerable, are not prevented from enjoying
their right to a safe educational environment due to such practices.
Enhancing the role of schools in fighting HIV/AIDS and mitigating its impact on orphans and
vulnerable children may also involve childcare (both before and after school), recreational
programmes and community education. Efforts to improve and expand the role of schools will require
the involvement of parents, community leaders and children themselves.
Birth registration
A fundamental role of local authorities is to ensure that systems are in place to register the birth of
all children. Although this may not always be accomplished at the time of birth, birth registration
is critical both for identification as well as access to public services and welfare. Local and national
authorities need to develop and implement strategies for increased birth registration. As part of their
monitoring role described above, communities can assist in identifying orphans and vulnerable
children in need of birth registration, can alert their caretakers to its importance, and can assist local
authorities in ensuring that these children are registered.
Health and nutrition
Mechanisms need to be put in place to ensure that orphans, children infected with HIV and other
vulnerable children have access to essential health services. The elimination of user fees may be worth
exploring in this regard. However, circumstances – and therefore policy decisions – will vary across
countries.22 Programmes that support voluntary HIV counselling and testing, prevention of parent-
to-child transmission of HIV, and care and support of people living with AIDS provide key entry points
for identifying HIV-positive and other vulnerable children in need of health care services.
Giving HIV-positive children and their caregivers greater access to life-prolonging therapies is critical
and must be moved higher on global and national agendas. Initiatives to expand access to highly
active antiretroviral therapy and to link treatment efforts with prevention of parent-to-child
transmission, the integrated management of childhood illnesses and other programmes must be
promoted. Home-based care and support can improve the welfare and self-esteem of children and
their families. It can also provide an opportunity to identify children most in need. It is important
that home-based care programmes ensure that support is arranged for children after a parent has
died. Essential health services for all young children include vaccination, vitamin A supplementation,
growth monitoring, infant feeding, de-worming and the integrated management of childhood
illnesses. As children grow older, HIV prevention and youth-friendly health services are key to their
continued well-being.
Water and sanitation
In many communities hard hit by HIV/AIDS, access to safe water and sanitation has been identified
as a severe problem for orphans, other vulnerable children and their families. In some places, this
issue is at the core of health and survival, both for children and their parents. Efforts to increase
access to safe water through the establishment of water stations, training and support for safe water
storage and treatment, extended pipelines, boreholes and other locally appropriate means are
warranted. Better access to safe water also reduces the work demands on vulnerable children and
their caretakers. Proper hygiene and food handling are important components of information
provided to caretakers.
Judicial protection
Abuse, exploitation and inheritance violations are increasing threats to orphans and vulnerable
children. The community has an extremely vital role to play in this regard. Faith-based and other
community organizations can work with community members to monitor children, intervene locally
where appropriate and alert authorities to cases of abuse. In addition, governments must make
widespread efforts to ensure that judges and traditional leaders are aware of these problems and
also of existing legislation and procedures designed to protect children from abuse, exploitation and
loss of inheritance. Broad multimedia campaigns against abuse have been used effectively in some of
the hardest hit countries, such as South Africa and Swaziland. In some circumstances, there may be
the need for the establishment of legally empowered child protection centres.
Placement services for children without family care
Local adoption and foster care mechanisms are needed for children who require special placement.
This will entail strengthening and expanding existing programmes, creating new ones and supporting
measures to ensure rapid family placement of abandoned infants. In placing children in out-of-home
care, effort should be made to place siblings together and to prevent the placement of very young
children in large institutional settings. While placement in the most family-like setting is developm
entally appropriate for all children, it is most important for younger children.
Developing, financing, implementing and monitoring community systems of care based on
the principles of providing children with a family environment are of the highest priority. Vigilance in
monitoring must continue once children have been placed in households of relatives or foster families
to ensure they are well cared for and that their rights are respected.23 There is a need to establish and
enforce screening procedures to ensure that children are placed in institutional care only when no
better placement options are possible, and preferably only on an interim basis until a family or
community placement can be made. Much has been learned by countries trying to reduce reliance on
institutions. Lessons from Ethiopia and Uganda, for example, can help provide guidance for other
countries trying to develop new and strengthened systems that promote family-based care.24
District/local planning and action
Comprehensive local action plans are essential to meeting the service delivery needs of families and
communities. Many countries are undergoing a process of decentralization that will be critical to
22 See World Bank,
World Development Report 2004: Making Services Work for Poor People,
chapter 4, for a discussion of
user fees.
23 In several rapid assessments conducted by the International Labour Organization (ILO) in various African countries, it was
found that these arrangements often led to extremely exploitative domestic work situations.
24 Save the Children, ‘A Last Resort: The growing concern about children in residential care’, Save the Children, UK, on behalf
of the International Save the Children Alliance, 2003.
24 25
the success of service delivery acceleration efforts and should be supported and expanded.
The devolution of decision-making, authority and resources is a critical aspect of decentralization,
which is the dominant political process within which the response to HIV/AIDS and orphans and
vulnerable children will evolve.25 Meeting the service needs of orphans and vulnerable children
should be incorporated within these efforts by building the capacity of district officials and local
authorities to identify vulnerable children, households and communities; assess their needs; collabo-
rate with other stakeholders and service providers to train staff and extend services; develop alterna-
tive delivery mechanisms; and monitor coverage. A participatory local needs assessment is an impor-
tant first step in the district planning process.
4. Ensure that governments protect the most vulnerable children through improved
policy and legislation and by channelling resources to communities.
While the family has primary responsibility for the care and protection of children, national
governments have the ultimate responsibility to protect children and ensure their well-being.
Most countries have committed to achieving the goals agreed to in the UN General Assembly’s
Declaration of Commitment on HIV/AIDS. In order to meet these obligations, countries must
undertake and be supported in a broad range of multisectoral actions. No ministry has sole
jurisdiction over the issues surrounding orphans and vulnerable children. Governments must find
ways to bring together ministries of education, finance, health, social welfare and others to respond
in a coordinated and effective way to the many needs of these children.
ENSURE THAT GOVERNMENTS PROTECT THE MOST VULNERABLE CHILDREN
Adopt national policies, strategies and action plans
Enhance government capacity
Ensure that resources reach communities
Develop and enforce a supportive legislative framework
Establish mechanisms to ensure information exchange and collaboration of efforts
Adopting national policies, strategies and action plans
In the Declaration of Commitment signed at the UN Special Session on HIV/AIDS, countries
committed themselves to develop and implement national policies and strategies for the protection
and care of orphans and vulnerable children by 2005. In order to be effective, these policies should
also be reflected in national and sectoral policies, plans and budgets. A planned response to
the HIV/AIDS epidemic and its effects on children and youth should form an integral part of all
national policy and planning instruments and development strategies.26 Through ongoing regional
consultations in sub-Saharan Africa, many countries are developing national action plans. Continued
support from international partners and monitoring for accountability will help to ensure that plans are
set into motion and that Special Session goals are achieved.
