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Abstract

Personality disorders have received limited recognition as a public health priority, despite the publication of treatment guidelines and reviews showing effective treatments are available. Inclusive approaches to understanding and servicing personality disorder are required that integrate different service providers. This viewpoint paper identifies pertinent issues surrounding early intervention, treatment needs, consumer and carer experiences, and the need for accurate and representative data collection in personality disorder as starting points in mental health care reform.
https://doi.org/10.1177/0004867417717798
Australian & New Zealand Journal of Psychiatry
1 –4
DOI: 10.1177/0004867417717798
© The Royal Australian and
New Zealand College of Psychiatrists 2017
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Australian & New Zealand Journal of Psychiatry, 00(0)
Personality disorder is a complex and
severe mental illness, associated with
high usage of services and treatment
cost (Leichsenring etal., 2011), where
the economic benefits associated with
the provision of evidence-based inter-
ventions have recently been estab-
lished (Meuldijk etal., 2017). Globally,
personality disorders are estimated to
affect approximately 6% of the popula-
tion (Huang et al., 2009). Despite
this, the disorder has received limited
recognition as a public health issue.
Left untreated, individuals with the
disorder may experience disadvan-
tage, including failure to engage in edu-
cation or work (Ng et al., 2016), have
a high risk of suicide and experiencing
comorbid mental health disorders
(Leichsenring et al., 2011).
Internationally, best practice guide-
lines have been published in a number
of countries acknowledging challenges
associated with service provision,
aiming to improve services for indi-
viduals with personality disorder.
Guidelines were first developed in
1999 in New Zealand (Krawitz and
Watson, 1999), followed by the
United States, United Kingdom and
Australia (National Health and Medical
Research Council, 2012). These clini-
cal practice guidelines provide a road-
map for reform and consistently
recommend psychological interven-
tions as the first line of treatment. It is
recommended that clinical practice
guidelines for the management of per-
sonality disorder should be read in
conjunction with the Royal Australian
and New Zealand College of
Psychiatrists practice guidelines for
mood disorders (Malhi et al., 2015)
and deliberate self-harm (Carter etal.,
2016), given the high comorbidity.
There is an evidence base for the
effectiveness of various psychological
treatments for borderline personality
disorder (BPD) (e.g. cognitive behav-
ioural and psychodynamic therapies),
involving weekly sessions for 1 year,
all with similar outcomes (Cristea
et al., 2017). Most health workers
indicate a need for greater training in
these treatments for personality dis-
order (McCarthy et al., 2013). The
underlying general skills that are effec-
tive in all these models have been
described and tested (Bateman etal.,
2015; Beatson and Rao, 2014), mean-
ing any psychologist or psychiatrist
can implement effective care with
support.
There are, however, workforce
challenges to providing coverage of
psychological therapies. For example,
in Australia, access to psychiatrists is
limited, with 17 private psychiatrists
per 100,000 population practising in
major cities, 6.2 per 100,000 in inner
regional areas, 4.4 per 100,000 in
outer regional areas and only 3 per
100,000 in outer regional and remote
areas (Australian Institute of Health
Personality disorder: A mental
health priority area
Brin FS Grenyer1, Fiona YY Ng1, Michelle L Townsend1
and Sathya Rao2
Abstract
Personality disorders have received limited recognition as a public health priority, despite the publication of treatment
guidelines and reviews showing effective treatments are available. Inclusive approaches to understanding and servicing
personality disorder are required that integrate different service providers. This viewpoint paper identifies pertinent
issues surrounding early intervention, treatment needs, consumer and carer experiences, and the need for accurate and
representative data collection in personality disorder as starting points in mental health care reform.
Keywords
Personality disorder, treatment needs, early intervention, consumer and carer, data reporting
1 School of Psychology, Illawarra Health and
Medical Research Institute, University of
Wollongong, Wollongong, NSW, Australia
2
Spectrum, The Personality Disorder Service
for Victoria, Eastern Health, East Ringwood,
VIC, Australia
Corresponding author:
Brin FS Grenyer, School of Psychology,
Illawarra Health and Medical Research
Institute, University of Wollongong,
Wollongong, NSW 2522, Australia.
Email: grenyer@uow.edu.au
717798ANP0010.1177/0004867417717798ANZJP PerspectivesGrenyer et al.
research-article2017
Viewpoint
2 ANZJP Perspectives
Australian & New Zealand Journal of Psychiatry, 00(0)
and Welfare, 2014). Mental health
nurses are a significant part of the
workforce but often are not trained in
psychological therapies; thus, improv-
ing access to funding psychologists is
the most viable option. There is
greater onus placed on psychologists
to provide treatment and support to
individuals with personality disorder,
yet the burden often falls to public ser-
vices which may struggle to provide
the community services required for
effective evidence-based care.
