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Feasibility of Assessing Parental ACEs in Pediatric Primary Care: Implications for Practice-Based Implementation

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Abstract

To determine the feasibility and provider acceptability of implementing assessments for parental ACEs within the context of an outpatient pediatric clinic, and to compare parental ACE detection rates between an item-level response tool and an aggregate-level response tool. A convenience sample of parents completed one of two assessment tools during their child’s four month well visit. Detection of ACE scores ≥4 was compared between the two tools. Providers conducting the assessments completed a qualitative survey describing their experiences. Detection rates were significantly higher with the use of an aggregate-level reporting tool compared to item-level tool (11.2% versus 8.1%, p = 0.013). Provider feedback on the assessment process was positive; providers reported improved clinic visits without undue burden in terms of time constraints or parental resistance to ACE assessments. Implementing parental ACE assessments is feasible with limited resources in an outpatient setting. Providers and parents appear receptive to the conversations about past trauma, and find value in including this information in their counseling during well visits. Parents appear to be more likely to disclose ACEs when a degree of privacy is given through aggregate-level versus item-level reporting.
ORIGINAL ARTICLE
Feasibility of Assessing Parental ACEs in Pediatric Primary
Care: Implications for Practice-Based Implementation
R. J. Gillespie
1
&Alonzo T. Folger
2
Published online: 11 March 2017
#Springer International Publishing 2017
Abstract To determine the feasibility and provider acceptabil-
ity of implementing assessments for parental ACEs within the
context of an outpatient pediatric clinic, and to compare paren-
tal ACE detection rates between an item-level response tool
and an aggregate-level response tool. A convenience sample
of parents completed one of two assessment tools during their
childs four month well visit. Detection of ACE scores 4was
compared between the two tools. Providers conducting the as-
sessments completed a qualitative survey describing their ex-
periences. Detection rates were significantly higher with the
use of an aggregate-level reporting tool compared to item-
level tool (11.2% versus 8.1%, p= 0.013). Provider feedback
on the assessment process was positive; providers reported im-
proved clinic visits without undue burden in terms of time
constraints or parental resistance to ACE assessments.
Implementing parental ACE assessments is feasible with limit-
ed resources in an outpatient setting. Providers and parents
appear receptive to the conversations about past trauma, and
find value in including this information in their counseling
during well visits. Parents appear to be more likely to disclose
ACEs when a degree of privacy is given through aggregate-
level versus item-level reporting.
Keywords Adverse Childhood Experiences .Resilience .
Toxic Stress
Abbreviations
ACE Adverse Childhood Experience
TCC The ChildrensClinic
CD-RISC Connor-Davidson Resilience Scale
BRFSS Behavioral Risk Factor Surveillance System
Introduction
The science of Adverse Childhood Experiences (ACEs) and
toxic stress has transformed our understanding of the role of
primary care in preventing lifelong health risks and promoting
wellness across the lifespan. The original ACE study was
groundbreaking in demonstrating a connection between a
childs early experiences and lifelong health trajectories
(Felitti et al. 1998). This connection is instinctively known
by all seasoned primary care pediatriciansthat healthy devel-
opment greatly depends on a nurturing and enriching social
environment, particularly in the critical early years of devel-
opment. Pediatricians are faced with translating the science of
toxic stress into actionable steps in protecting children from a
life of physical, mental and emotional damage. In 2012, a
policy statement disseminated by the American Academy of
Pediatrics endorsed this responsibility (Garner et al. 2011). In
describing the Bnew morbidities^of pediatric healthcare, the
pediatrician has a vital role in the early identification and
management of social-emotional disturbances, and is called
to innovate on how the science of toxic stress is incorporated
into practice.
Much attention has been given to the role of mitigating the
effects of toxic stress once they have occurred; the greater
challenge lies in prevention of these life-altering and health-
altering events. Very early adversity leads to disrupted attach-
ment patterns between children and their caregivers, and this
disrupted attachment can result in disturbances in the childs
*R. J. Gillespie
rgillespie@childrens-clinic.com
1
The Childrens Clinic, 9555 SW Barnes Road, Suite 301,
Portland, OR 97225, USA
2
Cincinnati Childrens Hospital Medical Center, College of Medicine
Department of Pediatrics, University of Cincinnati, Cincinnati, OH,
USA
Journ Child Adol Trauma (2017) 10:249256
DOI 10.1007/s40653-017-0138-z
Content courtesy of Springer Nature, terms of use apply. Rights reserved.
