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EUROPEAN CENTRE
s
EUROPÄISCHES ZENTRUM
s
CENTRE EUROPÉEN
POLICY BRIEF APRIL 2010
Informal Carers:
Who Takes Care of Them?*
Frédérique Hoffmann and Ricardo Rodrigues
Until recently, unpaid care provided by relatives, neighbours and friends –
informal care – had been overlooked or taken for granted by policy-mak-
ers in the context of long-term care provided to dependent older people.
A certain amount of informal care is nevertheless essential in filling the
gaps of formal care services, supplementing them or assuring that care
is provided in certain critical transition phases (e.g. after discharge from
hospital). Care provided by relatives and friends is often the only fallback
option when care services are not available.
Driven by concerns over the fiscal sustainability of long-term care servic-
es and by more self-conscious and demanding carers’ movements in many
countries (e.g. UK), informal care has been brought into the limelight. Still,
despite this newfound interest, information available on informal carers is
still relatively scarce. This is in part due to the nature of the subject itself
as informal care is often provided by relatives and thus falls within the
sphere of private family life. In addition, methodological issues make it dif-
ficult for informal care to be properly addressed in general population or
household surveys.
In view of this, what do we know about who provides informal care and
who benefits from it? What differences (if any) are found among coun-
tries? And what policies are set in place to support informal carers?
The aim of this Policy Brief is to contribute to answering some of these
questions. It does so by using available data from national and interna-
tional sources, as well as qualitative information gathered in our recent
publication Facts and Figures on Long-term Care – Europe and North America.
It seeks to increase knowledge on informal carers and the challenges they
face, as well as to discuss some of the implications surrounding social
policies that impact informal care-giving. The analysis is very much policy-
oriented and takes on a comparative view, focusing mostly on countries of
the European Union.
Frédérique Hoffmann and Ricardo
Rodrigues are Research Fellows at the
European Centre for Social Welfare
Policy and Research, Vienna.
M
A:
IMI
* This Policy Brief is part of ongoing
research developed under the project
Mainstreaming Ageing: Indicators to Monitor
Implementation, namely on long-term care
for elderly people.
The authors greatly appreciate the con-
tribution of Katrin Gasior in developing
the graphs for this Policy Brief, the valu-
able comments of Catharina Hjortsberg
and Asghar Zaidi, and the editorial help of
Willem Stamatiou.
Any remaining errors are the sole
responsibility of the authors.
Keywords: Long-term Care, Old-Age,
Gender, Care-giving, Family
Policy Briefs are a publication series
providing a synthesis of topics of
research and policy advice on which
European Centre researchers have been
working recently.
&RÏDÏRIQUE(OFFMANN2ICARDO2ODRIGUESs CARE OF INFORMAL CARERS
POLICY BRIEF APRIL 2010
2
This Policy Brief is organised as follows: it begins by providing a concise
portrait of informal
1
care-giving, highlighting common characteristics and
differences across countries; it then moves to discuss why the current
portrait of informal care-giving may come under pressure in the near fu-
ture; and finally, it addresses some of the policies that are likely to impact
informal carers.
1) A portrait of informal carers across Europe:
Avoiding clichés
North-South Divide: myth or reality?
The results depicted in the Facts and Figures on Long-term Care publica-
tion show that caring for an elderly parent is more frequent in North-
ern Europe than in Southern Europe, but the care provided is far more
intensive in Southern Europe. These results point to the influence of living
arrangements, as extended families are still more common in the South,
but also to the (un)availability of care services at home. Although data is
not directly comparable, the 2nd wave of SHARE presents similar findings
(Attias-Donfut, Ogg and Wolff, 2005). Indeed, although one third of over-
all SHARE respondents living alone received help with personal care or
practical tasks during the past 12 months, these rates were significantly
lower in Spain, Italy and Switzerland. “It would seem that the strong di-
mension of family support that is manifest in Spain and Italy is weakened
when older people are living alone and that these two countries may
not have the infrastructure in place that facilitates solo living in old age”
(Attias-Donfut, Ogg and Wolff, 2005: 174).
Percentage of the population aged 15+ providing informal care to a relative aged 60+, 1999
Caring for an elderly parent is
more frequent in Northern
Europe than in Southern
Europe but care provided
is far more intensive in
Southern Europe.
Figure 1:
United in diversity:
care-giving in EU15 countries
Source:
Huber, Rodrigues, Hoffmann,
Gasior and Marin (2009): 57,
based on Walker (1999).
