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Scrapbooking as an Intervention to Enhance Coping in Individuals Experiencing Grief and Loss

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Abstract

Engaging in grief rituals is one way to help individuals cope with loss during traumatic and transitional events (Castle & Phillips, 2003). Creating scrapbooks that incorporate personal, symbolic objects is one activity that has been highly ranked as a preferred grief ritual in individuals dealing with loss (Castle & Phillips, 2003). Scrapbooks can serve as a catalyst for communication and discussion between individuals and their families, as well as provide an opportunity to connect and share with peers (McCarthy & Sebaugh, 2011). The use of scrapbooks may be particularly beneficial for individuals who have difficulty expressing their feelings with words (Karns, 2002), or for children who are unable to verbalize their feelings (Williams & Lent, 2008). This brief literature review examined the benefits associated with scrapbooking for individuals experiencing grief and loss. A knowledge translation plan offering suggestions for incorporating findings into recreational therapy practice is also provided.
Therapeutic Recreation Journal Vol. l, No. 2 pp. 181–185 20 16
Student Research
Keywords: bereavement; coping; grief; loss; memory book; scrapbook
Search Terms: bereavement group AND scrapbook AND coping; bereavement
AND scrapbook or memory book AND cope; grief AND memory book AND coping
Years: 2003–2015
Databases: Academic Search Premier, Ageline, CINAHL, ERIC, Medline, PsychAr-
ticles, PubMed, SageJournals, Social Work Abstracts
Number of Articles Reviewed: 6
181
Joanna King is a graduate student in the MS in Recreation erapy program at Temple University. Brooke
Prout is a graduate student in the MS in Recreation erapy program at Temple University. Amanda Stuhl is
a student in the accelerated BS/MS program in Recreation erapy at Temple University. Rhonda Nelson is an
Associate Professor in the Department of Rehabilitation Sciences at Temple University, and Program Director
for the erapeutic Recreation Program. Please send correspondence to Joanna King, jlking@temple.edu.
Scrapbooking as an Intervention to Enhance
Coping in Individuals Experiencing
Grief and Loss
Joanna King
Brooke Prout
Amanda Stuhl
Rhonda Nelson
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182 Scrapbooking, Grief, Loss, and Coping
Summary of Research Findings
Individuals can experience grief and
loss in a multitude of ways, and the wide
range of emotions that accompany these
experiences can be challenging for many.
Engaging in grief rituals is one way to
help individuals cope with loss during
traumatic and transitional events (Castle
& Phillips, 2003). Creating scrapbooks
that incorporate personal, symbolic ob-
jects is one activity that has been highly
ranked as a preferred grief ritual in indi-
viduals dealing with loss (Castle & Phil-
lips, 2003). Scrapbooks can serve as a
catalyst for communication and discus-
sion between individuals and their fami-
lies, as well as provide an opportunity to
connect and share with peers (McCarthy
& Sebaugh, 2011). e use of scrapbooks
may be particularly benecial for indi-
viduals who have diculty expressing
their feelings with words (Karns, 2002),
or for children who are unable to verbal-
ize their feelings (Williams & Lent, 2008).
e following six-article literature review
examined the benets associated with
scrapbooking for individuals experienc-
ing grief and loss.
Within the articles reviewed, a vari-
ety of scrapbooking interventions were
described. Some interventions were
delivered one on one (Allen et al., 2008;
Karns, 2002; Williams & Lent, 2008),
while others were oered as part of a
bereavement support group for friends,
family, and caregivers (Kohut, 2011;
McCarthy & Sebaugh, 2011). Programs
were implemented on a one-time basis
(Karns, 2002, Williams & Lent, 2008),
as part of three- or four-week interven-
tions (Allen et al., 2008; Kohut, 2011), or
as part of an ongoing biweekly program
(McCarthy & Sebaugh, 2011). Individu-
als who took part in these interventions
included older adults who had chronic,
life-limiting illnesses (Allen et al., 2008),
children and adults who had experi-
enced a traumatic or transitional event
(Karns, 2002), individuals (children and
adults) who had experienced the death
of a loved one (Castle & Phillips, 2003;
Kohut, 2011; Williams & Lent, 2008), in-
dividuals aected by a downturn in the
economy (Kohut, 2011), and caregiv-
ers whose family members were dealing
with chronic or terminal illnesses (Allen
et al., 2008; McCarthy & Sebaugh, 2011).
