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This study evaluates the prevalence of HIV stigma in Spain and analyzes some variables that may affect its existence. In 2008, we conducted a computer-assisted telephone survey of 1607 people, representative of the Spanish population. Two-wave random stratified sampling was performed, first selecting the home and then the person, depending on the rates of age and sex. About 50% of the population feels discomfort about potential contact with people with HIV and tries to avoid it and 20% advocate discriminatory policies involving physical or social segregation of people with HIV. The belief that HIV is easily transmitted through social contact (15%) and blaming people with HIV for their disease (19.3%) are associated with stigmatization. Degree of proximity to people with HIV, political ideology, educational level, and age are also associated with the degree of stigmatization. According to these results, we suggest that, in order to reduce stigma, we need to modify the erroneous beliefs about the transmission pathways, decrease attributions of blame to people with HIV, and increase contact with them. These interventions should particularly target older people, people with a low educational level, and people with a more conservative political ideology.
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Spanish Journal of Psychology (2013), 16, e30, 1–8.
© Universidad Complutense de Madrid and Colegio Oficial de Psicólogos de Madrid
doi:10.1017/sjp.2013.52
The importance of the stigma suffered by people with
HIV has been extensively documented (Herek, 1999;
Li, Liang, Wu, Lin, & Wen, 2009; Sullivan et al., 2010).
At the individual level, prejudice and discrimination
have a serious impact on the psychological health of
the people affected (Steward et al., 2011), impairing
their physical and psychosocial coping with the health
process (Li et al., 2011; Logie & Gadalla., 2009). At the
social level, fear of rejection foments concealing the
infection and such concealment hinders the diagnosis
and treatment (Young & Bendavid, 2010), often leading
these people to continue to perform risk practices (Clum,
Chung, & Ellen, 2009).
In Spain, two studies related to the social perspec-
tive of HIV have been carried out in recent years.
The first one, conducted by Spanish Aids Research
and Prevention Foundation (FIPSE, 2005), analyzes
the discrimination towards people with HIV in diverse
areas of social life. The second (Agirrezabal, Fuster, &
Valencia, 2009) analyzes the occupational integration
of people with HIV. The results of the first study
show that, although there is no discrimination in the
legislation of Spain, discrimination is nevertheless
present in daily life, where there are negative prac-
tices in diverse areas such as health care, employ-
ment, justice, or education. The study of occupational
integration shows that discrimination is also one of
the main difficulties for the integration of people with
HIV. In addition to these studies, the survey on sexual
habits (INE & SPNS, 2003) reports that one out of three
Spaniards would not study or work with a person
with HIV.
However, and despite the many signs of more or less
covert rejection of people with HIV in Spain, till now,
there have been no studies carried out with a represen-
tative sample of the Spanish population that assess
the degree of stigma and rejection of people with HIV
and that analyze the factors that contribute to it.
Therefore, this work has two main objectives. The
first one is exploratory and consists of describing how
Spanish society perceives several issues related to
HIV and AIDS. The second goal is to analyze some
variables that may help to understand why some indi-
viduals reject people with HIV. The determination of
the variables related to stigma and/or the sectors of
the population most prone to stigmatize is very useful
in order to design future campaigns to prevent rejection
of people with HIV.
HIV- and AIDS-Related Stigma: Psychosocial Aspects
in a Representative Spanish Sample
Maria J. Fuster
1
, Fernando Molero
1
, Lorena Gil de Montes
2
, Arrate Agirrezabal
2
, and Amaia Vitoria
3
1
Universidad Nacional de Educación a Distancia (Spain)
2
Universidad del País Vasco ( Spain)
3
Ministerio de Sanidad, Servicios Sociales e Igualdad (Spain)
Abstract. This study evaluates the prevalence of HIV stigma in Spain and analyzes some variables that may affect
its existence. In 2008, we conducted a computer-assisted telephone survey of 1607 people, representative of the
Spanish population. Two-wave random stratified sampling was performed, rst selecting the home and then the
person, depending on the rates of age and sex. About 50% of the population feels discomfort about potential contact
with people with HIV and tries to avoid it and 20% advocate discriminatory policies involving physical or social
segregation of people with HIV. The belief that HIV is easily transmitted through social contact (15%) and blaming
people with HIV for their disease (19.3%) are associated with stigmatization. Degree of proximity to people with
HIV, political ideology, educational level, and age are also associated with the degree of stigmatization. According
to these results, we suggest that, in order to reduce stigma, we need to modify the erroneous beliefs about the
transmission pathways, decrease attributions of blame to people with HIV, and increase contact with them. These
interventions should particularly target older people, people with a low educational level, and people with a more
conservative political ideology.
Received 9 July 2011; Revised 18 January 2012; Accepted 14 March 2012
Keywords: AIDS, HIV, stigma, discrimination, Spain.
Correspondence concerning this article should be addressed to
Maria J. Fuster. Universidad Nacional de Educacn a Distancia
(UNED). Sociedad Española Interdisciplinaria del Sida (SEISIDA).
Calle Dr. Fleming, 3. 28036. Madrid (Spain).