Enhancing government capacity
To protect the well-being of children and youth, national and local governments require sufficient
resources and internal capacity for data gathering and analysis, strategic planning, policy
development and execution, programme implementation, monitoring and evaluation. With scarce
resources stretched well beyond their limits in an already difficult macroeconomic environment, direct
service delivery and support to families becomes increasingly difficult. Creative approaches to strengthen
social safety nets are needed. In the most affected countries, the HIV/AIDS epidemic is undermining
the institutions and human resources on which future health, security and progress depend. In order to
meet their obligations and mount an adequate response to HIV/AIDS, governments require
immediate and long-term capacity-building and support from both international and local partners.
Ensuring resources reach communities
An important step in allocating resources is the inclusion of HIV/AIDS responses in national
development and budgetary processes, including poverty reduction strategies. In a stressed fiscal
climate where increased investment may be limited, creative and prioritized use of existing resources,
aggressive efforts to mobilize external resources and ensuring that resources are channelled for direct
use at the community level will be important to an effective response. As part of this process, countries
will need to set priorities among the recommended actions according to local needs and
circumstances. Governments need to establish more coherent systems and mechanisms that enable
funds from multiple donors and sources to be channelled to affected communities.
Developing and enforcing a supportive legislative framework
Most countries have several policy instruments and pieces of legislation that relate to the rights,
protection, care and support of children. Existing legislation needs to be reviewed and revised to
reflect current international standards and address the challenges posed by HIV/AIDS regarding the
rights of children. Most importantly, there must be effective structures for the implementation and
enforcement of new and revised legislation.
AN ENABLING ENVIRONMENT: THE LEGISLATIVE FRAMEWORK
Legislation that supports the care and protection of orphans and vulnerable children includes:
Prohibiting discrimination in health care, schools, employment or other areas based on
actual or presumed HIV status
Providing placement and guardianship for children who lack adequate adult care
Ensuring women’s rights to own property and hold jobs
Protecting the inheritance rights of orphans and widows
Protecting children against abuse, neglect and sexual contact with adults
Eliminating the worst forms of child labour
Eliminating barriers that keep the poorest children from attending school or accessing
health care
Protecting children who live on the streets
Developing policies that encourage and support family-based placements for children
without adequate family care
Establishing specific standards for alternative care of children without family support,
including steps to prevent separation of siblings; first preference for family-based place-
ments; use of institutional placements as a last resort and temporary measure; and the
involvement of children in decisions regarding their placements
25 Phiri, S. and D. Webb, ‘The Impact of HIV/AIDS on Orphans and Programme and Policy Responses’, AIDS, Public Policy
and Child Well-Being, 2002. [http://www.unicef-icdc.org/research/ESP/aids/aids_index.html]
26 These may include poverty reduction strategies, sector wide approaches and sector investment programmes.
26 27
Establishing mechanisms to ensure information exchange and collaboration of efforts
AIDS and poverty make government responsibility to realize children’s rights an especially arduous
task. To meet their commitments, governments must find new pathways and models. They must share
with communities decision-making power and access to resources. New and strengthened
partnerships are needed with the private sector, donors, international agencies, faith-based and non-
governmental organizations as well as with neighbouring countries. Mechanisms must be established
to ensure that various activities are well coordinated, non-duplicative and designed to achieve agreed
upon objectives and that information on programme effectiveness is readily disseminated and used to
improve quality and impact.
In sum, strong, visionary national leadership is needed for governments to fulfil their responsibility to
children. Leaders must give greater priority to basic education, health, nutrition, child welfare and
other essential services. They must be committed to policies that increase the capacity of women
and children to support themselves and to protect their earnings and resources. Leaders must also
prioritize and generate increased resources to support community efforts and key services. Finally,
leaders must speak out against exclusion of affected children and discrimination against people living
with HIV and AIDS.
5. Raise awareness at all levels through advocacy and social mobilization to create
a supportive environment for children and families affected by HIV/AIDS.
From the beginning, the HIV/AIDS epidemic has been accompanied by fear, ignorance and denial,
leading to silence and inaction on the part of governments and other stakeholders as well as stigma
and discrimination against people living with HIV and AIDS. Orphans and vulnerable children as well
as their families are frequently victimized in this way. Stigma and discrimination give rise to rejection,
hostility, isolation and human rights violations. Reducing stigma and discrimination will require
increasing access to information, challenging myths and transforming the public perception of HIV/
AIDS. All stakeholders have a role to play in building a more supportive environment.
RAISE AWARENESS TO CREATE A SUPPORTIVE ENVIRONMENT
Conduct a collaborative situation analysis
Mobilize influential leaders to reduce stigma, silence and discrimination
Strengthen and support social mobilization activities at the community level
Conduct a collaborative situation analysis
A situation analysis of children and youth affected by HIV/AIDS will assist partners in acquiring
a common understanding of the factors that fuel vulnerability. It will also enable them to identify
opportunities for mitigation. To be effective, a situation analysis needs to be more than a technical
exercise carried out by a single party. It should be a collaborative process, usually led by government
but involving a wide range of stakeholders. It is critical that the process itself be designed to heighten
stakeholders’ awareness of the epidemic’s impact on children and families and to increase their
awareness of possible responses. It should also provide an opportunity for forging agreement on
the identification of problems and mobilizing collective action.
Involving children and young people in situation analyses can provide unique insight and acutely
relevant recommendations for action.27
Mobilize influential leaders to reduce stigma, silence and discrimination
The initial targets of an awareness campaign should be public figures that can convey key messages
to diverse groups of people. Such figures include government leaders, representatives of the media,
religious leaders, popular figures in sports and entertainment, youth leaders, employers and others.
Presenting the findings and recommendations of a situation analysis in a broadly inclusive national
workshop can be a good way to influence leaders and the public at large.
Political leaders, in particular, must have the courage to talk openly about HIV/AIDS. In countries
such as Brazil, Senegal, Thailand and Uganda, where strong political leadership has fostered
openness about the wide-ranging issues surrounding AIDS, the tide is turning and clear successes are
being achieved. Influential leaders must also speak out openly, consistently and strongly on behalf of
orphans and vulnerable children. In Kenya, both awareness and support were elevated by making
the plight of orphans and vulnerable children a campaign issue in recent elections.
Strengthen and support social mobilization efforts at the community level
Faith-based organizations, civic associations and other non-governmental organizations can play an
important role in raising awareness and promoting community responsibility to help those affected
by HIV/AIDS. In many countries, religious networks are more extensive than those of government.
Faith-based and other community groups can also play a critical role in identifying the most
vulnerable among those affected and help mobilize community responses. A good situation analysis,
particularly one that has included broad participation among stakeholders, can provide much of
the raw material needed for this kind of social mobilization.