Consumers and carers have both
reported the difficulties in identifying
and accessing services (Lawn and
McMahon, 2015). Current mental
health schemes offered as part of uni-
versal health care in Australia, such as
the Better Access to Mental Health
Scheme and the Access to Allied
Psychological Services (ATAPS), sub-
sidise only 10–18 individual and 10–12
group sessions per calendar year,
which clinical guidelines and research
consider insufficient for meeting the
treatment needs of some individuals
with personality disorder (Beatson
and Rao, 2014; National Health and
Medical Research Council, 2012).
More concerning, at present, person-
ality disorders are not recognised on
the general practitioner’s mental
health care Medicare item list, sug-
gesting that current universal mental
health schemes are not suitably
designed to support the treatment of
personality disorder. Other treat-
ment access pathways such as
Australia’s National Disability
Insurance Scheme may not be a good
match for most people with personal-
ity disorder. The majority of people
with personality disorder respond
well if provided effective evidence-
based psychological treatment, and
therefore, recovery and living a con-
tributing life are achievable. Long-
term disability would mostly represent
a failure to access and receive evi-
dence-based community psychologi-
cal treatment. The implementation of
an alternative model for accessing
community-based treatment when
warranted by individuals is required.
At present, different state-based
initiatives in Australia – such as the
Project Air Strategy in New South
Wales and Spectrum Personality
Disorders Service in Victoria – are
available. South Australia, through its
state Mental Health Commission, has
commenced the process of reform.
We outline a number of areas of pri-
ority which require careful considera-
tion at this time of reform.
Improving treatment for
individuals with personality
disorder
Individuals with personality disorder
often access a variety of services, both
clinical and psychosocial, to assist with
their recovery. A national commit-
ment is needed to re-orient clinical
services to implement the National
Health and Medical Research Council
(NHMRC) clinical practice guidelines.
Stepped care models for personality
disorder have been developed using
brief interventions to intervene rap-
idly at the acute stage of illness, fol-
lowed by additional long-term
treatment as clinical need dictates
(Grenyer, 2014). The stepped care
approach also acknowledges individu-
als who have personality disorder
who do not require or wish to engage
in long-term care but can benefit from
immediate crisis care that provides
specific focused personality disorder
interventions (Grenyer, 2014). Long-
term evidence-based interventions
designed for the treatment of BPD
have demonstrated their effectiveness
in terms of outcomes and cost. A
recent systematic review identified
the benefits of providing evidence-
based interventions, with an average
cost saving of US$2987.82 per patient
per year (Meuldijk etal., 2017).
Training all mental health staff in
Australia to effectively work with indi-
viduals with personality disorder and
the implementation of brief and long-
term intervention services around
Australia are an urgent priority; as such,
these models can lead to significant
reductions in inpatient hospitalisation
and emergency department presenta-
tions (Grenyer, 2014). The need to
improve skills and knowledge of mental
health staff has been supported by the
need for a whole-of-system approach
such that staff working in specialist and
non-specialist organisations need to be
equipped with the skills and knowledge
in order to work with individuals with
personality disorder (Grenyer, 2013).
Assessing and intervening
early
Increasing evidence has suggested that
early intervention and diagnosis prior
to the age of 18 and intervening with
individuals who have emerging per-
sonality disorder are conducive to
improving outcomes (Chanen et al.,
2009). The NHMRC clinical practice
guidelines (National Health and
Medical Research Council, 2012)
make two pertinent recommenda-
tions: first, young people with emerg-
ing symptoms should be assessed for
possible BPD, and second, adoles-
cents should receive structured psy-
chological therapies. Yet despite this
clear guidance, there is ongoing reluc-
tance from health professionals in
diagnosing individuals with BPD prior
to the age of 18 years. This has poten-
tial to not only limit the types of ser-
vices individuals can access but also
delays access to effective treatment.
Primary care that is well connected to
schools and families provides good
opportunities to identify, intervene
and source additional support for
individuals with these emerging prob-
lems (Grenyer, 2013). Mental health
staff working with adolescents simi-
larly have the skills to assess and treat
young people with emerging symp-
toms if they are trained in contempo-
rary personality disorder treatment.
Sadly, most experienced staff identify
training and knowledge gaps in treat-
ing these disorders (McCarthy etal.,
2013).
One innovative example of early
intervention in Australia is the HYPE
(Helping Young People Early) clinic
based at the ORYGEN Youth Health
Grenyer et al. 3
Australian & New Zealand Journal of Psychiatry, 00(0)
(Chanen etal., 2009). This model pro-
vides integrative care for adolescents
between 15 and 25 years of age, offer-
ing psychotherapy, case management,
crisis care and support for families
and carers.