E-mail: fuster.mariajose@gmail.com
This study was financed by the Sociedad Española Interdisciplinaria
del Sida (SEISIDA). We thank Greg Herek for his collaboration in this
research
2 M. J. Fuster et al.
Prejudice emerges when one group feels threatened
by another group, and infection by HIV has various
threatening characteristics. On the one hand, it is
perceived as a tangible threat to health, because it is
a serious infection, and closely associated with death
ever since its origin. Moreover, it is a transmittable
infection that is perceived as contagious,” that is,
easily acquired through social contact. In fact, there
is empirical evidence of the association of fear of
transmission by casual contact with the stigma against
people with HIV (Cao et al., 2010; Sullivan et al., 2010)
Therefore, we expect that:
Hypothesis 1: People who perceive HIV to be more
threatening, that is, people who believe that HIV can
be transmitted by casual or social contact, will tend to
reject people with HIV.
Controllability of stigma has been considered par-
ticularly important by various authors (i.e., Crocker,
Major, & Steele, 1998) and the literature shows that the
more responsible a person or group is held for their
stigma, the greater the degree of rejection and the less
empathy they evoke (Decety, Echols, & Correl, 2010).
In this sense, the above-mentioned studies (Cao et al.,
2010; Sullivan et al., 2010) also found an association
between blaming people with HIV and the degree of
stigma expressed against them. Therefore, we expect
that:
Hypothesis 2: The interviewees who believe that
people with HIV are responsible for their condition
will tend to reject them to a greater extent.
There are numerous studies in the literature on prej-
udice (contact hypothesis) that note that, under certain
circumstances, a relationship with people from the
stigmatized group improves individuals’ opinion of
them (i.e., Pettigrew & Tropp, 2006). In the specific case
of HIV, the literature has shown that, in effect, scarce
contact with people with HIV is associated with more
rejection (Genberg et al., 2009). Therefore, in this case,
we expect that:
Hypothesis 3: People who feel closer to people with
HIV will have more positive attitudes towards this
collective.
Diverse studies have found differences in the mag-
nitude of expressed prejudice as a function of some
sociodemographic characteristics and the socialization
process. It was found that older people express more
rejection towards people with HIV (Cao et al., 2010).
There are also studies that have revealed the associa-
tion of a low educational level with attitudes of preju-
dice towards people with HIV (Cao et al., 2010; Sullivan
et al., 2010). Lastly, the literature shows that people who
were socialized with certain authoritarian values and
traditional beliefs express more prejudice towards cer-
tain groups, such as, for example, people of other ethnic
groups and homosexuals (Haddock, Zanna, & Esses,
1993; Wylie & Forest, 1992). The influence of political
ideology has also emerged in the concrete case of HIV-
associated stigma (Li et al., 2009). Therefore, we expect
that:
Hypothesis 4: The more advanced the age of the
people interviewed, the greater their degree of rejection
of people with HIV.
Hypothesis 5: Low educational level will be posi-
tively related to rejection of people with HIV.
Hypothesis 6: Conservative attitudes will be posi-
tively related to rejection of people with HIV.
Method
Sample and Procedure
The sample, representative of the Spanish population,
comprises 1607 people, providing a margin of error of
approximately 2.51% for a 95.5% confidence level (CI)
in a scenario of maximum dispersion. The age range of
the people interviewed was between 16 and 90 years
(M = 41.60, SD = 16.69). Among them, 49% were men
and 51% were women (the distribution of sample was
based on the National Statistics Institute from Spain).
With regard to the participants’ educational level, 4.36%
had no studies, 22.65% had primary studies, 39.45% had
secondary studies and 32.74% had university studies.
The data from the Instituto Nacional de Estadística
[National Statistics Institute] (2010) on the educational
level of the population displays a similar distribution
in the diverse categories. Thus, the largest percentage
of the population falls in the category of secondary
studies (45.21%), followed by higher studies (23.38%),
primary studies (20.22%), and lastly, people with no
studies (8.87%), and illiterate people (2.32%). However,
we observed that the percentage of people with higher
studies was larger in this study, and that the percentage
of people with secondary studies or without any studies
was slightly lower.
With regard to the socio-economic level of the partic-
ipants, 35% reported having a high or medium-high
level, almost 40% had a medium level, and 25% had
a low or medium-low level. With regard to political
ideology, somewhat more than 31% reported a left-
wing ideology, 33.5% said they were central, and 21.3%
informed they were right-wing. Of the people inter-
viewed, 58% did not know anybody with HIV.
The data were collected in the last quarter of 2008.
A two-stage semi-proportional stratified random sam-
pling was carried out. In the first stage, we selected
the home where we requested permission to perform
the survey. The homes were selected according to the
population by autonomous communitythat is, 17
strata—and the size of the habitat or residence as a
function of 5 strata. In the second stage, we selected
the individual within the home as a function of the
HIV-Related Stigma in Spain 3
quotas of sex and age. We never carried out more
than one interview per home. We performed compu-
ter-assisted telephone interviews (CATI). A random
system dialed telephone numbers of homes from the
municipalities included in each sample cell.
1
When the person selected was not at home, we
tried to contact them three more times (on different
days and time slots) before marking them as “negative.
At that time, a new home was selected. A maximum of
ten contacts was established with the selected people
for each interview performed. With regard to non-
responders, in general, the people contacted did not
explicitly refuse to be interviewed, but instead, they
usually postponed it several times or provided some
other excuse.
Instruments
The survey used in this investigation was mainly
based on the instrument used by Herek (Herek, 1999;
Herek & Capitanio, 1993; Herek, Capitanio, & Widaman,
2002). We also adapted items from surveys carried out
in the USA by the Kaiser Family Foundation (2006).
