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Patient Engagement A Consumer-Centered Model to Innovate Healthcare
Abstract
The increasing life expectations and the people desires for an improved quality of life are more and more putting under pressure Western healthcare systems, which are called to innovate their management approaches and their services delivery in order to become better aligned with the evolving demand of their clients. In this framework, to make consumers effectively engaged in their health care management is crucial for achieving such goals. According to a Consumer Psychology perspective, the book offers a comprehensive theoretical vision on patient engagement to healthcare professionals, policy makers, academics and experts of new technologies. The editors suggest concrete tools and insights to actively engage patients in their own healthcare. Rigorous and readable, this timely manifesto presents a new model of patient engagement in healthcare, emphasizing its value in improving patient care, safety, and outcomes and in leading to healthcare innovation.
Supplementary resources (2)
... The next two stages of analysis were used to explore how the identified strategies supported activities of engagement and patient-centered care. First, we mapped each engagement strategy (n = 14) to the four domains of patientcentered care-holistic care, individualized care, therapeutic alliance, and shared decision-making -to explore the representation and spread of strategies used across domains (Graffigna & Triberti, 2015;Marchand et al., 2019;Mead & Bower, 2000). Following, we engaged in thematic analysis of the data within each patient-centered care domain to characterize how groupings of strategies worked to facilitate the goals of patient-centered care for OUD care delivery. ...
... The construct of patient engagement is most often assessed through markers of OUD service utilization, such as attending appointments or filling prescriptions for medications (Vakkalanka et al., 2022;Williams et al., 2018). Patient engagement, however, reflects a multidimensional state of being activated and involved in one's health and healthcare (Graffigna & Vegni, 2017) and may be qualified by many other markers, such as health knowledge, empowerment to advocate for health preferences, and self-efficacy for managing behavior change (Graffigna & Triberti, 2015). And a 2018 systematic review of patient engagement metrics identified 72 unique process metrics and 44 unique outcome metrics (Dukhanin et al., 2018), indicating the need to think of engagement more holistically than just measures of utilization and retention. ...
Effective treatment for opioid use disorder (OUD) is available, but patient engagement is central to achieving care outcomes. We conducted a scoping review to describe patient and provider-reported strategies that may contribute to patient engagement in outpatient OUD care delivery. We searched PubMed and Scopus for articles reporting patient and/or provider experiences with outpatient OUD care delivery. Analysis included: (1) describing specific engagement strategies, (2) mapping strategies to patient-centered care domains, and (3) identifying themes that characterize the relationship between engagement and patient-centered care. Of 3,222 articles screened, 30 articles met inclusion criteria. Analysis identified 14 actionable strategies that facilitate patient engagement and map to all patient-centered care domains. Seven themes emerged that characterize interpersonal approaches to OUD care engagement. Interpersonal interactions between patients and providers play a pivotal role in encouraging engagement throughout OUD treatment. Future research is needed to further evaluate promising engagement strategies.
... Several studies reported that eHealth is operational and productive, demonstrating that patients present high results in both acceptance and satisfaction [6]. Positive Technology can guide the development of eHealth tools that foster patient motivation towards prevention and self-care by improving their autonomy and empowerment in their health care process, being adapted to the specific needs and conditions of its patient [34]. In BC patients, several benefits of using eHealth strategies have been mentioned [6]. ...
... Therefore, patients may not be receptive to starting treatments because they must effectively cope with the disease itself, understanding that they are in the initial stages of connecting with their new state of health. Therefore, it could be complex that, in addition to dealing with the disease, they initially contemplate the benefits that could be provided by the support of a virtual world [33], although in the same way, the use of ICT could be beneficial in this phase to modify the emotional state of the patient and enable them to regain control [34]. ...