... 14 Numerous studies have argued for the importance of integrating caregiver and child's ACEs screening into pediatric primary care clinic settings, given the known negative intergenerational effects and the value of early screening. [15][16][17][18][19] However, only 4% of surveyed pediatricians actively screened for ACEs. 20 Potential barriers to widespread ACEs screening implementation include limited data supporting improved outcomes for children screened for ACEs, provider concerns over potential retraumatization or overdiagnosing patients through ACEs screening, 21,22 and many health system performance factors that may be influencing a screening decision upon the whole population. ...
... Case series conducted in non-Hispanic populations have provided initial evidence that discussions regarding caregiver ACEs have positive effects on mental and physical health for the caregiver and child. 16 Providing education to caregivers about how their own ACEs can impact parenting behavior and psychological health may positively alter behavior and promote help-seeking, although this remains untested. Gaps in research exist on whether screening and discussion of ACEs can negatively impact caregiver health by increasing symptoms related to traumatic memories. ...
... Moreover, screening and discussions did not cause significant delays in clinic flow, something that has already been demonstrated in a variety of settings. 16,18,29,32 While this study focused on addressing provider hesitancy, training, and feasibility, ensuring appropriate clinical resources is key for successful ACEs screening. It is essential to establish close collaboration with organizational leadership to ensure adequate referral processes and resource guidance for positive ACEs screenings. ...
Article
Full-text available
Background Evidence suggests that screening and provider-led discussions of parental adverse childhood experiences (ACEs) may help identify at-risk families and be linked to positive health outcomes in caregivers and their children. However, the direct effect of ACEs screening and discussions on posttraumatic stress disorder (PTSD) has yet to be studied. Objectives To determine if screening or provider-led discussions of parental ACEs are associated with inadvertent worsening of PTSD symptoms 1 week after screening. Research Design Data was obtained as part of a cluster randomized controlled trial to examine the effects of ACEs screening and provider-led discussions on child health care utilization outcomes. Baseline surveys were completed before scheduled infant well child checks (WCCs). Providers were randomized into the standard of care or intervention (discussion) conditions. Intervention providers were trained in delivering brief trauma-informed discussions about the impact of ACEs on parenting during WCCs. Subjects Caregivers in a pediatric primary care clinic serving predominantly Hispanic and low socioeconomically resourced families (N=179, 93% female, 87% Hispanic). Measures The Primary Care PTSD Screen for DSM-5 (PC-PTSD-5), Brief Resilience Scale (BRS), and ACEs screening were completed at baseline. PC-PTSD-5 was repeated 1-week after screening. Results Mixed-effects ordinal logistic regression analysis of PTSD scores from baseline to 1-week postscreening with the full sample showed no significant effect of time [odds ratio (OR)=1.21, P =0.68], group (OR=1.68, P =0.33), or their interaction (OR=0.48, P =0.21). Conclusions Screening or brief discussion of ACEs with providers trained in trauma-informed care were not associated with worsening PTSD symptoms.
... ACEs. The 14-item ACE Questionnaire (Felitti et al., 1998;Finkelhor et al., 2013;Gillespie & Folger, 2017) was used to assess parents' exposure to ACEs during childhood, including abuse/neglect, household dysfunction, and community violence. This questionnaire has been modified from its original version to include questions on community violence and aggregate-level responding (i.e., asking for respondents to include a total ACE score as opposed to including scores for individual ACE items), which has demonstrated increased privacy in responding and more accurate reports of ACEs (Finkelhor et al., 2013;Gillespie & Folger, 2017). ...
... The 14-item ACE Questionnaire (Felitti et al., 1998;Finkelhor et al., 2013;Gillespie & Folger, 2017) was used to assess parents' exposure to ACEs during childhood, including abuse/neglect, household dysfunction, and community violence. This questionnaire has been modified from its original version to include questions on community violence and aggregate-level responding (i.e., asking for respondents to include a total ACE score as opposed to including scores for individual ACE items), which has demonstrated increased privacy in responding and more accurate reports of ACEs (Finkelhor et al., 2013;Gillespie & Folger, 2017). Higher scores indicate higher ACE exposure. ...