Firstly, in view of the fact that stigma is expressed
in different ways, the questionnaire measures diverse
facets of stigma. Thus, we included issues concerning:
The degree of discomfort concerning people with HIV and
the avoidance of contact with them in three hypothetical
situations (sending a child to a school where there are
students with HIV; working in an office where one of
the coworkers has HIV; shopping regularly in a store
in which an employee has HIV).
Discomfort in these three types of situations was
measured with a 4-point response scale, ranging from
1 (not at all uncomfortable) to 4 (extremely uncomfortable).
For the inferential analyses, we used the average score
resulting from discomfort in the three types of situations
(M = 1.6, SD = .63, α = .78).
Next, if the interviewees had admitted some degree
of discomfort, they were asked about their avoidance
intention through an item applied to the three above-
mentioned scenarios. In the shop scenario “And would
you try to shop in another store?”, in the school
scenario “And would you change your child’s school”,
and in the work scenario “And would you ask for your
coworker with HIV to be transferred to another place
at work, or would you ask to be transferred yourself?
All questions were answered ‘yes’ or ‘no’.
The advocacy of discriminatory policies
This variable was measured by means of the following
items: “In some places, people with HIV or AIDS should
be segregated by Law to protect public health” and
“The names of people infected with HIV or AIDS
should be made public so people who wish to could
avoid them.” These items had a 4-point Likert-type
response format, ranging from 1 (strongly disagree) to 4
(strongly agree). Both items were significantly correlated
(r =.39, p < .001), so for the analyses we used the average
score of both items (M = 1.64, SD = .83).
Social categories that are perceived in risk of HIV
To measure this variable, the interviewer read aloud
a series of target groups, asking interviewees to choose
up to the three they thought could more easily be
infected with HIV. The following response categories
were provided: homosexuals, men, drug consumers,
rich people,promiscuouspeople who practice sex
with various partners, women, immigrants, young
people, poor people, prostitutes; the response option
“none of the above” was also provided.
Secondly, we measured some variables that, according
to the literature, are relevant to the study of stigma.
The questionnaire measured:
Beliefs about the transmission of HIV through social
contact
We measured the beliefs about the probability of
becoming infected by HIV by sharing a glass with a
person with HIV, using public toilets, or if a person
with HIV coughs or sneezes nearby. All three items
had a 4-point Likert-type response format, ranging
from 1 (not at all likely) to 4 (very likely). For the inferential
analyses, we used the score resulting from adding the
three beliefs about the transmission of HIV (M = 1.73,
SD = .70, α = .73).
The attributions of responsibility and blame to people
with HIV
This variable was measured by means of the items:
“People with HIV or with AIDS are to blame for their
disease” and “People who have caught HIV through
sexual relations or through the use of drugs get what
they deserve”. These items had a 4-point Likert-type
response format, ranging from 1 (strongly disagree) to
4 (strongly agree). As both items were significantly
1
The Random Dialing system uses the information obtained from
the Telecommunications Market Commission. From this information,
a series of telephone numbers (landline and mobiles) are extracted in
proportion to the interviews to be carried out in each geographic
sphere. These are the seed numbers. From them, the system extracts
other numbers above and below them, as a function of a randomly
determined sequence. As the geolocalization of mobile phones cannot
be determined a priori, it first obtains the percentage of the sample
of homes that only have a mobile phone. The National Institute of
Statistics determined that 14% of the homes belonged to this category
at the time of the study. Then the CATI system completed the remaining
missing goal with landline phones. The system thus designed generates
the same probability for all the homes to be included in the sample.
4 M. J. Fuster et al.
correlated (r = .41, p < .001), we used the average score
in the analyses (M = 1.77, SD = .81).
Degree of proximity to people with HIV
We measured the degree of proximity of the interviewees
to people with HIV by means of an item with a 10-point
Likert-type response format, ranging from 0 (no relation-
ship at all) to 10 (close relationship) (M = 2.26, SD = 3.7).
Political ideology
This variable was measured with an item on a 10-point
Likert-type response format, ranging from 1 (extreme left-
wing) to 10 (extreme right-wing) (M = 4.95, SD = 2.48).
Lastly, the questionnaire included a section with
questions about age, sex, educational level, and occupa-
tion of the interviewee.
Data Analysis
In accordance with the goals of the study, the data
analysis includes descriptive and inferential techniques.
The descriptive results are given in weighted percent-
ages. In order to study the variables that contribute the
most to HIV-related stigma, we selected as indicators
of stigmatization two criterion variables: avoidance
intention and advocacy of discriminatory policies.
Given the different nature of the measurement of these
variables, to study the variables related to advocacy of
discriminatory policies, we carried out linear regression
analysis and to study the variables related to avoidance
intention, we applied the technique of binary logistic
regression. The independent variables were: socio-
structural variables (sex and age), variables related to
the socialization process (educational level and political
ideology), and variables related to the characteristics
of HIV-related stigma (perceived severity of AIDS,
proximity to people with HIV, beliefs about the trans-
mission of HIV through social contact, and blaming
people with HIV for having the infection).