Aer engaging in scrapbooking
sessions, individuals experienced de-
creases in stress, depressive symptoms,
and physical symptoms such as pain
and diculty breathing (Allen et al.,
2008). ere were noted increases in
conversation and religious feelings (Al-
len et al., 2008), as well as an enhanced
sense of identity, social connectedness,
and independence (Karns, 2002). Other
participants reported greater feelings of
family bonding, love, strength, support,
and pride (McCarthy & Sebaugh, 2011).
Most importantly, scrapbooking was
found to be meaningful in terms of help-
ing individuals cope with loss (Castle &
Phillips, 2003; Kohut, 2011; McCarthy &
Sebaugh, 2011).
When scrapbooking activities were
structured as part of a support group, in-
dividuals specically beneted from the
supportive environment, in which they
could openly share and connect with
others in similar situations (Kohut, 2011;
McCarthy & Sebaugh, 2011; Williams
& Lent, 2008). For many of the partici-
pants, scrapbooking was identied as an
activity that provided a creative emo-
tional outlet (Karns, 2002; Kohut, 2011;
Williams & Lent, 2008), a way to gain
closure, and a tool to help adjust to new
situations (Karns, 2002).
Since this is a relatively new area of
research, some ndings are limited due
to design structure (case studies) (Karns,
King, Prout, Stuhl, and Nelson 183
2008; Kohut, 2011), and the inclusion of
individuals who were already receiving
other supports (Castle & Phillips, 2011).
Additionally, while some programs in-
cluded diverse participants (Kohut, 2011;
McCarthy & Sebaugh, 2011), two focused
exclusively on children or youth (Karns,
2002; Williams & Lent, 2008) while an-
other only included participants 60 years
and older (Allen et al., 2008). Details on
race and culture were not always provid-
ed, but one study predominantly includ-
ed African American participants (Al-
len et al., 2008). In order to increase the
generalizability of ndings, future studies
should include larger samples that repre-
sent individuals of diverse ages and races.
Research that utilizes control groups and
examines eects over longer periods of
time would also strengthen the evidence
base.
Nonetheless, the current literature
indicates scrapbooking is a normalizing,
supportive, nonthreatening, and mean-
ingful activity for individuals experienc-
ing grief and loss that can help them re-
gain a sense of control in their lives (Allen
et al., 2008; Karns, 2002; Kohut, 2011),
reduce stress (Allen et al., 2008), con-
nect with their feelings (Castle & Phillips,
2003; McCarthy & Sebaugh, 2011; Wil-
liams & Lent, 2008), improve conversa-
tion and interpersonal connections (Al-
len et al., 2008; Castle & Phillips, 2003;
Karns, 2008; Kohut, 2011) and enhance
coping (Kohut, 2011; McCarthy & Se-
baugh, 2011; Williams & Lent, 2008).
Knowledge Translation Plan
Individuals across the lifespan can
experience grief during traumatic or
transitional events. ese events might
include death of a loved one, moving, di-
vorce, illness, disability, hospitalization,
and loss of employment/income amongst
others. Family members who are serving
as caregivers for loved ones may also ex-
perience losses connected with changes
in their family relationships and situa-
tions (Allen et al., 2008). Given the nd-
ings summarized above, and outlined
graphically in Figure 1, recreational ther-
apists should consider using scrapbook-
ing as an intervention to help clients cope
with feelings of grief and loss they may be
experiencing connected with a variety of
life events.
Scrapbooking interventions can be
implemented individually or as part of
a support group in a variety of settings,
including hospitals, community centers,
schools, individuals’ homes, and day pro-
grams. As personal mementos can help
individuals validate relationships and re-
live special memories (Castle & Phillips,
2003), therapists should consider ways
for participants to come to sessions pre-
pared with these items.