&RÏDÏRIQUE(OFFMANN2ICARDO2ODRIGUESs CARE OF INFORMAL CARERS
POLICY BRIEF APRIL 2010
3
Family carers across the EU provide over 80% of all care, with women
providing approximately two thirds of care mainly as daughters (in law)
and wives/partners. Generalisations with regard to the North/South
divide of care intensity in Europe should be avoided as they oversimplify a
very complex picture. Indeed Italy has seen the number of domestic car-
ers quadruple in the last 15 years while the proportion of foreign carers
has risen from around 15% in 1990 to approximately 85% in 2005 (La-
mura, Mnich and Döhner, 2006). This phenomenon has occurred mainly
as a result of the lack of available professional long-term care services
which have forced families to seek affordable alternatives to care for their
dependent relatives (including migrant carers). Thus Italy (as well as Spain)
have shifted over the last decade from the extended family-based type of
care towards a model that still relies heavily on informal care, but less so
on family care-givers.
Relationship between the carer and the care recipient in percentage
Men also care
Aside from sons and daughters as primary care-givers, spouses/partners
also provide a critical safety net for the dependent elderly, allowing them
to delay entry into institutional care. As regards the type of care, women
provide a substantial amount of personal care to their elderly relatives,
namely assisting with bathing, washing, feeding etc., while men are more
active providing help with Instrumental Activities of Daily Living (IADL)
2
,
particularly during their working life. One exception is care provided to
Figure 2:
Family affair: who cares?
Source:
Huber, Rodrigues, Hoffmann,
Gasior and Marin (2009): 57,
based on OECD (2005), national
sources and EUROFAMCARE.
Notes:
Definitions of carers and care recipients
may differ between countries.
For Austria the figure for children carers
represents only those taking care of their
parents; however, if one also includes
parents-in-law this would bring up the
figure to approximately 50%; for the
Slovak Republic the gender breakdown
figures represent only care-givers
aged 65+; for Hungary data were only
available for children providing care
to their parents.
&RÏDÏRIQUE(OFFMANN2ICARDO2ODRIGUESs CARE OF INFORMAL CARERS
POLICY BRIEF APRIL 2010
4
one’s partner/spouse which is more at a gender balance as both men
(usually once they are retired) and women provide labour-intensive care.
As male life expectancy increases this could translate into an increased
availability of informal care since presently men provide as much informal
care in older age groups as their female counterparts as they tend to
provide care to their elderly spouse. However this hypothesis rests on
men and women living together in old age.
Women provide more care to older people but men catch up in later years
2) Is informal care in its present form
sustainable?
Recent demographic, social and policy developments have raised the
question of whether “care gaps” are increasingly likely to occur as
informal care may become less available, which in turn could lead to an
increase in demand for formal long-term care.
Currently informal carers are most likely to be women of working age.
However, with population ageing, this portrait is likely to change as de-
picted in Figure 4. The projected “support ratio”, i.e. the ratio of women
aged 45-64 (those more likely to provide informal care) for each person
aged 80 and older (those more likely to be in need of care), has already
diminished in the past 15 years for many of the Western European
countries. This trend is likely to continue in the future and to extend to
Eastern European countries.
Men tend to provide care in
their later years and mainly
provide care to their spouse
including assistance with ADL.
Figure 3:
Sharing the burden:
men’s late catching-up
Source:
Huber, Rodrigues, Hoffmann,
Gasior and Marin (2009): 58.
&RÏDÏRIQUE(OFFMANN2ICARDO2ODRIGUESs CARE OF INFORMAL CARERS
POLICY BRIEF APRIL 2010
5
“Support ratio”: number of women aged 45-64 for each 80 year-old (2005/2006)
Given the prospect of a potentially reduced number of informal car-
ers of working age, spouses may find themselves as the main carers in
the future. This depends, however, on the future living arrangements of
older people, as well as on their health status. The most recent round
of Census data shows an increasing trend of older people living alone,
particularly women once they reach the age of 80. Although partners can
potentially take over some of the care tasks from their children, elderly
women living alone seem more likely to have to rely on professional care
services if they live far from their children, or the latter are unwilling to
leave gainful employment for care-giving purposes.
Although living with a child is still extremely common in many regions of
the world, it is the couple-only arrangement which is the most common
for older people in Europe and North America. Therefore children who
are not living in the vicinity of their elderly parents may not be available
to provide informal care even if they are in principle willing to do so.