Programming Guidance
Valuable lessons have been learned through the many small-scale programmes for orphans and
vulnerable children around the world. These lessons can help guide implementation of the strategies
described above.
Children on the Brink 2002
features a widely recognized set of programming
principles. Others have been put forward by various organizations working in support of orphans
and vulnerable children.28 The guidance provided in this framework brings together common
elements and key themes from these efforts and is integral for both governments and civil society
seeking to strengthen their response at the community, district and national levels.
27 For a more detailed discussion of collaborative situation analyses, see Williamson, J., A. Cox and B. Johnston,
A Frame-
work and Resource Guide: Conducting a situation analysis specific to orphans and vulnerable children affected by HIV/
AIDS,
USAID Africa Bureau and the Population, Health and Nutrition Information Project, Washington D.C., 2004 (in
press).
28 See, for example, Family Health International,
Care for Orphans, Children Affected by HIV/AIDS and Other Vulnerable
Children: A strategic framework,
The IMPACT project, Family Health International, Arlington, Virginia, June 2001;
International Federation of the Red Cross and Red Crescent Societies,
Orphans and Other Children Made Vulnerable by
HIV/AIDS: Principles and operational guidelines for programming,
International Federation of the Red Cross and Red
Crescent Societies, Geneva, 2002; International HIV/AIDS Alliance,
Building Blocks: Africa-wide briefing notes: Resources
for communities working with orphans and vulnerable children,
International HIV/AIDS Alliance, Brighton, United
Kingdom, 2003.
28 29
Focus on the most vulnerable children and communities, not only children orphaned
by AIDS.
Programmes should not single out children orphaned by HIV/AIDS. Rather, they should direct
services and community mobilization efforts towards communities where the disease is making
children and adolescents more vulnerable. Orphans are not the only children made vulnerable by
AIDS. All children living in communities hard hit by the epidemic are affected.
Targeting specific categories of children can lead to increased stigmatization, discrimination and
harm to those children while, at the same, deny support to other children in the community whose
needs may be profound. Targeting in two stages has been found to be an effective approach to
supporting children affected by HIV/AIDS. The first stage is to geographically target areas where
families and communities are having the greatest difficulty protecting and providing for the needs of
their children. While no area is likely to be spared by HIV/AIDS, the impact of the epidemic and
coping capacities will vary significantly among geographic areas and segments of the population.
The second stage is to identify individuals and families in need. That stage is best carried out by
communities themselves, who often know better than outsiders the local factors that contribute to
vulnerability and which individuals are at greatest risk.
Define community-specific problems and vulnerabilities at the outset and pursue
locally determined intervention strategies.
The circumstances of any given community will be unique in terms of the problems experienced,
priorities identified and the resources available. An essential aspect of programming to support
orphans and vulnerable children is to engage community members in assessing their needs and
priorities so that locally tailored interventions can be developed.
The identification of orphans and vulnerable children and the collection of baseline information about
them, including the households in which they live, are necessary before support activities can be
designed. The more central the role that communities can play in this process, the more likely it is that
they will have a sense of ownership over and responsibility towards any new interventions that may
emerge. The value of close consultation with communities is reflected in the identification of new,
community-defined indicators of vulnerability that relate to the local social, economic and cultural
context and are linked to local practices surrounding child-rearing. This process has, in many cases,
led to a revitalization of traditional support measures for children.29 Community monitoring of
programmes once they are operational is vital to continued learning and programme improvement.
Involve children and young people as active participants in the response.
Children and young people are not simply a passive, powerless target group to be aided. They are
part of the solution to the HIV/AIDS epidemic and, as noted throughout this framework, can play a
vital role in mitigating its impact. Young people can help communities to identify and understand the
most critical problems faced by orphans and vulnerable children. They can visit with children and
include them in recreation and other social activities to promote social integration and a sense of
connection to the greater community. They can also help affected households with basic tasks.
In addition, children and young people can use drama and other means to inform the community
about HIV/AIDS, how to avoid infection and the need for humane, informed action. Involving youth
in addressing community-wide problems can lead to an increase in self-esteem and sense of control
over their lives, while contributing to responsible and compassionate behaviour.
Give particular attention to the roles of boys and girls, men and women, and
address gender discrimination.
Much of the burden of caring for people with HIV or AIDS and for orphans and vulnerable children
falls on women and girls. When illness strikes a family or children are orphaned, very often it is
the girls who first drop out of school, care for the ill and younger siblings, and take on adult tasks.
Particular attention needs to be given to protecting and supporting girls in these circumstances.
Measures such as providing school meals and take-home rations, offering child-care services and
flexible schedules for schooling, increasing access to safe water and sanitation and other time-saving
interventions can enable affected girls as well as boys to get an education.
Due to their lower social status, girls and women in many circumstances are more vulnerable to sexual
abuse and exploitation than boys and men. This vulnerability is even greater in situations of armed
conflict. Girls often lack the skills or the power to exercise their own choices regarding sex, which can
increase their risk of HIV infection. Orphans and children living in HIV-affected households are
especially vulnerable, and programme interventions to protect them from abuse and possible HIV
infection are needed. To further reduce vulnerability, the demand side of child abuse and prostitution
must also be addressed, including norms about male sexuality, gender inequity, and the sexual
exploitation of children and youth.
It is important that men assume greater responsibility in child-rearing, in providing care for those
who are ill and in daily household tasks. This often requires a societal shift that allows men to feel
comfortable in assuming new responsibilities, and it can be encouraged through community
dialogue, training in child-care practices and public advocacy.
In many countries, women are discriminated against by statutory or traditional laws that do not
allow them to own land or that prohibit widows from inheriting land or property. Such laws and
policies – along with systems for the administration of justice – must be changed to protect the basic
rights of women and children.
Strengthen partnerships and mobilize collaborative action.
The impact of HIV/AIDS on children, their families and their communities is far too broad and
complex to be addressed without active collaboration and coordination among stakeholders.
The resources needed to respond to HIV/AIDS – often scarce in even the best of times – are being
severely depleted by the expanding crisis. At every level – global, regional, national and local –
stakeholders must find ways to piece together a set of responses that collectively matches the scale of
the impact of HIV/AIDS on children. This requires the active involvement of government structures,
international agencies, non-governmental, faith-based and community organizations, donors,
businesses, the media and others. Good examples of assessment, planning and collaborative action
are being demonstrated by many grass-roots groups in impoverished communities that have come
together to use their own resources to support orphans, vulnerable children and people living with
HIV and AIDS. Those at other levels can learn from these community efforts.
Link HIV/AIDS prevention activities and care and support for people living with HIV
and AIDS with support for vulnerable children.