During the scrapbooking process,
the recreational therapist should use
leading questions to guide discussions
and encourage participants to express
their thoughts and feelings in creative
ways. e therapist should introduce
participants to each other, explain and
demonstrate the process of scrapbooking,
provide prompts for pages and journaling
(Kohut, 2011), and facilitate the sharing
of scrapbooks among participants. Ad-
ditional sharing can occur with family
members either during or following the
session (Allen et al., 2008; Kohut, 2011).
For participants experiencing diculty
initially coming up with ideas, it may be
helpful to show them examples of previ-
ously assembled scrapbooks. Scrapbooks
are most meaningful, however, when cus-
tomized to each individual. erefore, ev-
erything from photographs and drawings
to poetry and personal mementos can be
included within the scrapbook (Karns,
2002), and the therapist can help partici-
184 Scrapbooking, Grief, Loss, and Coping
pants to identify symbolic items that have
signicant personal meaning for inclu-
sion in their scrapbook (Castle & Phillips,
2003).
erapists working with children
need to recognize that those under the
age of seven will respond best to oppor-
tunities to use artistic creation and sym-
bolic play to express their feelings (Wil-
liams & Lent, 2008). Regardless of age,
however, scrapbooking can be used as an
alternative to traditional talk therapy for
individuals, groups, or families to explore
and express emotions (Williams & Lent,
2008). is particular type of reminisc-
ing has been ranked more helpful than
some more traditional forms of counsel-
ing such as attending a bereavement sup-
port group or participating in individual
grief counseling or psychotherapy (Castle
& Phillips, 2003).
When using scrapbooking in a group
setting, therapists should capitalize on
the supportive atmosphere and encour-
age participants to share their books
with each other. is allows individuals
to share their emotions and pain, oen
prompting further sharing and psycho-
logical healing (Kohut, 2011). e ideas,
concerns, and fears expressed in a scrap-
Figure 1. Scrapbooking Intervention to Cope with Feelings of Grief and Loss
King, Prout, Stuhl, and Nelson 185
Figure 1. Scrapbooking Intervention to Cope with Feelings of Grief and Loss
book can facilitate discussion amongst
group members or with counselors, ther-
apists, and other professionals (Karns,
2002).
erapists who have limited time to
work with clients can start them o with
a single scrapbook page (McCarthy & Se-
baugh, 2011) and then encourage partici-
pants to add to their book on their own.
If a caregiver is involved, scrapbooking
can be structured as an activity that the
two individuals do together, as this can
have benets for both parties (Allen et al.,
2008).
Given the limited research in this
area, therapists should also aim to docu-
ment outcomes and record protocols and
session guidelines that can be replicated
by others. is will foster continued
growth of the evidence base since it ap-
pears scrapbooking interventions can be
a creative outlet for diverse individuals
and allow them to nd personal meaning
during a variety of traumatic or transi-
tional events.
References
Allen, R. S., Hilgeman, M. M., Ege, M. A., Shuster, J. L., & Burgio, L. D. (2008). Legacy ac-
tivities as interventions approaching the end of life. Journal of Palliative Medicine, 11(7),
1029–1038.
Castle, J., & Phillips, W. L. (2003). Grief rituals: Aspects that facilitate adjustment to bereave-
ment. Journal of Loss and Trauma, 8(1), 41–71.
Karns, J. T. (2002). Scrapbooking during traumatic and transitional events. Journal of Clinical
Activities, Assignments and Handouts in Psychotherapy Practice, 2(3), 39–47.
Kohut, M. (2011). Making art from memories: Honoring deceased loved ones through a scrap-
booking bereavement group. Art erapy: Journal of the American Art erapy Association,
28(3), 123–131.
McCarthy, P. G., & Sebaugh, J. G. (2011) erapeutic scrapbooking: A technique to promote
positive coping and emotional strength in parents of pediatric oncology patients. Journal of
Psychosocial Oncology, 29(2), 215–230.
Williams, K., & Lent, J. (2008). Scrapbooking as an intervention for grief recovery with children.
Journal of Creativity in Mental Health, 3(4), 455–467.