Furthermore, as fertility rates decline, the number of available children
able to share care duties among them will be smaller in the future. In light
of these trends, non-family members are increasingly taking on a caring
role albeit more for assisting with IADL. Nonetheless involvement in the
organisation and coordination of care as well as in the care itself remains
very much a family business so care gaps in this sense are unlikely to oc-
cur.
An increasing trend of older
people living alone could suggest
a rise in the demand for formal
care services in the future.
Figure 4:
Demographics alone may
change the current profile
of informal carers
Source:
Eurostat.
&RÏDÏRIQUE(OFFMANN2ICARDO2ODRIGUESs CARE OF INFORMAL CARERS
POLICY BRIEF APRIL 2010
6
The goals of the Lisbon Agenda
could challenge the availability
of informal carers,
particularly women.
Living alone for people aged 60-79 and those aged 80+, Eurostat 2001 Census data
Approximately 40% of informal carers are in gainful employment across
Europe, and this number is likely to rise in the future as more women
across the UN-European Region are entering the labour force. This leads
to the key policy question as to whether informal care in its present
form (i.e. with a large share of women out of the labour force providing
care between 45 and 64 years of age) is likely to hold in the future. On
a macro-level, combining the goals of the so-called “Lisbon Agenda” (i.e.
increasing employment rates for women and older workers, postponing
retirement) while trying to avoid a “drying out” of the family care pool is
a key policy challenge.
Finally, many relatives still prefer informal carers to take care of their eld-
erly family members, but there is a growing sense of conflicting expecta-
tions that elderly people are too dependent on their family carers (see
Figure 6). Moreover a preference for family care may also partly be due
to the lack of suitable alternatives in the formal sector. As employment
and education rates of women have dramatically risen in recent decades,
carers may be more reluctant to give up on employment opportunities
for a caring role. This feeling of over-reliance is particularly felt in coun-
tries which also favour more family care (mainly transition countries and
Southern Europe) which could suggest a change in the identity of women
concerning their role in society.
Figure 5:
Home alone ...
even more so for the 80+
Source:
Eurostat 2001 Census data;
National sources for Israel.
Notes:
* EU 27 minus Belgium, Bulgaria, Latvia,
Luxembourg, Malta and Sweden.
** Data for Israel refer to
the 60+ age group.
&RÏDÏRIQUE(OFFMANN2ICARDO2ODRIGUESs CARE OF INFORMAL CARERS
POLICY BRIEF APRIL 2010
7
Answers to Eurobarometer survey regarding health and long-term care in the EU, 2007
3) Policies in place: how far do they go to meet
the challenge?
Recognising the importance of informal care and the present and future
challenges that it faces, some countries have sought to put in place poli-
cies to support carers. In fact, addressing the needs of carers and recog-
nising them as key stakeholders has been one of the defining characteris-
tics of recent policy developments in long-term care. These policies have
been developed either by providing cash benefits to carers, thus compen-
sating for lost income or recognising their role as carers, or by setting
up services aimed at facilitating their caring tasks (e.g. counselling, respite
care, etc.).
3a) Providing cash to carers
One set of policies aimed at supporting carers that has gained momen-
tum in recent years has been cash-for-care benefits. These cash benefits
are paid directly to carers (care allowances) or to those in need of care
(attendance allowances), which may then be used to compensate informal
carers. The increasing role played by these benefits goes hand in hand
with the development of policies aimed at increasing user choice in ac-
cess to long-term care, as informal care becomes one of the “options”
available for those in need of care. But this development also has a clear
Figure 6:
What appears to be the best
option for dependent parents
may not necessarily be the best
option for their daughter/son
Source:
Eurobarometer (2007),
question: 7a and 29.1.
&RÏDÏRIQUE(OFFMANN2ICARDO2ODRIGUESs CARE OF INFORMAL CARERS
POLICY BRIEF APRIL 2010
8
“cost containment” motivation, as supporting informal care may be seen
as a cheaper option for the public purse, even if from a societal point of
view it may be more expensive to have people out of the labour market.
The amount of social benefits available to informal carers is usually small
in relation to the cost of providing professional care services – as Fig-
ure 7 depicts, the average amount of these benefits in many countries is
inferior to 30% of the average wage. Yet small as they may be, they might
still be enough to maintain dependent people in their homes (at least up
to a point) and thus avoid more expensive institutional care – an objec-
tive termed “ageing in place” (OECD, 2005). Some of the cash benefits
available to those in need of care provide lower amounts if informal care
is the chosen option (e.g. in the case of Germany or the Dutch Personal
Budget), thus discounting for overhead costs.
