Article

Providers' perspectives on treating psychogenic nonepileptic seizures: Frustration and hope

Epilepsy & Behavior (Impact Factor: 2.26). 08/2014; 37C:276-281. DOI: 10.1016/j.yebeh.2014.07.001
Source: PubMed

ABSTRACT

Recent diagnostic and treatment advances in psychogenic nonepileptic seizures (PNES) have the potential to improve care for patients, but little is known about the current state of PNES care delivery in the Veterans Health Administration (VA). We conducted semistructured interviews with 74 health-care clinicians and workers in the VA, eliciting provider perceptions of PNES care. Data were analyzed according to principles of Grounded Theory. The results revealed variation in care and two emergent domain themes of frustration and hope. Frustration was manifest in subthemes including Complexity, Patient Acceptance, Uncertainty About Treatment, Need for Evidence-based Treatment, and Failure of Cross-Disciplinary Collaboration between neurologists and mental health providers. Hope encompassed subthemes of Positive Attitudes, Developing Cross-Disciplinary Treatment, and Specific PNES Care. Increased resources for diagnosing, treating, and researching PNES have improved awareness of the disorder. More research is needed to understand patients' and caregivers' perceptions of PNES care.

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Available from: Katharine Kaye McMillan, Aug 20, 2014
    • "These studies highlighted several themes in patients' responses to the diagnosis , particularly feelings of confusion about the nature of the disorder, relief, and feeling like a 'normal' person again (i.e., due to not having a chronic neurological condition). Issues relating to provision and patients' experiences of treatment have also been examined qualitatively2021222324. Other authors have adopted qualitative techniques when investigating the experiences and understanding of patients with DS about their disorder. "
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