Results
The results are presented taking into account the
proposed goals. Thus, firstly, we present the descrip-
tive results of the survey. Secondly, the results about
the variables that influence HIV-related stigma
Spanish population’s perception of people with HIV
Results show that 19.3% of the people interviewed
consider that people with HIV are to blame for their
infection, and 17% think that people who have contracted
HIV via sexual relations or drug consumption get what
they deserve, 95% CIs [17%, 21%] and [15%, 18%], respec-
tively. Besides, people think that prostitutes (72.2%),
drug users (66.5%), promiscuous people (60.6%)
and, to a lesser extent, homosexuals (39.1%) are the
social groups with most possibilities of becoming
infected by HIV (Figure 1).
Regarding beliefs about the transmission of HIV, the
results showed that 15.1% of the population thinks that
it is fairly or very probable for a person to become
infected with HIV by sharing a glass with someone
who has the virus, 17.3% believes that they could
become infected with HIV by sharing public toilets
with someone who is infected with the virus, and
14.9% hold the belief that they can be infected with
HIV if a person with HIV coughs or sneezes nearby,
95% CIs [13%, 16%], [15%, 19%] and [13%, 16%],
respectively.
Results also show that 58.8% of the population
would feel between somewhat and completely
uncomfortable if a classmate of their child had HIV,
30.8% would be uncomfortable if one of their coworkers
had HIV, and 44.5% if would feel discomfort if an
employee who worked in a store where they bought
regularly had HIV, 95% CIs [56%, 61%], [28%, 33%]
and [42%, 46%], respectively. We also observed that,
among the people who express discomfort, 40% would
change their child’s school if they could, 31.1% would
ask for the coworker with HIV to be transferred to
another place at work, or they would ask for a transfer
if they could, and 52.3% would try to buy at another
store if possible, 95% CIs [36%, 43%], [27%, 35%] and
[48%, 56%], respectively.
Finally, the study reveals that 20% of the population
believes that, in some places, the law should oblige
people with HIV to be separated to protect public
health, and 18.1% of the population thinks that the
names of persons with HIV should be made public
so that the people who wish to avoid them can do so,
95% CIs [18%, 22%] and [16%, 20%], respectively.
Variables related to HIV-associated stigma:
predictors of advocacy of discriminatory policies for
people with HIV and of the intention to avoid them
Firstly, the results of the lineal regression analysis
showed that beliefs about transmission of HIV through
social contact, blaming people with HIV, the perceived
distance from them, higher age, and lower educational
level were the variables that significantly predicted the
advocacy of discriminatory policies for people with
HIV. Likewise, we found that right-wing political
ideology had marginally significant influence (Table 1).
The model explained 24% of the variance and had a
medium-high effect size (f
2
= .31) and very high power
(λ = 207.08). These results confirm all the hypotheses
of the study, except for the sixth one, which achieves
partial support.
HIV-Related Stigma in Spain 5
Secondly, the results of the binary logistic regression
showed that higher age, right-wing political ideology,
perceived distance from people with HIV, blaming
people with HIV, and beliefs about the transmission
of HIV were the variables that predicted the intention
to avoid people with HIV in the diverse daily life
scenarios reflected in the survey (work, shop, school).
The model of predictors obtained explained 23% of the
variance of the intention to avoid people with HIV and
presented a good fit to the data (see table 2). The results
of the classification showed that 72% of the inter-
viewees were correctly classified, which indicates that
prediction from the variables of the model is useful
for future classification. These results again confirm
the first, second, third, fourth, and sixth hypotheses.
Discussion
The results of this study carried out with a represen-
tative sample of Spanish society show the existence
of some level of negative and prejudiced view of
people with HIV in the population. The results reveal
that a large number of people interviewed feel discom-
fort concerning possible contact with people with HIV
in diverse situations of daily life. As expected, this
discomfort is also translated into a behavioral inten-
tion to avoid contact. In addition we observed more
serious discriminatory attitudes expressed through the
support of discriminatory policies seeking social or
even physical segregation of people with HIV. The
percentages found, although apparently shared by a
minority of the population, turn into many millions
when we consider the entire Spanish population.
Ultimately, in Spain, about 10 million people would
currently agree with the adoption of grossly discrim-
inatory and clearly unconstitutional policies towards
people with HIV. The percentages found in Spain
are higher than those obtained in the latest research
conducted by Herek in 1999 (2002). These authors, in
their analysis of the changing attitudes of American
society, report a decrease in negative attitudes towards
people with HIV from 1991 to 1999. Unfortunately,
in the case of Spain, we do not have previous studies
to compare the evolution of attitudes toward people
with HIV, although we assume that these attitudes
have become less negative in the last few years because
of the work carried out by institutions and organizations
to respond to HIV-related stigma.
Our investigation also analyzed the extent to which
some characteristics and ideologies that define HIV-
related stigma occur in the population. We observed
that HIV is considered a health threat by the population
because it is perceived as an infection that is easily
contracted by casual or social contact. This is seen in
Figure 1. percentages of the population that think that diverse
social groups are at risk of acquiring the HIV infection.
Table 1. Linear regression analysis showing the predictors of advocacy of discriminatory policies against people with HIV
Advocacy of discriminatory
policies
Variable B Beta t 95% CI
Constant .409 1.48 [.38, .43]
Sex −.012 −.008 −.22 [−.11, .09]
Age .007** .129 3.58 [.00, .01]
Studies −.098** −.132 −3.77 [−.14, −.04]
Political Ideology
.019 .061 1.76 [−.00, .04]
Perceived HIV Severity .014 .022 .64 [−.02, .05]
Proximity to people with HIV −.020* −.081 −2.38 [−.03, −.00]
Blaming people with HIV .334** .292 8.15 [.25, .41]
Incorrect belief about HIV transmission pathways .266** .232 6.51 [.18, .34]
R
2
.24
F(df) 26.52(8)*** [.24, .28]
Note: N = 667. CI = Confidence interval.