Relative generosity of cash benefits (care allowances and attendance allowances)
from which carers may benefit
However clear the trend towards providing cash for care may be, these
policies come with trade-offs that policy-makers ought to bear in mind
when weighing-in their options. The allure of cost-containment is a pow-
erful one, but providing cash for care may have potential side-effects on
the labour supply of carers, acting as a disincentive to gainful employment.
Balancing the goals of the Lisbon Agenda on employment and support-
ing informal carers need not be conflicting goals of social policy, but their
conciliation may prove challenging. In countries where care allowances
are in place, these usually come with the condition that caring becomes a
full-time activity or close to one.
Figure 7:
Providing cash to carers
Source:
Adapted from Huber, Rodrigues,
Hoffmann, Gasior and Marin (2009),
Eurostat and OECD.
Notes:
– Figures for Austria and Germany as to
the number of beneficiaries using their
attendance allowance to pay for
informal carers are an estimate.
– Figures for England (direct payments),
Italy and the Netherlands may include
beneficiaries of formal home services.
The provision of cash benefits
to carers comes with trade-offs,
notably in terms of employment.
&RÏDÏRIQUE(OFFMANN2ICARDO2ODRIGUESs CARE OF INFORMAL CARERS
POLICY BRIEF APRIL 2010
9
Providing relatively unregulated cash benefits (i.e. where little proof is
required on how the money is spent) may be seen as an empowerment
tool for users and have administrative advantages, saving on paperwork
and inspections. However, it can also lead to the creation of informal
markets for the provision of care. This seems to have been the case
in Italy, Austria and to a certain extent Germany which rely to a great
degree on undocumented migrant carers. Even though the benefits may
be small in value in their national context, existing wage gaps may make
them attractive to migrant carers. On the other hand, introducing too
many constraints on who may receive the benefit may result in a reduced
benefit take-up as preferred care options such as care provided by the
spouse or close relatives are excluded (this might be the reason for the
low take-up of Direct Payments by older people in England).
Cash benefits may also risk trapping informal carers, most notably
women, in a socially precarious and many times unwanted care role. Crit-
ics of the implementation of cash for care argue against these policies as
a move towards a “refamiliarisation” of care (see Kröger and Silipa, 2005),
i.e. a move towards a retrenchment of the role of the State in disfavour
Table 1:
Hurdles in the conciliation
of care allowances
with employment
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Source:
Adapted from Huber, Rodrigues,
Hoffmann, Gasior, Marin (2009): 83.
&RÏDÏRIQUE(OFFMANN2ICARDO2ODRIGUESs CARE OF INFORMAL CARERS
POLICY BRIEF APRIL 2010
10
of families and in particular women. It is however a difficult issue, since
cash for care benefits also represent the recognition of the role and
importance of informal carers and may contribute to the improvement
of their social status and well-being, as some of these benefits also entitle
informal carers to pension credits or sickness insurance. However, given
the strong gender dimension attached to the issue of cash for care, gen-
der mainstreaming concerns seem to be conspicuously absent from the
design of these benefits.
Another point against the provision of cash benefits to family carers re-
lies on a much more near-sighted argument: that of (supposed) economic
efficiency. Under this reasoning, close relatives should be precluded from
receiving cash benefits since this would mean paying for services that
they would likely do anyway. This policy stance, however, risks overbur-
dening carers even more and may lead to reduced availability of carers in
the future.
3b) The importance of providing services to carers
Carers often enjoy little leisure time due to the intensity of their caring
duties, which require a large amount of time to be spent in the home of
the care recipient. Family carers are as a result likely to experience to
some degree feelings of isolation, psychological distress including anxiety
(which incidentally can also affect their “presenteeism” for those who
work), depression and loss of self-esteem. They may also be more prone
to risky behaviour (e.g. smoking), or to neglect their own health. Taking
up preventive health measures is even more important as informal carers
are themselves ageing: e.g. according to a study carried out in the UK
(Doran, Drever and Whitehead, 2003), a substantial number of carers
were aged 85 or older; more than half of these were providing at least
50 hours of care a week; and one third of these heavily burdened carers
rated their health as “not good”. Middle-aged carers on the other hand
might simultaneously be shouldering the responsibility to care for their
own (grand)-children – the so-called “pivot generation”.
Consequently, important as cash benefits may be for informal carers, this
is not the only way to support informal care-giving and it may even be
argued that it is not the best way to alleviate their burden. Care services
aimed at informal carers themselves are equally important if many times
overlooked.
