Guidelines for the transition from child to adult cystic fibrosis care

School of Nursing and Midwifery, Áras Moyola, National University of Ireland, Galway.
Nursing children and young people 06/2013; 25(5):29-34. DOI: 10.7748/ncyp2013.
Source: PubMed


Aim To develop relevant and feasible guidelines for transition care, based on the perspectives of stakeholders. Methods A sequential exploratory mixed method design: the first, qualitative phase used focus group interviews with healthcare professionals. The second, quantitative phase used a questionnaire, based on the results of the interviews, to survey a larger sample of adolescent clients and healthcare professionals. Findings The group interviews recommended a systematic approach to transition care, in an environment appropriate to each individual's stage of development, and training of healthcare professionals in issues related to adolescence and the transition process. Survey participants agreed on the relevance and feasibility of 36 of the guidelines extracted from the interviews. Conclusion The proposed guidelines reflect the elements of care essential to a secure transition from child to adult health services. They go some way to meeting the diverse needs of young people living with a chronic life-limiting illness.

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Available from: Nabeel Al-Yateem, Oct 14, 2014
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    • "Consequences range from unnecessary psychological discomfort and distress to failure by the child to achieve developmental milestones. Children with chronic illnesses may be particularly at risk of adverse outcomes where ongoing intrusive and painful interventions are required (Al-Yateem, 2013; Annunziato et al., 2007; Coyne, 2013; "
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