Programmes that target children affected by the epidemic are often undertaken in isolation from those
working to prevent the spread of HIV or to provide care to people living with HIV and AIDS. Often,
they are also separate from programmes aimed at children in general, such as health services,
education and social protection. HIV/AIDS interventions have typically fallen into such categories as
29 White, Joanne, ‘Children Orphaned or Otherwise Made Vulnerable by HIV/AIDS: Examples of UNICEF’s response in East
and Southern Africa’ (draft), June 2003.
30 31
‘prevention for youth’, support for ‘home-based care’, and ‘orphans’ programmes’. Support for home
care of people living with HIV and AIDS is often focused solely on the health of people who are ill,
and not on the economic and psychosocial condition of their children and families. Yet HIV/AIDS has
an impact on all members of a household.
Programmes also tend to be organized around specific professional capabilities, such as palliative
care or treatment of specific infections (provided by health professionals), spiritual support (by
religious communities), prevention efforts (by community outreach workers or youth peer educators),
and support for orphans and vulnerable children (by social welfare workers). The HIV/AIDS-related
problems of children and families, however, are complex and interlinked, and cannot be adequately
addressed by any single intervention. They demand holistic, multisectoral and mutually reinforcing
programme strategies.
Providing care for children and adults affected by HIV/AIDS can be especially effective in HIV
prevention. Caring for people with HIV or AIDS keeps awareness levels about the epidemic high.
It informs both children and adults about how people get infected, how the illness progresses and
the potential consequences it can have on them and their families. Both adults and young people are
more likely to adopt safer and more caring behaviours if they are looking after those affected. Many
caregivers, for example, have begun to promote prevention because of their familiarity with the
disease and recognition of the urgent need to prevent additional sickness, death and orphaned
children. And, as demonstrated in India, linking programmes to meet the needs of an entire affected
household can have a synergistic effect, improving the quality and impact of all interventions.30
Use external support to strengthen community initiative and motivation.
Generous outside funding or material assistance, while urgently needed, can have a detrimental
effect on government incentive and community solidarity and can undermine local initiative.
This becomes an even greater problem if external assistance ends, or if local organizations shift their
programmatic focus because of donor-driven funding conditions and priorities. To prevent such
dependencies, local and national mechanisms must be in place to reinforce and expand upon what
is already being done.
In addition, governments, donors, non-governmental, faith-based and community organizations must
focus on strengthening and supporting the ongoing efforts of communities themselves. It is these
groups that are at the front line of the response to HIV/AIDS and have demonstrated enormous
capacity to care for and support vulnerable children and adolescents. Community organizations
and inter-organizational mechanisms can be bolstered through training and technical assistance,
organizational development and sustained financial and material support.
Furthermore, programme interventions with children and communities must take into account
the long-term nature of the AIDS crisis. Interventions developed today must respond to the need for
large-scale, long-term efforts that address both the direct and indirect impact of HIV/AIDS on
children, families and communities. Successful experience and lessons learned in supporting
community initiative need to be widely disseminated and replicated rapidly.
Monitoring Progress Towards Goals
A key challenge in responding to orphans and vulnerable children is the lack of data for monitoring
and evaluation. Having information available that is reliable and consistent within and among
countries is essential for planning and monitoring policies and programmes, national and global
advocacy, making decisions about the support that should be provided to families and communities,
and providing focus for the different sectors and actors involved.
In order to monitor progress toward the goals outlined in the UN Special Session’s Declaration of
Commitment on HIV/AIDS, a core set of indicators was developed.31 Although an indicator was
defined that related specifically to orphans (orphan school attendance), this is insufficient to guide
countries, organizations and agencies involved in the response to orphan needs.
During April 2003, the UNAIDS Inter-Agency Task Team on Orphans and Other Vulnerable
Children32 convened a broad coalition of stakeholders and reached consensus on a set of core
indicators to measure progress at the national level.
Working from the Declaration of Commitment, the group of experts distilled 37 specific activities for
improving the welfare of orphans and vulnerable children into 10 key domains that need to be
addressed and monitored at the national level. As outlined below, the domains reflect the strategies
defined within this framework.
The core indicators will be field tested and disseminated along with monitoring guidance.
Complementary efforts to build national monitoring and evaluation capacities will be required.
In addition to national level monitoring, efforts to systematically monitor programme effectiveness and
quality must be strengthened and expanded. Identifying and disseminating best practices and lessons
learned will contribute to continual programme improvement and rapid expansion of responses that
work. Both national and programme level monitoring are of critical importance in ensuring the quality
of interventions, validating response strategies and ensuring accountability for the attainment of
global goals.
30 Monk, N., ‘Children of the HIV/AIDS Pandemic: The challenge for India,
Orphan Alert 2’
, Association Francois-Xavier
Bagnoud. [http://www.albinasactionfororphans.org/learn/inform.html]
31 Joint United Nations Programme on HIV/AIDS, ‘Report on the Technical Consultation on Indicators Development for Chil-
dren Orphaned and Made Vulnerable by HIV/AIDS’, UNAIDS, Botswana, April 2003.
32 This UNAIDS Inter-Agency Task Team on Orphans and Other Vulnerable Children, which is convened by UNICEF, includes
all UNAIDS co-sponsors, the Displaced Children’s and Orphans Fund/USAID, International Federation of Red Cross and
Red Crescent Societies, Save the Children Fund - UK, Hope for African Children Initiative, USAID, and the International
HIV/AIDS Alliance.
CORE NATIONAL LEVEL INDICATORS
Domain Indicator
Policies and Policy and strategy index reflecting the progress and quality of national policies and
strategies strategies for the support, protection and care of orphans and vulnerable children
Education School attendance ratio of orphans as compared to non-orphans
Health Health care access ratio of orphans as compared to non-orphans
Nutrition Malnutrition ratio of orphans as compared to non-orphans
Psychosocial Proportion of orphans and vulnerable children that receive appropriate psychosocial
support support
Family Capacity Proportion of children that have three, locally defined basic needs met
Proportion of orphans that live together with all of their siblings
Community Proportion of households with orphans and vulnerable children that receive free
capacity basic external support in caring for the children
Resources Government expenditure per child on orphans and vulnerable children
Protection Per cent of children whose births are registered
Per cent of widows that have experienced property dispossession
Institutional care Proportion of children who are living on the street or are in institutional care (as an
and shelter indicator of family breakdown)
32 33
Clear consensus has evolved around the global goals for orphans and vulnerable children.
With the development of this framework, the groundwork exists for greater and more effective
collaboration and solidarity among global constituents. International partners have a vital role to play
in accelerating the response. They must help to mobilize substantially increased resources, forge and
maintain new partnerships, advocate to keep orphans and vulnerable children high on the global
agenda, and continue to work in close collaboration through periodic consultations, joint programme
reviews and specific task forces established to address key challenges.