Respite care allows informal carers to take a break from their care duties
and may prove fundamental for their psychological well-being by pre-
While cash benefits may go
some way to support the
informal carers financially, it still
requires the latter to be heavily
involved in care duties.
&RÏDÏRIQUE(OFFMANN2ICARDO2ODRIGUESs CARE OF INFORMAL CARERS
POLICY BRIEF APRIL 2010
11
venting burnout. However, available places in respite care remain scarce
across Europe, even in countries with a relatively wide coverage of care
services (e.g. Denmark) – see Table 2. Providing respite care, or short-
term stays in institutional settings or at home, may pose some delivery
constraints and require greater flexibility in the provision of care (e.g. if
respite is provided at home by service providers). Take-up services are
fairly low for a variety of reasons, one being that family members find
that it disrupts the care recipient too much to be placed in a short-term
institution with new carers, particularly those with dementia. Another
obstacle is the cost of respite care, especially for those carers who have
had to give up gainful employment.
Even when it is available, take-up of respite or other services available to
carers may be low as they might not be aware that such services exist.
Certain countries have sought to improve the information available for
people with care needs and their families, an issue that has been well-
documented as one of the major problems for family carers. In Austria
as recently as 2006, applicants for the LTC allowance have been provided
with so-called “counselling vouchers”, which enable them to receive a
visit by a nurse to get information, advice and practical hints about the
formal care system and benefits available (Leichsenring, Ruppe, Rodrigues
and Huber, 2009). In other countries, carers’ associations have themselves
established websites and hotlines that help carers navigate through the
complexity of care systems.
Respite care is not the only service likely to impact positively on infor-
mal carers. Day-care centres may also ease the burden of care on family
Table 2:
Limited availability of
respite care across Europe
Availability of respite services
is improving but more
systematic support to
informal carers is needed.
Source:
Statistics Denmark (StatBank), Statistics
Norway (StatBank), IMSERSO, CBS
(Statline), Federal Ministry of Health
(Germany), The Information Centre
(Social Care Statistics), Department for
Health and Children (Ireland), Swiss
Federal Statistical Office and the National
Board of Health and Welfare (Sweden).
Notes:
(a) Number of places.
(b) Beneficiaries younger
than 65 may be included.
(c) Age group is 67 and older.
(d) Underestimation, as data is not
available for all regions.
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&RÏDÏRIQUE(OFFMANN2ICARDO2ODRIGUESs CARE OF INFORMAL CARERS
POLICY BRIEF APRIL 2010
12
members and so can other home care services. Although the jury is still
out on the exact relationship between supply of informal care and exist-
ing formal care services, the most recent empirical evidence suggest that
availability of home care services may reshape the type of informal care
provided towards less burdensome domestic help (Bonsang, 2009). In
Northern European countries, where provision of home care services is
higher, more persons seem to be able to provide informal care by limiting
it to less demanding tasks (household chores) and thus limiting the feeling
of overdependence of older relatives on their family for care – Figure 8.
There is a strong case for conciliating support for informal carers while
investing in formal care services, for “if anything the evidence points to
family carers providing rather more hours of care when formal services
are provided as well” (OECD, 2005: 45). However, recent policy develop-
ments show contradicting signs on this matter. In the Netherlands, the
concept of “usual care” has been introduced in the assessment of eligibil-
ity for home care services, which effectively implies that those closest to
the person affected – most likely the partner and/or children of the de-
pendent – are expected to provide the necessary care. The policy trend
observed in some countries towards targeting services to those more in
need of care (e.g. in England and Sweden) may also leave some tasks to
be carried out by informal carers alone.
Less burdensome care could also help mitigate the possible trade-off
between care and employment faced by informal carers. Supplementing
Figure 8:
Over-reliance on relatives ...
does it signal overburdening
of carers?
Source:
Huber, Rodrigues, Hoffmann,
Gasior and Marin (2009)
and Eurobarometer (2007).
Notes:
Figures for the share of 65+ receiving
formal care only for Austria
and Germany are an estimate.
&RÏDÏRIQUE(OFFMANN2ICARDO2ODRIGUESs CARE OF INFORMAL CARERS
POLICY BRIEF APRIL 2010
13
informal care with formal care services at home could thus prove to be
the best way of striking a balance between fulfilling the employment goals
of the Lisbon Agenda, while ensuring that informal care remains available.