Article
Full-text available
Introduction: The primary aim of this study was to examine the way in which parent stress, including adverse childhood experiences (ACEs) and emotional distress, pain, and resilience, relates to child pain and mental health variables when families are establishing pediatric pain management care. Method: Participants included 50 parent/patient dyads who were recruited from an outpatient pediatric pain clinic. The study utilized an observational design, including self-report questionnaires (parents, youth) and chart review. Questionnaires gathered information on parent ACEs, recent emotional distress, pain, and resilience, as well as child pain, anxiety, depression, and global health. The area deprivation index was used to assess family socioeconomic disadvantage, and all data were collected in 2021. Results: Results indicated that higher levels of parent pain severity, disability, and generalized pain were associated with child pain and mental health variables, including higher levels of child generalized pain, anxiety, depression, and worse child global health. Results also indicated that high parent pain disability coupled with higher levels of ACEs increased the risk for child generalized pain. Discussion: Parent factors may impact child pain and mental health variables for youth with chronic pain. Improved understanding of the way in which these parent variables relate to child variables may provide opportunities for improved assessment and care for youth and their families.
... Table 1 shows the demographic composition of the cohort at each of the three time periods. Across years, the majority of participants were in the oldest age category [11][12][13][14][15][16][17][18] (41.6%, 41.2%, and 40% for intervention clinics in years 2020, 2021, and 2022, respectively), followed by age 2-5 in 2020 (32.5% for intervention clinics), and 6-10 (25.9% in intervention clinics in year 2020). More children were in the 6-10 age group than 2-5 in years 2021 and 2022 (31.2% and 27.5% for intervention clinics in 2021 for age 6-10 and 2-5, respectively and 31.3% and 28.7% for intervention clinics in 2022 for age 6-10 and 2-5, respectively). ...
... While some argue that there is little evidence of the clinical utility of particular ACE scores and without evidence-based interventions that link directly to specific ACE scores there will be minimal benefit of screening [14,15]. Advocates for ACEs screening point to the importance of the screening for prompting conversations with parents about how early experiences can affect the health of their child and an avenue for gaining better information about their needs [16,17]. Although the current study does not address these issues, it does provide critical data regarding other concerns related to the capacity of behavioral health services after ACEs screening. ...
Article
Full-text available
Background There is increasing interest in screening for adverse childhood experiences in pediatric primary care, but no evidence of the actual consequences on behavioral/mental health services. This study tested the association between initiation of ACEs screening in pediatric primary care and changes in the rate of referrals to social work and visits to social work and behavioral health. Methods Data came from the electronic health records of children and adolescents between 2 and 18 years old who were members of a large integrated healthcare system serving Southern California (N = 513,812). Poisson regression was used to compare the rate of referrals and visits to social work and behavioral health visits for clinics doing standardized ACEs screening (i.e., intervention clinics; n = 28) versus clinics not screening (i.e., control clinics; n = 64) during June 1-December 31 2022 as well as for these same months in 2020 and 2021. Results Intervention clinics had an average screening rate of 57% (range 26.8 to 91.9%) and an average positive screen rate of 11% (range 1.6–25.1%). The difference in the adjusted rate from 2021 to 2022 was significantly different between intervention and control clinics for referrals to social work (RR 1.48, 95% CI 1.25, 1.74), but was not statistically different for visits to social work or behavioral health. Conclusions The findings suggest that ACEs screening does not significantly increase the rates of social work and behavioral health visits, although it did increase referrals to social work. We acknowledge that this may vary based on geographic areas and populations served by different healthcare systems.
... Some clinicians and practices screen only for the ACEs score because some research suggests that patients are more likely to disclose ACEs when asked only to report the total number of ACEs and not information on specific types of ACEs. [15][16][17] In addition, screening only for the ACEs score among child and adolescent populations can prevent the need for mandated reporting to child protective services (CPS), which would be required if some types of ACEs were identified (eg, child abuse and neglect, children witnessing intimate partner violence in the home). Some clinicians and practices use a threshold or cutoff ACEs score (eg, $4 vs 0-3 ACEs) to identify patients they consider to be at "high risk" for poor health outcomes. ...
... 29 ACEs screening may help promote supportive and empathetic relationships between clinicians and patients. 16 ACEs screening also has the potential to facilitate earlier detection of children and adolescents exposed to ACEs, perhaps offering an opportunity to prevent additional ACEs. Last, results from ACEs screening can potentially be used to inform care, referrals, and follow-up for children, adolescents, and adults exposed to ACEs to mitigate potential negative impacts on health and well-being and to treat current health challenges possibly resulting from ACEs. ...