*p < .05; **p < .01; ***p < .001;
p < .1.
6 M. J. Fuster et al.
the interviewees’ erroneous beliefs about the possi-
bility of contracting the infection by sharing a glass
or the public toilets with a person with HIV, or if this
person coughs or sneezes nearby. The association of
fear of casual transmission and public attitudes of
rejection has been revealed by previous research (Cao
et al., 2010; Herek et al., 2002; Sullivan et al., 2010).
In Spain, the survey of health and sexual habits (INE
& SPNS, 2003) found percentage lower than 9% for
these beliefs. However, the populational sphere included
people between 18 and 49 years of age. In this sense, it
is important to note that, in the present study, approx-
imately one third of the people interviewed were older
than 49 years, and it is precisely in older people where
more negative attitudes were found.
The people interviewed thought that the people at
higher risk of acquiring the infection were prostitutes,
people who used drugs,promiscuous people, and
homosexuals. These responses do not coincide with
the current epidemiological data and could indicate
the persistence of stereotypes associated with the
infection. The data of the system of information about
new diagnoses of HIV in Spain during the 2003-2009
period (Ministerio de Sanidad, Política Social e Igualdad
[Ministry of Health, Social Policy, and Equality] and
Ministerio de Ciencia e Innovación [Ministry of Science
and Innovation], 2010), reveal a decrease in the diag-
noses of female prostitutes, which dropped from
4.6% in the year 2000 to 3.5% in 2009. Likewise, a
progressively decreasing tendency was observed in
the new diagnoses of HIV in people who use drugs.
In fact, in 2009, the incidence in this collective of
people was only 8%. This report also shows that 77% of
the new diagnoses of HIV are sexual in origin, with a
higher incidence in men’s homosexual relations than
in heterosexual relations (42.5 and 34.5%, respectively).
Lastly, although the group of immigrants was only
mentioned in 5% in the surveys, the data from the new
diagnoses reveal that people from other countries make
up a relevant part of the new diagnoses (37.6%).
The association between HIV and stigmatized groups
may lead part of the population to blame people with
HIV for having contracted the infection or to consider
it as punishment for certain behaviors, such as drug
consumption or sexual promiscuity. The percentage of
blame found in this study is similar to that found in
China in recent research by Sullivan et al. (2010) but
much lesser to the found in the United States some
years ago (Herek et al., 2002).
Beliefs about the transmission of HIV through social
contact and blaming people with HIV for their infec-
tion play an important role in the existence of stigma
and discrimination. In this sense, as we predicted in
the rst and second hypothesis, these two variables
are predictors of the intention to avoid people with
HIV and of the advocacy of discriminatory policies.
Moreover, in addition to these variables, results
showed that other variables related to certain sociode-
mographic characteristics and to the socialization
process play a relevant role in the existence of preju-
dices. Higher age and right-wing political ideology
emerged as predictors, both of the intention to avoid
people with HIV and to advocate discriminatory policies
towards this collective, and low educational level
predicts higher degree of agreement with this type of
policies. These results coincide with those obtained
by ez Nicolás (2005), who found that, in the case of
immigrants, xenophobic attitudes were higher among
older people, people with a low educational level,
and people who self-identified as right-wing. Li and
collaborators (2009) also found a relation between
political ideology and HIV-associated stigma.
Table 2. Binary logistic regression analysis showing the predictors of the intention to avoid people with HIV in diverse daily life scenarios
(work, shop, school)
Intention to avoid people with HIV
Variable B Wald gl Exp(B) 95% CI
Constant −3.8 182.2 1 .022
Age .013 12.1** 1 1.01 [1.00, 1.02]
Political ideology .081 9.7* 1 1.08 [1.03, 1.14]
Proximity to people with HIV −.068 10.3* 1 .93 [.896, .974]
Blaming people with HIV .408 25.5** 1 1.50 [1.28, 1.76]
Incorrect belief about HIV transmission pathways .876 86.1** 1 2.40 [1.99, 2.88]
R
2
Nagalkerke
.23
Hosmer– Lemeshow Test χ
2
(8)
= 7.95, p = .43
Note: N = 1351. CI = Confidence interval.
*p < .01; **p < .001.
HIV-Related Stigma in Spain 7
Lastly, the results have shown that social distance
from people with HIV affects the existence of prejudice.
Besides the psychosocial theories, which reveal the
essential role of increasing contact with the stigmatized
groups in general (Pettigrew & Tropp, 2006), there are
also studies specifically carried out with people with
HIV that have shown that proximity to these people
is a predictor of feelings of sympathy towards them
and a source of reduction of prejudice (Norman, Carr, &
Jiménez, 2006).
These results confirm the rest of the study hypotheses
and they coincide with previous investigations in other
countries (Cao et al, 2010; Herek et al., 2002; Sullivan
et al., 2010).
The image that Society holds of people with HIV has
important repercussions for them. Among them are
social isolation and the difficulty to embark on a family
or occupational life project in the same conditions as
the rest of the population. In this sense, the study
shows that very few people would become involved
in a couple relation (6.5%) or an occupational relation
(7%) with a person with HIV, and almost 20% of the
interviewees even declared that they would not have
any kind of relation with them.