The data presented in Figure 9 suggest that formal care services may
contribute to improve the labour market situation of older women of
working age. While juggling employment with caring responsibilities can
be daunting, remaining in paid work can also have a positive impact on
carers as it provides income and pension rights, helps to maintain social
networks, offers a temporary relief from their caring role, enhances self-
esteem and offers the opportunity to share concerns with colleagues in a
similar situation.
Availability of formal care services and female employment rate (55-64 years)
4) Conclusion
Informal care-giving remains the backbone of care provision in Europe
and for many dependent older people it is their preferred care option.
Complete replacement of informal care by formal care services is neither
financially feasible nor socially desirable. Policy-makers should therefore
ensure that the carers’ own needs as much as those of the care recipi-
ents are taken into consideration and met. Some countries have already
taken steps in this direction, namely by providing carers with a statutory
right to receive an assessment of their needs for services in addition to
services for older people (as is the case of the UK).
Figure 9:
Care services may improve
the conciliation of employment
and care duties
Combining informal with formal
care at home could provide
a better framework to allow
women in particular not to
leave the workforce early which
could put them at risk of
financial hardship.
Source:
Huber, Rodrigues, Hoffmann,
Gasior and Marin (2009),
Eurostat and OECD.
Notes:
– Figures for the share of 65+ receiving
formal care only for Austria
and Germany are an estimate.
– Figures for Canada, USA and Israel refer
to the employment/population ratio.
– Figures for the USA are for 2004.
&RÏDÏRIQUE(OFFMANN2ICARDO2ODRIGUESs CARE OF INFORMAL CARERS
POLICY BRIEF APRIL 2010
14
As this Policy Brief has shown, some of the policies aimed at supporting
carers come with trade-offs (balancing employment goals with financial
support for carers as an example) and these should be borne in mind
when setting-up those measures. This is not to say that an attitude of
“laissez-faire” on the part of policy-makers is the adequate course of ac-
tion as this paper has shown that too many issues remain unresolved or
even unaddressed by current social policies aimed at carers.
Thus, despite the obvious gender dimension associated with informal
care-giving this issue has yet to be tackled by current policies. Concilia-
tion of care duties and work seems to take place despite and not because
of current social policies, which are still a long way from fostering that
conciliation as far as care for dependent elderly is concerned. Respite
care is not yet widespread or made attractive to carers and those in
need of care. While the advantages of conciliating home care services
with informal care seem to have been proven, there are some contradic-
tory policy developments in this respect. Finally, budgetary constraints
made worse by the current economic crisis may push towards delaying
or not providing support measures to carers under the erroneous argu-
ment that care will be provided by them anyway.
This Policy Brief has highlighted a series of societal, demographic and pol-
icy developments that are likely to change informal care as it is currently
provided (i.e. mostly by female relatives of working age). This should not
necessarily be perceived as a potentially harmful evolution as the cur-
rent arrangement probably does not suit many of today’s carers who are
overburdened with demanding care tasks.
The key issue that public policies should therefore address is not to try
to crystallise the current informal care arrangements, but rather to adapt
to the changing conditions. It is not the same if care is provided by daugh-
ters, spouses, people of working age, retired or migrant carers as each
comes with different challenges, but the main point should be that condi-
tions are created for adequate informal care to be available in the future.
While the “disappearance of informal care” may well be an exaggeration,
perhaps the future carer will take on a role more focused on assisting
with Instrumental Activities of Daily Living and emotional support, which
is the area where elderly dependent people feel their needs are the least
met. This would allow the family carer not to have to pay too high a price
on his/her career and well-being by being relieved from some of the
burden of heavy care.
&RÏDÏRIQUE(OFFMANN2ICARDO2ODRIGUESs CARE OF INFORMAL CARERS
POLICY BRIEF APRIL 2010
15
Notes
1 Our definition of informal care refers to help provided to old-age
persons (aged 65 or older) who need permanent (for more than 6
months) assistance in carrying out Activities of Daily Living (ADL) or
Instrumental Activities of Daily Living (IADL), by informal carers that
may be partners/spouses, children or other relatives, neighbours or
friends, although a pre-existing social relationship with the person
cared for is not required.
2 Comprising tasks such as cooking, laundering, housecleaning or manag-
ing one’s medications.
References
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Bonsang, E. (2009) ‘Does Informal Care from Children to Their Elderly
Parents Substitute for Formal Care in Europe?’, Journal of Health
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Doran, T./ Drever, F./ Whitehead, M. (2003) ‘Health of Young and Elderly
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archives/ebs/ebs_129_en.pdf.
POLICY BRIEF APRIL 2010
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