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... From a therapeutic perspective, recent research finds that scrapbooking could be an intervention to enhance coping in individuals experiencing grief and loss, and that participants ranked 'creating scrapbooks that incorporate personal, symbolic objects' as a preferred grief ritual in dealing with loss, helping them 'regain a sense of control in their lives.' 46 Pekárek's scrapbooks predominantly contain controlled choices, through carefully cut and arranged newspaper clippings about his successful concert performances, drawing on his strengths with Czech music. Deborah Wood, whose research investigates authorship, curation, and absence in scrapbooking, states that 'the newspaper clipping is one of the most common forms of ephemera within the scrapbooking genre.' 47 ...
Article
Transitional objects specific to the Holocaust-survivor experience can often include musical objects that survivors cling to for consolation, during and after the Holocaust. This article argues for the connection between conductor and Holocaust survivor Rudolf Pekárek’s programming of Czech composers throughout his career in Australia and this music being a transitional object of comfort for him. Drawn from research into Pekárek’s archival collection held at the University of Queensland’s Fryer Library, ten scrapbooks containing news articles, photographs, and ephemera including concert programs are analysed as case studies into how Holocaust survivors might use personal curation by scrapbooking for identity reformation. Findings reveal that Pekárek’s programming choices were likely derived from his connection to Czech composers’ music, which became transitional objects for him because of his experiences as a Czech Holocaust survivor. Pekárek’s specific preoccupation with and passion for Dvořák is linked to a moment in the Auschwitz-Birkenau concentration camp that gave him hope: specifically, melodies from Dvořák’s Symphony no. 9 in E minor, op. 95, ‘From the New World’, therefore held special meaning for him. In Australia, Pekárek’s programming created musical experiences for his local and regional audiences, as well as audiences abroad, that were critically recognised. Pekárek’s own narrative is meticulously recorded in a series of scrapbooks capturing his personal curation of storytelling that details his conducting journey through the placement of artefacts, and this article concludes that these scrapbooks were identity-strengthening for him as a Holocaust survivor. By applying a theoretical framework of self-fashioning, and processes of identity-reformation, this article also investigates the potential for scrapbooking to create an elevated sense of control for personal narrative through the honouring and curation of memories, particularly for Holocaust-survivor musicians.
... The systematic review highlighted the enormity and complexity of parental grief and how interventions should be tailored appropriately. There are a number of interventions offered for people experiencing grief with or without complications (Hooyman, 2006), from Cognitive Behaviour Therapy for complicated grief (Rosner, Pfoh, & Kotoucova, 2010) to scrapbooking (King, Prout, Stuhl, & Nelson, 2016). ...
Thesis
Thesis portfolio word count: 25,129 (excluding appendices) © This copy of the thesis has been supplied on condition that anyone who consults it is understood to recognise that its copyright rests with the author and that use of any information derived there from must be in accordance with current UK Copyright Law. In addition, any quotation or extract must include full attribution. 2 Thesis Portfolio Abstract Background: Movement in Children's hospices in the UK has seen the introduction of various 'cold' facilities, which allow families to spend time with their baby after they have died. To date, only two studies have explored the use of these facilities. This thesis aims to understand the experiences of parental grief and how this is expressed through a systematic review and explore the experiences of parents who have used 'cold' facilities within a paediatric hospice after the death of their infant. Methods: A qualitative thematic synthesis of the literature was conducted using electronic databases and relevant reference sections of papers to evaluate parental grieving patterns. Alongside this, a qualitative study was conducted using semi-structured interviews with seven parents who had used 'cold' facilities at a regional children's hospice. Data were transcribed and analysed using thematic analysis. Results: The systematic review found 7 studies which met the inclusion criteria. Quality was appraised, and data was analysed using thematic synthesis. Three themes identified: Affective vs. non-affective expression of grief; a reciprocal negotiation of grief; the pointlessness and importance of words. The thematic analysis of the qualitative study identified eight key themes. Conclusions: The research highlighted the unique experiences of parental grief and the experience of using 'cold' facilities. It highlighted the need for education, discussion and openness about death and grief within the wider community. Limitations and directions for future research are considered. 3
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Adolescence is a transitional period where a myriad of developmental changes will occur. Counselors working with grieving adolescents need to have a variety of techniques to use. Creative techniques have been found to be viable in coping with the death of a loved one. This article was crafted with the intent of exploring creative practices and strategies as viable treatment options for grieving adolescents.
