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Love in the Time of Cancer: Kinship, Memory, Migration & Other Logics of Care in Kerala, India

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This chapter examines the ways women look for biomedical and other therapeutic resources for breast cancer through a complex topography of kinship, capital, migration, and corporeal explanation in the transnational context of India and the Persian Gulf. Drawing from practice theory and critical postcolonial feminist studies of kinship and the self, I examine the ways women use culturally shaped logics of shielding, disclosure, intention, and care to determine how and with whom treatment should be sought. From the movement of kin members within Kerala to the migration of relatives back from the Gulf, the ties women use to negotiate clinical gaps and prospects reveal an expansive situation of care seeking that complicates the assumption that access to treatment would be principally determined by structural (economic) factors and therefore best served by interventions limited to the health system.
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... Ethnography is a critical tool for teasing apart the complex meanings and structures of power that inform cancer research and treatment (Petryna, 2009;Joseph and Dohan, 2012;Livingston, 2012;Burke, 2014;Bright, 2015;Caduff et al., 2018;Banerjee, 2020). However, traditional fieldwork depends on months or years of immersive observation, interviewing, fieldnoting, and thick description to characterize complex layers of lived experience and historical context. ...
... Overall, our findings revealed a disturbing pattern of healthcare system barriers that we have reported previously (Bright et al., 2008(Bright et al., , 2011Yip et al., 2011;Bright, 2015). The /fsoc. . ...
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Introduction: In middle and low resource countries worldwide, up to 70% of breast cancer cases are diagnosed as locally advanced (stages IIB-IIIC). Delays in referral from primary to specialty care have been shown to prolong routes to diagnosis and may be associated with higher burdens of advanced disease, but specific clinical and organizational barriers are not well understood. Methods: This article reports on the use of rapid ethnographic research (RER) within a large-scale clinical trial for locally advanced breast cancer (LABC) in India, Mexico, South Africa, and the US. Our purpose is twofold. First, we demonstrate the value of ethnography as a mode of evaluative listening: appraising the perspectives of diverse patients and clinicians regarding prolonged routes to LABC diagnosis and treatment. Second, we show the value of ethnography as a compass for navigating among discrepant clinical research styles, IRB protocols, and institutional norms and practices. We discuss advantages and limits involved in each use of RER. Results: On the one hand, ethnographic interviews carried out before and during the clinical trial enabled more regular communication among investigators and research sites. On the other hand, the logistics of doing the trial placed limits on the extent and duration of inductive, immersive inquiry characteristic of traditional fieldwork. As a partial solution to this problem, we developed a multimodal ethnographic research (MER) approach, an augmentation of video-chat, phone, text, and email carried out with, and built upon the initial connections established in, the in-person fieldwork. This style has its limits; but it did allow us to materially improve the ways in which the medical research proceeded. Discussion: In conclusion, we highlight the value of not deferring to a presumed incommensurability of ethnographic fieldwork and clinical trialwork while still being appropriately responsive to moments when the two approaches should be kept apart.
... Ethnography is a critical tool for teasing apart the complex meanings and structures of power that inform cancer research and treatment (Petryna, 2009;Joseph and Dohan, 2012;Livingston, 2012;Burke, 2014;Bright, 2015;Caduff et al., 2018;Banerjee, 2020). However, traditional fieldwork depends on months or years of immersive observation, interviewing, fieldnoting, and thick description to characterize complex layers of lived experience and historical context. ...
... Overall, our findings revealed a disturbing pattern of healthcare system barriers that we have reported previously (Bright et al., 2008(Bright et al., , 2011Yip et al., 2011;Bright, 2015). The Bright . ...
Article
Full-text available
Introduction: In middle and low resource countries worldwide, up to 70% of breast cancer cases are diagnosed as locally advanced (stages IIB-IIIC). Delays in referral from primary to specialty care have been shown to prolong routes to diagnosis and may be associated with higher burdens of advanced disease, but specific clinical and organizational barriers are not well understood. Methods: This article reports on the use of rapid ethnographic research (RER) within a largescale clinical trial for locally advanced breast cancer (LABC) in India, Mexico, South Africa, and the US. Our purpose is twofold. First, we demonstrate the value of ethnography as a mode of evaluative listening: appraising the perspectives of diverse patients and clinicians regarding prolonged routes to LABC diagnosis and treatment. Second, we show the value of ethnography as a compass for navigating among discrepant clinical research styles, IRB protocols, and institutional norms and practices. We discuss advantages and limits involved in each use of RER. Results: On the one hand, ethnographic interviews carried out before and during the clinical trial enabled more regular communication among investigators and research sites. On the other hand, the logistics of doing the trial placed limits on the extent and duration of inductive, immersive inquiry characteristic of traditional fieldwork. As a partial solution to this problem, we developed a multimodal ethnographic research (MER) approach, an augmentation of video-chat, phone, text, and email carried out with, and built upon the initial connections established in, the in-person fieldwork. This style has its limits; but it did allow us to materially improve the ways in which the medical research proceeded. Discussion: In conclusion, we highlight the value of not deferring to a presumed incommensurability of ethnographic fieldwork and clinical trialwork while still being appropriately responsive to moments when the two approaches should be kept apart.
... As cancer diagnoses are on the rise in India, there is a great need for ethnographic studies and analyses to situate responses to this disease within the diverse sociocultural contexts of the country. Very few studies have been undertaken thus far to explore such issues in the Indian context (with some important exceptions being Trawick 1992;Broom & Doron 2012;Banerjee 2014;Bright 2015;andMacdonald 2015, 2016). In this article we have tried to show how ideas about causality and cure of cancer are deeply interwoven with relations of gender, class, caste, and religion in South India and that these factors have a profound impact on patients' quest for and experience of healing in the face of cancer. ...
... As cancer diagnoses are on the rise in India, there is a great need for ethnographic studies and analyses to situate responses to this disease within the diverse sociocultural contexts of the country. Very few studies have been undertaken thus far to explore such issues in the Indian context (with some important exceptions being Trawick 1992;Broom & Doron 2012;Banerjee 2014;Bright 2015;andMacdonald 2015, 2016). In this article we have tried to show how ideas about causality and cure of cancer are deeply interwoven with relations of gender, class, caste, and religion in South India and that these factors have a profound impact on patients' quest for and experience of healing in the face of cancer. ...
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