Simple Summary
Breast cancer is the most commonly diagnosed cancer worldwide, and its burden has been rising over the past decades. As Internet or smartphone applications can be useful in addressing psychological burdens in cancer patients, these new tools represent an innovative research topic. Furthermore, among those new technological strategies, avatar-based treatments are starting to be considered a promising way to provide educational and psychological support to breast cancer (BC) patients. However, to date, no study has investigated the potential benefits that avatar-based technology could represent for improving the quality of life (QoL) and well-being of BC patients.
Abstract
There is a lack of studies to determine if avatar-based protocols could be considered an efficient and accurate strategy to improve psychological well-being in oncology patients, even though it represents a growing field of research. To the best of our knowledge, this is the first systematic review addressing the effectiveness of avatar-based treatments to enhance quality of life (QoL) and psychological well-being in breast cancer patients. The purpose of this study was to review the scientific literature of those studies involving avatar-based technology and breast cancer patients in order to answer the following questions. (1) Are avatar-based strategies useful to im-prove QoL and psychological well-being (anxiety and depression symptoms) in breast cancer patients? (2) Which is the best way to develop avatar-based protocols for breast cancer patients? We conducted a systematic review of the peer-reviewed literature from EBSCO, Ovid, PubMed, Scopus, and Web of Science (WOS), following the PRISMA statements and using “avatar + breast cancer” or “avatar + cancer” as keywords. Studies which were published in either English or Spanish and which addressed QoL and psychological well-being in breast cancer patients were reviewed. The results will contribute to developing innovative avatar-based strategies focused on breast cancer patients.
... Personalization is one of the major features of patient-centered systems. By incorporating patient health data, including diagnoses, medication regimens, and lifestyle habits, notifications can become more relevant and timelier (Graffigna et al., 2015). For instance, patients with diabetes can receive notifications centered on their Blood Sugar levels, and patients with hypertension can receive notifications regarding Blood Pressure checks and medication. ...
Notification scheduling systems have been an important way to integrate into health care to advance patient outcomes. This approach implies that alerts, reminders, and notifications are delivered gracefully to patients, healthcare providers, and caregivers to improve medication adherence, reduce hospital readmissions, and enhance patient engagement. While such systems provide good benefits, they also involve risks regarding patient privacy and data security. Notification scheduling plays a very important role in healthcare, and this article focuses on why having notification scheduling can enhance patient care and improve outcomes by way of communicating with patients in the most personalized and timely manner possible. The significance of the regulatory standards for healthcare communication is delineated within the paper regarding HIPAA and GDPR, which are imperative for safeguarding patient data. It as well describes the significance of end-to-end and data-at-rest encryption in guarding sensitive health information during transmission and storage. The article discusses the calibration of such strategies, which must be noninvasive and notify users correctly. It has to cover optimizing personalized content, timing, and frequency. It also examines using the existing emergent AI and machine learning technologies to upgrade notification scheduling systems through predictive analytics and personalized notifications. These systems have shown the benefit of reducing medication errors and improving chronic disease management and preventive care. The paper ends by mentioning the future possibilities that notification scheduling can bring us, advancements in wearable devices and telemedicine integration, and the challenges that still need to be solved for patient privacy and data security.
... The physician-patient engagement is pivotal in the success of medical treatment [1,2]. Physician-patient engagement encompasses the cooperative and interactive bond shared between the healthcare workers (HCWs) and their patients. ...