External resources are urgently required to help countries scale up and sustain an adequate response.
As described in this framework, external financial and material support should be provided
to affected countries and channelled to communities in such a way as to build on local capacities
and structures.
There will be no quick fix. International partners, including bilateral and multilateral donors, have
a key role to play in assessing and increasing their resource commitments and reaching out to
mobilize additional funding from new sources. In the face of this massive and long-term crisis for
children, international agencies and donor governments must forge new development and relief
assistance pathways and models. A key milestone would be the extension of budget commitments
and programming cycles beyond the traditionally short time-frames allowed.
Dynamic, multimedia communication efforts to reduce the stigma and silence surrounding AIDS have
had a positive and enabling effect on the environment and responses in some countries, including
Senegal, Thailand and Uganda. These efforts have also encouraged support and positive living for
people infected and affected by HIV. A global advocacy strategy is now needed that would provide
consistent messages about the concerns surrounding orphans and vulnerable children worldwide.
International agencies and institutions can play an important role in influencing and facilitating
cooperation and coordination among partners. United Nations agencies and other donors can help
to ensure that all stakeholders have the opportunity to become and stay involved in the design,
implementation and monitoring of the response.
The global goals for orphans and vulnerable children are ambitious in scope and time-frame.
National governments will need the support of the international community to achieve these goals.
In addition to advocacy and financial inputs, international agencies and institutions can provide
technical support for implementation of the strategies described in this framework and assist in
the identification and rapid dissemination of best practices and lessons learned across countries and
regions.
Notwithstanding the growing commitment and action in support of orphans and vulnerable children,
the crisis is deepening and becoming more urgent. The impact of HIV/AIDS is enormous in scale,
complex, multifaceted and continuously changing. And it will be with us for some time. To meet the
challenge and achieve global goals, rapid acceleration of the response must begin now. Key actions
include:
Acceleration and support of national government efforts to attain the goals of the UN Special
Session’s Declaration of Commitment on HIV/AIDS by:
Conducting collaborative situation analyses;
• Prioritizing orphans and vulnerable children and their families in national development
agendas;
Implementing national policy and legislation to protect orphans and vulnerable children,
including the ratification of ILO Convention No.182, which calls for eliminating the worst
forms of child labour;
Establishing mechanisms to enhance collaboration across sectors and among partners;
Developing and implementing national action plans for the protection and care of orphans
and vulnerable children;
Developing and implementing monitoring and evaluation mechanisms.
Assessment by
all
governments of their budgets and resource allocations to the response.
Financial commitments by all stakeholders must urgently be increased and sustained to meet
long-term resource needs.
Encouragement and support for innovative government strategies and mechanisms to channel
resources to and ensure that services reach affected communities.
Organized advocacy by all stakeholders to keep orphans and vulnerable children high on
the global agenda and to reduce the widespread stigma and silence surrounding HIV/AIDS
that continues to hamper the response at all levels.
Collaborative development and implementation of a priority research agenda, including
longitudinal studies to gain understanding of the potential long-term consequences of large
numbers of orphans and vulnerable children in societies (such as child-headed households,
the involvement of children in labour, and lack of education facilities capable of dealing with
the problems) and stepped up operational research on programme effectiveness.
Implementation of the newly developed set of core indicators and monitoring guidance for
assessing national level progress towards goals.
Use of programme level monitoring and evaluation to maintain and enhance the quality of
interventions to ensure optimal use of limited resources in reaching orphans and vulnerable
children and improving their well-being.
Adequate measurement of progress over time in closing the gap between what is being done
and what must be done to adequately fulfil the needs and rights of orphans and vulnerable
children.
THE NEED FOR INCREASED INTERNATIONAL SOLIDARITY
AND SUPPORT THE WAY FORWARD
34 35
Creating a viable future for orphans and vulnerable children is a daunting task, one in which we all
must take an active part. Creative, committed action at community, district, national, regional and
international levels has demonstrated that a better future for millions of affected children can be
achieved. While the pain these children experience can never by erased, it can be eased. Our
collective compassion and effort can enable their voices to be heard and their fundamental needs
met. We must aim to ensure that their rights are protected, respected and fulfilled, so they grow into
a strong generation, one able to contribute to repairing the profound social and personal damage
caused by HIV/AIDS.
A DECADE OF EVENTS RELATED TO ORPHANS AND VULNERABLE CHILDREN
There have been many international and regional events that have shaped global thinking and
planning around orphans and vulnerable children (OVC), the more significant of which are
listed below:
In 1994, at a workshop in Zambia on support to children and families affected by HIV/AIDS,
the Lusaka Declaration was adopted. Issues such as the need to assess the magnitude of
the problem, the place of institutional care, the need for material and financial support for
affected families, survival skills and vocational training for OVC, and their right to basic
education, were all reflected in the declaration.
In 1998, a United Nations General Discussion on ‘Children living in a world with AIDS’ was
held. The committee stressed the relevance of the rights contained in the Convention on
the Rights of the Child to prevention and care efforts, recalling that HIV/AIDS was often
seen primarily as a medical problem, while the holistic, rights-centred approach required to
implement the convention was more appropriate to the much broader range of issues that must
be addressed.
In June 1998, a regional Children in Distress (CINDI) conference was held in Pietermaritzburg,
South Africa, at which country representatives committed to setting up OVC Task Teams in their
countries.
In November 2000, the first East and Southern African regional meeting on OVC was held
in Lusaka Zambia, at which countries made commitments and plans to address the issue of
the growing numbers of OVC in their countries.
In June 2001, the United Nations General Assembly Special Session (UNGASS) met to
review and address the problem of HIV/AIDS in all its aspects as well as to secure a global
commitment to enhancing coordination and intensifying efforts. The resulting Declaration of
Commitment on HIV/AIDS includes a specific section and set of policy and strategy actions on
OVC for signatory states (see page 12 under Global Goals).
In 2002, a United Nations Special Session on Children resulted in the World Fit for Children
declaration. [This declaration reaffirmed the goals set in June 2001.]
In April 2002, in the spirit of the Pietermaritzburg and Lusaka meetings, a regional workshop
on OVC was held in Yamoussoukro for Central and West African countries with representatives
from 21 countries. Country representatives committed to setting up task teams in their countries
to develop action plans to ensure the realization of the targets pertaining to OVC set forth in
the UNGASS declaration.
In September 2002, an Africa Leadership Consultation entitled ‘Urgent action for children on
the brink’ aimed at developing consensus on priorities for a scaled-up response to the OVC
crisis and proposed actions to mobilize the leadership, partnerships, and resources required to
deliver on the UNGASS commitments.
And, in November 2002, an Eastern and Southern Africa workshop on OVC (with
representation from 20 countries) was held in Windhoek, Namibia, to assess the progress of
countries toward meeting the UNGASS goals.