An exceptional effort is needed to reduce stigma.
In the line of the results shown by this study, we need
to correct the erroneous beliefs about the transmission
pathways, change the population’s stereotyped image
of HIV, decrease the attributions of responsibility and
blame to people with HIV, and increase contact with
them (Yiu, Mak, Ho, & Chui, 2010). These interventions
should particularly target older people, people with a
low educational level, and with a more conservative
political ideology.
The present study represents an important step
forward by showing which variables are contributing
to the stigma and discrimination of people with HIV
and which groups of people in Spain express it to a
greater extent. Knowing towards what and whom
interventions should be aimed is an essential step in
order to reduce stigma.
The discussion of the results may be qualied by
some methodological considerations. The analysis
reported were performed under the assumption of
simple random sampling procedures, which may
somehow constraint some of the interpretations we
make in this study.
Also, as usual in studies employing surveys, this
study may have limitations derived from the rate of
non-responders. This may have repercussions in the
sense that some sociodemographic characteristics of
the surveyed people differ from the population and,
therefore, they reduce the representativeness of the
sample. According to the literature, these differences
consist of the fact that the responders usually have a
higher educational level, higher socioeconomic status,
are women, single, etc. Some of these issues were
observed in the characteristics of the sample of this
study, such as the fact that the percentage of people
who had higher studies was larger than the datum
reported by the Instituto Nacional de Estadistica,
([National Statistics Institute], 2010). This difference
could affect the results because, in this and in other
studies (Cao et al., 2010; Sullivan et al., 2010), it was
found that the people with a higher educational level
express a lower degree of rejection. For this reason, the
data provided should be interpreted in the light of
these limitations.
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... Netither the researchers nor the participants received any compensation for their participation in the study. No personal data were collected in either the questionnaires or the consent forms, as some PLHIV in Spain refuse to publicly disclose their HIV serological status due to HIV-related stigma (Fuster-Ruiz de Apodaca et al., 2013). The ethics committee of La Princesa Hospital (Madrid) exempted the study from review. ...
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The number of older people living with HIV (OPLHIV) is increasing worldwide. However, little is known about the factors that better predict their health-related quality of life (HRQoL). We administered the validated WHOQoL-HIV BREF questionnaire to 247 Spanish OPLHIV (192 men and 55 women). In addition to the six domains of the questionnaire, we constructed a seventh domain as theaverage of punctuations of all domains. Multivariable Poisson regression models with robust estimates by sex were constructed for the seven domains (14 in total). The best-subset selection method together with Mallow's Cp metric was used to select the model factors. The percentage of variability explained by Poisson models ranged from15-38% for men and 29-70% for women. The analysis showed that women were most affected by ageing (four domains), mobility impairments (five domains), and mental disorders (five domains). The factors with the greatest negative influence on men were heterosexuality (six domains), mental disorders (six domains), being single (five domains), and poverty risk (three domains). Physical activity was found to improve HRQoL in both men (six domains) and women (four domains). Future OPLHIV programmes would benefit from considering sex specific HRQoL factors. This could also improve the cost-effectiveness of interventions.
... Neither the questionnaires nor informed consent forms collected any personal information as some PLHIV in Spain refuse to disclose their serological status for HIV publicly due to HIV-related stigma [39]. The ethical board of La Princesa Hospital (Madrid) exempted the study from review. ...
Article
Full-text available
Background Current antiretroviral therapies have increased the life expectancy of people living with HIV (PLHIV). There is, however, limited evidence regarding the health-related quality of life (HRQoL) and living conditions of older people living with HIV (OPLHIV) in Spain. Methods We implemented a self-administered online questionnaire to identify sex differences in HRQoL and poverty risk among Spanish OPLHIV (PLHIV ≥50 years). Participants were contacted through non-governmental organisations. We used the standardised WHOQoL-HIV BREF questionnaire and the Europe 2020 guidelines to estimate HRQoL and poverty risk respectively. The statistical analysis included multivariable generalised linear models with potential confounding variables and robust estimates. Results The study included 247 OPLHIV (192 men and 55 women). On the WHOQoL-HIV BREF questionnaire, men scored higher on 84% of items and in all six domains. Women had significantly lower HRQoL in five domains: physical health (β: -1.5; 95% CI: -2.5, -0.5; p: 0.002), psychological health (β: -1.0; 95% CI: -1.9, -0.1; p: 0.036), level of independence (β: -1.1; 95% CI: -1.9, -0.2; p: 0.019), environmental health (β: -1.1; 95% CI: -1.8, -0.3; p: 0.008), and spirituality/personal beliefs (β: -1.4; 95% CI: -2.5, -0.3; p: 0.012). No statistical differences were found in the domain of social relations. Poverty risk was considerable for both men (30%) and women (53%), but women were significantly more likely to experience it (OR: 2.9; 95% CI: 1.3, 6.5; p: 0.009). Conclusion The aging of PLHIV is a public health concern. Our findings indicate that HRQoL and poverty risk among Spanish OPLHIV differ significantly by sex. Spain should, therefore, implement specific policies and interventions to address OPLHIV needs. The strategies must place a high priority on the reduction of sex inequalities in HRQoL and the enhancement of the structural conditions in which OPLHIV live.
