AIMS: Supportive and end-of-life care strategies for people advanced cancer call for spiritual care to address their spiritual needs. The EORTC Quality of Life Group (QLG) is developing a spiritual wellbeing measure for palliative care patients with cancer. measurement and intervention characteristics, so serves both measure the effects of interventions which seek to address spiritual needs and ... [Show full abstract] also, by raising issues related to spiritual wellbeing, begin discussions of those issues. This may help patients decisions about their futures. This paper considers the measure's development to date and its possible uses.
METHODS: Following EORTC QLG guidelines for developing questionnaire modules, measure has just completed Phase III of its development: pre-testing. Phase I gathered palliative care patients and professionals' views possibly relevant issues, Phase II operationalised issues into and Phase III tested those items with patients.
RESULTS: Collaborators in 10 European countries and Japan took part in Phases I-III of measure development. 84 issues in Phase I have been developed into a provisional 33-item measure ready for field-testing. Phase III collected data from 113 patients in 7 countries. Due to careful attention to translation and simultaneous development in multiple languages, items are consistent between languages. Phase III data show that patients find the items comprehensible. It is also noteworthy that during Phase III patient participants in several countries used the measure as a starting point for discussing the issues it addresses.
CONCLUSIONS: The EORTC QLG's rigorous development process ensures that the EORTC QLQ-SWB33 identifies key issues for spiritual wellbeing and that items are comprehensible and consistent across languages. The measure also functions as a discussion tool, enabling patients to begin talking about issues related to spiritual wellbeing. This is both a supportive intervention of itself, and may also help patients with making decisions about their future care and treatment