Improving the experience
of consumers, families,
carers and partners
There is a need to support all those
who embark on the treatment and
recovery journey from personality
disorders, which includes the family,
carers and partners of individuals with
personality disorder. Significant bur-
den, higher rates of psychological dis-
tress and reduced levels of wellbeing
have been associated with caring for
loved ones with personality disorder
(Bailey and Grenyer, 2014).
The consumer voice in personality
disorder has emerged in the past dec-
ade with the development of organi-
sations such as the Australian BPD
Foundation. These organisations play
an instrumental role in advocating for
consumers, carers and family mem-
bers, and increasing community
awareness of personality disorder.
Despite this work, considerable
stigma and discrimination continue to
be reported by both individuals with
lived experience and their carers,
within the community and the health
system (Lawn and McMahon, 2015).
This has been suggested to be per-
petuated by the attitudes and limited
knowledge on personality disorders
held by health practitioners. Alongside
an imperative to educate clinicians
already within the workforce, empha-
sis should also be placed on tertiary
and vocation education settings to
incorporate evidence-based knowl-
edge regarding personality disorder
for all pre-workforce clinicians. In the
community level, mental health liter-
acy in regard to personality disorder
is limited. The development of popu-
lation-based awareness campaigns,
not dissimilar to those designed to
improve awareness of depression and
schizophrenia, which involve individu-
als with personality disorder and their
carers, may address stigma and
increase awareness.
Research is also needed that
includes multiple perspectives to pro-
vide a greater insight into the experi-
ences of consumers (Ng etal., 2016).
This could be achieved through the
incorporation of differing methodolo-
gies in collective data, such as narra-
tive methods, ethnography, case
studies and participatory action
research. The development of a peer
workforce for personality disorder
may provide a unique opportunity for
the co-production of knowledge.
Accurate and
representative collection
and reporting of data
Improving the quality of health ser-
vices and understanding outcomes
for Australians living with personality
disorder are driven by the accurate
collection and reporting of data.
Currently, personality disorders are
often not specifically reported upon
within national reports, including
those from the Australian Institute
of Health and Welfare, but rather
classed within the ‘other’ category.
Internationally, personality disorders
have been excluded when reporting
on mental health morbidity (Tyrer
etal., 2010).
In the recent report on Healthy
Communities: Hospitalisations for
mental health conditions and inten-
tional self-harm in 2013–14, the other
category includes BPD, unspecified
delirium eating disorders and sleep
disorders (Australian Institute of
Health and Welfare, 2016). There is a
clear need to understand more about
this ‘other group’, particularly given
they represent close to a fifth of all
hospitalisations and 34% of all hospi-
talisations in individuals under 25 years
of age (Australian Institute of Health
and Welfare, 2016). Given population
data estimate the prevalence of per-
sonality disorders in 6.5% of the
Australian population (Jackson and
Burgess, 2000), it is likely a significant
proportion of other is represented by
individuals with personality disorder.
However, these data are more than
15 years old and require updating to
reflect current trends.
Rates of suicide for people with
personality disorder have been estab-
lished through examining longitudinal
studies of individuals who have sought
treatment and have been estimated to
be at approximately 10% (American
Psychiatric Association, 2001). The
national calls for suicide prevention in
Australia are silent on personality dis-
order, despite this diagnosis being
associated with a higher risk of self-
harm and suicidal behaviours (National
Health and Medical Research Council,
2012). Where they exist, studies have
predominately been based within
North America and no data are avail-
able for Australia. Also, the data
reflect individuals who have received
treatment, and it is unknown how this
translates to individuals who are not
engaging in treatment. The establish-
ment of a national suicide registry may
assist to understand mortality rates in
Australia – if mental health diagnoses
that include personality disorder are
linked.
Reforming the manner in which
personality disorder is serviced and
viewed in Australia will require a con-
sistent national approach involving
ongoing commitment from govern-
ment. We outline some of the perti-
nent issues surrounding personality
disorder; however, it is important to
recognise that ongoing changes as
part of national reform are required
in order to improve services and out-
comes for individuals with personality
disorder and their carers and their
families.
Declaration of Conflicting
Interests
B.F.S.G. is the Director of the Project Air
Strategy. S.R. is the Director of Spectrum
Personality Disorders Service. F.Y.Y.N.
and M.L.T. have no conflicts of interest to
declare.
4 ANZJP Perspectives
Australian & New Zealand Journal of Psychiatry, 00(0)
Funding
The author(s) received no financial sup-
port for the research, authorship and/or
publication of this article.