... Similar beliefs and stigmatising behaviours are still widespread in several countries. A study conducted in Spain showed that 50% of the population would feel uncomfortable having social relationships with HIV-positive people, although this percentage has decreased over time due to a number of information campaigns on the transmission mode of HIV infection [30,31]. ...
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Introduction: Sexually transmitted infections (STIs) represent a group of widespread infectious diseases. The objective of this study is to investigate the knowledge on HIV and STIs as well as sexual risk behaviours among blood donors in Italy. Materials and methods: The study was carried out in 2017 among blood donors who accessed social media of the Italian Association of Blood Donors (Associazione Volontari Italiani del Sangue, AVIS), and answered to a questionnaire posted online. Results: Participating blood donors were 9,021, median age 36 years (IQR 26-47), 53.9% males, 94.3% heterosexual, and 2.7% reported having a current occasional partner. Unprotected sex in the last 4 months was reported by 54.1% of participants. About half of the participants were not informed of most STIs, 11.0% reported never having searched for information on HIV and STIs, one third considered unlikely acquiring HIV through unprotected sex with a known person, 21.3% would stop having sex with a partner found to be HIV-positive, and 15.8% would be afraid to hug or kiss a person with HIV. Discussion: Our results show that most blood donors have a stable partner and search actively for information on HIV and STIs. However, there is a proportion of them who engage in high-risk behaviours, have misconceptions on HIV and STIs transmission, reporting a stigmatising attitude towards people with HIV. Conclusion: A more comprehensive and updated information on various STIs, transmission modes and safe sex should be provided to blood donors, not only to prevent the spread of these infections but also to avoid unjustified discrimination.
... In addition to daily activities such as sleeping and eating, social interaction is an important social zeitgeber as well (23). Due to HIV-related stigma and discrimination, PLWH deliberately reduce social contact or are forced to socially isolate (66,67), and unsatisfactory or irregular social contact may contribute to poor sleep through circadian rhythm disruption. ...
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... De lo anterior se desprende la alerta sobre la desvalorización de los migrantes, que se incrementa cuando se intersecta con otras condiciones por las cuales tambien se discrimina, estigmatiza y excluye, como el caso de los migrantes que viven con VIH/Sida (Redsomos, 2021). Aunque, el estigma asociado con el VIH se construyó en la primera década después de su descubrimiento, continúa habiendo estereotipos asociados con la infección, las creencias erróneas sobre la facilidad de transmisión por contacto social y la culpabilización de las personas con VIH continúan siendo importantes determinantes de la existencia y persistencia del estigma (Fuster et al., 2013). ...
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En la actualidad se evidenciado aumento de los desplazamientos provocados por conflictos, persecuciones, falta de oportunidades, seguridad, entre otras razones, inscrementando la población de migrante en países de América Latina. Se destaca los desplazados venezolanos, siendo Perú el segundo país de Latinoamérica con más de esta población de migrantes. Estudios han alertado sobre la desvalorización de los migrantes y especialmente aquellos que vivan con enfermedades infectocontagiosas como es el VIH. Los ciudadanos autóctonos del país receptor, percirbe la presencia del exogrupo como amenazas a sus derechos sociales relacionándose con actitudes negativas, que se ha ido poteciando por los medios de comunicación. Por tanto, es importante realizar estudios que estimen el discernimiento de amenazas exogrupal estrechamente hacia los migrantes. El objetivo evaluar las evidencias psicométricas del instrumento de medición EPAE en una muestra de adultos peruanos frente a los inmigrantes VIH. El análisis de los ítems y de confiabilidad demostró un adecuado funcionamiento a excepción de los ítems 4, 5, 11 y 12. Se propone utilizar el modelo 2, el cual consta de 9 agregados, confirmado por los diferentes índices estadísticos (X2/gl=3.49; WMRM=1.124; NFI=0.993; CFI=0.995; GFI=0.997; RMSEA=0.045; SRMR=0.035). Según los valores del análisis bifactor no existe suficiente evidencia para asumir un factor general, se recomienda trabajar con dimensiones independientes. Es importante la identificación de percepción de amenazas reales, debido a que investigaciones han evidenciado que el estigma asociado con el VIH constituye uno de los mayores obstáculos para la prevención de nuevas infecciones.
... Una mayor proximidad a personas pertenecientes a grupos estigmatizados permite conocer sus vidas y experiencias personales, y contribuye a trascender los estereotipos grupales para conocer a sujetos particulares. Los estudios que evaluaron el estigma relativo a distintos atributos informaron que el contacto con personas con dichos atributos se asocia a menor estigmatización, lo que ha sido conceptualizado como hipótesis de contacto (Molero-Alonso, 2007;Fuster-Ruiz, Molero, Gil de Montes, Agirrezabal, & Vitoria, 2013). ...
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La estigmatización ha acompañado la pandemia del VIH desde sus orígenes, lo cual ha tenido consecuencias negativas en la salud de las personas con VIH y ha desalentado el testeo regular en la población general. Cualquier diseño, monitoreo y reade-cuación de políticas dirigidas a reducir la estigmatización hacia el VIH requiere contar con instrumentos rigurosos para su medición. El objetivo del trabajo fue construir y validar una Breve Escala sobre Estigmatización hacia el VIH (BESE-VIH) en una muestra representativa de la Ciudad Autónoma de Buenos Aires (CABA), respetando sus particularidades lingüísticas. Se encuestó en la vía pública a 400 participantes de entre 18 y 60 años en un diseño muestral por cuotas y se logró la representatividad de género, edad, nivel educativo y nivel socioeconómico. La BESE-VIH quedó compuesta por nueve reactivos y mostró muy buenos niveles de confiabilidad y evidencias de validez interna y externa adecuadas, por lo que la escala resulta un instrumento prometedor.