The physician-patient relationship relies mostly on doctors’ empathetic abilities to understand and manage patients’ emotions, enhancing patient satisfaction and treatment adherence. With the advent of digital technologies in education, innovative empathy training methods such as virtual reality, simulation training systems, mobile apps, and wearable devices, have emerged for teaching empathy. However, there is a gap in the literature regarding the efficacy of these technologies in teaching empathy, the most effective types, and the primary beneficiaries -students or advanced healthcare professionals-. This study aims to address this gap through a literature review following PRISMA guidelines. A comprehensive literature search was conducted in the PsychINFO, Scopus, PubMed, and Web of Science databases using specific keywords. Inclusion criteria for articles were established, and two researchers independently rated the selected articles, resolving any disagreements by consensus. Out of 1137 articles screened, a total of 14 articles were included in this review with a total of 1285 participants, who received empathic training integrated with the use of digital technologies. Only 9 articles defined the construct of empathy, focusing on cognitive, affective, clinical, or cultural aspects. Empathy was assessed with various methods and promoted through various digital technologies, including wearables (e.g. HMDs, SymPulse™ armband) and non-wearable devices (computer monitors, Mobile Apps, Kinect System). Participants were primarily medical students (68.1%), with few healthcare workers (31.9%) and nurses (2.9%). All digital technologies effectively promoted empathy among the target population except for 3 studies that involved advanced career healthcare workers. This review highlights the potential efficacy of digital technologies in fostering empathy among medical students, though not as effectively among advanced healthcare professionals. These insights have implications for designing targeted educational programs that address the distinct needs of healthcare professionals at varying career stages. Limitations and future research directions are also discussed.
... E. Behavioral Insights and Gamification: Hype methods of behavioral science and gamification ideas are being adopted in healthcare applications and portals to engage patients. The use of rewards, cues, and other incentives and messages makes it easier for someone to stick to the treatment plan and or recommended practices [6]. F. Patient Education and Support: Education to patients on health with the provision of relevant information through the use of websites, multimedia devices, and support groups enables patients to decide on their health. ...
This study investigates the use of machine learning models to predict patient engagement
levels in healthcare. By analyzing patient data, the study evaluates the performance of
Logistic Regression, Random Forest, and Gradient Boosting models. The results show that
ensemble methods, with an accuracy of 100%, outperform Logistic Regression, which has an
accuracy of 98.65%. The findings highlight the potential of machine learning to enhance
patient engagement and adherence to treatment plans. Implementing these models can lead
to more personalized healthcare, improved patient outcomes, and optimized resource
allocation.
Introduction
There is growing recognition of the importance of consumer representatives (CRs), consumers with lived experience, and advisors and volunteers in health systems to foster consumer‐oriented care. As part of this changing perception, some health services are inviting CRs to be on patient safety investigation teams. However, little is known from empirical studies about these representatives’ experiences and perceptions of their roles. This paper aims to contribute to understanding CR's involvement on investigation teams by examining the benefits, challenges, and other aspects of their participation.
Methods
The study takes a qualitative approach and draws on data from interviews with 11 CRs and 10 focus groups comprising health service staff from Victoria, Australia, and a data interpretation workshop with an advisory panel of six consumers across four Australian states. Thematic analysis was used for data analysis.
Results
We found that CRs have positive experiences in patient safety investigation teams, and their involvement often leads to more patient‐focused reviews and outcomes, and use of plain language. However, they also experienced some challenges, such as not being fully respected as equal members of the team, feeling uncomfortable speaking up, and practical issues such as payments and access to documents. The chair/facilitator plays a significant role in engaging with CRs meaningfully, and directly shapes the behaviours of the entire investigation team. Both CRs and chairs/facilitators require considerable institutional and systematic training and support within health services.
Conclusion
The benefit of CRs on investigation teams outweighs the challenges across the individual, team/organisational and health systems levels. More resources and policies are needed to support CRs' sustainable inclusion, diversity and involvement in our current and future health services.
Patient or Public Contribution
Eleven individuals with experience as CRs in patient safety investigation teams were interviewed. As indicated by the co‐authors of this paper, six consumers from four states who are members of a research consumer advisory committee have been involved in co‐designing the study methodology, interpreting the data, and writing this paper with the research team.
