What It Takes: Characteristics Of The Ideal Personal Health Record

San Francisco General Hospital, USA.
Health Affairs (Impact Factor: 4.97). 03/2009; 28(2):369-76. DOI: 10.1377/hlthaff.28.2.369
Source: PubMed


There is a gap between today's personal health records (PHRs) and what patients say they want and need from this electronic tool for managing their health information. Until that gap is bridged, it is unlikely that PHRs will be widely adopted. Current barriers to PHR adoption among patients include cost, concerns that information is not protected or private, inconvenience, design shortcomings, and the inability to share information across organizations. However, in the future, when these concerns are addressed, and health data are portable and understandable (in both content and format), PHRs will likely prove to be invaluable.

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    • "In addition, more evaluation studies should also be conducted, to complement current research [6] [7] [8] [9] [10] [11] [12] [13] [14] [15] [16] which, in our view, exhibit various limitations. The [6] [7] [8] [9] [10] [11] [12] [13] studies do not specify distinct evaluation criteria for PHR systems, but rather serve as starting points for requirements elicitation. On the other hand, the studies in [14] [15] [16] analyze the requirements of effective PHR systems in detail, and utilize them in the evaluation process of specific PHR system implementations. "
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    ABSTRACT: Personal health record (PHR) systems are a constantly evolving area in the field of health information technology which motivates an ongoing research towards their evaluation in several different aspects. In this direction, we present an evaluation study on PHR systems that provides an insight on their current status with regard to functional and technical capabilities and we present our extensions to a specific PHR system. Essentially, we provide a requirement analysis that formulates our composite evaluation model which we use to perform a systems review on numerous available solutions. Then, we present our development efforts towards an intelligent PHR system.
    Full-text · Article · Dec 2013 · Procedia Computer Science
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    • "A PHR, which is owned by any individual, includes sensitive information such as medical records (pedigrees), health exam records, drug sensitivities, and etc. [3] In the cloud computing context, the confidential PHR is uploaded to service providers' cloud servers, to share with related health-care organizations or individuals of interest. Therefore, the security and privacy issues become the major concern when a user is considering whether his/her PHR is to be put onto the cloud or not [4]. Security concerns are especially important because the cloud is open. "
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    ABSTRACT: While personal health record service is to be shifted to cloud computing, successful factors can be security and privacy protection and service efficiency. In this study, we propose a framework coherently employing the symmetric key cryptography and identity-based cryptography that offers a secured, private and full access control of relevant data to the owners of the personal health records, without sacrificing the cloud service performance. Moreover, the proposed framework is implemented as a separated cloud computing service in order to have better user trusts.
    Full-text · Conference Paper · Jan 2013
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    • "Our study likewise shows that patients’ adoption behavior will be influenced positively by subjective norms (OR = 1.47, p = 0.001). Finally, we must be aware that policy changes will likely lead to improved consumer adoption of PHR, such as expanding its functionality, establishing standards for PHR information, facilitating the unencumbered secure exchange of health information, improving consumers’ access to PHR, and helping consumers improve their understanding of the information contained in a PHR [28]. "
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    ABSTRACT: Usually patients receive healthcare services from multiple hospitals, and consequently their healthcare data are dispersed over many facilities' paper and electronic-based record systems. Therefore, many countries have encouraged the research on data interoperability, access, and patient authorization. This study is an important part of a national project to build an information exchange environment for cross-hospital digital medical records carried out by the Department of Health (DOH) of Taiwan in May 2008. The key objective of the core project is to set up a portable data exchange environment in order to enable people to maintain and own their essential health information.This study is aimed at exploring the factors influencing behavior and adoption of USB-based Personal Health Records (PHR) in Taiwan. Quota sampling was used, and structured questionnaires were distributed to the outpatient department at ten medical centers which participated in the DOH project to establish the information exchange environment across hospitals. A total of 3000 questionnaires were distributed and 1549 responses were collected, out of those 1465 were valid, accumulating the response rate to 48.83%. 1025 out of 1465 respondents had expressed their willingness to apply for the USB-PHR. Detailed analysis of the data reflected that there was a remarkable difference in the "usage intention" between the PHR adopters and non-adopters (χ2 =182.4, p < 0.001). From the result of multivariate logistic regression analyses, we found the key factors affecting patients' adoption pattern were Usage Intention (OR, 9.43, 95%C.I., 5.87-15.16), Perceived Usefulness (OR, 1.60; 95%C.I., 1.11-2.29) and Subjective Norm (OR, 1.47; 95%C.I., 1.21-1.78). Higher Usage Intentions, Perceived Usefulness and Subjective Norm of patients were found to be the key factors influencing PHR adoption. Thus, we suggest that government and hospitals should promote the potential usefulness of PHR, and physicians should encourage patients' to adopt the PHR.
    Full-text · Article · Aug 2012 · BMC Health Services Research
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