Source: Smart Rose,
Policies for Orphans and Vulnerable Children: A framework for moving
ahead,
The Policy Project, Washington, D.C., July 2003.
ANNEX 1
36 37
GUIDANCE PROVIDED BY THE CONVENTION ON THE RIGHTS OF THE CHILD
Globally, the Convention on the Rights of the Child is the principle framework to guide action
on behalf of children. As such, it is the single most important reference point concerning
orphans and other vulnerable children. The following provisions are especially relevant:
Article 3 includes the provision that the ‘best interests of the child’ shall be a primary
consideration in matters concerning children.
Article 5 recognizes the responsibility of members of the extended family, community or
legal guardians to provide for the child in a manner consistent with his or her evolving
capacities.
Article 6 recognizes that every child has the inherent right to life.
Article 8 concerns the right of a child to preserve his or her identity, including name and
family relations.
Article 9 concerns a child’s right not to be separated from parents.
Article 12 recognizes a child’s right to freedom of expression and to be heard in any
proceedings that concern him or her.
Article 16 concerns a child’s right to be free from arbitrary attacks on honour or reputation
(stigma).
Article 17 recognizes the right of access to appropriate information.
Article 18 recognizes the responsibility of the State to support parents and legal guardians
in their child-rearing responsibilities and to develop services for the care of children.
Article 19 concerns the protection of children from abuse, neglect, maltreatment or exploi-
tation.
Article 20 concerns the responsibility of the State to provide special protection for a child
deprived of his or her family environment.
Article 21 addresses safeguards regarding adoption.
Article 24 recognizes the right of children to the highest standard of health and access to
health services.
Article 25 concerns the periodic review of the situation of a child who has been placed in
care.
Article 27 recognizes the right of children to an adequate standard of living.
Article 28 concerns the right of every child to education.
Article 31 recognizes a child’s right to rest, leisure, play and recreation.
Article 32 addresses the protection of children from economic exploitation.
Article 34 concerns the protection of children from sexual exploitation and abuse.
WHAT ABOUT ORPHANAGES?
While building more orphanages, children’s villages or other group residential facilities would
seem a possible response to caring for the growing number of orphans, this strategy is not a
viable solution.
Care provided in institutional settings often fails to meet the developmental and long-term needs
of children. Children need more than good physical care. They need the affection, attention,
security and social connections that families and communities can provide. Countries with
long-term experience with institutional care for children have seen the problems that emerge as
children grow into young adults and have difficulty reintegrating into society. In Ethiopia, Rwanda
and Uganda, for example, evaluations of children’s long-term stays in orphanages led these
governments to adopt policies of de-institutionalization and support for family-based care.
Orphanages are more expensive to maintain than providing direct assistance to existing family
and community structures. Institutional care would be prohibitively expensive for the vast
majority of countries. The annual cost per child tends to be from $500 upwards in Africa.
Research by the World Bank in the United Republic of Tanzania, for example, found that
institutional care was about six times more expensive than foster care. Cost comparisons
conducted in Uganda showed the ratio of operating costs for an orphanage to be 14 times
higher than those for community care. Other studies have found a ratio of 1:20 or even up
to 1:100.
(Children on the Brink 2002)
The magnitude of orphans due to HIV/AIDS is so large that an institutional response – besides
not being in the best interests of the child – will never be the answer. Orphanages for more than
14 million orphans simply cannot be built and sustained.
ANNEX 2 ANNEX 3
38 39
Organizations Participating in the Global Partners Forum
African Development Bank (ADB)
Association Francois-Xavier Bagnoud (AFXB)
Permanent Mission of Australia to the United Nations in Geneva
British Red Cross/International Federation of Red Cross and Red Crescent Societies (IFRC)
CARE
Columbia University, Earth Institute and Mailman School of Public Health
Comic Relief
Danish Ministry of Foreign Affairs
Department for International Development (DFID), United Kingdom
Displaced Children and Orphans Fund (DCOF), US Agency for International Development (USAID)
Family Health International (FHI)
Food and Agriculture Organization (FAO)/The Population Programme Service
Global Fund for AIDS, Tuberculosis and Malaria (GFATM)
Hope for African Children Initiative (HACI)
International AIDS Trust
International HIV/AIDS Alliance
International Labour Organization (ILO)/International Programme on the Elimination of Child Labour (IPEC)
Netherlands Ministry of Foreign Affairs
Norwegian Agency for Development (NORAD)
Oprah Winfrey Foundation
Pan African Children’s Fund
Regional Psychosocial Support Initiative (REPSSI) /Salvation Army Regional Team
Save the Children UK
Swedish International Development Agency (SIDA)
Swiss Agency for Development and Cooperation
Joint United Nations Programme on HIV/AIDS (UNAIDS)
United Nations Children’s Fund (UNICEF)
United Nations Development Programme (UNDP)
United Nations Educational, Scientific and Cultural Organization (UNESCO)
United Nations Population Fund (UNFPA)
United Nations Special Envoy on AIDS in Africa
United States Agency for International Development (USAID)
ACKNOWLEDGEMENTS
United States Committee for UNICEF
University of London, Partnership for Child Development
University of Pretoria, AIDS Centre
World Bank
World Conference of Religions for Peace (WCRP)
World Council of Churches
World Food Programme (WFP)
World Health Organization (WHO)
World Vision
Yale University, Center for Interdisciplinary Research on AIDS (CIRA)
Members of Expert Review Group
Don Casey, Association Francois-Xavier Bagnoud
Mark Connolly, UNICEF
Stefan Germann, Regional Psychosocial Support Initiative/Salvation Army
Kate Harrison, International HIV/AIDS Alliance
Gillian Holmes, UNAIDS
Michael J. Kelly, University of Zambia, Lusaka
Robin Landis, World Food Programme
Peter McDermott, Africa Bureau of USAID, Washington, D.C.
Richard Seifman, World Bank
Mark Stirling, UNICEF
Linda Sussman, HIV/AIDS Office of USAID, Washington, D.C.
David Tolfree, Consultant
Douglas Webb, Save the Children UK, London
John Williamson, Displaced Children and Orphans Fund of USAID, Washington, D.C.
Alex Yuster, UNICEF
Consultant/Writer: Laurie A. Gulaid
40 41
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... Most of the examples and information available come from overview or guidance documents that offer insights into the value and roles that various community members can play in monitoring, but are generally imprecise in specifying particular methods. Gulaid (2004) gives general guidance relevant to community-based monitoring, stating that children's active involvement is important, and advises educating community leaders about existing legislation and procedures for child protection; training teachers, healthcare professionals on signs of distress and appropriate actions; and the potential role of such dutybearers to monitor and support activities for specific children. Wessells (2009) summarizes child-focused community groups, arguing that they are at the forefront of efforts to address child protection in emergency, transitional, and development contexts worldwide. ...