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Borderline personality disorder (BPD) is a severe mental health disorder that is subject to significant stigmatisation. With language being a key reinforcer of stigma, this co‐produced study aims to explore the language use regarding BPD and its effect on those with BPD and carers. Recommendations to reduce stigmatisation are provided for both clinicians and researchers. Participants with BPD (consumer n = 33) and those supporting someone with BPD (carer n = 30) discussed their experience of hurtful and helpful language. Reflexive thematic analysis was used to analyse written and verbal responses into core conflictual relationship themes (CCRT) reflecting how different words were heard and experienced. All consumers and carers in the study reported experiences with stigmatising language. Feelings of inadequacy and frustration were common amongst consumers, specifically when they perceived others as trivialising their needs or not seeing them as a unique individual. Carers often reported feelings of frustration when they perceived others as blaming them or not acknowledging their needs. Both consumers and carers reported helpful language as being connecting, validating and accepting. Unhelpful communication patterns have negative consequences for the person's self‐understanding (i.e., self‐stigma) and their relationships with others, including the therapeutic alliance. A consideration of these communication patterns may foster the use of reflective positive language that is compassionate and hopeful.
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Personality disorders, particularly borderline disorders (BPD), represent a significant treatment challenge for mental health services in part because of the severity of the disorder, but also because of the high prevalence. Aproximately one quarter of emergency mental health presentations and inpatient admissions are from people with personality disorders. Evidence-based treatment for BPD is psychological therapy based on clinical guidelines, yet the prevalence of the disorder presents a challenge to specialist intervention programs that typically are unable to meet the high clinical demand. Similarly, the particular nature of the disorder can challenge the capacity of teams to maintain compassion towards clients, given the particular features of the disorder that can induce negative countertransference responses. An integrative step-down whole of service approach that is based on a relational model is described that focuses on both the intrapsychic difficulties of the individual, as well as broader interpersonal conflicts that can challenge treatment teams, families and carers, and the broader community. The model includes the whole system supporting the client in the strategy. The Project Air Strategy for Personality Disorders outlines approaches to clinical leadership and service re-design, targetted training, the provision of brief and longer term treatments, rapid access to psychological assistance, support for families and carers, and better access to information and clinical resources to provide a more hopeful and integrated treatment.
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Accessible summary Borderline personality disorder (BPD) is a complex and challenging mental health condition for the person and service providers who support them. This paper reports on the results of a survey of 153 people with a diagnosis of BPD about their experiences of attempting to receive support in managing this mental health condition. It provides their perceptions of a range of experiences not reported in the existing literature, including general practitioner roles, urban and rural differences, public and private hospital differences, and comparison of usefulness of support across multiple support types. People with a diagnosis of BPD continue to experience significant discrimination when attempting to get their needs met within both public and private health services. Further education for nurses and other health professionals is indicated to address pervasive negative attitudes towards people with a diagnosis of BPD. Abstract There is limited understanding of the experience of seeking and receiving treatment and care by people with a diagnosis of borderline personality disorder ( BPD ), their perceptions of barriers to care and the quality of services they receive. This study aimed to explore these experiences from the perspective of Australians with this diagnosis. An invitation to participate in an online survey was distributed across multiple consumer and carer organizations and mental health services, by the P rivate M ental H ealth C onsumer C arer N etwork ( A ustralia) in 2011. Responses from 153 people with a diagnosis of BPD showed that they experience significant challenges and discrimination when attempting to get their needs met within both public and private health services, including general practice. Seeking help from hospital emergency departments during crises was particularly challenging. Metropolitan and rural differences, and gender differences, were also apparent. Community supports were perceived as inadequate to meet their needs. This study provides data on a range of experiences not reported in existing literature, including general practitioner roles, urban and rural differences, public and private hospital differences, and comparison of usefulness of support across multiple support types. Its findings can help inform better training for health professionals and better care for this population.
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The evidence base for the effective treatment of personality disorders is insufficient. Most of the existing evidence on personality disorder is for the treatment of borderline personality disorder, but even this is limited by the small sample sizes and short follow-up in clinical trials, the wide range of core outcome measures used by studies, and poor control of coexisting psychopathology. Psychological or psychosocial intervention is recommended as the primary treatment for borderline personality disorder and pharmacotherapy is only advised as an adjunctive treatment. The amount of research about the underlying, abnormal, psychological or biological processes leading to the manifestation of a disordered personality is increasing, which could lead to more effective interventions. The synergistic or antagonistic interaction of psychotherapies and drugs for treating personality disorder should be studied in conjunction with their mechanisms of change throughout the development of each. Copyright © 2015 Elsevier Ltd. All rights reserved.