Article
Full-text available
Adverse childhood experiences (ACEs) are common and can impact health across the life course. Thus, it is essential for professionals in child- and family-serving roles, including pediatric and adult primary care clinicians, to understand the health implications of childhood adversity and trauma and respond appropriately. Screening for ACEs in health care settings has received attention as a potential approach to ACEs identification and response. Careful examination of the existing evidence on ACEs screening and consideration, from a clinical and ethical perspective, of the potential benefits, challenges, and harms is critical to ensuring evidence-informed practice. In this critical appraisal, we synthesize existing systematic and scoping reviews on ACEs screening, summarize recent studies on the ability of ACEs to predict health outcomes at the individual level, and provide a comprehensive overview of potential benefits, challenges, and harms of ACEs screening. We identify gaps in the existing evidence base and specify directions for future research. We also describe trauma-informed, relational care as an orientation and perspective that can help pediatric and primary care clinicians to sensitively assess for and respond to ACEs and other potentially traumatic experiences. Overall, we do not yet have sufficient evidence regarding the potential benefits, challenges, and harms of ACEs screening in health care and other settings. In the absence of this evidence, we cannot assume that screening will not cause harm and that potential benefits outweigh potential harms.
... However, the review concluded that incorporating this enquiry was not time-intensive or resource-heavy (Mishra et al., 2023). One study reported that conversations about ACEs with patients lasted between 3 and 5 min on average (Gillespie & Folger, 2017). ...
Article
Full-text available
This study sought to identify gaps in the current literature base by exploring the perspectives of General Practitioners (GPs) in Northern Ireland in relation to the significance, relevance, and feasibility of conducting a comprehensive inquiry into Adverse Childhood Experiences (ACEs) with patients. Semi-structured, in-depth interviews were conducted with 10 qualified GPs using Zoom Videoconferencing technology. Interviews were audio recorded and transcribed verbatim. Qualitative data was analysed using Theoretical Thematic Analysis (Braun & Clarke Qualitative Research in Psychology 3(2):77-101, 2006). Analysis revealed nine key superordinate themes. These themes encompassed various aspects such as the role of a GP, trauma-informed training, the advantages and barriers associated with conducting an ACE assessment, and the impact of childhood adversity on subsequent physical and mental health. This study provides valuable primary care professional insights that contribute to the existing evidence base. It highlights the importance of recognising, discussing, and screening for ACEs in primary care settings. Furthermore, this study explores a range of practical adjustments that could support the implementation of routine ACE enquiry within the primary healthcare system in Northern Ireland.
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Objective Health inequities are widespread and associated with avoidable poor health outcomes. In the PICU, we are increasingly understanding how health inequities relate to critical illness and health outcomes. Experts recommend assessing for health inequities by screening for social determinants of health (SDOH) and adverse childhood experiences (ACEs); however, guidance on screening is limited and screening has not been universally implemented. Our study aimed to understand parent perspectives on screening for SDOH/ACEs in the PICU, with the primary objective of determining whether screening would be acceptable in this setting. Design We conducted a qualitative study using semistructured interviews with a convenience sample of eleven PICU parents between November 2021 and January 2022. Setting Urban, quaternary free-standing children’s hospital. Subjects Parents of children with a PICU hospitalization between November 2020 and October 2021. Interventions None. Measurements and Main Results Domains of interest included experience with and attitudes toward SDOH/ACEs screening, perspectives on addressing needs with/without resources and their relationship to health, and recommendations for screening. Interviews were transcribed verbatim and coded with an inductive approach using thematic analysis and constant comparative methods. Ann & Robert H. Lurie Children’s Institutional Review Board approved this study (2021- 4781, Approved September 13, 2021). Ten participants found SDOH/ACEs screening to be acceptable and valuable in the PICU, even for topics without a readily available resource. Participants did not have broad experience with ACEs screening, though all believed this provided the medical team with valuable context regarding their child. Ten participants recommended screening occur after their child has been stabilized and that they are notified that screening is universal. Conclusions Participants found screening for SDOH/ACES to be acceptable and valuable in the PICU. Families have important insight that should be leveraged to improve the support of unmet needs through the development of strengths-based, parent-informed screening initiatives.
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