... The review indicated that future evaluations need to be more cautious in the use of categories to distinguish children's circumstances. There is an emerging concern that labeling or categorizing beneficiaries may stigmatize the children that the interventions aim to help, obscure social realities, and/or direct resources away from other children in need (Gulaid, 2004). Labels such as "child soldier," "street child," "orphan," and "trafficking victim" are categories developed by outside practitioners and researchers to assist children in need. ...
... Researchers and practitioners have offered several suggestions on how to move beyond a focus on target group categories in order to monitor children in difficult circumstances more appropriately and effectively. In a policy document on protection and support for orphans and other vulnerable children (Gulaid, 2004), the author suggests a two-step approach to directly assist or monitor children. As a first step, programs may target a geographical area where larger populations of children are particularly in need. ...
Article
Objectives: To strengthen the evidence-base for policy and practice for support of children outside of family care requires effective, efficient and sustainable mechanisms for monitoring and evaluation. Toward that end, two core questions guided a systematic review of evidence: What strategies are appropriate for monitoring the needs and circumstances of children outside of family care? What strategies are suitable for evaluating the impact of the programs intended to serve such children? Methods: A structured document search and review process was implemented within the context of the U.S. Government Evidence Summit on Protecting Children Outside of Family Care of December 2011. Through successive review phases, initially using structured screening criteria, followed by thematic review by an expert panel, 73 documents were identified for analysis. Results: Analysis of models and strategies indicates that: (1) tools are available for assessment of children's needs, but require refining to accommodate contextual demands; (2) well-designed evaluations are able to identify the influence of assistance; (3) long-term follow-up is crucial to developing a strong evidence-base on effective strategies; and (4) insights into systems-wide monitoring mechanisms are emerging. In addition to describing key components of monitoring and evaluation strategies, findings draw attention to the evaluation of children's resiliency and protective factors, community based monitoring and the role of caregivers, as well as concerns over the stigmatization of children (through data collection methodologies encouraging the 'labeling' of children) and the importance of children's participation. Conclusions: Fostering a stronger evidence-base to improve protection for vulnerable children requires evaluations that are integrated into program development, use context-appropriate methodologies able to assess intervention scalability and employ more longitudinal designs to explore children's trajectories. Further, future programming will benefit from systems-wide data coordination and international comparisons, research that emphasizes coping and resilience mechanisms, and children's participation in monitoring and evaluation.
... • In parts of Zambia, 65 per cent of children engaged in commercial sex and 56 per cent of children living on the streets are orphans (Gulaid, 2004). ...
... However, many of these responses are reactive in nature and regard children as 'helpless victims', providing only immediate and limited support, such as handouts of food and clothing (Gulaid, 2004). According to Williamson (2000), some of these programmes lack theoretical grounding which, in turn, limits their benefits. ...
... Some studies have concluded that institutional care is detrimental to child development (Berens & Nelson, 2015). Combined with strong cultural preferences for FBS care environments and historic examples of abuse and neglect this has led to global calls for the deinstitutionalisation of OSAY (Berens & Nelson, 2015;Gulaid, 2004;Save the Children UK, 2003;UNICEF, 2004). However, in countries with weak infrastructure, there is often greater heterogeneity in well-being within care environments than between them Braitstein et al., 2013;Embleton et al., 2017;Gayapersad et al., 2019;Williamson et al., 2017). ...
Article
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Orphans are at higher risk of HIV infection and several important HIV risk factors than non-orphans; however, this may be due to a combination of related social, psychological, and economic factors, as well as care environment, rather than orphan status alone. Understanding these complex relationships may aid policy makers in supporting evidence-based, cost-effective programming for this vulnerable population. This longitudinal study uses a causal effect model to examine, through decomposition, the relationship between care environment and HIV risk factors in orphaned and separated adolescents and youths (OSAY) in Uasin Gishu County, Kenya; considering resilience, social, peer, or family support, volunteering, or having one's material needs met as potential mediators. We analysed survey responses from 1105 OSAY age 10–26 living in Charitable Children's Institutions (CCI) (orphanages) and family-based care settings (FBS). Follow-up time was 7–36 months. Care in CCIs (vs. FBS) was associated with a decreased likelihood of engaging in forced, exchange, and consensual sex. Excess relative risks (ERR) attributable to the indirect pathway, mediation, or interaction were not significant in any model. Care environment was not statistically associated with differences in substance use. Our findings support the direct, unmediated, association between institutional care and HIV risk factors.
... This has led to the emergence of alternate models of care including Charitable Children's Institutions (CCI) (orphanages and rescue centers) and community-based programs of family-based care settings (FBS; Embleton et al., 2014). Negative impacts of institutionalization on child development, strong cultural preferences, and high profile, historic examples of abuse and neglect have led to global recommendations for deinstitutionalization; moving children from CCIs to FBS (Gulaid, 2004;Save the Children UK, 2003;UNICEF, 2004). However, in countries with weak infrastructure, studies have shown greater heterogeneity in wellbeing within care environments than between them and some OSAY in CCIs have demonstrated better outcomes than those in FBS Braitstein et al., 2013;Embleton et al., 2017;Gayapersad et al., 2019;Jelsma et al., 2011;Whetten et al., 2014Whetten et al., , 2009Williamson et al., 2017). ...
Article
Full-text available
The relationships between care environment, resilience, and social factors in orphaned and separated adolescents and youths (OSAY) in western Kenya are complex and under-studied. This study examines these relationships through the analysis of survey responses from OSAY living in Charitable Children's Institutes (CCI) and family-based care settings (FBS) in Uasin Gishu County, Kenya. The associations between 1) care environment and resilience (measured using the 14-item Resilience Scale); 2) care environment and factors thought to promote resilience (e.g. social, family, and peer support); and 3) resilience and these same resilience-promoting factors, were examined using multivariable linear and logistic regressions. This cross-sectional study included 1202 OSAY (50.4% female) aged 10-26 (mean=16; SD=3.5). The mean resilience score in CCIs was 71 (95%CI=69-73) vs. 64 (95%CI=62-66) in FBS. OSAY in CCIs had higher resilience (β=7.67; 95%CI=5.26-10.09), social support (β=0.26; 95%CI=0.14-0.37), and peer support (β=0.90; 95%CI=0.64-1.17) than those in FBS. OSAY in CCIs were more likely to volunteer than those in FBS (OR=3.72; 95%CI=1.80-7.68), except in the male subgroup. Family (β=0.42; 95%CI=0.24-0.60), social (β=4.19; 95%CI=2.53-5.85), and peer (β=2.13; 95%CI=1.44-2.83) relationships were positively associated with resilience in all analyses. Volunteering was positively associated with resilience (β=5.85; 95%CI=1.51-10.19). The factor most strongly related to resilience in both fully adjusted models was peer support. This study found a strong relationship between care environment and resilience. Care environment and resilience each independently demonstrated strong relationships with peer support, social support, and participating in volunteer activities. Resilience also had a strong relationship with familial support. These data suggest that resilience can be developed through strategic supports to this vulnerable population.