The sense of presence-the psychological experience of "being there"-has emerged as a critical phenomenon in Virtual Reality (VR) research. While traditional approaches have predominantly focused on technological features as primary drivers of presence, this paper argues that such a view is fundamentally incomplete. We contend that presence is primarily a psychological phenomenon shaped by three critical dimensions that extend beyond mere technological sophistication: (1) the impact of content and narrative structure in virtual environments, (2) the influence of users' individual characteristics and socio-cultural contexts, and (3) the relationship between presence and users' intentional structures. Through a synthesis of current evidence, we demonstrate that these psychological and social factors often outweigh technical considerations in determining the quality of presence experiences. As immersive technologies become increasingly prevalent in shared environments and sensitive contexts such as education and healthcare, this more sophisticated understanding of presence becomes crucial for designing effective virtual experiences. We argue that future VR development should shift from a predominantly technology-centered approach to one that carefully considers these psychological and social dimensions to achieve intended outcomes while accounting for individual and cultural variability.
The delivery of health care is not without problems, including problems in accessibility, quality of care, patient outcomes, and equity. That is a problem we see in healthcare organizations all over the world. Even if much has been invested into medical technology and policy change, it remains hard for health systems to address the heterogeneous requirements of communities. Thus, this paper outlines a critical evaluation of healthcare delivery, policy adaptation, and patient-centered innovation in order to understand how the systems have changed over time to meet the patient’s needs. Some of the areas of focus include the part played by policy in determining the provision of services, an analysis of patient-centered care, and the part played by technology in the delivery of services. It is also important to emphasize the problems of health care systems of developed and, especially, developing countries concerning disparities and inequality, underfunding, and inefficiency. The paper, based on the consideration of global health reports, different cases, and interviews with experts, aims to disclose how healthcare can meet new patient requirements and simultaneously enhance the result.
Similar to national trends, in Illinois, fatal opioid overdoses have risen. Black men (35+) outrank all other racial subgroups for the highest rate of fatal opioid overdoses in the state. To address this, Prevention First and the Illinois Department of Human Services developed a public health education campaign to support increasing enrollment in recovery services, with a focus on Black men (35+). Self-reported Black participants with opioid use disorder (OUD) made up the analytic sample. Study goals were to understand lived experiences of the campaign audience; investigate knowledge, attitudes, and beliefs regarding OUD and treatment; explore perceived barriers and facilitators to treatment; and evaluate messaging that showcased medication-assisted recovery (MAR) as a viable tool for treatment and recovery. Interviews were recorded and transcribed for thematic analysis. Participants shared long and cyclical journeys of use and recovery. Participants had low levels of knowledge of available treatment options and struggled to imagine themselves in recovery because of the fear of cravings and withdrawal. Messaging that was realistic about the cyclical nature of recovery, showed the varying options for MAR, and addressed cravings and withdrawals were well received. These findings illustrate the importance of understanding an audience and involving them in campaign development to create messaging that promotes behavior change and sustained health. Through the Decision Blocks strategic framework, we discovered information gaps, barriers to treatment, and practical solutions to increase access to treatment for Black men with OUD that has been limited due to inequities caused by structural racism.
Background: Education plays a pivotal role in the care of oncological patients, reducing health costs, hospital readmission, and disease relapses. Education can be supportive in achieving multiple outcomes, improving symptom control and quality of life. A new approach is emerging in patient education: gamification. Gamification was defined as the “use of game elements in non-game contexts”, including the application of games in serious contexts. The aim of this review is to explore the use of gamification in the oncology setting. Methods: A systematic scoping review was conducted in the MEDLINE, CINAHL, PsychINFO, Embase, Scopus, and Cochrane Library databases using the JBI guidelines. Results: The 13 included reports were critically appraised by two reviewers independently. It seems that gamification could be effective both in prevention and cancer treatments. Gamification also seems to improve chemotherapy-induced nausea and vomiting management, quality of life, and reduced anxiety levels in different cancer groups. Moreover, gamification seems effective in improving self-care in cancer patients, regardless of gender, age, and ethnicity. Conclusions: Gamification improves patient engagement and biopsychosocial outcomes and could represent a valid approach to cancer patient education; however, it is not a substitute for healthcare professionals, who remain the leaders in the education process.
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