... However, the rejection or stigma experienced varies across groups and social categories. For example, the stigma toward people with HIV is based both on a perceived threat to health (fear) and on the attribution of responsibility (controllability) for infection (Fuster, Molero, Gil de Montes, Agirrezabal, & Vitoria, 2013). The stigma faced by people with mental illness relates to the perception that they pose a danger, which means they are somewhat distrusted (e.g., Corrigan & Watson, 2002). ...
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... de gravedad del VIH, las creencias err?neas sobre la facilidad de transmisi?n por contacto social y la culpabilizaci?n de las personas con VIH siguen siendo importantes determinantes de la existencia y persistencia del estigma 7 . ...
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This article briefly reviews current knowledge about AIDS-related stigma, defined as prejudice, discounting, discrediting, and discrimination directed at people perceived to have AIDS or HIV! and the individuals, groups, and communities with which they are associated AIDS stigma has been manifested in discrimination, violence, and personal rejection of people with AIDS(PWAs). Whereas the characteristics of AIDS as an illness probably make some degree of stigma inevitable, AIDS has also been used as a symbol for expressing negative attitudes toward groups disproportionately affected by the epidemic, especially gay men and injecting drug users (IDUs). AIDS stigma affects the well-being of PWAs and influences their personal choices about disclosing their serostatus to others. It also affects PWAs' loved ones and their caregivers, both volunteers and professionals. Stigma has hindered society's response to the epidemic, and may continue to have an impact as policies providing special protection to people with HIV face renewed scrutiny.
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Prior research has not yielded a clear relationship between religious orientation and prejudice in spite of theoretical predictions. It was hypothesized that authoritarianism and religious fundamentalism would be positively associated with ethnic and racial prejudice, hostility towards homosexuals, and punitiveness in prison sentencing. Questionnaires measuring these variables and 12 demographic variables were mailed to 285 Manitoba voters, of whom 75 responded. Correlational and standard regression analysis confirmed that for this sample scores on authoritarianism and religious fundamentalism were positively correlated, with scores on authoritarianism significantly related to those on ethnic and racial prejudice, and punitiveness. Stepwise analysis suggested that the most important factor was authoritarianism although certain demographic variables were predictive as well.
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This article briefly reviews current knowledge about AIDS-related stigma, defined as prejudice, discounting, discrediting, and discrimination directed at people perceived to have AIDS or HIV, and the individuals, groups, and communities with which they are associated. AIDS stigma has been manifested in discrimination, violence, and personal rejection of people with AIDS (PWAs). Whereas the characteristics of AIDS as an illness probably make some degree of stigma inevitable, AIDS has also been used as a symbol for expressing negative attitudes toward groups disproportionately affected by the epidemic, especially gay men and injecting drug users (IDUs). AIDS stigma affects the well-being of PWAs and influences their personal choices about disclosing their serostatus to others. It also affects PWAs' loved ones and their caregivers, both volunteers and professionals. Stigma has hindered society's response to the epidemic, and may continue to have an impact as policies providing special protection to people with HIV face renewed scrutiny.
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Prior research has not yielded a clear relationship between religious orientation and prejudice in spite of theoretical predictions. It was hypothesized that authoritarianism and religious fundamentalism would be positively associated with ethnic and racial prejudice, hostility towards homosexuals, and punitiveness in prison sentencing. Questionnaires measuring these variables and 12 demographic variables were mailed to 285 Manitoba voters, of whom 75 responded. Correlational and standard regression analysis confirmed that for this sample scores on authoritarianism and religious fundamentalism were positively correlated, with scores on authoritarianism significantly related to those on ethnic and racial prejudice, and punitiveness. Stepwise analysis suggested that the most important factor was authoritarianism although certain demographic variables were predictive as well.
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This study compared the effectiveness of an AIDS knowledge-only program (knowledge) with a combined program of AIDS knowledge and contact with people having HIV/AIDS (PHA) (knowledge-contact) in reducing nursing students' stigma and discrimination towards PHA and in enhancing their emotional competence to serve PHA. Eighty-nine nursing students from two universities in Hong Kong were randomly assigned to either the knowledge or the knowledge-contact condition. All participants completed measures of AIDS knowledge, stigmatizing attitudes, fear of contagion, willingness to treat, positive affect, and negative affect at pre-test, post-test, and six-week follow-up. Findings showed that in both groups, significant improvement in AIDS knowledge, stigmatizing attitudes, fear of contagion, willingness to treat, and negative affect were found at post-test. The effects on AIDS knowledge, fear of contagion, willingness to treat, and negative affect were sustained at follow-up for both groups. Intergroup comparisons at post-test showed that the effectiveness of knowledge-contact program was significantly greater than knowledge program in improving stigmatizing attitudes. No significant difference between the two groups was found at follow-up. Findings showed the short-term effect of contact in improving nursing students' attitudes and emotional competence in serving PHA. Implications for research and training of nursing staff were discussed.