... The effects of HIV/AIDS devastate the lives of millions of children, and the anticipated extent of the mounting crisis is enormous (Cluver et al., 2007;Mangoma et al., 2008). The global number of children under the age of 15 years who have lost one or both parents to HIV/AIDS is expected to increase from approximately 14 million in 2004 to 25 million by 2010 (Gulaid, 2004;UNAIDS, UNICEF & USAID, 2004). It is foreseen that by 2020 40 million children will have lost their primary caregiver(s) to the disease (Interagency Coalition on AIDS and Development [ICAD], 2002). ...
Article
Full-text available
This article presents the findings of a study among a small group of South African AIDS orphans living in a residential care facility, Lebone Land. The research was conducted between June and September 2006. A qualitative, exploratory study consisting of in-depth, semistructured interviews with eight children and seven key informants aimed to identify and investigate developmental assets operating in the children's lives to help them cope amid exposure to adversities. The findings indicate that the developmental assets that facilitate coping and foster resilience in these children relate to four main components: external stressors and challenges, external supports, inner strengths and interpersonal and problem-solving skills. Emerging key themes relate to the experience of illness, death, poverty and violence, as well as the important roles of morality, social values, resistance skills, religion and faith in assisting these children in defining their purpose in life. To this end, constructive use of time, commitment to learning, goal-setting, problem-solving ability and self-efficacy are fundamental in the children's attainment of their future projections. Therefore, qualities such as optimism, perseverance and hope seem to permeate the children's process of recovery. Strong networks of support, particularly friendships with other children, also seem to contribute to developing and sustaining resilience.
Article
The overwhelming rate of HIV-related mortality in the past decades has eroded traditional safety nets for orphans, of which the extended family is the most critical. This has led to the formation of new household structures, i.e. child- and youth-headed households, as children and youths are left to live alone and look after themselves. These types of households are a growing phenomenon in many African countries and are increasingly being recognised as household structures. However, in the absence of an economically active adult, orphans living in these households experience numerous challenges. The socio-economic challenges in Zimbabwe could further exacerbate the conditions of child-headed households. This article discusses findings of an ethnographic inquiry on orphans living in child- and youth-headed households in Zimbabwe. We identified parentification, lack of income and social isolation as risk factors affecting quality of life. Social capital and agency were identified as protective factors enhancing children’s quality of life. Our findings suggest that orphans living in child- and youth-headed households are not only victims but are also resilient and can exercise agency. Therefore, interventions to support this vulnerable group should build on their existing resilience and agency.
Technical Report
Little attention has been paid to the efficacy of methods used to interview children, the factors that influence the reliability of children’s reports and the approaches adults use when deciding how to weigh children’s input. This systematic review describes experimental research on factors affecting the reliability of children's responses.
Article
Thesis (M. Ed.(Educational psychology))-University of Pretoria, 2005. Includes bibliographical references (leaves 105-113). System requirements: Windows 98 or higher.
Article
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Introduction HIV/AIDS has radically transformed the world, including the world of education. The content, structures and programs that responded to the needs of a world without AIDS no longer suffice in a world with AIDS. This appears in the way school participation can enhance the risk of HIV infection. It also surfaces in the way school efforts to deal with HIV/AIDS in a traditional way, as part of the school curriculum, have failed to meet their objectives. These and other factors necessitate a radical re-thinking of educational provision. An initial step in this direction would be for the formal school system to incorporate some of the participatory features of non-formal education, with emphasis on the involvement of young people at all stages. When society encounters a problem affecting the young, it tends to turn to its schools, and ask what they are doing about it. For example, many say that schools should teach more practical skills, so that young people will be more employable upon completion of their school programs. It is further apparent in the way many societies require schools to give more attention to the teaching of values with a view to arresting the decline in moral standards. In relation to HIV/AIDS, the same tendency appears with schools expected to communicate knowledge, instill values and promote behaviors that will enable students to protect themselves against HIV infection. These expectations are legitimate given that, in the absence of a vaccine, other preventions involve some learning and some relatively permanent change in behavior arising from a communication process. What is common among messages about abstinence, safe sex, fidelity to one partner, reducing the number of sexual partners, protecting against vertical (mother to child) HIV transmission and using clean needles is that they must be communicated to and incorporated by the individual if they are to be acted upon. In other words, there must be some teaching and learning.
Article
Full-text available
From a child rights perspective, HIV/AIDS serves to illuminate how cultural norms and legal precepts facilitate or constrain the protection of the child from HIV infection and from its individual and collective impacts. Recognition of human rights in the design, implementation, and evaluation of governmental policy can point the way toward actions which are not only necessary but, in public health terms, most effective. This article summarizes the three situations -- children infected, affected, and vulnerable -- and three levels of governmental obliations -- to respect, protect, and fulfill rights -- which should be considered when identifying children's specific needs and rights in the context of HIV/AIDS. The article then proposes a method to analyze systematically the confluence between HIV/AIDS and children's rights, creating opportunities for a synergy between those involved in HIV/AIDS prevention, care, and research, and others engaged to the promotion and protection of the rights of the child.
Article
As policy makers assess the growing weight of the orphan and children affected by AIDS burden, there are key policy challenges apparent. These challenges relate to (1) reaching consensus on policy related definitions of orphans and vulnerable children, (2) the emergence and realisation of rights based approaches to programming for orphans and vulnerable children, (3) the explication and scaling up of 'good' practices in supporting orphans and vulnerable children, (4) effective flow of 'resources to the base' and finally (5) mobilising political will. These challenge overlap and interrelate, but constitute the key constraints on widespread and effective responses. The synergy needed between community-rooted responses and international and national political will is slowly emerging but is still fundamentally absent. Policy priorities relate to resources primarily, and the balance between community mobilised resources and external financing and intervention. This balance will vary from place to place and current operational research can provide an understanding of economic realities to be combined with the emerging ethical and principle based ethos of programmers. Addressing the psychosocial welfare elements of orphans and children in affected communities is now a matter of urgency. The cycle of infection will be exacerbated by young people growing up in contexts where mental ill health is rife, combined with feelings of isolation, despair and social disenfranchisement. The responses required are in themselves not complex, but are needed at such an unprecedented scale that we are only starting to comprehend the implications. While constraints remain in the form of chronic and deepening poverty, capacity limitations and political indifference at all levels, the challenges facing themselves have never been greater.
Family Health International, Care for Orphans, Children Affected by HIV/AIDS and Other Vulnerable Children: A strategic framework, The IMPACT Project
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