Chapter
This chapter outlines the structure and therapeutic foundation for a play-based bereavement center geared toward children and families experiencing grief. Organizational structure and duties are discussed along with information regarding developing a playful facility including art/expressive writing, music, drama, symbolic play, and emotional regulation and release therapeutic opportunities. The author focuses on the supervision and training of community volunteers and counselors-in-training to increase positive outcomes and drive sustainability.
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Chapter
This chapter outlines the structure and therapeutic foundation for a play-based bereavement center geared toward children and families experiencing grief. Organizational structure and duties are discussed along with information regarding developing a playful facility including art/expressive writing, music, drama, symbolic play, and emotional regulation and release therapeutic opportunities. The author focuses on the supervision and training of community volunteers and counselors-in-training to increase positive outcomes and drive sustainability.
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When loved ones die, family and friends treasure memories with photographs and mementos. Creating a memory book from these treasures provides a tangible means for healing from loss, celebrating life events, and preserving family stories and legacies. This article describes the history and current popularity of scrapbooking, and its therapeutic benefits in an art therapy bereavement group for grieving adults and their family members. Case vignettes illustrate how group members used the creative process and the product of a scrapbook to connect and share their emotional pain with supportive others, and to begin to accept loss through a meaningful organization of memories and life events.
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This study explores the facilitative aspects of postfuneral rituals in the grief process. Participants included 50 adults who evaluated symbolic activities (rituals) in terms of helpfulness, aspects of those activities, and outcomes of performing such activities. Results confirmed (a) that appropriate rituals can facilitate adjustment to bereavement, (b) that some factors are particularly important for success of rituals, and (c) that performing rituals can have significant positive outcomes for participants.
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Scrapbooking is a popular hobby that can be used as a therapeutic tool. During traumatic and transitional events, an individual can use a scrapbook to chronicle events of personal importance, express emotions, and explore ideas. Scrapbooking has the same advantages as journaling yet allows self-expression without making writing demands on those uncomfortable with the blank page. The scrapbook can be included within the family therapy session to assist the child or teen in expressing his or her own needs.
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Therapeutic scrapbooking is an intervention being used with parents and caregivers of children with cancer. The purpose of the group is to promote hopefulness, mobilize internal strengths, and thereby enhance the parents' and caregivers' coping abilities to benefit pediatric oncology patients. Facilitators, licensed in medical social work, provide a safe environment for participants to verbalize their stories and share their distress. Scrapbooking is a "normal" activity without the negative stigma that a "support group" may carry, minimizing the reluctance to attend this supportive group. Outcome measurements indicate this therapeutic intervention achieves positive results.
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We examined the efficacy of an innovative family-based intervention designed to decrease caregiving stress and increase family communication among individuals with chronic, life-limiting illnesses and their family caregivers in a randomized, contact control group design. The intervention group received three home visits in which the interventionist actively worked with the family to construct a personal Legacy, usually a scrapbook with photographs or audiotaped stories. Control group families received three supportive telephone calls. Of the 42 families that entered the project, 31 families completed follow-up assessments within 9 to 10 weeks (14 control; 17 intervention; 72% African American) for a retention rate of 74%. Intervention caregivers showed reduced caregiving stress in comparison with control group caregivers, who showed increases in stress. Intervention patients reported decreased breathing difficulty and increased religious meaning. Caregivers and patients reported greater social interaction on the part of the patient. All participants in the intervention group initiated a Legacy activity and reported that Legacy improved family communication. Legacy interventions hold promise and are simple to implement.
Scrapbooking during traumatic and transitional events Assignments and Handouts in Psychotherapy Practice
  • J T Karns
Karns, J. T. (2002). Scrapbooking during traumatic and transitional events. Journal of Clinical Activities, Assignments and Handouts in Psychotherapy Practice, 2(3), 39–47.